Tell me your best stories- stories about leaking- feeding tube, IV, bathroom stories (if you’re brave enough :0) anything! Let’s all laugh together at #REALITY . I’ll tell you my story... it happened about 12 hours after this video (aka this morning)... my feeding tube DID explode. Hahahaha. Oh my. Just gotta laugh.

@haleyrose_elm

6 жыл бұрын

One time I was getting ready to leave the hospital and showered earlier that morning, and a nurse ran into my room freaking asking if I was okay, I had flooded my bathroom out into the hallway.. In my defense the shower was flat and didnt drain well.. I was busy singing my worship music and I didn't even notice til she came in lol

@davegoodridge8352

6 жыл бұрын

Which exercise video do you like. My wife doesn’t get around well at all and maybe I could do one with her. Thanks

@ciaracheyenne5565

6 жыл бұрын

I had an IV in my hand to get a Remicade infusion and I was just doing my thing and I feel something wet and my IV had kind of went backwards a bit and was leaking and I had bloody Remicade all over my hand. Not too exciting but it happens sometimes. Also when a nurse blows through your vain with the IV and doesn't notice until your hand starts bubbling up from the fluid 😬

@arayofsunshine4556

6 жыл бұрын

The Frey Life Please listen to Andra Days ‘Rise Up’ ( inspirational video) It’s such a beautiful song that I think both of you will enjoy. Get some tissues tho.. ♥️

@cillianblue

6 жыл бұрын

I use an insulin pump and one day I was lying on the couch watching t.v. and the tubing as hanging out of my shirt. LOL At some point, I looked down and couldn't understand why I had two tubes instead of one and they were both open . My cat bit through the tubing! LOL

I want a Frey Life T-shirt that says “toodles, poodles” 😂

My 4 year old son just got a feeding tube a couple weeks ago.. His doesn't leak. He's doing great and has already gained 8 lbs! He has CF as well. We just had a 19 day stay in the hospital and barely got out before Christmas.

I know you hear this a lot but i have to say it your both adorable and a huge blessing for those who deal with a chronic illness. Thank you!!!

@thefreylife

6 жыл бұрын

Nikki Mitchell thank you Nikki!

Peter, please be careful shovelling snow. You do NOT want to hurt your back. ❤️

Oliver is so gorgeous! especially with a the snow on his little nose x

All service dogs need time to play! 👍😉😍

@Cece0826

6 жыл бұрын

So true

Oh my goodness! I laughed when I saw the lights under the snow. That is so stinking cool. That should be a thing...

All that snow looked like it was straight off the set of a Disney movie. It was so cute to see how much Ollie loves playing in the snow. I have a Supa Pubic catheter and I've lost count of how many times carers have ended up with my urine on them wen they have helped me with me catheter care and wen changing over collection bags we have forgotten to switch the valve up so there is still pee flowing through. Luckily my carers all have a great sense of humour so they laugh and I don't feel so guilty for "default peeing" on them. I no what you mean Mary about that ache/pain you feel after exercising. I really like it cos in my wee head it shows I've worked hard. I'm a wee bit nervous cos I the morning I'm going back to wheelchair tennis training after our 2 week Christmas break. Sending you loads of love from me and my furbabies 💜🐶🐶🇬🇧

Been hearing about the weather you guys are dealing with! Sounds like some crazy wind and snow! In my area it's just very cold. Windchill advisories...but no snow and I'm thankful for that! Stay safe and warm!!

hi Mary nice to see you in the snow. The best story I can tell you was when I was pregnant and had to have bed rest for 2weeks I needed to go the toilet, but I had cramp and could not get out of bed because of the baby bump.so the picture is me trying to get up without wetting myself and hurting with the cramp in my leg.needness to say I did not manage to go in time!!!!! Time to share things with your love one!!! Love you all lots could I send you a picture of my dog Sheba?

3:32 Peter! That is SO cool! What's even cooler is that, I wonder, did they even charge up through all that snow also??

Always old and always cold😂😂 love you guys❤ it's colder in NJ then I can ever remember but blessed to be alive😇

Ah I do love seeing different definitions for things. For you guys, a blizzard is what we Icelanders call normal winter weather. 😊 A blizzard here is like 45-64mph winds and snow and you can’t stand or see. 😬 But that’s just life isn’t it 😊

@loiscassels8966

6 жыл бұрын

Mimi Hrafnkels I had a trip to Iceland this past October and simply adored it. I lived in Inuvik, in the Canadian Arctic, for years and this trip made me want to move north again❤️. My friends think I’m nuts.

