Thank you so much Dr. Sullivan! I am recovering from a cerebellar stroke. What you describe in this video is exactly what I have experienced. It’s nice to have it explained and to understand how everything fits together. Im only 42 and in great health. Recovery is going good. Hoping whatever caused it can be fixed. Thank you for this informative video.

My husband (age 55) had a left cerebellar strroke a few weeks ago. It has been a very challenging time for us. He is recovering very well physically with major movements however this has been very helpful to understand much more. Thank you so much for this information!!

I had a stroke on 11/28/2022 and everything u talked about is so true,I'm still having a lot of problems,I'm really off balance to where I run into the corner of walls and sometimes start to fall backwards when going up my back steps,my left arm has those really bad trimmers to where everything I try and do with my left arm,either tears something up or I hurt myself when it jumps out and hits stuff and now im having relationship problems with my childhood love,im gonna try and get her to watch your video so she has a better understanding on what i go through everyday.this has turned my life upside down,i get depressed alot and don't know how yo deal with it,thank u in so many ways for being there for ppl like me,God bless u for being who u are,u are blessed and thank u from Leon in Louisville,Kentucky

Thank you! You confirmed my after effects of cerebellum stroke. Tremor in certain movements and walking. Cognitive effects being real. I just wish my family and friends understood . Education is the key! Again thank you.

2.5 years out after a left Cerebellar stroke. I had 2 weeks of inpatient rehab then 6 weeks outpatient and was walking independently by the end of that. I was still a little unsteady gait when looking one direction- I veered in that direction. After 18 months I asked for vestibular therapy and did that for 6 weeks and I feel it did help. Informative lecture since my neurologist told my husband when I was still on walker, how long til I would be back to normal. His response was never- that part of my brain was “dead”. Now Im driving, very minimal unsteady gait. Mainly looking up or down or side to side too fast- I get dizzy. Glad to know I will continue to get better! Thanks!

@smca7271

3 жыл бұрын

great to know 8 mths for me from left cerebellum tumor ...don't drive, more cause don't trust my decision making...still unbalanced and feel drunk, but your story gives hope.

@brittanychance639

7 ай бұрын

Bless you for sharing your recovery it gives me hope

This has been the most educational video and info i have gotten since i was discharged from the hospital. I cried all day yesterday along with vertigo. Thought i was going crazy. Thanks for such a great lecture.

Just had a Brain MRI that showed " multiple chronic cerebellar infarcts". I have been battling to get any medical professional to actually do something. I luckily have great insurance and finally got the MRI after the ENT told me "It is not your ears, it is your Brain!" I lost 58% of my hearing. Everything sounds like I am underwater and muffled. I have cervical stenosis in all vertebrae with cord compression. I have a history years ago of an MRI with MRA that showed an incomplete circle of wills, hypoplastic transverse sinus, and an avm behind one eye. I asked to have another study of the vessels done because of my insanely high BP and now the dizziness and vertigo. They did a regular MRI but refused to do the arteriogram with it while I was out. You mention a team approach? Right. In reality ( especially in the Northwest) that is not happening. As a pt that really DOES have something wrong, you have to PUSH and FIGHT to get them to do anything. Thank you for your informative video. God Bless You.

I am so moved and inspired by your lecture! Today I had a conversation with the specialist who told me that I did have a cerebellar stroke based on my CT scan results. I had an absolutely horrible episode of my life that started on January 5th with all the symptoms you have described here: horrible vertigo (helicopters), violent vomiting, headache, speech impairment, coordination of limbs impairment. The only "classical" symptom of a stroke that was not present according to an emergency team that arrived to my place - I did not have droopy face...So, they thought I simply had a high blood pressure and migraine. They gave me a gravel shot so I could keep down blood pressure medication...My symptoms of vertigo and severe headache lasted for 2 weeks. I insisted on testing for stroke, as my family doctor thought I was too young for it, I also started taking 1 aspirin a day on the 2nd day of the episode, as I had a suspicion that was not a migraine. I am having trouble with finding words now, short-term memory, concentration, I am bumping into things with my left shoulder, I drop or knock things, which is not normal for me at all, and there has been change in my personality...This morning I am going for an MRI. Please keep sharing your knowledge. I am wishing you strong health and happy life!

@smca7271

3 жыл бұрын

things do get better...can relate to memory probs and speech...but once the dizzy spinning thing goes,life is better...

