Пікірлер

• 
  @mauliksuthar78075 сағат бұрын

  Hie Steve Actually I diagnosed with CML CP on 29 Feb 2024. I have not done base line PCR. After 3 month of treatment my PCR value is 3.554% IS value. How would I know my log reduction?? Means how many logs have to decreased??

• 
  @preetithapa6766Күн бұрын

  Great information I was diagnosed with cml February 2023 and I am taking 50 mg dasatnib and now my reports were in 2024 June( not detected) of cml

• 
  @healCMLКүн бұрын

  That is great to hear! Thank you for sharing.

• 
  @Moni4u2 күн бұрын

  Are you oke

• 
  @healCMLКүн бұрын

  Yes we are doing well, thanks for asking. How are you doing?

• 
  @Moni4uКүн бұрын

  @@healCML i am also good

• 
  @MarvelBurke6 күн бұрын

  We are gathering examples of recent video work. Could you share your latest uploads for our creative analysis project?

• 
  @cristaldelacueva15786 күн бұрын

  I love the way you guys stand up right away 😂. I feel the same thing and jump! from the chair-and go for a walk under the trees 🌳I live in Napa valley, I have diagnosis with CML august 2023 after a TKI stop working I am on sprycel and feeling great!! Thank you for this beautiful videos.

• 
  @healCMLКүн бұрын

  Thank you for the comment!

• 
  @susmithanimushakavi64267 күн бұрын

  Please do more videos why did u stop?

• 
  @healCMLКүн бұрын

  Is there any video topics you want us to record? Thanks for your comment!

• 
  @nehaslife111311 күн бұрын

  BCR ABL 0.728 iska kya matlab hai??? CML Case Kam ho raha h jyada???. please.bataye??

• 
  @siachbolata18 күн бұрын

  Bcr abl is 26

• 
  @mariamkalule851919 күн бұрын

  Hello i need your help a sick cml

• 
  @healCML17 күн бұрын

  What do you need?

• 
  @mariamkalule851917 күн бұрын

  @@healCML for how long did you take the medicine

• 
  @healCML14 күн бұрын

  @@mariamkalule8519 I took my Tasigna for 8.5 years.

• 
  @mariamkalule851913 күн бұрын

  @@healCML did you take 4 tablets throughout the entire medication course

• 
  @healCMLКүн бұрын

  No. I started with 4 and eventually ended up taking 1.

• 
  @mauliksuthar7807Ай бұрын

  Hie Stephen My name is Maulik and I am from India. First of all I have appreciate your videos for good information shared. I am diagnosed with CML CP in Feb 2024. I have been starting my Imanitib on 29/02/24 and I obtained CBC report perfectly. First time I have done PCR test on 22/03 and obtained 3.368% IS value and again I have done the PCR test 23/05 and obtained the 3.554% IS value. My all reports like CBC, SGPT and Screatine are normal. My HB is 14%, My WBC are 8800, My Platlets are 227000. I am little worried for PCR as it has to increased. This is the information of my treatment. I have completed 3 months of treatment.

• 
  @healCMLАй бұрын

  Thank you for your comment and sharing your numbers. I would not worry about the PCR going from 3.368 to 3.554. Those numbers are very similar and you will need a few more PCR tests before you can say there is a distinct upward swing.

• 
  @mauliksuthar7807Ай бұрын

  I have completed 3 month of treatment. Today I also met to my oncologist and he told me results are good and with in range.

• 
  @mauliksuthar7807Ай бұрын

  @@healCMLThanking you for your comment😊

• 
  @RazJDАй бұрын

  I was diagnosed wity CML at when i turnt 18, (22 now also male), i started dasatinib and after a year and half they took me off it (due to inflammed gland in jaw) and started nilotinib since have lost hair over time, and now it looks quite bad, dermatologist saif its a mix of telogen effluvium and androgenetic alopeicia. My doctor for CML recently asked me if i would like to change to Asciminib to help stop the hair loss. I recently started topical minoxidil but am unsure if i should stop it since its only been a few days.

• 
  @healCMLАй бұрын

  Thank you for your comment and sharing your experience. It’s definitely a challenge to know what to do as you won’t know what the experience is like on a new drug. It would be interesting to see after some more time if the minoxidil works.

• 
  @yamgarcia9045Ай бұрын

  i was diagnosed CML the doctor told me 5 years medication now im taking Dasatinib (Sprycel) she told me is life time thank you for your channel hopefully im free cancer after 5yrs medication

• 
  @healCMLАй бұрын

  Thank you for your comment and your support. Yes! Hoping you can be cancer free after 5 years.

