Пікірлер

• 
  @edrenajones59606 күн бұрын

  I’ve been told by numerous drs that fibromyalgia is fake.

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  @halasalready7 күн бұрын

  I was diagnosed with Fibro when I was in my mid 20s. It never really bothered me, unless someone poked me in the arm and I’d want to punch them because it hurt badly. My main thing was fatigue. So tired all the time. I worked out and had always played sports growing up, but I never got that second wind they all talk about and I would go to sleep afterwards. In 2008, I was T-boned by a speeding pickup truck (walked away with no broken bones or cuts) and then 2 months later, sideswiped by a dump truck. I’ve been dealing with major pain ever since then. Thankfully, I have a great pain management team.

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  @The_Apollo_Show7 күн бұрын

  I take mirtazapine and pregabalin at night and I sleep 10 hours straight. This has been a key part of my recovery. Also earplugs, eye mask, routine etc etc. if I ever can’t get to sleep I count my breaths which is basically meditating and this works !

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  @gavinmurphy451010 күн бұрын

  Does CFS have body tics/jerks?

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  @CFSUnravelled18 күн бұрын

  This isn't specifically listed on any of the official sites that I have seen - however, this is something that I have observed numerous times.

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  @EmsLionheart10 күн бұрын

  I could be dying but I’ll never know. I’ve been treated horribly by so many physicians I have become jaded to the point I just gave up. My new family dr actually called me a liar to my face. I don’t want to merely exist but I cannot find anyone who actually gives a 🛻

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  @janinedodds570910 күн бұрын

  Very interesting

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  @walkingthroughghosts11 күн бұрын

  20 years now since I was 16 I'm surprised I haven't offed myself.

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  @CFSUnravelled18 күн бұрын

  It's a tough journey - but the key is to remember that people do recover even after many years of illness - have you watched the recovery interviews?

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  @ann968611 күн бұрын

  I had a technical problem and lost the info you sent me can i reapply for the information in your course?

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  @CFSUnravelled18 күн бұрын

  If you can't find it in your inbox (search for 'ANS REWIRE lesson'), send me an email via the site or request the lessons with another email address.

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  @wedind111 күн бұрын

  I get this...100%!!! I've probably had fibromyalgia for 20yrs, but not diagnosed until 2015. Yes .when something new pops up, I tend to blame fibromyalgia. Having said that ..I do see my doctor about it. It's so life changing!! I simply hate it!!!😢😢😢😢

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  @CFSUnravelled18 күн бұрын

  It's strange how long it takes for many people - I have seen this in many recovery interviews! Have you watched any of them?

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  @wedind17 күн бұрын

  @@CFSUnravelled1 No I haven't seen them, sorry. It took me from when I started to seek out help, about 5yrs to get a diagnosis. At first they put me on tons of meds...it made me bedridden 😔 I had to stop most of them. I refuse to stay in bed and rot. Id rather deal with the symptoms than let my body wither away

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  @anned863412 күн бұрын

  I was diagnosed with fibromyalgia i found out years later i do not have fibromyalgia. at the same time i was diagnosed with fibro i was also diagnosed with sarcoidosis.by a different doctor. what i found years later after doing my own research was i really have small fiber polyneuropathy. got a doctor to test for small fiber and was found to have small fiber polyneuropathy. about 80% of people with sarcoidosis have small fiber polyyneuropathy. about 30% of those have been DXed with fibromyalgia.

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  @ArenaRat-xd8fu12 күн бұрын

  This is depression, cfs is a bogus diagnosis

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  @faystalker985114 күн бұрын

  See the pain is it like electric shocks

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  @user-uv8xi3uf8s14 күн бұрын

  Please don't say we make it up. It is real. And how do I feel better to live a better life. I can have pain somewhere one day and then go away. I biggest is fatigue just feeling so tired. I tell my self I am just lazy and depressed which makes it difficult to do things. And my breathing is difficult to deal with. I would love to stop doing all my prescriptions.