I got miss diagnosed 4 months ago. I am 53. I had dizzy and vertigo symptoms and low blood pressure. I also developed tinnitus which i still have 4 months later. I was taken to hospital and got told i had Labrynthitis. I was sent home without an MRI being done as one Dr booked me in for one whilst in hospital only to get it cancelled by another Dr. It was only when i got refered to an ENT specialist 6 weeks ago that he got me to have an MRI scan that they found a small stroke on the left of my cerrebellar. I have mainly had balance problems but they are slowly improving😊 They are doing lots more tests on my heart to see if they can find out why i had it and i have been prescribed medication. I was very lucky that it was not a lot worse but it has been a very traumatic time but you can improve over time and work. I found loads of balance exercises on KZread which have helped loads. Also get out and walk if possible. Best treatment you can do ❤

@NYDBLoCK

3 ай бұрын

You mind sharing which balance exercise you did? right now I am stuck on heel to toe

I am 63 and had a left cerebellar stroke in January 2024. I lost control of the left side of my body. I had double vision as well. Within 20 minutes I was in the emergency room and lost ability to make sense. Slurred language. After about 12 hours I could talk again and after that my vision was restored. I am very fit and was preparing for a weight lifting bikini contest. 10 days later I was back in the gym. Working on my fine motor skills was challenging. Balance continues to be a challenge. The part where you were talking about the eye head turning was spot on for me!! What more can I be doing? Going shopping is scary by myself. Being in large rooms is tricky and scary. It almost feels like I will be passing out. Please let me know how I can contact you and what more I can do!

I am so thankful I found this video! I have looked everywhere (it seems) to help explain what I have been going through. It’s hard to explain to my friends and family what’s happening now, but this video allows my support system to understand what’s going on. So thank you.

I've had a problem with denial, because I was bitten by a tick, and the neurologists couldn't find a stroke. but two years later I was told why it didn't show up. so im just now after two years accepting that I did have a stroke, and after watching many videos on the cerebellum stroke , I now remember having an extremely bad headline, so I think that's when it happened. I had speach therapy, and physical therapy several times. and have been recovering slowly, but still have a ways to go with speach and motor skills. but I have never completely lost hope, but have went through lots of emotions. I'm sure I would have never came this far without God, I've leaned on him and cried out too him more times THAN I CAN COUNT . I think the hardest part is speaking and communicating with family and friends, most never call me anymore and it makes me sad.

This lady is well studied.

Hi great video. I had a cerebellar stroke on the 2nd Feb 2018. I had a headache (Not had one before) difficult to get my head up and limbs not in control. Ct scan did not show clot , but MRI showed clot on right side cerebellar. Right limbs had issues with movement . 27th March balance and running 95% back, learning to write and as you said right arm is jerky. Around mid March had sudden crying and sometimes laughing. I have labelled this emotion 2 (Uncontrollable emotion) . Normal emotion after a stroke I understand. By talking about emotion 2 , it helps. You video helped . Note the reason for the stroke is due to sticky blood (APS) . I am doing rehab for physical issues and trying problem solving which causes head to be tight. Thanks again , based in UK aged 53

@deborahmccall873

4 жыл бұрын

Hi Having a very hard time emotionally with all of this although very grateful for this site. Had cerebellar infarct July 2019. Did you feel that you let your love ones down? I've always been the rock..constantly apologizing is becoming a habit..your symptoms are similar..... the tightness was happening before...but the stroke is a nightmare that has left me like a lion ready to pounce...i am no longer submissive. It felt sooo hard to hang on from the magnetic force per se that was spinning and sucking out my very soul backwards forcing me to scream with frozen veins and nausea....treated for vertigo..missed out almost 6 hours for needle ..site inoperable. 53.yrs. no more visses 🍸hope you keep a journal 😇

Fantastic ! I LOVE it when experts take charge and speak out about their expertise ! We average people seldom have access to science based detailed information relayed to us in basic english that doesn't have a political bent. It's very frustrating to GLEAN information from news agencies and other condescending sources !

