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  @alexhiller30883 ай бұрын

  surveillance

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  @bollweevil81125 ай бұрын

  Skip to 12:00 , the intro is extremely long

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  @GriefMuse5 ай бұрын

  I'm sorry but so much of the language and information used in this presentation is beyond outdated. You really should not be making general biases about autistic people with phrases like "lack empathy and imagination" not only is it dehumanising, it's incorrect. Also doubling down on wanting the name Pathological Demand Avoidance to remain unchanged while most of the PDA community is very vocal about the name being inappropriate and harmful, and a desire to see it changed. I feel like very few individuals actually suffering from PDA were consulted about this presentation, and while I'm sure any parent or partner seeking information about PDA may find this useful, as an actual PDA sufferer myself I felt it lacked any real understanding or empathy for what the condition is truly like to live with, and almost all of the struggles were generalised or glossed over, with very little detail given to how these symptoms manifest in everyday life. Instead of hearing about how it appears to the concerned mothers of America, I would have much rather heard the accounts from someone who actually exists on that spectrum and can speak from their own lived experiences. I do appreciate the intention and effort made to educate people about PDA, just wish the delivery was enacted with a little more due care for the people it will directly effect.

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  @moldovan20352 ай бұрын

  Very much agreed; at the same time, Diane Gould is one of the versatile and adaptable professionals, so I think she does deserve some understanding; she herself is constantly learning about PDA, so I truly hope that she will continue to improve her linguistics as well. I also agree with your stance against the pathological terminology; I also hope that it will eventually be changed to persistent drive for autonomy or something similar at the direct and clear recommendation of autistic PDA-ers (I am one of them 🙂) If you want more details about this, Harry Thompson is wonderful and he is also an autistic PDA-er who, for the time being, also uses the term "pathological" for lack of a more encompassing term, and he very clearly explains why. I am in the process of writing a paper about this exact same issue: to use 'pathological' or not to use it? We definitely need more input and suggestions for a term that actually combines this uncontrollable drive with autistic PDA descriptors by ourselves, not just by outsiders/clinicians.

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  @lanni8224Ай бұрын

  👍it’s a start! Not everyone is going to pick apart this , just a general idea of PDA is better than not knowing PDA. Plants a seed . People are where they are 🩷🩷

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  @lanni8224Ай бұрын

  @@moldovan2035so many more videos out that are better for certain reasons. But it’s good for people to stumble upon PDA videos / this could be valuable step for a newbie .

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  @moldovan20359 күн бұрын

  @@lanni8224 By being lenient with those who still have a hard time getting their minds around this (especially professionals), we are just delaying an acknowledgement and faster steps towards changing perspective while PDA-ers continue to suffer. If you cannot help, don't say anything; don't find excuses like "people are where they are"; being complacent doesn't help those in pain.

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  @claireseymour49025 ай бұрын

  So, so, so, so, helpful! Thank you very much!

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  @TheGenbox25 ай бұрын

  One pov that may be controversial. Don't ask an Autistic person what you can do for them. (to an adult) It presumes an inability/disability and infantilise them. Autistic folk, like all adults, can ask (or learn to ask) for what they want, or start a dialogue of adult negotiations.

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  @mikiavidan508 Жыл бұрын

  How has this only got 45 views 😳

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  @keithharrison5268 Жыл бұрын

  Thank you so much for your presentation. I am a 65 year old women who has PDA and I have not been diagnosed. I really recommend Harry Thompson. He explains it so well. When he comes to you he will be really good. His You Tube videos help me. Your talk will help. I grew up undiagnosed and have been married for 37 years and my husband gets exhausted. I have two neurotypical grown up children and my PDA exhausts them. I also have two grandchildren and they don’t understand what is wrong with me. Appreciate you getting talked about PDA in America ❤

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  @Minky2017 Жыл бұрын

  I don't believe PDA is autism. It's parallel to the spectrum but has too many distinct differences so general autism diagnosis becomes impossible which comes before a the PDA profile.

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  @meekos6997 ай бұрын

  PDA is really Autism. I’m PDA, my sister has a classic Autism. I don’t love eye contact, but because I can read social cues, I’ve always given it. I had Hyperlexia, echolalia, a speech delay, memorization of facts (people were my first special interest, but I have others that are more sterotypical too), extremely picky eating. Undiagnosed Autism RUNS in my family. My Autism likes routine, but I can’t follow any routine set in place by someone else and then my routines become a demand. PDAers have better social skills and understanding, but we still take things literally sometimes. My husband is an Aspie and he said he knew I was Autistic once we moved in together- I’m just really high masking because I’m PDA Autistic. Apparently people in my life knew I was Autistic but I didnt 🥹

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  @etcwhatever7 ай бұрын

  ​@@meekos699yes! Just because we can do things a classical autist cant...doesnt mean we feel confortable. I felt really identifyed with the eye contact thing. I can do it but inside my toughts are going at 10000 miles per hour. I dont like it, it makes my heart pound.

