My only beautiful daughter died from complications of cystic fibrosis at 23 years old in 2012. May she Rest In Peace and Love. 🌸💕

@TianaShanteWashington

2 жыл бұрын

Wow . I pray that God give you extra strength from now on 🙏🏽

@pattycakesurbina5283

2 жыл бұрын

May God comfort your heart and soul. 🙏

@CFlifestyleFoundation

Жыл бұрын

So sorry for your loss. I hope that her memory is eternal in your heart.

@Lisa-pb3qp

Жыл бұрын

@@CFlifestyleFoundation Thanks for your very kind words. God bless.

@musicgirl999

Жыл бұрын

I’m so sorry! My condolences 💐

My bff has CF. Two years ago, she was in the hospital whole summer, but now she's doing great. Sometimes i think how lucky i am to be healthy and fine. For all of you with CF, i wish you the best and peaceful life.

@adawong7485

4 жыл бұрын

Thank you. 🖤

@evastarman2735

4 жыл бұрын

@@adawong7485 you are always welcome. Stay strong! ❤️

@Dominique43jd

3 жыл бұрын

@@evastarman2735 + Well... educate yourself Woow!! By the way the REAL CURE TO ALMOST ANY DISEASES IS “ 35% HYDROGEN PEROXIDE FOOD GRADE “ research it I’m very heal no medication just 102 minerals, Curcumin, Turmeric Boost which has Organic curcumin, Organic BLK. Pepper, and Probiotics, Manuka honey, Zinc, and Selenium drops Oh! If ppl. Trying everything under the sun but no good results quit suffering people then try this and guarantee 100% it works!

@suewhyte2081

3 жыл бұрын

Thank you

@nimishajethi76

Жыл бұрын

Plse contec me

Adorable young man, wishing him the best with a healthy long life.

I just turned 13 years old and have had CF since I was born. It is hard since I'm the only person In my whole entire school who has it. When I take my enzyme tablets , and my nebulisers, people look at me weird and ask alot of questions which make me uncomfortable. I've been watching alot of vidoes about how people deal with CF. It makes me cry all the time, and it has given me depression. I'm always praying to God that I don't die so young. It's scary to say and think, "That's how i may die." Because no one wants to know how they're gonna die. But thankyou for making the video, (Its very late but oh well)! It has made me feel alot better about it. Although It is still in my life, I hope it will make me feel less insecure about a disorder I should be proud of for fighting.

@shanicejunor9150

6 жыл бұрын

Harleyisnot Online hi I also have cf I'm the only person in my school who has it and I can't digest fat so I take some tablets that help and I also have to have nebulisers I haven't got it as bad as some people

@shanicejunor9150

6 жыл бұрын

I've had it since I was born I'm 12 now and sometimes I get weird looks when I take my tablets so I don't really like having them in public but I need to otherwise I get bad stomach

@shanicejunor9150

6 жыл бұрын

The questions also make me a bit uncomfortable but I just say what it is but like not saying what it is fully

@yesqueenamongus73

4 жыл бұрын

@TA A wow you're really kind🤗

@Dominique43jd

3 жыл бұрын

Well... little kid this is what you should do next Well... educate yourself Woow!! By the way the REAL CURE TO ALMOST ANY DISEASES IS “ 35% HYDROGEN PEROXIDE FOOD GRADE “ research it I’m very heal no medication just 102 minerals, Curcumin, Turmeric Boost which has Organic curcumin, Organic BLK. Pepper, and Probiotics, Manuka honey, Zinc, and Selenium drops Oh! If ppl. Trying everything under the sun but no good results quit suffering people then try this and guarantee 100% it works!

Great video. Well done to the lad who presented.

Excellent video Charles.... well done! I know a 57 year old with CF. She still has same lungs (although not perfect) and she's doing fine. "Life does not have to be perfect to be wonderful..."

@Jawad.1

3 жыл бұрын

"Life does not have to be perfect to be wonderful..." That quotation penetrated right into my heart ❤

@quinnard9750

3 жыл бұрын

Jawad Ahmed, Right?😍😭

@sainaths.r2084

Жыл бұрын

What a wonderful quote . Good day to you ❤

Brave young man, great video.

Wonderful presentation, I hope that the presenter is doing well! 🙏 I'm sending love to anyone living with Cystic Fibrosis, you're all warriors!!!

I have CF am young but i never give up

@dinex8705

5 жыл бұрын

There is no problem without solution Hod hold us in peace

@angusmckean2023

3 жыл бұрын

L

I can see a remarkably sad eyes in you, but on the other hand,you are strong enough to face and stall against the crisis. Well done and God bless you

My Father had CF and got a double lung transplant while coping with 30% lung capacity, sadly he died around 2 years ago at the age of 47 from Covid , I have finally accepted help from the people who care about me and I’m on the road to recovery.

