Hang in there… I get my scans June 6 and labs June 20 and suspect I ll start chemotherapy if it shows psa rise. Your vids really help me get my mind in a positive place. I’m just starting to feel the leg nerve stuff that you predicted and experienced. Good luck with your walk.,

Good to see you Woody. Always look forward to your videos. Hope you enjoyed the fence painting with your daughters. If you feel the walk is too much part way through, just have someone meet you and take you to the end. I've learned that flexibility is the key. Some days are good, and some days not so good. No pressure is the key in everything, while dealing with this. I've learned.

@Livingwith-prostatecancer

Ай бұрын

Im determined to do the walk , but I won’t beat myself up too much if I can’t . I know what you mean about some days are good and others not so. I’m hoping June 1st will be a good day

Hi Woody, i documented my journey in a video diary and i watched them back from 2022 the other day , so the first round and all 6 session in fact went the same way ,you go in , it takes about an hour and a half , then you feel a bit drunk at first ,then the next day you are on drugs for 3 days that kind of cancel out all the negative side effects like nausea and not even feeling tired , i was fine , then after 3 days I would come off the medication and the fatigue would kick in and some nausea , the fatigue was full on , i was taking naps quite a lot , then after 3 days that would pass and i felt more or less normal , went out and didstand up paddle boarding everyday, so honestly i wasn't too bad , you will have some nausea and you will be tired, I never once vomited !! so stay strong and if you have any questions don't hesitate to ask. PS I am still in full remission , tests next month ( which I still dread !! )

@Livingwith-prostatecancer

Ай бұрын

Thanks for the advice it’s so appreciated and good luck I hope your results are good 🙏

Woody I am sorry that your PSA is 2.6 and going on to chemotherapy. Keep strong and positive.

@Livingwith-prostatecancer

Ай бұрын

Thank you Mike

Thanks again for the videos. Much appreciated. You are loved. Strength will come as you face the hurdle. Cheers.

@Livingwith-prostatecancer

Ай бұрын

Thank you Ian

I had my prostate and four lymph nodes removed robotically on 4-1-19. The surgeon said he found no cancer in the surgical area. By 7-30-19 my PSA was 0. However, by 11-7-19 my PSA had risen to 1.9, then 10.9 by 2-8-20, finally to 13.7. My urologist put me on bicalutamide and lupron. By 5-14-20 my PSA dropped to 0.2. I was then put on erleada in addition to lupron. My PSA dropped to undetectable as of 9-15-21. However, by 3-18-22 my PSA was 0.17. I had a PET scan and by 9-11-22 my PSA was 0.38. It was then my oncologist started me on taxore chemo. I had four cycles of taxotere, yet my PSA kept rising to 2.14. I lost all my head hair and most of my eyebrows. My oncologist then switched me to jevtana chemo. Lo and behold my head hair grew back, but my PSA still rose to 2.86. The bottom line is that chem wasn't working for me. Since I met the all the criteria, I was then switched to pluvicto (lutecium - 177), a nuclear form of chemo. I had six cycles of pluvicto 6 weeks apart. My PSA only dropped to 0.184 by 4-24-24. My PSA rose to 0.274 by 6-13-24. I don't know what other treatment can help me. While I'm still on lupron, my oncologist also put me on xtandi. With regard to chemo side effects, for me I didn't notice much until about 48 hours after my infusion. By then my red blood cell count must have dropped significantly. At that point I became very tired and fatigued, lasting about 5 days (over and above the fatigue I had from the lupron shot). Then, for the next two weeks I felt pretty much normal (ready for the next chemo infusion which was spaced three weeks apart). Also, my taste buds were greatly affected, and food I liked had little appeal to me. While I didn't like the negative side effects of chemo -- it would have been worth it had the chemo worked for me to bring my PSA down, but it didn't -- it went up. I've been told I have a more aggressive form of prostate cancer and standard treatments don't work as well on me. Hopefully, your form of prostate cancer is far less aggressive and you will have better success. Good luck.

@Livingwith-prostatecancer

Күн бұрын

I am sorry to hear what you are going through and it sounds like a real rollercoaster ride with your PSA levels. I’ve been on xanti enzultamide for nearly three years it did bring my PSA down from 288 to 0.01 and stayed that way for a long while, just recently it’s started to rise all be it very slowly. My biopsy originally revealed I have a very aggressive type of PC I’m guessing so far I’ve been really lucky that it hasn’t acted aggressively. I hope they find the right treatment for you that gives you a better result 🙏

@1royalpalm

Күн бұрын

@@Livingwith-prostatecancer My oncologist told me new prostate cancer medicines are being developed all the times. Hopefully, some will be developed to arrest our cancer until we die of some other cause.

@Livingwith-prostatecancer

23 сағат бұрын

That’s exactly what my oncologist said too, in fact when I was first diagnosed she said that if ever there was a good time to have prostate cancer then it’s now there is a lot of research going on right now.

