CF BODIES ARE COMPLICATED! (3.15.16)

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Пікірлер: 198

  • @christyinthecarolinas
    @christyinthecarolinas8 жыл бұрын

    awww Ollie when you started coughing after the eliptical was out cold and sat up to look at you. so sweet.

  • @carolynsowada36
    @carolynsowada368 жыл бұрын

    I love how there's always something that you're thankful for mentioned in all of your vlog's. Even if it's something as simple as ibuprofen...reminds me to be thankful too.

  • @ashleypratt1534
    @ashleypratt15348 жыл бұрын

    +thefreylife thank you so much for all of your positivity and fight. I'm in the hospital fighting sepsis and currently waiting to go into the OR to have my port removed and a central line placed. I was so nervous, but when watching your vlog, I was able to forget where I was and what was going on for those few minutes. Thank you Mary and Peter for all that you do for the chronic illness community. Love you! ♥️

  • @lindsayc3950
    @lindsayc39508 жыл бұрын

    Every video I watch when I hear "we're in the road" and don't forget to laugh every day" I light up. Mary, Peter if you reading this your story together is so inspiring and so amazing 💕💕 I watch your videos daily and even in my darkest places in the times I God graces me with you videos ❤️❤️ Thank you never stop making videos

  • @CurvyNerd
    @CurvyNerd8 жыл бұрын

    I've been binge watching your videos since accidentally stumbling over you in a dollar tree hack. I think it was meant to be. Your faith is so inspiring! I suffer from lupus and most people don't understand what it means when I say I'm having a "bad day". They don't understand how sometimes just grocery shopping can wear you out. Prayers to you and your family and thank you again for sharing your life with us. ❤️❤️

  • @SleepiiBabbii27
    @SleepiiBabbii278 жыл бұрын

    Sorry your not feeling the best today Mary. Keeping you in my prayers! Me and my 6 month old daughter watch your blog everyday and love it. I appreciate you uploading even when you don't feel your best.

  • @Kelly.Patricia
    @Kelly.Patricia8 жыл бұрын

    I understand so well when you were talking about how every day is different with how we feel. Some days you feel you can push past it and some days you just can't. Totally get it! I hope your headache gets better! God bless you!! You're never alone!🙏🏻❤️☺️

  • @BellaaBeexoxo
    @BellaaBeexoxo8 жыл бұрын

    It's okay to have a bad day Mary! We are so proud of you no matter what!

  • @anitab5531
    @anitab55318 жыл бұрын

    Mary, I am pretty new to your channel, but don't ever beat yourself up for needing to rest your body. You are fighting so many battles in your body. Best wishes to you both.

  • @sarahmockingbird6433
    @sarahmockingbird64338 жыл бұрын

    When I was healthier and still working I taught fifth grade. Once we went on a field trip on a whale watching boat. It was so cool! We were out on the water for two or three hours and saw several whales. 'Twas a great day. Yesterday, you mentioned you don't like the word hash. I remember once my brother show me this clip from Muppet Babies ('90's television, anyone?) Baby Gonzo was leading an Iditord team. Usually, they say "Mush, mush," to urge them to go faster. But Gonzo said, "Oatmeal, oatmeal!" It is silly, I know, but it really cracked me up and has stuck with me all these years. So, you could say oatmealtag or mushtag. Mush sounds better but I don't know if you dislike the word mush too because of the sh sound. Anyway, random silly side.

  • @looloo8467
    @looloo84678 жыл бұрын

    I don't have CF but I do understand good days and bad days. I have CP, BP, chronic migraines, and panic disorder. Some days I feel good enough to conquer the day, and others it is a struggle to get out of bed. My husband tells me to do what I can, and that it is never a failed attempt. Do you ever feel like on your good days you have to catch up? I do. Like I have to finish as much laundry, cook freezer meals, and run as many errands as possible in case tomorrow is a bad day. I know it is silly, and probably causes me to have a bad day when I push past my limits, but sometimes you just have to take the small victories. Blessings to you both.

