I have akathesia from a forced cold turkey benzodiazepine withdrawal. Words can not describe it.

@kronkk4142

3 жыл бұрын

Do you have advice and what to do to help it?

@zaqwertyfish

3 жыл бұрын

Same thing happened to me. 16 years on klonopin as prescribed. End of 2019 I went to an alcohol detox. They convinced me that I could be detoxed from the benzo as well. Four days after leaving the detox the withdrawal and subsequent akathisia began. I spent 3 months in and out of treatment centers, and bounced back and forth with drinking and being given benzos by the treatment places. Exactly 1 year ago I left my last hospitalization. The few months after were a constant terror. I almost lost any vestige of myself. The world was a Stephen King like story that I couldn't get out of. I'm definitely better now, but not enough to return to work. I'm chronically fatigued as well from the constant hypersensitivity. I only heard about this today... When I read the symptoms and experiences of others, I saw the same things I've said to friends and family to try to explain how I feel. My usual one is to tell them that the feeling they get when they almost tip a chair to far. That feeling is how I feel constantly. Hope you're doing ok. Stay strong

@MICKEYISLOWD

Жыл бұрын

I am suffering this from Gabapentin withdrawals. gabapentin has all the same symptoms as Benzo withdrawals.

@Lisa-xf5uf

Жыл бұрын

Yep, talk to your Dr about aka and they will quit writing it- akastisia

@Bababui69

7 ай бұрын

​@@MICKEYISLOWDI detoxed cold turkey from gabapentin. The sweating and restlessness was insane. I was vomiting non stop. I hope you feel better now.

I would like to thank you personally for starting this organization. I have had a ring side seat to the destruction these medications are causing for a loved one. Once a family member reaches the age of 18, parents have no legal right to health care being provided. I have tried to convince my loved one that the main problem at this point is actually the medication her psychiatrist has her taking, and that after seven years she should be feeling better, not worse. Any guidance in addressing this situation would be GREATLY appreciated!🙏 it is heart wrenching to watch a once vibrant young lady unable to live the life she is meant to.

The stupidest thing is that psychiatrists are supposed to help people. I don’t call myself a patient. Instead a victim. I took lots of pills after suffering from akesthesia. I felt like hitting someone once. My sister told me that I should be in jail. I lost lots of sleep. When I was twenty, I overdosed. My family is mean to me because of the side effect that I got. My siblings refuse to listen to me about how medicine controls people. Now, I know why. I feel neglected. I am angry. This should have never happened.

@laurieberry4814

3 жыл бұрын

I think my family is enjoying myself suffering and hating my life. It is called dysfunctional or toxic. I might give my life insurance to a friend instead of family members.

@laurieberry4814

3 жыл бұрын

I am against people getting rewarded for having to do something with akesthesia. It is absolutely silly.

I have been dealing with this for 2 years 8 months, and its maddening …..drs just tell you its anxiety ...its not anxiety....I am vibrating inside......horrific

@LostBoy1026

5 жыл бұрын

I agree I've been dealing with it for 5 or so years. I have no idea how I've made it this long feeling this way, it's like a nightmare you can't wakeup from!!

@lam7402

5 жыл бұрын

@@LostBoy1026I keep hoping and praying ….im worn out

@langlang9326

4 жыл бұрын

My question is what are we supposed to do ... how do we protect our self when doctors are not listening?

@snafu22

4 жыл бұрын

LAM how are going? I've been dealing with it now for 29 mths. The vibrating inside, anxiety and fear is just torture. I've been told by many that this goes away as the CNS starts to calm down. I just pray it's soon. Because I too am worn the f**k out.

@SuperJacare1

4 жыл бұрын

I had Akathesia for over a year from June 2018 to Oct 2019 I can sleep again and playing sports. I am wondering how i can help you. I couldn't sit still and was pacing around or going for walks coming home and then having to go out again for a walk. I could not rest at all and had to quit my job that was easy and good salary. unbelievable. Now, i'm working again and feel relaxed. If you want to know what i did, please message me. I know what your going through and would love to help any way i can.

Akathisia is a version of hell on Earth.

