Thanks Mark. Beneficial video for me after my transplant. I just did my transplant 2024

Great videos Mark - very informative- I had my Transplant 4 weeks ago. I had a sleepy kidney which is just beginning to function after 3.5 weeks. I’m learning as much as possible all your videos are very informative 👍

you need your own pharmacy ;) Great, informative video!

@TransplantFitness

3 жыл бұрын

It's always good to have a plan B haha 😂

So many medicines! 💊 😫

84 a week of the prescription meds plus baletacept iv once a month. Another 40+ of the over the counter stuff, fish oil, d3, multi... Finally got the right cocktail after 8 years.

@TransplantFitness

3 жыл бұрын

Damn that's a lot! You must shake like a baby rattle when you walk haha. Hope your health is good?

@FrightF

Жыл бұрын

How much D3 you taking? Fish oil aint great, Id suggest a good quality cod liver oil, a tablespoon a day. This will also give you no need for vitamin D3, and it also affords you, Retinol, true Vitamin A, not an ALA precursor.

Are you taking Mmf and tacrolimus together or in some gap?

I'm 10 months in from my diagnosis, I've got 21 pills a week that are a necessity for SLE and antiphospholipid syndrome, the other 21 are supplements to account for deficiencies from the lupus.

@TransplantFitness

3 жыл бұрын

I think it's really hard for people to understand how much strength it takes to do this day after day. You're amazing!💜

@FrightF

Жыл бұрын

Lupus can be alleviated through a low carb diet and fasting, if done correctly. As you can see: kzread.info/dash/bejne/aKCgtaqro6afctI.html Lupus remission requires adherence to a strict diet and lifestyle change, is that more of a challenge than simply taking tablets?

Hello 💋💋💋everyone, very interesting 😘videos you have thank you very much, good and😍 prosperous💐 to you and your channel.❤️

@TransplantFitness

3 жыл бұрын

Thank you! Much appreciated :)

Hi sir thank you for sharing your daily medication schedule. Myself I am Raghu from India now I am 39 year's old. post Covishild vaccination I got triggered by autoimmune disorder in July 2021. (CIDP) Nerve Demyelination , PMR and GCA . so my doctor put me on MMF 500+500 per day , prednisolon 5 mg , pantoprazole 40 mg once on empty stomach.. I was scared to have this 5 tablets every day.. after seeing you r video I got motivation now I am not scared. I have one question sir . coz you are on prednisolon for many years are you on calcium or vitamin D3..? to maintain you bone density..?

@FrightF

Жыл бұрын

Are you a diabtic? Im afraid you need to change your diet right now,and stop eating so much sugar. Calcium is false, do not take any calcium tablets, especially avoid synthetic Calcium Carbonate, its the least needed electrolyte. Prednisone is very dangerous. You should also be watching your blood sugars, and prevent them exceeding 6 mmol or 106 mg/dl. This can be achieved through a low carb diet.l and fasting. I advise ordering an HbA1C test right now. If it is over 36 mmol or 5.5% you need to get it down to this. It is the most important thing to take care of. Dr Bernstein is someone you nees to follow.

Am 3 weeks post transplant, How long is it before they start to reduce your medication. Adoport am on 8mg morning and night. And Mofetil 750mg morning and night as well.

@TransplantFitness

3 жыл бұрын

I was on the same as you. They reduced my MMF after I had a really bad infection in September 2020. They reduced my adaport after around 6 months. It really depends on your levels. As time goes on they always try to reduce the amount you're taking. I'm now on 500mg MMF and 2mg/2mg adaport.

Anti rejection: 1-2 Steroid: 1 BP meds: 1-2 Antibiotic: 1 Vitamins: 1 Antacid: 1 Other random: 1-2 Looks like 9-11 meds in a day. Hope the side effects are not very severe 🙂 Keep fighting mate. So glad that you are raising awareness. Raising awareness about Lupus is the only we can either find a cure or find better ways to manage it! Stay healthy🙂

@TransplantFitness

3 жыл бұрын

Yes absolutely my friend! It's incredible Lupus still isn't spoken about as much as other illnesses even though it affects so many purple and can lead to so many issues. Hope you're doing well buddy! 💜

@thelupusguy

3 жыл бұрын

@@TransplantFitness Doing well mate🙂

You said prednisole is anti inflammatory....but when it take it start swallowing your face

Hello Brother. How young are you ?

@TransplantFitness

3 жыл бұрын

Hey bud! Was 28 at the time of my transplant. 30 years young today 😊

I recognise some of the tablets lol

@TransplantFitness

3 жыл бұрын

Yup! I think most of us are on similar meds

After transplant vitamin D will be low ?

@TransplantFitness

3 жыл бұрын

It can be sometimes. I take supplements daily to make sure I'm OK

Nearly the same besides your Lupus meds and Ramapril didn’t agree with me

@TransplantFitness

3 жыл бұрын

Yup blood pressure meds can be weird sometimes 🤷🏽‍♂️