  • @mcescher1957
    @mcescher19578 жыл бұрын

    Even when you have a bad day, you handle it with grace, and are an inspiration to me. How wonderful to know that eventually we will be given a wonderful glorified and perfect body, with no more pain. What a blessed hope! I pray that you feel better...God Bless you! You are loved!

  • @fancyfacekins2812
    @fancyfacekins28128 жыл бұрын

    Good for you Mary, for taking time to take care of yourself and realizing some days you can't do everything! And Peter you're such a kind soul, and you remind me of my boyfriend, who I'm so grateful to have. You two are a wonderful pair I enjoy watching your videos!

  • @be6709
    @be67098 жыл бұрын

    You should sew or have someone else sew your blankets together and make a bigger throw size! I am in love with those as well and a friend of mine made me one. She took 8 of them and sewed them together and then sewers a thin sheet on the back and made like a quilt from them. The weight is about the same and it is sooooo awsum!

  • @sarahvanorden670
    @sarahvanorden6708 жыл бұрын

    I love watching the Vlogs after infusion especially after you said "If you did a therapy or whatever today to help your body, good!" Thanks Mary! I always think about the fact that my infusion is my "lazy day" but it is helping me!

  • @SingingStarr17
    @SingingStarr178 жыл бұрын

    The fact that you guys watch Katie and Cullen... Omg. Just...

  • @pjmcgovern2277
    @pjmcgovern22778 жыл бұрын

    Thanks for the answer Mary you know what, I love when you and Peter both look at Ollie together, its like ...luv

  • @noreadalmasesboss5437
    @noreadalmasesboss54378 жыл бұрын

    It's kinda funny when Peter says "excuse me" after just coughing a tiny bit, but when Mary coughed really hard she just carried on with her sentence, haha ;) I think any cf patient can agree that saying excuse me every time when coughing would be annoying and hard to remember... Or is it just me? Haha

  • @AdrienneMcGuire
    @AdrienneMcGuire8 жыл бұрын

    Awesome job on keeping up your fitness, Mary! I also have a chronic illness, Ehlers-Danlos Syndrome, and it is also very important for me to stay fit so that my muscles can support my body since I have weak connective tissues. I have chronic pain every day but it is well managed right now with medications, daily exercise, and making sure I get enough sleep. I just got home from walking our dog with my 11 year old son. I can't wait to get my owl print. I'm going to frame it and put it my hallway. I'm a huge owl fanatic and I have many, many glass, ceramic and wooden owls.

  • @crisdancingtree5421
    @crisdancingtree54218 жыл бұрын

    You did the best you could some days are like that. Mary it is not a failure never. You inspire me each day both you, Peter and sweet Ollie. 😊👍👍👍😊. Some days just breathing is quite an accomplishment. Take care the both of you. I hope your headache gets better.

  • @pandaspets-melissapankey3456
    @pandaspets-melissapankey34568 жыл бұрын

    my sister died of cf about 14 years ago... I can't believe it's been so long it seams like yesterday almost... I miss her so much... I now work in a specialty pharmacy that ships meds to cf patients as well as cancer and transplant patients. it gets hard when I talk to some cf patients it reminds me of her. I am a carrier and I worry that my bf is a carrier and then if he gets tested and is a carrier I have to think if I want to have a child or not. but I promises my sister I would name my daughter after her. at least she got to get married and live the married life for 6 months. I can't believe how far health care and the life span for cf patients has gotten much longer since she was around. most pts didn't last till they were 18, now they make it to their 30's.

  • @lentheschutten7949
    @lentheschutten79498 жыл бұрын

    I have ACNES and Gastroparesis, I'ts nothing compared to CF but I have so much appreciation for you guys!! I almost feel guilty that I had a sick day today.. Mary I hope you feel better soon, you are such a nice couple, and Oliver is super cute! Greetings from the Netherlands! (Lenthe Schutten)

  • @elizabethanne6361
    @elizabethanne63618 жыл бұрын

    I totally understand that some days you are able to "push" yourself and some days you can't. I have lupus and totally understand. Some days I feel like I can fake it and some days I can't. Sometimes I feel like I am walking thru mud and everything is 10 times harder than other days. The days I hate are the in between days where I kind of feel sick but kind of don't. Those days take their toll on my emotions for some reason.

