What a strong woman. What a dedicated husband, he really did fulfill his vows.

@theanimeisthedrug2472

6 жыл бұрын

jeff jones sorry but what

@Bloodfang152

3 жыл бұрын

@@theanimeisthedrug2472 in sickness & in health...

so glad she has someone strong to lean on.

now these are relationship goals

@tox0tes

8 жыл бұрын

+Claire Jordin K your goal is to spend the rest of your life taking care of a disabled person? talk about under achievement.

@clare_jordin

8 жыл бұрын

tox0tes I'm talking about how genuine their love is, and even if I was in that situation, that's much better than being a selfish prick :)

@dollysclub

8 жыл бұрын

+tox0tes Its called love

"everyday i wake up is a gift"

Her Husband is such a nice guy god bless ♥

he so sweet,what an amazing man,beautiful couple!

@senketsuthekiller1859

7 жыл бұрын

Mysterious woman bless that man 🙏🏻

You can literally see the love for each other in their eyes. They love each other more than anything and it's so beautiful and sadly something that's dying in this world......;;

@PotatoCheeks

6 жыл бұрын

jeff jones well that's who she loves.

@2manybooks2littletime25

5 жыл бұрын

@jeff jones Who cares about looks?! Her hubby is a loving, giving and selfless MAN - he's not the usual selfish boy-man who for some twisted reason attract girl-women by the thousands. Can't you see how beautiful he is??? Can't you see the unabashed true love between the two of them?! Have you no compassion for their situation? He's gorgeous outside and inside!

I love how she making her experience positive!

wow, her husband as a caregiver and one that is truly amazing, he is a very strong person. and Its so wonderful to see such positive attitudes. I hope he has sufficient help.

Thats so kind and sweet of him. i cried.

A beautiful soul and person. So sad but uplifting story of courage.

She is such a strong woman! This is how love can truly transform a life.

What an inspiration of the love between these two people! :D

I love her style to pieces 😍 she is so beautiful, I hope she lives as long as she can. ❤

Wow she's so freaking beautiful! Minus the muscular dystrophy I would love to look like her!

i dont think all people who have this illness look like a doll like her...she's simply special

Tragic condition; impressive how she deals with it. It's great that she has such a functional and supportive husband.

I love her so much though I'm with a different chronic illness since 26. We share many common interests and yes, her husband is awesome

Those two are so cute together

awwwww! I love her attitude in making the most of her life and staying happy. She does the doll look very well. :)

I’m so happy her boyfriend/husband is so good to her and helps her. That’s amazing.

Her story really touches me. And I’m really inspired by it I hope she has fun at those conventions tho💜💜💜

Aweeee! Tears are flowing! She's so optimistic and grateful in the face of adversity. What a beautiful couple inside and out.

@mexic8l

5 жыл бұрын

Adderal Hobgoblin do u know if she's either "Amber Guzman" or "Amber Kohaku Chan"?

Lolita style is soooo cuuuuuute and she likes Love Live aaaahh

@JackieFuckingChan

7 жыл бұрын

you a girl?

@Sailormoonwoot

7 жыл бұрын

yes

@JackieFuckingChan

7 жыл бұрын

TokiDokiHina do you have a skype account or snapchat? i think it would be cool to talk and text each other.

@Sailormoonwoot

7 жыл бұрын

do i know u?? lol besides i dont have either haha

@JackieFuckingChan

7 жыл бұрын

TokiDokiHina is there something we could talk on?

UGH. THIS IS SO SAD. HOW THE HELL ARE WE ABLE TO CLONE SHIT BUT CAN'T FIND A CURE FOR THIS?

U are truly truly truly an inspiration to me i was diagnosed with leukemia cll 4 months ago and it turned my life upside down. I take every thing u said in this video to heart especially when u said u not afraid of dying, i want to feel like that myself so thank you!!

@mexic8l

5 жыл бұрын

lucy lu do u know if she's either "Amber Guzman"? Or "Amber Kohaku Chan"?

Omg she is so adorable

His support is so beautiful

I love how she's nurtured a positive identity to cope with her illness; I hope she continues to be an inspiration to many others with muscular dystrophy and I wish her & her husband all the best. Her husband is also a saint being there to support her through it all.

@mexic8l

5 жыл бұрын

CodexArgenteus do u know if she's either "Amber Guzman"? Or "Amber Kohaku Chan"?

i feel sorry for you sis i love you and so glad to know that i try your best to fight this illness 😘

She is the most beautiful doll and he is truly a superhero!

she's so beautiful and god..her husband is literally so sweet :')♡

I think u r a great soul , that's why u r gifted with an angel to take care of u.not many of us are so blessed.

@mexic8l

5 жыл бұрын

syed king do u know if she's either "Amber Guzman"? Or "Amber Kohaku Chan"?

