mary, to be honest, i have no physical severe / restraining disease, but im struggling with depression my whole life and with the joy and positivity you live your life you are my number one role model. :) and it already improved my mood problems watching your videos and seeing you handling your life. ♥

@olivedog1880

7 жыл бұрын

Kala Halani that's nice to hear! I'm sorry u suffer with a chronic illness, I have chronic daily migraines, and it seriously hinders my life. it could always be worse tho :)

@kittymervine6115

7 жыл бұрын

When I first was diagnosed with RA, I suffered a lot of depression as I had travelled so much before, and I've even lost some friends that were "what you can't TRAVEL with us this year? What never again? How will you survive?" Mary taught me, that happiness can happen at home, in just a trip to the store, even the dollar store. I joke that since watching Mary I watch sunsets. She always is so happy and excited about a sunset. It's not small things, it's figuring out that there are no small things....that so much of life is worth being happy about. I know Mary has helped me and our family. My husband always wants his "Mary and Peter" update!

@Mydigitalcollages

7 жыл бұрын

me too! I do live with chronic and mental illness. but was having a bad day and watching Mary be so positive despite what she deals with cheered me up. I hope you feel better soon to

@2listening1

7 жыл бұрын

especially the dollar store, lol!

@joanneolsen5635

7 жыл бұрын

I agree with your comment.i had a hard day and your video made me feel better

I got my smiles for the day in while watching you two smile😘

Forever procrastinating studying for finals by waiting to watch the vlog first :) Thanks for being a great distraction!

Thumbs up for Chef Peter's Sizzle Sizzle Frey Frey! :)

I postponed my infusion until tomorrow, because tonight I'm doing something I don't want Benadryl to get in the way of - My aunt and I are going to the Hershey Theater to see the Sound of Music! I'm a huge musical nerd and I'm so excited!! My grandmother passed away when I was 4 (Dad's mom) and all I really knew about her was, she loved Julie Andrews and Sound of Music, when I can't sleep, I turn on Julie Andrew singing and can instantly fall asleep, her voice is so comforting to me.

@ReineDeLaSeine14

7 жыл бұрын

Sarah Van Orden hope you're having fun! I love The Sound of Music!

@sarahvanorden670

7 жыл бұрын

ReineDeLaSeine14 It was so good!! Just got home and probably should sleep because I have my infusion early in the AM

Peter, it is so refreshing to see a young man so doting over his bride with the most selfless attitude I've ever seen....and Mary, we can tell that you know how well cared for you are when you sweetly thank him for his services. It is so wonderful to see you laugh so often when your life as some bumps in the road that people without chronic illness don't have....Blessings to you both

I suffered from pancreatitis for 2 years and understand completely your struggle with food, with that said...you go girl!! Eat those muffins. =)

i love your positivity, seeing the light in each situation is truly a gift. You need to bottle and sell your vibes

I am a new subscriber to the Frey Life, I must say that I really admire you both, Mary for taking on CF and showing the rest of the world what daily life is like for you, I am in the planning stages of getting a mediport for my weekly infusions and I really found it beneficial when you share your port care both accessing and deaccessing the port, as well as what it looks like your information is better than many of the KZread videos on getting a port, you explain the port in simple terms and I like that! Hope you are feeling better and better each day, glad to see Ollie feeling better, I really enjoyed your vacation to Florida, the drone videos and of course your trips and tips at $ general. You and Peter and Ollie are such a joy to know (even if only through the Frey Life Vlogs). You are one of the last things I watch literally before I go to sleep and I truly enjoy watching you guys nightly. I laugh along with you and cringe when anyone of you get sick or aren't feeling great. Scary time when you got the flu Peter and Mary had to balance being a caretaker and keep herself from getting it!! As you say, good night and see you tomorrow!

You two are special, reading the comments it's nice to see how many people you have touched. thank you for letting us be part of your journey. I appreciate it. 😀

Funny, we (dutch) people eat pancakes only as dinner. But we make them much thinner and use the whole frying pan surface.

@reonnafaller290

7 жыл бұрын

xirisx1988 Interesting! Are they like a crepe? What do you put on your pancakes?

@marieked

7 жыл бұрын

xirisx1988 crepes, so lekker!