Woody I am only 77 weeks in, but I am heading for the same place you are going through now. Up to now it's been rather easy, but the inevitable rise of the PSA will dictate our future. Going 32 weeks without requiring Chemo was an achievement in itself Woody. You have the right attitude and I am sure you will handle this well. Best to you.

@Livingwith-prostatecancer

Ай бұрын

137 weeks so far without chemo, hoping for a few more , will find out in a few weeks time

I'm with you woody. I too am in the same boat. Peace , keep it up brother

@Livingwith-prostatecancer

Ай бұрын

Thank you Steve, the same to you to

Sorry to hear that chemo possibly is in your future. I would like to respond why people like me listen to your program. You give cancer humanity, having purpose in life allows a person to deal with cancer with strength and tenacity. Your sharing helps your listeners in that way. Follow your doctors advice Woody. Blessings.

@Livingwith-prostatecancer

Ай бұрын

Thank you so much that’s such a kind thing to say and makes me feel very appreciated to do these videos

You are an inspiration x

@Livingwith-prostatecancer

Ай бұрын

Thank you Dawn

Keep going woody, you’re doing great😊😊

@Livingwith-prostatecancer

Ай бұрын

Thank you, I will Paul

Im rooting for you Woody!

@Livingwith-prostatecancer

Ай бұрын

Thank you

Woody. From the moment your backside hits the big chair, you will, without doubt, become almost warrior like. As men, our factory setting is to find strength when you need it. You will. One bit of advice buddy, start to get your hair trimmed gradually, so both you and your loved ones don’t get that sudden shock of hair loss, which can make us look unwell. If I had my time again, I’d get a No. 2 then a No. 1 and people won’t be as shocked, most of all you. You’re a strong man. We’re all with you.

@dusanjez2011

Ай бұрын

When I had this same chemo, most of my hair REMAINED on my head!

@Livingwith-prostatecancer

Ай бұрын

Thank you John, great advice about the hair I will start reducing the cuts, I hope I can become a warrior 🙏

@dusanjez2011

Ай бұрын

I did not loose my hair under chemotherapy for mpc.

Hey you may lose your hair and your taste buds. I had Docetaxel chemo. Not a pleasant experience. But it worked. I hope it works for you. Keep a positive mind.

@Livingwith-prostatecancer

Ай бұрын

Thanks Keith , I’m going into this with a very positive attitude as I know that can change everything

Hi woody you can do this my husband has just had is third chemo prostate cancer why don’t you cut your hours of work plenty fluids day before and after chemo keep positive love to you and your family ❤️❤️❤️

@Livingwith-prostatecancer

Ай бұрын

Hi Patricia, I love my job but I won’t go overboard with it , I’m lucky I’ve got an amazing boss who is very supportive

Woody look into having a psma pet scan to locate the recurrence ca and then consider stereotactic radiation. As well as chemotherapy.

@Livingwith-prostatecancer

Ай бұрын

I don’t this type of treatment is available on the NHS to treat prostate cancer

@andrewharms2460

Ай бұрын

Hi Woody , I’m stage four in remission for past 12 months. The psma scan is widely available in Adelaide. The cost is about $ 900 aus privately but because I’m stage 4 I only pay 300$ . I’m also on daraludamide tertiary pills costing $30 per month . They are subsidised by Medicare $48,000 per year . My hormone blocker injections are $ 30 for 6 month single shot . They have told me if I need it they can do it in the Royal Adelaide Hospital for no cost . Check out nhs and pester them I bit . These new approaches may be available in major teaching hospitals in the uk . I hope this helps you .

@dusanjez2011

Ай бұрын

In my country psma test it is also not available. So ct scans or mr are done, which also show hot spots.

Hi Woody I’ve come in late to your story but I feel so privileged to hear you. Was there no chance of surgery?

@Livingwith-prostatecancer

Ай бұрын

Hi Alice I was never offered any chance of surgery I think it was because the cancer had spread to many parts of my body , although most of it has gone now.

Listen carefully: my top Slovene oncologist gave me prior to chemo something else: Apalutamid tablets daily, it stopped cancer for almost two years, with small side effects. Only later I had chemo which had many side effects and fatigue. So I was happy and strong under Apalutamid. Could work and all...

@dusanjez2011

Ай бұрын

Apalutamid is but not a cheap drug. My insurance covered it.

@dusanjez2011

Ай бұрын

Apalutamid is a wonderfull drug with so little side effects. Two years of normal life, my psa went from 700 to under 1 !!!!!!

@Livingwith-prostatecancer

Ай бұрын

That’s sounds good Dusan

It is also enzalutamid, abirateron, darulutamid. And chemo. Maybe chemo first is stronger, better decision, really hard to tell. I had chemo later, it helped also, of course.

@Livingwith-prostatecancer

Ай бұрын

Yes, I’m on enzultamide now for two and a half years , I think it’s coming to the end of its effectiveness

@dusanjez2011

Ай бұрын

@@Livingwith-prostatecancer ah so, yes, I agree. Apalutamide was good for me two years then no more unfortunately, and then comes chemo no doubt.