Raelan's commitment to spreading awareness through a multitude of interviews with various experts in the field is truly commendable. Her dedication to sharing valuable content is highly valued, especially by those in need of resources and information. It's heartening to see individuals like Raelan making a significant impact in raising awareness and providing support to others. Many thanks for her efforts!

I'm so glad recovery story privilege was mentioned and also the ignorance that some coaches/program creators have in regards to thinking that their modality/approach/program is the answer for everyone. I've noticed that some coaches/program creators have this blind spot. They heal and then think "oh my god, everyone just needs to do this too!", forgetting or not realising that there is no one size fits all approach to healing.

@silvermoonuk

3 ай бұрын

I agree. Everyone's journey is different. Not all programs or treatments will work for everyone

@larsstougaard7097

3 ай бұрын

Totally agree , have seen people miraculously recover from an insight or brain retraining in a few weeks suddenly they are masters in recovery from a very narrow experience.

@regina6838

3 ай бұрын

​@mangatizeme3874I don't know if you're referring to anyone specific who is greedy. But we can't expect people to know if it helped themselves it will help all others

@ajourneywithm.e.reflection8880

3 ай бұрын

I think it is dangerous to tell everyone, it's just the nervous system, dont take the bait.....as some prog do. We are all unique and some have trauma and more complex issues.

You can heal for free. You are not broken - your brain is perceiving danger when u are not in danger. Feel safe.

Thank you for opening up the conversation around costs.. the price of many programmes and coaching in my opinion is completely unjustified

I am just now realizing the pun in this title with her dog Winnie! Thanks Raelan for your kind words about our guide, and for all you do with your amazing channel, support group, and programs!

This lady speaks good points. Everyone is going to be different with their health journeys.

ANS REWIRE is very good❤

So many people share wonderful videos about cfs and LC that I don't feel like I need (or want) to pay for a program to hold my hands. Channels like this one, Rebecca Tolin and CFS Health offers very good quality videos for free.

Thank you both so much! I have recommended your Lindsay and Liz’s program guide to doctors (who have used it for their patients) and many others struggling. It is a HUGE and much needed resource. Like Raelen, I sure wish I had something like that back in 2007+ Now I have done several programs and healed so much! Great interview. And cutest pups.

Be wary of people who charge 6000 USD for their program and who are caught out in another interview saying they want to make a million in a year out of ME/CFS patients....and who was interviewed on this channel....twice!

@alias701

3 ай бұрын

Where did he said this?

@me-cfs-strategiesforhealing

3 ай бұрын

@@morelimefalmouth Oh my, it gets worse and worse!

@me-cfs-strategiesforhealing

3 ай бұрын

@@morelimefalmouth Spot on! And yes, either that, or an extra 300 USD per month to stay in.

@me-cfs-strategiesforhealing

3 ай бұрын

@@alias701 YT won't let me type where but you'll have to look him up on popular forums.

@lindavid794

3 ай бұрын

This person charged me over two hundred dollars to send me a printout of information that is totally free and non specific info available on the internet. I thought he was going to help me.

Such wonderful wise advice ❤ Thank you Lindsay and Raelan. xx

Raelan you're the best - and by that, i mean you are doing the best job informing the regular person how to choose their own path to hopefully get out of this maze.

@Notinitforthelonghaul

2 ай бұрын

Very true

So true, I adopted a little yorkie and she has been so calming for me!

Great advice thank you

Thanks Raelan. Very helpful for everyone, even those of us creating a program. Good insights and input. I think my fledgling program is ticking boxes. I do think its hard to offer a community when you first launch a program?

Thank you

Lindsay is AMAZING! Highly recommend her 1:1 support! So very helpful and personalized. She was kind, thorough, thoughtful and attentive. ❤

@RaelanAgle

3 ай бұрын

Totally agree! ❤️❤️❤️

And also Mary Ruddick who charges $6000 for her dysautonomia program and $225/15 minute consultation.

@me-cfs-strategiesforhealing

3 ай бұрын

Really? Is that her 'back to joy' program? Her website says it is 295 USD for the full program. Or are you talking about a different one? Her Enable Your Healing program? Thanks.

@northernflicker1111

3 ай бұрын

@@me-cfs-strategiesforhealing it's her newest dysautonomia program on enable your healing. You have to sign up for the waitlist and be contacted by someone to even see the price.

