2 Years After Cauda Equina Syndrome

#ces#spinalcordrecovery#walking after CES#balance#spinal injury #motivation#walking again#inspiration

Пікірлер: 75

  • @pablocanul6878
    @pablocanul68783 жыл бұрын

    This is a beautiful testimony. I had Cauda Equina Syndrome surgery 1 year and 5 months ago and I give glory to God for my speedy recovery I know He made a miracle in me by the end of the three months I was able to ride my bike. Trusting God and having a positive attitudes can make a big difference.

  • @harikrishnanr3708

    @harikrishnanr3708

    3 жыл бұрын

    What are the symptoms

  • @ionnicolai4684

    @ionnicolai4684

    2 жыл бұрын

    Hi ,is possible to have more information

  • @lamancha7066

    @lamancha7066

    2 жыл бұрын

    What do you mean you had surgery to reverse the CES? I thought it could not be done. I have CES for 9 years now and no one in my city or my state can reverse the condition. I got CES right after low back surgery were the surgeon made a big mistake of cutting my nerves in my lower back. Yes I had to do the caths for 4 years but had a lot of UTIs until an urologist did a Turp he basically made the hole in my prostate bigger to be able to urinate and it worked, not to be 100% but just not needing to be placing the cath every day was a miracle. I would like to know if you can is CES reversible? and if yes where did you do the surgery and the Dr information. I'm in the USA in California. I can walk but need to be assisted Best regards

  • @ionnicolai4684

    @ionnicolai4684

    2 жыл бұрын

    @@lamancha7066 you can true АСД Ф2 russian veterinary preparate is smelling bad,but they are good for regeneration nerves

  • @lamancha7066

    @lamancha7066

    2 жыл бұрын

    @@ionnicolai4684 veterinary mmm I rather waith for real doctor but then again a real doctor caused the CES on me. Good point lol

  • @muhammadrazinbinmuhammadmu1280
    @muhammadrazinbinmuhammadmu12804 жыл бұрын

    Today is exactly 4 weeks after my herniated disc operation L4 L5 fortunately done within 48hrs. Currently with CES and still in the hospital. Thank you so much for making this video as a motivation for me to recover.

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Hey. Praying u get complete recovery. Stay strong. And always keep fighting. God Bless

  • @myopportunity7861

    @myopportunity7861

    3 жыл бұрын

    How r you now

  • @SharmaineDaSilva
    @SharmaineDaSilva3 жыл бұрын

    So inspirational and am even so hopeful after I saw your video. My brother has this. He has such a positive person and has such a fighting spirit!

  • @f0kxi
    @f0kxi3 жыл бұрын

    This is truly an inspiring story, thank you 🙏🏾

  • @nanjundaswamyr2710
    @nanjundaswamyr27103 жыл бұрын

    Very true & inspired 🙏..thanks for sharing your story.

  • @johncherneski1840
    @johncherneski18404 жыл бұрын

    Thank you Rev. Sam for sharing this video. I have been struggling to stay positive and understand how God can use CES in my life. God is clearly working in your life through your recovery journey to minister to others.

  • @samraiborde8878

    @samraiborde8878

    4 жыл бұрын

    Hey John. Great to know this video helped you. Hope and pray you get complete healing and recovery. GOD bless

  • @hijackhickory
    @hijackhickory3 жыл бұрын

    True inspiration.

  • @robalveam
    @robalveam4 жыл бұрын

    Hi Sam, I was recently went to decompression surgery due to CES. Such a coincidence that the emergency happened the same day you posted this video.

  • @samraiborde8878

    @samraiborde8878

    4 жыл бұрын

    Thats is indeed a coincidence. Hope you have a full recovery..

