Here's to the brave souls with ataxia that continue to work through the obstacles literally one step at a time. The advice to focus on one task is counterintuitive to the busyness our culture expects.

This is a great video with excellent comprehensive content. I have ataxia from MS & find this video very helpful. Thank you 😊

@jobinbabu4667

Ай бұрын

How old are you?

Absolutely excellent 👏. Thank you kindly.

@jobinbabu4667

Ай бұрын

How old are you?

Thank you.

Awesome exercise Dr👌👌👌👍👍

Thank you!

Just found these exercises and they are wonderful. I will practice these daily.

@akhigbegodstime

2 жыл бұрын

I know of someone who can help you get cure from ATAXIA

@akhigbegodstime

2 жыл бұрын

Message him on Whats App:::

@jobinbabu4667

Ай бұрын

How old are you?

Excelente ensinamentos

Thanks

Hola gracias por la informacion soy de Peru me gustaria conocer mas de ustedes

'CONTROLE' is a BIG deal! But being constant everyday!

My son 13, was diagnosed with Primary coq10 deficiency aka spinocerebellar ataxia 9 (SCAR9) By children’s Hospital Philadelphia in 2015. We have been doing PT OT for so many years with no idea there are therapists that specialize in this unique area. Can you give any references that we could forward on to the schools therapist to better help my son. Thank you in advance 🙏

Our baby at 2 years old is diagnosed of Cerebellar Ataxia. We found it very difficult to do the therapy considering his age. He used to be a very happy and energetic kid. Hope you can help us in his condition. A little advise and prayers will do.

@JohnsHopkinsMedicine

Жыл бұрын

If you are interested in coming to Johns Hopkins Medicine, and you would like to request an appointment, please call 888-872-1408.

Hip bridges are totally impossible for me. I'm not overweight for my size, but I've never properly learned how to engage my core muscles. Every time I try doing this exercise, when I brace my abs, it's my entire belly which locks itself, lungs included. Therefore I can't lift my hips more than a couple millimeters without having my face turn in beetroot mode. There are many functional movements that I never learned naturally: being born post term, I started crawling after my 9 months, and walking after my 3rd birthday. I'm not trying to become a new John Cena, but I just want to learn those functional movements that I never acquired, and be able to do the easiest versions of the most basic exercises.

@scottwilly86

Жыл бұрын

I feel hip bridges are more hip and glutes focused. If you can, try to ignore the core and focus on flexing your butt muscles to drive your hips up. You can start with just a pillow or some type of small lever under your knees to make it easier until you get the hang of it. I love bridges, I think they're one of the best bang for your buck exercises.

I can not lay flat at all due to vertigo. can the exercises where you have to lay down flat have a modification?

How often should one do these exercises?

How many days fix ataxia gait to normal gait?

Thanks for the advice, I have been diagnosis with hereditary SCA3 and has been struggling with my balance. Love to be more proactive to delaying the decease. I will do upmost to adapt your exercise to my daily routine.0

@shivajidas5742

3 жыл бұрын

Did the exercises helped you

@gloriauzuazomaroadakporia1451

2 жыл бұрын

Hello do you have ataxia, search for Dr nafuar on KZread he has herbal cure

@VanAnh-qm5cx

2 жыл бұрын

@@shivajidas5742 in somehow yes but it a progressive disease get worse over time, so nothing can't stop it

@jobinbabu4667

Ай бұрын

How old are you & do you feel any discomfort due to this disease when you are in work or mingling with others

@harrisonwhite9398

17 күн бұрын

@@jobinbabu4667hey bud, I am 23 and diagnosed with SCA3 I notice my walking really gets bad in public and maybe my vision goes shite.

5:00 what's the name of your shoe? do you have a link please?

@foxylady1465

2 жыл бұрын

Hl

@itsjamma6455

2 жыл бұрын

Are you joking I don’t find you funny

Thank you so much I did some normal exercises from last 16 years but they were not sufficient for increasing the quality of walking

@akhigbegodstime

2 жыл бұрын

I know of someone who can help you get rid of Ataxia

@akhigbegodstime

2 жыл бұрын

Message him on Whats App;;;;

Has anybody found a way to stop one leg crossing over the other when walking? Apart from stopping and standing still and then moving on.

thanx

@akhigbegodstime

2 жыл бұрын

I know of someone who can help you get cure from ATAXIA with his herbal medication

@akhigbegodstime

2 жыл бұрын

Send a message to him on Whats App:!:+:+:

I was diagnosed with this in HS and I no longer have it. No one ever told me this was not curable. I did physio and balance therapy and also smoked a ton of pot (not bragging but I think it may have helped). I dealt with this for 6 months or so and then gradually got better. 20 years later and no symptoms. I wonder if it was an incorrect diagnosis at the time.

@rahulghosh5073

2 жыл бұрын

Sir I am suffering from SCA2.. can u help me how to cure it?? Thanks

@VanAnh-qm5cx

2 жыл бұрын

@@rahulghosh5073 it's not, all of sca is progressive disease and genetic. they just have incorrect diagnosis if it cure itself then it is not sca anymore, sca and all kind of hereditary ataxia don't have a cure sorry

@artonaut

9 ай бұрын

I'm positive pot helps. Has to do with naturally sequenced sets of phytocannabinoids that fit our endogenous cannabinoid systems. The CB system is like a car's serpentine belt coordinating all the major systems, e.g., electrical, air exchange, fuel processing, etc., so it is absolutely necessary to supplement the CB system when it is damaged & being damaged. I.e., stay chronic.

I've been getting worse slowly for years. If you exercise each day, by the time you've finished, you can do them all in strict style. Come the following day, it iis all gone again until the exercise routine is coming to an end once more by the end it is do able! Like a diet, unless you keep it up, it will fail! I find for me, to exercise every hour. Just a couple of reps, and the memory holds it. I'm getting worse as i get older. Its funny, but, people ask me for advice!