@CelestaII

6 жыл бұрын

We live down in the south and a blizzard would be a few inches of snow... We just got snow here day before yesterday for the first time in years! It was so magical!! 😊😊😊

@Kaalyn_HOW

6 жыл бұрын

To be fair, I live close to them and I wouldn't have called that a blizzard either. Just heavy snowfall. I think they were just being silly/dramatic for fun, not serious. Where they are, they def KNOW what an actual blizzard is like.... where you can't open your front door. Edit: But we are also in a wild arctic storm at the moment, but that's mostly resulting in extreme winds and -30°F temps. So there are some legitimately dramatic things happening even if the snowfall is normal! :)

@lauranorwar

6 жыл бұрын

I know this is old and I’m a dork but I needed to know what actual blizzard conditions were: strong sustained winds of at least 35 miles per hour, lasting for a prolonged period-typically 3 hours or more. So...there ya have it. Random winter trivia.

My feeding tube froze bring groceries in today!

Hahaha! Mary when you said "Sphinxter!" my boyfriend said in a high pitch voice...MARY!!! hahahaha! That was so funny!

@kimberlyearly8918

6 жыл бұрын

Moriganna Brown I thought it was hilarious when she said that haha!!

@moriganna67ify

6 жыл бұрын

Kimberly Early IKR! I never would of expected that of sweet Mary! Hahaha She is so funny. I love that she is so down to earth and real!

You guys snowed in? Hope you are doing ok. Stay safe and warm. What is up with the flooding too? I guess will find his ball this spring. hehehe

I discovered that trying to shovel over a foot of snow with PoTS is a really bad idea...

I just want to say this channel has helped me realise how grateful I am to be so healthy and I know I don't deserve it .Mary is one strong woman I have a nine year old cousin who I babysit a lot she has cf and it's pretty bad if I had not come across this channel I wouldn't know as much about cf as I do now I have been able to help my cousin and her family and she looks up to Mary and peter as she knows a lot about her illness and wants to be so hopeful and happy as Mary and peter are her service dog is still in training but with out your videos we may never had considered a service dog so thank you so much you've changed her and her family's life's for the best she really has learned a lot about her illness from these videos so thank you

Mary, the best way to grow lemon from seed is to peel the seed skin off. Put it in a paper towel and wet it a little bit. Fold the paper towel up and put it in a plastic bag. Then put the bag in a warm location like the oven or microwave for a couple of days and it’ll germinate in a couple days. From there then you want to put it into moistened soil 👌🏾❤️ I’ve been meaning to do an update on this. I showed in one of my blogs how to start the process.... now to catch up on your vlogs! ❤️❤️ Love you guys! 💕

You all are too much fun! Happy New Year! Much love.

We have had snow for the first time in 4 years down in South Carolina! It's been so magical! My youngest finally got to see it for the first time! 💙

The snow looks so magical. It's been so freezing cold here this winter with minimal snow, which bums be out because I'd love to get outside and go skiing. We are going on like 2 whole weeks of negative temps.

You said you were looking for ways to eat mushrooms, a steakhouse I grew up going to had an amazing mushroom dish appetizer. I found out it was quick and easy, and has a really good steakhouse flavor and you can adjust it depending on your preference; cook mushrooms and caramelized onions together, then simmer together with a little beef broth or water, with a dash or three of Worcestershire sauce and a little soy sauce. Start out with small amounts, and add more of less to your preference. Love serving it over steak or prime rib! I’m a huge mushroom fan though, but I think that dish is why I fell in love with mushrooms as a kid! Your dinner made me think of that! Stay warm!

I sooo agree with you Mary, "the 10 more" can be defeating at times. Love you guys.

I absolutely love your videos! They are the highlight of my day. I struggle with a number of physical pain issues as well as PTSD. Thank you for the insight into your lives! Oliver is adorable! God Bless!

Oliver is so cute in that red coat

Love the snow storm Peter. Send some our way out here in Crazyfornia. Ollie looked like Santa with his muzzle all covered in snow. So cute! You did the steak medallions for dindin and I just cooked hubby and a surprise guest tri tip covered in onions with large prawns, broccoli and a nice salad with Dutch crust bread. It turned out soooo yummy! BTW, love your lounge music while cooking and Mary, love the purple vest. My favorite color. I always say if God allowed us to be any color we wanted in heaven, I would want to be a deep rich purple color. It's my jam, man. LOL! Stay warm ya'll.

