I recently discovered singing! I always do it if I drive. Usually on my way to volunteer work and friends and it really gives me a energy boost before and when I drive home it soothes symptoms

@taragunn9400

29 күн бұрын

I’m getting back into it too. So good. Humming is too. Look up melodic mantras as well. Fun making up lil tunes

During my bedbound phase the hardest part was hearing my 6 year old crying to see me while I was too weak to do anything. I spent many days crying because of it. It tore me apart. Slowly as I got better I focused on quality time with her. Even if it was just on the couch, playing a board game or reading together. Just being together was all that mattered. These days I can do so much more and still focus on that quality time together. Being present with her. I don't feel like she misses much from me now, even though I'm not fully recovered yet. I hope to go bike riding with her within the month. To me that would be a miracle.....soon.

I love her energy. She is so right about the television. Every time I started watching television I would become super nauseous and drained. This happened for over a year for me after LC. My theory for this is because whatever program you're watching you're nervous system responds as if you were the one in that situation. It's low key adrenaline dumping. The more action packed or suspenseful or thrilling the program, the more tense you become and the more the nervous system is taxed. Plus all the constant camera angle shifts on top of it. It's insane how much work is involved in just watching television.

@jog5289

Ай бұрын

That's a great theory! Before I got sick, my favourite genre was Drama, but I can't tolerate that at all now. It's way too stressful! All the best. :)

@kylianrang634

Ай бұрын

Only light sitcoms, as Raelan mentioned, big bang theory is also my favorite

@cupidok2768

Ай бұрын

Why didnt she get protection

I had Glandular Fever and then Covid twice within 12 months. I’m also dealing with two autoimmune conditions (Hashimoto’s and Sjogrens) which also developed during this time. Trying to unpick everything has been so difficult as it’s so complex.

@WoofChaqueJour

Ай бұрын

mono, covid and the flu for the first time all in 1 year. Rip my nervous system

@tojaa2575

Ай бұрын

Me too. I‘m also dealing with sjogrens and hashimoto since my covid vaccination and infection 🥲

When I first got Long Covid 2 years ago I had 5 kids, 9 years and under! It was SO challenging to recover, but, I’m 85% there!! Love this channel ❤

@marthabonelli3093

Ай бұрын

Wow.

So very hard when you’re a mum. My 27 year old has never known me as well, but he has grown into a beautiful, empathetic, kind young man who still is lousy at cleaning his room! If I had my time again I would live as much as possible based on the oxygen mask on a plane analogy . You need to have the oxygen first so you can be there to help your family. Be kind and compassionate to yourself and DO DO DO ask for help however big or small that is Really loved the interview, thank you 🥰

@RaelanAgle

Ай бұрын

❤️❤️❤️❤️❤️❤️❤️❤️❤️

Had covid twice, am doing a PhD in Astrophysics. My memory is still not as good as it used to be but I am 80% there. It Took me 3 years to be able to start studying without falling asleep every half an hour. I used to get tired really easily. I am much better but even after 3.5 years now i still have much less energy than I used to. I just powered through, had no time to sit down and think the negative thoughts or ponder about my conditions. I was giving interviews for a PhD position. After that worked out i was doing what i love, surrounded by people I enjoy spending time with. That really helped i think. But now i want to make full recovery because my allergies have gotten much worse since COVID.

Yes! Recovery is possible as a mother. Maybe it takes a little longer, but on the other side it is the biggest motivation to be healthy for your child. I think my child didn't had to miss out on too much. But to put her first I had to put all my other relationships on hold. I lost a lot of friends and haven't seen my family very often. I don't have mum guilt, but aunt guilt and sister guilt daugther guilt and granddaughter guilt. Being a good mother and a good partner was my priority.

Would Jules be able to share her sleep routine? (That's been one of the hardest changes for me to make - prioritizing sleep.)

this is wonderful, thank you jules

Really good convo!❤

Thank you. I loved this story from Jules. I found it very inspiring. I'm a mother of 3 boys also recovering from long Covid. X

I love how open and concrete Jules is with her own recovery tools. Great interview. And…Big Bang Theory for the win! I’ve watched that all the way through as well as Schitt’s Creek (twice) and Friends. Laughter is so good for us 😊

@RaelanAgle

Ай бұрын

❤️ ❤️ ❤️ ❤️ ❤️

@AnrupB

Ай бұрын

I was JUST re-assessing my recovery and realized I need laughter. I watch short interviews on daytime or late night shows on YT. Shorter so easier on limited eyes and sound capacities. And free!!

@francescam.6999

Ай бұрын

Yes, for me it is marvelous mrs maisel and ted lasso. Big Bang Theory was also on my list

@clauthequeen

Ай бұрын

I noticed this as well. Whenever I’m having shortness of breath or feeling faint episodes I just try to remember a funny thing and laugh/chuckle outloud and suddenly I feel a bit better😮

@amysin963

Ай бұрын

@@francescam.6999 I love those also! Watched Ted Lasso twice through too.

Lovely video!! You two are super inspiring. Thank you for sharing that with the world and helping so many people along the way ❤

Thank you, I really loved this interview and it has inspired me to get back to connecting with my nervous system again. I had been working on it and I kind of left it and started focusing on my diet more. I needed this re-framing. Thank you both so much!!!

