Living with stage four Prostate Cancer
Living with stage four Prostate Cancer
Hi, my name is Woody, on Sept 15th 2021 I was given the news that I have Advanced Metastatic Prostate Cancer, words that no man wishes to hear,
At first I was completely lost and frightened without really knowing who to turn to.
These videos are my experience of living with Prostate Cancer. Of undergoing radiotherapy , hormone therapy and all the the strange side effects that go with it and the never ending hope that the incurable becomes curable.
The aim of this channel is hopefully to help people who are coming to terms with their own experiences of cancer.
If you like the videos feel free to subscribe to my channel and come and join me on this journey , where it goes is not written. I promise you it will be honest and as positive as I can make it.
Woody ❤️
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I find this very poor treatment and can’t understand why. I visited my doctors in December 2023 to ask for a PSA test. Results within weeks…..MRI before the new year…..Biopsy in January…….told I’ve got prostate cancer in February….put on Hormone treatment……started radiotherapy beginning of June ….3 more treatments left. The treatment and support has been brilliant throughout. The NHS can do a first class job and should do. If it works at one Trust it should be copied elsewhere but the system is not connected so it fails. I’m just grateful that I’ve been so lucky.
Hi Woody, I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably. I would like to share the diet with you. The soup Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat. Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready. I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame. (Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.) During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame. It seems to be working for me, maybe it will also work for you. I pray to God the Father in the name of Jesus Christ that you will be healed. Amen. I would also like to share the following six videos with you about salvation and two videos about evolution: Evolution vs. God kzread.info/dash/bejne/p5eTuZuPpN2wYKQ.html DESTROYING Evolution In Under 3 Minutes kzread.info/dash/bejne/pYuZxbKworTcYsY.html Watch the Holy Spirit Work in Her Heart (Very Moving) kzread.info/dash/bejne/m3Z50atrpZnReaw.html Fearing The Lord, God’s Discipline & Sharing The Gospel kzread.info/dash/bejne/lnmHl7mQZpmzotI.html A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven kzread.info/dash/bejne/e4x5x6-Qc9vforQ.html The Plan of Salvation kzread.info/dash/bejne/gqGfyrSGgNnaj5M.html How to Get Saved kzread.info/dash/bejne/k56Lxs2uptW6ZtY.html The Truth About Hell (Selected Scriptures) kzread.info/dash/bejne/c4quxMqYlK_XY9Y.html Best regards Chris “For God so loved the world, that He gave His only begotten Son, that whosoever believeth in Him should not perish, but have everlasting life”. John 3:16 (King James Version Bible) Jesus Christ is the only begotten Son Of God the Father.
Hi Woody My PSA started to rise very slowly over the last few months Was stable at 0.1 for abour a year then went 0.2 then 0.3 and last test was 1.5 . Had a visit this week with urologist she has already booked me for a bone scan wiith a dye for tomorrow. Im worried and yes anxious for results i get a follow up with my Oncologist Midfle of July I finished my chemo treatmenf last Sept and been on Nubeqa and Zoladex and Zometa from day 1. Im not sure if they will change treatment or monitor the pSa awhile longer . The extreme fatigue the last couple of months has been awful. I agree with you the weather here in Ottawa Canada has been terrible im generally very upbeat but i found myself overwhelmed with grief and what if's . The sun always shines . Thanks for your video Woody i think many of us are on a very similar path . I reach out to everyone with Love and support . One day at a time . Like Tom McDonald's song Cancer "The days are long and the nights are hard "
I had my prostate and four lymph nodes removed robotically on 4-1-19. The surgeon said he found no cancer in the surgical area. By 7-30-19 my PSA was 0. However, by 11-7-19 my PSA had risen to 1.9, then 10.9 by 2-8-20, finally to 13.7. My urologist put me on bicalutamide and lupron. By 5-14-20 my PSA dropped to 0.2. I was then put on erleada in addition to lupron. My PSA dropped to undetectable as of 9-15-21. However, by 3-18-22 my PSA was 0.17. I had a PET scan and by 9-11-22 my PSA was 0.38. It was then my oncologist started me on taxore chemo. I had four cycles of taxotere, yet my PSA kept rising to 2.14. I lost all my head hair and most of my eyebrows. My oncologist then switched me to jevtana chemo. Lo and behold my head hair grew back, but my PSA still rose to 2.86. The bottom line is that chem wasn't working for me. Since I met the all the criteria, I was then switched to pluvicto (lutecium - 177), a nuclear form of chemo. I had six cycles of pluvicto 6 weeks apart. My PSA only dropped to 0.184 by 4-24-24. My PSA rose to 0.274 by 6-13-24. I don't know what other treatment can help me. While I'm still on lupron, my oncologist also put me on xtandi. With regard to chemo side effects, for me I didn't notice much until about 48 hours after my infusion. By then my red blood cell count must have dropped significantly. At that point I became very tired and fatigued, lasting about 5 days (over and above the fatigue I had from the lupron shot). Then, for the next two weeks I felt pretty much normal (ready for the next chemo infusion which was spaced three weeks apart). Also, my taste buds were greatly affected, and food I liked had little appeal to me. While I didn't like the negative side effects of chemo -- it would have been worth it had the chemo worked for me to bring my PSA down, but it didn't -- it went up. I've been told I have a more aggressive form of prostate cancer and standard treatments don't work as well on me. Hopefully, your form of prostate cancer is far less aggressive and you will have better success. Good luck.
