The Parkinson's You Don't See: Cognitive and Non-motor Symptoms

Some of the first symptoms people with Parkinson's may experience are not visible to others. As Parkinson's progresses, cognitive, and other non-motor symptoms continue to be a significant aspect of living with Parkinson's. Joanne Hamilton, PhD, ABPP-CN, of Advanced Neurobehavioral Health of Southern California in Poway, CA, explains what to expect and how to distinguish symptoms caused by Parkinson's from those caused by medications. Her presentation for the Davis Phinney Foundation audience offers hope and practical strategies for understanding and managing cognitive and non-motor challenges.
This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation please visit: dpf.org/youtubedonation
0:00 Introduction
1:47 Recognize the symptoms, be an advocate for yourself and your loved ones
4:59 95% of people with Parkinson's experience cognitive changes
7:20 Executive dysfunction affects problem solving, planning, organization, decisions
10:28 Memory problems in Parkinsons are different than Alzheimer's
11:29 30-50% of people with Parkinson's experience some degree of depression
11:42 Suspiciousness, apathy, anxiety and lack of motivation are common
12:15 Movement disorder specialists can separate symptoms from side effects
12:57 Impulse control problems can be a side effect of medication
13:30 Sleep disorders can be aggravated by medications
14:32 Consult with your physician about over-the-counter drugs
17:46 Reduce stress to improve thinking and mood
19:03 Limit distractions and use memory aids, lists
20:03 Depression is a treatable condition
20:17 Exercise is essential for good physical and mental health
20:52 Care partners can schedule activities to help overcome apathy
23:37 Parkinson's symptoms are not limited to what we can see
24:40 Behavioral therapies and exercise can improve quality of life
25:15 Overall health provides strong foundation for coping with Parkinson's
25:28 Be proactive in communicating changes to your doctor

Пікірлер: 721

  • @RG-hf4et
    @RG-hf4et Жыл бұрын

    Patients with Parkinsons do much better under the care of a neurologist than other md's. As soon as my dad's hand tremors started, I got him to a neurologist. He has had Parkinsons for about 10 years & now is 90 years old. He is doing a lot better than some 70 year olds!!! I am in the health care field & understand Parkinsons very well....Also, most patients are slower in the morning. My dad's best time for md appointments is 1:00 pm. Then we go to lunch, maybe stop at Home Depot or Costco, we return home & he is ready for a nap. Don't overschedule & try to do 2 md appointments in one day unless they are in the same building. Costco & lunch are fun things after a doctor appointment. Sometimes he wants to do both. Other days if he is tired, we just do one. Be flexible as a caregiver.

  • @davisphinneyfdn

    @davisphinneyfdn

    Жыл бұрын

    These are really great strategies for care partners. Your dad is lucky to have you!

  • @RG-hf4et

    @RG-hf4et

    Жыл бұрын

    @@davisphinneyfdn Thanks for your reply. I am the lucky one. My dad has always been there for me & has been a wonderful father my entire life. I couldn't ask for better dad. I will do anything I possibly can to try to make his life easier & fullfilling for the rest of his days. I have been blessed & feel very,very fortunate to have him as my dad.

  • @user-bz1dg3dg3u

    @user-bz1dg3dg3u

    5 ай бұрын

    Mother is having parkinson for six good yrs.what is ur advice it get worsen daily

  • @dynoranch1205

    @dynoranch1205

    2 ай бұрын

    ​@davisphinneyfdn I'm 36 and just got diagnosed with it, it has started with my short term memory and my wife kept telling me it's fine, its fine your over worked, and stressed and I told her I'm not over worked and somethings off I need to get in and figure this out. We'll I'm kinda getting the answers to these questions.

  • @SimonRajan

    @SimonRajan

    Ай бұрын

    K​@@dynoranch1205

  • @farzan000
    @farzan0003 ай бұрын

    This Doctor is a fantastic professor! 👏👏 English is my second language and I have been having problem undestanding some Americans and British accents, but I understood easily 100% of what she said. Literally! She speaks standard English and should be a role model for all lectures who want to present an intelligible lecture on the any international arena!

  • @davisphinneyfdn

    @davisphinneyfdn

    3 ай бұрын

    Thanks for this comment! We'll pass along your feedback.

  • @farzan000

    @farzan000

    3 ай бұрын

    @@davisphinneyfdn It is appreciated! 👌🙏

  • @pattypeas2897
    @pattypeas289710 ай бұрын

    I was diagnosed with PD just over 5 years ago and this video explains most of what I personally have gone through. I shared it with my friends and family hopefully they get it and understand it a bit more . All you Parkies out there remember to take ur meds in time and get your buts out of bed stretch, move your muscles , get some sun on your face , drink lots of water and smile cause your not gonna let this PD own you !!!! Ok nap time 😊

  • @danielherlihy4685

    @danielherlihy4685

    8 ай бұрын

    Thank you so much for this information

  • @paullockton6005

    @paullockton6005

    7 ай бұрын

    Which video is mentioned in the comments and quotes

  • @gulserentekbas555

    @gulserentekbas555

    7 ай бұрын

    ,❤

  • @Rachel57294
    @Rachel57294 Жыл бұрын

    Thank you for your video. My father has Parkinson's Disease caused by Agent Orange while serving in Vietnam. One day my father stopped talking. He would just whisper. He whispered for about 4 months then stopped talking all together. I'd give ANYTHING to hear his sweet-caring voice. 😢 It's awful watching him choke and aspirate while he wastes away. We are doing everything in our power to keep him well and pain free. 🇺🇸

  • @williambarr2898
    @williambarr2898 Жыл бұрын

    No one has said what I deal with every day so well as this Lady has and made me understand it better. GREAT JOB.

