I don’t criticize Dr. Oakham‘s presentation. I just don’t think it address the topic. I guess I was looking for strategies to having a positive attitude about your life with Parkinson’s. I wasn’t expecting a presentation about the same old, same old, how to deal with the symptoms of Parkinson’s. We can find that everywhere, Dr.’s presentations are one of the easiest to digest, but he did not in my opinion in the nitty-gritty how you cope with this disease, emotionally, and psychologically, and in terms of living a meaningful life and being the person that you want to be. I was excited to hear Dr.‘s presentation because it was a heart about where each feeling with. It is the way that we cope with this disease which is a series of losses. I generally do not believe that people who do not have Parkinson’s themselves can possibly no I just really like to have the disease and that would not be qualified to explain in a presentation how to maintain positivity in your life, 24 seven for the rest of your life save themselves at Parkinson’s. But there are some experts, including an especially Dr. Oakham, who I think her could pull it off. I think he should try it again along with some patients. this particular presentation, however, illuminated the problem that patients have with this disease. Most movement store specialist don’t understand the triable intertwining between life and Parkinson’s such that you can’t pull Parkinson’s and discussed separately. Most doctors treat symptoms but most patient of problems. We need more holistic top down perspective in research and treating patients and I think Dr. Oakham knows thisvery well and just was off the mark on the title. Perhaps the presentation was right the title is wrong.

Brilliant interview! Dr Okun is one of the best out there. I am following him on Twitter and his book on PD is extremely helpful. I wish more neurologists would be like him!

I am 77 years old with parkenson for 10 years but i started medicine before few months carb dopa. I found taking medicine at night 10:00 om, Magnesium L treonate,0,5-1 mg melatonin Are all good for improve sleeping. Also exposing to sun light early morning before9 am , be active during day time all help me for good sleep. Decrease fluid intake later in the day and one capsule cranberry before sleeping decrease times go to toilet. These factors helped me to sleep 4-5-6 hours without sitting at night. The more active during the day i sleep longer.

This was a great topic. Dr. Okum 😅is great at presenting positive strategies to treat PD symptoms but i was expecting strategies for coping with life when you are knowingly living with the disease. I don’t think a MDS can answer this.i think MDS need to learn this from patients. This is my niche. I was diagnosed 20 years ago at 46 in 2003, and i have been helping patients cope and MDS to understand what they dont learn in medical school for almost 2 decades. I would love to get into the nitty of coping & hoping, surviving and thriving on an episode of NSB.

@zostawkomentarz

2 күн бұрын

Sorry to hear about your experience. I am a PD caregiver and observing that the management of the symptoms needs to be at multiple levels: biological (through meds) but also psychological and spiritual. It's making a great difference to my PD partner. Good luck to you on your journey.

I would also like to add that I think Dr. Oakham was incomplete in his discussion of impulse control disorders. Women especially develop a cinder my named myself, Martha Stewart syndrome. every woman in my support group develops the syndrome as they are having a disease longer. None of them are taking Agnes. All of them are and the dopa. The syndrome tends to fly under the radar since it is mostly compulsive cooking, compulsive, cleaning, compulsive, organizing, perfecting, crafting and inability to swish gears and stop perfecting something that doesn’t need to be perfected.it’s very disturbing and destructive in your life is a form of compulsions. Wonder why we’re always late? Because we can’t stop doing the thing we’re doing

is it true trauma can trigger ICD's when on agonists ?

He's so off the mark. My life has deteriorated significantly since my diagnosis. If I went to that fortune teller I'ld be happier receiving the death card than that of Parkinson (and I don't suffer from depression). Perhaps he's referring to people with young onset Parkinson because i noticed Michel didn't bat an eyelid at his remarks. I can't believe how little he understands Parkinson's patients and he calls himself a neurologist and he's an advisor to the Parkinson's Foundation no less. This interview leaves me so despondent if the other advisors are like him. And why would he classify constipation and incontinence as motor symptoms?

@whosaysitmatters

6 күн бұрын

That is very unhelpful comment. He has spent his carreer trying to help folks with PD. What a stupid thing to say 'I can't believe how little he understand' - don't be so rude, naive, negative and simplistic.