THANK YOU!

Nice video

@healCML

Жыл бұрын

Thanks so much Vikash! Hope you and your father are doing well.

Bcr/abl gyne can transfer in pregnancy to her baby.... Or baby born with disorder DNA.... Any risk for baby

I have MDS and get a cbc weekly. I dont know what the ten values are, or what they mean. I wait a day and the hematologist office calls and tells me if I need to get a procrit injection or not the next day. So much to know

@healCML

8 ай бұрын

Thank you for your comment. I don't have MDS, but blood test reports are usually very similar regardless of the diagnosis. Without knowing which 10 tests you get, I can assume that they look at different blood numbers and also some of your other body organs. It is good that your doctor calls within a day with instructions and feedback.

Hi. I would like to ask you if you happen to know about the side effects of tasigna in the bones after a surgery. I was diagnosed with cml & I've been taking tasigna since 2018 and I've been having some issues with my maxilar (nothing to do with CmL or tasigna) but my doctor is worried about the healing of the jaw bone after surgery ... She said that there are not enough scientific studies about tasigna and the incidence of this (with other lines of treatments for CmL yes, and there is an incidence) and I've been searching about.. (that is why I got to your channel) so if you happen to know something, I would really appreciate it. I am glad you are on remission!!

@healCML

Жыл бұрын

Sorry to hear about your bone issues. Unfortunately, I do not know anything about this. Please keep us posted if you get to a resolution. All the best - Stephen

@anabarrera1259

Жыл бұрын

@@healCML thanks. I will 😊

@hdjhjhjhdfjhd

6 ай бұрын

Anna what was your wbc count at the time of diagnosis

@anabarrera1259

3 ай бұрын

@@hdjhjhjhdfjhd Hi! Well, to be honest I don't fully remember, it was 16.0000 or 60.0000 I know it has a six on it. But the doctor told me it was very high.. and about to cross the line to the other type of leukimia. Right now I am whithout medication since July. My blood tests last week were excelent. I was diagnosed 10 years ago, this week preciesly.

A friend always has low WBC, RBC, hemoglobin,hemocit why

@healCML

4 ай бұрын

Is your friend on a TKI? This could be a side effect of the drug.

Why you are not making videos....

@healCML

Жыл бұрын

Hi! What new videos would you like for us to make? DO you have any questions you would like for us to answer. We hope to make more videos soon! Thanks for subscribing and watching! Best wishes, Amy

Hi what is the wbc range that suspects cml

@healCML

6 ай бұрын

Anything over 11,000 should be looked into to see if there is CML.

@hdjhjhjhdfjhd

6 ай бұрын

@healCML i did get them check via peripheral blood smear,thrice,all is normal, i have seen a hematologist and they also suggested its benign..but i am lil anxious about it

@hdjhjhjhdfjhd

6 ай бұрын

One more thing...in CML does the wbc goes up only ..or sometimes they come back to normal or get lowered automatically..

@healCML

6 ай бұрын

@@hdjhjhjhdfjhd Without medicine, it is unlikely that the WBC will come down.

Can you share wbc results when in TFR .

@healCML

Жыл бұрын

Thank you for your comment. My WBC results were normal while in TFR (between 4.0 and 6.0). We will put together a video with more information.

@fahadbaig7612

Жыл бұрын

Thank you for reply

Hey there! I am taking Dasatinib but my platelets are getting affected and going low. I had to stop Dasatinib to get the blood count back to normal. Do you know anyother way i can keep the platelets up without cutting out on Dasatinib?

@healCML

Жыл бұрын

Thank you for your question. Sorry to hear about the platelet issue with Dasatinib. What dose were you taking? You would need to work with your doctor, but perhaps you can start back on a lower dose of Dasatinib and see if the platelets are better with the lower dose. Please keep up posted - Stephen

@mpqw

Жыл бұрын

@healeverydaytogether2264 I was taking 50 mg now I have cut down to 25mg. It's just an independent experiment and will be closely monitoring it every week.

@healCML

Жыл бұрын

@@mpqwOk, hope the reduction helps!

Hiii Dr has suggested to do IMRA test ... and the result is mutation not detected...wat does it mean

@healCML

Жыл бұрын

The doctor was looking to see if you have a mutation that would mean that you would not have a good result from your drug. Since you do not have a mutation it means that you should still be able to take the drug you are currently taking.

@Sharminsarang

Жыл бұрын

Ok thank you❤

Hi am sajedur Rahman my cml patient 4 yr now my cml is ap but what drug i need plz tell me

@healCML

Жыл бұрын

Sorry to hear about your accelerated phase. Unfortunately, I was diagnosed with chronic phase CML, so I do not know what you need to take for accelerated phase. You will need to discuss with your doctor.

Plz share your wbc and pcr when cml strt diagnose...

@healCML

5 ай бұрын

Thank you for your comment. At diagnosis my WBC was 450,000 and my PCR was greater than 100%.

@maniaulakh308

5 ай бұрын

As campare you... My wbc 102000 with mature cell no immature.... Blast 0%... Bcr/abl 0.05%.... Dr says not to clear you have cml but diogonse start with imatinib... But you think about this

@healCML

5 ай бұрын

@@maniaulakh308Did your doctor do a bone marrow biopsy? At diagnosis that is the best way to confirm that it is CML.

@maniaulakh308

5 ай бұрын

First pcr value 0.05% by biopsy.... Dr says k your not in chronic phase... But you have the chance cml when your bcr/abl value increase 0.1%.......so early diogonse start.... I have 10 year continued imatinib 400 mg.... 10 year continued bcr/abl0.00%... . any chance cml come back

@maniaulakh308

5 ай бұрын

Plz ans.... Share u think about this