she is an angel. she is so positive, at least she looks like it, and it gives me chills.

Currently 32 and going strong, Staying positive is essential with CF. Keep up the good work, As people have said exercise really helps!

@cristinascholes6835

4 жыл бұрын

Chris VS Cystic Fibrosis what insurance do you have ? I have cf too

@ksterlings197

2 жыл бұрын

Keep at it, I'm proud of you. There's people that love you and want you to have a quality life :)

Be encouraged hon. I'm 62 years old with cf. I was just diagnosed this year. Keep a good exercise routine! It really helps:-)

@thatgirlreacts5465

4 жыл бұрын

camelia markham I dont think so.

@ryleenovak3290

4 жыл бұрын

camelia markham ummm I have cystic fibrosis and you have to be born with it and you should have been known about it🙄🤔

@sierrastar5155

4 жыл бұрын

That Girl Reacts you know there are slower cases of cf right? You can go your whole life with a really mild case and not know.

@sierrastar5155

4 жыл бұрын

@TA A I'm just basing it off people being diagnosed very late. I dont know too much about the illness myself

@cristinascholes6835

4 жыл бұрын

camelia markham what insurance do you have ?

My sister passed away from CF when she was 19. This is extremely hard to watch but I wanted to educate myself.

@blondieclown

3 жыл бұрын

I’m sorry what happened.

@mohamedhashim3081

3 жыл бұрын

RIP ur sister

@staciemae

3 жыл бұрын

@@blondieclown it’s genetic she was born with it and didn’t get a lung transplant

@staciemae

3 жыл бұрын

@@mohamedhashim3081 thank you

@blondieclown

3 жыл бұрын

@@staciemae im sorry my younger sibling has cystic fibrosis and was on my account. sorry for the loss, i deal with it myself. i hope you're doing well

I met a girl recently I'm absolutely crazy about that has CF, I just wanted to hug her and cry hearing about what she goes through daily... She gives me so much hell pushing me away but I know its because she cares for me and I always try to keep at it learning more about CF and keeping her motivated. I'm so proud of her and fascinated by who she is and her life. Always be respectful to others and grateful for you life.

poor baby, such a beautiful girl, so heartbreaking

My niece was diagnosed when she was just a few months old. She had a double lung transplant at 14 and had a good 2 years before her body started rejecting the new lungs and she passed away at 17. I admire your determination and strength. Carry on the fight...

@shannonmeek2436

4 жыл бұрын

I'm sorry 🥺❤️

@Jess-wk5jo

3 жыл бұрын

@@shannonmeek2436 people staying new donor lungs will get damage like their old lungs over time is that turth or not then is turth they can get damaged too like old lungs I dont understand that why people staying it then like Stephi Lee stay new lungs will get damage like old lungs and I see video on KZread call I need to breath sisters call Nikki and kristie narrator stay new lungs will get infected over time with cf again what do people believe is turth or not I Google it transplanted lungs will not have CF and will never develop it, I dont believe it turth or what let me know Thankyou for your time from jess sellars xxxxxx

@RK-ep8qy

2 жыл бұрын

@@Jess-wk5jo CF is a genetic condition so new lungs can buy time with the strong likelihood of a longer life but we cant cure CF, its part of their DNA.

@roly5163

2 жыл бұрын

@Tgon Mwort What are you talking about?

Molly, your grace and determination have helped me persevere today. You are inspiring.

i wonder how are these patients doing during covid. i hope they are doing all well...

@gumballking87844

2 жыл бұрын

Covid is like 10 times worse because our lungs are already bad then if we get covid that means we have 2 lung diseases and we are so much less likely to live and in public we cough so during covid everbody stares at you pretty much the whole time and we need to wear masks all the time and no mask breaks unless we are outside away from everbody or we are vaccinated and i know because i hve CF.

I came here after watching 5feet apart for the 2nd time and it’s just 🤯 to actually see a real person with CF instead of actors it is just OH WOW

@adnanumar7424

4 жыл бұрын

I watched it 5 hours first time,very interesting and sad

@di-cleshead1994

4 жыл бұрын

me too :)

How is Molly doing now? It sounds like she is amazing and an example of what a positive outlook can give! Molly, I hope you are well and going strong. You go, Girl!!

I have CF so i can say that it is very hard to have CF and see others having a normal childhood and having to explain CF to the class when you cough. And because nobody really knew about CF me and dad would take my compression machine for show and tell on the 1st or 2nd day of school and explain CF to them.

