Why ME/CFS is Ignored and Neglected by the Medical System - Dr. Katie Brown, MD

In this video, Dr. Katie Brown, MD, a family doctor in Terre Haute, Indiana, talks about how she got through med school while dealing with ME/CFS, how she fully recovered with ANS Rewire, and now uses her hard-won knowledge working with ME/CFS patients in her practice.
CONNECT WITH DR. KATIE BROWN, MD:
🌐 Dr. Katie's Website - www.cfsdoc.com
🛎️ Dr. Katie's KZread -‪@cfsdocbrown‬
🍀 Dr. Katie's Patreon - www.patreon.com/user?u=82571520
💌 Email Dr. Katie - brown@gsdpc.com
⌛️ Is it true that only 5% with CFS recover? - • Is it true that only 5...
🥁 This is why your doctor isn’t hearing you: Insights from a physician - • This is why your docto...
MENTIONED IN THIS VIDEO:
🛎️ Dan Neuffer's Program ANS Rewire - ansrewire.com/
📖 The Mindbody Prescription by Dr. Sarno - amzn.to/45lBtuQ
🌳 Nick's Recovery Story: Chopping Down the Tree - • Nick's ME/CFS Recovery...
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TIMESTAMPS:
00:00 🌟 Meet Dr. Katie Brown, MD
01:23 🚑 From Healthy to Complete Shutdown
03:25 🤝 First Person Who Helped Dr. Katie
05:11 🧩 Why She Didn't Research ME/CFS Recovery
07:16 📄 What's the ICD-10-CM Code
09:12 🥼 Ignored and Neglected by the Medical System
10:11 🏥 Docs Know Best How Screwed Up the Healthcare System Is
11:10 😫 What Causes ME/CFS?
12:30 🔄 Moving Nervous System Out of Negative Cycle
13:14 👩🏻 How Dr. Katie Recovered
16:07 🥼 What about Dr. Sarno?
20:16 🚬 Do Nicotine Patches Work?
22:10 🤒 How to Cope With Additional Illness?
25:28 🧠 Thoughts on Polyvagal Theory
27:13 🔥 What About Neuroinflammation?
28:44 🚶‍♂️ How to Safely Expand Activities
31:35 👩‍⚕️ Dr. Katie's Approach to Recovery

NOTE: This description may contain affiliate links to products I enjoy using myself. As an Amazon Associate, I earn from qualifying purchases. Should you choose to use these links, this channel may earn affiliate commissions at no additional cost to you. I appreciate your support!
REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#mecfsrecovery #recoverystory #mecfs

Пікірлер: 164

  • @kristinae.7084
    @kristinae.70842 ай бұрын

    That invisible "line" between the psychological and the physical is the Nervous System.

  • @justritasimi
    @justritasimi2 ай бұрын

    What i learned from this interview: prioritize rest, reduce stress, and realize your nervous system became dysregulated for a reason , so find what those reasons were and make necessary changes ..best interview ive seen on the subject and good to know there is a doctor out there who can help others who has been through the trenches herself!

  • @tanyawieczorek6603

    @tanyawieczorek6603

    2 ай бұрын

    Mine was disregulated due to 2 bouts of covid, but no idea how to heal it myself

  • @stevebarlow1959
    @stevebarlow19592 ай бұрын

    This is just fantastic. And a real game-changer for the many lucky enough to find their way to Dr Brown who knows CFS painfully inside and out (I wouldn't wish it on anyone but it makes a HUGE difference when a medical professional knows the conditon personally) Love the description re: the ANS does not distinguish between physical or psychological stress/trauma triggers, it simply becomes profoundly dysregulated regardless. Thank you both for this fantastic interview (ps: I've just completed ANS Rewire and it has made a BIG difference to my journey)

  • @RaelanAgle

    @RaelanAgle

    2 ай бұрын

    So happy to hear that you found ANS Rewire helpful, Steve ❤️

  • @AnneAlready

    @AnneAlready

    2 ай бұрын

    Great comment, and great testimony! Best wishes for continued healing.

  • @taragunn9400

    @taragunn9400

    2 ай бұрын

    What aspects of AND Rewire helped you Steve?