• 
  @vaneternal56102 ай бұрын

  Been watching your channel for reference and tips for my partner. We just received our 21st month results on treatment, and it’s our first increase. Latest was 0.011 and now it jumped to 0.069, they’re still good numbers but always a worry as you’re expecting a continuation of down trend. But from our small observations - the past three months we were less strict with our exercises and diet. We started to consume small amounts of alcohol a glass of wine or two once in a while. Also since the diagnosis we were consuming 6mg of curcumin c3 complex daily, but it ran out of stock lately and we stopped. So maybe thats a correlation with the increase.

• 
  @healCMLАй бұрын

  Thank you for your comment and sharing your partner’s story. I have heard that curcumin can be good for CML so it will be interesting to see what would happen if you can get it again. It is definitely stressful to see an increase. When is the next test? Did the doctor express any concerns?

• 
  @vaneternal5610Ай бұрын

  @@healCML no concerns were expressed, next test is in 3 months. As long as the increase isn’t above 1 log, theres not much worry.

• 
  @toniraearebonilla98382 ай бұрын

  Thank you

• 
  @healCML2 ай бұрын

  You're welcome

• 
  @geethaparker92762 ай бұрын

  Thank you 🙏

• 
  @healCML2 ай бұрын

  You’re welcome 😊

• 
  @FlaGrown19552 ай бұрын

  THANK YOU!

• 
  @dinesh987.kumarkumar22 ай бұрын

  On what medication you was ?Imatinib 400mg?

• 
  @stephenlind55412 ай бұрын

  I started on tasigna (nilotinib) 800mg a day.

• 
  @El_pilou3 ай бұрын

  thx very great video. My pcr number was 0.46 at 3 months and now at 6 months it's 0.3. I hope I will go in TFR one day.

• 
  @healCML2 ай бұрын

  Thank you for the comment. It is great to see that your PCR continues to go down. We also hope that you will achieve TFR one day!

• 
  @cristaldelacueva15783 ай бұрын

  You guys inspired me so much❤️ I improved my Diet, I start eating so much more vegetables and fruits also drink a lot of water walk on the park without shoes help so much with stress, I feel grateful and waiting for the TFR life 🥹.

• 
  @ArvindSingh-ur1rw3 ай бұрын

  Hi my second pcr no. 0.521% I'm taking imatinib for 8 months

• 
  @healCML3 ай бұрын

  Thank you for sharing.

• 
  @khaledazmahmoud3 ай бұрын

  Thanks for this vedio❤

• 
  @ExcitedBreakingWaves-hs1if3 ай бұрын

  My pcr 0.253 good or bad please tell me

• 
  @healCML3 ай бұрын

  I need more information. Is this your first PCR test? With PCR the trend is the most important data point. You want to see it going down from test to test.

• 
  @user-qt9ms7oi4x3 ай бұрын

  My daughter has CML having hard time what should she eats and she's having pain in her legs

• 
  @healCML3 ай бұрын

  Hello, thanks to you and your daughter for being subscribers and for your comment. Here is a video that might help you. Take care and be well. ~ Amy kzread.info/dash/bejne/g6WAsdSAc5jLgto.html

• 
  @jerryobrien3 ай бұрын

  What is TKI?

• 
  @healCML3 ай бұрын

  TKI stands for Tyrosine Kinase Inhibitor -- it is the name for the drugs CML patients take (Tasgina, Gleevec, etc.).

• 
  @jerryobrien3 ай бұрын

  What is TKI?

• 
  @user-kd9cl8vp3e3 ай бұрын

  Can I drink coffee while taking tasigna?

• 
  @healCML3 ай бұрын

  You should be able to drink coffee. But you should ask your doctor if it is OK to drink coffee during the time around taking your pill when you cannot eat.

• 
  @kimjohnson3253 ай бұрын

  A friend always has low WBC, RBC, hemoglobin,hemocit why

• 
  @healCML3 ай бұрын

  Is your friend on a TKI? This could be a side effect of the drug.

• 
  @user-fb7to3qv8w4 ай бұрын

  Hi 1st thank you for sharing your journey it’s an inspiration , I just want to ask does your pcr 0.00% are all zero’s (0.00000) and under “undetected”

• 
  @healCML4 ай бұрын

  Thank you so much for your comment. Every lab is different, but my PCR report doesn't get very exact. Most of the time it says less that 0.01%. Other times it will say there are no bcr-abl cells identified.