Raelan- do you have any single moms who have recovered? Thank you so much acknowledging the struggling parent population ❤❤. I know I would feel more hopeful hearing from some single Moms. Thank you for all you do!!!❤

@AnrupB

Ай бұрын

There was am interview recently of someone who is! Short blond hajr...don’t remember her name!

@RaelanAgle

Ай бұрын

Karen Knutson - A Single Mom's Guide to Navigating Long Covid

@melindabrown9718

Ай бұрын

I've recovered from CFS as a Mum with a ASD/ADHD child. Which is extremely challenging. I'm not single, but I have no family support and my partner works 7 days a week. So I had very little support recovering ❤

❤ from one of those kids

@jog5289

Ай бұрын

So cute!

Thank you for this Interview, I enjoyed it very much and was what I needed today - I´ve been in a rather confused and aimless phase recently so this helped. What resonated a lot with me was the point of being kind to yourself and that having a big impact on recovery, it makes a lot of sense to me.

@RaelanAgle

Ай бұрын

Glad it was helpful! 🧡 🧡

Incredibly useful interview. Thank you so much Jules for sharing your recovery journey, I've had a few lightbulbs go off! And Raelan you are incredible, I'm currently halfway through your book and am finding it so relatable and helpful, thankyou for all the amazing work you are doing. Much love to all 🧡

@RaelanAgle

Ай бұрын

Thank you so much Hemma for you support! Much appreciated ❤️

What I really got from this was how needed to change which response to choose for each symptom. I hadn’t really thought of that! Excited to be trying some new techniques ❤

@RaelanAgle

Ай бұрын

You've got this Jackie! ❤️ ❤️ ❤️ ❤️ ❤️ ❤️

@jackiejays2273

Ай бұрын

Thank you! I’m getting there slowly but surely ❤❤

My mantra get up put up show up. Not many doctors are helpful or know how to treat us. Yes back to nature I love sleeping on my porch. I am 6 mths in even lost a tooth due to infection lots of symptoms hanging in there.

❤

Great video! It seems like many many guests are from the UK? Is there something special about people from UK, making it "easier" for thtem to get me/cfs or lc?

@RaelanAgle

Ай бұрын

Good question! I'm not sure, it's just that they reach out more. 😊

@cb77153

Ай бұрын

Living in England, had Covid twice and 2 vaccines. Been living with LC for nearly 2 years. Keep watching these videos hoping something will click. Trying to understand how awareness, acceptance, and brain training can resolve physiological problems and removal of spike protein for those with PME. Will keep trying.

@Boojerella

Ай бұрын

Wonder if it’s the likely prevalence of undetected Mold/fungal issues? With the dampness and old homes, mold in their environment is likely an issue. People may have fungal issues colonized in their sinuses, suppressing their immune systems - and then I’ve read that Covid infections deplete beneficial Bifidobacterium in the gut. (Look up Sabine Hassan, MD content). Tilts the body toward a more fungally dominated gut, and CF / ME can be the end result, as mitochondrial function is impaired with Mold toxicity. Also look up CFS/ME and Cell Danger Response, in any podcast by Dr Neil Nathan.

@beverleylewis469

Ай бұрын

I am from Johannesburg South Africa with ME and our ME group is quite large, I find that people with ME tend to withdraw. Our group can be very quiet, talk about the missing millions. ME is everywhere. Thank you so much for the hope Raelan.

@revelation1215

Ай бұрын

@@cb77153 The symptoms are physiological but are they coming from “damage” or is your nervous system causing them since everything in your body is controlled by the nervous system.

No concrete recovery advice here. Just * i was unwell. And got better. Now im going to listen to me * no offense to the interviewee. But there is not recovery advice here.

@mirandaandrea8215

Ай бұрын

I heard plenty of recovery advice! Learning about the nervous system is key, there are many ways to support regulation! We all have to educated and explore what works for us as ndividuals! Mindset, self compassion, belief in self, Nature, breath work, vagus nerve meditation, gut health etc!

@danijeanes5078

Ай бұрын

@@mirandaandrea8215 I didn't hear any.

@SGRmoss

Ай бұрын

Thank you. Glad I didn't waste 30 minutes

@lelskiiii19

Ай бұрын

Bruhhh it's ain't that deep tho just rest let your body heal don't eat things that makes healing slower instead eat fruits don't overdo things and still it's gonna take hell of time u need patience

@danijeanes5078

Ай бұрын

No no recovery advice at all. ..

Can we please see a video where someone with out privilege recovers? Someone old, alone, living in the ghetto and being evicted from their home because they can’t work? I’m so sick of these videos of people singing to get better while the husband pays the bills. Try being queer and marginalized.

@heatheraustin2095

Ай бұрын

Try not being a victim all the time. You chose the life you lived. Victims don’t recover, victors (victorious ones do). Also, you don’t have to watch a video.

@macijane236

Ай бұрын

All the time? This is my first post you don’t even know me . Maybe have some empathy?

@anniecrowther8423

Ай бұрын

Umm… interesting your preaching to have empathy while YOU just went off as though though any white, married woman has no financial burden. I’ve been sick for years with three children I have responsibility for and while I am married, it has drowned us. Try paying medical bills while they need birthdays, Christmas, their own medical bills, braces, sports costs, clothes, food and on and on… Queer has nothing to do with it. I am so sick of hearing THAT!

@Els-se6ky

Ай бұрын

Why compare 'misery'? Why do you have it tougher than others? If you feel marginalized, take charge poor thing

@macijane236

Ай бұрын

exactly my point