Overcoming Scan Anxiety
This week sees the return of the scans CT and Bone scans, this to establish whether it’s chemotherapy next or delay it a while longer.
I’m keeping positive thoughts and no matter what the scans show I still believe I can win this battle.
Thank you for watching this video, I’ve been making these videos as a vlog sharing my journey through Advanced Metastatic Prostate Cancer.
My world literally fell apart on Sept 15th 2021 when I was diagnosed with Advanced Prostate Cancer which according to my Oncologist is incurable (although ive never accepted that) Questions such as how long have I got left how bad is it , in fact, a whole host of frightening thoughts, where suddenly swarming around my mind and exploding at opportune moments when I felt most vulnerable.
If I were to be honest, I was lost and lonely to begin with. People don’t know how to deal with someone who has stage four cancer. It’s a taboo subject. I honestly didn’t know who to turn to for help. It can be a dark place and I only wish I could have found a channel such as this to help me through those early days.
I started writing a blog whilst I was in hospital and recovering at home after the initial treatment phase.
I then decided to make this vlog because it seemed a better way to get my story out there. I want to provide a channel where I would continue telling my story for as long as I can and invite comments from others that can also help and share their own experiences.
Cancer can be a lonely place, and I hope this channel will help someone else who may be a bit lost and feel alone whilst dealing with their own diagnosis and experience.
Nothing is ever as bad as you think it will be, and that seems to be the case so far with my experience with Prostate Cancer.
Thank you for watching the video. Please comment and subscribe if you feel like it, and please share the videos with anyone you think may find them helpful
Woody ❤️
Пікірлер: 38
Woody your dialog is always from your heart, you reflect living with prostrate cancer. Thanks for sharing, and you be strong.
@Livingwith-prostatecancer
Ай бұрын
Thanks Ennis
Thanks for sharing your story. I’ve started having PSA tests as I’m in my late 40s. There is a new initiative called TRANSFORM being launched to look into the best way to screen for prostate cancer.
@Livingwith-prostatecancer
Ай бұрын
Yes, this is very exciting, I got a call from Prostate Cancer UK a few weeks ago about this. It seems the medical world are taking us seriously about screening for this cancer.
I was so worried about that too. I just got my genetic results and glad to report I do not carry the BRACA 1 or BRCA2 mutation and 34 other genes. All were negative. Keep the faith brother!
@Livingwith-prostatecancer
Ай бұрын
That’s great news
@RICHARDINTHEKITCHEN
Ай бұрын
@@Livingwith-prostatecancer Thanks bud! I’m praying for you. This has been a nightmare!!!! I had my PSMA PET last week which shows no spread. I meet either the uro next week to discuss treatment. I’ve done so much research and I’ve found that with a negative PSMA scan I can forego the hormone treatment and repeat the PSMA IN 6 months after surgery. If something lights up I’ll do spot radiation in its baby stages to eradicate it.
It's hard woody stay strong we all thinking of you it's a bumpy journey Keith
@Livingwith-prostatecancer
Ай бұрын
Thank you Keith it certainly is a bumpy ride but it could be a lot worse I suppose
I have never thought of being polite to the machines! I am always polite to the doctors and nurses and other healthcare workers. They do an amazing job and we can show our appreciation and gratitude by treating them with courtesy and respect.
@Livingwith-prostatecancer
Ай бұрын
It’s just a thing I’ve been doing since the start, sounds crazy I know but the machines are doing there bit so I thank them😀
You're welcome Woody. I'm in a study, so i get scans every six months. They schedule them in one day, as it's a bit of a drive. My next set of scans are in June. Like you say, one has to keep in mind that the scans are there to help us. Thanks for the reminder, as scanxiety is always present. Got a tip for the fatigue. Have a coffee late afternoon. It will keep you going through the evening, but won't affect your sleep. (Zoladex and Xtandi tend to wake me up a bit, but after nine months, the hot flashes are getting less, and sleep is better). We really have to take it one day at a time. Thanks for the reminder. Enjoy the weekend, rest! Regards Carl
I am deeply grateful to you, dear Woody, you gave me aleays a lot of moral help to not fall in despair. My heart and best wishes for your health are always wit you. You will winn over cancer for sure.
