Thanks for this video. I know it’s been years since you posted but I was just DX CES via MRI. Just wondering if constipation is caused by this?
@landerkazama92995 күн бұрын
In Spain, research is being carried out on how to regenerate nerve injuries with cell therapy. Nowadays stem cells are having very good results and think that medicine is advancing
@idacoronado81811 ай бұрын
i have recently been diagnosed with CES. going on 3 months. Did this affect your financial status. Did you qualify for any sort of disability? Im the sole provider and worried about holding on to my employment.
@fahmiirfan5325 Жыл бұрын
Hi Owen, thanks for sharing. I have nerve compression on L4-L5 that causes sensory sensations in my saddle area. Did you have that as well?
@sherwinclub1332 Жыл бұрын
Thank you so much
@objetividad6932 жыл бұрын
Hi, I hope you don't mind my question, did you have sexual dysfunction?
@herlynnegrace14612 жыл бұрын
Thank you very much! This has been very helpful. May I use this as reference for my translations project?
@IgobyOwen2 жыл бұрын
Sure! Feel free to use it!
@naomi54952 жыл бұрын
Does anyone with this feel better when lying down?
@chrislegner48162 жыл бұрын
Thanks for the vid and best wishes. I've battled this for 8 years. It's been a nightmare and my help resources non-existent. Bowels, bladder, guy parts, balance, leg strength, and crippling pain. At this point any relief would feel like a miracle.
@sarcasticmeeeeee54992 жыл бұрын
Hey how are you now?? and I wanted ask that all symptoms comes together ??
@chrislegner48162 жыл бұрын
@@sarcasticmeeeeee5499 Heading to Mayo here in a few weeks to see what is next. Thanks.
@naz41403 жыл бұрын
Thank you for sharing your experience. I suffer from ankylosis spondylitis and have been for 39 years only recently I could not urinate, eventually catheterised, after an mri the have found a decompression. After watching your vlog I have decided to go for the operation, as you have mentioned, the consultant did mention this that, there was no guarantee that the damaged nerves would repair, but i am still going for it, and hope for the best. I wish you the best of health. Thank you again for sharing.
@sarcasticmeeeeee54992 жыл бұрын
Hey how is your recovery now??
@naz41402 жыл бұрын
Hi, thanks for asking, I didn’t go ahead with the operation, I am still undecided , just been for a check up this week and there is no change, my urine problem has improved by 80% I am not catheterised any longer, I do feel pain in the feet which I think is because of the compressed spinal cord, if that gets worse I will probably go for the operation. How are you doing?
@darwinsuba41033 жыл бұрын
when there is CES is it really necessary to undergo surgery?
@IgobyOwen3 жыл бұрын
When I had it it was an emergency situation as I lost my bowel functions in 24 hours. I was told that in another 24 hours of no treatment I would have had permanent damage. It’s been 10 years since my surgery and I am still recovering. I don’t know how much more I can recover.
@Kat.....2 жыл бұрын
@@IgobyOwen how are you doing now, in general? Thanks for sharing your story
@LAMODÉLISTE4 жыл бұрын
I am a Forto and my mom’s family is from Isabela Tumawini. They said our family is a bit popular there because one of the churches in Isabel was founded by Father Forto... She never trained me to speak Ibanak but I really want to learn it, I was born and bred here in Angeles but I always go back to my roots. My mom always say this to me though when she’s really worried. Ananuuuuy! Hahah sounds funny but scary too at the same time. I call my French boyfriend IDDU ku. Hehe
@fistpowerful4 жыл бұрын
Glad to see u owen after long time
@diannetiangcoreyes20734 жыл бұрын
Sir pwede ba magpaturo ng salitang ibanag, tungkol sa pagpapakilala
@c.f.74084 жыл бұрын
Just got diagnosed. I knew my back was bad but so many doctors said rest, take a break, stretch. Thank goodness my new doctor ordered x-ray then MRI which diagnosed it. Thanks for sharing your story. I see the surgeon soon for the consultation.
@ryno411j94 жыл бұрын
I wish you the best of luck. I was diagnosed last November. I did physical therapy for about 2 months. I've fully recovered from my injury the only issue I have is numbness and occasional pain in my left big toe.
@walterfortuna68215 жыл бұрын
MY PROBLEM MOSTLY I KEEP GOING AT NIGHT WITHOUT NOTICING IT. DIAPERS HELP BUT IT GETS FULL AT VERY EARLY DAWN AND I END UP WETTING THE BED ALL OVER. DURING THE DAY I HAVE CONTROL (OCCASIONAL ACCIDENT) BUT ITS HARD TO POO AND PEE.
@Smokillo2 жыл бұрын
@@johnspark5285 he's just sharing his experience of CES...why the rude comment?
@bumpom4325 жыл бұрын
Thank you so much for this. My mom speaks isabelan ybanag but didn’t teach me on purpose because she thought it would be useless for me. I’m trying to listen more to her conversations and I’m learning by myself.
