I will love make a Chanel in Spanish with all this educational content, as I am diagnosed with CML this past summer 2023.

@healCML

8 ай бұрын

@cristaldelacueva1578 Una idea maravillosa! Buena suerte! Gracias por subscribing to our channel. Feliz Navidad-Amy

I was diagnosed with CML this February of 2023. I will start my Tasigna this Wednesday March 8th. I already suffer from fatigue and extremities being sore. Hope that it doesn't get worse and goes away. I had a ton of leg bruising all last year and chalked it up to my physical job. I had signs of this, but didn't realize I was dealing with this until one day after donating blood that my WBC was super high. Then all the dots started to connect when remembering the signs I was going through. Your channel has answered a lot of questions that someone new to this has. My first in person meeting with my Oncologist will be this Friday. Any questions that I should ask, that you wish you knee to ask when you started this journey. I appreciate your videos and info. Thank you both!

@healCML

Жыл бұрын

Thank you for your comment and sorry to hear about your diagnosis. My fatigue and pain did go away. I found that drinking a lot of water helped with the pain. Good luck with the meeting with the oncologist this week. You ask a great question on what to know in the beginning. I can think of two things right now: 1) What is the best way to communicate with your doctor and medical team if you have questions? and 2) What things do I need to worry about in the beginning and what things are more "normal"? It takes a little bit of time to adapt to the medicine so there are some symptoms and side effects that are normal and others that are not normal. I think it would be good to know this in the beginning so that you know when to worry and when to not worry. Stephen

And please make a video for boon marrow transplant

@healCML

6 ай бұрын

What do you want to know about bone marrow transplant? For people in chronic phase (which is most of us) it is not a recommended treatment as the risks are very, very high.

Hi Stephen and nice video... There is som new treatment available for cml because tasigna treatment is so longer we want to cure this disease permanent and soon

@healCML

6 ай бұрын

What treatment is that? I know there are a lot of new things scientists are working on.

My husband is cml patient he is tasigna from last 10 months no he is passing stool with blood

@healCML

2 жыл бұрын

Sorry to hear about your husband. You definitely need to speak with a doctor as this could be a different issue.

@mpqw

Жыл бұрын

How's your husband?

My husband diagnosed with cml 2021 first dr star sprycel but it not working now start ponatinib ago one month but he has night sweats what I do please tell me night sweats are dagouras

@healCML

Жыл бұрын

Sorry to hear about the challenges with the drugs. How often is he having night sweats? I occasionally would get night sweats when I was on the drug. Have you had any recent blood test to see the results?

I am newly diagnosed Cml . Now i am eat imatanib.

@healCML

5 ай бұрын

Thank you for your comment and sorry to hear about your diagnosis. If you have any questions for us, please let us know!

Hello sr i need help...

@healCML

2 жыл бұрын

Hello there, how can we help?

@yogeshjoshi08

2 жыл бұрын

@@healCML my mother is taking destinib 100mg form past 1years... But in nows days after taking medicine her eyes become red nd she fills vry heavy in eyes... What is the reason behind that...?

@healCML

2 жыл бұрын

@@yogeshjoshi08 Sorry to hear that your mom is dealing with that. I did not experience any issues with my eyes. I recommend you speak to her doctor about it. All the best - Stephen

@yogeshjoshi08

2 жыл бұрын

@@healCML thanks for suggestions

@Sharminsarang

Жыл бұрын

@@yogeshjoshi08 hiii.... for your mother dasatinib may be too strong...even for my husband it was not working...all parameters came down.... Dr stopped it and started imatinib 400 .... consult your Dr relating this