@Livingwith-prostatecancer
Ай бұрын
Thank you Dusan, you are a true inspiration yourself to others after what you’ve been through and you are still fighting 🙏
I am in onkouni hospital in very serious metastatic stage, nerval compression and cant walk any more. But after mri, ct, I get now 5 cycles of radiation and legs are some better. Can walk 30meters. So I am full optomist, not depressive, must endure psa about 600now. But it goes. It goes well.
@Livingwith-prostatecancer
2 ай бұрын
Thinking of you Dusan keeping optimistic is so good for you.
@carledquist4039
2 ай бұрын
Listening mate
@jys160
2 ай бұрын
Try tomato sauce therapy. Take 20+ grams of tomato puree or paste 3 times a day with added spoons of ketchup. It's working for me. It's worth looking into.
@dusanjez2011
2 ай бұрын
I will.
@dondgc2298
Ай бұрын
@@jys160please show me a medical study where tomato sauce cured advanced metastatic cancer.
You are the classic "glass half empty" kind of guy.
@Livingwith-prostatecancer
2 ай бұрын
Am I , I certainly don’t mean to be.
Woody it’s good to enjoy fine weather and you should not feel guilty.
Always in my prayers
@Livingwith-prostatecancer
Ай бұрын
Thank you 🙏
Woody please don’t beat yourself up about the gene pool. I totally understand where you are coming from. My husband has advanced prostate cancer and we have a son so he needs careful vigilance . You are amazing person and battling this so well. Good luck with the walking 👏
@Livingwith-prostatecancer
Ай бұрын
Thank you very much and good luck to your husband too🙏
So never give up. Bad moments come, bad moments go. You will live long, but some limitations might come in a bearbalbe, easy way.
Woody, bone scans and Chemo, had that and probably will again , Dr Mark Scholz 30 years Oncologist dealing with Prostate cancer only, not jack of all trades, you tube PCRI , his preferred treatment in this case is PSMA pet scan and radio offending area only not chemo everything including good healthy cells, I am in South yorkshire and there is a PSMA pet scan at Western park but I have not been able to access it so far, I am interested to know is there any areas of UK where oncologists are more enlightened, educated than mine in South Yorkshire, Phil
I am a bit claustrophobic like you Woody, but the scans don’t bother at all - I just shut my eyes (and think of England!) I had a PSMA -PET scan last week my first will find out this week how that stacks up against what the MRIs show. Good to hear that the exercise is going well it is key to beating this!
@Livingwith-prostatecancer
Ай бұрын
How did the results go Derek my thoughts are with you🙏
@derekness7900
Ай бұрын
@@Livingwith-prostatecancer Thanks Woody. The pet scan showed up mets that had disappeared from the mri scan. I was sort of expecting that as the pet scan is so much more sensitive than the MRI. I now have a baseline pet scan, so I can get another one in 6 months and see how they compare. A week ago I had another MRI scan ( that will be my third MRI) so we will see how that looks as well. I think that the more data you have the better the
Hang in there Woody! How much did PSA double? Were you on oral chemo at all? You know we are twins on this path of prostate cancer. I get new scans in a few weeks. Just finished two weeks of radiation - my fourth time! Had the biomarker test and it came back with results that indicated prime for prostate cancer…duh! I have it already. Liquid chemo is on the horizon if my psa continues to climb. Yes, we get tired of all the tests, scans, pain…..but we are still greeting the sunrises! So hang in there buddy.
@Livingwith-prostatecancer
Ай бұрын
My PSA is still rather low but it’s gone up again today to 2.6 from 1.7 so the rate has slowed down a bit which is good news, but my oncologist wants me to start chemo next it all depends on my scan results which I’ll find out about on June 6th. I try to put it all out of my mind and focus on living as well as I can.
Dear Woody do not fall in the medicine trap of fear what all bad genes you might statistically cary to children, the same number of bad genes carries your wife for sure, so father and mother are equal in any case and result. Medicine is not always patient friendly!
@chrisnortney3344
2 ай бұрын
Sorry you are not woody many apologies !