Her positive attitude brings me joy

She's so positive.. God bless her♥️🙏

Am getting tested for cystic fibrosis June 26/19 am 31 male and I hope my current lung doctor is wrong I know I have only 49% lung function and I have weight gain blood pressure problems and blood glucose leaves are saying am pre-diabetic and a ultrasound showed I have a fatty liver as well so I hope my tests come back navgtive for cystic fibrosis

@sendhelp4402

4 жыл бұрын

Darrin's Channel How did it go?

@margauxvirra

4 жыл бұрын

While cf might be terrifying I hope you don’t worry about it too much it’s better to get a firm diagnosis with the proper meds than a wrong diagnosis and poison I found out I had CF after a moving to England after years of the wrong medicine which the doctor said made things worse since you went so long without finding out I hope that you have a mild case of CF as well...

@da3v1ls93

3 жыл бұрын

1 year on I think Darren is gone.. rip mate

Well done Molly :) You are such a beautiful, brave and smart girl. You deserve all the happiness in your life. Thank you for sharing your video. Wishing you all the best :)

Molly Pam's story is an inspiring one. She is truly a fighter who is striving to live strong! What a beautiful story. 💜💜💜

I hope this beautiful angel is still with us, god bless her and you all - life is precious

Hats off to this brave lady

thank god she still alive i reached out to her on insta

Wow truly wish her all the best my physical health is somewhat okay. Ive have significant skin problems and eye issues and vision deterioration not going to lie i whine/complain a-lot about the hand i been dealt, its very hard to maintain a positive spirit and attitude. She truly is a happy positive soul truly wish her all the best

Such a brave person

God bless you molly

I read the comments and see people claiming to have been diagnosed around 15, 20, 30, 35, 40 years old. I don't understand how people can be diagnosed so late. Don't you have a screening system in the US? I am from France and here we have newborn screening : when a baby is born, doctors take drops of blood from him/her on his/her 3rd day of life. These drops of blood are then analyzed and from them, 5 genetic diseases are sought including cystic fibrosis. So the parents are aware from the first or second week of their child's life. But I imagine it is different from a country to another.

@scottchegg828

Жыл бұрын

Completely agree. I've not long found out I'm a carrier of the CF gene so have been looking into it and it seems remarkable that people survive so long without diagnosis.

@marind10

Жыл бұрын

There is, in fact most cases are diagnosed at prenatal care, even during pregnancy. But I’m assuming they are exceptions. Such as in this case.

More power to you girl❤️❤️❤️ here me one of the cfer and I can completely understand this🤞💔

@Momo-bb2fn

3 жыл бұрын

how are you in your treatment?

@sumaiyashahid5532

3 жыл бұрын

@@Momo-bb2fn Won't say good but okay..

@Momo-bb2fn

3 жыл бұрын

@@sumaiyashahid5532 well at least okay is alive, wish you the best

@Momo-bb2fn

3 жыл бұрын

Just found this video again, how have you been how are things going?

@sumaiyashahid5532

3 жыл бұрын

@@Momo-bb2fn hmm things are okay!

I hope I don’t have it I’ve been coughing up mucus for like a month and my uncle has a mild case causing him to be infertile.

@oldaccountt9164

4 жыл бұрын

It's not only a lung disease, Cystic Fibrosis affects the reproductive system, lungs and pancreas. You should probably get that checked out, but Cystic Fibrosis is a genetic disease so I doubt you'd have it.

@ryleenovak3290

4 жыл бұрын

Ya you wouldn’t have it I have cystic fibrosis and it’s not just the lungs it’s everything but I can’t afford most of the treatment so it really sucks

@wonderlandisalanguage9646

4 жыл бұрын

@@ryleenovak3290 Have you tried doing a GoFundMe ?

I was diagnosed at 12, no issues or symptoms as a baby, infant or early child. How can that be in some of us ?

@roly5163

2 жыл бұрын

@Tgon Mwort How do you know?

Molly's doctor is soooooooooo CUTE!

@RavenBreeTaliatao

4 жыл бұрын

So true omg

@Momo-bb2fn

3 жыл бұрын

Molly herself is sooooo cute

@yourdaddy5876

2 жыл бұрын

😳🤯 whattttttt

I hate it ever get mucus so stuck in your nose or lungs and cant get it out?