@tresforbe5 жыл бұрын
Fi
@joannejohnson24615 жыл бұрын
I'm grateful there are stories of others experience. Their positive, hope filled, and often invaluable information. Thanks for sharing this. I wish for you a life free of so much pain. 😶🌷
@alexlane62105 жыл бұрын
Hi my cauda equina came on suddenly no history of back pain came on couple of days later i couldnt pee had emergency surgery have permant nerve damage in left leg
@rocc65965 жыл бұрын
I feel like the surgery messes it up even more
@IgobyOwen5 жыл бұрын
The experience is different for everyone. Some people don't have the best outcome with surgery but for myself it solved my problems. I no longer have back pain and it's been 7 years post surgery. I honestly cant remember a time when I didn't have back pain before the surgery. I hope you find a way to rid yourself of the pain.
@rocc65965 жыл бұрын
@@IgobyOwen thanks, im 21 and i can't remember the time when the numbness started, it was in the buttocks area, i never really thought of it til now which got a little worse. I don't have any incontinence, I do get pain here and there, but mostly the numbness in the saddle area, and hot sensation that comes and goes. and numb tingly feeling in my feet, and a bit of weakness in the legs. Honestly it isn't horrible it just gets annoying, idk if i should get an MRI check up or not. Idk what's really causing the problem, hopefully not some sort of tumor.....though i do remember throwing my back from doing some burpies a while back but idk how i did that.
@rocc65965 жыл бұрын
@@IgobyOwen what type of doctor do you recommend for this though?
@IgobyOwen5 жыл бұрын
@@rocc6596 unfortunately because I'm not a doctor I can't tell you what you do or don't have. I would say talk with your doctor/general practitioner and tell them what is going on. My doctor didn't realize my issue until 8 years later when I ended up in the ER. That's when I had a neurologist diagnose me with my condition.
@DrDr-pg5br5 жыл бұрын
@@rocc6596 please get checked by your primary dr first. They will test and refer from there.
@debitford5 жыл бұрын
Good morning = Mapia nga umma
@IgobyOwen5 жыл бұрын
Ari ku paga nga naginna yatun. I ammu e I Dios nicau onu Dios nicamu ta ___. Awan paga naginna nga mangusa tatun. Sitaw da usan yatun?
@IgobyOwen5 жыл бұрын
Good morning ≠ mapia nga umma. When you say mapia something is in good condition. It doesn't translate the same way in Ibanag.
@nicolaroebuck37315 жыл бұрын
To all, a year, 2 years down the line how do you feel now? Any improvement bowel bladder numbness ect??? I'm 7months post op for ces and I'm just gathering information myself as Dr's don't seem to know anything... Any help advice would be appreciated x
@theastdgod65315 жыл бұрын
im from cagayan solana
@theastdgod65315 жыл бұрын
u are english
@cuteako96505 жыл бұрын
General dialect kasi pag sa northern luzon ilocano tlga... 60% na nsa cagayan valley dialect kasi is ilocano... 3rd na most spoken ang dialect ang ilocano sa pinas... Like sa Baguio may kankanaey etc and other indigenous group eh majority ilocano parin... kahit mga igorot nag iilokano din ksi mrami din silang dialect para magkaintindihan sila... Pero atleast you are proud that you are Ybanag
@tinacollins9435 жыл бұрын
Thankyou
@ahmedhusseinny6 жыл бұрын
Your story is almost identical to mine. Will describe mine here for those who want to hear. 1. Was in a train accident in 2015 Nov, broke L4 L5 S1 S2 S3 (believe you me, S1,S2 were shattered to pieces.) 2. Had surgery in Jan '16 in the US (after 2 months in trauma center in India). 3. Went through Urinary Retention, Cathing, 2 serious UTIs, Constipation, Saddle Anaethesia, Left foot numb, Feet muscle weakness/thinning, Intense pain (managed my morphine/fentanyl) etc. The whole shebang! 4. 5 months after surgery, bladder functions started improving and within months was very close to normal, and am 100% normal now. Left foot numb but can walk normally, no one can tell I have serious CES. Bowel Functions have shown NO IMPROVEMENT and I use castor oil every third day morning to clear the colon. Painful indeed. Nothing else works for me. 5. Other than that I am close to normal, no pain meds, I tolerate the pains that I have in the back upon standing, bending, lifting, twisting etc. When I am in bed, no back pain at all, some leg pain sometimes comes up. 6. Lastly, reproductive functions ( I am a male 50), was zero for about 1.5 years, no sensation, no erection, no nothing. It was depressing. BUT, things started improving to the point that I am , I would say 90% normal. So for all these reasons, I cannot complain about the pains (back and leg) that I have to endure on a daily basis. I feel damn lucky. Many of the folks I know (1000s in the different forums) have not fared so well. Wish all of you (brothers and sisters in CES) luck and good recovery. /cheers.
@maltimoto5 жыл бұрын
What you describe sounds like a miracle! It gives others hope. Good luck!
@shkarazad973 жыл бұрын
Legend i hope doing even better now a days god bless you
@makeupbykhani81783 жыл бұрын
How r u doing now?????
@makeupbykhani81783 жыл бұрын
How r u doing now sir? Any updates?????
@ahmedhusseinny3 жыл бұрын
@@makeupbykhani8178 Will be 5 years since the accident which caused my situation. I am doing extremely well. Mild pain, minimal impact on movement and lift/bend/twist. If you have any specific questions, I will be happy to answer.