• 
  @user-fb7to3qv8w4 ай бұрын

  Hi 1st thank you for sharing your journey it’s an inspiration , I just want to ask does your pcr 0.00% are all zero’s (0.00000) and under “undetected”

• 
  @maniaulakh3084 ай бұрын

  Cml is a hereditry..... Cml patient can developed second cancer

• 
  @healCML4 ай бұрын

  Thank you for your question. This is a good question. I don't know the answer. But I have not read anything that specifically says that CML can lead to other cancers. It is best to live as healthy a life as possible to make you the risk of a second cancer is low.

• 
  @maniaulakh3084 ай бұрын

  My friend from india she is cml patient... Pcr last 5 year is o.00%... Her delivery in feb month and born a baby boy..... Her baby safe or any chance develop cml

• 
  @healCML3 ай бұрын

  @@maniaulakh308 Thank you for the comment. My understanding is that CML can not pass from the mother to the child, so the baby should be OK.

• 
  @maniaulakh3083 ай бұрын

  Thanks😊

• 
  @Moni4u4 ай бұрын

  I am newly diagnosed Cml . Now i am eat imatanib.

• 
  @healCML4 ай бұрын

  Thank you for your comment and sorry to hear about your diagnosis. If you have any questions for us, please let us know!

• 
  @angelabarnes71824 ай бұрын

  As a women loosing hair it’s upsetting. Can’t do anything with it feels like a Brillo pad, I’ve been told I’ll be on Imatinib for the rest of life so my hair will never recover. Been on Imatinib for just over a year, blood platters are in the right range so doing ok. Glad you’re doing great thanks to science.😊😊

• 
  @healCML4 ай бұрын

  Thank you for the comment and sorry to hear that you are dealing with hair loss. Over time, more and more people are able to stop taking their TKIs (after achieving 0% PCR for several years), so hopefully your blood tests continue in the right way and maybe going off the drug in the future is possible.

• 
  @RajendraKumar-ef4en4 ай бұрын

  Please tell me about L248V

• 
  @healCML4 ай бұрын

  L248V is a mutation, meaning that certain TKI drugs will not work as well if you have this mutation.

• 
  @RajendraKumar-ef4en4 ай бұрын

  @@healCML my report sow this mutation but pcr report bcr abl no sow less than detectable limit on same tki ( imetnib 400mg)

• 
  @RajendraKumar-ef4en4 ай бұрын

  After 2 months

• 
  @healCML4 ай бұрын

  @@RajendraKumar-ef4en If your PCR is 0% then I don't think you have to worry about the mutation right now.

• 
  @RajendraKumar-ef4en4 ай бұрын

  Hi

• 
  @yamgarcia90454 ай бұрын

  me always check bloodtest everymonth

• 
  @healCML4 ай бұрын

  Thank you for sharing your experience.

• 
  @yamgarcia90454 ай бұрын

  im taking now sprycel

• 
  @yamgarcia90454 ай бұрын

  chicken liver is safe? person with Cml

• 
  @healCML4 ай бұрын

  I don't have any specific information on chicken liver, but in the little research I did, I think it is ok.

• 
  @yamgarcia90454 ай бұрын

  im also diagnosed CML

• 
  @RajendraKumar-ef4en4 ай бұрын

  Please tell me what i do

• 
  @RajendraKumar-ef4en4 ай бұрын

  But doctor decide desatinb 100 mg

• 
  @RajendraKumar-ef4en4 ай бұрын

  And my next pcr after 2 month on February 2024. But pcr report sow less then detectable limit

• 
  @healCML4 ай бұрын

  That is good that you are less than detectable limit.

• 
  @RajendraKumar-ef4en4 ай бұрын

  @@healCML but doctor change my tki

• 
  @RajendraKumar-ef4en4 ай бұрын

  And doctor decided mutation test on December 2023.but i taking imetnib 400 mg regularly

• 
  @RajendraKumar-ef4en4 ай бұрын

  Doctor suggest mutations test

• 
  @RajendraKumar-ef4en4 ай бұрын

  My pcr 0.5 ,0.9 and 1.2 every six month

• 
  @RajendraKumar-ef4en4 ай бұрын

  Hi

• 
  @maniaulakh3084 ай бұрын

  Plz share your wbc and pcr when cml strt diagnose...

• 
  @healCML4 ай бұрын

  Thank you for your comment. At diagnosis my WBC was 450,000 and my PCR was greater than 100%.