Amazing that you have so much snow, while here in western Sydney, we're expecting temps up to 43c/110f tomorrow! Love watching Ollie play in the snow. Wish my little shih tzu could experience that!

You made it out in the snow! Not very far and not for very long, but you were out there!

I love when u two say it together. Thanks for saying it again Mary!!

Just came back from my grandfather's funeral... thankfull for your vlog !

@thefreylife

6 жыл бұрын

Lynn Ngn oh I’m so sorry to hear this. I hope our vlog reminded you that you’re not alone in this journey!

@glendaruff125

6 жыл бұрын

God Bless you Lynn.

@Flo-cy4xc

6 жыл бұрын

Thank you for all your sweet messages it means a lot !

@arayofsunshine4556

6 жыл бұрын

A giant hug to you Lynn ♥️ I’m sorry for your loss hun..

@lauranorwar

6 жыл бұрын

Sending love and strength.

I love Ollie’s snow beard! If you’re looking for an encouraging workout video like that, try fitness blender on KZread.

Omg look at that blizzard!! 😮 I saw some images on Facebook and it was showing a vortex of white 😬 That dinner looked yummy 😁 Please stay safe and warm you guys xx

Isn’t the snow amazing?! I live about an hour and a half south of you guys, right on the water, and my entire cove is frozen over!

@allisonward958

6 жыл бұрын

Also, it’s not 2017 anymore, it’s 2018 (the date in the title says 2017)!

I've been watching about storm Grayson ... Wow! You guys stay safe, warm and inside!

your guys are adorable I hope you are okay with the blizzard all we had is couple inches and more to come in Springfield, IL but the temp been very cold so it was inside for us all, I love to watch Peter and Oliver outside in the snow it is fun

ok, my rheumatic condition can make my veins weak PUT A PIN IN THAT and so I was dying my hair and the hair dye when it prosseses looks like blood, (can you tell where this is going?) anyway when i dye my hair i use the glove as a hair holder so i make a pony tail on the top of my head and roll one of the gloves inside out to hold my dye filled hair off my shoulders, it looks like a hand waving on top of my head full of bloody hair, it drips down my face a little making the look even more ghoulish ok so i finished putting dye on my head, made my pulled it through the glove and jumped into the bathtub figuring after the dye time was done i would stand up remove the glove letting my hair down and rinse the dye off in the shower. But i decided to shave my legs and the water was tinged a little red and i thought some hair dye had fallen into the water, not worried im taking a shower RIGHT/ WRONG so all of a sudden i heard like a high pitched tinkling sound and i looked around and what looked like the red hair dye was spraying onto the shower curtain liner, where could that be coming from i thought, i put my hands up to the glove on top of my head nothing was leaking certainly not spraying so i followed the spray to see where it went as the tub is turning redder n redder and followed the spray down to my ankle. I realized i had nicked my vein and that was my blood i was sitting in a tub of my own blood. I SCREAMED JEEEEFFFFF for my boy friend who ran down the hall panicked, opened the bathroom door to see me sitting in a tub of blood spraying like a fountain naked with what looked like a leaky bloody glove waving at him on the top of my head. HE SCREAMED, and said WHAT HAVE YOU DONE TO YOURSELF? AND like me I started laughing and he ran and got towels and is pressing on my ankle and saying it over and over WHAT HAVE YOU DONE TO YOURSELF? WHAT.... I,m sorry yes I was scared but i could only imagine what he saw when he opened the door , I couldn't stop laughing! #reallife

I love when the "GO" sweatshirt makes an appearance!

We got a ton of snow too. In Virginia beach VA, we are not used to it!! great video you guys!! 😄 little Ollie!! ❤❤❤

Love your daily videos! Quick question, who do you watch for your workout videos?

Happy Friday!

We got up here 1 1/2 feet snow in that lovely snowstorm how must snow did you all get down there I live in New Brunswick Canada..

You need to open the hard seed casing around the actual seed of a lemon. Hopefully you knew that before hand. If not it could take them forever to come out o r not at all. FYI. I learned that the hard way. Also don’t be shocked if it just becomes a mixed citrus tree if the do take. Apparently lemons and orange seeds don’t make the same as what the come from. Bc most are genetically modified.