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  @pugglesammy14 күн бұрын

  One doctor said...oh perhaps you have sleep apnea or low mood..then told me to see another doctor but this other doctor he mentioned, told me to go out to events and to do things that were absolutely impossible. Zero comprehension. Zero.

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  @pugglesammy14 күн бұрын

  Doctors and other medical professionals need to be educated on this condition as they simply don't understand it. Many dismiss it which is damaging. I've had comments like.. who on earth told you that and then rubbish medical professionals diagnosis of thus debilitating condition. Others tell you to just exercise, take vitamins and eat this that or the other, sharing their thoughts on what you need to do as if we haven't already tried all these things. People are clueless but there is NO awareness and very little understanding yet we are seeing more and more people suffering from this.

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  @Leoviliti114 күн бұрын

  Also if you've been diagnosed with fibromyalgia but also have dry eyes mouth lips and a dry cough and dryness everywhere You could actually be suffering from Sjögrens syndrome As these can get confused . As the pain and fatigue is very similar .

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  @crystal-eb5rf15 күн бұрын

  When you feel so tired every step is like wading through treacle its no joke

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  @sl145616 күн бұрын

  Stop eating anything with seed oils. See what happens in a few months. Even if you aren’t “cured”, you will feel a whole lot better. Highly processed foods are killing us. They create inflammation and wreck every system in our bodies. Even on a “clean” diet, people will allow themselves sunflower, canola and various other oils. Don’t do it, learn to eat actually clean food. Cut out the vegetable oils, refined carbs, fake sugars, added sugars and boxes of garbage that say “healthy” on them. Shop only in the produce, meat and dairy departments. It will change your life for the better.

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  @Beth-nr5lb18 күн бұрын

  I was diagnosed with fibromyalgia in 1997. Then chronic fatigue. I'm now being tested for MS. Have any of you had to go on disability because of fibro? How long and drawn out was the process? Do you have any tips?

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  @tinaattanasio135820 күн бұрын

  Yes I am in agreement with everything you said in your video.As you will gather I am a sufferer of this syndrome, yes I have a lot of the symtoms you described it has even effected my nails on my hands they cant be touched by me or anyone else I have burning sensation and stabbing pain every day can be difficult Thank you for sharing this video

• 
  @nataliechadwick75020 күн бұрын

  I’ve had fibro for 16 years that I know of… and recently I have acquired polymyalgia rheumatica… I would take fibromyalgia all day long over polymyalgia!! it is absolutely debilitating can make your arms move past a certain point and the pain is unbearable.

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  @Nana-zi9xq21 күн бұрын

  The is a great book out there about morning the death of your health. It has helped me immensely

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  @christinam77721 күн бұрын

  What program can help me after severe mold exposure having developed extreme reactions to mold and many other things in my environment now. I need help so badly please

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  @christinam77721 күн бұрын

  I'm suffering so badly, hoping to find the answers

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  @corinepetzinger778921 күн бұрын

  Thank you for this video. 🫶🌸🙋‍♀️

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  @liamsnanny596721 күн бұрын

  I think this is what’s wrong with me.

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  @janetelizabethcolegatemadg211822 күн бұрын

  I was told that my CFS is fake and I am not as ill as I make out

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  @meredithchildress800122 күн бұрын

  I do like the video as it makes a lot of sense! I'm feeling desperate to find answers and hearing the information in this video gives me hope! Thank you!

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  @glmenoscal23 күн бұрын

  What are some medication. That some of us from rheumatologist are cortisone shot they help a lillte. What else can help me. 😢. Very painful.

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  @moggygibbo831823 күн бұрын

  Beth, I'm blown away. My life story is similar in many ways. Thank you so much for sharing, now I KNOW I'll be well soon, too

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  @Fiawordweaver23 күн бұрын

  My hope circled around becoming stable after 3 years of CF that doctors said was caused by Hashimotos hypothyroidism. I’m stable now and my CF is full blown. I had hope that my titration down from klonopin would help my CF. I thought I could tell my brain to rewire itself with visualization and that would bring back my lost energy. Now I listen to all the utube channels that discuss CFS for answers because my anxiety is raging as my CFS shows no recovery.