• 
  @maniaulakh3084 ай бұрын

  As campare you... My wbc 102000 with mature cell no immature.... Blast 0%... Bcr/abl 0.05%.... Dr says not to clear you have cml but diogonse start with imatinib... But you think about this

• 
  @healCML4 ай бұрын

  @@maniaulakh308Did your doctor do a bone marrow biopsy? At diagnosis that is the best way to confirm that it is CML.

• 
  @maniaulakh3084 ай бұрын

  First pcr value 0.05% by biopsy.... Dr says k your not in chronic phase... But you have the chance cml when your bcr/abl value increase 0.1%.......so early diogonse start.... I have 10 year continued imatinib 400 mg.... 10 year continued bcr/abl0.00%... . any chance cml come back

• 
  @maniaulakh3084 ай бұрын

  Plz ans.... Share u think about this

• 
  @psc77924 ай бұрын

  🎉Congratulations on your 10 year mark!🎉 I am so happy for you! I’ve just been diagnosed with CML a few months back and I don’t really know where to turn. I’m on 400 mg of Imatinib, but I find it’s really hard on me. Nausea, headaches, diarrhea, insomnia, exhaustion, pain in my stomach, and now I’m starting to feel, some panic attacks this last week. I see a haematologist in London, Ontario but I want a second opinion from Toronto or a different doctor. My doctor is very nice, but I want a second opinion. The doctor was going to switch me to Sprycel, but apparently it causes pleural effusions, and I already have a smaller pleural effusion, so I can’t go on this sprycel. I guess they’ve all got very hard side effects, including heart failure, so I’m kind of scared to go off of Imatinib. As far as my blood count, the numbers look like it’s working… But I just had my first metabolical blood test done and waiting for the results. Crossing my fingers.

• 
  @healCML4 ай бұрын

  Thank you for your comment. Sorry to hear of all the side effects you are dealing with on your imatinib. That is definitely a lot to handle. I can understand getting a second opinion -- I think that is a good option and hope you can see a doctor soon. Do you know if nilotinib is an option for you? It's in the same family as imatinib, but as a second generation drug, perhaps it will have fewer side effects.

• 
  @adil87014 ай бұрын

  Do you think lack of sleep could lead to cancers like cml ? Did you notice a link between periods of bad sleep and bad pcr numbers ?

• 
  @healCML4 ай бұрын

  You ask some very good questions -- thank you! I think lack of sleep does not help with staying cancer-free. I know I was not getting enough sleep -- especially on the weekends. It is not the only reason I got CML, but I definitely think it could have contributed. As for the link between bad sleep and poor PCR results, I have not seen any correlation. My sleep is generally better than before I was diagnosed, but I still have occasions where I wake up in the middle of the night and can't fall back to sleep and none of that has impacted my PCR numbers.

• 
  @adil87014 ай бұрын

  @@healCML thanks a lot. You seem to say that other factors than sleep led to you to get cml. Were exposed to chemicals like benzen or to radiations ? Surprising facts in hospital they asked me whether i got the flu vaccine or the covid vaccine.

• 
  @healCML4 ай бұрын

  @@adil8701 I was not exposed to any chemicals, but I have heard that hi benzene exposure can cause CML.

• 
  @user-du9dz7bd5t4 ай бұрын

  My CML was designed during Covid, I was already high risk and along with the impact of other family issues and just going through a very lonely treatment process during crazy times my world fell apart and it cost me almost everything. My treatment plan is however progressing well.

• 
  @healCML4 ай бұрын

  Thank you for your comment. Sorry to hear about the challenges at your diagnosis...but glad to hear that your treatment is going well!

• 
  @sohmynkengaming47184 ай бұрын

  Hello Stephan I am still diagnose for CML n my platelet is low n wBC is normal n can u describe me about platelets please

• 
  @healCML4 ай бұрын

  Thank you for your comment. Platelets help prevent bleeding. How low is low for your platelets? Low platelets can be a side effect of the TKI drugs.

• 
  @sohmynkengaming47184 ай бұрын

  @@healCML what about yr platelet during CML diagnose is it low or high n please do reply

• 
  @sohmynkengaming47184 ай бұрын

  Thanks for yr kindness brother n frm my side 100 percent I trust to god 🙏🙏🙏🙏

• 
  @healCML4 ай бұрын

  @@sohmynkengaming4718 My platelets were normal at diagnosis and during treatment.