  • @stevebarlow1959

    @stevebarlow1959

    2 ай бұрын

    @@taragunn9400, it would be hard to single any one component out. Reframing thoughts, silencing the chatter and anxiety/stress 'voices', encouraging a different relationship with symptoms, reducing catastrophising etc. It is so cram packed with useful stuff and while a lot of it I was already implementing into a daily framework, the reminders and reinforcement from somewhat who can really walk the walk was powerful.

  • @friendswithfairies3278
    @friendswithfairies32782 ай бұрын

    Dr. Katie is more than a doctor. She’s a beautiful Earth Angel and pure soul. What a wonderful blessing!

  • @EmergingForward
    @EmergingForward2 ай бұрын

    I love the reminder to go slow and steady, baby steps, to recover. So great to have medical professionals who understand this condition and from personal experience, very hopeful!

  • @misscinnamon5690
    @misscinnamon56902 ай бұрын

    Really great interview, I hope you will have her back in 6 months or a year's time when her knowledge is even greater.

  • @kamusnainen

    @kamusnainen

    2 ай бұрын

    This is a good idea

  • @heidikonigs4421
    @heidikonigs44212 ай бұрын

    Dear Realan, thank you very much for your great work! "Unfortunately" I only came across your site after three years of Long Covid. Funnily enough, I tried nicotine patches and your name was mentioned in the group there. I read your book and came across your site at the beginning of January 2024 and was finally able to start my recovery. I'm from Germany and speak English. I have a few friends and relatives who would benefit greatly from your and other English language sites. Unfortunately, the language barrier is too high for them and healing through mind-body-work has not yet arrived in Germany.

  • @germanside7890

    @germanside7890

    2 ай бұрын

    Hey Heidi, es gibt die Möglichkeit auf KZread einen deutschen Untertitel für die Videos zu verwenden. So haben auch die Menschen die nicht so gut English können die Videos zu verstehen. German LG

  • @Leonschulze06

    @Leonschulze06

    2 ай бұрын

    Sonst ist das Gupta Programm auch empfehlenswert. Ist auch auf deutsch

  • @emanuelgy729

    @emanuelgy729

    2 ай бұрын

    Hi, haben die Nicotine patches geholfen ??? Grüße 😊

  • @lirdling
    @lirdling2 ай бұрын

    Dr Brown has confirmed so many of the conclusions I've come to myself about the fatigue element of my Long Covid. It's always reassuring to hear a medical professional who has come to the same conclusions as myself. She explains it all so well, too, especially in addressing that confusion I've seen so many have in believing that doing any psychology work to recover implies that the condition is entirely psychological. Definitely a video I will be sharing when it becomes available for general viewing on your channel.

  • @RaelanAgle

    @RaelanAgle

    2 ай бұрын

    So good to know that you find the interview helpful, Lirdling! ❤️

  • @RaelanAgle

    @RaelanAgle

    2 ай бұрын

    Thanks so much for your kind support, Lirdling! ❤️❤️❤️

  • @nolamayer4101
    @nolamayer41012 ай бұрын

    Really enjoyed this interview. The link I learned from listening to an American Dr talking about long Covid and nicotine wasn’t to do with the stimuli the nicotine can induce but more the link from what caused the Covid virus and using nicotine to suppress this. It isn’t something that is widely known about , at least here in Oz ,but from I learnt studies have been done in England on the success of this treatment . Wishing you all the best Katie and thanks Raelan for addressing my question, much appreciated 🥰

  • @PeaceIsYeshua
    @PeaceIsYeshua2 ай бұрын

    21:45 From my understanding about the nic patches, for Covid, they don’t mask symptoms, because you don’t use them for very long. You only use them for 1-2 weeks, and in that time, they neutralize the spike proteins and are no longer needed. ❤

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    Thank you for pointing that out. I will do further research!

