Deep Dive Recovery Story Interview: ME/CFS, POTS, MCS, PTSD & Bulimia
Finding out how to recover from CFS (Chronic Fatigue Syndrome or ME/CFS) as well as Postural Orthostatic Tachycardia Syndrome (POTS) and MCS seemed downright impossible when nobody seems to know what's wrong with you.
Kristin shares her CFS recovery story in this wonderful detailed interview and talks about the treatments she tried, the ups and downs, her relapses and the constant expansion of diagnoses and symptoms.
We discuss her first remission from CFS/POTS/MCS and how she ended up relapsing again.
So how does she turn it all around? Kristin tells her story of changing her CFS recovery approach and delving deeper to unravel PTSD and Bulimia that she had been dealing with for many years to reach full health.
It's a long and detailed interview, so check it out in parts and gain from her wisdom in your time.
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TIMESTAMPS:
Introduction - WHY long-form interviews & what can you learn? 0:00:00
Podcast Disclaimer 0:06:38
First symptoms 10 years ago when 25 years old 0:07:20
Dan asks how scary that was 0:10:26
Kristin clarifies her symptoms 0:11:00
Dan asks what the Doctors said given the severe symptoms 0:12:15
Kristin talks about the most embarrassing and devastating experience in her life 0:13:49
How the illness affected her work 0:15:23
Googling led to her getting tested for Iodine deficiency and Hashimoto's hypothyroidism 0:15:59
I ask about her decision to stop working 0:18:09
I ask about all the treatments that Kristin tried 0:22:33
Kristin talks about starting to meditate 0:25:20
Talks about exercise supplements and diets she tried without success 0:26:39
I ask how she achieved her first remission 0:27:45
I give a monologue about CFS and psychological stressors 0:31:38
I ask what she did besides taking note of her inner game 0:33:19
I ask about the lead up to becoming ill 0:35:17
I ask how she moves out when she has no money or support 0:38:24
I ask how she does things like moving when she is so ill 0:40:28
What were your friends doing and saying? 0:41:21
I ask about her family 0:42:31
I ask about her childhood and early adulthood. 0:43:50
What happens next, how does she start to recover? 0:45:31
I asked if she had any sensitivities 0:49:01
How does it feel to get your life back? 0:51:15
How long were you well for and did you understand why you were sick? 0:52:59
When do things first start to go wrong, what were you thinking? 0:56:49
How long does it take to recover and do you do something different? 0:58:46
What did this Dr identify and treat you? 1:01:06
Kristin tells how her second relapse is triggered 1:03:14
Kristin talks about thoughts of suicide 1:06:15
What did the Dr say caused the relapse? 1:07:15
I ask how she recovers this time, what does she do, is she looking over her shoulder? 1:08:40
How did Kristin successfully make these changes? 1:10:28
Did this PTSD work change how you felt about the symptoms? 1:15:15
What else did you do? 1:15:35
We talk about the sustainability of health coaching 1:22:03
Anything else? Kristin talks about recovery from Bulimia 1:23:26
How do you start to like yourself? 1:26:11
How to move into like and love after getting past disliking yourself? 1:27:55
Did you get help on this journey or do this on your own? 1:30:13
How did Kristin overcome Bulimia? 1:33:58
What about after binging eating, did you work to stop the purging? 1:36:56
How did you deal with failing with the purging? Was it a separate journey to the binging? 1:38:39
Dan points out an important distinction in Kristin's approach! 1:40:14
Dan talks about the importance of doing the work beyond recovery for a robust recovery. 1:41:35
Dan asks how Kristin feels about the possibility of getting ill again. 1:42:41
What would be your main advice to someone living with the illness? 1:44:31
SHOW NOTES: (descriptions and links):
cfsunravelled.com/episode8
UNDERSTAND MORE with my book CFS Unravelled: Get Well By Treating The Cause Not Just The Symptoms Of CFS, Fibromyalgia, POTS And Related Syndromes visit my website here: cfsunravelled.com/cfs-unravel...
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Пікірлер: 35
I went through Dan's program and I healed. I also did neurofeedback with full brain cap. In six months I was about 80 percent better and over the course of two years I totally recovered. I had a one week relapse earlier this year but I rested, meditated for that week, spoiled myself and ate healthy and got better in a couple of weeks. The thing is, when she said all of those things didn't help her... Sometimes things are working but they are little pieces to the healing puzzle and they have a cumulative effect. I remember my neck was out of alignment after all of the tension in my muscles for so long and having it put back in alignment helped with the dizziness I was continuing to feel and when the dizziness disappeared, my nervous system calmed down further. Everything positive and healing you do for your body helps..it ALL helps, don't discount any of it. It is all working and adding to the balance of healing. Last year I spent three months traveling all over the world by myself. If you are reading this, I promise you, you will heal if you are consistent and committed to your healing and you believe in yourself and know that you can do it. Love your self, treat your self with love, forgive yourself and others who have hurt you. Its all part of the healing process. Love you.
@CFSUnravelled1
Жыл бұрын
That's wonderful to hear Julia - thanks for sharing your experience and your insights into recovery. Maybe you would like to do an interview? If so, email me.
@kala9907
Жыл бұрын
Would love to hear your story ❤
Can you turn on auto-captions please? It would be great if you could do this with all your videos...otherwise not accessible to deaf folks. Just a thought.