Just wanna say well done to the presenter. He was remarkably well spoken, learnt the lines very well and his energy was up lifting. I'm not remotely suffering from CF, but I wanna say that the strength in this comment section is unreal. Well done, guys. Just amazing.

@Flowshow88

Жыл бұрын

He is reading from the screen how did you conclude he learned his lines lmao

@badger.phipps

Жыл бұрын

@@Flowshow88 I didn't notice. I guess I must be dumb AF. 😎

I love the fact that you are able to come out here and educate us about your problems I mean we all have dark days but am so proud of how you are using yours to create an impact 😩❤️

Will be showing this to my class tomorrow.

Im 15 y/o bron with cystic fibrosis and have to live with it….that’s my life and i love ❤

Fantastic presentation. Thank you and well done.

I loved your video. On point and very well explained. Greetings from Toronto Canada

Awww so SO sorry to hear that. God bless you sir. ❤️🙏🏻

To all sufferers of CF , friends and family of sufferers, love you all . I was diagnosed in 1964 and just turned 60 last month.

wow How good you are for presenting this. Well done

Well done good and informative video Charles.

My cousin has CF and he is currently at the hospital. I really hope he can get better 😥

Thank you for that. I wish you all the best in life

I have CF to and watching this video has helped me so much thank you

Excellent video that explained things simply & very well presented.

Great video Charles!

Thank you for a wonderful video, it is a great explanation.

Brilliantly made - and presented - video 👏

Great Video. I love it!

🤲⚘🙏 love and prayer for all those suffering with CF.....😔

This was an amazing video

Believe Almighty Allah I am also cf patient facing problems in daily life but I trust Almighty Allah any desease is not the reason of any death.How many persons they even take a tablet in his life time but suddenly they died Why because death keeps no calendar.May Allah protect us all and give healthy life to all people..Nice video.....

Really nice video.....wish you the very best

God speed to you buddy!

love your energy

Well explained !

My beautiful son Kalyan 15/03/1997#07/03/2024 at the age of 27 years old died from cystic fibrosis complications of post Lungs transplantation operation at yashoda hospital secunderabad May he rest in peace and Love ❤️🙏 my son Kalyan

you are a hero bro👍❤️❤️

thank you so much this is going to help me with my biology homework 😊😉

@Luka_c123

3 жыл бұрын

same!

What a sterling young man

informational and inspiring! Lovely video, Charles💓thanks

@shookyskookies9418

5 жыл бұрын

Bangtan slaying since 2013 army!!!!

@syedwaqasshah5744

10 ай бұрын

watch cystic fibrosis by Dr. Najeeb kzread.info/dash/bejne/dKJr0cuEmam5ps4.html

Stay strong my friend

What a wonderful vedio 👍

great video sir hope your all ok

Thankyou

Great video. Till this day i have never heard of this condition. But i went on a birthday and donate money for people with this condition...

I'm a medical student. I would love to work on day helping people with CF.

@saimasaleem8854

Жыл бұрын

Kia is bimari ka koi ilaaj nh h proper

@saimasaleem8854

Жыл бұрын

Plz btya

He has the same problems as you. Loneliness and fears. Wishing to do what he loves. Piled on top, several complicated life-threatening problems, including a precious loved one could sacrifice themself to give him lungs............. 😔 God bless you friend my heart breaks for you very deeply... I saw the ghost of my dead best friend run down the hallway and my cat Tobius saw it with me it was 4am. She did it to make me stop fearing the afterlife. I miss her so bad I don't have the ability to sing... I wish you to Heaven someday... but it kills me inside that you live underneath this hovering condition... may you and others form a strong bond and may you get what you deserve in this great experience we call life. I'm greatly sorry the way you go through some of these things.

my best friend has CF and her little sister does aswell, they meet face to face (well they live together) and they don't get really unwell, why Is this

My only beautiful son Kalyan died cystic fibrosis and after that both Lungs transplantation operation may he rest in peace at age of 27 years old boy

I am grateful for whatever I am. 👍

I started crying watching this guy.

@vizagitywaltair

10 ай бұрын

Hi 🙂

الله يشفيك 💕

If you carry the gene and your mate does can you transmit or activate infection to each other? Can you get it in later life? If triggered by mating?