  • @patriciatan1258

    @patriciatan1258

    Жыл бұрын

    O] I] {;;

  • @marylamb128

    @marylamb128

    Жыл бұрын

    How did they diagnose u did u have a tremor?

  • @terrieladow6423

    @terrieladow6423

    12 күн бұрын

    Helpful for my family and I. Finally found out 4 months ago. I've gone through so much and now it's maintenance. I'm 60

  • @bluecube7247
    @bluecube7247 Жыл бұрын

    Well, now I know... no longer in denial 🙌 😌 thank you for explaining everything we are experiencing because of Parkinsons... wow, jaw drop, sigh.

  • @vonshango6311
    @vonshango6311 Жыл бұрын

    PD impairs: *ability to think flexibly *ability to problem solve *ability to initiate behaviors *behavioral regulations *cognitive problems changes in personality 50% unusual anxiety 90% sleep disturbances autonomic system dysfunction *bladder *constipation *heat problem, temp regulation *saliva/tear production 30% pain syndrome that cant get figured out 5:00 95% experience cognitive changes (in thinking) 25-30% develop some frank dementia; impairments that (temporarily) disrupt routine daily functions. executive and organizational function language and communication executive dysfunction affects *problem-solving *planning/organization *decision-making *retrieval of words (ex when excited) *cognitive flexibility initiation/motivation to engage (ex exercise or socialize) visual spacial dysfunction *depth perception (bump into things) *hallucinations speech/language problems 10:22 memory, difficulty retrieving (ex old memories), but once retrieved does not go lost again as in alzheimers. 11:00 personality changes *greater irritability *difficulty with frustration *anxiety *lack of motivation 13:30 dopamine therapies can cause sleep disorders *random daytime sleep attacks (dangerous in car, at work, if standing/walking) mixed with anti-histamines can cause confusion and higher risk of falls 14:50 you are not crazy or lazy; you have PD 16:15 movement disorder specialists grasp the complexity of PD and how Rx impact it all 19:36 speech therapy 20:20 exercise is as beneficial as any PD Rx 24:22 early DBS treatment may lower need for dopamine therapies later which can relieve/benefit non-motor challenges. DBS deep brain stimulation involves a brain implant invasive surgery.

  • @ElinWinblad

    @ElinWinblad

    Жыл бұрын

    How is this different than adhd

  • @xyz-gx9oy

    @xyz-gx9oy

    11 ай бұрын

    Why does she keeps lifting up her arm every so often?

  • @lorieauchter5880

    @lorieauchter5880

    10 ай бұрын

    Thanks for putting this together. It helps to see it written down, especially in a list format.

  • @Katie-vy5rd

    @Katie-vy5rd

    7 ай бұрын

    Thank you so much

  • @Vbluevital

    @Vbluevital

    7 ай бұрын

    It is incredibly nice of you to do clearly outline thee entire content. Great Appreciation!!

  • @sandym4494
    @sandym4494 Жыл бұрын

    My husband was just recently diagnosed & this video explained it all… I had SO many questions! Thanks much… valuable info!

  • @AngelaMcCarthy-zz1fq

    @AngelaMcCarthy-zz1fq

    2 ай бұрын

    1:22 my son in 1:52 law just diagnosed

  • @AngelaMcCarthy-zz1fq

    @AngelaMcCarthy-zz1fq

    2 ай бұрын

    What can I do to help??

  • @RAINYDAYS00505
    @RAINYDAYS005053 жыл бұрын

    I have been struggling WITH everything you have talked about...I wish I had known this, you changed my life...I would just put myself down and say I must be lazy, stupid and a )big baby concerning pain). I was diagnosed two months ago....out of the blue. Thanks to my "abnormal movement's"!

  • @melissamelancon1153
    @melissamelancon11539 ай бұрын

    I was diagnosed last November, 2023. I am 70 years old and have suffered with anxiety and panic attacks all my life. I take meds for that. I am generally a fun happy person but lately I seem to be depressed terribly and I exercise every day, play ping pong, pool, foosball, take a rock steady boxing class twice a week. But my anxiety has really interfered with my daily functions, that scared feeling. I am going to seek help tomorrow to see a psychologist to get help for that. I love your book. It has helped me a lot. I have a sign on my bathroom wall that says rising helix because that is what I want to be for others! God bless you!

  • @davisphinneyfdn

    @davisphinneyfdn

    8 ай бұрын

    Thanks for your comment. We hope your visit went well and you found it helpful.

  • @user-mc1xh3yx4o

    @user-mc1xh3yx4o

    28 күн бұрын

    what about mobility?

