MISSD (The Medication-Induced Suicide Prevention and Education Foundation in Memory of Stewart Dolin) is a unique non-profit organization dedicated to honoring the memory of Stewart and other victims of akathisia by raising awareness and educating the public about the dangers of akathisia. MISSD aims to ensure that people suffering from akathisia's symptoms are accurately diagnosed so that needless deaths are prevented. A website, the creation of educational materials and support of conferences such as Selling Sickness, will help to raise awareness and knowledge of akathisia and medication-induced suicides. Again, we feel it's important to note that we are not anti-drug, and recognize that prescription drugs can be positive and life-saving for many individuals. We are for truth in disclosure, honesty in reporting and legitimate drug trials. missd.co/
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When I went to the emergency room for this, the nurse told me I hope they inject you with every fucking thing they’ve got. She destroyed my life along with the medication and other fucking doctors.
It won't let me 👍 this video. Shocker.
I'm going through this rn. I'm stuck on valium and cymbalta. It's making me very sick but when I try to come off of either of them the akathisia explodes. I'm so very sick and I need help.
Treated with what? There are no treatments. It all makes it worse.
My dad slept well as I paced 21 hours a day. I feel angry. He was a bad man 😊
Its NOT A DISORDER, ITS CALLED WITHDRAWAL!!!
I don’t think that Geraldine did enough to help her husband why did she divorce him when he needed her the most. How could he be more intuitive he was damaged by the drugs . Did she even take the time to find any support groups for the medication he was taking I bet she didn’t. So sad that his family didn’t support him more
I agree.
I’ve had antipsychotic induced Akathisia ever since starting my medication journey about a year ago now. Only last week has my doctor suggested we try Trihexyphenidyl. I have been nonstop walking all day everyday for as long as I can remember, I would give anything to be able to sit still for 5 minutes without fidgeting or rocking back and forth. I never knew how much I took it for granted. I’m really excited about trying Trihexyphenidyl, but I’ve read that it causes hallucinations in high doses and even sometimes at prescribed doses. All in all I would still take hallucinating with the ability to sit still than suffer any longer with Akathisia
Never heard of it But hope youget better
Thank you for creating this video. Keep going. Keep spreading awareness. Make AKATHISIA a word known in every household, because in almost every house/family, at least one person is on a psychotropic medication, or another type of med that can cause this... like Cipro (fluoroquinolones) & nausea drugs (Reglan, Compazine, Phenergan) etc etc .
A tragic yet brilliantly told #TrueStory of the global #VeteranSuicide epidemic. When you add the adverse effects of #Mefloquine (#Lariam) to the mix, the neuropsychiatric impacts create a perfect storm of worsening 'mental health symptoms' and paradoxical effects. 💔#LestWeForget #InThisTogether
You're right about mefloquine. We frequently include malaria prevention drugs in our press releases about akathisia. See yesterday's release here www.einpresswire.com/article/715063406/new-public-health-video-targets-akathisia-induced-suicidality-among-veterans
WHY DO THEY NOT WARN PEOPLE ABOUT THIS!
Does PROPRANOLOL help?
Ty ❤
What is the emergency room going to do for you?
Are ya kidding? Lol 😂 Half of the doctors refuse to acknowledge this condition EVEN EXISTS! IF you try to convince a doc you have this, then they diagnose you with something else. And, if you lose it, you get force fed meds which is going to destroy you worse. Nope. Coping myself.
It’s so bad I hate to even think about it!!!
Go to the emergency room?? They do NOTHING I have a friend going through this right now and has been to the ER several times. They do nothing. There’s no help out there for this. If there is please let me know so I can help her she’s suffering so badly.
Thank you Chris
I have lived with severe akathisia for 5 years. This video does a HORRIBLE job conveying what this is like, and what families should do. Some people, myself included, are literally maimed by these meds. My body has been destroyed, and I know my akathisia is permanent. No amount of hope or “believing things can get better” are going to save me. Advising people to go to the ER is so stupid and reckless. It makes my blood boil when MISSD suggests this. Every single time we’ve gone to the ER, we’ve been met with dangerous advice, gaslighting, misunderstanding, or a combination of all of these things. The only way to prevent people from getting akathisia is to AVOID the drugs that cause it altogether. We need to be teaching people that there are viable alternatives to the meds that cause this permanent hell. Do better, MISSD.
Hello brother. Please fight for your life. I had enough after 3 years of pure torture and instated on a small dosage of lexapro which resolved 60% of the severity. Hope youre still holding on.
I love tough Jewish Broads from Chicago. Life goes on. L’Chaim!
