Hello everyone. On this channel I talk about my experiences after losing my hearing suddenly in the hopes that they are useful to others who are living with hearing loss. Please feel free to leave a comment if there is anything you would like me to talk about, or send me an email if you would prefer that.
Пікірлер
When you said, i can hear people behind me, i started to cry because i am %90 deaf and i am using hearing aids. But doctor suggest me to get implants but i cant afford it now. And i cant understand if i dont read peoples lips. I am 24 years old and i cant count how many times i get fired because i cannot hear.
How is converstaion woth these can you understand speech better
important to add hearing aids dont make everything louder, just the frequencies the deaf person cant hear as well. thats why shouting at us doesn't work but HAs do. if everything gets louder speech doesn't get any clearer
Very informative! I'm writing a character who lost her hearing later in life and this have me a better understanding of what it's like and how it may affect her daily life. Thanks!
thanks so much for helping others 👍🏻
So sorry you got sick after surgery and everything went perfectly for your CI. But if I heard you correctly if you ate nearing your surgery then I think I know why you got sick. I was told a number of times no eating or drinking after mid night where I am located in the US. But happy all is well for you. Enjoy your videos.
Thank you for your words. Where do I get microphones to have people wear if I can't hear them well with my Cochlear Implant?
I have this too! So I’ve had the bobbing since I was a child but only when running. When my symptoms got worse I thought I’d mention it to my ent doctor he asked why I never mentioned it before? Well to be honest I thought it was normal when running. But now it’s when I walk. I’m at the stage where it’s so overwhelming and trying to adapt with work life and going out on my own. Anyway thank you for your video.
Why have u not for two cochlear implants? 😊😊
With my auditory processing disorder I would still have to read her lips to understand :(
Hello Nelle ! I just want you to receive my good thoughts. One more person cares about you.
Hey my name is Jasmine I’m deaf too
I'm sorry stop looking for pity or whatever I'll never come back to this channel i get a phony vibe just watching you.
Lovely analysis ❤
I HAVE THIS ISSUE TOO! Been dizzy for last two years and when I walk my vision isn’t stable. People in my life can’t understand fully which is understandable. Glad I’m not alone.
Wow you’re beautiful, We’re the same, i got Asperger’s too! And very hearing impaired as well. I’m in the process of getting a cochlear implant soon! Really excited to be able to ear out of my right ear again hopefully. Unfortunately my left ear is going even with my hearing aids. Struggling but living day by day. It sucks no one can understand unless they have this disability. They see it as invisible.
As someone who got it. Don't get it done not worth it sounds awful to say but if you do get it you'll find out why.
Quite funny how deaf people develop an accent based on evironment too 😂
Hello Nelle, how do you make simulations? Id like to Do this too with my hearing device.
I'm told other than being 1.95m, my voice is my only redeeming quality 😅..I guess with you I have no redeeming qualities then lol😂
I’m not sure if this is part of your question, as you phrased to focus on old-fashioned language, but I guess I am answering more on the topic of signs I view as being offensive or irrelevant to the word being communicated. I dislike and avoid to use signs which I view as holding a negative connotation. Those relating to history, appearance, and those carrying a racist, sexist, classist, ableist tone and making any assumptions not linked to definition. Most signs referring to an expected appearance I really dislike and try to find alternatives to. For example 'farmer' I dislike and would rather indicate work with gardening and animals depending on the farmer. For countries, I would much rather avoid racist and offensive visuals and have found alternatives through the first letter or spelling or country shape. For words with more meaning (in comparison to a name), I try to explain with other vocabulary. For example 'nasty' I dislike as it brings in an assumed physical element, which I believe isn't related to the meaning. I would probably try to use 'bad' or 'cruel' instead, or explain the situation. Some words I don’t feel explain properly the term. Such as with ‘curry’ I don’t see curry as always being spicy, but rather with a mix of spices, so I may try to explain a different way or spell.
