Thank you for posting this video! I have been on treatment for almost a year and just had my first PCR increase and I found out about it on a Saturday morning when my Doctor is closed and have no one to talk to about this increase and my anxiety has been through the roof for 24 hours now and this video just helped me tremendously! Thank you!!

@healCML

Жыл бұрын

Thank you for your comment! Sorry to hear about the increase in PCR and anxiety it caused. That's definitely something we all don't like to see. I am glad the video helped you out. Even 11 years in to my CML journey, I still sometimes get nervous about PCR tests and over-analyze the results if something moves slightly back up. Hopefully you have been able to talk with your doctor and get their thoughts on the PCR increase. - Stephen

My PCR is at 0.18% and it has been 11 months since diagonsis. I am taking bosutinib and it has been great! Thanks for posting this video. I makes me feel good because I know I am on track to get to 0% soon!

@healCML

Жыл бұрын

Thanks for the comment. Your PCR number is great! Glad to hear your treatment is going so well!

Great video.......especially like the Year 4 and 5 parts.........I'm in Year 5, finally got to .006.........I really hope to go treatment free one day as I take drugs for other issues.......

@stephenlind5541

Жыл бұрын

Thanks for sharing your numbers. That is very exciting that you are getting closer to 0.00%! Here is to hoping that you will eventually be able to go TFR! Stephen

Hie Stephen My name is Maulik and I am from India. First of all I have appreciate your videos for good information shared. I am diagnosed with CML CP in Feb 2024. I have been starting my Imanitib on 29/02/24 and I obtained CBC report perfectly. First time I have done PCR test on 22/03 and obtained 3.368% IS value and again I have done the PCR test 23/05 and obtained the 3.554% IS value. My all reports like CBC, SGPT and Screatine are normal. My HB is 14%, My WBC are 8800, My Platlets are 227000. I am little worried for PCR as it has to increased. This is the information of my treatment. I have completed 3 months of treatment.

@healCML

2 ай бұрын

Thank you for your comment and sharing your numbers. I would not worry about the PCR going from 3.368 to 3.554. Those numbers are very similar and you will need a few more PCR tests before you can say there is a distinct upward swing.

@mauliksuthar7807

2 ай бұрын

I have completed 3 month of treatment. Today I also met to my oncologist and he told me results are good and with in range.

@mauliksuthar7807

2 ай бұрын

@@healCMLThanking you for your comment😊

@hippiehappy7470

11 сағат бұрын

may i know what was ur bcr-abl when 1st diagnosed and what drug u started

thx very great video. My pcr number was 0.46 at 3 months and now at 6 months it's 0.3. I hope I will go in TFR one day.

@healCML

4 ай бұрын

Thank you for the comment. It is great to see that your PCR continues to go down. We also hope that you will achieve TFR one day!

Been watching your channel for reference and tips for my partner. We just received our 21st month results on treatment, and it’s our first increase. Latest was 0.011 and now it jumped to 0.069, they’re still good numbers but always a worry as you’re expecting a continuation of down trend. But from our small observations - the past three months we were less strict with our exercises and diet. We started to consume small amounts of alcohol a glass of wine or two once in a while. Also since the diagnosis we were consuming 6mg of curcumin c3 complex daily, but it ran out of stock lately and we stopped. So maybe thats a correlation with the increase.

@healCML

3 ай бұрын

Thank you for your comment and sharing your partner’s story. I have heard that curcumin can be good for CML so it will be interesting to see what would happen if you can get it again. It is definitely stressful to see an increase. When is the next test? Did the doctor express any concerns?

@vaneternal5610

3 ай бұрын

@@healCML no concerns were expressed, next test is in 3 months. As long as the increase isn’t above 1 log, theres not much worry.

Thank you so much. I'm on my first month of treatment with Imatinib.

@healCML

Жыл бұрын

Thanks for your comment. We are hear if you have any questions. There is a lot to learn when first diagnosed, so do not hesitate to ask any questions. All the best. - Stephen

@endalkgizaw9897

Жыл бұрын

Contact me ,I am like you

After 7 months of imatinib, my pcr has gone down to 0.126%. Thank you so much for your video. They have helped me gone through fears and wonders. 🌻🌻🌻

@healCML

Жыл бұрын

Thank you so much for sharing your numbers. That is great to see your PCR going down. We are happy to know that we have been able to help you through this. Stay well, Stephen

@hahahabonbon

11 ай бұрын

Today, my PCR is at 0.0129%. I can't thank you enough for all your videos. It makes me believe it's possible to control CML.God bless you!

Thanks for this vedio❤

Nice video Stephen..... My pcr number is 6.34% after 2years treatment i take TASEGNA

@healCML

11 ай бұрын

Hi Malang, thank you for sharing your numbers.

@mauliksuthar7807

Ай бұрын

Is there any improvement happen in your PCR test ??

BCR ABL 0.728 iska kya matlab hai??? CML Case Kam ho raha h jyada???. please.bataye??

My BCR-ABL GENE IS value comes to 0.000% in one year of taking Dasatinib 100mg daily. However, my Hb is always down 12% and RBC down 3.50 lacs and Platelets are also down 1.25 lacs . Plz suggest is it normal? My Doctor says it's ok with these numbers

@healCML

9 күн бұрын

If your doctor says it is ok, then you should be fine.