Good attitude. You’re so right about worrying about things you can’t control. Keep the faith and good luck on your pet scan.
70% of cancer patients die from fear
Can I ask if you have had cancer yourself
God bless you ❤
Hope it’s the start of a great trend!
That would be good
Woody- my mets also “disappeared” on the mri. So I decided to get a pet scan privately. They wouldn’t give me one on the nhs . I knew that it had a good chance of throwing up something as it is so much more sensitive than the MRI. I was therefore mentally ready when they said that the mets were there. A bit of a bummer but at least I know what is going on. On my last meeting with my NHS oncologist he agreed to give me another pet scan in 6 months time so we can compare it to the first one and see how it looks. ( so I save the £3.5K whoopie!) good luck with yours-we are all different and our disease is different so I hope you have a clear scan of your old mets. Keep the videos coming-they are a big help
Thank you Derek, I’m a bit nervous about the scan as I’ve had a few pains lately that haven’t been there before . Is it all in the mind maybe ?
@@Livingwith-prostatecancer yes it is a b!tch . You notice any small ache or pain and you think it’s from the met. Good luck with your scan
The time does fly by Woody. Always filling up my pill dispenser, and seeing my doc for the three month injection. We have a great system here in Canada. The pharmacy (chemist as you say) delivers the injection to the house, so i can just take it with me to the docs office, and the Xtandi is delivered to the closest pharmacy to my home. I get a notice on my phone when it has come in. My scans are everything six months in the city, and are scheduled in one day. Results on a zoom call, so i don't have to go back into the city. Happy with the care. Hope you're having a good Sunday with your family, regards, Carl
That sounds like such a well organised way of doing things and probably a lot less stressful
Woody it is not easy living with prostrate cancer...your personal purpose carries you through. I accept having bad days. Blessings Woody.
Thank you , I think having bad days is just part of the deal, but it’s not everyday and for that we have to grateful 🙏
Good man your looking great 👍 .
Thank you kindly
Woody I was on Zoladex for nearly 3 years until 11/23.
Well done woody with the psa keep going mate it's a journey my the sun shine on you Keith
Thanks Keith
That’s really positive news, to reverse the trend is hopefully the start of a permanent recovery, all the best😊
looking well Woody, that colour suits you
Thank you I was feeling well, it’s amazing how good news changes the way you feel
It sure does , and a proper kick in bollox when results come back and not the good news you hoped for , snakes and ladders
I agree, it’s an emotional rollercoaster all the time. My PSA drops but I’ve got a new tumour.
Hi good news about your psa my husband had a pet scan in December it’s the best scan you can have best wishes❤️
Glad Woody your PSA fell slightly to 2.64. I presume that you are still on ADT.
Yes I am, I’m thinking it may of stopped rising because I’ve changed to Zoladex from Degarelix
Good luck.
I think having cancer brings us to have realistic thinking. Hormone therapy doesnt kill cancer, makes it sleep for some time only, chemotherapy mostly doesnt kill all cancer cells, radiation therapy is relatively good option for cancer spots. Lutetium helps for about half a year, so in my small country Slovenia every day one or two men die of prostate cancer. In spite of going through antihormone..chemo etc therapies. Therefore having netastatic prostate cancer is not an easy burden. And every NHS has not money to pay for all possible therapies.
And yet Dusan there are still people that defy the odds. For some reason that isn’t properly known there are a small but growing number of people that go into what is called spontaneous remission. As long as that is the case I believe we all have a chance of healing as long as we make adjustments to our lifestyles that cancer can’t thrive on.🙏
Dont believe too much in NHS, lately I have lost my oncologist, and have at each meeting another person which is terrible.