  • @PeaceIsYeshua

    @PeaceIsYeshua

    2 ай бұрын

    @@cfsdocbrown You’re so welcome!! 🩷🩷

  • @timm.8729
    @timm.8729Ай бұрын

    This is a great interview, what a blessing there are doctors like you! ❤

  • @Skyrunner2
    @Skyrunner22 ай бұрын

    Wonderful interview. So glad to hear the medical field is slowly waking up. And kudos to Dr. Brown for her arduous work and commitment to help others. Thank you for answering my question both Dr. Brown and Raelan. ❤

  • @RaelanAgle

    @RaelanAgle

    2 ай бұрын

    You're most welcome, Maitte! ❤️❤️❤️

  • @stacymeyers8821
    @stacymeyers88212 ай бұрын

    This was very helpful. Thank you so much Dr. Katie! And Raelan! I'm still still on my recovery journey. Keeping the hope!!

  • @RaelanAgle

    @RaelanAgle

    2 ай бұрын

    Glad to hear it was helpful, Stacy!

  • @jayverasummer
    @jayverasummer14 күн бұрын

    Thank you. I’m loving the doctor interviews 🙏

  • @kimcoons3322
    @kimcoons3322Ай бұрын

    I live in KY and am definitely emailing Dr. Brown! This is amazing!

  • @RaelanAgle

    @RaelanAgle

    Ай бұрын

    ❤️ ❤️ ❤️

  • @callum5752
    @callum57522 ай бұрын

    One thing a lot of these stories have in common is that they learn to stop crashing or getting PEM as much. Perhaps just avoiding PEM for a long time is what gives us our life back. I’m going to try and test this myself by goijg one year straight without any PEM and see if it cures me

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    Let me know how it goes!

  • @PeaceIsYeshua

    @PeaceIsYeshua

    2 ай бұрын

    I’m trying to recall what PEM stands for?

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    @@PeaceIsYeshua PEM = post exertional malaise. The worsening of symptoms after physical, emotional, or cognitive exertion.

  • @lkececi7513

    @lkececi7513

    2 ай бұрын

    A year will pass quickly, it's doing no more than your own limits and stopping before , then it's a waiting game I think

  • @PeaceIsYeshua

    @PeaceIsYeshua

    2 ай бұрын

    @@cfsdocbrown Thank you!! ❤️

  • @birgitlilliehook5139
    @birgitlilliehook51392 ай бұрын

    Thank you! So inspiring❤️

  • @elizabethbarker5364
    @elizabethbarker53642 ай бұрын

    One of the best interviews ❤️🙏🏼

  • @lianpeet3502
    @lianpeet35022 ай бұрын

    Great interview! Dr Brown answered those questions so well and seemed lovely. What a fantastic service to be able to offer to visit!

  • @timruof
    @timruof2 ай бұрын

    Absolutely nailed the TMS / CFS question.

  • @LetHimSaveYou
    @LetHimSaveYou2 ай бұрын

    So glad I found your channel. Your content is very helpful! I'd love to know how you got your first name? Raelan? It's beautiful! Thanks for all you share. Can't wait to watch more of your videos.

  • @khatijakay4107
    @khatijakay41072 ай бұрын

    Her work sounds amazing and she seems like a lovely person ❤

  • @PeaceIsYeshua
    @PeaceIsYeshua2 ай бұрын

    Most chronically ill patients have very little funds, so it’s so awesome to continually hear about brain retraining being the common denominator to healing since it’s affordable-especially “Curable,” which I haven’t tried, but it has a lot of good science behind it. After researching, I plan to start with Ben Ahren’s Re-Origin. It looks to get straight to the point and be a simplified version, and that’s what I need. 😆 Wishing everyone the best with recovery. 🙏🏻 Thank you for all you do, Raelan!! ❤❤

  • @katydonna6015

    @katydonna6015

    2 ай бұрын

    I have made great progress with brain retraining, purely by running this sentence through my head multiple times per day and doing the meditation brain retraining for cfs here on YT, where I learnt the statement: I am safe, my body is fine, I trust the process. As well as responding well (not fearing or thought spiraling) to my symptoms presenting. My vision is clear! My ability is much better, I see my recovery in the near distance.