I definitely agree that some signs are really outdated and can seem pretty irrelevant to how we use a word now. I think finding alternative signs that convey the meaning more accurately is definitely a good way of modernising things and getting your meaning across. Thank you for sharing :)
@@nellefindlay Aww, thank you and thank you for replying
That's a really interesting thing to talk about, thank you for asking :) Putting aside sign language for accessibility reasons, as you said, technical language is a major reason. Speed in some cases eg if there is a certain complexity and lack in sign vocabulary speaking may save time. If there are more words to explain verbally, and a simpler sign, then sign could be better, eg pointing, shrugging, a finger to your lips, indicating direction, a flat palm to stop, a strange position or expression. To carry on from that point, when you can't see the person's face it can help, eg from behind people can sign their direction, as cyclists may, or in a group situation people can raise hands to get attention or answer questions or vote. Yes, I agree, signing is so perfect for events and situations involving visual elements. I think it's great for food, animals, activities, emotions. I find it useful to use to communicate from distance (eg across a supermarket, carpark, or signal for help or beckon) or from a place cut off from sound (such as through a window in a building/car/train. Additionally, I like to use it in noisy or quiet situations, eg when a child is sleeping, at the library, in a cinema. Also a fun thing to use if having a private or secret conversation, eg across a school classroom, across to a neighbour's house, across the dinner table, behind someones back to get across a secret message or plan. I also find it can help when the spoken vocabulary has the same word with two meanings, or when the sound of the word could have multiple meanings. It could also be of benefit if a country uses multiple spoken languages and a smaller number of sign languages. It can also help to use as a universal language, when you don't share the spoken language. For example book, home, eat, drink could all probably be signed much more quickly and easily than learning those words in different spoken languages. I'm not sure if this is a part of the question, but it can also be used together with spoken language to emphasize or highlight something.
I love this comment. There are so many creative ways to use language especially when you mix speech with sign language. I actually tend to think in a mixture of English and BSL now. I think it's pretty interesting that my 'mental language' now contains a lot of signs, but doesn't really use any Spanish which I also speak (unless I am actively choosing to think in Spanish). I guess it shows how flexible signs are.
@@nellefindlay I love the question ♥That is interesting about the thinking
How long does it take to hear normally. I am considering CI implant, but scared to death of compatibility issues. Also, how badly would this impact one's career choices?
To your first question: You never hear completely normally with a cochlear implant, but my speech recognition in quiet was pretty good, but it still sounds like an old radio for me, I think people's perception of the sound through their implants is quite variable so I speak only for myself. To your second question: Hearing loss doesn't outright prevent you from doing virtually any jobs. The only ones I know that have actual requirements for a specific level of hearing are: military, commercial pilot (I would assume air traffic control is probably the same), and police. Apart from that it's just up to your comfort level of how well you feel that you can cope. Deaf people not being able to work in public facing roles is a definite myth. You can pretty much do whatever you want and technology and other accommodations such as interpreters etc. should allow you to have almost any career.
@@nellefindlay Thank you! And how well are you able to hear in group discussions or family gathering without the added accessories?
Hi, Nelle. Of all the comments you get, it is unlikely you remember any of mine. I've asked you about your ability to appreciate music with your implants, and so on. I'm not hearing impaired, and I'm much older than you are. But I kept checking up on you because I felt a kinship on some other level. The reason became clear when you shared your autism diagnosis in another video. We're part of the same neuro tribe. I was diagnosed at the age of 44 back in 2006 on that high end formerly called Asperger's syndrome. Like you, I've been grandfathered in under the ASD label. I had a late in life diagnosis because our end of the spectrum wasn't in the DSM or ICD until I was in my 30s. I was raised in the US by my British father and American mother, so I didn't know my UK family at all. When I first connected with them via FaceBook I learned there is autism all over my family tree. I live in the UK now. I left the US because, growing up and undiagnosed/untreated autistic, I was traumatised by a lifetime of teasing and bullying due to my social awkwardness common in people on the spectrum. Today, I live with complex PTSD because of it. The US is a nation of bullies and no place for people like us. But that's a story for my own channel when and if I get it set up. I like your videos, I hope you get monitised.
Thank you for your comment and sharing a bit about your life. I'm always interested to hear about other people's life experiences. I'm sorry that you were bullied at school, unfortunately that is not an experience unique to the US. Please let me know if you ever decide to make KZread videos because I'd like to watch it. :)
Hi Nelle! This was a FANTASTIC video! You provided great and thoughtful points, especially about technology and diversity, that hopefully will spark a lot of conversation and definitely got me thinking! I am planning on making a response video to this, since it is a fascinating topic. I will let you know when it is finished.
Hi, I'm glad you enjoyed the video. I was a bit worried about posting it because it's such a controversial topic and I don't want to come across like I am the ultimate moral guru or something (because I am certainly not). I'd love to see your response video when it's ready. Please let me know when it's uploaded. :)
@@nellefindlay I will start filming one of the segments on Friday, and the script is already started. Like yours, it will be on-camera, which will be my first time doing so for a KZread video, so hopefully I do okay. I'll also have additional video over that for demonstration purposes.
@@nellefindlay Hi Nelle! I am in the middle of working on the script, and I'm in the second section. As it turns out, part of the script will be explaining how hearing aids and cochlear implants work. Would you be okay if I used this sections of your other video that describe that as supplemental material?
@@nellefindlay I just finished the script! Now on to voice recording and filming, and then music production, titles, and editing!
I voted for this on your survey 😅
I agree with a lot of the points given here. Most disabilities are inherently negative for the person with them. Even though you can learn to live with them and be happy in spite of them. I'm sure there's few people with debilitating disorders that would say they don't want a cure if one was possible. Personally, I'd take it in a heartbeat.