@Chloe-zh4ji

7 жыл бұрын

xirisx1988 We have those too, but call them Crepes! They are eaten as mainly a breakfast or brunch but some people eat them at dinner

@mntlhlthaddtnstilltrying

7 жыл бұрын

That's funny cause here in Aus we make big plate sized pancakes but the little ones are called Dutch pancakes

@rae1957tn

7 жыл бұрын

xirisx1988 sounds good!

i love your positive vibes you and peter give in your vlogs..mary,you are a real trooper and inspiration to the world in your positive words despite suffering from CF..Awesome you are Mary.

has Peter ever done a video on being a caregiver I think that would be a really interesting video just to get his point of view being a husband slash caregiver

@kathyabel5338

7 жыл бұрын

You two are so blessed to have each other. Thanks for making Mary chocolate chip panmucakes.

@mayragomez4241

7 жыл бұрын

Shelly Mcdonough I agree, I would like to see a video on his thoughts, worries, just where he is at with everything. It must be really tough on him as well.

@nicktheveganchick

7 жыл бұрын

Shelly Mcdonough I agree, that'd be a good video. He seems like such a good, loving husband - it'd be good for other spouses to see maybe how he deals with all the health issues. My husband is great at this as well, but I feel like it's very rarely talked about with others.

@IMChrysalis

7 жыл бұрын

Shelly Mcdonough, I can't remember which video it was, but Peter does kind of touch on this when he's trying to find things at the store that might appeal to Mary with her appetite issues, so you may want to scan through some of the past videos... and I think their faith has a great deal to do with the success of their marriage, too. They share those values so naturally...

@20Unbelievable06

7 жыл бұрын

+IMChrysalis +Shelly Mcdonough I think the vlog you're referring to (if it's the kind of recent one) is "CF HUSBAND FACES GROCERY SHOPPING CHALLENGES" maybe? :)

Agreed that Jim Gaffigan is hysterical! So fun to watch you both giggling! 💙

You just amaze me Mary. Even though you felt really lousy earlier on - it doesn't stop you getting on with life later in the day! Love your positive outlook and it's a great example to many 👍💜

I'm sorry Mary you had a tough day... But the fact you always take the positive out of the little things... You're an amazing human being. Thank you for keeping me sane and positive when I'm having a rough day xxxx

You have me obsessed with the muslin blankets. My husband bought fabric and made me one yesterday and already I'm like I need another in case this ones in the wash !!!! Thank you for introducing me to them and thank you for sharing you always are a bright spot in my day

You guys are so lucky to have each other, you're amazing together! Love you both❣

I really needed this video today. Thank you for sharing today - you are an inspiration just being you (the both of you).

Hugs!! I love watching you guys! Thank you for sharing your lives with us!

those exercises at high speed are hilarious!! You are such an inspiration to me and I enjoy your updates.

I have been watching you guys for about 6 months and absolutely love it! You guys are a beautiful couple.

The way you are always so positive about a lot of things is inspiring. I have spina bifida ( disability that effects the spine ) and I'm in the hospital a lot and your enthusiasm has helped me in more ways I can say.

We sure are worried about you we hope you start feeling better soon! ! We will keep praying for you guys !! All the best! !

I love how humans throw our heads back when we laugh. 😂

@leeleah8167

7 жыл бұрын

este britt I never realize that. I wonder why we do that

@cupcake5309

7 жыл бұрын

Lee Sanchez nightcrew no clue really such an interesting idea probably to inhale more oxygen but ive no idea!

@michiganmom857

7 жыл бұрын

To take in more air

@joannebonnette4769

7 жыл бұрын

you both are an inspiration.

Benadryl makes me feel exactly what you were describing. Supposed to help sleep but nope, lol. I have chronic heart and lung issues and I pray to be able to deal with them with the grace and outlook you do💜 I do well most days, but every now and again I have mini melt downs, lol.

Peter you are a gem of a husband and Mary I'm praying for you!

Peter you are #husbandgoals. you are great at diy, cooking and a true caretaker. im so happy to see such a lovely couple!

I loved watching you guys laugh together in fast motion.

awww I loved the montage of you guys while Mary did her vest. you guys are too cute!!

Sorry Mary that you had a rough infusion day. I've felt that way with my infusions of ivig. From others who have had ivig longer than me say when your immune system is really down/fighting a bug it's harder on your body to accept the ivig. I hope today was a better day. I admire your strength & Peter's strength as well. I use yellow heparin in my port line. I'll find out in April what brand port needles they use because you liked the purple tubing on my port last time I tagged you when I had a needle in my chest, lol

Nice husband as always , you are such a champ Peter , May Just God Bless you for all you do.

i love the way you 2 love each other you are a joy to watch.and Ollie too of course lol xxxxx

Mary- your blankets look so light and soft. Makes me want one every time I see you snuggled in them. LOL

I have nothing profound to say, I just wanted to tell Mary and Peter what amazing people you both are. Ollie too of course. You all are so loved ❤

Im glad you felt better as the vlog went on Mary. and thumbs up to you Peter for making those delicious muffins and beautiful dinner, woohoo, Mary you ate two! and Mary, I love the happy very appreciative smile you gave to Peter when he handed you a muffin. :-) so cute. I know why you were crying Peter, maybe it's the aftermath of cutting the onions! Love and hugs to the 3 of you, see you tomorrow!