Wow can relate to this interview so much! Gave me lots of hope!
Amazing, so many relatable symptoms and processes for my recovery. I have been able to work for the last 7 years and there is no magic cure apart from work on yourself daily and listen to your body. All the best never loose hope x
Thank you Kristin & Dan! Truly inspirational. I'm so grateful for all your detailed advice & especially your work with abusive relationships & bulimia. More pieces to the puzzle for taking care of your inner world...you've given me hope during a difficult time!
Thank you Kristin for sharing your story so honestly. It was a privilege to listen to your journey ❤ Really interesting interview thanks both
Thank you so much for this empowering interview
I have had CFS since I was about 20. I’m now 66 years old. It comes and goes. These videos are really helpful. I’ve gotten worse in the last three years. I suspect Sars Cov-2 exposure has triggered this last episode. These videos are really helpful.
Thanks again Dan. Great content !
Thanks a lot, very interesting interview!
Dan great interview! Wow this is unique where she got better and relapse twice but it’s a great reminder to NEVER give up, Kristin did it twice💪🏼. This interview has a lot of layer and vital informations.
@47:19 she says more meditation worked for her. Very interesting/helpful. I think this is key for me too. Thank you.
Thank-you for sharing. Appreciate it! To quote Dr. Kim Deramo, "You are the medicine you need"
How do I find a therapist that understands cfs? I feel that emotional work could be a major key for me.
The low stomach acid is a result of an unbalanced gut microbiome,where your bad bacteria has taken over your good bacteria and patient may get parasites or yeast infection. I healed mine with garlic, oregano oil,enzymes and Betaine HCL. And her Doctor for her Massage situation was right, it was a Herxheimer reaction from a deep tissue massage. Her lymphatic drainage system, kidney and liver was still Healing and it wasn’t able to keep up draining all the toxins from a deep tissue massage & the body went to a shock. Or it could have been a mitochondrial disruption from healing, That’s why we have to let the body take its time to get to 💯 percent homeostasis before doing anything drastic. I am not a doctor this knowledge is just for my own journey and sometimes with this illness we become smarter than our own doctors. Keep on going there’s a better version of yourself awaiting for you.❤️🩹
Just love this so much, so beautiful ☺️ self love ❤️ is key
I wish Dan would show more care about some pretty sad things such as her grandparents charging her interests (he barely cared about that. Just didn't have any reaction whatsoever. Pretty sad)... And I wish he would not keep laughing about some serious things such as Bulimia. I wish Kristin gave this interview with another host. Kristin, you deserve a higher quality interview and a more understanding person. Best to you both.
@CFSUnravelled1
2 жыл бұрын
Thanks for the feedback Lei. Rest assured that Kristin felt understood by me. Not sure where I was 'laughing about Bulimia' - sorry I gave you the impression that I didn't take it serious.
Gut biome tests are supposed to be interesting and helping with health balance relating to the the nervous system … thought about after listening to the stomach acid chat.
I have a question. Cfs has such a broad spectrum of symptoms and some people with cfs have severe and others mild. Do yoh believe some who get diagnosed with mild cfs don't actually have cfs and maybe it's more mental exhaustion or something? My friend got diagnosed with cfs yet has always worked full time and exercised at high intensity. He had fatigue and other mild tms symptoms. Even he questioned if the cfs diagnosis was correct. Not relevant to this video just wanted to know your thoughts
@wtfhappenedtome
2 жыл бұрын
This is just my personal opinion David - but I'd say PEM (Post Exertional Malaise) is a key symptom of CFS/ME. It's a fundamental huge change when the illness starts, often very quickly. I went from running 4 miles a day to being unable to walk, within 2 months. Running used to give me energy, but once CFS/ME set in, the PEM caused any physical activity to exhaust me instead. And I'm talking exhaustion beyond anything remotely "normal" it's really extreme, like wheelchair sometimes. I'd say anyone who can work full-time and exercise at high intensity does not have CFS. Although should be careful not to develop it. But... like I said that's just my opinion man 😄
@ljon008
2 жыл бұрын
I my self have CFS and I’m on my journey upward. And to David’s question I agree with the other guys answer because when a person have CFS you’ll know after an intense work out that PEMalaise. I use to be an athlete to bedridden and had to leave my job eventually.But now in recovering. But to all my warriors out there we will rise again 💪🏼
The supplements of low stomach acid help u huge??
#Meditation 🧘🏼♀️ Amazing •48 mins
@CFSUnravelled1
Жыл бұрын
Glad you felt supported by it.
So no ANS rewiring?
@CFSUnravelled1
2 жыл бұрын
Hi Jackie - I started publishing recovery stories where people recover in all different ways and I still continue to do so. So no, Kristin was not in the ANS REWIRE program. However, I would suggest that she still engaged in techniques that you might describe as REWIREing of her nervous system.
@jackiegroden416
2 жыл бұрын
@@CFSUnravelled1 thanks!!! I’m Seeing gains with your program!
This is ptsd not cfs surely? Or they related?
@FreshAgenda
2 жыл бұрын
They are both part of the same problem ... Central sensitization... or highly sensitive nervous system. One that is on alert for the slightest incident.
My comment got deleted for some reason. It's a shame.
Low acid is not good for digestion.