I was diagnosed with CF at 38 and it’s been 14 years for me. I’m a patient of St. Michael’s Hospital in Toronto, Ontario, Canada where Dr. Elizabeth Tullis is the hands on Physician/Director in charge. I am unfortunately or fortunately (however you want to look at it) one of less than 5 black (Afro Caribbean) patients. I inhale 7% hypertonic saline solution up until the past month or so Tobramycin, but they’ve since stopped that because I’ve developed tinnitus in my left ear. I’ve now been approved for Trikafta so I’ll be underground a sweat test and a CT scan in the next two weeks before I start those meds. Exciting times. Just a quick question, what mask have you found effective?

@marthayamm1145

3 жыл бұрын

I have cystic fibrosis too and most of the medications that you were listing are the almost the same medications I have to do too. I was diagnosed with CF as a newborn. I am 13 now and it’s hard I’m in the hospital all the time. I have to take my albuterol, hypertonic saline, then I do my vest, following with my vest, Toby pod inhaler. I take a lot of pills too. I’m sorry if my spelling is a little off There’s a lot of medications I have to take and it gets a little hard to pronounce them. I think the most effective mask for me is the one that straps onto your face so you have to breath the Medicine in. I’m sorry you had to go through that and I hope you have a great life.

@yourdaddy5876

2 жыл бұрын

@@marthayamm1145 omg you are a warrior life is not fair. bad people don't deserve to live in this planet but unfortunate they live until they get old. And the good people like you deserve to live a nice life but you always struggle to survive life is not fair I'm with you.❤❤

Can someone explain me this.They diagnosed me with cf when i was 4 years.Im 15 now my lungs function are like 100-90 rly good,never had bacteria never coughs didnt get sick for 3 4 years.i only take creons btw i dont go usually to restroom im rly tall like 190 no problem with growth spurut and i train football for 9 years.can someone explain how did they diagonse me i feel fantastic...??btw only problem is i cant get rly fat im like 60kg but i dont eat much..

@gumballking87844

2 жыл бұрын

It could be that your CF isn't extreme at all so you barly have CF but you still do but that is extremely rare

@soulhunterrai6911

2 жыл бұрын

@@gumballking87844 yup im diagonsed with atypical CF or mild cf ;d

Five Feet Apart

@armanddiaz7932

5 жыл бұрын

Dhan Flores i came to see how real people deal with it

@sendhelp4402

4 жыл бұрын

Armand Diaz It’s honestly not as bad as they portray it to be, but it does depend on the type of cf you have. Me for example, I’m doing fine.

@amiking7687

4 жыл бұрын

send help its worse then in ffa for my fsmily :/ my lil bro is 9 and at a few months was on life support, at 8 had part of his lung removed, spends half his life in hospital

I can't cry but want to

I hope they make a cure

@gumballking87844

2 жыл бұрын

They are working on a cure and CF is caused by defective DNA and they have un-mutated DNA before in a different disease so the cure is kinda close actually and i hope it will be made before i get a lung transplant because i have CF and lung transplants are extremely expensive

Stay Strong Molly!

I'm am one who was told I Asthma but chronic infections resistance to medications and just not making progress in my health. Is forcing me to look in a differnt direction.

What are we supposed to do for the nausea

I have been struggling with my condition Primary Ciliary Dyskinesia. Is there anything that can help thin down the abnormally sticky thick mucus which is causing me breathing difficulties. Living in the UK with this rare condition is tough, as there is limited support and knowledge. I have tryed out hypertonic saline, Ventolin nebs, and take daily carbocisteine to thin mucus down. If any one can recommend something i can try, i would highly appreciate it. Thank you.

@gumballking87844

2 жыл бұрын

I have CF and water helps alot actually but only for some people but that is the only thing i know can thin mucus

God bless

Ivwonder hownis shebdoing now?

Am 10 and I know what for but that is Because i each 5 feet apart

@amiking7687

4 жыл бұрын

:/

Does anyone have any update on how she’s doing now?

i have the same nebuliser

@kevinnash7821

5 жыл бұрын

So do i.

how is she doing now?