This is a wonderful and informative video. Like many of the posts here, I too suffered a cerebellar stroke. Was a young, healthy and fit guy but had a hole in my heart. Woke up with terrible headache and super dizzy. Left cerebellum was affected and I can relate to the cognitive difficulties. Neurologist said these issues are likely due to anxiety as the cerebellum isn't associated with cognition. Through videos like this and other research we understand much more now. Best wishes to all those recovering, anything is possible!! Tom, 36, Ireland

@smca7271

3 жыл бұрын

most docs are not a lot of help...I have left cerebellum problem , and I am surprised at the speech and cognitive problems vs coordination

@franciscoballesteros2059

7 ай бұрын

Please drink and take 1 tsp. of moringa powder for 1 week then 2 tsp. after 2nd weeks for absorption of nutrients in your body and cleaned the arteries together with morning or noontime sunshine for at least 30 minutes of vitamin d3 and that is the only effective proven natural solution for stroke patient and and can cure 300 kinds of illness and it was already a scientific study since ancient times. IN THE OF JESUS CHRIST PLEASE HEAL US.

Hello, I'm currently in the hospital in okinawa while in vacation visiting my daughter and fiance, surprisingly to me, I had a stroke in the cerebellum, and it happened as you mentioned thinking it was a mixture of Melatonin with rice wine ( I never drink) so I thought that was what it was happening to me finally the pain became unbelievable and I was transported to a military base hospital where I had the biggest scare of my life, talking about draining my brain after the scan and resuscitation permission, also the fact that I am a foreigner weather ir not they can help me there due to the limitations if the hospital, and also if any hospital in japan will take my case. There was even talked about transporting me to Hawaii in a helicopter to a better navy hospital there if they would not take me here in Okinawa. I finally was accepted in a hospital where they continue running test and determined that surgery is not necessary. Unable to communicate due to the barriers of language and uncertain of my future They say I can not flight back home I'm from California They say I need therapy......... I may not be able to walk properly, etc, etc.......... Still as I write this going through the whole process It's been scary, uncertain, but I am assuming grateful for being able to write this...... for being alive..... .Thank you, and I will write again.

Thank you so very much! I had a cerebellum stroke a year ago and this is the first time that i have had any clear information on exactly what happened and exactly what I needed going forward. Thank you so much!

@icareforyourbrainwithdr.su7103

Жыл бұрын

I can't tell you how often I hear that! It's not right!

@carolynlaborde3835

Жыл бұрын

@@icareforyourbrainwithdr.su7103 I live in Dayton, Texas and am wondering if you might have any suggestions for medical services in this area. I am not satisfied with the services i have now.

Great info! I had a left hemisphere cerebellar stroke 3 years ago. It left me with encephalomalacia. It’s been an interesting recovery process. Nice to finally see some information coming out.

My son is 40 and hadc2 cerebellar strokes last week, he's still in hospital but making progress

I learned more viewing this video today than I learned from my four neurologists & neuro surgeon. At age 55, I had a left anterior cerebellar stroke diagnosed in the ER in Nov 2020 after several weeks of sharing my concerns with PCP of ataxia, balance issues, falling, spatial concerns, gait abnormality, peripheral vision reactions, headaches, dizziness, vertigo, speech fragmentation, severe mood swings, memory and confusion, cognition concerns, & myotis. After months of appts with specialists was also diagnosed with anti phospholipid syndrome, C5&6 bulging disks & L3 compression fracture from falls, cervical hemangioblastoma, mild spinal stenosis, cerebellar cognitive affective syndrome, PTSD, & 2 additional cerebellar lesions, but not coagulation. It was scary, frustrating and life changing. Advocating for yourself when experiencing these limitations is not easy & the disability process is super frustrating. I’m grateful I found your videos. Thank you!

@anafalcon1416

Жыл бұрын

Hi Jacqueline. My stepdad just had a cerebellar Stroke a few months ago. Was wondering how you or your doctors helped you with the Headaches , dizziness and vertigo ? That has been the worst part of his stroke. And is causing issues with his nutrition. Thank you Ana

I had a cerebellar stroke 4 months ago when my mom died ...i became very dizzy and nauseated couldn’t walk and I just thought it was just a dizzy spell ...I was on dx last week ,,I’m a nurse I don’t go to the ER easily but it just never went away ...I’m a old lady of 56 ..and was just dx ,,,thank you for the video ,,,

GREAT SHOW!!! LOT'S INFORMATION DR, SULLIVAN.

Thank you Dr. Sullivan. I had a cerebellar stroke 3 years ago and have had very few noticeable issues. However, your lecture made me realize that there were in fact problems I had just not attributed to the stroke. I learned more in the past hour than I have in the previous 3 years.