Mary, Glad you were feeling better by the end of the vlog. Peter, I love the longer days. I wish it would stay this way all year. We only lose one hour of sleep for that one night we set our clocks forward so it isn't that bad. Our days are still 24 hours :D

Love stand up comedy. It's so good for the soul to laugh (as you both know). My two most listened to stations on Pandora are stand up comedy stations and Shinedown. If you're ever having a rough day check out their song How Did You Love? or any of them really but that's one of my current favorites. It's about no matter what you say you believe or what has happened to you, the thing people will remember about you most is how you loved others. Just a powerful song. Have a wonderful evening!

Your music always makes me dance! Love it.

I subbed to your channel not too long ago.. a girl close to where I live named Libby recently passed away after her new lungs went into rejection.. I want to learn more about CF.. and bring more awareness! So excited to follow your story

I remember how much exercise in general makes you feel good but yoga is like a bonus extra good & relaxed but worked out. I miss being able to do any physical activity greatly. Now off to binge catching back up. I ended a small bit into "rehab house". Not sure why I stopped binge watching. But back to it!

Im so sorry you are having a hard time with the IVIG's this time around :( I completely know what feeling like you want to crawl out of your skin from medication you unfortunately have to take, and its not fun :( Always keeping you guys in my prayers :) Thank you for being you!!!!

I'm glad you didn't have a major issue with IVIG! It's good to see that smile, too! Have a blessed evening friends!

I looked up your other video, Wishing I could crawl Out of My Skin, but I guess that time it was from something different. I'm sorry to hear that you feel like that again! Feel better!

I'm so glad that Mary has an appitite:) ps the tacos look really good!

awww,mary i hope you feel better..yeah,i understand wanting to crawl out of your skin i feel that suffering depression and PTSD..

Sometimes it's the little miracles in life we need like accidentally buying muffin mix and having them be amazing

Oh Mary! I have missed watching you 3! My phone was out of data earlier than usual (woops) so I've gotta get caught up! I hope Ollie is doing ok. ♡♡

So good to see you both laugh.

hang in there,Mary. you are such an inspiration to me x and I'm sure many others. always keep that pretty smile and positive attitude. much love to you and peter. oh I can't forget Ollie boy. ;))

I love singing along to the "good morning" song 😊

I wish I had Peter's speed in the kitchen! Dinner and dessert looked yummy!

Hope you are feeling better Mary!..Happy to see Ollie is feeling better :) ... I just found out my cat ive had 10 yrs has a tumor of the jaw bone :( there is nothing that can be done....I took her to another vet for a second opinion...but alas the same news :( ....now im craving muffins!..your vlogs always make me hungry! :)

I LOVE YALL SO MUCH!!

Poor Bonsie can't hear the funny dialog when you wear headphones! LOL

A few years ago I developed a weird reaction to Benadryl that made me feel like there were ants under my skin and I wanted to tear my skin off. It was awful! Not sure if it was the same thing you experienced but if it was I am SO sorry because that was the worst feeling in the world to me. 💜

@courtneylovesreading4116

7 жыл бұрын

Laura & Jeremy Oh my goodness! That sounds terrible!

@RussellsWench

7 жыл бұрын

The same thing happened to me! I haven't touched Benadryl in several years now because of it. I had an allergic reaction to a lotion last year and I just had to use ice and tough it out because I refused to take Benadryl again!

@steffy20lea7

7 жыл бұрын

IV Benadryl is the worst!! It makes me feel really restless and the "ant" feeling as well! I can take oral ok but the IV dose feels yucky....

@CelestaII

7 жыл бұрын

Oh wow! That sounds terrible! I couldn't stand it!

@nicktheveganchick

7 жыл бұрын

Laura & Jeremy Oh wow, that sounds terrible. I only took it one time (a doctor suggested that it might help with my dizziness). I guess it kind of did because I was out cold for 21 hours lol! Never again. I never thought something like that could be so strong.