@sammyanytime1006 жыл бұрын
Hi, I am faxing the same issue as well, it's been more than 2 yrs, can u tell more about accupunchure?
Diyosta. So si teejay taga lallo nga kabayan. Kun nasifu???
@Kulayyu6 жыл бұрын
Kunnasi ka wugi?
@ChefRafi6 жыл бұрын
In Ilocano umay means to come. The opposite!
@IgobyOwen6 жыл бұрын
Chef Rafi's Awesome World Umay also works for "to come" depending on context. Umay ka taw is come here. Umay na' tari is I am going over there.
@ma.rebeccagarcia40376 жыл бұрын
Hi, my mother also suffering from CES, she already undergo surgery, its been 7 months already but the problem is still there which is - no bladder and bowel control. Did you already recover? She's still using catheter and it is uncomfortable seeing her still suffering. If you have any suggestions please let me know. I want her to use intermittent catheter.
@archambeaultjl5 жыл бұрын
Ma. Rebecca Garcia SewS1
@beenawaqar7 ай бұрын
She can do self catheterization...I have done with long tube by inserting in the urinary place....now urine is coming without any sensation....70prcnt urine problem is resolved but not completely... bowel problem is still same ..
@ChandimaChathura19906 жыл бұрын
Hello owen, I also had to face a lumbar Surgery because of CES. Now it's nearly 3 months and still no significant progress. If you have time please email me. It will help me very much. [email protected]
@sheilacox13057 жыл бұрын
There should be cards 🃏 given with the red flag signs ,I've had it three times in 6 months!!! I have to self catheterization every day 5 times,Take pregablin and diazepam now my lifes ruined I loved travelling that's a no go now ,WE NEED MORE AWARENESS
@ahmedhusseinny6 жыл бұрын
Read my story in posted somewhere above. Hang in there and don't despair. You will get better. Will yourself to pee by drinking lots of water and taking really cold showers. That really worked for me and others. I self cathed for 5-6 months before becoming I would say fully normal.
@tentencalata85287 жыл бұрын
hi! i'm a pure ibanag and i was born and raised in isabela ☺ i'm also familiar with your last name layugan. and based from your video, from the way you speak, your sounds like from tuguegarao? ☺ anyways, nice video ☺
@Sunless57 жыл бұрын
i speak ibanag to
@jizzle7797 жыл бұрын
dependent on ibuprofen?
@IgobyOwen7 жыл бұрын
tim meadows not at all. as soon as I finished all my medications I think in 6 months I didn't go back to any at all. no ibuprofen no med whatsoever. I also changed my diet and I exercised.
@jizzle7797 жыл бұрын
that's good to hear man! As far as I know you can't become addicted to ibuprofen... it will eat your liver up over time though so it's best not to take it if that's something you can avoid. Thanks for sharing your story, your perspective on ces is inspirational
@giannowarfield57317 жыл бұрын
i have CES from Gunshot wound to my right abdomen the ripped "Shredded" thru my colon and crushed and lodged in my l2 vertibrate .
@IgobyOwen7 жыл бұрын
Gianno Warfield I'm sorry to hear about this. How is your recovery coming through?
@giannowarfield57317 жыл бұрын
Owen Layugan Pain every second no days off but i must say if change your diet to alkaline rich diet u feel much better health living is the key to recovery no junk food no meat no dairy and drink alot of water i know its hard but you have to do it for you're self and no meds it really makes it worse trust me only herbs and nature chemicals wont and dont work. change your ways and you will be alright for real i change my diet and ive never felt better i was 290 now im 220 and losing more and i suggest fasting for optimal regeneration of nerve's trust me . I defied the odds you can too. And i have the worst case scenario of Cauda Equina Syndrome That being Ballistic Trauma. Peace Go with you brother.😁
@IgobyOwen7 жыл бұрын
Gianno Warfield thank you for your insight and sharing your experience as well. I've actually transitioned from a pāleo type of diet to ketogenic. I have been for the last 2 years. No grains lots of vegetables but also quality fats; high fat, moderate protein, and low carb. My blood works have come in great. Cholesterol, blood sugar and all have become normal. No longer pre-diabetic or hypoglycemic. I am usual in a state of fast because my energy comes from my own body fat so I am not hungry often. I've seen a rapid improvement since I started. I regained more feeling to my saddle region, on top of being able to maintain my weight, losing fat and retaining and gaining muscle to help with back support. I am no longer skinny fat. Lol. It's also more manageable for me since I'm not constantly eating or looking for food. If the alkaline diet works for you, keep on. I am of a mentality that our bodies know how to repair itself as long as it is given the proper nutrients. I wish you the best in recovery! Share us your progress!
@giannowarfield57317 жыл бұрын
Owen Layugan . Thank you. Your doing Great as well. 😁💪👍👍✊✌
@yooy7067 жыл бұрын
What a bout sexual function??? Did u recovered?? Or not please explain
@IgobyOwen7 жыл бұрын
Well sexual function is not back to normal but I am able to orgasm. You almost have to get creative and for me if I don't have feelings for someone it doesn't work at all. it becomes more psychologically involved than just physical.