  • @PeaceIsYeshua

    @PeaceIsYeshua

    2 ай бұрын

    @@katydonna6015 That is amazing! I am so glad you are getting better, and thank you so very much for sharing that! 🩷🩷

  • @jog5289

    @jog5289

    2 ай бұрын

    @@katydonna6015 That's really great to hear. Well done to you! Raelan mentioned once about putting little post it notes around the house saying "I am Safe, My Body is Fine" but I've been saying it instead, when I have a negative thought about my symptoms, and it definitely seems to be helping me to re-train my brain. I will try to remember the last part you say as well, "I Trust the Process". Wishing you a full recovery! :)

  • @lindle333

    @lindle333

    2 ай бұрын

    If you google living proof useful resources - you will find a link for curable 6 weeks free and then 50% off subscription. Google for Loz Evans book it’s a free pdf that teaches brain retraining. Jan Rothneys book breaking free is very affordable. If you search for dnrs rounds on KZread you will see some examples. Hope that helps.

  • @azigaziroth

    @azigaziroth

    2 ай бұрын

    I've been doing Re-Origin for 6 months and it's a great choice, I can't recommend it enough! And the community there is wonderful.

  • @theantiqueactionfigure
    @theantiqueactionfigure2 ай бұрын

    Has anyone done research on why folks who've successfully gone through recovery giggle so much, Lol? Seriously the cheeriness gives me hope!

  • @callum5752

    @callum5752

    2 ай бұрын

    I’m guessing the brain protects you from all the bad times you went through. You start to forget just how bad it was at the time. Plus it probably feels good to be healthy again after so long.

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    I am so thankful just to be alive and well! I remember when I thought my life was going to be confined to a couch or a bed. Now I am grateful for my ability to do things. The joy of recovery is unlike anything else.

  • @regina6838

    @regina6838

    2 ай бұрын

    😂❤

  • @jog5289

    @jog5289

    2 ай бұрын

    @theantiqueactionfigure I hope I'm going to recover and find out for myself one day!

  • @Starfish3942
    @Starfish39422 ай бұрын

    Raelan, what a fabulous interview. Dr Brown explained the difference between TMS and CFS really well - these are NOT the same thing, but the TMS techniques are still really useful for CFS patients. There’s a lot of misinformation out there so it’s nice to hear from a Dr. Also how wonderful that someone (dr brown) FINALLY gets that doctors may need to travel to their very sick patients. …

  • @jog5289

    @jog5289

    2 ай бұрын

    @Starfish3942 I totally agree that's it's almost impossible for some CFS patients to get to a Doctor's Clinic! I've just put off anything like Dental Check-ups, routine GP visits, Optometrist Check-ups, for years now. I just can't do it. I'm fortunate in the small City where I live, the Phlebotomist will come and do a Blood draw at my home, and my online Dr will review the results. The rest I will have to catch up on when I'm a bit better, but mostly no-one seems to consider they should visit the Patient like the old fashioned House Calls that Doctor's used to do years ago! Bravo to Dr Brown for travelling to Patients! 😊

  • @Starfish3942

    @Starfish3942

    2 ай бұрын

    Exactly, we need a GP, nurse, physio and phlebotomist home visits. There have been times I’ve needed a dr or a test for a different health concern and been too ill to go. Basically you just get left….

  • @seffie4363

    @seffie4363

    2 ай бұрын

    yet i recovered when i accepted that my cfs was actually tms 🤷‍♀️ i followed the guidelines and have been living normally for a year and now rasing back into exercise, i also did ANS Rewire and although an excellent programme i didnt improve that much on it x i suspect there isnt one thing that works for everyone but i tried a lot and tms approach was the only thing that worked for me

  • @Starfish3942

    @Starfish3942

    2 ай бұрын

    @@seffie4363 that’s so great that you found something that works for you and you recovered! Congratulations! I have no doubt TMS plays a part for a lot of people. Perhaps when an initial infection is resolved, the brain training then becomes more effective? TMS doesn’t have any physiological markers that we know of right now, whereas ME/CFS has loads of them: differences in clotting and circulation, problems with lymph and glymph drainage, changes in immune cells, inflammation especially in brain and spinal chord, viruses often found in spinal fluid, sluggish calcium channels, impaired glucose, fat and protein metabolism, differences in muscle tissue, depleted antioxidants like glutathione, dysautonomia etc. the list goes on and these tend to suggest an infection trigger… Most of us have a lot of these things in common. But of course it’s entirely possible PDP is triggered by the body being overwhelmed by the infection. Im Definitely open to the possibility that these are caused by a danger response and I actively follow the TMS practices but I think the causes could be quite varied.