@northernflicker1111

3 ай бұрын

@@me-cfs-strategiesforhealing it's the newest dysautonomia program on the enable your healing site. You have to apply and then someone contacts you with the price.

@PeaceIsYeshua

3 ай бұрын

@@me-cfs-strategiesforhealing I looked at her website and never found anything for $295. There were no prices listed, but I have heard several people say it costs $6K. I’ve also heard it heavily focuses on the nervous system/brain retraining. I’m glad there are programs that charge much less.

@PeaceIsYeshua

3 ай бұрын

@@me-cfs-strategiesforhealing Her BTJ program doesn’t seem to be available anymore. Her other one is 6K to my knowledge.

If you’ve met one long hauler, you’ve met one. It’s an incredibly heterogeneous disease. Thank you for acknowledging this.

@briechilli4496

3 ай бұрын

How negative.

@amysin963

3 ай бұрын

@@briechilli4496 negative? I think you misunderstood what I wrote. They said in the video that a treatment program that helps one long hauler may not help another. There’s nothing negative about what I wrote; I was just agreeing with what they said. No two long haulers are alike.

I wonder if there is a gender influence on what programs resonate? For example, my husband carries some sense of shame around having this illness. He refuses to use a walking stick in public; he is sensitive to looking “weak.” Seems like we could make gender generalizations/factors -maybe some programs are more sensitive to what I’ll just call male ego. ?

@amysin963

3 ай бұрын

He should check out The Healing Dudes. Raelan interviewed them here not too long ago.

What is the name of her Facebook group ? ❤

Also anyone who says ME/CFS is just a nervous system disorder and ignores the countless biomedical abnormalities in the body as well. Big red flag.

@regina6838

3 ай бұрын

Can you give some examples of what are biomedical abnormalities, please?

@souldjah5496

3 ай бұрын

Well, taking care of silent inflammation or at least getting this checked is not a bad idea. If you have e.g. Neuralgia Inducing Cavitational Osteonecrosis (NICO) or another problem with your teeth, it can put unnecessary stress on your system. This not a consequence of your nervous system dysfunction.

@einbisschenwasvonjenem

3 ай бұрын

​@@regina6838there seems to be also a connection with demyelination of nerves. There are several things that are mentioned and found until now on a physical scale, but apparently it is not yet enough to have something like a biomarker to proof that me cfs has in fact a biological component. Nevertheless I think some programs could be helpful. But I also think it could cause harm with pressure that everyone would recover if he only did the right mentality things.

@einbisschenwasvonjenem

3 ай бұрын

I think we also need a ton of research in a medical way. And yes some programs could be harmful by existence confirming this what some physicians believe: see, it's just in your head and psychological thing.

@regina6838

3 ай бұрын

@@einbisschenwasvonjenem I participated in a scientific presentation of research a couple of months ago. It's going to take decades for pharmaceuticals to be developed. If we wait for that many people will suffer. It's needs a balanced approach body and mind. My approach is oriental energy medicine and herbs and all things natural that don't have consequences for the body like pharmaceuticals have.

If my government is saying something is "safe and effective" it is an instant red flag for me.

16:44 - Makes random, irrelevant mention of having a master's degree, presumably to brag. Red flag for me.

@HealwithLiz

3 ай бұрын

LOL, but honestly, Lindsay is one of the most down to earth people I know. I never got a grad degree, but I think Lindsay's masters in public health is relevant, since she did her thesis on health program evaluation. She has previously worked in education, supporting youth, and public center mental health. I think her thesis involved both quantitative and qualitative data, so why she looks for evidence in programs and not only just her gut feels. It was nice working with her to make our guide because we balance each other out well (I never got a grad degree, but have lots of qualitative background.)

@dani88light

3 ай бұрын

I think she was mentioning her masters degree, because she was talking about how she is looking for science backed programs, and that with her background she very is science focused. Not everyone cares so much about the science backing, but she was explaining that it’s important to her, and so she looks for that. She wasn’t bragging in anyway.

@PeaceIsYeshua

3 ай бұрын

@@HealwithLiz Oh my gosh, it’s great to find you on here! I got y’all’s PDF guide to all the different programs and it has been SOOOO helpful!!!! I would have been so overwhelmed otherwise. Thank you so much for doing that and making it affordable also. I really appreciate y’all!! ❤❤