@tonyaherbie

11 ай бұрын

Fxf dt

Dank voor deze geweldig waardevolle informatie!

My wife of only 3 months suffered a cerebellar stroke almost a year ago, it was a dual stroke (both the left and right side impacted), she has accomplished so much since the stroke..I am so proud of her. She went to all her appointments (OT/PT, Vision, Stroke Doctor and therapy), she was determined to get back to the person she was before the stroke. My wife had the support of family and friends, myself, my sister and my mother took her to appointments so that she could focus on herself getting better. My wife at times will cry, get very upset for no reason, she takes a nap almost daily. She feels bad because of it, I know she needs to do a brain dump each day to allow herself to not be overloaded, I just want her to be herself and not worry about anything. She has been back to work for almost 2 months, she started part for a month, she struggles some days, most are good. She is amazing, never giving up, continuing the fight back and be herself again. Thank you for the sharing this video, her doctor said the same things you said, you confirmed so much in the video. We do not know what caused the stroke, A-fib is possible, she has a heat monitor in her chest now, only 1 A-fib has happened since the stroke. Thanks again for sharing.

@user-oh7iv3ij5x

3 жыл бұрын

Good man hope your wife continues to get back to normal good luck

@rebecaatrian6262

2 жыл бұрын

Was she in the icu ? Did she have surgery? My mother just had this stroke and now fighting for her life in the icu

@user-oh7iv3ij5x

2 жыл бұрын

@@rebecaatrian6262 Rebeca Hope you Mum improves I did, I was in ICU and had surgery 7 years ago. Mine was a brain haemorrhage she’s in the best hands take care X

I always feel better after having learned more about my condition. not much is known or taught to me about this. Thank you.

This is awesome information. Thanks!

Hello, Dr. Sullivan! I appreciate the information and your bluntness about pharmaceuticals and brain supplements. I had an AVM on my cerebellum 12 years ago. Until hearing this, I had never connected the off-set vision with my stroke. My eye doctor was suggesting PRISM glasses, but I had never gotten them. I can certainly vouch for the emotion. I can make myself cry now, and movies and TV shows can make me cry. Thank you, and I will now subscribe.

God Bless you you dear woman. I have learned soo much from your lectures about my stroke and how to care for my brain health.

excellent information...would have loved it 8mths ago when my problem started...great of you to share.

Very educational video. Has helped me understand cerebellum strokes as a whole. Also, thank you to people sharing their personal stories about their injuries, it gives a very helpful insight. God bless!

Thank you so much for this video. My symptoms now make sense prior to my stroke. Very educational! Thank you for taking the time to share your knowledge with us!

Thank you for this, yes very motivating for me and as a Rehab Nurse for my patients. Most of my patients are geriatric and stroke patients and I always want to give them the best care possible. I will share this with many of my colleagues.

Awesome. I had a Cerebellar Stroke due to side effect of prescribed medication. It is almost a year now. Luckily I was pretty fit and always had a good exercise routine. I have come a long way since and will keep doing my rehab and my exercises at home. You give me hope that I might recover fully. I also started to study Neuroplasticidy. I love your talks and share them. Regards from Namibia.

Thank you so much. Information very helpful!

I had a cerebellum left stroke and had a craniotomy. I also a spinal cord injury. I am Working on it everyday. This was very informative. I'm glad I found something that helps me understand this better.

I had a cerebellar stroke on my vermis in March 2014. Then my Dr put a scopolamine patch on me for two years and went crazy. Iwas put in a medical coma for three weeks. I had to learn to walk and eat again. I was in a wheelchair for 6 months, but i started training and now can walk without assistance. Long road. Took me a few years to right my life but I still get uncontrollable mood swings Thanks for doing this.

thank you for the hope that I found as I listened to you. you have helped me too understand more than anyone. I had IVIG INFUSIONS 5 times, that has helped greatly with energy. God bless you!

So helpful! Thank you!

@icareforyourbrainwithdr.su7103

Ай бұрын

Glad it was helpful!

Thank you so much.....keeping this vid for my support 😇

Very helpful.