@ahmedhusseinny6 жыл бұрын
As I said earlier, I was out for over a year but returned to being almost natural and normal. I would not have sensation and erection. Was very depressed and sad. 5 months after surgery, ,tried a lot of things, from watching porn, to just imagining (purely mental, since no sensation at all).... and then things started to come back, slowly. But I am happy to report, I got almost totally recovered. I am 50 but you guys are young, so I imaging you will heal/recover well.
@krystennicole64464 жыл бұрын
Owen, are the orgasms like normal ones?
@punamkk87943 жыл бұрын
@@ahmedhusseinny hi can u speak hindi then pls give ur phone no. Pls can I talk with you
@MegaDon2147 жыл бұрын
holdap ito dapa sa dabbung ilagay ang pera sa boja wag kayong magguguyu ah hahahaha lol
@ronyboy807 жыл бұрын
had surgery last year, almost 11 months, still have numbness, and it's affects my bowel , bladder, and sexually dysfunction, Dr told me my nerves not cut it's damage, and I'll be remain like this maybe rest my life and maybe if i getting better it's going to be 20% anyone had this and recovered ? and how long it take? i'm feeling so depress and can't believe to end up with this
@IgobyOwen7 жыл бұрын
mohanad aloubaidi I would try to prove my doctor wrong. my doctor said something similar.. all recovery within 14 months. here I am 7 years later and there's more recovery that I have been experiencing lately. especially when it comes to my bowel and bladder function. don't lose hope!
@tubbsthebigcat7 жыл бұрын
mohanad aloubaidi is there a way I can contact you? I'm in a similar situation and would like to talk because I'm so depressed
@tubbsthebigcat7 жыл бұрын
Owen Layugan can I email u? I'm in a similar case but misdiagnosed for an entire year. I'm so young and afraid ......
@IgobyOwen7 жыл бұрын
Tubbs The big cat feel free to send me a private message and I'll give u my email. hang in there you will get through this
@alishkov19916 жыл бұрын
mohanad aloubaidi I just had surgery yesterday. I will asses any damage that had been done through out the following month. Doctor advised me to dose up on vitamin B12 to make healing of nerves faster. And calcium plus vitamin d to accelerate absorption.
@tammymurphy12687 жыл бұрын
life is very hard to deal when you have this.
@danmarkdiza18267 жыл бұрын
I get the same response too, whenever i tell people im from cagayan valley. I also im an itawis not an ilocano(even though i can speak it.). Very good explanation though.
@ChefRafi6 жыл бұрын
Dan Mark Diza can you teach me some Itawis? I’m Ilocano.
@maritalrape7 жыл бұрын
Hi Owen! How long before you were able to walk normally? Did you regain normal bowel and bladder functions? Do you still have numbness? I had two surgeries in 2016. Discectomy and laminectomy and then spinal fusion with bone graft. I was in the hospital for 45 days, and now I am 7 months post op. I still cannot tip toe, and there's a lot of numbness. I also get a lot of stabbing pains. I do have medications for neuropathic pain, but still, they're there. Bladder and bowel are also weak, especially the latter. I would do manual evacuation or digital stimulation daily. I also have acupuncture twice a week. There is not much support groups for CES here in the Philippines. Most people think I just had a bad case of slipped disc. Anyway, I hope to hear from you. It's reassuring to see someone who has CES doing Zumba and having an active lifestyle.
@bogey3557 жыл бұрын
Kai Peñaverde n
@IgobyOwen7 жыл бұрын
Hi Mica, I apologize for taking so long to reply to your feedback, I have been back to work and it's taken over my life. O.O I have regained maybe 75% of my bowel and bladder functions.. it still takes time for me to use the restroom. I was able to walk again within 1 week of surgery. I couldn't stand thinking i wouldn't be able to walk so i literally willed myself to walk as fast as i could. I still have some numbness around my saddle region. I think that just takes time if it ever heals. All I can say as far as your functions is that allow your body to regain your functions and don't lose hope or give up. The acupuncture helped me a lot when I had it done, mostly on small episodes of me getting back pains but those rarely happened after my surgery. I can count 3 occasions in 7 years where I felt so debilitated. The tiptoeing didn't come back to me for years. it's only last year that i started tiptoeing. I'm not sure why you're still getting stabbing pains but yes allow your body to heal. Also look into your diet and see if an alternative healthier more organic diet helps. It has helped me going into Paleo then Keto. It might not be for everyone but it did improve my healing process. I wish you all the best and keep in touch.
thank you for posting. You give me hope. I was diagnosed with CES in October 2016. My main thing I hate is my numbness in my foot and saddle area. How is your numbness doing?
@sardarsami43537 жыл бұрын
newstar777 I 've this issue from the time of my birth. .there is numbnes in my right leg and good ...now I'm 20 years old ....I never feel any significant pain.....but now I'm looking for any treatment is there any chance......????
