My experience of Cauda Equina traumatised me and I am still getting flashbacks of my experience!

@Issoemioquemel

21 күн бұрын

Não é fácil

Thank you for sharing your story, my mum has had Cauda Equina syndrome since 2000 (when I was only a baby) and like you she had no reason for it to happen. It can be tough to deal with at times as it is so rare and so little is known about it that it is hard for others to understand it - even I learn new things about it now, when I've lived with someone with it for 18 years! Hopefully more can be learnt about the condition over time, and more support can be provided for it. Best wishes to you and anyone else with the condition :)

I had slow onset from 21 when my *down there* went numb. Despites many doctor visits I was told it was nothing. as time went on I got sciatica.. Again doctor said it was all my head and even recommended antidepressants. Then I got cramp fasciculations and by the time I was 27 I couldn't walk, pee or sleep. luckily I pretty much made a full recovery after surgery apart from a few patches of numbness and twitching. I went to A&E day before NYE where they did an mri and ultrasound of my bladder. The doctor rang me on new years eve saying pack a bag an ambulance is on its way. if it wasn't for him god knows what my life would be like now.

@grancanyon2878

2 жыл бұрын

Oh my GOD!! THATS CRAZY! the whole point of asking if theres any numbness or bladder changes is EXACTLY how its diagnosed!?! How the hell did they miss that?? I was one of the very lucky ones too..I went numb "down there" and am usually complacent about everything considering no one ever listened to me about the level of pain I was in for YEARS. The numbness was odd but I kept thinking "docs always ask about numbness" so maybe it matters..Again not thinking much of it, I went to the GP. He sent me to A and E, i apologised profusely to the A and E staff for even bothering em..within 24hrs I was in surgery. I've seen how awful the implications of not being operated on can be (I'm sure you have too now after looking it up). So I'm grateful as F for getting surgery as quickly as i did. You my friend were INCREDIBLY lucky after they missed it..shiiiiit

@jltt2203

Жыл бұрын

How long did it take for you to recover your down there? I just had my surgery a week ago and anticipating my down there to return.

@jltt2203

Жыл бұрын

@@grancanyon2878 how long for your down there to return?

@w33dy86

Жыл бұрын

@@jltt2203 I had more feeling from the time I woke up and then gradually over a few weeks. I had a slipped disc a few months back and was tingling down there... Luckily it healed but god did I have flashbacks! I hope you continue to get better 🤞

@jltt2203

Жыл бұрын

@@w33dy86 Thank you. I hope so to. I have some feeling it's just faint so maybe it will increase over time.

John Is there anyone I can talk to I'm very desperate sir. I am alone and I have nothing else left no hope nothing what can I do sir? I'm giving up...

T3. T 4. T 8. You tell me which one it was on my mom. She was paraplegic. No function below the waist. Totally preventable

Same thing happened to me in America but trying to get representation in California has been like looking for Noah's Ark, the ignorance from the legal side in CES is unbelievable when they should be very easy cases where lawyers can be making huge recoveries but instead CES cases are static. The way I see it is a patient goes to surgery with 2 arms and comes out with one. Yes surgeon R. Bagheri in San Diego ruin me for life. I go in for Laminectomy surgery and once home I was rushed to hospital for another surgery one day later because I was leaking spinal fluid, it was found that the surgeon left two small holes in my Dura. During recovery of second surgery that Dr. Bagheri also did the pain in my lower back was unbelievable, I started with symptoms of Cauda Equina Syndrome and my wife look the type of symptoms I was getting in the WWW and her inquiries showed that the symptoms I had were related to CES. He stated that the symptoms I had were due to the anesthesia and that they should clear out in months. My regular check ups with Dr Bagheri was the same thing "give it a couple of months and symptoms should come back to normal" he continued the same lying scheme and at one year he sends me back to work. My boss was very patient because I was really in no shape to go back to work but I continue working because we needed the money. Well the symptoms after 9 years are just getting worse, I can't work because I can only walk a few steps then I need to rest by either sitting down or lying down. I only wish there was more legal awareness in the US for CES but there is not.

Or sometimes your body just gives out! I have Cauda Equina Syndrome and never used anyone...just bucked up and kept going!

hi i really want to know more and more about cauda equina.am in Ghana and am also suffring from canda equina.i have under gone a surgery for seven months now but still can't walk nor stand.pls help me out.what do i need to do regain my walking back.

@Eros13adios

3 жыл бұрын

Prayers to you.. I hope the government could help you in some way like put you in disability care.This must be a painful inconvenience all around.

@LauraDookran-oc8vf

3 ай бұрын

Pray to Jesus.Get in a Church

Who and How does someone diagnose this condition?

@brianbyrne4443

2 жыл бұрын

A&E SURGEON - NEUROSURGEON!!!! A BASIC DOC - GP HASNT A CLUE ABOUT THE SITUATION!!

This is Real!!!!

I feel like I am sitting on a pair of rolled up socks. Does that jive with usual symptoms of Cauda Equina?

@jltt2203

Жыл бұрын

If you numb in the saddle region make them do an MRI immediately

@marymunro1142

Жыл бұрын

@@jltt2203 They keep doing MRIs but higher then that mass is. I have a new guy I am working with. I have been having Mini Strokes and there is nothing to be seen on MRI after. He is going to check me out for Bow Hunter syndrome. I go in for Doppler, etc. next Mon and Tues with meet with him right after. Since the saddle thing has now gone on for years and my whole ass is numb, I thought it could wait. The TIAs took precedent. Thanks for reply. By the way, they keep dancing around Cauda Equina. I just keep getting a referral to Physical Therapy which I won’t do until my neck is fixed and they prove to me that the lump, which is much bigger now, is not a tumor that I want removed. Whatever it is, it is thrashing around wreaking havoc on my nerves.

2010_ * I HAD A MICRODISCECTOMY ENDED IN A BOTCHED SURGERY- THE DOCTOR WOULD NOT EVEN TELL ME WHAT WAS HAPPENING TO MY BODY I HAD TO GOOGLE THE WORD S

This guy has sciatica for a year. It didn't come out of nowhere. I'm afraid the reason is simple we don't look after our spines. How many people can't touch their toes. Lift their bodyweight off the floor easily. We are a obscenely deconditioned species as a whole. These are the consequences.

@freestylersuk

Жыл бұрын

I can do all those and i have cauda equina syndrome, when the specialist you're seeing says pretty much the same thing it is depressing.

@kh-wg9bt

Жыл бұрын

@@freestylersuk sorry mate.. but it's true most people can't do these things. there are always exceptions.

@kh-wg9bt

Жыл бұрын

@jamescarroll6057 I'm talking in generalisations. I'm a highly specialised physio.i screen for cauda on a daily basis and have caught a few in my time. 90% of people with back issues fit into this category. Sorry if I offended you.. my comment wasn't aimed at you specifically

@freestylersuk

Жыл бұрын

@@kh-wg9bt I aint your mate and youre talking shite...

@kh-wg9bt

Жыл бұрын

@@freestylersuk nope. Truth hurts buddy. I know more than you. Fact.

✝️🙋🏿‍♀️🤣🫡🫡🫡🫡📞. One rings dingy

Just an advert for Maya and her outfit what a pathetic stunt