*Now, this is making the best of a medical tragedy.* "If you've got to go, go with a smile" may sound like a Bob Kane villain, but this lady with time against her looks every bit prepared to go out in style. :-)

This is so moving

This is so sweet and inspiring. As a very creepy cute, almost dolly girl with cerebral palsy and scoliosis, I can relate to her greatly. Maybe I can be someone's doll one day

Aww she's a Kotori Minami fan~

She's a walking piece of art. Living art that is her own creation. Lovely.

@mexic8l

5 жыл бұрын

geligniteandlilies do u know if she's either "Amber Guzman"? Or "Amber Kohaku Chan"?

wow . Beautiful souls.

They are such a beautiful couple!

they are so sweet together

i want to give her a hug!

Bless her

dolls scared the shit outta me as a kid i used to have dinosaurs, i wish i grew up to become a dinosaur

she's " Amber Kohaku Chan " on youtube :D

@CutieRingoJoy

6 жыл бұрын

Space Bunny hello another Lolita fan, I love Lolita

@annablue8429

6 жыл бұрын

"Amber living with dystrophy" as of now

Me watching this: Not going to cry, be strong so you can help people in the future, not going to cry not going to cry ....... Amber: I'm not afraid to die .... *bawls* Bless her and her husband

Amazing woman!

So sad god bless her she is so beautiful

You go girl!!!

made me cry

God bless this sweet beautiful doll. xoxo❤

I think Venus has competition o.o she's known as a living doll too

There's actually a Japanese drama on this based on a true story called "one liter of tears" a must see!

@ 0:47 that's real life merida right there. no cosplay needed.

Wow the husband seems cooperative/understanding.😊

@mexic8l

5 жыл бұрын

Alacrana Amorosa do u know if she's either "Amber Guzman"? Or "Amber Kohaku Chan"?

I am proud and I look up to her

Great way of safely coping

@mexic8l

5 жыл бұрын

Gloria Newton do u know if she's either "Amber Guzman"? Or "Amber Kohaku Chan"?

She's very cute and seems like such a sweetie. I love the part about how waking up every day is a gift, it is! But most people take this for granted; I know I used to before I became sick and turned to pudding. I am just not sure how I feel about this living doll trend. I'm all for the classic lolita, mori, 90's, pastel, otomo styles which may seem strange to other people, but I get the feeling that these girls who try to be "living dolls" are going for an unrealistic beauty. The huge photoshopped eyes and overall overphotoshopped look. I'm all for Photoshop for funny/artistic purposes and taking care of blemishes/lighting but girls see other girls looking so beautifully alien and unrealistic, then photoshop themselves more ideally then feel bad for not being that way for real. What's the ideal doll anyway? For me, dolls come in all shapes, sizes, and colours! I would call my friends dolls because I found it to be a cute word and it was a way I showed affection. Now, I can't help but feel a little uneasy when it's overdone, not that it always is but there are some of these internet famous "living dolls" that do. I cannot judge for what they do though, they just want to be loved I'm sure but it makes my heart sink when I see a girl leave a comment like, "I wish I could be a beautiful doll like you, I'm so ugly." I do not blame them either but I want them to know that we all have our flaws that photos can hide but we also all have something beautiful about us. Even with the most beautiful girls, they feel it is not enough but they are enough and you are enough! Beauty trends will come and go you know. I used to be made fun of for my pale skin as I was the minority there. I felt the need to tan or use instant tanner but now that I've grown, I've come to love and appreciate the skin I'm in. I now look a little differently at people, it's nice to see all the different beauties; it'd be boring if we just looked all the same. If you want to dress up in frilly dresses and imitate the look of japanese dolls, go for it! But you can do it in your own way, you don't have to have a certain nose, certain eyes, certain jawline, certain weight, or a certain skin colour. Yet, if you want to be a little more pale or a little more tan, that's fine too as long as you stay safe and do it for you, yourself, not for other people. Still, I can see the appeal of wanting to look a particular way for others. We're just so human, what can we do? :P

He is a true gentleman 😍😍😍

Beautiful woman and personality.

@mexic8l

5 жыл бұрын

ann hoang do u know if she's either "Amber Guzman"? Or "Amber Kohaku Chan"?

I love her personality she's strong woman god bless her

@mexic8l

5 жыл бұрын

xUmbrellaCo do u know if she's either "Amber Guzman"? Or "Amber Kohaku Chan"?

she is inspiring

her husband is a real man

Why were they playing Daisy Bell? When I think Daisy Bell + Anime/Manga, I think Dengeki Daisy lmaoo

Like, even though your muscles are hosed, you're absolutely gorgeous. You go, girl!

Poor young lady, thanks God she have a great husband on her side. 💕

That man is a keeper

Is there not any treatment either? My aunt has MS which is a bit similar and my grandmother had it, so I'm afraid I'll get it too.

What a fantastic husband.

cant believe how beautiful she is

I'm afraid he's going to get tired of her one day and leave. I hope he doesn't because she seems like a darling despite her disability.