Thanks very much Dr

I just had a cerebellum stroke week and this is the best information I got.😊😂❤

❤I do love your presentation something that I never heard about it but explains to me my situation with vertigo and dizziness I have several years with the situation I am in physical therapist and waiting for my appointment of neurologist but my hair is unstable like a taxi but what you explain is the situation that I have the MRI shows parietal atrophy both sides but I feel my brain shaking like when you are in high speed I do not watch television I feel dizzy because the movements but thanks very much for your superlative work 😅😅😅😅😅😅

I had a occipital lobe and cerebellar stroke. I’m 42. Had symptoms that were misdiagnosed for months by various doctors. I’m always becoming enraged quickly now.

thank I'm watching this now from Vancouver Canada . WALLENBERG SYNDROME STROKE JAN13TH 2018

Thank you.

Wow!! Fantastic thank you

First time viewing I had aajor brain bleed that caused a couple of strokes I don't remember much about the hospital stay until toward the end of my stay I was in I c u for 21 days and endurered an 78 day in hospital and rehab don't really remember the Dr my wife said they told her that. I have ataxia.rehabed to this day at home no. Real follow up but at that time covid was new but I did have three surgery s on my brain last one they put a shunt in my skull also drilled holes in the front of my skull and went in and work on the bleed still have horrible days but continue to pray and give effort in walking again I would to talk to neurologist and find out if there's any help for I'm blessed to have listened to your message thank you very much

@icareforyourbrainwithdr.su7103

3 ай бұрын

So glad you found this resource.

Thank you thank you thankyou🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿

This is so fascinating! I'm having cerebellum issues; in the very beginning of my medical journey (had an MRI yesterday, ...). I greatly appreciate your time and knowledge, it certainly helps me to understand the cerebellum, accept my situation, as well as understanding the importance of the various therapeutic activities necessary to recovery. I will be meeting with my neurologist to learn more details... Thank you. Thank you. Thank you! 🧠🙏🏼🕊💖💯

Learn more with board certified neuropsychologist Dr. Karen D. Sullivan. Join us for our Virtual Stroke Recovery Group for 10 weekly webinars on Thursdays 4-5:30 p.m. ET Sept. 17-Nov. 19, 2020. Get all the details at www.icfyb.com/srg

Dizziness is a common post-stroke complaint noted by as many as 80 percent of survivors after certain types of stroke. Learn what you can do for better coping with your episodes of dizziness. Check out Dr. Sullivan's article: Post-Stroke Dizziness: Why Is It Happening and What To Do About It www.icfyb.com/dizzy

@valerieheginbotham5869

Жыл бұрын

0k

I want to make sure that all of you have access to this information. No hype, no products, no supplements, just high-quality, science-based brain health information. There is only one diet with scientific support for reducing cognitive impairment. Please read about it to empower yourself! www.icfyb.com/strokediet

I am one month post cerebellum stroke. Any advice would be great. The vertigo is no joke. I can walk and talk but the dizziness is awful.

@davidhamilton1124

3 жыл бұрын

Patience and understanding from yourself and your family! I suffered 3 cerebellar strokes, the last 2, 14 years ago this month. They were multi-focal and effected the posterior region of both sides of my cerebellum. I had many symptoms that were mentioned by the doctor. I made vast improvements for the first 6 months, then improvements slowed down but continued for several years and either went away or I learned to adapt to them. Walking improved quickly within 6 months. I went from wheelchair to walker, then to rollator, next cane, and finally unaided most of the time. Uneven walking surfaces and when I am tired make my balance issues worse to this very day. My balance and dizziness issues went away within several months when seated while riding in a wheelchair or electric mobility cart, driving a car and even my motorcycle. I think the dizziness occurred do to my visual problems like tunnel vision and loss of peripheral vision that improved over time. My tunnel vision went away after about a month. I could only walk a few feet, with my legs wide spread wide apart at first. I had some Nordic type walking/hiking poles that I took out from my closet and practiced walking with. I quickly made a few hundred feet to the mailbox and back. Then around the block, eventually would walk for an hour every night. Sometimes past the hospital where I was treated. I would stop and look up at my old room reflecting upon, and thankful for how far I had come. I still walk using my "ski poles." The constant repetative movement seemed to improve my balance and confidence while walking! I am still amazed at how the average person walks here and there so smoothly and effortlessly! Swimming and walking in a swimming pool was also of great benefit to me! I felt like "normal" in the water and didn't have to worry about balance and the weakness that effected both sides of my body. As I improved, so did/does my happiness! My daughter turned 3 the month after my stroked. She taught me how to enjoy the simple things in life and how to laugh and act silly again! She taught me how to interact with people, with whom I wanted very little to do with initially! I learned to avoid people that acted like I only had something as simple as a cold and to "get over it already!" Surround yourself with positive people that love, understand, and support you. Find a hobby or activity that you enjoy doing. It will help with mental and depending on the activity, maybe even physical rehab! My strokes may have slowed me down for a while, but only temporarily! I am now stronger and better in many ways than ever! But I probably will never become a tightrope walker... good excuse, because I don't like heights! Good luck to you and the other stroke patients and family here! Stay healthy and strong!