@Slidehhy

8 ай бұрын

Are you suffering

I am glad that there’s so much on line. I first got it in the early 90’s when I was in the hospital being treated for Migraines. The Phenergan and Tigan. I had the worst scared feelings, ever. It was terror, my heart raced and I couldn’t stay still in the wheelchair. Then, Respirdol caused the worst feelings of terrifying anxiety. I was lucky to have a job that I could do my work earlier in the day and then do nothing when I was feeling scared again. After getting off of the medication I started feeling better. Then, I was put on Abilify and got the worst case of Akathesia. I was constantly getting severe terror attack, especially in the afternoons. For 5 years it got worse and worse and even benzodiazepines didn’t help. Finally it was lasting a whole day and I was going to kill myself to get rid of this horrible feeling. I ended up in the hospital in 2006. Now, any time I get anxiety, it’s a bad terror type feeling. Most of the time it happens in the afternoon. If I am stressed, it can be the whole day. It was worse when I went into rehab for an ankle fracture. The nurse didn’t have my seroquel and tegretol and had 9 hours to get it. She was flippant about it, when I said that I would be up the whole night and because of my schizoaffective disorder the hallucinations would get a lot worse. Instead, I had the worst case of terror anxiety panic feelings and was rocking back and forth, which I do when I get these feelings. I couldn’t pace back and forth with a broken ankle. The nurse couldn’t believe how bad my mental health deteriorated. She wasn’t so flippant, anymore and felt bad for me. Because, I was so uncomfortable. Needless to say, I couldn’t sit still for occupational and physical therapy and it took a long time for the awful terror feeling to go away. Now, I am so delicate, that if I get stressed out, the horrible scar feelings come back. Even the best of psychiatrists can miss this. Before, I started getting Akathesia, I had bad anxiety. But, not such scary feelings. It has taken a lot away from me. I can’t be in crowds or do some things by myself. Also, I used to be able to drive almost anywhere. But, when I had the Akathesia really bad, I almost crashed the car many times. So, I don’t like the drive, anymore. My schizoaffective disorder is worse, too. Without my medications, I get much worse. I think people with mental illnesses are treated poorly. That’s why there’s so many side effect effects. I also am on medications to stop me from passing out due to my medications lowering my blood pressure. I am going to ask my psychiatrist about chronic Akathesia. Because, sometimes I am really uncomfortable. I am so sorry about people taking their lives because of Akathesia. However, I can understand this.

I love tough Jewish Broads from Chicago. Life goes on. L’Chaim!

Over medication of the military and veterans is a huge problem and i believe the reason for the high suicide rate. When i went to the VA, in less than a year they diagnosed me bipolar (i'm in my 50's) after they did a forced cold turkey from xanax; than they polydrugged me. I was on multiple high doses of antidepressants, antipsychotics, mood stabilizers, antiseizure meds and more; all at the same time. It almost killed me and when you tell them you do not feel well they just give you more and up the doses. The vet than suicides and they say the vet was mentally ill just look at the records. I am on one medication now for akathesia and hope to be off of it some day.

@andrewmann4067

3 жыл бұрын

It's so sad that ppl don't see what's happening to veterans every day! When will we realize that the US military doesn't care about their own? In fact they abuse them to profit off them even after they use them to invade and take oil ECT.

@Lisa-xf5uf

Жыл бұрын

This is 100% involved in veterans suicide rate. They are all on these DRUGS

@Bababui69

7 ай бұрын

I am a veteran and this is 100 percent the truth. The meds they gave me made me drink even more and smoke weed more. I was spending 1000 dollars a month on cannabis which was more than rent money. I was also self harming to stabilize myself.

@agoogleuser3918

2 ай бұрын

I just called the Brain Injury Association Of America today, explained my Chemical Traumatic Brain Injury ( CTBI) extensively, Serotonin Toxicity, paxil was one, I had a total misdiagnosis, pcos, catamenial epilepsy, Steven's Johnsons syndrome, weaned off Tegretol, enter Luvox, reaction, mental dx, then years of polydrugging, it's a medical mess, then he said, " There is no diagnosis for my injury because it is not in their literature, and hung up on me mid- sentence. 5-20-24.