That snow looks like so much fun'

We got a foot of snow in Pittsfield..I was thinking about you guys..lol.

Where are yalls plaid pajama pants from? I love the matching and they look so comfy!

Does your feeding smell at all ? I just got mine and it smells like yeast. No infection and clean dressing everyday but still has that smell to it. Also what do you use to clean yours?

12:46 "... all jejunum breaks loose"?

This is so random but have you ever thought if you would have named ‘Olly’ Paul then you guys would be Peter Paul & Mary...lol!😂 You guys were way to young to recall the musical group back in the 60s...any way thought that was awesome😊

I get what you mean with exercise, I often think about with my 10 song work out twice a week on Just Dance and the whole idea of being active 60 minutes a day everyday, should I hold myself to the average person's ability. I just create my own amount to be active

Mary,.how do you motivate yourself to exercise on days when you don't feel well or are just feeling really tired? I really struggle with that...

Oh my goodness!! That dinner looks so good!! 😮

So today we will be cooking with Chef Peter!!!! For real

✌️🤣😂Mary I love how real you are. Haha Peter ‘this is headed nowhere good’ LOL life sometimes is too funny. Sending love your way! ❤️❤️❤️ do you think you will work something out with the team frey Life video soon? Or give a update on that at least. I understand it takes time, just hope it’s not a no go or something.

ربي يعافيش

I just bought mushrooms at the grocery that steak looked fantastic and your gravy with the steak and onions stay warm God bless

it's so cool to watch this blizzard where here in australia its 41 (almost 106F) degrees today!! i could melt all your snow real fast!!

@loiscassels8966

6 жыл бұрын

Erika E I’ve been in 50 above and 50 below, C. I must say I can tolerate the cold better than the heat. Stay cool.

@kimberlyearly8918

6 жыл бұрын

Yikes!! I think I would die!

@pinkham4corgis

6 жыл бұрын

I don't know how you deal with that! I would much rather have my colder Michigan winter. Sending you cool vibes

Who is the workout person you watch? I love to work out, but it is more like physical therapy in my case and that persons outlook sounds awesome!

Never noticed the letters on your comblr are so cute and fancy lol!

you guys, on the belgian news, one of the important topics of the day is that there is so much snow in the USA. With that book about the president, there had to be a reporter in front of the Trumph tower, and that man looked hilarious with his huge hat all snowed in from the wait until it was up to him to say his thing. We in Belgium have not seen so much snow in recent years. And I am also a fan of snow like you guys. Fortunately, it has snowed in december for 2 days in Belgium so I've also been able to enjoy it a little. I have recently become paralyzed, so I had to find out whether I got through the snow with my electric wheelchair. The nurse came to get me out of the snow (lol) because I was stuck. I Have vlog from that day: kzread.info?video_referrer=watch&video_id=gqR6aHsbJkU (I'm new vlogger) but it is in Dutch so you can only enjoy the view. Now I enjoy your vlogs with snow!

What workout videos do you use?

Would it be possible to tell us who makes the exercise video's you use? I am having a hard time finding good ones.

Can you tell us what video are you watching for your work out?

Awe Ollie zoomies and play time!

A friend's son is in a wheelchair and unresponsive. She put the Christmas tree up and realized there was a squirrel in it. She wheeled him out the door and left it open while she ran to get the neighbor to help. As they got back, the squirrel ran out and jumped up and ran across his lap and pulled out his g-tube! Of course, it was a Friday and of course, it was after office hours. No one in the ED believed her!

@janaye7iverson

6 жыл бұрын

Susan Krainik oh my goodness what? Crazy!

have you ever flushed the tubing after you have finished using it to see what you cartridge looks like after 24 hours? if all of the enzyme is gone?

What workout videos do you use

question (sorry for 2nd reaction). I'm going to get a service dog (so exited!). And I wondered: do you have to protect the dog's legs against the snow? Or can they resist? I'm getting a labrador.

I have really bad ibs and it effects my everyday life and I once (warning tmi) plugged my friends toilet because I have not gone in about a week and I sat and cried because I was in pain and didn't know what to do because they had no plunger so I gave her money for a plunger and left crying ):

@eej1983able

6 жыл бұрын

BANG TANG Daddies awwww im so sorry. Ibs is my curse too i thought i was going to clog my toilet on thursday since i hadnt gone in 2 days.