There's various sources of diversity and diseases are not one that is necessary for diversity to still exist.
Thank you for sharing your viewpoint. I think it's super interesting to have different perspectives.
If you hear things as the link in your description states, how come you sound 100% perfect with your speech? This isn't a question due to any doubt but rather curiosity and amazement. There is an accurate representation of what it sounds like on youtube done by a university in America using a female that is deaf in 1 ear. It is quite different from what you posted in a way. It's more clear and as the girl explained, sounds like a wall between you and the noise. Perhaps because you are deaf in both ears, you are not able to give such an accurate representation. Awesome video btw.
Mostly it's because I lost my hearing as an adult and so I just remember how to speak. Also, when I'm recording videos I make an extra effort to speak clearly, and you can't really hear the fact that I'm usually very loud. Here's a video where I explain a bit more in detail: kzread.info/dash/bejne/dKyZw9OKYLS_hZc.html
@nellefindlay your awesome! Thanks alot for replying to me. I don't often comment on KZread videos, but it's super nice to see when I finally do, that I get a response. Thanks much again 😊, especially for the links with more details 😀
Nelle , thank you for another informative video . I would like your opinion on your CI as regards to music appreciation . Has it improved or detracted the quality for you , tone wise I mean ? You are in a good position to pass on your personal viewpoint on this subject having both now and previously had two hearing aids. I`m finding professionals can speak with a bias one way or another depending on which field of audiology is their specialty , CI or hearing aids .
Hopefully Nelle will respond, but I can tell you at this stage listening to music through a CI is very disappointing. If normal hearing is like listening to CD or DVD quality music, a hearing aid is like listening to music on an AM radio and listening to music through a CI is like listening to the music on those old 8-but computer games. I believe you can do training to train your brain to better interpret the music, but I’ve never done it. Good luck
But=bit
@@rusty- Thank you too for your input , I value all of it . I`m being interviewed in two days to be asked if I might consider CI . Listening to music is a relaxing pastime . It doesn`t matter If I don`t understand the words . Different to a conversation . I enjoy the melody which is perceivable . Also how do you find the sound mix between the two technologies coming into your head at the same time ?
@@trevorzealley729 no issues with the two technologies. Having a hearing aid in one ear really helps your brain to learn the information coming through the CI. Unfortunately, melody is not good with a CI. The words can be clear but I find all the notes are off frequency. With the hearing aid in one ear you at least have the benefit of some real tones to reference to. CIs are really designed for speech, for people who can't hear anything in an ear. If you can't hear in one ear (or both), I'd absolutely recommend it. If you still have some hearing that can be amplified with a hearing aid, I personally would stick with that until you can no longer hear with that ear. But obviously, I don't know your personal circumstances. CI is amazing, life-changing technology that brings sounds to the deaf. Best wishes mate.
In general, I can hear music pretty well. It just sounds like some sort of ancient radio. If you compare it to normal hearing, it's not great, but when compared to what I could hear with hearing aids and a profound hearing loss (which was pretty much just a faint beat), I can hear a lot more now. I have a video where I test my ability to hear pitch with a cochlear implant so you can get an idea for how well I perceive variation in pitch: kzread.info/dash/bejne/n4GuucFve9bQpaQ.html
I really enjoyed this video and learned a lot. thank u!!
Did you have any difficulties related to your hearing aids when you got your drivers license? I'm curious about how it might affect driving in general!
Hi, no I didn't have any issues. You just let the test people know when you take your driving test and they provide you with whatever accommodations you need. It doesn't really affect my ability to drive at all. It's all very normal and underwhelming really.
You're awesome! loving this channel. Cogitate implants absolutely fascinate me, I hope they can move the tech along more, so that people don't sound scary.
People don't really sound scary to me. At first everyone sounded like a dalek that had been sucking on helium, but now it just sounds like they're talking through an old radio.
I was born in a hearing family so I do feel I lost my hearing even tho it was in utero because communication difficulties.
I must not know much about Autism because you seem much more put together than myself , and I don’t have autism .
The autism spectrum is huge, I was diagnosed with Asperger's syndrome (which used to be a separate diagnosis for people like me who have autism symptoms but with normal language ability and no intellectual disability) but now whoever decides the diagnoses have combined every presentation of Autism into one diagnosis. So, basically, I am a lot more able than many people with Autism. Also, I'm not this put together naturally, there is a lot of work that goes on behind the scenes. I have around 3 hours a week of support sessions to specifically help me manage everything at university. I also have to follow a very specific routine so I don't have a complete breakdown. There is a lot of management required, but if I have the right accommodations, my autism is mild enough that I can live a pretty normal life. Obviously, there is also a selection bias as to what I put online. I'm not going to film the days that are a complete disaster and put it online because that would be weird. As the quote goes 'Don't compare your behind the scenes to someone else's highlight reel.' I try to be authentic online but I draw the line at filming my biweekly snotty crying video calls to my mum about the bus timetable being wrong or some other random thing that has caused a minor breakdown. Please don't feel like I'm perfect or something because I'm really not!