I wonder where she is now

My little girl is 4weeks old tomorrow and she been diagnosed with c.f I'm so scared and sad for her

@daviminicheffpimenta1737

2 жыл бұрын

Por favor nao fique triste ou assustada , tenha calma . Meu filho tem 11 anos ele esta bem faz atividade como todos outros garotos , cada cistic Fibrosis tem sua historia a mutacao de meu filho e F508 mas ele esta otimo , mas desde diagnostico eu fiz e faço de tudo pra que ele esteja bem . Quando bebe meu irmao ajudou reformando o quarto dele pra garantir que nao houvesse mofo, ele espirrava se alguem tivesse perfume eu pedia por favor nao usem, eu pedi ao medico uma carta explicando a saude de meu filho , e mostrei aos vizinhos de pequena distancia ou grande pra que nao fizessem queimada nos lotes pois isso poderia levar meu filho ao oxigenio no hospital, faça tudo pelo seu bebe vc tera otimos resultados ,Deus abençoe voces sou a mamae do Davi .

@c.v6735

2 жыл бұрын

@@daviminicheffpimenta1737 English please sorry

@daviminicheffpimenta1737

2 жыл бұрын

@@c.v6735 Please do not be sad or scared, calm down. My son is 11 years old he is good is activity like all other kids, each Cystic Fibrosis has its history the mutation of my son and F508 but he's fine, but since diagnosis I did and do everything so that he is well. When you drink my brother helped renovating his room to make sure not had mold, he sneezed if someone had scent I asked please use no, I asked the doctor a letter explaining my son's health, and showed the short distance from neighbors or big for that did not burn in the lots as this could take my son to the oxygen in the hospital, do everything for your baby u will have good results, God bless you guys'm the Mommy of David.

@c.v6735

2 жыл бұрын

Bless you thanks for your kind words 🙏 ❤

How’s she now?

how's she right now?

She had no symptoms before age 10? Crazy.

thx for the info

I have cf

@cristinascholes6835

4 жыл бұрын

Sophia Sager what insurance do you have right now ?

Wtf. Why are people diagnosed so late??? I was diagnosed when I was 5 months old! Lucky...

@timotheechalametismyhusban200

5 жыл бұрын

There are so many different mutations of cf, some have it worse than others. Some people live with cf and don't even know it because the symptoms are so mild. There are also slow progressive cf, you could be born with it but only get sick later in life. It's very different for everyone

@kevinnash7821

5 жыл бұрын

I had a misdiagnosis in my mid 20's, then told 2 years ago at 50.☹️

@timotheechalametismyhusban200

5 жыл бұрын

@@kevinnash7821 I'm guessing it was late progressive if your in your 50s though!

@kevinnash7821

5 жыл бұрын

@@timotheechalametismyhusban200 wasn't bad as a youngster, but knew in my 20's there was something not quite right.

@catherinemoore3098

Жыл бұрын

My daughter was born in 2001 with a bowel blockage another blockage at 5 months old not diagnosed until she was 8.5 years old she’s nearly 21 now

Sonography said ...no evidence of bowel thickening ..may intestine be affected with CF ....having symptoms of CF .

Cute and strong is a thing.

Milestones were normal and immunization was complete..Read from

I have it I wear that machine

my mom a=has CF

Keeper

coming here after seeing the kid from tiktok speaking abt his prob

I just watched five feet apart and I thought they had t wear that Oxygen thing most of the time

she is FLAWLESS. I am a nurse and have some patiets with CF, there are also cases of a mild form of CF, those mild forms are not live threatening but nevertheless it sucks!!!

@gumballking87844

2 жыл бұрын

I have CF and it really does suck, alot

Go

molly is wrong i know what cf is and i am not even a teen

@maybaby2013

8 жыл бұрын

I think she means most kids. Yes some kids like you might know what it is. But many people like me for example don't even hear of what CF is until they're well into their 20's or older.

@w6467

6 жыл бұрын

That's cool. You are a smart young lady!

@robloxgirl5053

4 жыл бұрын

Me too I’m nine btw no hate

Diagnosed at 10 yrs old? That's add!

@MrRishik123

5 жыл бұрын

Ha. Diagnosed last year when I was 18. It was a shock to the doctors though.

@dustyydxsiesworld8281

5 жыл бұрын

I was diagnosed at. 9

@dorcasmaluta

4 жыл бұрын

I was diagnosed at 3 months, and I know a girl who was diagnosed at 3 days. 🇫🇷

@sendhelp4402

4 жыл бұрын

Mhm! It also depends on the type of cf you have.

@oldaccountt9164

4 жыл бұрын

I have most of the types I think, and I was diagnosed at a few days old.

I am 10 I was born with it

@funsport9984

4 жыл бұрын

I also

@oldaccountt9164

4 жыл бұрын

I've also been diagnosed, 9 and a half years old.

wow. im glad i dont have this

fishing

Glad I dont have this