  • @OriginalAcefanatic
    @OriginalAcefanatic3 жыл бұрын

    This is the best video I’ve found about Parkinson’s. I highly recommend it to anyone who knows anyone with Parkinson’s.

  • @sandrahelmantoler7098

    @sandrahelmantoler7098

    2 жыл бұрын

    Ok

  • @barbarasherrick3007

    @barbarasherrick3007

    2 жыл бұрын

    @@sandrahelmantoler7098 i agree. I dont know how many people ive referred to this video. My husband has watched it a number of times

  • @Kenfederalway

    @Kenfederalway

    2 жыл бұрын

    0+]700

  • @Kenfederalway

    @Kenfederalway

    2 жыл бұрын

    @@barbarasherrick3007 io99o0 ooo ooooooiioop8

  • @annetjiebothma1442

    @annetjiebothma1442

    2 жыл бұрын

    Hoe is pd se progmode

  • @judemorales4U
    @judemorales4U Жыл бұрын

    I was just diagnosed at age 69. Honesty I am scared. I have to say this speaker has done a beautiful job, making an advanced topic be comprehensive. Simply brilliant.

  • @timbiglow9676

    @timbiglow9676

    10 ай бұрын

    I had my family watch this as they didn’t believe I had PD as I’m tremor free. Hang in there, Jude.

  • @judemorales4U

    @judemorales4U

    10 ай бұрын

    @@timbiglow9676 thank you so much

  • @muniraddas9743

    @muniraddas9743

    10 ай бұрын

    Porn you guys can get the car 🎉 nmmmmmmm my uh hey hi hi uuuuuhhjhhhhhh😢😢😢

  • @user-vp8zv6yn9z

    @user-vp8zv6yn9z

    8 ай бұрын

    @@judemorales4Umy

  • @johnseymour1225

    @johnseymour1225

    8 ай бұрын

    4:26

  • @myheavenlynails
    @myheavenlynails Жыл бұрын

    I love this!! I have several clients with Parkinson but 1 with a rare Parkinson. I love working with all walks of life #elders #Parkinson #heavenlynailsonthegospa #love #blessings

  • @rbmedd
    @rbmedd4 жыл бұрын

    Should be required viewing for every PCP, neurologist, and psychologist who deal with maturing adults!

  • @michaeldickeos3783

    @michaeldickeos3783

    3 жыл бұрын

    X

  • @charmcoop1
    @charmcoop1 Жыл бұрын

    I was diagnosed about a year ago and have to say thank you for addressing these issues. Mostly people look for visible signs and the only ones I had were falling for no reason. You addressed nearly every symptom I experience.

  • @billzager4874
    @billzager48744 жыл бұрын

    Nothing short of brilliant. Twenty-six life altering minutes for some people. Limitless thanks, Dr. Hamilton.

  • @erinreagan1054

    @erinreagan1054

    Жыл бұрын

    Iiiiuiuuuuiiuuiuuuiuuuiuiuiuuiiuiuuiuiuiuuuiiuuiuuuuiui😅

  • @alisonseaman5027

    @alisonseaman5027

    Жыл бұрын

    i agree excellant

  • @symbyxbiome
    @symbyxbiome Жыл бұрын

    Great lecture. In our opinion not enough discussion and awareness of the difficulty of managing the non motor symptoms, and also the side effects of some of the medications for PD. Thank-you for posting this.

  • @TheOriginalKilamanjaro
    @TheOriginalKilamanjaro4 жыл бұрын

    Im 45 & was diagnosed this yr with this. My mood swings, & over all total body exhaustion is really hard to deal with. On maximum dose of medication for it & it helped the 1st month with my mind was clearer & i could think of each step to do thru the day. Now tho I'm already slowing down with thinking again. The anxiety & depression is just so crazy too

  • @roberttomasetti3654
    @roberttomasetti3654 Жыл бұрын

    Excellent presentation. I would welcome corresponding with you, Dr. Hamilton. My first indication of PD was "loss of smell."

  • @tedfuetsch7564
    @tedfuetsch75643 жыл бұрын

    I found this presentation to be precisely accurate. My wife and I watched it together. I worry that my current neurologist doesn’t seem interested in the non motor aspects of my experience.

  • @stevewinter1058

    @stevewinter1058

    21 күн бұрын

    Exactly! My movement disorder neurologist is at one of the top five Parkinson's treatment and research facilities in the Country. He is very well respected in the field when it comes to evaluating and treating the non-physical symptoms of the disease but has very little advice regarding non-motor symptoms. Fortunately, I have had a long-term psychiatrist treating my ADHD who has a lot of experience treating people with non-motor symptoms of Parkinson's.

  • @lyndafeig7465
    @lyndafeig7465 Жыл бұрын

    So thankful to be reminded of this reality with Parkinson's Disease. My husband was diagnosed in 2017. Like this presentation, reminders of the "hidden" realities of Parkinson's helps to remind me that my husband is not perposefully choosing to be difficult. I will share this with family and remind them once again that Chuck does not necessarily have control over his resistive responses toward us. Thank you!!