As the technology advances thre will be the ability to do more with those 22 channels. Your second processor will likely be beetter than this one
We absolutely need a 2 years update Nelle :)
I would love hear how u went therew your cocohlear implant as I’m in next stage off going threw it
Enjoy learning about your hearing experiences. I was implanted in 2013, and like you, I use a Nucleus 7 and I have a compatible Resound Enzo hearing aid. My hearing aid audiologist has set up the program on my hearing aid to complement the implant. Specifically, it is set up to provide bass frequency information. It "fills in" the sound in such a way that I enjoy music. At the same time, the feedback whistling is eliminated. This may be an option for you. I've just been informed that I'm now going to be receiving the Nucleus 8! I'm extremely pleased with my implant experience, and judging by your videos, which I enjoy immensely, I suspect you are very satisfied as well.
I don’t know sign but as a deaf person I am constantly using my hands to show what I mean. 😂
Can you remember songs melodies from memory, or if you jog your memory from reading the lyrics? If you could sight sing before can you sing tunes in your mind. I'm wondering too if you could teach yourself to sight sing because you already understand intervals based on comparisons from simple familiar melodies shown on the staff. I think doing this might open a new world of music in your mind's ear.
😂😂 I am always messing up my speech volume. I just treat it as a private joke now that I am 59 but I am also deciding to change tactics a bit. I think one of the most important things ever is to simply state what I need and not go into depth. Informing people that I am deaf helps only if it is not a social situation and I will likely never meet the people I am interacting with again. Like wait staff in a restaurant. Then saying I am deaf seems reasonable. But all my life I have found that social interactions involve a lot of forgetfulness and relaxation. Nobody is being wrong or bad. I forget I can’t hear and make all sorts of mistakes like (favorite one here) people are not sure where my non sequitors come from and I sound like I’m nutty. Most people react by flinching. 😂 I just say Oops lost whatever was actually said that time sorry. And I don’t worry about it. People who are absolutely mortified can have all sorts of reasons for their reaction. I mean I can’t make myself hear well or be smooth socially. And I may as well be myself or it is no fun at all. I do love social interaction. I am much less upset by it all these days. And a social life is so important to me so I persevere.
Very good. You are prepared.
do you think this could have been a cause from the covid shots. Possibly triggering the immune system to attack other parts of body. Vitiligo goes after the malanocytes in the ear which is a possibility. I have this situation, I went to emergency saw a gp who said i will have to wait till the middle of june to get to see an ent .. hopefully, i have hearing left by then
I have found a very good person/friend with a CI few weeks back. I didn’t get a chance to meet that person in-person yet. I’m taking insights from your channel to understand that friend better. I’m wishing to make our meeting comfortable and memorable for both of us. Thank you.
Another nice to have is a backup jumper. It’s got built in jumper cables and is portable. So if you’re in an awkward location you can still reach, and it can be used to charge other things as needed like a phone or even your CI battery if you happen to carry the Y charger with you. Though realistically I’m sure you’ve got backup batteries for that anyway, but hey, a backup to the backup is rarely a bad thing 😆. The only downside is that you have to pull it out and top off the battery occasionally so you don’t end up needing it and finding it’s died from disuse.
Thank you for sharing your personal experience. The video was very informative and I learned a lot😊
You are missing a gun.
I'd get arrested for that, and I feel that it's pretty unlikely I will find myself in a shootout on my way to Tesco.
@@nellefindlay lol i was just kidding.
Thank you! Your videos have helped me prepare for my implant surgery next week and I know more about what to expect! 💕
Hi Nelle! This video was very informative and you explain everything very well (and you're quite attractive too :-))! I'm majoring in electrical engineering in college, so explaining how hearing aids and cochlear implants work was the most interesting part of the video! I have low vision, so this was fascinating seeing assistive technology for the deaf, and I'm writing a science fiction novel with two deafblind characters (one is a main character and another is a minor character), so this was PROFOUNDLY helpful in research! Thank you for the video, and if I need any help I will definitely let you know and leave another comment or add to this one!
Hi, thank you for your comment. I love science fiction. I'm currently writing a science fiction short story collection. I'd love to read your novel when it's finished so please keep me updated. :)
@@nellefindlay How did you first get into science fiction, and what will your story collection be about?
so how is your experienced hearing now in comparison to before the hearing loss
Your second wind up torch might not work very well, but it looks cute! Your car looks to be very tidy and well organised. Nice one Nelle.