JOIN OUR NEXT EVENT ON 17 JUNE: "WHY I AM OPTIMISTIC THAT WE MIGHT NOW HAVE A SILVER BULLET FOR PD" BY DR JONATHAN SACKNER-BERNSTEIN, MD. (DETAILS AT THE BOTTOM)
We want to help you to become well-informed generalists in your condition and to make informed choices on how to adapt your lifestyle to slow down disease progression.
We are organising zoom sessions with researchers and PD specialists to update you on the latest advances in science and medicine, nutrition, exercise and wellness.
IMPORTANT MESSAGE
We are not medical specialists and our sessions are for information and education purposes only. If you are seeking medical advice, diagnoses, or treatment, you should consult a medical professional.
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BS my uncle had Parkinson's no way he could do any exercise would be sitting and all of a sudden his arms and legs would start thrashing about . Couldn't talk cold only stare ....
I want to appreciate Dr Madida on KZread for treating my Dad of his Multiple sclerosis and parkinson disease with their natural meds💊🌿🌿👌😊😊.
I love listening to Dr Okun. He has dedicated his life, his career to PD and I think he truly tries to help people. He is not rude and condescending like some doctors. How I wish I lived in Florida, I would love to have him as my doctor. His positive outlook is comforting. God bless him and the selfless work he does.
I am sorry but there is no justification for the sky high prices that this women charges, she can half the price and still be making a huge profit on them If you were really about helping people you would keep your prices reasonable
Where do I buy this?
Only 6.1k viewers for this amazing roundup of current Parkinson's disease research! This is so informative and interesting! Thanks.
You can buy “hair growth” helmets with 200 plus 660 850 nm led units. They are around £60 to £100 GBPs. Some have pulse functions as well. Generally operate at 10 hertz not 40 (not sure what the clinical implication of this is).
I would also like to add that I think Dr. Oakham was incomplete in his discussion of impulse control disorders. Women especially develop a cinder my named myself, Martha Stewart syndrome. every woman in my support group develops the syndrome as they are having a disease longer. None of them are taking Agnes. All of them are and the dopa. The syndrome tends to fly under the radar since it is mostly compulsive cooking, compulsive, cleaning, compulsive, organizing, perfecting, crafting and inability to swish gears and stop perfecting something that doesn’t need to be perfected.it’s very disturbing and destructive in your life is a form of compulsions. Wonder why we’re always late? Because we can’t stop doing the thing we’re doing
I don’t criticize Dr. Oakham‘s presentation. I just don’t think it address the topic. I guess I was looking for strategies to having a positive attitude about your life with Parkinson’s. I wasn’t expecting a presentation about the same old, same old, how to deal with the symptoms of Parkinson’s. We can find that everywhere, Dr.’s presentations are one of the easiest to digest, but he did not in my opinion in the nitty-gritty how you cope with this disease, emotionally, and psychologically, and in terms of living a meaningful life and being the person that you want to be. I was excited to hear Dr.‘s presentation because it was a heart about where each feeling with. It is the way that we cope with this disease which is a series of losses. I generally do not believe that people who do not have Parkinson’s themselves can possibly no I just really like to have the disease and that would not be qualified to explain in a presentation how to maintain positivity in your life, 24 seven for the rest of your life save themselves at Parkinson’s. But there are some experts, including an especially Dr. Oakham, who I think her could pull it off. I think he should try it again along with some patients. this particular presentation, however, illuminated the problem that patients have with this disease. Most movement store specialist don’t understand the triable intertwining between life and Parkinson’s such that you can’t pull Parkinson’s and discussed separately. Most doctors treat symptoms but most patient of problems. We need more holistic top down perspective in research and treating patients and I think Dr. Oakham knows thisvery well and just was off the mark on the title. Perhaps the presentation was right the title is wrong.
Any summary available?
a clicking above reveals a transcript! thaanks
This is amazing , thank you so much , there are a new pair of glasses developed by scientists in the UK using 670 nm light that slows the ageing of the eyes for people of 40 years and older we have the details
Surprised she did not mention the Keto diet for Parkinsons in comparing diets
Fantastic presentation and brilliant questions from the audience.