  • @marylyndurie7313

    @marylyndurie7313

    Жыл бұрын

    😊

  • @carolynsole4651

    @carolynsole4651

    Жыл бұрын

    I have exactly the same with my husband. It is very hard to deal with someone who also does not accept help and gets aggressive. Im 59 and he is 73 and we have been together for 34 years. It is his inability to accept his situation, our situation, that is so frustrating for both of us and his behaviour towards me is so different to what he projects to others even our children. I have been trying all of these techniques, I think this video will certainly be very useful for him too. Thank you.

  • @annesquire8616

    @annesquire8616

    Жыл бұрын

    @@carolynsole4651 l llll, m,😊😊

  • @nirmalakallianpur3191

    @nirmalakallianpur3191

    Жыл бұрын

    ? 😊😊

  • @awolff1342

    @awolff1342

    11 ай бұрын

    z and guide 😊 l

  • @MichaelHarrisIreland
    @MichaelHarrisIreland7 жыл бұрын

    This is the best video on Parkinson's I've seen because the person knows what they are talking about. And that makes all the difference.

  • @parusudi1

    @parusudi1

    4 жыл бұрын

    I wish someone had talked to me like this 32 years ago...

  • @evelina2363
    @evelina23633 жыл бұрын

    Excellent presentation. Unfortunately I confirm many neurologists treating Parkinson limit their work to prescribing drugs to address motor symptoms and don't ever inform the patient and the family of the other symptoms or drugs side effects, so when those happen they are even more terrifying to witness because they are completely unexpected. Actually, I feel often doctors do not even recognize non-motor symptoms as relevant symptoms that can greatly impact the quality of life and should be addressed.

  • @JohnJenner-pb6ue

    @JohnJenner-pb6ue

    5 ай бұрын

    18:20 18:21

  • @lourdesorellana9343
    @lourdesorellana93432 жыл бұрын

    I am very happy to heard someone can explain Parkinson disease so clear and even make us feel secure optimistic, thank you for an excellent explanation! I wish more people can listening specifically those like me that have a son 27 years old now going in our 5th anniversary with PD and discovering so many of the topic she explained this disease is not only a tremor or walking slow is a lot more and definitely we all need to be educated

  • @davisphinneyfdn

    @davisphinneyfdn

    2 жыл бұрын

    Lourdes, I'm so glad you got value out of this presentation. We are al about continuing to educate the community on ALL of the symptoms of Parkinson's, not solely the most commonly represented. I hope you continue to find our content valuable.

  • @ellenplotkin8124
    @ellenplotkin8124Күн бұрын

    Great speaker, teacher and clarifier.

  • @16borabora
    @16borabora6 жыл бұрын

    2008 I was diagnosed overactive thyroid problem 8 years ignore this disease 2016 February one day I was watching tv suddenly my both hands was numb I couldn't open my hands I was panic suddenly hear massive sound from my head it was mini stroke my tongue was shaking my face was red ! My thyroid level was high and I'm diagnosed Parkinson disease ! Silent stroke cause Parkinson disease ! Suddenly happened I was shocked unbelieveable

  • @kennethnoseworthy8125
    @kennethnoseworthy81252 жыл бұрын

    A man I very much admire has Parkinson’s. I have been trying for many years to explain my thoughts to him. After watching this, it o cures to me that as important as he has been in my life. I may actually be aggravating his situation by trying too hard to explain how important he has been in my life. This video explains many things that I really didn’t understand about what he going through.

  • @docrexaudilover5974
    @docrexaudilover59744 жыл бұрын

    She managed that I kept on listening until the end of the presentation. It lasted a very long while because I was stopping the video and made plenty of notes. I learned a lot. Awesome presentation. Thanks a lot.

  • @debraj819

    @debraj819

    2 жыл бұрын

    Thank you for this video…can you provide one for Parkinson’s without tremors?

  • @fauzanahmad3943

    @fauzanahmad3943

    2 ай бұрын

    Loll same. Double sided

  • @angelacharlebois6567
    @angelacharlebois65673 жыл бұрын

    Being a Health Care Worker to someone with Parkinson's, i found this to be the most informative video i have seen. She is so well spoken. I am going reccomend this video to anyone i know affected by this complex disease.

  • @barbaracollier8751

    @barbaracollier8751

    2 жыл бұрын

    Excellent! I fear I haven’t been diagnosed with PD. I plan to bring it to my physician’s attention as well as my family’s. I must be pro-active.

  • @waltwiesenhutter2784
    @waltwiesenhutter27844 жыл бұрын

    Never realized all my symptoms of other things are really part of Parkinson’s. She really has researched Parkinson’s.

  • @fransdecock8933
    @fransdecock89332 жыл бұрын

    Frans De Cock I was diagnosed 10 Years ago. In a few minutes now I recognised my own non motor disorder. A partnerrelation meanwhile ended because of compulsiivedysorder and family discussions about mental health lay behind.Watched twice in tears. Now time to move on, exercise and work, challenge together.

  • @davisphinneyfdn

    @davisphinneyfdn

    2 жыл бұрын

    Frans, so glad you found value in this video. I hope you realized you are not alone! Don't hesitate to reach out should you have any questions.