Thank you

@AnneNowlin

3 жыл бұрын

I need to incorporate this video into my daily routine

Dr. I have diagonsed with myelitis with dementia ataxia ..i have taken steroids and ivig treatment and recovered partially but my walk is not proper and got 6m palsy in right eye..i can share my video of walk and eye as well, pls suggest relevant exercise so that I can recover quickly and resume my normal life

@JohnsHopkinsMedicine

Жыл бұрын

Hi, thank you for reaching out to us. We’re very sorry to hear about what you’re going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication. If you would like to request an appointment at one of our hospitals, please call 888-872-1408.

@seemame1

Жыл бұрын

@@JohnsHopkinsMedicine i would surely visit your place but i'm based out of India

@00SuperA

Жыл бұрын

Try checking your b1 vitamin. Look some video of dr berg here on youtube, has very interesting approach.

Good luck dear

@becauseofwhoyouare6716

2 жыл бұрын

Thank you. Can you help by doing more exercises that will help with balancing the trunk . SCA-3 is also challenging my vision when walking. I am using a cane to walk so it is increasingly getting harder. Thanks 😊

I've not been diagnosed with anything yet. I don't think it is from a stroke, brain injury, etc., because my symptoms have not been acute. In other words my symptoms have developed relatively slowly over about 5 years. My symptoms also come and go. the worst symptom is my walking. I sometimes walk like I am drunk. I know what a drunk walk like because I used to drink, but haven't drank in about 10 years. I have lost my "balance" (I put balance in quotes because it is not from dizziness, it seems to be strictly muscle control). So bad sometimes I have to grab something to keep from falling. I have also fallen several times. I have problems swallowing and have to be conscious when eating and drinking not to choke. I just recently had issues with my speech. I suspect I may have MS. (I suspect M.S. because I know people with M.S. say "some days are good, some days are bad" that is my experience) I have noticed that exercise helps, although this seems to help more the next day, since I may have symptoms while exercising (making it difficult to exercise). Used to workout a lot. I first noticed symptoms while hiking about 5 years ago. I'm 54, so I first just ignored it thinking it was balance issues from age. I still walk with hiking poles, but I regret I am having to give up my intense hikes and goal of hiking the AT (Appalachian Trail).

@ThePrissycat2

2 жыл бұрын

Hi, I have SCA3 and I'm no doctor just someone who lives in a rural area with very little specialized physicians in this field, so I've done a lot of research on my own to educate myself about Ataxia. I'm not certainly trying to diagnose you in any way but it sounds like you may be experiencing a type of ataxia called Episodic Ataxia. It's just what it sounds like. You can have good moments and then moments where you are Ataxic. Good luck to you with whatever you discover about yourself, BUT, please, please don't stop moving and doing the things you love doing!!! If you have to modify with poles to help you, please be happy you're still hiking at all!! I'd hate to think of you having to stop all together because of Ataxia. Ataxia has taken activities away from me that I LOVED . Don't let that happen to you. Fight for yourself!! 💗

@eriklutz377

2 жыл бұрын

Sounds like SCA-7, go get tested.

@00SuperA

Жыл бұрын

Seames a simple solution but try testing your levels of tiamin, vitamin b1. Maybe you'll never read it but if this helps you I would be really glad 🙂

Some people can't get on their hands and knees without falling over.

I can't do any of these, I can't move from my place only for bathroom, I am 33 years old, diagnosis cerebellar ataxia, I suffer a lot, please help if you can

@JohnsHopkinsMedicine

Жыл бұрын

Hi, we suggest speaking to a healthcare professional about your concerns.

@ahmedsearcher2741

Жыл бұрын

@@JohnsHopkinsMedicine I'm from Egypt, and here, no cure for this illness and no solution, this is what doctors says here in Egypt

❤❤

I have episodic ataxia and I hate my life I’ve had it since I was 3 mine comes in stages the first stage my speech goes and starts slurring then I lose co ordination in my arms and legs but then comes the motion sickness. I really need help please someone I’m begging you guide me I’m a 23 year old man and I’ve just been to pub with my dad and cousin to play some pool and with some really nice people at the pub and I left without saying a word to my dad because I couldn’t talk to anyone I feel so down the cause this time is coz I’ve been drinking which I’m going to stop now coz I’m so fed up with this but I just want to be normal I just think eventually this will get to be to much it’s ruining my life I’m calling for help so please someone just talk to me

@markmartin2413

2 жыл бұрын

There is a herbal cure for ataxia

@markmartin2413

2 жыл бұрын

I was cured from the same illness few days ago

@itsjamma6455

2 жыл бұрын

What herbal cure and what ataxia did you have and was your illness genetic and how and when did you get the illness?

@markmartin2413

2 жыл бұрын

@@itsjamma6455 I had cerebellar ataxia , and yes it was genetic from my dad

@markmartin2413

2 жыл бұрын

@@itsjamma6455 click on the link ok

Ok

I am a sca type 3 patient pls help

@akhigbegodstime

2 жыл бұрын

Contact doctor Akhigbe for your cure

@akhigbegodstime

2 жыл бұрын

Send him a message on Whats App::

Thiamine vitamins B1 , B6 , B12 centrum vitamina E fish oil exercises not drink not addiction eat health walking everyday plenty sleep peace of mind Yoga or gym .

Can a normal man do cerebral ataxia exercise ?

@scrumptious9673

Жыл бұрын

Yes

मेरी पत्नी की बीमारी भी ठीक करने की कृपा करे। बागेश्वर धाम की जय।

Thank you!