11 minutes - maybe if the neurons die, they are gone and the Lewy bodies that were in them are gone too?
I want to appreciate Dr Madida on KZread for treating my Dad of his Multiple sclerosis and parkinson disease with their natural meds💊🌿🌿👌👌 ..
I was diagnosed with Parkinsons in 2016 and keen to see a cure. I was encouraged by the drug trials underway. However in reality, my drug treatment of co careldopa is still the only medication available for me and has been around for 60 years. I wondered why medical research is slow, this video highlighted that issue, the football stadium anology. My expertise professionally, is helping people who build software to move from waterfall sequence oriented development to leaner and agile iterative development, this type of thinking originated 25 years ago and has revolutionised software development. These techniques focus on prioritised work and fail fast principles operating within planning cycles maximising feedback loops. It strikes me medical research is desperately in need of such thinking and this video indicated research approaches need some new thinking. I have been using these techniques for 20 years (they have evolved hugely in that time) and are instrumental in successful technology companies eg spotify, Apple. Is Cure Parkinson's considering such approaches? Please refer to Agile Manifest, Agile Delivery, Lean Management as this is a huge, successful transformation in the tech sector.
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌👌
I really needed this! Thank you!
This was a great topic. Dr. Okum 😅is great at presenting positive strategies to treat PD symptoms but i was expecting strategies for coping with life when you are knowingly living with the disease. I don’t think a MDS can answer this.i think MDS need to learn this from patients. This is my niche. I was diagnosed 20 years ago at 46 in 2003, and i have been helping patients cope and MDS to understand what they dont learn in medical school for almost 2 decades. I would love to get into the nitty of coping & hoping, surviving and thriving on an episode of NSB.
Sorry to hear about your experience. I am a PD caregiver and observing that the management of the symptoms needs to be at multiple levels: biological (through meds) but also psychological and spiritual. It's making a great difference to my PD partner. Good luck to you on your journey.
Is it possible to get this medication now?
This is an existing anti inflammatory, anti asthma drug but this is a phase 2 trial to see if it can be repurposed for Parkinson’s. It is therefore too early to use it for Parkinson’s, but it is worth keeping an eye on this.
I'd like to see a comparison of whole foods plant based diets vs keto diets where both use intermittent fasting. Maybe the fasting is the most important...
Brilliant interview! Dr Okun is one of the best out there. I am following him on Twitter and his book on PD is extremely helpful. I wish more neurologists would be like him!
He's so off the mark. My life has deteriorated significantly since my diagnosis. If I went to that fortune teller I'ld be happier receiving the death card than that of Parkinson (and I don't suffer from depression). Perhaps he's referring to people with young onset Parkinson because i noticed Michel didn't bat an eyelid at his remarks. I can't believe how little he understands Parkinson's patients and he calls himself a neurologist and he's an advisor to the Parkinson's Foundation no less. This interview leaves me so despondent if the other advisors are like him. And why would he classify constipation and incontinence as motor symptoms?
That is very unhelpful comment. He has spent his carreer trying to help folks with PD. What a stupid thing to say 'I can't believe how little he understand' - don't be so rude, naive, negative and simplistic.
very encouraging
What about yoga?
Thank you for this very helpful and hopeful conversation. Nosilverbullet4pd interviews are a valuable resource for anyone interested in Parkinson's research and living well with PD.
I am 77 years old with parkenson for 10 years but i started medicine before few months carb dopa. I found taking medicine at night 10:00 om, Magnesium L treonate,0,5-1 mg melatonin Are all good for improve sleeping. Also exposing to sun light early morning before9 am , be active during day time all help me for good sleep. Decrease fluid intake later in the day and one capsule cranberry before sleeping decrease times go to toilet. These factors helped me to sleep 4-5-6 hours without sitting at night. The more active during the day i sleep longer.