Love you brother
Great to hear that you've had a bit of positive news - I feel that you have been just as instrumental in your recovery as the NHS has with your attitude, diet and mind set. Looking forward to hearing more good news.
Thank you, I’m looking forward to hopefully telling you more good news
Sir what your psa results
Thank you for the encouragement
I've always found that once you get to treatment the clinical stuff is good but the admin is terrible. Recently I had to travel 20 miles to hospital to pick up a prescription for UTI - they could not send it electronically to either my pharmacy or instruct my local GP to issue one, this in 2024, so I had to travel to pick up a piece of paper!. Later on I received a phone call from Radiology asking why I had missed my appointment. I said I had no appointment, no phone call, no letter, nothing. The Radiologist said she was not surprised and a booking was made for a week later. This is why the NHS wastes so much money- the admin is crap,
Sadly I have to agree with you it’s got worse in the last year
Omg
Good luck woody keep fighting
Thank you
Best wishes always Woody
Thank you 🙏
During my 4 year PC journey there’s been unfortunate mistakes. Keep strong Woody.
Woody...your shared frustration seem to be normal....I have cancer and the quality of my care is directly related to my advocating for myself. Good job Woody. Remember if you're lacking confidence, look for other services somewhere else. Human error is not always easy to accept.
I think human error is difficult to cope with, especially when you are dealing with possible life affecting mistakes
Woody this appears to be very good news, and I'm so happy to see you are in good spirits! Also you are advocating for yourself within your NHS system, ensuring you get the treatment you know you need and helping them to avoid mistakes. It's the only way to go. We all have to keep on top of understanding our treatment and ensuring it's done correctly. In our public system in Canada (there is no private system -- in fact it's prohibited) we also have limitations on access to things like PET scans (not enough machines, technicians or money to pay for them) so it's great to hear you will get one. PET is a very advanced technology. One year after completing radiation and ADT I had my regular 3-month PSA test this week and it's down to 0.01 for the first time since the initial two years in 2014-15 after my prostatectomy. Almost a decade. Radiation and drug therapy work well on prostate cancer. Sometimes the side effects are difficult, but they're manageable. Many of us have been given so many extra years to enjoy life. Just keep going. There are many good and great days ahead of you! Cheers, Reid
Thank you Reid . It’s interesting to hear that in Canada private health care is prohibited I had no idea. Yes, I’m grateful to be offered the PET scan and the targeted radiation. I’m glad your PSA is so low and long may that continue. I guess we are lucky to be living in an age where treatment for Prostate Cancer is so advanced and getting better all the time. It’s worth putting up with the side effects to see my young children developing into beautiful young adults ❤️
Hiya, I recently had 20 sessions of radiotherapy to target the cancer within the prostate. Pleased to say it worked. My latest PSA 0:22.. It's been a 5 yr journey for me. Stressful at times. But it has been worth it. Hang in there Woody. You'll be fine. Good luck.
Thank you Keith it’s always helpful to hear what others have gone through. I did have radiation when I was first diagnosed so this will be interesting to see how it goes
I think you are being to kind on your words for the NHS, and the quality (or limits on quality) and on the equally or greater importance on the timeliness of care. These deficiencies are not unique to Britains health care system, but are a fixture of virtually all national run health care systems. Best of luck with the results of your next appointment. Carry on.
I think the NHS is amazing in many ways but clearly it’s broken when it comes to the administration of its patients.
@@Livingwith-prostatecancer Well, is not taking care of its patients it’s number one function? And it is broken? I guess I am lucky to have very good private health insurance (which I pay a tidy sum for) here in the USA, that has allowed me numerous options in evaluating and treating my prostate cancer, with very short wait times for diagnostics and treatments. I hope your PSMA (PET?) scan goes well. I may have commented in a previous video of yours that I was lucky to have my PSMA PeT scan confirm that my cancer (Gleason 7, 4+3) was confined to my prostate and even more lucky to find out about an unknown Aortic Aneurysm that needed surgery. I joke that my prostate cancer saved my life since the aneurysm would have “affected” me long before the cancer. Again, good luck to you and I appreciate you sharing your treatment journey.