@tribeofjudah63677 жыл бұрын
newstar777 wow i have a 2month that born with cms ,did you have any surgery done as a kid
@MegaPianogenius6 жыл бұрын
Kelli Kay I too hate the numbness in my behind it's not completely numb but very uncomfortable especially at night and I have tingling down right outer calf of leg I've had it 16 years now and never gets easier The doc said take amitriptyline but I don't want to have side effects
@MegaPianogenius6 жыл бұрын
the strange numbness in saddle area is the worst i cant sit down for more than 2 minutes without having to stand up as its too uncomfortable
@ahmedhusseinny6 жыл бұрын
My saddle anaethesia improved a year, to the point that I am normal, feel very slightly numb but can sit endlessly without problems, but when I was suffering, I used this gel seat which made a world of difference. If you want to know details PM me.
@mintosnake42907 жыл бұрын
are you still numb and do self catheter hurt?
@Pugsrus6 жыл бұрын
MintoSnake I do changed my life
@MegaPianogenius6 жыл бұрын
MintoSnake self catheter doesn't hurt but choose easicath one use
@ahmedhusseinny6 жыл бұрын
I self cathed, got very very painful UTIs and something called false channel with very heavy bleedings. Very scary. Luckily I recovered. Now I am normal, no cath required. I have 200 caths with me, if anyone is interested, please PM me. It is free for anyone who wants it.
@beenawaqar7 ай бұрын
It doesn't hurt because of loss of sensation
@GoodOlAllisonHarvard7 жыл бұрын
You are definitely from the Northern part of Luzon, you're such a Mestizo! <3 My mom's Ibanag and called me and my siblings "iddu" and I always thought she was just speaking gibberish! 😂 I want to learn because i'd hate for Ibanag to become extinct, and I want to pass it on to my children as well, but I don't even know tagalog! Born and raised in Australia, I was only ever taught English, and my dad's Ilocano-Tagalog-English speaking from Ilocos Sur and my mom's Ibanag-Ilocano-Tagalog-English speaking from Lal-lo, Cagayan. My parents mostly speak in Ilocano at home which is why it's also hard for me to pick up on Tagalog, and my mom only speaks Ibanag to her side of the family on the phone and what not. Glad to see you teaching others through the accessible medium of KZread and especially since you're in America too!! What part of Cagayan are you from? :)
Пікірлер
Thanks for this video. I know it’s been years since you posted but I was just DX CES via MRI. Just wondering if constipation is caused by this?
In Spain, research is being carried out on how to regenerate nerve injuries with cell therapy. Nowadays stem cells are having very good results and think that medicine is advancing
i have recently been diagnosed with CES. going on 3 months. Did this affect your financial status. Did you qualify for any sort of disability? Im the sole provider and worried about holding on to my employment.
Hi Owen, thanks for sharing. I have nerve compression on L4-L5 that causes sensory sensations in my saddle area. Did you have that as well?
Thank you so much
Hi, I hope you don't mind my question, did you have sexual dysfunction?
Thank you very much! This has been very helpful. May I use this as reference for my translations project?
Sure! Feel free to use it!
Does anyone with this feel better when lying down?
Thanks for the vid and best wishes. I've battled this for 8 years. It's been a nightmare and my help resources non-existent. Bowels, bladder, guy parts, balance, leg strength, and crippling pain. At this point any relief would feel like a miracle.
Hey how are you now?? and I wanted ask that all symptoms comes together ??
@@sarcasticmeeeeee5499 Heading to Mayo here in a few weeks to see what is next. Thanks.
Thank you for sharing your experience. I suffer from ankylosis spondylitis and have been for 39 years only recently I could not urinate, eventually catheterised, after an mri the have found a decompression. After watching your vlog I have decided to go for the operation, as you have mentioned, the consultant did mention this that, there was no guarantee that the damaged nerves would repair, but i am still going for it, and hope for the best. I wish you the best of health. Thank you again for sharing.
Hey how is your recovery now??
Hi, thanks for asking, I didn’t go ahead with the operation, I am still undecided , just been for a check up this week and there is no change, my urine problem has improved by 80% I am not catheterised any longer, I do feel pain in the feet which I think is because of the compressed spinal cord, if that gets worse I will probably go for the operation. How are you doing?
when there is CES is it really necessary to undergo surgery?
When I had it it was an emergency situation as I lost my bowel functions in 24 hours. I was told that in another 24 hours of no treatment I would have had permanent damage. It’s been 10 years since my surgery and I am still recovering. I don’t know how much more I can recover.
@@IgobyOwen how are you doing now, in general? Thanks for sharing your story
I am a Forto and my mom’s family is from Isabela Tumawini. They said our family is a bit popular there because one of the churches in Isabel was founded by Father Forto... She never trained me to speak Ibanak but I really want to learn it, I was born and bred here in Angeles but I always go back to my roots. My mom always say this to me though when she’s really worried. Ananuuuuy! Hahah sounds funny but scary too at the same time. I call my French boyfriend IDDU ku. Hehe
Glad to see u owen after long time
Sir pwede ba magpaturo ng salitang ibanag, tungkol sa pagpapakilala
Just got diagnosed. I knew my back was bad but so many doctors said rest, take a break, stretch. Thank goodness my new doctor ordered x-ray then MRI which diagnosed it. Thanks for sharing your story. I see the surgeon soon for the consultation.