@davidhamilton1124

3 жыл бұрын

You Will Get Better it just takes a little time, patience, and effort! Trust me, I know from my experience and that of some of my friends who also suffered strokes!

@angelayan8712

3 жыл бұрын

David Hamilton Thank you so much for sharing as I recently had a set back. It was 3 months ago since I had my stroke and I was seeing the silver lining because o moved on to 5th week without a cane. Then I had a long day, car ride, Dept stores and I was dizzy for a week and still not back to where I was at. This is the strangest thing. My doctors had such confidence that I can go back to work in 6 months since my stroke. I still can’t drive a car not alone work as a nurse saving lives. I was saddened to know if I could hike and walk for long periods again. Thanks for sharing the water experience, I do feel good in a pool and drove a wave runner when I was feeling really good a month ago. Now I am afraid to work my brain too much

@saragauthier7429

3 жыл бұрын

I am so sorry. You will get better. Make sure you’ve got some ondansetron. That did help me. Also, my dizziness was always worse when I was tired. I got tired from everything I did, so sleeping a lot and scheduling rest time is the way to go. I literally wasn’t even able to walk by myself and now I can go hiking. Give yourself time and be patient. Do your pt and only think pleasant thoughts if you can. Even stress made me dizzy

I put all my knowledge about Stroke Recovery into this new Guide available NOW at www.icfyb.com/guide. Limited supply so get your copy today!

I have to say I thought I had vertigo. It just got steadlily worse. My husband after a week dragged me to urgent care. Hillsboro Healthcare Center in Or. They performed 3 CT Scans with and without contrast. They also did an MRI an echo cardiogram and an ekg. Also an xray. They did narrow it down to a left cellebellum stroke. My heart is good so it didn't start there. They most likely think it was caused by chronic hypertension. I'm right handed so I'm very fortunate it wasn't worse. I don't have slurred speech just a bit woobly on my left side. Thank you for this video it explains a lot.

Learn three reasons for post-stroke fatigue in Dr. Sullivan's article: www.icfyb.com/psf

Thank you so much, it has been helpful. Suffered Celebellar stroke late Jan 2019. Can relate to most of the symptoms. From your video, could not get exactly what causes it, but looks like in my case it was triggered by high blood pressure (?). Would love to know what can be worst case outcome. I don't not have access to most of the therapy interventions you suggested. I'm 46.

I just stumbled across these videos. Thank you for all the great info. I'm wondering if you can help me with info about aftercare of a subdural hemorrhage. I had an emergency craniotomy a few years ago. Nobody knows why it happened. I've had a hard time finding a neurologist who will give me an MRI/MRA regularly. This is what the neurosurgeon suggested be part of my aftercare.

Very helpful. I have one symptom: dizziness.

Can you refer to a researcher in the Lexington, KY area, that are studying bilateral cerebellar strokes?