When I take Benadryl or Reglan I feel like crawling out of my skin. It's the most insane feeling ever!! And I sing your "life with a needle in your chest song" all the time since I have one in 24/7 for TPN. It's a catchy tune!

you all re sooooo inspiring keep it up :)

Pray feel better ms Mary and have a bless day Frey Life God bless

im sick today and watching you laugh is making my day! love you guys :) i love that pancake mix I'm glad to hear that the muffins are good too !!!!!!! peater you out did your self mary is so lucky to have you!!! p.s you are getting stronger or more confident when you are doing yoga merry!!!! :)))

Feel better Mary hugs and kisses 😍😍😍😍💕💕💕💕

I had no internet for two weeks I missed you so much!!

You are both wonderful. I pray for you both.

I admire how you two seem to find fun and humor even in bad circumstances. I have been living with chronic illness for over 9 years now. my husband works long demanding hours. we really struggle to communicate and find things we can both enjoy with my physical limitations. could you give any advice on how you keep your marriage strong and keep a positive attitude living with chronic illness

"Sometimes you just wanna mix it up and end it in the bathroom" ROFL!

I hope you are feeling much better after the IVIG infusion you did. Now I'm craving pancakes for dinner. I need soft stuff until I have some dental work finished out. I have been struggling with various infections for months--now dental from secondary Sjogren's. In pain and exhausted and afraid.

I've felt that way before it's the worst hope you feel better soon

god bless you three, love watching you

It is interesting how protocols differ. My dd has a tunneled central line, and we flush it with 3 mL of blue heparin once every 24 hours. We only use saline after IV meds or after drawing labs. We were also taught a specific way to scrub the caps: 15 seconds on the end of the cap with a Chloraprep, 15 seconds on the threads of the cap, and 30 seconds of drying time.

you take such good care of Mary. I feel like she wouldnt be nearly as healthy if you werent such a good hubcap! God bless.

@kimmicook1

7 жыл бұрын

Judith Brummett gotta love auto correct! Peter is a good hubcap. Lol!

@JudithBrummett

7 жыл бұрын

oopsie! it wasn't auto correct. I call mine "hubcap" instead of husband. lol.... He even answers to it after 30 years hahahaha I just didn't pay attention to it as I was typing.

I wish I had a man like Peter!! Your an Angel. Nary deserves you. God Bless Mary and Peter and your challenging path. My man doesn't come close to understanding chronic illness and the need for inspiration instead if the feeling of being a burden. My husband is no Preacher but He pretends like he's one. Oh well! xo

That onion cutting!! Haha I find it easier if you split the onion with the stem going in half so each half stays intact, then make slices not all the way to the stem one way, and then cut the other way. Perfect cubes!

My first round of IVIG made me feel that way. I remember telling my doctor when he checked on me that my head was "buzzing" and I still had two hours left to go on the infusion. And of course the Benadryl adds another element of feeling weird. Hope you're not feeling it today!

Sometimes I have a reaction to Benadryl that makes my skin crawl. It's an unnerving/anxious feeling. Yummy muffins!

Hey guys, you may not see this. Im new to your page. I've been watching and trying to catch up. as someone who has a genetic condition herself, I just want to say how inspiring you are Mary. I really enjoy your vlogs. thank you guys for sharing with us! I had to comment on that's why I'm because I happen to be a pharmacy technician and I work for a home infusion pharmacy, IVIG is what I do. also and by the way thanks for mentioning about shopkick. I started using that app pretty cool and I'm having fun with it! Have a great day! :)

Peter just so you know you can still make pancakes with that mix! :) I'm gf n make pancakes n muffins a lot and it's very easy to swap it! depending on what the muffin mix calls for(water only vs milk and eggs ect) you might have to play around with it a bit, some add extra flour but I never did. I actually make a lot of yummy pancakes with oats! you just take regular quick cook oats and toss them in the blender for a min to make oat flour and then add some oil/butter, eggs, n milk! I love making them with pumpkin and some creamer mmmm! I've actually made some pancakes out of cornflakes and hot cocoa before bc that's what we had and I had a craving lol so just a heads up if you happen to want pancakes again and only have muffin mix. :) hope you are feeling better today Mary!! I know what it's like to want to crawl out of your skin and it's miserable! :( praying you're feeling much better today! 💜❤

@CelestaII

7 жыл бұрын

I was going to comment the same thing! If we ever need to make some quick pancakes we just use muffin mix. Works perfectly everytime!