Drs need to know that prescribing quinolines ( antibiotics) with benzos it can throw someone into akastasia

I have had akathisia 4 times now, the last one March 2017 lasted 8 months, I cannot go through his again I didn't think I was going to make it last time, my question is when you make it through what is next, Doctors will not help.

@lam7402

4 жыл бұрын

What was yours from now and previously ?

@langlang9326

4 жыл бұрын

@@lam7402 1. Compazine ER for Food poisoning , 2. Surgery drugs 3. Benzo 4. channel calcium blocker.

@ThatFuckinGame

4 жыл бұрын

@@langlang9326 Akathisia tends to happen to people that are having severe nervous breakdown before the use of drugs. Do you suffer from too much stress and anxiety?, do you find it hard to relax?, Akathisia tends to worsen the Nervous system, but it isn't enough to cause symptoms. in other words, akathisia worsens an already Sensitized and volatile nervous system. Take care of your mental health and stress, take therapy, meditate and take the right vitamins and minerals to avoid nervous breakdown.

@langlang9326

4 жыл бұрын

@@ThatFuckinGame akathisia is 100 percent drug induced, if the person has diminished pathways in the liver to metabolize the drug, then it has a toxic effect on the nervous system. People have genetic mutated pathways and others have diminished pathways from taking medication over time. Everyone should have tests to see how one's liver can handle what kinds of medications and because over time other's diminish, the tests be kept up with. There are papers and tests which are coming up with these ideas and suggestions. We have to wait till the doctors can or will catch up and not just believe the word of drug companies as gospel. The only time I had a problem was when I had this reaction to a medication. Makes sense that the elderly have these problems because of all the medications over long period of time. This doe snot happen to everyone but for the people it does they do not need to be blamed or not believed. I have talked to people who got it from Chemo therapies, hormone therapies, pain medication, Antidepressants, Sleeping pills, Anti-nausea medications and the list goes on.

@andrewmann4067

3 жыл бұрын

@@langlang9326 great information thanks

A shame that resources were spent on this video. It contributes nothing toward addressing the obvious urgent needs surrounding akathisia. Specifically: The video does not address the priority audience. AKATHISIA has a GRUESOMELY HIGH MORTALITY RATE, and a DEATHLY LOW LEVEL OF AWARENESS EVEN AMONG HEALTHCARE PROFESSIONALS. Our priority audience is thus, obviously, people who can save the life of someone with akathisia, or prevent yet another person from developing it. That is, our priority audience is first responders, physicians and medical personnel, pharmacysts, friends, family. Even if a member of our priority audience did invest 45 minutes in viewing this, this video will have provided NO KNOWLEDGE HELPFUL IN PREVENTING YET ANOTHER CASE OF AKATHISIA. It will also have provided NO KNOWLEDGE HELPFUL IN RESPONDING TO AKATHISIA WITH GOOD EFFECT WHEN IT PRESENTS. Family, friends and caretakers of people with akathisia, at risk of developing it, or who have died because of it deserve empathy, and respect. But sadly, long videos about their own genuinely excruciating struggles do no one any good. A minute taken away from raising awareness, or finding effective preventions and treatments for this condition is a minute lost by everyone struggling with akathisia. I don't have a minute to spare. None of my beloved comrades has a minute to spare. #takethisdown

@MISSDFoundation

4 жыл бұрын

MISSD believes actionable feedback can be valuable. We also agree with the Institute for Safe Medication Practices which states its "fundamental strategy to create change is a simple one--to create compelling stories about medication errors and effective change strategies to draw attention to problems and encourage people to act." This podcast series is appropriately entitled "Akathisia Stories" given that it highlights factual stories which can inspire cultural change and prompt individual listeners to take actions. Towards this goal, we invite you to take action and call your attention to the accredited online MISSD Akathisia 101 course. It is available free of charge at MISSD.LearnUpon.com.

@langlang9326

4 жыл бұрын

Mwright Cable, I agree with you. No one including doctors wants to actually help a person currently suffering. There is not one place, not one phone number for people currently suffering. There should be Akathisia trained therapists and also Doctors to be trained to help and not further injure people suffering.