I grabbed a crucifix off the wall and held it aloft as my body erupted. The room was rocking with the laughter of demons. I resembled David Byrne in “Stop Making Sense.” Except it went on all night. Cymbalta was burning down my headspace as it retreated in defeat. Cymbalta is a mercenary bitch. Where have all the flowers gone? Eli Lily is filling up the graveyards.
When I told my dr what I was experiencing and asked about aka she said "akathisia is the jerking movements Crack heads make". I healed from aka but the brain injury I got from these poisonsis for life
My akathisia has become mild after 9 months off causative meds, yet it’s still maddening and relentless. One day at the time towards healing.
I have chronic akathisia, I won the lottery. I've had it for 20 years after taking geodon that was prescribed to me off label. I took it for less than 7 days and within a week of that, I had lost my job in sales. I started with drumming on the tables or desks with my hands while my legs would bounce and then the stuttering came. Along with stuttering over the years, I also developed the wonderful ability to make strange noises for no reason. I tend to T-Rex my arms or hug myself while marching in place or pacing. For 19 years, doctors disregarded everything and blamed it on anxiety. I went to a neuropath she didn't even talk to me for more than a couple of minutes before she told me to talk to a therapist. This is hell, and it's getting harder and harder to continue. Everything I've read says there's no cure there's a 30% chance there might be some relief but like I said, I won the lottery and I'm going to have this for the rest of my life
20 years ive suffered. Doctors dont get it.
I'm kinda having a panic attack, I'm just finding out I had akathisia about 6 months ago because I started abusing xanax and tramadol. The hospital or the GP didn't know what was going on, blood poisoning was mentioned up but the next day my bloods where fine. It lasted just under 2 weeks and was the worse I've ever felt in my life, never slept never had any food or drink, I thought suicide was the only way out, although I often thought that, I didn't think it's time for me to get out! Having a loved one around made it a little bit easier
is this shit permanent
I had it the whole last year.
It’s definitely not from the lack of medicating people. That much I’ve learned since I got chronic akathisia and other tardive neurological madness stopping medications. I didn’t even know it was akathisia until I was quaking inside even though I’d gone through it starting and stopping pain medications. I never should of brought on a benzodiazepine. That much I know.
You're right. Unfortunately, many healthcare professionals and consumers are unaware that Akathisia can be precipitated by withdrawing medications. Akathisia awareness can reduce avoidable suffering and save lives.
MEDICAL MARIJUANA IS KEY TO STOP AKATHISIA!!! AND LITTLE BY LITTLE STOP TAKING THE PILLS THAT CAUSED THIS! THERE'S ALWAYS HOPE. I HAVE HAD AKATHISIA AND YES THERE'S HOPE, YOU'LL BE STRONG LIKE NEVER BEFORE AND ACCOMPLISHED WHAT NEVER BEFORE!
I live in Sweden where healthcare is free, but since i have had addictions or rather "self medicating" for my problems when the healthcare suddenly just kicks one out of the system and put you on HOLD until you get into the "Addict department", where they refuse to give you stronger medicines because of "RISK" of abuse. So i have tried for like 6 years to get the right help but for that you have to be Clean for a whole year and that is just NOT manageable when one has serious anxiety that ruins every second all year every year, right?. I have GAD,ADHD,OCD,Seasonal affective disorder, Dysthymia and social anxiety. So i really NEED strong medications so that i can be receptive to therapy, because the way i Always feel are quite enough to make trips to and From therapy impossible as i simply have to high anxiety to force myself even, and then you need stronger medicines and competent doctors. I may have a bit of "Akathisia" also, as i can relate to this "Walking around",DANCING, "Pacing", "Rocking" "Tapping" "Scratching" and U name it, but it's NOT as brutal as these examples here, not even close. I have Ritalin, Propiomazine(Propavan),Quetiapine, Mirtazapine, Gabapentin and Sertraline so i don't know what's what really. For 3 days now i have paced around, rocking, tapping like crazy but today i have Not as it went away as i got used to medicines i guess. But i can still feel this discomfort both mentally and physically but that is because of Dysthymia i guess (Anhedonia can be quite stressful also as you can't feel pleasure from anything really, just a TINY tiny amount of what one remembers from before as normal). I wish you ALL the best ALWAYS and forever, everyday all the time. 🙂😗🤫
Dear God, Please cure my akathisia, i don't want my parents to be sad. Thank you God. Amen.
@Lute25 are you still with us friend ? Please let me know how you are if you can. I've stopped diazepam cold turkey a while back after 17 years and side effects are ramping up but they are causing extreme physical pain and issues in my lower abdomen. Sending you the warmth of Sunday afternoon 🙏
@@StephSancia I think olanzapine is the cause of it, but doctor won't let me stop taking it, instead they give me clonazepam to make me feel better.
In Jesus name.