  • @cynthiabromback8854
    @cynthiabromback88548 жыл бұрын

    Hi guys..hope you feel better soon Mary. My giraffe print and decals came and I'm so happy!

  • @purrbugaloo
    @purrbugaloo8 жыл бұрын

    The Batman voice is technically called "vocal fry". Hey Mary, are your stomach muscles super toned from the coughing? When I had bronchitis the doctor said I cracked a rib coughing. I don't know how you manage the muscle pain but you seem to do it with flying colors. It is inspiring to see someone else with a chronic illness live their life.

  • @khalieghyadandie-evans7155
    @khalieghyadandie-evans71558 жыл бұрын

    ( 8 FUN ACTIVITIES FOR YOUR HOSPITAL ROOM!) I'm going to the HOSPITAL tomorrow for a biopsy because I have a liver transplant so I go to the HOSPITAL a lot so I'm go to do all 8 things. Think You Mary!!!!!!

  • @NicoleBlas
    @NicoleBlas8 жыл бұрын

    I love watching your videos, they make me so happy

  • @shirleyjeanpilger5000
    @shirleyjeanpilger50008 жыл бұрын

    I tore my rotator cuff from repeated motion of the NuStep exercise machine at the Center, so only made it over twice last week. I plan on going more next week because I can, because you show me that I have the ability to keep trying to make myself stronger. I am always impressed with the amount of things you manage to get done even though you don't "feel good" all the time. Peter - have you tried warm Lemonade and salt gargling? Just an old time remedy for sore throat, hoarseness, irritated throat. Peace, Love and Light!

  • @lifeisgoodlisha
    @lifeisgoodlisha8 жыл бұрын

    I am sorry you have been feeling crummy... I am still praying for more good days, than bad days for you! The little things in life are so important. Even though some days you can't make it to the things you wish you could, it's awesome you make the most of each day.

  • @gwenmitchem7338
    @gwenmitchem73388 жыл бұрын

    I had one of those days today as well just could not finish pool therapy and sorta stayed in bed as well and that's ok we all have are good days and bad enjoy the good and deal with the bad tomorrow is a new day with a new beginnings hope tomorrow is better hugs

  • @caitmarie4975
    @caitmarie49758 жыл бұрын

    growing up my dad always had the Dutch coco cookies in our cupboards.....I've noticed they have gotten smaller then they used to be when I was a kid

  • @LalaCats3
    @LalaCats38 жыл бұрын

    Sometimes you need to just take a day to relax, recover, rejuvenate, whatever. I like watching your videos whatever you do (though I confess the grocery shopping, the trips to get fast food, the cooking videos, and the videos where you hang out or work with Ollie are my favorites). Can you tell I am a foodie? I am also wondering about Peter's cough and hoarseness of late. Here in Minnesota, the mold spores start entering the air when the snow melts and the grasses and trees start to wake up. This causes allergy problems for those who have mold or vegetation allergies. This usually lasts through April for me. Thanks as always for the videos. Hope the rest of your week is great.

  • @c.elizabeth771
    @c.elizabeth7718 жыл бұрын

    Love Cullen & Katie!💜💜💜

  • @ElizaColeProductions
    @ElizaColeProductions8 жыл бұрын

    I was actually on the treadmill while watching this so thank you for the encouragement at the beginning of this video!! Hope you feel better today/tomorrow, Mary!!

  • @alliewhite5579
    @alliewhite55798 жыл бұрын

    I wanna snuggle with Ollie boy so bad... He is so cute!! He's a bigger version of my Molly (Cock-a-Poo). I think a full size Poodle is our next dog after we get a house with a big back yard.