Hi Woody I watch Dr Mark Scholz at PCRI, this guy 30 years Oncologist prostate only, nothing else, he is the only Dr I have heard dare to mention the words cure rather than control, the path you now on is exactly what he does, PSMA pet scan and radiate the offending areas, Cock ups in system , NHS in big trouble, overwhelmed I would say, good luck Woody, keep us posted, PS ask your Oncologist if she fancies a transfer to South Yorkshire, we could do with someone enlightened like her up here Phil
Mark Scholz I find very helpful
I wish he were my Oncologist. Phil
I guess I’m lucky to have her , it’s a bit of a lottery. She was all for chemo before my latest scans, her expectations were a lot worse than actually is happening hence the change of treatment. My oncologist has never said cured she says my particular type of cancer is aggressive and incurable according to the biopsy results , I’ve always said that if one person can heal then so can I. It’s so important not to accept it’s incurable 🙏
I wish could find a Dr. Scholz in my locale.
Hello Woody. I can understand your frustration in regards to appointment and such. Second time around for treatment for me after 12 yrs. I have a story for you as well. When i went back after 12 yrs to get my legs molds made for radiation, i saw the same person that made my last set of molds. She saw this on the chart, and she was amazed that i remembered her name. She told me i had no prep like last time (full bladder) and just show up. Well on the day of radiation, the technician said that i had to have a full bladder (that is for radiating the prostate bed, so the bladder moves away, and doesn't get fried) I told the tech that i had no prep involved, as my radiation is for a single lymph node. They sent me home, as their info and calubrations were designed for prostate bed radiation. I said the same thing you said, what if i was old, and what if the mold tech hadn't told me i had no prep. Good news. Next day my oncologist was there i heard, watching the radiation session. Stuff happens..you're not alone. Cheers, Carl
US here. Those errors happen even more in for profit medical care. Lots of confusion in the medical system trying to increase their profits . I wish we had an NIH.
I guess it’s the same no matter what kind of healthcare you get. I do think our NHS is incredible, but it’s overwhelmed and braking down , I hope it can be repaired.
It seems to be the season for mix-ups and medical change-ups. You, me, and Adam from #anythingispossible all experienced weird change-ups from our medical teams. It adds a kind of stress we don't need. We're supposed to believe in and trust in our care teams. Sorry you're going through this. Grateful for your videos.
I hear you brother. I've been on my cancer journey for about 3 years and the most astonishing thing I've learned is how often these medical providers screw up. I had profound respect for the Doctors, and still do, but I learned you have to watch and question every move they make. It's a big medical machine here in the US, and the tendency is to push appraisals and decisions down to PAs (Physician Assistants). In my case, one PA made an error that severely degraded my quality of life for about 6 months. You MUST research. You MUST seek second opinions. You MUST be aware that only YOU are ultimately responsible for your own well being.
Sadly I agree, and I’m sorry to hear how it degraded your own life I can see easily how this happens. I’m wishing you well for the future.
Good to hear your doing OK. I start chemo next week. This cancer stuff stinks for sure.
It does and I wish you the best in your chemo treatment 🙏
Best of luck for next few weeks. Iam on a similar journey by the sound of things. Always encouraged by your talks. Mind yourself, god bless Phil.
Thanks Phil
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Good luck sir for your psa test plz mention the results as well ❤😊
Thank you, I will 🙏
Sir can u plz tell me your current psa ?
I can’t remember exactly but it’s doubled from previous month , my next test is on Friday
I don't understand why you need to wait so long for some of your test results....
Neither do I . It’s a very frustrating thing I have to put up with being with the NHS
So glad your walk for Prostate UK went well Woody. Thank you for your wise advice about coping with scanxiety. My husband is on a similar journey, diagnosed two and a half years ago and facing PSA and scan this month. The logical part of the brain might tell you there is no point in worrying as it won't affect the result, but it's so hard not to. I find playing the ukulele with other people requires total concentration and is a good distraction. And you don't have to be very good either! Good luck on Thursday. Will be thinking of you.
Thank you, I think the ukelele is a brilliant idea I’ve just purchased an acoustic guitar so I’m going to have a go and see if it can help. I have heard others say about learning to play an instrument it’s a great thing to do to take the mind off the cancer. Best wishes to you on your journey 🙏
In my prayers Woody
Thanks Anthony as you are in mine 🙏
Thank you for sharing this Woody...I always find you inspiring 🙏
I appreciate that thank you 🙏
Well done Woody. I hope new CT scan goes well.
It appears the new CT scan was a cock up as I had one just two weeks previous to this one. Reasonable news I suppose, the emergence of a new tumor but most of the rest are disappearing so in all better than the oncologist expected
Good luck Woody, you looking well phil
Thank you