  • @Starfish3942

    @Starfish3942

    2 ай бұрын

    But who knows…. Maybe they’ll come up with a brain scan that shows PDP in a few years! 😂

  • @danielamarinkovic2720
    @danielamarinkovic27202 ай бұрын

    I subscribed to Raelan`s chanell a few months ago and yesterday I decided to become a member because I want to support amazing work that you Raelan are doing and also, of course, to learn as much as I can, and figure out a way to help myself. For the first time, these explanations of what I`m going through regarding my illness, make sense. I`m so thankfull to God that people like you exist because I was relying on conventional medicine for 3 years and it led nowere. I live in Serbia and in my country it`s even more difficult to convince medical system (and also other people around you) that you really are ill. This was, all in all, a great interview! Dr. Brown is so nice and humble but she is also very smart and I think she is connecting the dots in the right way. Thank you both for your amazing work and commitment! Keep going 😊

  • @RaelanAgle

    @RaelanAgle

    2 ай бұрын

    Thanks a bunch for your kindness and support, Daniela! 🙏😊❤️

  • @RaelanAgle

    @RaelanAgle

    2 ай бұрын

    Thanks so much for your kind support, Daniela ❤️ Wishing you all the best on your recovery journey!

  • @annettekerr7266
    @annettekerr72662 ай бұрын

    Excellent

  • @swedieman1
    @swedieman12 ай бұрын

    Nicotine is not meant to be used for it's stimulant effect when used for LC or prevention for corona type viruses. You need far less nicotine than what you need to feel the psychological/nervous system response to get the protective effects. Why this works is because of the spike protein bind to the nicotine receptor on your cells, but nicotine have a much higher affinity binding to the receptor which basically "pushes the spike protein away" or not making it able to bind to the receptor in the first place.

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    Thank you. I obviously still have so much to learn!

  • @baileystruss7319
    @baileystruss73192 ай бұрын

    What about all the metabolic and other problems that have been identified now that are not the simplistic nervous system umbrella ? CCI, CSF hypertension, genetics, EDS, spike protein with LC, dormant herpes, hormone and Indocrine problems. There are so many that don't fall under the simplistic nervous system explanation.

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    Great, great question. My explanation was simplistic simply due to time constraints and format. There is certainly a whole host of conditions which may predispose to CFS, mimic CFS or prevent healing. For example, I consider CCI a mimic because it is a structural rather than a functional ANS dysfunction. EDS seems to predispose to CFS and may have its origins in genetic hypomethilation which may account for part of that link. Many of the other things you mention may be downstream effects of the ANS’s effect on the endocrine and immune systems or it may be something more complicated.

  • @lkececi7513

    @lkececi7513

    2 ай бұрын

    Another thing I have to do now is look up all of this stuff, never heard of it

  • @tomsale5142

    @tomsale5142

    Ай бұрын

    Yes and the cause of alot autism ADHD.i now no why I have fybromyalgia CFS autism heds adhd😊

  • @tomsale5142

    @tomsale5142

    Ай бұрын

    ​@@cfsdocbrownyes eds is linked to autism myself included this is surely the and with autism then thyroid under methalation as a baby I slept 23 hrs a day ling before CFS fybromyalgia diagnosis.and heds

  • @tomsale5142

    @tomsale5142

    Ай бұрын

    ​@@lkececi7513if you have heds CCI comes with it

  • @alexandernordic8551
    @alexandernordic85512 ай бұрын

    Amazing interview! But the nicotine patch theory is different though. They assume that a certain active ingredient in nicotine is supposed to kill (covid)viruses. The idea behind this is that resistant virus residues remain in the body after infection and cause symptoms. Greetings from Germany!

  • @jog5289
    @jog52892 ай бұрын

    Another great interview! Thank you, Raelan and Dr Katie! It's lovely to know CFS patients in the U.S. will be able to access Dr's services. I'm in the North Island of NZ & my Functional and Integrative MD is in the South Island of NZ, and sometimes she's requested I go to see my local GP to have a physical examination, seeing as she can't do it herself, and then the findings can be sent to her. (Just thought I'd mention that.) All the best and congrats on your recovery, Dr Katie. 💛🧡💜

  • @RaelanAgle

    @RaelanAgle

    2 ай бұрын

    You've got such great support! 💪 ❤️ ❤️

  • @taragunn9400

    @taragunn9400

    2 ай бұрын

    I’m in NZ too- can you share your Drs name?