  • @shortysax
    @shortysax8 жыл бұрын

    Mary - you're seriously inspiring! My husband was trying to talk to me into going out for a bike ride but I was hungry and cranky and it is kinda cold out... And honestly, I thought about you with your CF, pushing through those elliptical workouts, and I felt like I had no excuse! I put on my big girl (bike) pants, ate a protein bar, and biked 6 miles! I just thought you might like to hear that I used you as my inspiration today! :-)

  • @thefreylife

    @thefreylife

    8 жыл бұрын

    +shortysax That's awesome! and such an honor to be thought of as your inspiration .Thanks for sharing that!

  • @Jazzyssweetlife
    @Jazzyssweetlife8 жыл бұрын

    I just came across your channel and I am so glad to have found you guys! Thank you for sharing your daily journey with us, it's really great to see what a CF day could look like as I am learning how to be a CF mom for my 4 month old son. You guys are amazing and thank you again!

  • @versace1962
    @versace19628 жыл бұрын

    Hi guys. Hope your head is feeling better Mary. You can apply a heat pack to your sinus area or if the pain is in the back of your head, apply heat to the back of your neck. It helps my headaches sometimes. :)

  • @sebastianphillipsbechelani3307
    @sebastianphillipsbechelani33078 жыл бұрын

    I am 71 years old dealing with bronchiectasis for the past year. I have a niece with cf who is 30, married a neat Christian guy, and is receiving gene therapy. She is doing very well so we feel blessed. I have been enjoying the glimpse you allow us to have into your journey, since I was diagnosed. The inhalers and the vest are a part of my life too. My question is this--do you feel the need to apologize when you are in a public setting for the coughing fits that come your way? I feel the need to reassure people that "Not to worry, it is nothing contagious". Do you tend to do that, or figure it is none of their business? Keep up the good fight, and the videos!

  • @thefreylife

    @thefreylife

    8 жыл бұрын

    +Sebastián Phillips Bechelani A little bit of both- mostly I just keep on going, occasionally I tell people I have CF and it's not contagious :)

  • @chrissie2009
    @chrissie20098 жыл бұрын

    Headaches are the worst, happy yours was getting better. I hope you are headache free today or if you aren't that it isn't as bad. :)

  • @BearyBear_xX
    @BearyBear_xX8 жыл бұрын

    Hi Mary well I don't have CF but I just wanna say how strong you are no matter what happens to you your always strong with CF and you inspire others with CF to be strong and don't give up so what ever happens never give up and stay strong

  • @leahfox7836
    @leahfox78368 жыл бұрын

    how do you stay so positive?!? I've been going through a lot. but you give me so much motivation!!

  • @gabbylee6882
    @gabbylee68828 жыл бұрын

    Love MG too!! So happy that they are having a boy

  • @robbinrussell1757
    @robbinrussell17578 жыл бұрын

    I really understand about that each day is different. With my COPD some days I am more congested and short of breath and tired. I also have other issues that factor in. I have adrenal gland tumors, diabetic, intercostal neuralgia, diverticulitis, etc. Some times I can go do some shopping and other days I just can't.

  • @nataliepytlarz4832
    @nataliepytlarz48328 жыл бұрын

    I love watching your videos, I love watching the videos when you first started the vlog, it helps me try and get my mind off of things when I'm in the hospital because I have sever asthma! I love seeing ollie boy💜

  • @mollieculeiscule5769
    @mollieculeiscule57698 жыл бұрын

    You are amazing and an inspiration to us all.

  • @mallarydohm8295
    @mallarydohm82958 жыл бұрын

    My biggest inspiration right here ❤️

  • @Francis-vu3vd

    @Francis-vu3vd

    8 жыл бұрын

    So the same ❤️💛💚💙💜

  • @cherylsmith5916
    @cherylsmith59168 жыл бұрын

    When I first glanced at the title to this video I thought it said "CF Buddies Are Complicated". LOL :D Then I realized what it said and was like "ohhhh!!" haha :D

  • @emilyratka3899
    @emilyratka38998 жыл бұрын

    I hope to you feel better. Have a great night!

  • @augustaladybugpanda
    @augustaladybugpanda8 жыл бұрын

    I hope you both feel better soon!!!!

  • @Autumn_Forest_
    @Autumn_Forest_8 жыл бұрын

    Awwwww!!! Ollie!!!! I wuv you!!!!