What do you have against akathesia ? Like , me I take a very cold shower , it helps a little bit , I take vitamin B6 and magnesium . sea salt + water glass to drink ... I try anything possible even rife sound frequency
12 years undiagnosed they hid it so deep I tried to kill my self no joke 40 times
During the pandemic in 2021 my PC doc prescribed celexsa for insomnia, depression, and anxiety I had a manic akathisia reaction which lasted 12 hours It was horrifying I was then referred to a psychiatrist who gave me a new diagnosis of bipolar at 62 years old and prescribed seroquel and effexor There is no scientific evidence used to prescribe meds
I had ths with a medicine, but doctor was so idiot tha he told me I had anxiety.
I had Akathisia and spent $1000 dollars on cannabis trying to calm myself. I was on abilify and lurasidone which caused Akathisia. It was a nightmare I wanted to die and couldn't sit still its like tweaking on meth all day and night without reprieve.
Why does the suicide drug prescribe to the public and approved by FDA. The suicide side effect is very common and disabling even after the side effect is gone. It was never a solution in the first place and the people who approve it should take it themselves to experience the side effects.
What type of meds??
It's one thing to hire a physician as an assistant in achieving one's health objectives, quite another to fine oneself being driven into disability by way of a physician who in turn acts as an authority figure presiding in the manner of an Orwellian "Big Brother" who acts as a torturer while engaging in prevarication and gaslighting. And yet all of this is by design. A population that submits to such an arrangement can not be expected to survive in a state of freedom. The Medical-juridical complex having assumed the posture of a civic predator can not be opposed as any who would attempt to do so stands to be destroyed by this organization. We refer to those who seek to articulate a position on behalf of the civic interest as a "conspiracy theorist" hence as a kind of heretic, who is at the same time apt to confront the pejorative accusation that is ever more ironic given the circumstances, of being "off (his or her) meds." So there is no escape from the Holy Roman Inquisition 2.0. It's a done deal. My own life having been destroyed by psych meds has led me to a point where my best efforts at remediating symptoms by way of smoking tobacco has yet again caused me to incur yet more wrath, this time by way of "The Lord" per a system of judgement said to take place in the heavens as understood in the context of a thing that in a previous time of my life I'd have dismissed as inconsequential if not non-existant. But now I'm of the mind that such domains of warfare do exist, and that all of us struck down by psych-meds and hooked on tobacco as a last ditch effort to stave off the chronic distress of akathesia like symptoms must confront the terrible fact as reflected in the negative ramifications associated with the habit "in the spirit." I myself hope to escape the double-bind of this tragic circumstance by way of staging a return to high temperature hot-tub therapy. Others due to ignorance or isolation and lack of resources do not have recourse to such an option. And so by comparison I have to regard myself as fortunate by comparison. Psychiatry itself having emerged as an offshoot of oligarchical satanism, the deeper facts as pertains to this thesis are ignored. And we the sheople therefore live in a state of peril, our ignorance in this instance being far from bliss.
Rip stephen
How long have you been doing this and still no help? Perhaps u need to change how you do things. You don’t even keep your Instagram page up. And recommending things like special drs to people who can’t even travel or have lost all their money doesn’t help.
MISSD doesn't recommended any "special doctors" in this podcast or any of our other podcasts. Please check out the various educational resources on our website---and consider taking the 1 hour accredited akathisia course. All resources are available to the public free of charge. (We've found Instagram wasn't the best tool to share these resources, but all are at MISSD.co.)
None of these stories offer help to those of us with no money or on our own. There’s no functional med dr that takes Medicare. I did find 1 dr. She called my symptoms “crazy” menopause and told me to not eat gluten. I’m f**ked.
Akathisia is a version of hell on Earth.
Are you suffering
I find it funny on your website u say to alert the drs to what’s going on if u have this. I have yet to find in 2 years one dr who cares. And what do they do? Offer me antipsychotics. I had to diagnose myself. I guess I can take heart in the fact my dr said he sure did hope I don’t kill myself. Thanks doc. I see u don’t even keep your KZread channel up to date anymore. Did you realize what a fruitless effort it is?
There’s demons in prescription drugs too
@Mefimma24 there's demons in SOME people who issues these awful meds too
My family is toxic and I have no support. 😞
My family wants to kill me too.
The main problem with psychiatry is it seems to still be at the stage of leeches and bloodletting. They typically have no way of even knowing what is going on physically beyond the brain barrier. The only way they have any idea is by highly subjective and grossly inadequately generic questionnaires and observation of behavior. Nobody even knows exactly why the drugs work, when they do work, or why they work for one person and not work (or worse cause neurological damage) for others. Its all such a crap shoot, and when you’re depressed as is, its very hard to feel encouraged.
Very well said.