Here you will find recovery stories, strategies, and resources for ME/CFS and Long Covid.
Raelan lived with chronic fatigue syndrome (ME/CFS) for ten years before finally fully recovering. After countless fruitless doctors' visits and tens of thousands of dollars spent providing little relief from her illness, she eventually realized that she would have to look within herself and listen to her body to find her path back to health. And thankfully she did finally fully recover!
Since her full recovery about four years ago, Raelan has become passionate about spreading hope for others facing chronic illnesses such as ME/CFS, Long Covid, and Fibromyalgia. She is the author of Finding Freedom: Escaping from the Prison of Chronic Fatigue Syndrome, has built a successful KZread channel full of resources for health and healing, and designed online courses, accessible at raelanagle.com, to aid others on their journey towards health and happiness.
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I dont know how I can write lists because I have really bad brain fog so cant remember to write things down. Any suggestions?
Great interview! So much of my stress seems to come from trying to pace appropriately. Some recovery stories say pacing was so important and others, like this, say the opposite (which I resonate more with)…but I do find the subject confusing.
I am working on getting over long covid that I have obviously had since August 2022. It is frustrating to be sick and not know why. But I am starting to use my pendulum and dowsing rods to get answers. So they tell me to ignore diets, exercise, medical techniques that obviously don’t work. I am learning about so many things that you suggest that I am starting to use like the meditations, positive thinking and affirmations that are starting to work. None of my doctors nor hospital even acknowledge long covid so there is no support there. Thank you for all the information. Best I’ve found so far😂
20:27 is a great section! Currently navigating the symptoms and what is normal. Really retraining my beliefs at this point in my recovery. ❤ Also, I hated past jobs long before I was ill and was absolutely wiped out on the weekends. I easily worked a lot before illness (although truly too much) and was much happier and more energized all day.
I love this guy!!! So insightful and love his humor!!! GREAT INTERVIEW. Going to check out his channel when I get a chance, he seems awesome. LOL at the moderator ladies... thank you Helmut for making light of this in a humorous way.
Mel, what did day 1-5 look like when you first started working on your recovery?
I am not an overachiever. Can you help me?
So crazy! I love and hate this approach bc how do you actually do it 😂
My aunt had ME since the 80s she passed off old age in 2018. I wish she would have seen these 😢
❤
Does this ring true for Long Covid Fatigue? Or are they still thinking that some of the virus is circulating through our bodies?
Worked for my long covid.
Very inspiring video! 🙏
What was your experience with hypoglycemia? I’ve had a couple of blood sugar crashes lately. I’ve changed my diet to a lower carb and higher fat one and didn’t have a blood sugar crash so far. Scary feeling I have to say. Love your content. Thank You so much for your hard work and for everyone sharing their stories!
Its mickel .
Thank you so much, god bless you for giving us hope.🙏🏾
❤
One of the best videos I’ve watched in a long time. Thank you.
Wow, thank you, Megan! 🧡
Well done Anne. I am fully recovered now too. It's a wonderful feeling..
I definitely needed to hear this. 👍👍
Glad it was helpful, Tim! 🧡 🧡
I called myself "a Placbo junky" because I always "believe in the LAST treament" would be THE answer. For a while it would help.
Do you have any success stories for people with mold illness who couldn’t tolerate tolerate the detox?
I've come a long way and I just had to go extremely slow. First I moved to a low-mold apartment, then started with like half a capsule of a binder, liver support, b vitamins, and focus on things like circadian rhythm, sun exposure, epsom salt baths, electrolytes. Doing very mild therapies to start the detox pathways moving again *very slowly*. Always starting anything with a tiny dose. Also focusing on lowering toxin intake so that my body had the capacity to handle moving out stored toxins -- can be expensive but things like moving to a low-mold apartment, swapping any toxic household products, air & water filters, getting lots of fresh air.
How do you know you have mold illness?