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  @Fiawordweaver23 күн бұрын

  I have a life long struggle with panic attacks and phases of daily anxiety symptoms. CF has attached itself to my being since September 2021. 4 variables occurred that month Completed a month of prednisone to aid my late onset on exercise induced asthma Started weaning from 2.0mg to 1.5 mg of klonopin Had my fourth Moderna vaccine My Hashimotos hypothyroidism stopped responding to medication management. I’m 71 Successful craniotomy in 2018, tumor free CPTSD emerged post brain surgery Been under a psychiatrist care for 30 years managing panic disorder and depression using medication. Did not share my abuse all those years because I buried it. Highly active, problem solving, warrior, all gone Daytime is the worse for anxiety. 6 pm I start to be anxiety free to midnight. I wear a CPAP for sleeping Cardiologist, primary GP, ENDOCRINOLOGIST, GYNECOLOGIST, do not discuss my CF despite me sharing my life is over Pulmonologist has other patients with CFS, heard me and prescribed a medication that is supposedly going to assist energy. I haven’t picked it up from the pharmacy, yet Functional doctor keeps suggesting supplements. I have a bottle of mitacore that I haven’t opened yet.

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  @dianecassivi752823 күн бұрын

  I suffer with Fibromyalgia and have been suffering with pain since I was younger. I would have leg pains the doctor would say oh it's growing pains move along as I was getting older the pain was still there then I was diagnosed with arthritis and the list goes on and on. I was wondering would florid cause fribro and has anybody looked into it.

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  @jennifercooke828024 күн бұрын

  I’m now in a wheel chair unable to stand or walk. Terrible pain and stiffness. This is no joke.

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  @jennifercooke828024 күн бұрын

  One of my glands has been enlarged for weeks and bad , new pains in my neck. I was worried but now I see that this is one of the symptoms.

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  @moggygibbo831825 күн бұрын

  Fantastic story, you're an amazing woman Claudia! I'm inspired, I can do it, too. Thank you so much ❤

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  @moggygibbo831826 күн бұрын

  Great interview! Thank you. Very inspiring

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  @edzkieverdidaromero67126 күн бұрын

  Is sharp pain in the rib cage also a symptoms of fibromyalgia?

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  @m.nielsen100827 күн бұрын

  This is a great video. I suffer with fibromyalgia & CFS. I will be sharing this one!

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  @starrleo1227 күн бұрын

  Finally someone the understand how a person feels!

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  @dianecassivi752827 күн бұрын

  11:00 pm I have been suffering with this issue for years. My aunt Diane also suffered with fibromyaga also. She suffered major pain in her legs and I also suffered with leg pains and more . My pain is everwhere It's like being a prisoner in my body it's becoming worse. Im so tired with it all. So pls find what is causing us to suffer I have wonder if floride is the cause. Has anyone looked into this.

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  @olgaperez309027 күн бұрын

  I HAVE FIBROMYALGIA AND I SUFFER SO MANNY SYNTOMS SOME TIMES I THINK NOBODY UNDERSTANDS WHAT I SUFFER. THE MOST PART OF HAVING FIBROMYALGIA IS THAT THERE IS NOTHIG FOR THIS KIND OF THINGS THAT I FEEL.