😮😢😢😂
is it true trauma can trigger ICD's when on agonists ?
I’ve been using the red light therapy panel from Future Form Official, a company in Norway, and it's made a huge difference in my chronic back pain. My physiotherapist recommended it, and I was pleasantly surprised by how effective it is. The panel was reasonably priced, which is a plus. I've been using it for 20 minutes daily, and the pain relief is noticeable. Big thanks to everyone here for sharing such valuable information!
Oh my goodness, I loved this Thank you.
Absolutely brilliant. Love how down to earth this lady is and it’s the first time there’s been any suggestion that you could try and make one. A little project for my husband!
Do you have a return guarantee if the laser doesn't get the desired results?
Parkinson disease 🦠 🦠🦠is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain😊”…
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I’m thinking of getting this, but the price is a bit steep- is there a discount code that could help offset the cost ?
Amazing video, so thankful for finding this, thanks so much
Wow. 29:45 Frozen vegetables are bad, but fresh vegetables are good. Plastic bottles are bad. Dairy is bad. Loneliness is as bad for you as seven days of exercise is good for you.
I want you all to join me thank Dr Madida Sam on KZread for helping me with their treatment plan to reverse and cure my Parkinson disease🤢 I have been suffering from for 12 years, it is amazing how this I want you all to join me thank Dr Madida Sam on KZread for helping me with their treatment plan to reverse and cure my Parkinson disease🤢 I have been suffering from for 12 years, it is amazing how this treatment plan has changed my life for the better and I know that he can do same for you all too and that is the reason I am recommending him to you because his treatment works 100%✅.
excellent discussion on the history and science of cannabis.A wealth of information for interested listeners.
Thank you for this. My father is 79 (he has parkinson) I am going to discuss canabis oil with his doc. He sleeps very badly. So we maybe start with the oil. Greetings from Germany. In Germany canabis is partly legalized now since 1. april of 2024.
I was diagnosed 20 yesrs ago and compares to PD peers, am doing relatively well. (Most have passed away). I have followed my appetite, and for a long time eat a smaller, low proteins breakfast w/fats. I drink a lot of water. Im not hungry for lunch. Later in afternoon, want to eat a muffin. Then don’t eat much until around 11pm. I am hungry for salad and red meat, eggs. I was mostly vegetarian, but seem to need to eat bbq brisket. I don’t crave sweets anymore. I do crave crisp bacon. So i snack on that. Ive lost 40 pounds in 5 years. 2 years ago, got a puppy. I like functional exercise and destination walking. I dont drive and can walk to stores. I always feel like i should do better and eat 3 meals/day and go back to a hard gym workout-but I have less pain and better posture when my PT is on vacation. And although Im thin and my medical records say “frail” im solid muscle. Go up and down 6 flights of stairs quickly. Im watching this video and think instinctively on the right track.
Where can i buy cue
Thank you Dr. Tass for your ongoing dedication to get the updated model of this glove out to those who need it. I benefit from your prototype and remain hopeful for continued success. Peace and gratitude.
The Parkinson's gut connection is related to undigested proteins that get stored in the spleen and released years later. TUDCA is showing promise here as well as taurine due to the support of the bile function. When your body can't absorb vitamins clean up the gut. The amino acid Tyrosine is also effective in making dopamine available to brain and would look for patients to add a spectrum of amino acids and digestive enzymes to the diet. Methylene blue coupled with red light therapy is another way to jumpstart zombie cells.
I made it through about 30 minutes but I was completely lost so I gave up.
I want to appreciate Dr Madida on KZread for treating my Dad of his Multiple sclerosis and parkinson disease with their natural meds🌿💊🌿…
Bravo Cuz!
just an fyi, I find the infrared light/red light devices, caps and pads sold at much lower prices on Amazon work great.
Bit puzzled to hear that sugar isn't so bad for pd 🤔(minute 53 in the vid )
Ambroxol was briefly mentioned. Is it being used for Parkinson's treatment? It is available as an over the counter cough medicine but have the clinical trials for Parkinson's been approved?