  • @jog5289

    @jog5289

    2 ай бұрын

    @@taragunn9400 Hi. Is there some way I can message you privately? I would prefer to give a bit more information as the above comment might sound like I'm doing well with this particular Dr, but there's a lot more to it. (I hope you can understand.) Eg. I started seeing her 4.5 years ago and I've been in worse health the last 2 years.. basically bed bound.. and I'm currently on 21 different supplements and meds that are expensive. The clinic fees are $550 per hour etc etc. Let me know how we can connect. All the best.

  • @jog5289

    @jog5289

    2 ай бұрын

    @@taragunn9400 Hi. I did reply here the day you posted, but my message is no longer showing. Did you see my original message ok?

  • @taragunn9400

    @taragunn9400

    2 ай бұрын

    @@jog5289 oh no I didn't get a notification or anything. Perhaps it's not allowed. :(

  • @Unitedstatesian
    @Unitedstatesian2 ай бұрын

    It is unfortunate that even doctors do not seem to get the fact that nicotine is a stimulant of the parasympathetic system. When the ANS is not working properly this is fantastic. A nicotine patch helps the vagus nerve heal, it reduces neuroinflammation, improves NAD+ and autophagy. It is not a miracle cure, but we have been able to help a lot of people get better, improve their quality of life and for some lucky people they credit nicotine patches as being the last piece of their healing puzzle. It also helps calm the brain and increase neuroplasticity. These are beneficial and make "brain training" more powerful. In our social media we always suggest that people go slowly and to continue pacing... even if they feel great!

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    Thanks for the information. Is there any scientific research you can point me to where I can learn more?

  • @sayler47

    @sayler47

    2 ай бұрын

    It’s actually used to kick the spike proteins from the nicotinic acetylcholine receptors. Not for the purpose of a stimulant. Used more for a detoxification of spike proteins..

  • @sayler47

    @sayler47

    2 ай бұрын

    www.ncbi.nlm.nih.gov/pmc/articles/PMC7889469/#:~:text=recently%20suggested%20that%20the%20SARS,similar%20to%20known%20nAChR%20antagonists.

  • @sayler47

    @sayler47

    2 ай бұрын

    KZread is deleting my links despite the fact that they are from Pubmed. Censorship is fun. www.ncbi.nlm.nih.gov/pmc/articles/PMC7889469/#:~:text=recently%20suggested%20that%20the%20SARS,similar%20to%20known%20nAChR%20antagonists.

  • @sayler47

    @sayler47

    2 ай бұрын

    I tried to post links to the published papers but KZread deleted them.😕

  • @lkececi7513
    @lkececi75132 ай бұрын

    Dear ralean, if you could ask at some point this question, in the old days it used yo be nervous breakdown- nervous exhaustion - nervous collapse, and the Dr. Said stay with relative in countryside, rest, read for 6mths, see bette Davis film Now voyageur, is it really about a nervous breakdown but in a society where its difficult to get proper rest and help

  • @tomsale5142

    @tomsale5142

    2 ай бұрын

    Yes what Claire weeks describes 1962 and suffered by many perfectionist I have found I have asperger's ADHD heds fybromyalgia cfs decades but hope it is this

  • @taragunn9400

    @taragunn9400

    2 ай бұрын

    I have often wondered this. How many of us can say we knew things weren’t quite right - but kept pushing past our bodies warning signals to stop and rest.

  • @e.williams13

    @e.williams13

    2 ай бұрын

    CFS is an autonomic nervous system dysregulation...the fight or flight off. CFS is when you are stuck in the freeze state .

  • @tomsale5142

    @tomsale5142

    2 ай бұрын

    ​@@e.williams13yes and linked to autism ADHD subconscious brain is different in us

  • @e.williams13

    @e.williams13

    2 ай бұрын

    @@tomsale5142 I've never heard that

  • @loobyluB
    @loobyluB2 ай бұрын

    Hi Raelan I’m ready to do a brain training program and I’ve seen so so many come up on your channel I don’t know where to start. What one would you say has been the most successful over the time you’ve done the interviews? I need to start somewhere.