@@revelation1215 For me I guessed it when my symptoms almostly exactly matched others' I've read online, and I knew I had a history of really bad mold exposure. I just had every single symptom including the more specific ones like peeing all the time and feeling thirsty all the time (low anti-diuretic hormone), low blood pressure, terrible brain fog after moldy/yeasty foods, constant sinus issues, histamine issues, swollen esophagus, oral thrush, multiple other exterior fungal issues, feeling like a zombie and severe cognitive issues, etc etc. Once I knew mold illness was a thing, i saw that changes in my health matched up with living in different places. When I was able to stay in a low-mold place for a while, I started to feel a bit better. I also did some blood testing -- Cyrex Labs Array 12 which measures antibodies to like 25 common "stealth infections," and mine came back negative except for the 3 toxic molds which were sky-high. Also tests like TGIF-B1 which was off the charts for me.
@@annatomlinson1529 thank you for this! I have done most of these things except I don’t tolerate the binders. I do use glutathione and I live in a mold free environment with air filers and I get a lot of fresh air. I don’t have a thyroid or gallbladder so it’s complicating things a bit I think
This is something else than mecfs…..these are mentally challenged people. Mecfs are not.
So it ok to notice but as long as it's Not super crazy of life threatening...Don't allow to spend to much time there and let Fear build there??? 🤔
Im just feeling like I have something different as there's no way I could just go do what I want to. And I don't hear the neurological issues in these mind body recovery stories that I have. You don't push through severe neuropathy, nausea and migraines.
I’m not recovered or functioning by any means yet but I used the Visible app to help with pacing/monitoring my heart rate and was able to reign in my symptoms A LOT. I don’t know if that will help you but I thought I would put it here just in case it’s something you haven’t tried yet.
I felt the same way. The nervous system side of things has been important but I believe most of my symptoms have been rooted in physiological issues. For me one of the main culprits being mold illness (after 27 years of living in quite moldy homes). For other people its been lyme disease, other toxin buildup, etc. Don't doubt yourself!
I've done it with your condition s and heds t flares it I no but some of my symptoms have changed over decades minerals do help with fatigue more than pain best to look at fdn videos
@@annatomlinson1529do you happen to have hypomobility hypomobility makes us suseptabilty to mold Lyme etc
Keep listening to more of these stories. They Definitely talk about neurological problems and recovery.
We’re no spoonies!!
🧡 🧡 🧡 🧡 🧡
This makes me think about the power of ordinary people, when we unite and work toward a common goal. Medicine is lagging behind need but there are millions of people struggling with these issues. We've taken it upon ourselves to experiment, research, take action, give one another hope, and share what we've learned. Some folks like Raelan and Dr Gupta dedicate their lives and careers to helping others. Power to the people, right on! 👊🏻
I did Mel's course 1.5 years ago after struggling to recover from ME/CFS for almost 3 years. I had read a lot of literature before doing this, because I was so skeptical: but there is a relationship between the mind and body. 📢 Do not lose a decade before giving this a shot 📢 But you have to be prepared to do the work. After learning to regulate my nervous system by reducing my anxiety, I full recovered - I could walk, exercise, and eat anything without having a crash. It has given me the awareness, energy and capacity to deal with much of what got me sick and stuck in the first-place: maladaptive coping mechanisms from trauma, or what I now call an inability to listen to my body and emotions. I continue to use her course in my daily life, in combination with good nutrition, TRE, inner-child work and exercise.
That's amazing you've found what works for you ❤️❤️ Super inspiring! Thanks so much for sharing, Michele 🌟
Hi jack thanks for sharing! It sounds like u were pushing ur body to the limit with to much gym stuff/exercise ! Was it an addiction ? Then u had trauma from a break up and had to deal with loss! Im sure you will get fully wrll and hope u dont push urself with so much exercise again! Adrenals probably got burnt out? Thanks for sharing!
Where you find this brain retraining excersises? Can not find it
You look and sound, way to happy and excited, to be talking about bacteria, and excrement.
How do you rid yourself of familial parasites?
I think this lady jumped on the parasitic bandwagon and thought a lot of people would cough up (no pun intended) hundreds of dollars.