  • @jesslchick
    @jesslchick8 жыл бұрын

    Mary & Peter, how do you stay so positive? Ive been through so much these last few months with my brother passing away, my grandma got cancer, I moved away from my family and live with different family know, and my bestfriends little sister has major seizures and has Autism....I think you get it....Its so hard for me to stay positive all the time. Most days I'm just super sad and have no energy...How do you guys do it?

  • @julierose2907
    @julierose29078 жыл бұрын

    Thinking you you! ❤️

  • @ClaudiaRamirez-wb9ff
    @ClaudiaRamirez-wb9ff8 жыл бұрын

    I enjoy watching your videos I love how you're so positive all the time you look so happy even when you feel sick when you get headaches it's awesome that you just seem to ignore it all and act as if nothing was hurting! Thank you for your inspiration ❤️

  • @panicatthe21phanmotionless6
    @panicatthe21phanmotionless68 жыл бұрын

    I hope y'all feel better

  • @teribabe58
    @teribabe588 жыл бұрын

    I TOTALLY understand what you mean about how you could make yourself get up and go even though you don't feel well. With my lupus/fibromyalgia I have the same thing. I am extremely sensitive to the sun and fluorescent lights. I get a rash, hot, inflamed and feel like I have the flu after long exposures. I could totally go do something but then the next day or that night I feel really bad. Or, if my lupus is flaring up I feel horrible to do anything other than lay around.I have gotten to the point of 'why make myself feel that way'? So, I don't do much anymore. I live alone with my two mini doxies so it's all okay. Hey you didn't do your lung pic give away. God Bless you guys!

  • @princessaz79
    @princessaz798 жыл бұрын

    You explained it perfect. It's the way I feel. I have multiple problems. When you have a good day you take it cause you don't know when the next one will come around.

  • @BNHAalltheway
    @BNHAalltheway8 жыл бұрын

    Love Your vlogs Mary glad Your head feels better Ollie is so cute

  • @lazlolind
    @lazlolind8 жыл бұрын

    Mary and Peter! I love your vlogs. Oh and much love for Oliver too.

  • @imjuliewaters
    @imjuliewaters8 жыл бұрын

    My mom has fibromyalgia and her days are like yours. She can be fairly active one day with errands and everything and then the next day or two she's completely wiped out and sleeps a lot. I'm not diagnosed with fibro, but I have a lot of the symptoms and the same thing happens to me too. I have a doctor's appointment tomorrow and I'm already not looking forward to how much pain it's going to put me in.

  • @TheMommyMikka
    @TheMommyMikka8 жыл бұрын

    I can relate with having a disease and it just not effects where it's original located. I have Crohns Disease, my immune system attacks my digestive system. My joints hurt,I get headaches alot, My liver isn't happy it's levels are always off, I have had eye irradiated from dryness side effect of Crohns. When I was a teen in children's hospital I met 2 CF patient's one was younger like 8 yrs old use to do crafts all week while stuck in the hospital together, one day heard her mom on the radio talking about her make a wish came true how happy she was but weeks after the trip little girl passed away shocked me. Then met a girl who reminds me alot of you. she was 15 with CF, she would explain her CF treatments to me like it was just normal, I remember her PT and vest and the nurses trying to get her to eat small snacks all the time, together in the hospital we could comfort each other and make the time fly. Now I'm 28 , and pray she is doing well she should be like 26. we was sometimes mean,kid had broken jaw from a fight he was a foster kid, we would eat in front of him while he had his jaw wired. he would just chuckle a bit.

  • @TheMommyMikka

    @TheMommyMikka

    8 жыл бұрын

    The good times(bad situations, but made the best of it),That's what I try to remember in my childhood of chronic illness, Do you have any hospital stays will good memories like favorite nurse, another patient?( Weird flash back for me is I made a poster of what to bring to the hospital as a kid when I was 16, when I was 23 had my son in NICU walked same halls in peds floor to NICU, my poster was still up brought so many emotions to me already in a emotional state that day.)