  • @SamuelJLupica
    @SamuelJLupica Жыл бұрын

    Good friend of mine was diagnosed recently and as those of us within his inner circle prepare for the future this was a truly helpful presentation… thank you 🙏

  • @bonniekerr6890

    @bonniekerr6890

    Жыл бұрын

    Bless you & your friends for making a plan to help. This man is very fortunate.

  • @shanemckenzie8681

    @shanemckenzie8681

    9 ай бұрын

    Bless you. Parkinson’s people are the best people. They always have the biggest heart.

  • @marykaymorley8551
    @marykaymorley85514 жыл бұрын

    Thank you for putting this on You Tube. My husband has Parkinson's. This explains so very much. Thank you.....

  • @ravenelder7325
    @ravenelder73253 жыл бұрын

    Wow. This might be the most helpful video I've seen so far. She's amazing. She explains things so perfectly and I felt like she was speaking my story.

  • @Anonymous-lq2bs

    @Anonymous-lq2bs

    3 жыл бұрын

    Thanks, my mom has Parkinson’s and I’ve been looking for a solid video to educate myself.

  • @lewiswazniac8977
    @lewiswazniac89772 жыл бұрын

    I would have benefited from this 10 years ago.

  • @user-ds8if9fk5q
    @user-ds8if9fk5q11 ай бұрын

    Thank you for that! I’m 38 and I have been told that it’s probably Parkinson’s! Some of the things that you’ve mentioned resonates for well. I’ve always been very healthy, and always been strong guy. Many of the points that you have pointed out have not been addressed with my movement specialist, especially the pain in different parts of my body that have been undiagnosed. No doubt you have truly taken time to think about and analyze this disease. I’m the baby of a eight children and no one else has this disease but me. I appreciate that you truly are trying to understand and sympathize with peoples feelings. Even though it doesn’t seem that you are coping with this disease it’s nice when someone tries to empathize with you. Thank you again,

  • @davisphinneyfdn

    @davisphinneyfdn

    11 ай бұрын

    We are here for you! If you haven't registered already, consider signing up for updates and to receive links for our monthly Meetup: davisphinneyfoundation.org/event/webinar-series-living-with-parkinsons-meetup/

  • @JohnJenner-pb6ue

    @JohnJenner-pb6ue

    5 ай бұрын

    Hl

  • @thepinksidewalk

    @thepinksidewalk

    27 күн бұрын

    Hi, very nice presentation. I am 84, and in the “do I or don’t I have Parkinson’s”. I have gone to 4 movement neurologists/Dr’s and are 2 to 2. NEGATIVE DAT scan. I tend to be, I don’t have or I am in denial! I am doing ok, normal disintegration we all have. Trudge on, my main problem is “organization”. Bless you, and I am sure you are doing well. SteveH

  • @victoriakendrick6906
    @victoriakendrick69063 жыл бұрын

    I found this very useful and interesting.....right to the end of video.Im a part time support giver for a friend who is 7yrs down the line with Parkinsons Disease.I recognise much of what was discussed.This learned woman put it into words for me.

  • @melvaperunko5902
    @melvaperunko59023 жыл бұрын

    Thank you for this! I’ve experienced all of these symptoms but couldn’t relay to my neurologist or family. I just thought I was losing my mind. I’ve now discussed this with my spouse and that’s a big help. The most stressful part of PD are family members that say “Well you don’t wobble all around like Michael J Fox so the diagnosis is wrong”. These ☝🏽are the unseen issues that are difficult to deal with.

  • @Fred-gt7gl
    @Fred-gt7gl7 жыл бұрын

    This is a very good talk. Thank you for posting it.

  • @nourahk3262
    @nourahk32623 жыл бұрын

    Thank you for explaining this!

  • @heleningvalson2003
    @heleningvalson2003 Жыл бұрын

    This video is filled with helps for a Parkinson’s caregiver. She understands the problems very well.

  • @frederictudor3882
    @frederictudor38823 жыл бұрын

    Wry clear and rational presentation recognizing many issues of PD.

  • @Cruella-Deville
    @Cruella-Deville3 жыл бұрын

    you are a lovely person ,so many things i recognise with my Parkinson’s

  • @riverbender9898
    @riverbender98984 жыл бұрын

    Excellent information! Thank You.

  • @user-xo9jn4ph7j
    @user-xo9jn4ph7j2 ай бұрын

    She is very good and explains the hidden side with solutions I'm sure she's been inside brain

  • @jalang63
    @jalang632 жыл бұрын

    Great instructional presentation. I sent to my immediate family once I was diagnosed. This explains the internal symptoms

  • @SirGeraint
    @SirGeraint8 жыл бұрын

    EXCELLENT video. The best I have seen so far.

  • @averyholmes1790

    @averyholmes1790

    4 жыл бұрын

    4+

  • @maryfitzpatrick6331
    @maryfitzpatrick63314 жыл бұрын

    This is an excellent presentation especially for patients and their families recently diagnosed with PD.