Myofascial pain syndrome is the MOST COMMON manifestation of chronic pain. Myofascial pain syndrome is characterized by active myofascial trigger points, Myofascial trigger are taut bands in skeletal muscle or muscle knots. Continuing to use muscles with trigger points cause both peripheral and Central sensitization ie allodynia and hyperalgesia. Dry needling is the most effective way to treat active myofascial trigger points. There is always an underlying cause why the formation of myofascial trigger points continue. But let's really get into the science. Moseley, himself wrote the excellent chapter on pain in the equally excellent 4th edition of the text Clinical Sport Medicine(2012). Here are some Moseley excerpts: “Trigger points are present in all patients with chronic pain and are thought to reflect sensitization of nociceptive processing in the central nervous system… Patients with active trigger points present with persistent regional pain… These patterns clearly reflect central convergence of peripheral inputs, which further implicates the central nervous system in their generation and contribution to a pain state.” Moseley GL. Pain: why and how does it hurt? Brukner & Kahn’s Clinical Sports Medicine. North Ryde, NSW: McGraw-Hill Australia Pty Ltd; 2012 "elimination of myofascial trigger points is an important component of the management of chronic musculoskeletal pain” and “we have found ischemic compression and dry needling to be the most effective" According to Dommerholt, all treatments fall into one of these two categories or both: a pain-control phase and a deep conditioning phase. During the pain-control phase, trigger points are deactivated, improving circulation, decreasing pathological nociceptive activity, and eliminating the abnormal biomechanical force patterns. During the deep conditioning phase, the intra- and inter- tissue mobility of the functional unit is improved, which may include specific muscle stretches, neurodynamic mobilizations, joint mobilizations, orthotics, and strengthening muscle pubmed.ncbi.nlm.nih.gov/7850884/ Myofascial pain J R Fricton. Baillieres Clin Rheumatol. 1994 Nov. MFP is a regional muscle pain disorder characterized by localized muscle tenderness and pain and is the most common cause of persistent regional pain. The affected muscles may also display an increased fatiguability, stiffness, subjective weakness, pain on movement and slightly restricted range of motion that is unrelated to joint restriction. MFP is frequently overlooked as a diagnosis because it is often accompanied by signs and symptoms in addition to pain, coincidental pathological conditions, and behavioural and psychosocial problems The difficulty in managing MFP lies in the critical need to match the level of complexity of the management programme with the complexity of the patient's situation. Failure to address the entire problem, through a team approach if needed, may lead to failure to resolve the pain and perpetuation of a chronic pain syndrome. pubmed.ncbi.nlm.nih.gov/16259310/ A review of myofascial pain and fibromyalgia--factors that promote their persistence Robert D Gerwin. Acupunct Med. 2005 Sep Chronic muscle pain (myalgia) is a common problem throughout the world. Seemingly simple, it is actually a difficult problem for the clinician interested in determining the aetiology of the pain, as well as in managing the pain. The two common muscle pain conditions are fibromyalgia and myofascial pain syndrome. The problem these syndromes pose lies not in making the diagnosis of muscle pain. Rather, it is the need to identify the underlying cause(s) of persistent or chronic muscle pain in order to develop a specific treatment plan. Chronic in myalgia may not improve until the underlying precipitating or perpetuating factor(s) are themselves managed. Precipitating or perpetuating causes of chronic myalgia include structural or mechanical causes like scoliosis, localised joint hypomobility, or generalised or local joint laxity; and metabolic factors like depleted tissue iron stores, hypothyroidism or Vitamin D deficiency. Sometimes, correction of an underlying cause of myalgia is all that is needed to resolve the condition. www.sciencedirect.com/topics/nursing-and-health-professions/myofascial-painMyofascial Pain Syndrome Andrea L. Nicol MD, MSc, ... F. Michael Ferrante MD, in Essentials of Pain Medicine (Fourth Edition), 2018 Myofascia l pain or regional musculoskeletal pain is one of the most common pain syndromes encountered in clinical practice. Myofascial pain represents the most common cause of chronic pain, including neck and shoulder pain, tension headaches, and lower back pain
Brilliant❤
Aromatase inhibitors last long
It's so difficult to actually be reclusive for stage 1 due to work and family issues. I work a physical job and my dad is battling cancer. I also have other health issues that are popping up like having to be sedated to get a tooth removed and eventually a dental implant. I also struggle with controlling my emotions and get overwhelmed by all this shit!
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Such a great video, thank you both.
I need her info
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