  • @jillrudolph4127
    @jillrudolph41278 жыл бұрын

    you guys are great ! your positivity honestly inspires me

  • @TesaJane
    @TesaJane8 жыл бұрын

    I was watching so much fixer upper the other day, it was a marathon and I couldn't escape. HGTV is addictive!

  • @kellyj.goodgoldberger4012
    @kellyj.goodgoldberger40128 жыл бұрын

    I hear ya on complicated! that is one thing other people without a rare disease tend to not understand...that's it's not a one issue and done. it is a lifelong managing situation.

  • @taylorfriend5154
    @taylorfriend51548 жыл бұрын

    You guys are so positive even on bad days I love it. 💜

  • @Adamisinyou
    @Adamisinyou8 жыл бұрын

    I am glad you doing this makes you smile and be strong I truly do, I just hope you don't forget to give as at the same time and it works just as good, all the best

  • @Grellibe
    @Grellibe8 жыл бұрын

    Hi! I just discovered your channel and I just want to say I love your videos. They are so calming and positive. I hope you're feeling better. :)

  • @Qwertyleem
    @Qwertyleem8 жыл бұрын

    Thanks for keeping me going today 💗

  • @MsAshlynn2
    @MsAshlynn28 жыл бұрын

    Big hugs Mary! ❤️your cyster~Ashlynn

  • @jessmakesthings
    @jessmakesthings8 жыл бұрын

    Ollie is such a cute doggy!! I was wondering if you could show some of the things/tricks he does as your service dog. I know you've talked about what he does, but I'd love to see him in action!! And thank you for these wonderful, uplifting vlogs!!

  • @thefreylife

    @thefreylife

    8 жыл бұрын

    +Jessica Rose We show some of his tasks in our Service dog Q and A video :)

  • @mariellehaid7736
    @mariellehaid77368 жыл бұрын

    I don't get how you could dislike such an awesome video! :)

  • @02eastaugha
    @02eastaugha8 жыл бұрын

    We ❤️ you guys no matter what u do xx

  • @hcfarmville9166
    @hcfarmville91666 жыл бұрын

    Thank you for the encouragement I am sitting here watching videos while pedaling on my exercise bike as I can't walk far .I find your videos very inspiring and love to watch god bless you Mary and Peter PS Ollie is so cute

  • @Saffron333
    @Saffron3338 жыл бұрын

    With your bacteria never going away, are you basically living every day with walking pneumonia? Because of my asthma I've had pneumonia five times in my life so far and I can't imagine pneumonia being a lifestyle. Preventing pneumonia is my lifestyle, taking my corticosteroids, etc. I can't imagine just living with pneumonia that does not go away but also does not kill me. I can't wrap my mind around what that would be like.

  • @mynephewisawesome
    @mynephewisawesome8 жыл бұрын

    as a sock horder and lover the socks were super cute. i can see why pater thought it was about the socks. 😛

  • @kaileygazaway1456
    @kaileygazaway14568 жыл бұрын

    Such a inspiration, my friend struggles with cf everyday watching your videos always makes us laugh:)

  • @migdalialeroux
    @migdalialeroux8 жыл бұрын

    you go girl

  • @StephyLynn
    @StephyLynn8 жыл бұрын

    Have you thought about making mugs to sell on your store that maybe say The Frey Life on one side and Laugh Every Day on the other side? Or just one or the other.

  • @nataliemay415
    @nataliemay4158 жыл бұрын

    I think the weather also plays a part with lung problems. Like when you walk outside and there's moisture in the air therefore you'll probably cough more.

  • @Makeupmickey3069
    @Makeupmickey30698 жыл бұрын

    Wish u could send to the uk and love u guys you make my day so happy even when things are. To good and I thanks you so much for that love Michaela x

  • @QuinceyG
    @QuinceyG8 жыл бұрын

    I really need to find a way to make one of those blankets you have out of the baby receiving blankets. :D Anywho...Hoping that you are feeling bit better today.

