Coping with Fibromyalgia, ME/CFS, POTS and MCS and related chronic illness: Threat or Opportunity?

Coping with Fibromyalgia and other chronic illness like ME/CFS, POTS, MCS and others can be very difficult. The psychological effects of chronic illness can be severe and we rarely consider our emotional response to chronic illness - it just happens.
Some of the emotional responses to chronic illness include the polar opposites of Hope and Despair. Flip-flopping between these can have a large psychological effect when we are chronically ill.
HOPE vs Despair
These two emotions come up for many people dealing with ME/CFS, Fibromyalgia, POTS and MCS and related syndromes.
So are these emotions good or bad in chronic illness?
How will such emotional responses to chronic illness impact our future and our present?
How are these emotions connected?
How can you transform these emotions to help you?
How can you stop these emotions from hindering your recovery?
What is the problem with hope?
These are some of the questions I address in this recovery snippet about coping with Fibromyalgia, ME/CFS, POTS and MCS and related chronic illness.
LEARN MORE about my book CFS Unravelled: Get Well By Treating The Cause Not Just The Symptoms Of CFS, Fibromyalgia, POTS And Related Syndromes visit my website here: cfsunravelled.com/cfs-unravel...
or on Amazon directly here: www.amazon.com/dp/0987509837
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**MEDICAL DISCLAIMER**: Dan Neuffer, CFS Unravelled or ANS REWIRE do not provide medical advice, and the information available in this video does not offer a diagnosis or medical advice of any kind. The content is opinions and information presented for EDUCATIONAL PURPOSES ONLY, and MUST NOT be used as an alternative to a healthcare professional’s diagnosis and treatment. Only a physician or other licensed health-care professional are able to determine the requirement for medical assistance. Please seek the advice of your physician or other licensed healthcare providers if you have any questions regarding a medical condition.

Пікірлер: 13

  • @christina-bp6vd
    @christina-bp6vd2 жыл бұрын

    Thank you, Dan, such crucial thoughts! Yes, absolutely, despair was my turning point. I was at the deepest point in my illness, absolute despair: totally bedridden and not able to even tolerate the quiet presence of my family in the flat. The circle of hope and despair was not bearable any longer. I was looking for something other than hope, something that would carry me through, no matter where the path was leading to. I chose confidence: The trust that this illness will pass as everything does (sooner or later), and that I will be able to find the way to make my life better again. It appeared more sustainable and powerful than the concept of hope to me. I didn't have this trust in the beginning, but I learned it through building up and cultivating (inside, everyday, mindfully) until I could feel it. This definitively helped the door opening slowly for the possibility of healing. I was confident that when the right conditions came together my healing would start. And it did. I'm on my way now (walking and talking again, using neuroplasticity, rewiring and somatic experiencing), only weeks away from the point of despair. Building trust was fundamental. And I know that trust will take me through all dips ahead on the way, too. For me, trust is such a powerful force, it opens a wide safe space and it can embrace and deal with both hope and despair.

  • @Inge508

    @Inge508

    2 жыл бұрын

    What a powerful and hope- giving comment! Thanks for posting it! All the best on your healing journey !🙏❤️‍🩹

  • @Fiawordweaver
    @FiawordweaverАй бұрын

    My hope circled around becoming stable after 3 years of CF that doctors said was caused by Hashimotos hypothyroidism. I’m stable now and my CF is full blown. I had hope that my titration down from klonopin would help my CF. I thought I could tell my brain to rewire itself with visualization and that would bring back my lost energy. Now I listen to all the utube channels that discuss CFS for answers because my anxiety is raging as my CFS shows no recovery.

  • @RaelanAgle
    @RaelanAgle2 жыл бұрын

    "Looking at your relationship with these emotions" - well said, Dan and so helpful.

  • @JacquouilleTheFripouille
    @JacquouilleTheFripouille2 жыл бұрын

    I am in the middle of your book CFS Unravelled and I'm just amazed at how accurate you are! Well done! I wish to share my story with you in a video once I recover fully. You are truly the one any PECs should check to understand CFS. Fortunately, I speak and understand english well enough to have access to CFS information from english speaking countries. Here is France, there is a total lack of recognition and support for CFS. Think that there are only 6-7 doctors in charge of CFS accross the whole country.. I also wish I could translate your materials for French community once I get better !

  • @bigsky8061
    @bigsky80612 жыл бұрын

    Hope has always been good for me. I have major chronic depression and, of course, people are always concerned about suicidal thoughts. However, I could never do that because I always have hope that things will get better. If I took my own life, I wouldn't be here to enjoy when the "better" came. Despair sounds too scary. Like standing too close to the edge of a cliff. What if the ground gives way ~ one doesn't have control over such a possibility!!

  • @KiwiLlizNZ
    @KiwiLlizNZ2 жыл бұрын

    Thank you so much. A great chat much appreciated.

  • @truthprevails7085
    @truthprevails70852 жыл бұрын

    Very good message, thank you❤️

  • @hannaolsson3445
    @hannaolsson34452 жыл бұрын

    Important message, makes a lot of sense ❤

  • @Fresh-qc3zn
    @Fresh-qc3zn2 жыл бұрын

    Your videos are much appreciated Dan. I have the least stress I've ever had in my life (other than the stress of the illness). I am the most free of stress and committments that I've ever been in terms of general life stresses. Yet remain stuck in the illness. I need something to use, a tool, a technique, something, to shift things and start the ball rolling into wellbeing and recovery. Meditation doesn't quite cut it. Rewiring is great for symptoms that come and to but for symptoms that remain constant and generally feeling unwell, it doesn't seem to be a tool that can be used effectively. I need something to use, something to hold on to, a technique to generate wellbeing and shift the stagnant ongoing state of illness. Does anyone have any suggestions??

  • @RD9_Designs
    @RD9_Designs2 жыл бұрын

    I was turned onto the anti-inflammation diet, and it has cured my fibro/CFS, as well as my fatty liver, and I've lost about 80 lbs total, but 50 lbs since I've been on it... It's also reducing the chronic inflammation from my psoriatic and osteo arthritis, and reducing my psoriasis! Now my only issues are lack of muscle from 20 years of being sedentary because of so much pain, bone problems in my neck, 2 100% blockages in coronary arteries (taking K2 for those), and oxygenation at 93% due to a lung operation for a massive abscess in my right lung (an empyema)... I need now to learn how to get up go, after not doing that for so long.

  • @Fresh-qc3zn

    @Fresh-qc3zn

    2 жыл бұрын

    Wow that's amazing progress. So pleased for you. As Dan says, keep going, don't get to comfortable in what you've achieved so far, keep going until you reach full health. Can I ask what anti-inflammation diet you used? Do you have a link or can you direct me to the protocol you usedm

  • @jackiesicilian5720
    @jackiesicilian57202 жыл бұрын

    Perseverance and praying to Jesus helps me get through every day.