I wish you the best of luck. I was diagnosed last November. I did physical therapy for about 2 months. I've fully recovered from my injury the only issue I have is numbness and occasional pain in my left big toe.
MY PROBLEM MOSTLY I KEEP GOING AT NIGHT WITHOUT NOTICING IT. DIAPERS HELP BUT IT GETS FULL AT VERY EARLY DAWN AND I END UP WETTING THE BED ALL OVER. DURING THE DAY I HAVE CONTROL (OCCASIONAL ACCIDENT) BUT ITS HARD TO POO AND PEE.
@@johnspark5285 he's just sharing his experience of CES...why the rude comment?
Thank you so much for this. My mom speaks isabelan ybanag but didn’t teach me on purpose because she thought it would be useless for me. I’m trying to listen more to her conversations and I’m learning by myself.
Fi
I'm grateful there are stories of others experience. Their positive, hope filled, and often invaluable information. Thanks for sharing this. I wish for you a life free of so much pain. 😶🌷
Hi my cauda equina came on suddenly no history of back pain came on couple of days later i couldnt pee had emergency surgery have permant nerve damage in left leg
I feel like the surgery messes it up even more
The experience is different for everyone. Some people don't have the best outcome with surgery but for myself it solved my problems. I no longer have back pain and it's been 7 years post surgery. I honestly cant remember a time when I didn't have back pain before the surgery. I hope you find a way to rid yourself of the pain.
@@IgobyOwen thanks, im 21 and i can't remember the time when the numbness started, it was in the buttocks area, i never really thought of it til now which got a little worse. I don't have any incontinence, I do get pain here and there, but mostly the numbness in the saddle area, and hot sensation that comes and goes. and numb tingly feeling in my feet, and a bit of weakness in the legs. Honestly it isn't horrible it just gets annoying, idk if i should get an MRI check up or not. Idk what's really causing the problem, hopefully not some sort of tumor.....though i do remember throwing my back from doing some burpies a while back but idk how i did that.
@@IgobyOwen what type of doctor do you recommend for this though?
@@rocc6596 unfortunately because I'm not a doctor I can't tell you what you do or don't have. I would say talk with your doctor/general practitioner and tell them what is going on. My doctor didn't realize my issue until 8 years later when I ended up in the ER. That's when I had a neurologist diagnose me with my condition.
@@rocc6596 please get checked by your primary dr first. They will test and refer from there.
Good morning = Mapia nga umma
Ari ku paga nga naginna yatun. I ammu e I Dios nicau onu Dios nicamu ta ___. Awan paga naginna nga mangusa tatun. Sitaw da usan yatun?
Good morning ≠ mapia nga umma. When you say mapia something is in good condition. It doesn't translate the same way in Ibanag.
To all, a year, 2 years down the line how do you feel now? Any improvement bowel bladder numbness ect??? I'm 7months post op for ces and I'm just gathering information myself as Dr's don't seem to know anything... Any help advice would be appreciated x
im from cagayan solana
u are english
General dialect kasi pag sa northern luzon ilocano tlga... 60% na nsa cagayan valley dialect kasi is ilocano... 3rd na most spoken ang dialect ang ilocano sa pinas... Like sa Baguio may kankanaey etc and other indigenous group eh majority ilocano parin... kahit mga igorot nag iilokano din ksi mrami din silang dialect para magkaintindihan sila... Pero atleast you are proud that you are Ybanag
Thankyou
Your story is almost identical to mine. Will describe mine here for those who want to hear. 1. Was in a train accident in 2015 Nov, broke L4 L5 S1 S2 S3 (believe you me, S1,S2 were shattered to pieces.) 2. Had surgery in Jan '16 in the US (after 2 months in trauma center in India). 3. Went through Urinary Retention, Cathing, 2 serious UTIs, Constipation, Saddle Anaethesia, Left foot numb, Feet muscle weakness/thinning, Intense pain (managed my morphine/fentanyl) etc. The whole shebang! 4. 5 months after surgery, bladder functions started improving and within months was very close to normal, and am 100% normal now. Left foot numb but can walk normally, no one can tell I have serious CES. Bowel Functions have shown NO IMPROVEMENT and I use castor oil every third day morning to clear the colon. Painful indeed. Nothing else works for me. 5. Other than that I am close to normal, no pain meds, I tolerate the pains that I have in the back upon standing, bending, lifting, twisting etc. When I am in bed, no back pain at all, some leg pain sometimes comes up. 6. Lastly, reproductive functions ( I am a male 50), was zero for about 1.5 years, no sensation, no erection, no nothing. It was depressing. BUT, things started improving to the point that I am , I would say 90% normal. So for all these reasons, I cannot complain about the pains (back and leg) that I have to endure on a daily basis. I feel damn lucky. Many of the folks I know (1000s in the different forums) have not fared so well. Wish all of you (brothers and sisters in CES) luck and good recovery. /cheers.
What you describe sounds like a miracle! It gives others hope. Good luck!
Legend i hope doing even better now a days god bless you
How r u doing now?????
How r u doing now sir? Any updates?????