  • @savashlee1420
    @savashlee14208 жыл бұрын

    Love you guys!!! Made "laugh every day" my bio on Instagram. You constant positivity is very uplifting

  • @catherinelaverty9224
    @catherinelaverty92248 жыл бұрын

    I love your videos Mary and Peter

  • @kristischultz1536
    @kristischultz15368 жыл бұрын

    Have they suggested that you move to a warmer climate ? My Mom has asthma and in the 90s she moved from Wisconsin To Arizona.

  • @juliakaufman8759
    @juliakaufman87598 жыл бұрын

    My friend has cf also and I showed her a video of yours. You are so supported to her

  • @mandysnyder9153
    @mandysnyder91538 жыл бұрын

    Hey guy! I absolutely love your videos! Recently I have started to video my life with my service dog hopeful and I want to know what video editor you use?

  • @courtneymcgraw7672
    @courtneymcgraw76728 жыл бұрын

    Also hope you feel better tomorrow or should I say today lol I love your videos

  • @katierzymek8725
    @katierzymek87258 жыл бұрын

    you guys are so cute❤️

  • @lauraward6441
    @lauraward64418 жыл бұрын

    hey guys! I really love watching these videos and I have been praying for Mary ever since I found this channel. I would like to ask what church Peter preaches at l. I would really love to visit! Thank you for serving gods kingdom. God has really worked with you for his honor Peter!

  • @randyllarson
    @randyllarson8 жыл бұрын

    You guys are awsome together!! Your love shines through! Mary I just wanted to give you a heads up regarding Ibprophen! !I have kidney disease I was diagnosed with glurionephritas!! I had underlying kidney disease for years and went undiagnosed. As I have studied my disease I have tried to find out what set it off. What happened to me is I was on a cruise and went to gift shop to get Tylenol or aspirin for a migraine I get 2 or 3 times a year. They didn't have any headache medicine so I went to infirmary and the doctor gave me Ibprophen. The next morning when I woke up my clothes wouldn't fit and I had gained 10 pounds of water over night. Went to the infirmary seen the doctor and he told me to fly home immediately and see my doctor.Thank God we were going home next day. When I got home the doctor told me my Kidneys were shutting down and my journey began. Ibprophen has gotten a bad rap and they have changed there marketing and rebranded under Advil. Most people that don't know they have a kidney use of any kind Ibprophen can set it off. I would recommend Tylenol or Aspirin anything but Ibprophen . I just thought I would warn you. I know you have enough health issues to worry about. Take Care

  • @debbielee7645
    @debbielee76458 жыл бұрын

    I know what you mean by not being able to do things that you ordinarily do. I had one of those days today. Because of the chronic back problems I have to space out the chores that I used to do in one day over several days. I make a list at he beginning of the week and try to do several things each day. Today I had planned to dust and vacuum but my arthritic hips decided that they wanted to rest today, so, that's about all I could do. I did manage to get cleaned up and dressed, make up my bed, clean the toilet and wash the dishes. The rest of the day was spent trying to find a comfortable position for sitting and staying off my feet. Since I had to stop working in 1997, I have learned to accept the fact that my body is no longer dependable. That has been harder to accept than the fact that I have a chronic pain condition. But, I have learned that tomorrow is a new day and even though it may not go the way I planned it will be different and hold new things to discover. I hope that you both will have a more comfortable day and feel better.. Maybe Peter is allergic to the time change? lol

  • @1tsnabuela

    @1tsnabuela

    8 жыл бұрын

    +Debbie Lee I know how you feel - about not being able to get as much done as you used to - I am in the same boat. I do what I can and don't really worry about what doesn't get done. It's always there when I go back to it. But when I am 'sitting' I have my knitting and crocheting projects to work on. I always have 'projects' in the works, right now I have 3 in various stages and a couple to be mailed. If you don't know how to knit/crochet you can learn real easy on KZread. There are tons of 'helper' films there. I also keep Crossword puzzle books at different points in the house and in the car. Helps to build your word power. Sorry that I have intruded into your time, but - - - -. Take life easy, treat yourself and others well and keep moving and learning. Prayers always - Nc

  • @debbielee7645

    @debbielee7645

    8 жыл бұрын

    N Cook I have crossword puzzle books too. I also watch a lot of old TV shows from the 60's and 70's, listen to music and write short stories for the X-Files fandom. I used to do latch hook but anything involving extensive use of my hands is out because of arthritis. I also read a lot and research topics of interest on the computer. Right now I'm learning about the Big Foot phenomena. It's quite interesting..

