My PCR Numbers in TFR / My BCR ABL in TFR / CML
I share my PCR test results for all 4 years I've been in TFR from CML.
0:00 Start
0:15 Achieving TFR
0:35 TFR Testing Schedule
0:54 PCR Numbers in TFR
1:20 Relapse in TFR
#chronicmyeloidleukemia #cml
I share my PCR test results for all 4 years I've been in TFR from CML.
0:00 Start
0:15 Achieving TFR
0:35 TFR Testing Schedule
0:54 PCR Numbers in TFR
1:20 Relapse in TFR
#chronicmyeloidleukemia #cml
Пікірлер: 26
God bless you abundantly Stephen sir and amy maam🙏
@healCML
8 ай бұрын
Wishing you many blessings and good health as well! Thanks for your comment and for subscribing. Best, Amy and Stephen
Great video, guys.You guys always come up with informative video.
@healCML
8 ай бұрын
Thank you Vikash. How is your dad doing?
@vikashtripathi1983
8 ай бұрын
Thank you Steven .He is doing good now .His bcr is abl is 0.000 from past 6 months .I would apperciate your oponion on that .can we say we are leading towards TFR.??
@dragonsonfire2862
8 ай бұрын
@@vikashtripathi1983 That is great news. Yes that is definitely on the way to TFR. You will want to see that result for at least 2 full years.
Hi 1st thank you for sharing your journey it’s an inspiration , I just want to ask does your pcr 0.00% are all zero’s (0.00000) and under “undetected”
Hi Stephen my husband is diagnosed with CML and he is taking Tasigna for six months now and his PCR is 0.04 but he got acne in his arms and legs like goosebumps and his eyes always hurt him
@healCML
7 ай бұрын
Thank you for your comment. Sorry to hear about the challenges your husband is having with the Tasigna. The PCR number is good, so maybe you can talk to his doctor about trying to reduce the dosage to see if that reduces the issues. Good luck!
Hi my pcr 1.315% My first pcr no. I'm taking gleevic for 4 months
@healCML
8 ай бұрын
That is a very good number for your PCR!
Hi
Please tell me about L248V
@healCML
5 ай бұрын
L248V is a mutation, meaning that certain TKI drugs will not work as well if you have this mutation.
@RajendraKumar-ef4en
5 ай бұрын
@@healCML my report sow this mutation but pcr report bcr abl no sow less than detectable limit on same tki ( imetnib 400mg)
@RajendraKumar-ef4en
5 ай бұрын
After 2 months
@healCML
5 ай бұрын
@@RajendraKumar-ef4en If your PCR is 0% then I don't think you have to worry about the mutation right now.
Hi Stephen nice video... My pcr nmber is 6.34% but unfortunately tasigna is short and not available now a days I m very upset... What I do??? I don't understand...
@healCML
9 ай бұрын
Hi Malang -- So sorry to hear about the issue getting the Tasigna. Do you know how long it will not be available? What does your doctor recommend? Can you take another medicine?
@malanggul215
8 ай бұрын
@@healCML 3 or 4 months it not be available...some time hydroxy urea I take but tasigna rs proper medican and it not available.... I m afraid the disease is not come back again..
@healCML
8 ай бұрын
@@malanggul215 Oh so sorry to hear that. Are you able to take another drug, such as Gleevec? One thing you could try to do is get a PCR in the next month or two to see if the numbers are going back up or staying steady. Just an idea.
@ArvindSingh-ur1rw
8 ай бұрын
Apka treatment kha chal Raha hai
@Vikashvk480
2 ай бұрын
Bhai ab aapka bcr -abl kitna h
Hi 1st thank you for sharing your journey it’s an inspiration , I just want to ask does your pcr 0.00% are all zero’s (0.00000) and under “undetected”
@healCML
5 ай бұрын
Thank you so much for your comment. Every lab is different, but my PCR report doesn't get very exact. Most of the time it says less that 0.01%. Other times it will say there are no bcr-abl cells identified.