Hi guys. Could you show a snippet of how Ollie does some of his service work like when he brings Mary her Meds. I did see him put his paw on Mary when her blood sugar was low which was amazing. 🐕🐕🐕

Hi you guys, I love your videos so much! You all are a inspiration to me. I even named my dog Oliver because what a wonderful dog your dog is, and the channel is so amazing!! Another question can Oliver be near you like right beside you when you are accessing your port, or doing anything that needs to be sterile? Ps.. You all are awsome

My daughter is gluten free and learned to cook using King Arthur brand. It's hard to find really good gluten free carb mixes. This brand is exceptionally good!

Praying for you Mary

hey I am on IVIG. I often find when it runs to fast I have your symptoms. We then have to slow it down. how often do you have ivig? I have once a month for a 5 day treatment. Enjoy your dinner. yum. thank you for keeping me going in hospital. you both so real and fun at the same time.

@nicholewilliams8682

7 жыл бұрын

Ya fellow IVIG person here. The rate can make you feel sick. My favorite thing is when the rate is perfect and the drugs work and I sleep through the whole thing and wake up kinda refreshed. I call it my IVIG time travel. My nurse just shakes her head at me.

Does the infusion seem to help? Labs showing any improvement?

Love your videos you make me want to make videos like yours I am also struggling I have some chronic illnesses and I'm constantly in pain and on top of it I have a birth defect called cystic hygroma and I have a trache and gtube I think you two are amazing! ❤

I love your channel & I just subscribed! Mary is such an inspiration - always has a positive attitude even though she's going through so much. Thanks for being a great example of a Godly, Christian marriage - and your designs are awesome too! What editing software do you use for your videos? have a great day :)

Peter since you dont have much ounter space why dont you get one of those moveable islands to use in the middle of kitchen so you have more prep space

❤🌟feel better Mary🌟❤ hope its not a reaction to any medications!! Boo on feeling yucky!!! Breakfast for dinner is yummy thing to do. Especially when you don't feel good and want something on the lighter side. Taco (layered dip) & pancakes (aka: muffins), that's different!! Sometimes a muffin mix can be used for pancake & muffins. 🙌Go Mary on eating the muffins🙌 lol, "where's the chocolate chips you speak of?" The way you said that Peter was like you didn't know what a chocolate chip was. Like it was something new. lol

oh you two are so cute 💞💞💞💞

I used to use the yellow heparin daily and was told blue was for kids and shorter lines. They wound up turning my blood to soup and my line clotted after a year and a half anyway. I couldn't draw back to take it out either. It's now listed as an allergy, and my new port is made from material that repels blood and tissue and has a Groshong type valve on it so I don't have to be accessed every day. When I had the old one after I was taken off heparin locks, I had to flush every 24 hrs with saline, but my new port doesn't allow blood to enter the line unless I draw back due to the valve. I actually get blood return now lol.

Love you Frey Family

Those muffins look great, Peter!

You can use the muffin mix as a pancake batter I have done it and it works.

I have a PICC line and i flush with a 3ml yellow heparin 2x a day. Its interesting that different doctors/nurses tell you to use different things!

you don't need a boxed mix to make pancakes. They are the easiest thing to throw together....flour, egg, milk and a bit of canola oil, and most importantly baking powder.

The first homecare company I used had me do a yellow heparin after each infusion (3 days a week), my current homecare company out of my children's hospital has me do a blue after my infusions (which are now daily and before they were daily they had me flush with a blue if I was accessed but did not infuse that day) and I only use a yellow when deaccessing even if I get reaccessed a few hours later

OMG I am totally eating pancakes for dinner as I am watching this 😍

I love you marry I hope you feel better

I'm home sick today with bronchitis and watching this made me feel a little bit better

If you ever wanna make quick pancakes, use 3 eggs, 2 mugs of milk/water/almond milk and 2 mugs of flour (use gluten free mix if you want, I do too =) ) plus a little sugar if you want to and mix it together and you've got pancakes like my grandma used to make them! =) ((I always use middle sized coffee mugs to make measuring easy, the size doesn't really matter it just depends on how much batter you wanna have, and liquid and flour have to be in equal proportions; or if you use big mugs just use more eggs so the colour looks kinda yellow like normal pancake batter, cause the eggs really create the pancake flavour.)) Lots of love from Germany :)

Laughing montage is cute

Yeah I use a yellow heparin once a day in an unused lumen :) But most hospitals inpatient opt for a blue heparin every 6 or 8 hours instead. But the less times you access your line the better for infection control so hh does yellow for me

@S.B.2011

7 жыл бұрын

Brittney Davison i flush with blue daily after my iv hydration is done and only use yellow before deacessing once a week.