  • @hettieels5540

    @hettieels5540

    Жыл бұрын

    Thankyou 💕

  • @cosmichealth3907
    @cosmichealth39072 жыл бұрын

    Thanks...brilliant presentation Along with the diet , vitamin and minerals have played a huge role in the recovery of clients...

  • @jvargas454
    @jvargas4544 жыл бұрын

    Thank you, I found this very useful. Three years with PD.

  • @carlpeterson7812
    @carlpeterson7812 Жыл бұрын

    Some can't handle the struggles I am experiencing, I'll die alone.

  • @salmailyas7760
    @salmailyas77603 жыл бұрын

    I work with people with parkinsons and dementia and this is very interesting and worth watching and learning everything she said is spot on its very hard for someone to live a normal life and its heartbreaking to watch someone with the both parkinsons and dementia it breaks my heart xxx

  • @kathysmith8330
    @kathysmith83306 жыл бұрын

    And here I thought I was just turning into the laziest woman in the world! I've had the strange gift of this diagnosis for two whole weeks. I'm the same person I was before, except I've lost the comfort of my denial. This talk has given me hope.

  • @ambriadaniels-dovolis7496

    @ambriadaniels-dovolis7496

    4 жыл бұрын

    Good luck Kathy

  • @gregorymalchuk272

    @gregorymalchuk272

    4 жыл бұрын

    Has medication helped at all?

  • @mombotron58

    @mombotron58

    3 жыл бұрын

    Me too! I used to be very physical. I miss it.

  • @drmarkusmaur6745

    @drmarkusmaur6745

    3 жыл бұрын

    This may help, kzread.info/dash/bejne/k5-po7evidPAZrg.html

  • @Thrivebeyond65
    @Thrivebeyond653 жыл бұрын

    Thank you, for this fabulously informative video about the many complications of PD I had no idea about.

  • @SlothyWoffy
    @SlothyWoffy4 жыл бұрын

    Best parkinsons video I've seen yet. She done great. What an amazing speaker.

  • @kerryevermann1626

    @kerryevermann1626

    3 жыл бұрын

    Ll

  • @sandrafox367
    @sandrafox3674 жыл бұрын

    Thank you clarify cognitive issues our gang of specialists never address or mention.

  • @elliekahn1681
    @elliekahn16814 жыл бұрын

    As a care partner, it has been difficult for me to be as helpful as I can. Thank you for your detailed explanations along with ways to handle/deal with them as a partner and for my husband as well.

  • @skylerstraight7697

    @skylerstraight7697

    3 жыл бұрын

    Can i ask you question?

  • @drmarkusmaur6745

    @drmarkusmaur6745

    3 жыл бұрын

    This may help, kzread.info/dash/bejne/k5-po7evidPAZrg.html

  • @davidik1

    @davidik1

    Жыл бұрын

    @@skylerstraight7697 qqqd D C C Cccccc

  • @jeanettesdaughter
    @jeanettesdaughter4 жыл бұрын

    Families ALWAYS develop denial. So glad she included the reaction responses of “ normal” people without the diagnosis. It puts the people diagnosed in a much more humane context. We all have brain tics, n’est ce pas? I like her humble approach to conditions of rather hard facts that can be harsh and disruptive to live with.

  • @dmitchell9453

    @dmitchell9453

    Жыл бұрын

    Excellent webnair about general "What is Parkinsons

  • @seanmacentee7214

    @seanmacentee7214

    Жыл бұрын

    Loss of p0wer in my legs

  • @seanmacentee7214

    @seanmacentee7214

    Жыл бұрын

    Killexiaw

  • @christopherwadsworth1930

    @christopherwadsworth1930

    Жыл бұрын

    ​@@seanmacentee7214I

  • @Vbluevital

    @Vbluevital

    7 ай бұрын

    Yes indeed, it is both heartbreaking and difficult.

  • @rosemaryclarke6250
    @rosemaryclarke62503 ай бұрын

    Excellent presentation. Thank you

  • @judyrichardson5837
    @judyrichardson58373 ай бұрын

    Multiple Sclerosis also has Cognitive Dysfunction. I've had MS 44yrs + cog issues are my main symptom. Very hard to get help for it, even from MS Queensland. Luckily found 2 psychologists over the years who have really helped me with helpful coping methods + also just to let me talk out my anxiety in dealing with the frustration! Learn about it and be yr own advocate. ❤

  • @davisphinneyfdn

    @davisphinneyfdn

    3 ай бұрын

    Thanks for sharing your story. We're glad you found helpful support!

  • @onfriendsd
    @onfriendsd4 жыл бұрын

    Thank you for the presentation . Helped me and my family

  • @ingridakerblom7577
    @ingridakerblom75774 жыл бұрын

    Studying to be a practical nurse, this was really helpful! Thank you!

  • @luzangeles3829

    @luzangeles3829

    3 жыл бұрын

    ifmy parkinsonsdisease deterioted, do i accting like crazy do i acct violence? tnx.

  • @stevenkingsley101

    @stevenkingsley101

    3 жыл бұрын

    Help us come

  • @judymccarthy9423
    @judymccarthy94234 жыл бұрын

    Thank you so much for this talk. Exercise so important.Yes. So many great tips and information. Helps me to know what to do for my husband. Staying active. YEP!