I love to see your kind hearted loving marriage #GOALS!

Did you get a new vest I swore it was blue and it looked purple? Love your channel and love all of you.

@oliverlikescats4736

6 жыл бұрын

Happy Princess yes she got a new vest

I wonder every video almost, but where did y'all get the GO sweatshirt? Was it a church and/or missions-related shirt? I love it, and it looks super comfy! Stay safe in the blizzard guys!

@LymeStealsGodHeals

6 жыл бұрын

Oh! And there are valves inside buttons, gastric or jejunal (or both) to prevent the back flow/explosions.👍🏻

@LymeStealsGodHeals

6 жыл бұрын

I know y'all mentioned it, just wanted to tell you you're right!

@MimiKDuff

6 жыл бұрын

Lyme is Lame If I remember correctly they found it at a thrift store 🤔

@ashleycunningham8475

6 жыл бұрын

I think they have said before that it was just a sweatshirt they picked up at a thrift store like goodwill and it’s just really comfy lol

Mary: "Ahh, it's blewing!"

TheFreyLife do you watch Yoga with Adrienne? She's who I watch (when I do my routine, lol, I've been outta practice a few months) and who you're describing sounds a lot like her! Anyways hope y'all had a good Christmas and New Year, may God bless y'all with good health and great times! :)

Record low here today 8 degrees. Piedmont area of NC.

I am anxious to start my spring flowers, I have little starter pots from Walmart, I wonder if I could start them now. Well, I won't go into details, but let's just say prep work for a colonoscopy is no fun, 😝😩

@kimberlyearly8918

6 жыл бұрын

Terri's Thrifty Finds I agree!! I had my first one at 38 and have had two more since. One of those times the prep stuff they gave me was different and I swear I thought I would die!! I literally took my daughter’s fold up round chair in the bathroom so I would be as close as possible! Let’s just say there were lots of tears!

Most of us Vermonters don’t have school!

Hey Mary perhaps you can answer this one: are the infections you struggle to get rid of from your lungs just bacterial or are they also viral etc as well? Like clearly antibiotics dont fully “fix” the infection your constantly fighting... is that because its just not the right antibiotic or because its viral or something?

tThat's just called winter in Winnipeg Manitoba Canada. last week we hit -45c. this week it's been a balmy -30. That's with the wind chill factor.

@MusikGirl23

6 жыл бұрын

Maria Dias I’m in Winnipeg too. -20 is feeling warm.

Peter u look like an awesome cook 😁😁😁😁😁

Where did you get your striped purse, I remember you guys doing a video about where you got it online but I can’t find the video, I’m really thinking about buying one soon

@jaytee2642

6 жыл бұрын

betterlifebags.com :-)

Ollie's vest/jacket is so cute, where is it from?

you need to change the year it not 17 it's 18

Right around 8:13, Ollie's eye is shaped like a ❤️

Doesnthat make you feel very full when the pump runs? Does it give you stomach cramps when it goes all day and your stuffed?

@16050390

6 жыл бұрын

it doesn't go into her stomach so I wouldn't think so. I'm not entirely sure, here's is a j-tube and i have a g-tube and my stomach gets full

How was your steak sauce with mushrooms ? Steak "Diane" is a creamy mushroom sauce I think you'd like it !

Cover lemon with plastic put in sunlight

My little cuz has C.F. and is a double lung transplant recipient. I have pots syndrome and gastrointestinal problems I'm working on getting my service dog

is all that land olly playing in yours

When your stomach acid comes out of your feeding tube hole it burns your skin so bad. I have had it happen to me.

My ad was you guys 😀

Can you feel the medication going through the valve into you stomack

So did you like the mushrooms?

You should put a little red wine in it the broth to reduce it

My daughters port needle came out of her port just a little and stayed in her chest, while she was sleeping. It leaked under her skin and looked like she had a boob on her shoulder. She was fine but it hurt her for a day or two until it went down.

I'm sorry If this has Been asked before but can you go swimming with a feeding tube?

Hey you took the song from The Lucky Ferals 😁😁😁

Maybe it's a one-way valve. Like one that's on an inflatable mattress!!!

That picture of the cow did you paint that lovely picture?

@ElloetteLightbringer

6 жыл бұрын

liz c They bought it but I can’t remember the vlog name where they say about it :(

@lizc5017

6 жыл бұрын

Thats ok maybe I shall find it later good place here with Peter and Mary