This is the first time I see this video I want to share it with my sister since she doesn’t believe me how I feel. I had a PICA Cellebeller Stroke right side on 2019 and my 2nd Stroke was a left frontal lobe stroke. I get really bad pressure on my top of my right side of head or the front of my forehead down to the back of my right side neck kind of forming a 7 I get nauseated very often and dizzy also lose my balance if I’m walking with my cane now use to be in a wheelchair but really have to concentrate to walk but once someone happens to callls me and I happen to turn I lose my balance quickly the smell of the food at times makes me nauseated as well and I hear like bees squirming inside my brain or my head. I’m not sure if that’s the way you spell that word but I’m glad I found this video. I’m gonna start following you too so I can get some tips from you or from other people. And I used to be very healthy athletic I would lift weights was a bodybuilder I use to have a very muscular body would lift 190 pounds bench press would run every day. I’m 5’1 and I weigh 126 pounds and I’m 57 years old Now I lost all my muscle mass I’m lucky if I lift 2 pounds I’m able to sit straight before I use slide too the side my vision is so weird I see the cars in the road like if they coming towards me it’s so very hard to multitask. It’s so hard to spell words to add. I don’t even know how to give when they’re giving me my change when I’m buying something so I have to count it over and over I can’t. I cry and get depressed too much with any little thing. I just isolate myself in the house. I did therapy for the longest time. But if you see me, I look normal but if you see me walking, I look so different only wear sneakers. I used to wear a 6 inch heels all the time. I don’t even like to open my closet and see my shoes. I can’t wear them anymore I get so sad all the time I know that I do like I’m doing right now. I just do run on sentences on without any punctuation I don’t know how to spell I used to be very smart, especially mathematics I could easily do everything in my head now I can’t. I’m still learning how to read write walk drive . On this coming Friday 4/19/24 I will have a procedure done PFO closure because I have a positive bubble test. My cardiologist think that’s why I had the strokes. The doctor even said that might stop my headaches. My neurologist gave me medication for migraines. I don’t have migraines never have my sister does. I know how she gets . Many people misinterpret my situation.

@icareforyourbrainwithdr.su7103

2 ай бұрын

Best of luck with everything you have going on. Im glad you are here and advocating for yourself!

Thank you so much for your clear explanations and clarity. I just had a cerebellar stroke 2 and a half weeks ago. I was misdiagnosed in the first hospital and discharged with no care, although I couldn’t stand, speak or open my eyes for more than a few seconds. I went to a hospital near my house where they gave me an MRI and they were able to explain what I was going through. They still don’t know what caused it, but after such a short time, I am speaking and walking on my own. My emotions are all over the place, but I have a tremendous support system who help me get through the rough patches. I just want to get back to normal and avoid what caused it or implement the changes that are necessary to avoid it from happening again. It’s super frustrating doing the types of exercises my 4 year old is doing like practice writing my alphabet. Finding the right words to explain myself, or playing with my kids as I am used to is what I am striving for, and obviously getting back to work to support my family are my needs. Will I get there?

Liked and subscribed and hit the bell

Excellent info!!! I am Epileptic, taking Lamotrigine 75 mg a day and have Cerebellar Atrophy (Not develop/no simptoms) but loosing memory and had 2 times a very bad vértigo (for 2 days). To what Dr/specialist, neurologist l am suppose to go???? Is there any Cerebellum Society or something like that?? Thanks!!! (Sorry for my English l am from Puerto Rico)

Can you please help me find information about a bilateral stroke? My 32 year old nephew had one about a month ago.

i was diagnosed with right basal ganglia stroke, but I definitely have some of the symptoms you describe. Do the two occur together? Since it wasn't diagnosed, I've received no rehab for it. Thanks for your rehab suggestions.

One of the strokes I had was a basal ganglia stroke

I'm from Texas I had Trigeminal Neuralgia Brain Surgery in July 2022 & now I'm having pain on my Occipital Nerve & my neurosurgeon suggested to schedule an Occipital Neuralgia Nerve Block. I wonder why I'm having issues with my Nerves around my brain. I also have Brachial Plexitis after having spine surgery for ACDF for a bulging disk on my C6-C7 Im just frustrated as I'm stuck at home, riding in a vehicle or driving hurts my neck, Brachial plexus, & I get muscle spasms throughout those areas as well, so I never leave my house, unless I have a doctor's appointment otherwise I'm home all the time.

Hi, thank you for the information!❤. I'm a bit confused as my doctor said I had this but now I have blood tissue as it's mature can you help me with this please 🙏

Interesting

Please medicine recommend me for cerebellum stroke recovery

What are the chances reoccurring this stroke?

what are prism glasses?

I have Moya Moya disease. Will you please speak on this subject please. I had 2 strokes in my mind 40s. I am now 55. I've had 3 cerebral bypasses.

I want to know how people with lesions in the cerebellum progress in recovery would be In speech? I didn't have a stroke I have a rare brain injury Acute Necrotising Encepathology ( ANE ) I have intention tremors from that.