  • @HillyMilton

    @HillyMilton

    2 ай бұрын

    If you google CFS program navigator, there is a lady called Lindsey Vine that has made a guide you can buy. It’s a small fee but let’s you compare all the top courses. If I wanted to start a course and wasn’t sure which one, that would be where I would start.

  • @RaelanAgle

    @RaelanAgle

    2 ай бұрын

    Great advice, Milly! ❤️

  • @erikasinternetgerat8019
    @erikasinternetgerat80192 ай бұрын

    kudos that you travel to you patients! flying doctress😊

  • @katydonna6015
    @katydonna60152 ай бұрын

    17:27 the ANS

  • @rachaellh
    @rachaellh2 ай бұрын

    How do we join your KZread Membership?

  • @RaelanAgle

    @RaelanAgle

    2 ай бұрын

    Click "Join" next to "Subscribe" under the video, and select a membership level. Thanks so much for supporting the channel ❤️🙏

  • @beam3819
    @beam38192 ай бұрын

    Have spesific personalities more chance to get burned out/ get ME, fatigue, brain fog and exaustion? I think of neuro divergent or sensitive people for instance? TX, Norway

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    I think so. I plan to release a video in the next couple of days explaining why.

  • @tomsale5142

    @tomsale5142

    Ай бұрын

    Yes rccx gene theory.i have autism heds fybromyalgia cfs brain is different

  • @AnrupB
    @AnrupB2 ай бұрын

    For me, neuroinflammation has been a huge issue which created endless neurological issues.

  • @misscinnamon5690

    @misscinnamon5690

    2 ай бұрын

    have you found anything helps with your neurological issues?

  • @Candiedclouds

    @Candiedclouds

    2 ай бұрын

    CFS in general causes endless neurological issues, doesn’t mean it’s necessarily the neuro inflammation. Focus on what the Doc said and work on the nervous system… do not focus on the neuro inflammation because it’s not the root cause, it is just a byproduct of a dysregulated ANS. Sending you love and support on your healing journey from a fellow person experiencing CFS 😊❤

  • @AnrupB

    @AnrupB

    2 ай бұрын

    @@misscinnamon5690 Ayurvedic approaches helps me heal it, acupuncture and hyperbaric oxygen helped me improve them temporarily but would keep coming back. Some people it's the opposite, so it's really personal!

  • @AnrupB

    @AnrupB

    2 ай бұрын

    @@Candiedclouds I'm using methods that are working for me the last 1.5 years, but thank you. In my case, neuroinflammation has been scientifically proven in Long Covid cases through studies, scans, etc. and treatments that help with that. We are all unique!

  • @Candiedclouds

    @Candiedclouds

    2 ай бұрын

    @@AnrupB if Ayurveda, acupuncture and hyperbaric oxygen help AND it keeps coming back, then it means it’s mind body. Beliefs are important, your belief that you have neuro inflammation will keep you chasing that and only cause you more fear and frustration. We are not all so different in the CFS community. Watch all the recovery videos and you’ll understand. Look into limbic system retraining.

  • @TimMurphy41
    @TimMurphy412 ай бұрын

    Can anyone guess why they don't teach it in medical school? 🤔 Hint: It has to do with the cure.

  • @erikkkkkkk914

    @erikkkkkkk914

    2 ай бұрын

    Please enlighten us.

  • @TimMurphy41

    @TimMurphy41

    Ай бұрын

    @@erikkkkkkk914 CFS cure has no pills for doctors and pharma to sell.

  • @clarissericardo2313
    @clarissericardo23132 ай бұрын

    So what was the main factor in Drs Katie’s recovery? Brain retraining?

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    A host of things. ANS Rewire was helpful because it taught proper pacing and helpful lifestyle changes. I don’t consider the actual brain training portion to have played a big role in my recovery.

  • @emilybh6255

    @emilybh6255

    2 ай бұрын

    I guess it was mind over matter which can help a lot.