  • @BruceHulslander-wt6dw
    @BruceHulslander-wt6dw3 ай бұрын

    Best Parkinson disease presentation ever. Now showing it to all my patients and their families who deal with the disease.

  • @eileenancona8374
    @eileenancona83742 жыл бұрын

    So informative & clearly stated. Thanks for always helping.

  • @wilmabozenhardt5175
    @wilmabozenhardt51752 жыл бұрын

    This is the best info on non motor symptoms of P D I hv ever heard. It is concise and clear and gives help to caregiver in learning how to respond and help your loved one.

  • @Jaylo1954
    @Jaylo19544 жыл бұрын

    Wonderful video!

  • @debargus9196
    @debargus91964 жыл бұрын

    Thank you so much for your Insight and knowledge. I have nursed for 42 years. Your sound advice and humanity is absolutely welcome and astounding.You are a great listener and I will practice your kindness in my work.

  • @gayle8962
    @gayle89623 жыл бұрын

    Awesome! Thank you so much

  • @johnnyaranda605
    @johnnyaranda6053 ай бұрын

    ❤thanks for the update 🎉❤❤

  • @susanwood8086
    @susanwood80864 жыл бұрын

    you are totally spot on x

  • @LSander153
    @LSander1537 жыл бұрын

    Extremely well done presentation. This lady knows her stuff.

  • @jimgallagher5902

    @jimgallagher5902

    4 жыл бұрын

    Agreed 100%. I have frontotemporal dementia and I wish I had seen this video before I got the diagnosis.

  • @timwheeler7545

    @timwheeler7545

    4 жыл бұрын

    I am having my daughter and son-in-law (we live together now for financial and mental support.) watch this video so that we can work together and communicate better concerning my Parkinson’s.

  • @loismorehouse137

    @loismorehouse137

    4 жыл бұрын

    Lou Sande

  • @elisabethmorre-deen3506
    @elisabethmorre-deen3506 Жыл бұрын

    Thank you. Makes so many moments clear for me.

  • @Nebulagalaxy2525
    @Nebulagalaxy25254 жыл бұрын

    Excellent presentation. Leaves one without questions. Thanks

  • @tajvargoudarzi7754

    @tajvargoudarzi7754

    3 жыл бұрын

    Please please

  • @vggv1394
    @vggv13944 жыл бұрын

    Excellent!

  • @dalehallam2578
    @dalehallam25784 жыл бұрын

    This will educate my family

  • @davesmithshaman23
    @davesmithshaman238 жыл бұрын

    Thanks for this presentation very informative answered a lot for me and my Parkinsons issues

  • @GulfVet213
    @GulfVet2139 жыл бұрын

    Excellent presentation ! Helped me understand much better.

  • @kathleendowner6506
    @kathleendowner65063 ай бұрын

    Great video

  • @langatemmanuel7359
    @langatemmanuel73594 жыл бұрын

    Great teacher

  • @wholefamilyproducts4206
    @wholefamilyproducts42062 жыл бұрын

    Wonderful talk.

  • @ronloom3757
    @ronloom3757 Жыл бұрын

    Packed with information and so very helpful.

  • @jesustornero
    @jesustornero4 жыл бұрын

    Very informative. Thanks you. :)

  • @waiyanwong1964
    @waiyanwong19644 жыл бұрын

    Excellent lecture. Very useful info

  • @terikc2012
    @terikc20127 жыл бұрын

    I was just diagnosed and this really fits me to a T. Best video I have watched so far.

  • @lahoucine66

    @lahoucine66

    7 жыл бұрын

    good news for you . vitamin b1 Benfotiamine reverses parkinson's .

  • @rogueveteran77

    @rogueveteran77

    4 жыл бұрын

    Stop with the BS please

  • @rochellekovar8764

    @rochellekovar8764

    4 жыл бұрын

    @@rogueveteran77 ANCD Andshajai3.

  • @edraymond4338
    @edraymond4338 Жыл бұрын

    Excellent. I learned a lot!

  • @ronmclanahan9320
    @ronmclanahan93204 жыл бұрын

    Very informative !

  • @junkantiques
    @junkantiques Жыл бұрын

    Excellent information. Excellent speaker.

  • @ShinobiEngineer
    @ShinobiEngineer7 жыл бұрын

    Thanks a lot for this upload! A family member was diagnose one year ago and this video was very helpful.

  • @Frank-bz2ub
    @Frank-bz2ub3 жыл бұрын

    Thank you for this video it is very informative !

  • @cathleeneichhorn9358
    @cathleeneichhorn9358 Жыл бұрын

    I was diagnosed with PD 9 months ago but I know now I had symptoms starting about 5 years ago. My tremor is mainly only in my left hand so not a big problem when I am not stressed. I used to be very organized and would enjoy taking on projects. Lately I have given up my volunteer position because I don’t feel I can do a good job any more. This video helped me immensely to understand some of the symptoms I was not aware of.

