I love that you have chosen to keep your "stats" to yourself. CF and PFTs aren't some competition. I have Secondary Progressive Multiple Sclerosis, and my MS journey has been filled with a lot of chronic pain. I have friends who will say something about their back hurting or their knee being really sore or whatever. And then they realize that they just mentioned their pain around me and begin backpedaling, which looks something like this: "Oh listen to me complaining about my back pain. It's nothing compared to the pain you feel everyday, all the time." I imagine you recognize this in some form or another. My response is that it isn't a competition. The level of my pain, whatever it may be that day, doesn't make your pain unimportant or invalid. The same with my level of disability. I think you have made a wise choice to keep the numbers to yourself, and I fully support that, and your reasons why you do so. Choose Joy and laugh every day!

Thought Mary said "I was gonna eat Hoummas and Peter"........I was getting wee bit worried for him!! You two are just lovely, you both make me smile every day when I watch these vlogs! Love my daily dose of The Frey Life! :-) xxxx

thanks for answering my question! your right on "treat the patient,not the number!"

When I was young they tested me on Cystic Fibrosis too because I was always underweight, kept coughing etc. but I don't have it. Now they don't know what's wrong with me. I found a wheelchair by the way, for free! :) They found "something" now ib my ergonometry test, so they gonna think what they can do for me. I want to make youtube videos/vlogs too about my sickness when I get the diagnosis but I don't think it will be interesting enough, cause I can't really do things, I'm not going outside so often. I love you guys!

@thefreylife

9 жыл бұрын

Demi Fu I'm glad you found a wheelchair. do you have someone who can be your buddy and go out when you are able? I hope you can find something to laugh about today :)

Great explanation of CF, Mary. You guys are so wonderful sharing your everyday life with the world to view. And as always, keep up the great attitude. Which I can imagine may be rough at times. God bless.

I love hummus and pita, love the cf awareness whale, also plan on sending in a picture for the compilation. I also hope a walk with happen in my area soon, the last one was May 2, but I missed it.

I just signed up to volunteer at my local cystic fibrosis walk because of you guys!

@thefreylife

9 жыл бұрын

Em15foreverdance That is AWESOME! Thanks!!!! When You go be sure to take a picture and send it to us! We would love to see!

I heard on the cf animation video cf patients need a lot of calories because their bodies don't absorb calories well (just like they don't absorb nutrients well), so they can eat a lot of calories without gaining weight. God bless you Peter and Mary. I pray for you, Mary's sister, your families, and cf patients when I watch your videos.

@thefreylife

9 жыл бұрын

faithfuljeanette Thanks so much for praying! We are so glad you are a part of The Frey Life!

That is so interesting to hear about what your diet should consist of. I didn't know that. I'm glad you did this little Q&A information segment.

I'm having my A1C checked in the morning and can't eat or drink anything other than water after midnight and it's after midnight when I'm watching this lol. Thanks Mary!

You guys must start keeping Hershey's Kisses or something chocolate to eat when you open a Kinder yolk. :)

I love u guys

you guys should save some kinder eggs for christmas count down!

Ollie is so cute! Currently I have a 4lb chihuahua as my service dog but in 6-7 weeks I will be getting my new service dog. She's a chocolate lab pup and I will have her custom trained for mobility, panic, PTSD as well as some guide dog training. I love my chihuahua but he's way to small for mobility work. :) CF is a difficult illness to have and it seems that Peter, Ollie and you have a good system. Are you eligible for a lung transplant?

Hay guys I know in edenburgho you guys at and liked tea cakes. Well you can get them in the usa at world market! And they are amazingggggggg!!!! First time I ever tried them it's so hard not to eat the entire box!

Every girl is jealous of your non-restricted diet! :) I am glad you haven't had to have extra supplement though thru a feeding tube, although glad it's available if necessary! Love you guys :)

Hi!! I was wondering, with which denomination of Christianity are you guys are affiliated? Love y'all and your fun and adorable vlogs so so much!! :))

I have a question for you two! What is your favorite memory as a couple?! Do you each have different ones, or is it one that you both immediately think of as the best.

@thefreylife

9 жыл бұрын

SillyOtter One of my favorite recent memories is when we were in Scotland, and we offered a stranger a french fry and she took it :) She was so sweet and she surprised us so much we just laughed and laughed :)

What is THAT point? Like what would it look like? Not being able 2 walk w/out losing breath, coughing so much a day, going so long w/out any improvements n your levels (health)?

Not knowing your pft makes me feel cloSer to u. Sometimes on cf blogs when everyone says they're numbers first, it separates ppl into levels of severity and often those separations are nonsense. I like that are pfts maybe very different but I get to still feel in common with u and it's easier to relate. I just found ur channel and I'm obsessed, I'll have questions but for now, What mutations do u have? Are u on kalydeco? Have u been in any studies recently? - maybe link if u answered these already. Haven't watched every video but I'll get there soon lol My sister is seen in Boston bc she is in a study, and she says its a super cool center!

@thefreylife

9 жыл бұрын

chayasorah815 Thank you for saying that. I think the way you said that is how I feel about the numbers too. They can cause a separation when comparison comes into play. Thanks for supporting our decision in not sharing the numbers :) My mutations are Delta 508 and V 520 F I'm not on Kalydeco I am not eligible for many studies because of the severity of my liver disease...but I was in quite a few studies (that didn't have anything to do with the Liver) in 2011 and 2012. It was a great job for me :) I love doing studies when I can! And one of the reasons I love doing studies is because I love the research team in Boston :) Thanks for saying hi!

Wow and now there is a drug that has improved your lung function and put the transplant conversation on pause! ❤

I want to do something for my friend with CF. Its winter here so shes getting really sick again and cant go out much, she gets sad when her life becomes all meds and no social life. I dont kow what to do for her but i really want to help.

@thefreylife

9 жыл бұрын

sharona dellow Are you able to go over there with her? If so, maybe make a couple trips over there...like one time you could go over there with everything you need for a spa day...finger nail polish, a bucket for a foot bath, some cute cups for lemonade, and some nice music. Another time you could go over with a party in a box, and set up balloons, streamers and grab some cute plates from the dollar store, and bring a cupcake for each of you and some doritos and have a party. Or you could have a movie night. I'd say just act like normal life at home and have a party. If she's not feeling well, sit in bed and look at pinterest together. If she is napping, sit with her and nap, or watch youtube while she naps. Just making her feel as normal as possible is good :)

lol i dont mean to sound rude so i hope u dont think im been disrespectful to u mary coz im not BUT its funny how u said the fun thing about CF is u get to eat all the food u want like the high fat foods to keep ur weight up and i sit here thinking i wish i can do that and never get fat like how u do eat al that type of food and never are fat hahahah please i hope it dont offend u coz i know its a struggle for u coz u have to keep the weight on! and im the total oppisite i have to tke to weight off but it never happens for me either!

@thefreylife

9 жыл бұрын

Kw33nBiitch Yea, it's crazy that my diet is the opposite of most people :) You didn't offend me :)

@Kw33nBiitch

9 жыл бұрын

thats good because i have a friend hu is very very slim and never gains weight no matter what she eats and she said '' the why people get offended about how people call big people fat is the same as when someone calls a slim person skinny and she said she gets offended wen people tell her they wanna be as skinny as her and eat what ever they want just like she can and never loses weight! she finds offensive been skinny! its so sad :( coz i think shes beautiful and would love to be her size and she thinks shes to skinny and wants to be fatter :(

Are you able to have a lung transplant???