  • @mauragrier6958
    @mauragrier69588 жыл бұрын

    I love your videos❤.

  • @AlyMMKAY8
    @AlyMMKAY88 жыл бұрын

    Gilmore Girls, humus, and cucumbers!!!

  • @karenmccreary4538
    @karenmccreary45388 жыл бұрын

    Infection is constantly being attacked by whatever "bit" of fight you have left in your white blood cells . When that's in the forefront you are guaranteed to be more tired and feel more YUK . So, Mary my daughter from another family (HA-HA) , you are more than entitled to feel the way you do right now ! AND... I heard Ollie say , "GO Mary ! Yea !, Mary ! You are awesome." He said it very quietly , promise ! Please just have another little laugh for the day . St .Patrick's Day is almost here actually , I just got this posting and it is St. Patrick's Day !! Happy shamrocks to you both my little leprechauns ! Even if you're really NOT Irish, today you are ! It is a big day for my husband and me and our families and lots of our friends. If I (we) could get out today. our friens , etc. would all wish you well Frey family etc. You know I love you like my own ! So, that really does make you Irish !! Ollie-boy , too ! Feel better tomorrow !! XXXOOO

  • @melissagunn9267
    @melissagunn92678 жыл бұрын

    Awww I'm sorry today was a difficult day Mary, some days are like that but thank God for the help of good people in our lives that help us carry on and the support of good friends, hang in there girl. I'm so glad Mary that you have learned your limits and don't beat up on yourself when you have to miss an elliptical session or whatever the case may be. Just remember you are listening to your body and taking care of you and if that means sometimes you cant get on the elliptical that is totally fine we all have to do that sometimes you are VICTORIOUS even on those days. You are so brave and even though were only a few years apart I look up to you. You are like my family and I pray for you always. Maybe you've talked about this before and I forgot, but I wonder if your sinus problems could be contributing to your frequent headaches at all.... just a thought. And I have quick question about CF, do CF patients ever not have lung infections like is it possible to go a period of time without any infection? I think everybody's voice prolly get a lil deeper when they're tired maybe that's what's goin on with Peter if it seems to be worse in the evenings, plus it is def allergy season my throat can tell too! Peter would have a nice voice for a radio show. (: Mary you made me laugh tonite when you said "thanks for spending the day in the bed with us" then you were like " that was awkward" I was laughing so hard!!! Love u guys cant wait to see ya tomorrow. P.S. I was the one that mentioned the kinder egg thumbs up stamp haha, I wanted it on my package ): But at least you guys started using another stamp, an even better one at that! Hoping your "awake and your head doesn't even hurt" as your reading this.

  • @rebeccashope5206
    @rebeccashope52068 жыл бұрын

    I agree, Peter needs to go to the Dr. Feel better soon guys.

  • @AdrienneMcGuire
    @AdrienneMcGuire8 жыл бұрын

    I think that cough induced headache sounds like one of the worst symptoms! Does it help if you take advil or tylenol when you get a headache?

  • @blair6944
    @blair69448 жыл бұрын

    +The Frey Life. Are you allowed to take anything for your headaches? I get really bad migraines and they have me using the medication sumatriptan. It is an absolute lifesaver and makes the difference between me being able to function or me having to lay in a dark room in complete silence. Just curious what your doctors say about your headaches?

  • @hayleybuck5178
    @hayleybuck51785 жыл бұрын

    I'm sending you hugs xx

  • @beccabark7912
    @beccabark79128 жыл бұрын

    Nothing wrong with lazy days I love lazy days lol feel better soon I have to say you seem like such a sweet person and Peter also and Ollie is just too cute and did i miss the vlog of announcing the #purplelungs drawing I was looking I'm from Oklahoma so our time zone are totally different God Bless Frey Family