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  @annsan172228 күн бұрын

  Hi Dan, vielen Dank für den weiteren hilfreichen Denkanstoß von Dir! Niemand möchte gerne eine unheilbare Erkrankung haben und natürlich wünschte auch ich mir im ersten Moment, dass wieder alles so wie früher wird. Aber war das wirklich gesund? Sagt mir mein Körper nicht vielmehr per Stoppschild, dass mein Geist über viele Jahre Dinge ignoriert hat, die er besser wahrgenommen und damit dann gearbeitet hätte? Ein Zurück kann demnach ja nur ein Rückschritt sein mit dann vielleicht noch ganz anderen Folgen. Mal davon abgesehen, dass das Leben selbst eine immer tödlich verlaufende Geschichte ist und damit gewissermaßen eine unheilbare Erkrankung 😁. Aber das verdrängen wir in unserer westlichen Kultur ja überwiegend sehr erfolgreich. Möglicherweise liegt hierin ja auch mit ein Grund, warum sich die institutionelle Medizin so schwer mit chronischen Erkrankungen tut, gefühlt heißt das ja ständig eigene Grenzen akzeptieren müssen und es besteht die Gefahr, dass man noch auf viel Tieferes stößt, das macht einfach Angst. Wenn ich diese Grenzen aber bei mir akzeptieren lerne und mein Leben entsprechend gestalte, tut sich plötzlich wieder die Möglichkeit auf, auch in schwierigen Momenten noch jede Menge Schönheit zu entdecken. Und dann sieht mein Körper-Geist-System sogar manchmal wieder Wege, diese Grenzen etwas auszuweiten. Ich habe seit 15 Jahren ME/CFS, 13 Jahre mild ohne es zu wissen (und immer schön durchgekämpft). Zum Glück bin ich nach meiner Verschlimmerung Anfang 23 bald auf solche Informationen wie von Dir gestoßen, so dass mir vermutlich einige Umwege erspart geblieben sind. Und mit dieser Hilfe habe ich es von 23 Std bettgebunden und kaum mental aktivierbar immerhin wieder auf Homeoffice in Teilzeit gebracht, wobei es immer wieder eine Gratwanderung ist und ich aufpassen muss, nicht in alte Muster zu verfallen. Danke für Deine tolle Unterstützung dabei!!!

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  @sharonbice749028 күн бұрын

  Don't ever let a doctor tell you that you have fybromayalsia, because everything happening to you from prescriptions, antiobotics, and other illnesses, will be diagnosed as fybromayalsia. Fybromayalsia is a made up decease that they have no answer too. Also caused from heavy medels in food, forever chemicals in food, plastics in the blood stream from plastic. Get checked for these things in blood work. There's millions of people being diagnosed with this, all over the United States. We are being poisoned, from pharma, food additives, heavy medals and plastic. 😢

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  @curtiste323528 күн бұрын

  Yes, Abigail's story is remarkable and inspiring. Looking forward to learning more.

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  @curtiste323528 күн бұрын

  Yes! Working full-time and moderately strenuous physical activities-a good indicator of significant recovery.

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  @curtiste323528 күн бұрын

  (Im new here) Excellent, probing interview questions! I really appreciate that you didn't lead or shape the answers. This was an informative, authentic interview. Im intrigued to hear more.

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  @presidentiallsuite29 күн бұрын

  Clean & Simple... Just like his explanations 💯😏💯😏💯👌 Im going to keep my eye out on his work....ijs 🎯🏆

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  @CathyKnott-jo6qhАй бұрын

  First they thought it was CFS then ME, finally a good dr referred me to rheumatologist and I ticked every single box on the fibro checklist. The pain, sleeplessness, heightened sense of smell, pain in being touched, ibs, headaches, when I’m hot I can’t cool down, when I’m cold I can’t warm up due to problems with hypothalamus. Shooting pains through all (and I mean all!) parts of body. Depression, anxiety I could go on. I’m lucky to have a good family but even then the ‘forget’ I wish I could! Don’t ever let anyone tell you it’s all in your head. It’s a daily battle worthy of a medal!

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  @Tammygurganus-ml8njАй бұрын

  I was diagnosed with fibromyalgia 10 years ago..worst pain I've ever had in my life...still have bad days.I'm 63 years old now..I was a barber standing all day cutting hair had to quit because of my pain...no medicine to help either.