Doctor, I hope you can answer me. I have a blow to my head on the side of the cerebellum as a result of a fall since childhood, and a headache that does not leave me for a minute, suffocation, spasms in the muscles of the chest, back muscles, and feet, numbness and paresthesia in the entire body, stopping of blood in the feet or numbness, high systolic pressure 19 and diastolic 11, a drop in blood sugar, difficulty with balance, dizziness, tingling, numbness, and pain. I hope you answer me

Hi I had a cerebellum stroke. Is it ever to late to recover?

I had left cerebellar stroke,i lost my left hearing,my left eye affected,my left nose,left face and left tongue can this be going back to normal???

I had a cerebellum stroke back in February. It effected my right side. I am 41 years old. Mine started with the vertigo. By the time my parents got there I wasn’t making any sense.

@brittanychance639

7 ай бұрын

How is your recovery going?

I suffered left cerebbellar stroke last september 2018 is this illnes are curable ?

My husband was told he had covid and a bacterial infection same time even though he had covid a year prior ? We went to emergency with fever and sweating with a small rash on shin he couldn’t breath he called the nurse they didn’t come they turned the light off 3 times he hit mad went to bathroom trying to breathe he put the shower on hot to get steam i came to hospital next day and he was intubated!

I am 43. I just had a cerebellum stroke. I’m still dizzy. How long does it take for this to get better? I feel as if I’m walking on the boat.

@JosamaBinBiden

Жыл бұрын

When I was 24 I had mine. I’m 37 now. I’d say I recovered from the constant dizziness pretty quick and was running miles in 9 months. However I was 24. So

Became impotent. Constipation as I cannot feel feces any longer nor can I increase the flow of urine by pushing. I'm lucky I'm not in a diaper I can go without laxatives it just takes effort. Suffered from vertigo and dizziness that would put me in bed for hours but that's resolving. I had hiccups for 30 hours out of the first 5 days I have in the hospital. My speech changes spontaneously varies from normal to slurred to a whisper with no rhyme or reason no pain no suffering it just changes

I love the info you provide , but finding that care team you describe is almost illusory.

I had a cerebellum stroke at 60 man I thought I was dying. I was dizzy with vertigo I was feeling mighty sick😫

@jvillebil13

10 ай бұрын

Did you ever get over your dizziness. I had the same stroke 2 years ago and have had to learn to live with my dizziness

@chipispowdercoatingcharles8444

10 ай бұрын

@jvillebil13 it comes and goes. If I'm doing alot of lying around it gets worse.

@jvillebil13

9 ай бұрын

@@chipispowdercoatingcharles8444 I ride 5 miles every morning on my 3 wheel bike and do exercises every day but my dizziness never leaves.

That pinpointy research on the neurochemical effects …. Who can I talk to or see to learn more? I have chiari which means I have cerebellar compression. I feel like I have episodes that resemble something like a seizure or TIA . I suspect whatever these cognitively disabling episodes actually are have to do with my cerebellar herniation. I need someone who knows enough who can tell me what’s going on .

Who can I call , From The states . Am from Syria .

@ameeralbahra3595

2 жыл бұрын

Thank you so much < If You can help me < please let me talk to you

CAVERNOMA

Hello It was a blessing to me to hear you speak i kind of giving up on myself until just hearing you i would like to thank 🙏 you in advance my son saved 🙏 my life if you or anyone Google his name Nathaniel Dancy jr

❤l ave stroke my left arm and leg not working I really want to walk soon

by far the most dangerous trigger for me is stress. knocks me down hard, like getting hit in the back of the head with a shovel. I'm astonished to NOT hear about this issue, and yet not surrprised. clinicians in this field are not being properly instructed because the goal of those orchestrating the system is to have to patient slaughtered off by way of homelessness if not criminalized and exploited as fodder for violent gangs. this society is all about the violence. and nothing but the violence.

I found out that my mri shows a possible cerebellar stroke so we are now waiting for them to call once my mra is scheduled. I wonder if having decompression surgery for Chiari 1 (almost 3 years ago) would make diagnosing this any harder ? After hearing everything… now I wonder if this wasn’t the cause for e v e r y t h I n g (chiari 1, orthostatic intolerance, etc…)🤷🏻‍♀️🤞🏻🙏🏻🧘🏻‍♀️ Thank you for the helpful information! Healing thoughts and loving “spoons” to everyone! ❤️‍🩹🥄🧠🥄❤️‍🩹