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  @moldovan20359 күн бұрын

  I would say do more research.

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  @Minky20177 күн бұрын

  @@etcwhatever you all sound exactly like everyone else in this world. My friends and family try to convince me that I'm autistic but I swear everyone is. I think it's just a part of being a human.

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  @Minky2017 Жыл бұрын

  I couldn't even get through the first 5 minutes. Not a smooth execution. The topic is great, the execution was terrible. Try adding people talking when talking instead of just a screen of words. Mix it up please.

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  @M.Shepardbee2 жыл бұрын

  Logically applied Emotional intelligence . If this then that. If you treat others how you want to be treated, then you can navigate them as a person. If most people think your different, then most people are common If most people are common then common sense is what they follow. If your funny/liked/useful then most people will make exceptions/less demand If the above then slips in apperence/behavior will be the exception that makes the rule. Anxiety is not right. Its something else.

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  @M.Shepardbee2 жыл бұрын

  Also, things that are unpredictable levels rhe playing field.

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  @M.Shepardbee2 жыл бұрын

  Hmm. Sensitive to outside emotions.. hence sensitive the feeling of anxiety. Because.. if it were anxiety.. I know people with anxiety. They would do what you say if they knew it was possible to avoid that anxiety.

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  @M.Shepardbee2 жыл бұрын

  Also its adding human qualities to inanimate things. That way it takes the negativity away from people.. because ultimately your feelings or way of life are not for them to manage, therefore you can't hold them accountable for how you feel. Like everyone, know that the issues are more woth social rules. They are taking the cut across the grass because everyone else is... your walking around the block because.. its not their fault. So even if they gang up on you... they are just collectively following the path of least resistance.

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  @CarollnnАй бұрын

  You really like to hear yourself talk. I hope what you’re saying means something to you. It’s certainly not clear or logical.

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  @M.ShepardbeeАй бұрын

  @@Carollnn I was told that I was being rude. It does make sense to me. I do over explain so that if someone really wants to understand it's there for them. I'm sorry you do not and hope you have a wonderful day.

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  @artisticendeavorsemmorris.31652 жыл бұрын

  Awesome video:) I have Asperger’s and I am also transgender:) So glad the world is bringing more awareness to this:) I remember the days where some told one you don’t know if you are transgender because you are on the spectrum. It’s like denying who you are. In reality those are 2 beautiful qualities to have. It’s a shame the neurotypical world doesn’t appreciate it very much.

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  @rebeccamouse92943 жыл бұрын

  People WITHOUT ID/DD are free to make unhealthy choices, and they often experiences the consequences of such choices such as obesity, diabetes, fatty liver disease, joint damage, sleep apnea, and heart disease. We often have higher expectations for people with ID than for neurotypical people. On the other hand, neurotypical people understand the risks and consequences more fully than people with ID, so their choices are more fully informed. Where does Dignity of Risk enter into this calculus? This needs to be wrestled with in the ID/DD field. Even a simple awareness by PSWs and case managers that their clients are often expected to live by different expectations, creating a life lacking in the richness that we take for granted. This must be explored an addressed by ID academics, support workers, educators, ethicists, legal experts, and guardians in conversation with self-advocates. We cannot expect more of people with ID than the average person expects of themselves.

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  @jhonmacardtuf20264 жыл бұрын

  Mi hija no tomo leche materna... Y tiene 3 años y tiene autismo

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  @angelbalbin34942 ай бұрын

  😮

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  @bellesativa5 жыл бұрын

  Useless info, Medicaid does not pay for custodial care and companionship only for about 3 to 4 hrs of care per day even if you are providing 24/hr care, especially with all night sundowner's syndrome patients. Being available against risk of falls and injuries are not part of personal care services. These days, people who work in a burger joint make more money than a person helping with toileting for dementia patients.

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  @michelleborden57105 жыл бұрын

  That's a bunch of BS! This is just a study to render people of color retarded, so white people can be more or seem more superior than other people of different races.😡

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  @tootler236 жыл бұрын

  Wonderful. :)

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  @l3berr0ots27 жыл бұрын

  You subscribe to me and I subscribe me to you

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  @tracywhite463212 жыл бұрын

  A great video ppresentation!

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  @AdonisReddick12 жыл бұрын

  I made a site

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  @AdonisReddick12 жыл бұрын

  I would like to help how do I get on in mo.

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  @patrickojok949612 жыл бұрын

  Inspirational words from people of diverse academic backgrounds!