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The Latest News in CML / New Trends in CML / CML Trends/CML Current Events/Chronic Myeloid Leukemia
In this video, we talk about the latest news in CML, including information about:
CML Survivorship
TKI Information
PCR Numbers
Treatment Free Remission
0:00 Start
0:43 CML Survivorship
0:59 TKI Information
2:11 PCR Numbers
3:50 Treatment Free Remission (TFR)
#cml #chronicmyeloidleukemia #cancersurvivor
Пікірлер: 20
Thank you for providing updated information. Watching video like this gives me hope and I believe it will bring hopes to others as well.
@healCML
2 жыл бұрын
Thank you for your kind words. We are glad that this video has given you hope!
What different between fish & p.c.r My fish is negative how much years I continue my treatment. This is my first year my cml is diagnosed
@healCML
Жыл бұрын
The PCR test is more sensitive (can look at more cells). Usually you will have fish in the beginning and the PCRs over time going forward. You need to see the PCR test negative (0%) for at least two years before you can stop treatment.
Hi my husband last test was undetected no copies were detected but again after 6 months it is 0.03 why do you think it happened please reply
@stephenlind5541
4 күн бұрын
Thank you for the comment. Sorry to hear about the increase from undetected. I think your husband will need another test or two to know if there is an issue. It could be a temporary increase and go back down the next time.
@ruchisingh1723
3 күн бұрын
Thankyou for the reply
Nice video please Stephen tell me about the new treatment is this medicine cure this disease.... (Asciminib.. And other 💊)
@healCML
2 жыл бұрын
Hi Malang -- these new drugs are TKIs -- very similar to the other drugs. So you take for several years and then hopefully can stop treatment. -- Stephen
@malanggul215
2 жыл бұрын
@@healCML thank u Stephen.. I believe that the cure is possible with this medicine💊
@healCML
2 жыл бұрын
That would be great if it happens!
@malanggul215
2 жыл бұрын
Hi Stephen is is this new tki completely cure this disease or bone marrow transplant cure this...
@healCML
2 жыл бұрын
@@malanggul215 My understanding is this TKI is similar to other TKIs. From what we have been told, if you take your TKI and can get to 0% PCR for five years, you can stop the drug. If after two years after stopping the drug your PCR is still 0%, then doctors consider you cured as the likelihood of the CML coming back is very low. A Bone Marrow transplant can also cure CML, but it is not recommended for people in chronic phase. The risks and costs of the transplant are very high.
Diagnosed in 2018 with 97% Philadelphia chromosome now in 2022 bcr abl is positive but below detection limit .what does that mean
@healCML
Жыл бұрын
That is very good news. The bcr abl is a very sensitive test. It can find 1 cell in a sample of 10,000 or even 1 cell in a sample of 100,000 cells. So there is always a chance that a test will be positive (at least one cell identified). Every lab has different reporting. I am not exactly sure what positive but below detection limit means. I think it may mean that there are some bcr abl cells there, but they are too low to be able to count. Regardless, this is very good news! - Stephen
@A.S6975
Жыл бұрын
@@healCML thank.u stephen for replying ur reply always give me strength ❤
@stephenlind5541
Жыл бұрын
@@A.S6975 Thank you. Glad we can help you!
What different between fish & p.c.r My fish is negative how much years I continue my treatment. This is my first year my cml is diagnosed