@@makeupbykhani8178 Will be 5 years since the accident which caused my situation. I am doing extremely well. Mild pain, minimal impact on movement and lift/bend/twist. If you have any specific questions, I will be happy to answer.
Hi, I am faxing the same issue as well, it's been more than 2 yrs, can u tell more about accupunchure?
They stick tiny needles into you
Hey can you email me [email protected] I have most symptoms
Diyosta. So si teejay taga lallo nga kabayan. Kun nasifu???
Kunnasi ka wugi?
In Ilocano umay means to come. The opposite!
Chef Rafi's Awesome World Umay also works for "to come" depending on context. Umay ka taw is come here. Umay na' tari is I am going over there.
Hi, my mother also suffering from CES, she already undergo surgery, its been 7 months already but the problem is still there which is - no bladder and bowel control. Did you already recover? She's still using catheter and it is uncomfortable seeing her still suffering. If you have any suggestions please let me know. I want her to use intermittent catheter.
Ma. Rebecca Garcia SewS1
She can do self catheterization...I have done with long tube by inserting in the urinary place....now urine is coming without any sensation....70prcnt urine problem is resolved but not completely... bowel problem is still same ..
Hello owen, I also had to face a lumbar Surgery because of CES. Now it's nearly 3 months and still no significant progress. If you have time please email me. It will help me very much. [email protected]
There should be cards 🃏 given with the red flag signs ,I've had it three times in 6 months!!! I have to self catheterization every day 5 times,Take pregablin and diazepam now my lifes ruined I loved travelling that's a no go now ,WE NEED MORE AWARENESS
Read my story in posted somewhere above. Hang in there and don't despair. You will get better. Will yourself to pee by drinking lots of water and taking really cold showers. That really worked for me and others. I self cathed for 5-6 months before becoming I would say fully normal.
hi! i'm a pure ibanag and i was born and raised in isabela ☺ i'm also familiar with your last name layugan. and based from your video, from the way you speak, your sounds like from tuguegarao? ☺ anyways, nice video ☺
i speak ibanag to
dependent on ibuprofen?
tim meadows not at all. as soon as I finished all my medications I think in 6 months I didn't go back to any at all. no ibuprofen no med whatsoever. I also changed my diet and I exercised.
that's good to hear man! As far as I know you can't become addicted to ibuprofen... it will eat your liver up over time though so it's best not to take it if that's something you can avoid. Thanks for sharing your story, your perspective on ces is inspirational
i have CES from Gunshot wound to my right abdomen the ripped "Shredded" thru my colon and crushed and lodged in my l2 vertibrate .
Gianno Warfield I'm sorry to hear about this. How is your recovery coming through?
Owen Layugan Pain every second no days off but i must say if change your diet to alkaline rich diet u feel much better health living is the key to recovery no junk food no meat no dairy and drink alot of water i know its hard but you have to do it for you're self and no meds it really makes it worse trust me only herbs and nature chemicals wont and dont work. change your ways and you will be alright for real i change my diet and ive never felt better i was 290 now im 220 and losing more and i suggest fasting for optimal regeneration of nerve's trust me . I defied the odds you can too. And i have the worst case scenario of Cauda Equina Syndrome That being Ballistic Trauma. Peace Go with you brother.😁
Gianno Warfield thank you for your insight and sharing your experience as well. I've actually transitioned from a pāleo type of diet to ketogenic. I have been for the last 2 years. No grains lots of vegetables but also quality fats; high fat, moderate protein, and low carb. My blood works have come in great. Cholesterol, blood sugar and all have become normal. No longer pre-diabetic or hypoglycemic. I am usual in a state of fast because my energy comes from my own body fat so I am not hungry often. I've seen a rapid improvement since I started. I regained more feeling to my saddle region, on top of being able to maintain my weight, losing fat and retaining and gaining muscle to help with back support. I am no longer skinny fat. Lol. It's also more manageable for me since I'm not constantly eating or looking for food. If the alkaline diet works for you, keep on. I am of a mentality that our bodies know how to repair itself as long as it is given the proper nutrients. I wish you the best in recovery! Share us your progress!
Owen Layugan . Thank you. Your doing Great as well. 😁💪👍👍✊✌
What a bout sexual function??? Did u recovered?? Or not please explain
Well sexual function is not back to normal but I am able to orgasm. You almost have to get creative and for me if I don't have feelings for someone it doesn't work at all. it becomes more psychologically involved than just physical.
As I said earlier, I was out for over a year but returned to being almost natural and normal. I would not have sensation and erection. Was very depressed and sad. 5 months after surgery, ,tried a lot of things, from watching porn, to just imagining (purely mental, since no sensation at all).... and then things started to come back, slowly. But I am happy to report, I got almost totally recovered. I am 50 but you guys are young, so I imaging you will heal/recover well.
Owen, are the orgasms like normal ones?