Its good and confident that we can cure our father if he confirm with bone marrow test ...can u pls tel me how many days its takes to grown form chronic to next level bcoz we dont have that much to treat in private hospital so we r going to tata memorial hospital in mumbai its take 15 days to start the treatment..can we wait or check with any other private hospital we as of now dont knw about cancer..govt process is lengthy can we wait or should take immediate action..my dad wbc is now 1,20,000 RBC is 3.95 and plt is 365

@healCML

Жыл бұрын

CML is a slow moving disease. So I think a few weeks wait to start treatment is OK. I was diagnosed with WBC at 450,000 and I waited a full week before starting any medicine.

@viewer4229

4 ай бұрын

How your father now, I am also CML patient

Love you all🥰🥰🥰👍

@healCML

2 жыл бұрын

Thank you very much!

@user-zj7vs4rt2l

2 жыл бұрын

@@healCML I am a watching you from Saudi Arabi and I have CML now for 5 years I am on dasatinib

@healCML

2 жыл бұрын

@@user-zj7vs4rt2l Thank you for watching us from Saudi Arabi! We wish you continued good health and healing. All the best, Amy and Stephen

@dianaalfonso9322

2 жыл бұрын

@@healCML please share more about your food diet. Thanks. I do have cml also. This channel really help.

@healCML

2 жыл бұрын

@@dianaalfonso9322 Here are some videos that may help you: What we eat in a week: kzread.info/dash/bejne/iaxsrZdvgqiZlLA.html Cooking a meal: kzread.info/dash/bejne/aJyftLuFl8jUZ5c.html If you need more info, please don't hesitate to ask! Stephen

So, I’m at 10 months on Sprycel and my BCR ABL is 34.7. Has been as low as 17.2 but then started going up. I have P190. Kinda scary. Anyone else experiencing these kind of numbers.

@healCML

11 ай бұрын

Sorry to hear about the rising numbers. Do you know if it possible to try a different drug, which might give you different results?

My girlfriend has CML, can you also post video about your CBC report because my girlfriend has low rbc,platelets and hemoglobin

@healCML

Жыл бұрын

Thank you for your comment. That is a good idea -- we will look to make a video on my CBC reports, especially in the beginning of treatment. My WBC did get a little low, but I did not have any issues with RBC, platelets, or hemoglobin. I hope your girlfriends numbers come up soon. All the best - Stephen

@navidakbar1880

Жыл бұрын

SALAM BROTHER APPLE AUD DATES USE KARY NAVID 🇵🇰🇵🇰🇵🇰

Thanx for making this! What about your side-effects? I am on TKI for 10 years now and still strugling with fatigue and bone pains on a daily basis :(.

@healCML

2 жыл бұрын

So sorry to hear about your fatigue and bone pain. Have you discussed with your doctors? I had some fatigue and soreness in the beginning but it went away after a few weeks. I found that drinking a lot of water helped me.

@rikgevers

Жыл бұрын

@@healCML Hi, yup, I discussed this with my doctor and had a lot of therapies to make it better. At the end; The best solution for me is to work out as frequently as I can but a lot of the time my mind says "yes", but my body says "no". That's my struggle on a daily basis. But I am coping and living my life as compact and easy as possible and really enjoy the little things ;).

@healCML

Жыл бұрын

The little things can be so important -- it is great that you are trying to embrace them!

Hey can u people tell what is international scale conversion factor and international scale normalised number..bcoz yesterday my dad bcr abl test done conversion factor is 0.54 and normalised number is 2.534 ...in this which is bcr abl ration

@healCML

9 ай бұрын

Thank you for your comment. Unfortunately I do not know much about the conversion factor. I know that it can be different for each lab and medical facility. So the best thing for you to do is to discus with the doctor to understand what it all means.

Please tell me sir which kind of food is taken in cml which give energy

@healCML

Жыл бұрын

Here are some videos that may help. One is on healthy eating for cancer survivors and one is what we eat in a week. Everyone is different, so I also recommend keeping a food diary to see what makes you feel better and what doesn't. kzread.info/dash/bejne/Y3trsLirk6bTgdI.html kzread.info/dash/bejne/iaxsrZdvgqiZlLA.html

On what medication you was ?Imatinib 400mg?

@stephenlind5541

3 ай бұрын

I started on tasigna (nilotinib) 800mg a day.

What type of yaga u did pls make video on it

@healCML

Жыл бұрын

Thanks for asking about my yoga! I do a yoga practice that is part of a process called "yoga therapy." I met with a professional who created a specific yoga routine that was unique to my situation and my needs. We will look to create a video about it!

@madhusudanaachar4909

Жыл бұрын

@@healCML thank u

First bcr/abl report-0.05% but wbc 102000..... Dr says normal but diogonse start imatinib 400 mg per day..... Next 10 year continue bcr/abl report always 0.00%...

@healCML

6 ай бұрын

10 years of 0.00% PCR is great! Are you still taking the imatinib?

@maniaulakh308

6 ай бұрын

Yes...

@maniaulakh308

6 ай бұрын

Bcr/abl normal value is 0.1%.... But me 0.05%.... Why diogonse start..... Value is negative... Pls answer

@healCML

6 ай бұрын

@@maniaulakh308 I think you want to be at 0.00% before they say it is negative.

@maniaulakh308

6 ай бұрын

Stop the medicine.....

My pcr no on imetinib 1.2 persent

@RajendraKumar-ef4en

6 ай бұрын

After 5 years

@RajendraKumar-ef4en

6 ай бұрын

My old pcr no is 0.00031

@healCML

6 ай бұрын

@@RajendraKumar-ef4en That is a very good PCR number

@RajendraKumar-ef4en

6 ай бұрын

But it’s back

@RajendraKumar-ef4en

6 ай бұрын

With 1.25

My bcr abl report is 0.0075

@healCML

Жыл бұрын

That is a very good number. Thanks for sharing.