It’s very sad cause my Aunt has CF and I have CF so we can only see each other 1 every 2 years

i have 3 of 5 genetic markers for cf, does this mean i have a chance of catching a disease

The advancement of CF treatment reminds me of HIV. Just as most people with HIV have a near-normal lifespan, hopefully the same will happen with CF!

godbless to everyone that has cystic fibrosis or other sickness😁😁

I have cf too

i have this

I wanted to learn more about this because my best friends sibblings have cf her younger brother and sister :(

well done, this is going to help with my science hw ;)

@CFTrust

6 жыл бұрын

Glad we could help!

@Jess-wk5jo

4 жыл бұрын

@@CFTrust hello cystic fibrosis trust can people with cystic fibrosis not always have problems with their liver and kidneys and pancreas at all I have always wonder that

@CFTrust

4 жыл бұрын

@@Jess-wk5jo Hi Jess. There are more than 1,400 possible mutations of the faulty gene that causes cystic fibrosis. Everyone living with the condition carries two of these mutated genes, meaning that the way it affects the body can vary wildly from person to person. You can find out more about how CF affects the body on our website: www.cysticfibrosis.org.uk/what-is-cystic-fibrosis/how-does-cystic-fibrosis-affect-the-body

@Jess-wk5jo

4 жыл бұрын

@Cystic Fibrosis Trust hello cystic fibrosis trust can people with cystic fibrosis not always have problems with their liver and kidneys and pancreas at all I have always wonder that

I have Cystic Fibrosis and this video is relly good. Thankyou for that. I eat not to mutch,but I know I must eat but it is for me so hard. I have for 1 year lung problems and I dont like it.

@nimishajethi76

Жыл бұрын

Plse contact me I have a daughter cf position shi 3 month old

@nimishajethi76

Жыл бұрын

Hi place contect

I have been struggling with my condition Primary Ciliary Dyskinesia. Is there anything that can help thin down the abnormally sticky thick mucus which is causing me breathing difficulties. Living in the UK with this rare condition is tough, as there is limited support and knowledge. I have tryed out hypertonic saline, Ventolin nebs, and take daily carbocisteine to thin mucus down. If any one can recommend something i can try, i would highly appreciate it. Thank you.

@liliaines507

Жыл бұрын

Try to ingest more fermented foods daily like sowercrowt and pickles and see how you feel. Hope you well❤

I have been told to do this for school work in biology

@syedwaqasshah5744

10 ай бұрын

watch cystic fibrosis by Dr. Najeeb kzread.info/dash/bejne/dKJr0cuEmam5ps4.html

Idk if I have it bc Ive blown my nose about 15 times a day and not been able to breathe easy since I was very young. Not sure if that is a symptom is CF but I want figure out what it is I have.

@pcdeltalink036

2 жыл бұрын

Not enough there to determine it. You’ll need a sweat test and/or genetic testing to say for sure if you have it.

💙

Is it a problem if I’ve a collapsed lung?

So it makes your mucus thicker. Specifically it effects a gene that encodes an ion channel used in mucus membranes as well as sweat glands and the creation of some digestive fluids. The effect, as he discussed, is thicker mucus, and a deficiency in digestive enzymes. (This is from a quick google search, not a thorough investigation).

@CFTrust

6 жыл бұрын

Thanks for your comment. We're always creating new videos about this complicated genetic disorder, you can see what we say about the CFTR gene here: kzread.info/dash/bejne/Za6Htcejm87KmrQ.html We've also so far made videos about how cystic fibrosis affects the lungs, pancreas and digestive system. Feel free to take a look at our website cysticfibrosis.org.uk where we go into more detail.

@Jess-wk5jo

4 жыл бұрын

@@CFTrust does cystic fibrosis cause every problems to heart

No have relationship. 😑😑 I know that feeling

Where did you get treatment .. our 6 months baby has it .. can you share on treatment for young children

@liliaines507

Жыл бұрын

Hope your baby is doing well so far. Cut out grains and dairy from his diet. Give him mashed boiled apple every day and mashed vegetables. ❤

@liliaines507

Жыл бұрын

Also had fermented foods daily to his diet❤

no, i search about CF because of my biology class 🥺

@yesqueenamongus73

4 жыл бұрын

Same!! Its been set for homeschool work

Hi! I hope you are doing well. I am a student interested in researching CF, and there are some questions I have: 1) I have read that the mutation in the CFTR receptor causes secretions without water which causes mucous to build up and the secretions to be thick. Apparently this can result in an immune response as well, even in the absence of infections with neutrophils being the key player. In the absence of an infection, what role do neutrophils have in exacerbating CF? 2) I notice that CF patients in general have lower airway/pulmonary obstruction as well as upper airway obstruction. Are there any specific characteristics to upper airway mucous secretions that make it different from lower airway? Any guidance would be appreciated

Which test is used to detect cystic fibrosis?