  • @patricianorman7302

    @patricianorman7302

    Жыл бұрын

    One of the most difficult[t symptoms is speech and the loss of speech or jumbled speech and not being understood It means I have to carry note paper and trying to get understood . The problem most of life is done at a cracking pace from the supermarkets to getting problems fixed. It is alright if you have someone who does not work that can go with you

  • @rosebowala8547

    @rosebowala8547

    Жыл бұрын

    Thank you very much madam

  • @garyyoung1141

    @garyyoung1141

    Жыл бұрын

    😅😅

  • @garyyoung1141

    @garyyoung1141

    Жыл бұрын

    😊

  • @subh1510

    @subh1510

    Жыл бұрын

    Did you have sleep problem fatigue or smell problem or constipation before any motor symptoms.

  • @jo-annchase3529
    @jo-annchase35299 ай бұрын

    Great 🎉presentation 👏 👍. Thank you very much.

  • @anthonychristian8030
    @anthonychristian80304 жыл бұрын

    Very valuable information helps me understand as a Boxing coach

  • @markkoons7488
    @markkoons7488 Жыл бұрын

    Helpful. Thank you.

  • @suzanwilmshurst3020
    @suzanwilmshurst3020 Жыл бұрын

    This is great. I was beginning to think I was losing my mind prior to seeing this. Mood regulations, sleep issues, personality changes and cognitive etc were really worrying me

  • @davisphinneyfdn

    @davisphinneyfdn

    Жыл бұрын

    Suzan - Yes, unfortunately, it is common. I'm sorry you are experiencing these symptoms, and I hope you will take a few ideas from this talk and see if they work for you.

  • @silverace08
    @silverace083 жыл бұрын

    superbly explained-goes into very useful discussion of parkinsons aspect that are generally ignored but vital to wellbeing

  • @mosecall9046
    @mosecall90466 жыл бұрын

    I just subscribed hope you do more videos on different illnesses you are a good send of information and mindset you are so beautiful inside and out your way of saying what is fact is very nice and whoever needs information about this will get it good bless you and love your videos

  • @maryedgerton9183
    @maryedgerton91832 жыл бұрын

    This is such an informative presentation which we have shared with family and friends to help them understand what their loved one may be experiencing. Thank you!

  • @pberndt33
    @pberndt339 жыл бұрын

    I live with PD and one of the hardest things is family gatherings for me like holidays. The hard thing is that feeling of pity that comes from family members you have not seen in awhile as they watch you tremor, eat, walk and so on. The facial expressions and stares make the holiday not quite as enjoyable. I am happy to see them but I have to keep reminding myself its they who have the problem not me.

  • @susiepoo51

    @susiepoo51

    4 жыл бұрын

    pber57 Imagine if it was one of your relatives with PD. Knowledge is power, and anything that is new to us is new to us, and we don’t know how to respond. Just a thought. I’m sure they must not be aware of their facial expressions. If they did I think they would try and change it. Anyone with staring problems should be talked to. I think if we were more open with each other, it would be so much easier. Maybe explain to them about your general issues, and I’m sure they’d be less curious and more relaxed in your presence. Blessings

  • @henrilou

    @henrilou

    4 жыл бұрын

    @@susiepoo51 I totally agree with that..I have PD...but before i had it I didn't have a clue...I have a friend who has Rhemutoid Arthritis..before I knew her I thought it was creaky joints..its not its pain..all the time..but she complains that no one knows...of course not..why would they...I don't blame people for not getting what is often an invisible illness...on the other hand there is nothing wrong with explaining..not lecturing..and informing people about this...most people think PD is tremors..and we all know..at least the PD people and folks who live with them that is just one part.so Pber57..it is what it is..enjoy yourself..live your life..and like the tree who has a root that stops working find a new path..be an advocate...and tell your relatives about what PD is...and what you are doing in your life to try..against ridiculosuly difficult odds to make it better...good luck to you

  • @timothymason6783

    @timothymason6783

    3 жыл бұрын

    Doctors do no want to hear , I read, or I saw this video. I was told 6 years ago I was to young for l dopa. I take Klonopin for the anxiety. I also have spinal stenosis with extreme pain. I have been prescribed several SRI and Tricyclics and wind up in the ER with serotonin syndrome. Where do I go from here??????????

  • @bikerslow2598

    @bikerslow2598

    3 жыл бұрын

    May be be upfront about this. My dad just got diagnosed and I'm.sire he won't want any pity looks! I admire people who manage to stay strong. Live well and thank you for the comment.

  • @andrejackie1122

    @andrejackie1122

    3 жыл бұрын

    Herbal treatment is 98% guarantee for disease/ viruses & cancer cure, the reason why most people are finding it difficult to cure these disease/infection is because they believe on medical report, drugs and medical treatment which is not helpful to cure it. Natural roots/herbs are the best remedy which can easily eradicate health related issue totally. that am very sure off, because I was cure from 6years prostate cancer, via herbal medication from Dr.hopkins.. for more information about virus ilness or any other incurable illness write Dr. Hopkins for any health challenge E-mail : DR.HOPKINSHERBALCURE00@GMAIL.COM you will be amused yourself..

  • @kathleendowner6506
    @kathleendowner65063 ай бұрын

    Thankyou