How do they earn money to live if hubby must care for her 24 hours a day? Does she have a paid caregiver during the hours he works? God bless him for keeping his marriage vows! A lot of spouses would leave (women as well as men). As someone who takes care of an elderly relative 24/7/365, I sometimes become so stressed that I feel my brain is going to explode. I had to quit my job and put my whole life on hold for years. I love my only remaining parent, but the situation is beyond difficult. She/he will not allow a respite care person to give me even a 4 to 8 hour break. She/he won't consider in home or senior facility respite care for any amount of time. Our county aging services case manager told my parent all of the options available so that I can get a break to see doctor or dentist for basic health care. If I must leave to grocery shop, my phone rings every 15 to 30 minutes. It's my parent wanting to know why it's taking so long to shop. I'm rarely away for more than 1.5 hours. Usually, it's an hour. I'm in prison here, no friends, no family. Being a caregiver to a beloved family member is the most difficult job in the world.

i am just wondering what happened. at 2:17 it says she had over 11,000 subscribers before this was even put out which im sure got more people to check her channel out. But her channel only has 5k subscribers now....

@user-gs3gk4vi3e

7 жыл бұрын

Something might have happened to her channel and she had to create a new one.

@AmberlivingwithDystrophy

7 жыл бұрын

Leah kirby nothing happened to my channel . ^_^ they where mentioning my amount of followers on Instagram but they said KZread instead of Instagram, so it confused a lot of people but I have a bigger following on my Instagram than I do on KZread . I have about 6k on KZread and almost 32k on Instagram now

@bioinformatics73

7 жыл бұрын

Amber living with Dystrophy - Hi Amber, I too am a woman living with Muscular Dystrophy. Diagnosed at age 5 and I am now 43. I have a wonderful husband like yours. Peace to you and your family. -Carla

I also have muscular dystrophy

@jeonghangmyself9619

7 жыл бұрын

My sister is anorectic

she's really pretty

@wendylynch1443

4 жыл бұрын

lelouchzero7 yeah with make up on

I just got an extreme tornado warning and my first worry was about the lady in the video. Live your life be happy.

God blessed, sending my hugs & kisses. I'm glad you found ways to spare your time in Amazing beauty art anime. I wish someday, there's a child will be born and be able to cure this deceased.

what is her channel

I only "2 Human Barbie dolls" with the 1st name of "Amber"... "Amber Guzman" nd "Amber Kohaku Chan"... so which of them is this 1?

I want her Korilakuma and Alpacasso (I have a feeling I'm spelling the first ones name wrong XD)

she is so cute without the doll like

Anybody know her channel?

SO SAD THO

She has an amazing husband

My grandpa had this disorder :(

@mexic8l

5 жыл бұрын

Tee Amber do u know if she's either "Amber Guzman"? Or "Amber Kohaku Chan"?

what's her name

what's here channel?

I feel u boo. I cosplay alot . especially with my ehlersdanlos.it helps to be someone else when your body is slowly dying.i kniw how that is .and hearing there is no cure. It is an escapr to cosplaydo u boo

@mexic8l

5 жыл бұрын

bustajointnflex p do u know if she's either "Amber Guzman"? Or "Amber Kohaku Chan"?

0:49 she looks like one of the girls at my school and why would she ever straighten that beautiful curly hair 😭

@JackieFuckingChan

7 жыл бұрын

she wears wigs most of the time.

What about her smooth and cardiac muscles?

@R.F.9847

6 жыл бұрын

Eventually they will weaken, too. I've lost two friends to different types of muscular dystrophy. In the end, the heart is too weak to continue.

Why do people keep saying living doll? Just say Lolita. That Barbie look alike woman is called a living doll. What she looks like and how lolita looks like is VERY different

I'm curious about the use of steroids to combat MS. Their are various steroids that could help that are used by athletes.

@Tat2Dragons

7 жыл бұрын

Damnationization She doesn't have MS, she has one of the many types of MD/muscular dystrophy. Also, steroids don't really do much of anything for those who have MD.

Amber, you are just so beautiful! I could look at you all day and not get tired of it. I know it sounds creepy, but I don't mean it that way.

God help her ..

Cool story, but where the fuck is the link to her channel?

What's her KZread channel username?

@HansBjorgman

7 жыл бұрын

*Amber Living with Dystrophy*

one word: Japan

How come her eyes are bigger than before

@malainacarver3267

7 жыл бұрын

Adan Anukheys circle lenses! :) the diameter of the lens is larger than her iris so it give the illusion of bigger doll like eyes, super popular in Japan and even the u.s now :)

@adananukheys7435

7 жыл бұрын

Malaina Carver thanks tho, it looks great on her

amber you are a wonderful human being from god himself the world loves you and your family always believe in yourself and with the help with your friends and jesus out lord you will be alright and at the end you are the winner

Is there any way intermittent fasting and high frequency (daily) fully body strength training can prevent muscle loss from her form of muscular dystrophy? That is something i would want to to know if she has looked into.