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    @@emilybh6255 Actually, I disagree. To me, mind over matter is the "push through" and "just ignore it" mentality that got me sick in the first place. The recovery mindset was more matter over mind. Give my body what it was asking for rather than trying to make it do what I wanted it to do.

  • @healingwithsipora
    @healingwithsipora2 ай бұрын

    Wonderful interview! I'd be curious what your self care looks like? I know Dan likes meditation!

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    Gratitude, rest when tired, Keto diet, trauma release exercises, feeling into emotions, Wim Hoff breathing, gentle exercise, time in nature, prayer. Those are the ones that come to mind on the top of my head. I am considering starting up a meditation practice again.

  • @healingwithsipora

    @healingwithsipora

    2 ай бұрын

    Thank ya!!!

  • @Gkuljian
    @Gkuljian2 ай бұрын

    Does this work for tremors (likely Parkinson's)? I recovered from 25 years of chronic fatigue only to start shaking.

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    Some tremors are psychogenic. Parkinson's isn't but I hear it is strongly susceptible to the placebo effect. Worth a shot?

  • @PeaceIsYeshua

    @PeaceIsYeshua

    2 ай бұрын

    @Gk…, Please look into high dose thiamine. It is helping many with Parkinson’s! ❤

  • @Gkuljian

    @Gkuljian

    2 ай бұрын

    @@PeaceIsYeshua Thanks. I did try it, and it exploded my tremors. I even spent time with the author of the book. We don't know why it happened.

  • @PeaceIsYeshua

    @PeaceIsYeshua

    2 ай бұрын

    @@Gkuljian Oh my goodness, I’m so sorry to hear this. 😔 I really hope you find something soon that helps. 🙏🏻

  • @Gkuljian

    @Gkuljian

    2 ай бұрын

    @@PeaceIsYeshua Thank you! I will heal. I still need stronger faith, but I'm doing it.

  • @TimMurphy41
    @TimMurphy412 ай бұрын

    This woman is way too smart to be a doctor.

  • @cfsdocbrown

    @cfsdocbrown

    2 ай бұрын

    I've never been so flattered and offended at the same time. 🤣

  • @tomsale5142

    @tomsale5142

    Ай бұрын

    ​@@cfsdocbrownyeah one of my symptoms I was diagnosed asthma when I couldn't take deep breath years ago scary

  • @PeaceIsYeshua
    @PeaceIsYeshua2 ай бұрын

    Raelan, I have the hardest time trying to leave comments encouraging people to check out your channel here on KZread! Almost every single time I comment with your name, even if the comment is really short, it gets automatically deleted! 😩 You are doing such amazing work and such an amazing service, and I come across people who I know would be helped, and it’s so frustrating to not be able to share! I’ve even just said: 🔍 Raelan here on YT Even that gets deleted. I can say your name here but not elsewhere it seems. 🤷🏻‍♀️ 😢 Anyone else having the same issue?

  • @clementdupanier541

    @clementdupanier541

    2 ай бұрын

    You should ask yourself why it gets deleted

  • @PeaceIsYeshua

    @PeaceIsYeshua

    2 ай бұрын

    @@clementdupanier541 Thank you for commenting and wanting to help. I’ve definitely tried to figure it out. I’ve tried to use symbols, different ways of saying it, etc. It’s not just about Raelan though-lots of my comments get deleted, but it’s odd that I can’t even say her name it seems. 🤷🏻‍♀️ All I can say is, Y T isn’t on our side... it’s extremely, um, monitored. :) Please let me know if you have any tips!

  • @cybco
    @cybcoАй бұрын

    it's the biggest head game, no one believes you

  • @AssholeFace
    @AssholeFace2 ай бұрын

    Same 'ole same 'ole. Pace, rest. We've all tried it. At least the treatment wasn't graded exercise.

  • @seffie4363

    @seffie4363

    2 ай бұрын

    i’ve recovered after 4 years-pacing and resting didnt do much for me x i followed the tms approach which isnt explained properly in this video x please watch miguel bautista dan buglio and jim prussack yt channels-these really helped me understand what was going on x have been living mostly normally for a year and now easing back into exercise, sometimes symptoms flare but thats a normal part of recovery, just have to handle it the right way x good luck