@@ahmedhusseinny hi can u speak hindi then pls give ur phone no. Pls can I talk with you
holdap ito dapa sa dabbung ilagay ang pera sa boja wag kayong magguguyu ah hahahaha lol
had surgery last year, almost 11 months, still have numbness, and it's affects my bowel , bladder, and sexually dysfunction, Dr told me my nerves not cut it's damage, and I'll be remain like this maybe rest my life and maybe if i getting better it's going to be 20% anyone had this and recovered ? and how long it take? i'm feeling so depress and can't believe to end up with this
mohanad aloubaidi I would try to prove my doctor wrong. my doctor said something similar.. all recovery within 14 months. here I am 7 years later and there's more recovery that I have been experiencing lately. especially when it comes to my bowel and bladder function. don't lose hope!
mohanad aloubaidi is there a way I can contact you? I'm in a similar situation and would like to talk because I'm so depressed
Owen Layugan can I email u? I'm in a similar case but misdiagnosed for an entire year. I'm so young and afraid ......
Tubbs The big cat feel free to send me a private message and I'll give u my email. hang in there you will get through this
mohanad aloubaidi I just had surgery yesterday. I will asses any damage that had been done through out the following month. Doctor advised me to dose up on vitamin B12 to make healing of nerves faster. And calcium plus vitamin d to accelerate absorption.
life is very hard to deal when you have this.
I get the same response too, whenever i tell people im from cagayan valley. I also im an itawis not an ilocano(even though i can speak it.). Very good explanation though.
Dan Mark Diza can you teach me some Itawis? I’m Ilocano.
Hi Owen! How long before you were able to walk normally? Did you regain normal bowel and bladder functions? Do you still have numbness? I had two surgeries in 2016. Discectomy and laminectomy and then spinal fusion with bone graft. I was in the hospital for 45 days, and now I am 7 months post op. I still cannot tip toe, and there's a lot of numbness. I also get a lot of stabbing pains. I do have medications for neuropathic pain, but still, they're there. Bladder and bowel are also weak, especially the latter. I would do manual evacuation or digital stimulation daily. I also have acupuncture twice a week. There is not much support groups for CES here in the Philippines. Most people think I just had a bad case of slipped disc. Anyway, I hope to hear from you. It's reassuring to see someone who has CES doing Zumba and having an active lifestyle.
Kai Peñaverde n
Hi Mica, I apologize for taking so long to reply to your feedback, I have been back to work and it's taken over my life. O.O I have regained maybe 75% of my bowel and bladder functions.. it still takes time for me to use the restroom. I was able to walk again within 1 week of surgery. I couldn't stand thinking i wouldn't be able to walk so i literally willed myself to walk as fast as i could. I still have some numbness around my saddle region. I think that just takes time if it ever heals. All I can say as far as your functions is that allow your body to regain your functions and don't lose hope or give up. The acupuncture helped me a lot when I had it done, mostly on small episodes of me getting back pains but those rarely happened after my surgery. I can count 3 occasions in 7 years where I felt so debilitated. The tiptoeing didn't come back to me for years. it's only last year that i started tiptoeing. I'm not sure why you're still getting stabbing pains but yes allow your body to heal. Also look into your diet and see if an alternative healthier more organic diet helps. It has helped me going into Paleo then Keto. It might not be for everyone but it did improve my healing process. I wish you all the best and keep in touch.
EMAIL ME [email protected]
thank you for posting. You give me hope. I was diagnosed with CES in October 2016. My main thing I hate is my numbness in my foot and saddle area. How is your numbness doing?
newstar777 I 've this issue from the time of my birth. .there is numbnes in my right leg and good ...now I'm 20 years old ....I never feel any significant pain.....but now I'm looking for any treatment is there any chance......????
newstar777 wow i have a 2month that born with cms ,did you have any surgery done as a kid
Kelli Kay I too hate the numbness in my behind it's not completely numb but very uncomfortable especially at night and I have tingling down right outer calf of leg I've had it 16 years now and never gets easier The doc said take amitriptyline but I don't want to have side effects
the strange numbness in saddle area is the worst i cant sit down for more than 2 minutes without having to stand up as its too uncomfortable
My saddle anaethesia improved a year, to the point that I am normal, feel very slightly numb but can sit endlessly without problems, but when I was suffering, I used this gel seat which made a world of difference. If you want to know details PM me.
are you still numb and do self catheter hurt?
MintoSnake I do changed my life
MintoSnake self catheter doesn't hurt but choose easicath one use
I self cathed, got very very painful UTIs and something called false channel with very heavy bleedings. Very scary. Luckily I recovered. Now I am normal, no cath required. I have 200 caths with me, if anyone is interested, please PM me. It is free for anyone who wants it.
It doesn't hurt because of loss of sensation
You are definitely from the Northern part of Luzon, you're such a Mestizo! <3 My mom's Ibanag and called me and my siblings "iddu" and I always thought she was just speaking gibberish! 😂 I want to learn because i'd hate for Ibanag to become extinct, and I want to pass it on to my children as well, but I don't even know tagalog! Born and raised in Australia, I was only ever taught English, and my dad's Ilocano-Tagalog-English speaking from Ilocos Sur and my mom's Ibanag-Ilocano-Tagalog-English speaking from Lal-lo, Cagayan. My parents mostly speak in Ilocano at home which is why it's also hard for me to pick up on Tagalog, and my mom only speaks Ibanag to her side of the family on the phone and what not. Glad to see you teaching others through the accessible medium of KZread and especially since you're in America too!! What part of Cagayan are you from? :)