@John_Eyre

Жыл бұрын

The sweat test is the standard test for diagnosing cystic fibrosis. It may be used if you have symptoms that may indicate cystic fibrosis or to confirm a positive diagnosis from a screening of your newborn baby.

I’m super scared just found out we’re carrying the gene

Is it contagious?

@pcdeltalink036

2 жыл бұрын

No, it is a genetic disease and is not contagious.

Anyone else from their teacher? Lmao

@ShayShayPlay

4 жыл бұрын

Kieramua yep

@busbingereviews8587

4 жыл бұрын

Yeah 😂

So like I came here bc I know nothing about my own disease and I’m 15 😂

I had to watch this for homework. Hi classmates.

I hope to you good health and You should be Muslim

I am 11 and i have cf

Did you hear about Trikafta ?

@pcdeltalink036

2 жыл бұрын

Omg Trikafta is amazing! Been on it for about a year now and it’s definitely helped me so much.

@ceeciilllee8427

2 жыл бұрын

@@pcdeltalink036 oh I’m so glad to hear that 😌

I like five feet apart i like haley lu richardson cole spourse💖

@RoseMary-ll5uu

4 жыл бұрын

Intan Nisita I have a sister and brother who have cf and I have cf too . How do u keep apart from them...🤷🏻‍♀️

اعوذ بالله من الشيطان الرجيم الله الذي خلقكم من ضعف ثم جعل من بعد ضعف قوة ثم جعل من بعد قوة ضعفا وشيبة يخلق ما يشاء

Once you get a lung transplant, then how do you still suffer from it?

@pcdeltalink036

2 жыл бұрын

As far as my research on the topic found you won’t have lung issues from CF with new lungs. However, that doesn’t get rid of the symptoms caused elsewhere in the body and then you’ll also have to be on immunosuppressants the rest of your life so your body won’t attack your new lungs. This of course will also leave you more vulnerable to other diseases as your immune system is weakened.

@nevinkuser9892

2 жыл бұрын

@@pcdeltalink036 Yikes. There's gotta be a better option.

Is it possible to develop CF in an adult age after 40?

@CFTrust

4 жыл бұрын

Hi Askar. You are born with CF, inheriting a copy of the faulty CF gene from each of your parents. Most cases of CF are diagnosed shortly after birth, particularly since newborn screening was introduced in the UK in 2007, but sometimes the condition may not be diagnosed until later in life. You can find out more about how CF is diagnosed on our website: www.cysticfibrosis.org.uk/what-is-cystic-fibrosis/diagnosis

@Jess-wk5jo

4 жыл бұрын

@@CFTrust hello @cystic fibrosis trust can I have question for you is cystic fibrosis class as lung disease or condition or chronic lung disease thank you for your time 😀

@pcdeltalink036

2 жыл бұрын

It’s possible it may not be caught till later in life, especially with milder symptoms (I wasn’t diagnosed till 30) but nowadays newborn screening heavily reduces that chance.

I don't want to sound patronising but have you tried raw grass fed milk? It's meant to be health promoting especially with the lungs.

@florrie8767

2 жыл бұрын

Milk is very mucus forming.my c.f. improved a little by cutting.milk and mucus forming foods out

@asiaticoasis

2 жыл бұрын

You are right raw milk is a medicine

I have cf

@shanicejunor9150

6 жыл бұрын

Louis Utting same!

@louisutting8551

6 жыл бұрын

Shanice Junor it’s not fun but it has benefits don’t you think

@shanicejunor9150

6 жыл бұрын

What sort of benefits because I'm not sure

@southwest2915

5 жыл бұрын

Shanice Junor like living to 50

@emesebuzgo

5 жыл бұрын

@@southwest2915 😂😂😂

I’m the healthiest kid in the world with it

I just have one question Is it possible to get cystic fibrosis if non of you're parents has it

@pcdeltalink036

2 жыл бұрын

Yes. If both your parents are just carriers of the faulty gene (so they have no symptoms) you have a 25% chance of getting it.

@keithp6699

4 ай бұрын

Both of your parents have to carry the faulty gene, but they'd not have it themselves

thanks 2 god my daughter is cured from cystic fibrosis thanks 2 god

@nevinkuser9892

2 жыл бұрын

How did you do it?

pino's son

🧚🏻‍♂️🌌🌹

I have cystic fibrosis:( i dont want do die

I lost a friend to it 😭😥😥

@vizagitywaltair

10 ай бұрын

😢😭😭

That means I will never be able to meet you bcoze I have cf too lol

@angusmckean2023

3 жыл бұрын

L

You looks cute

As we can infect each other's more worse...lol