  • @victoriabryce1683
    @victoriabryce16834 жыл бұрын

    I also have Cauda Equina syndrome. I still have bowel/bladder issues but I can urinate by myself also. I can’t feel anything but put myself on schedule so I don’t have accidents. I had to start manually remove feces myself after 3rd back surgery. I don’t have rectal tone anymore. My foot drop healed about 3/4 months after my second back surgery. That was one of the happiest days of my life when I realized my foot started working. Your doing a great job! Are you part of any support groups on Facebook? I am. I first developed CES June 2016. Had second surgery 9/2017, third 8/2018 and fourth 3/2019

  • @samraiborde8878

    @samraiborde8878

    4 жыл бұрын

    Hey.. thanks for sharing you story.. well yes i am part of a few support groups on fb.m i was diagnosed in dec 2017.. so 2 years for me.. I am happy to know you foot drop has recovered.

  • @irudayanirmala1325

    @irudayanirmala1325

    4 жыл бұрын

    Why u did 2nd 3rd surgeries

  • @samraiborde8878

    @samraiborde8878

    4 жыл бұрын

    I just had one surgery.

  • @makeupbykhani8178

    @makeupbykhani8178

    3 жыл бұрын

    Hi Victoria. Thanks for sharing your story. Really wanna know that why you had 3 surgeries.and if those surgeries improved your cauda equina?

  • @satnampreet1
    @satnampreet14 жыл бұрын

    Brother, I’m feeling so happy to see this video. May god bless you with good health, always. My MRI says disc compressing thecal sac and cauda equina. Next para says cauda equina nerve roots appear normal. What does it mean? Is the start of upcoming syndrome ?? One thing I learned from you that CES is not permanent, it can be healed, paralysis is not permanent, let’s beat it with our attitude. Your valuable reply awaited. Thanks

  • @samraiborde8878

    @samraiborde8878

    4 жыл бұрын

    Well it depends on your symptoms.. if u feel lot of pain..numbness.. weaknesses in legs or bladder issues.. these are symptoms of ces.. the best person to ans ur question would be a doctor.. do get ur self checked..

  • @Preeti-lw9jc

    @Preeti-lw9jc

    8 ай бұрын

    How are you now??? Did you had surgery?? Did you had CES

  • @theresasmith1
    @theresasmith12 жыл бұрын

    You need to do intermittent catherizations as i don't empty completely . I hold back 1/4th a cup . Taken 2 years and i passed out from retention. I had 10 large bags a day of clear urine . I lost 15 pounds after 2 weeks. The urodynamic tests isn't nothing to go through. Need to get moving or your bedridden. I went 4.5 years and 7th year to walk. No pain no gain.

  • @anubhavguha8353
    @anubhavguha83533 жыл бұрын

    Hey Sam. Good to hear about your recovery. Wanted to check did you have perianal numbness and leg numbness before surgery which has recovered too.

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Yes. It came all of sudden...

  • @fathielgamati1987

    @fathielgamati1987

    Жыл бұрын

    How to recovre it?

  • @hasanmatar8982
    @hasanmatar898210 ай бұрын

    Did you lose full senseion of the foot or just weakness because I lose full senseion of my right leg and I have weakness in my left leg ( the time between the stopping the urine plus fully losing the senseion my right leg and the operation it was around 16_18 hours

  • @makeupbykhani8178
    @makeupbykhani81783 жыл бұрын

    What's the condition of your other discs??? They are healthy? Or they have some kind of degeneration too?

  • @irudayanirmala1325
    @irudayanirmala13254 жыл бұрын

    Did u take any tablet for nerve damage. What kind of food you took for nerve regeneration.

  • @samraiborde8878

    @samraiborde8878

    4 жыл бұрын

    No tablet.. just physiotherapy and positive attitude

  • @harishwarreddy7980
    @harishwarreddy79803 жыл бұрын

    Hii brother my uncle was completed 6 months surgery and he is able to walk with stick and he has strength on legs but he has not able to know urine come.

  • @linalina-tj6md
    @linalina-tj6md4 жыл бұрын

    thank you so mush.pleas you can tell me when exactly you remove the catheter.after the surgery

  • @samraiborde8878

    @samraiborde8878

    4 жыл бұрын

    Well for me.. after 3 months.. o removed the catheter

  • @linalina-tj6md

    @linalina-tj6md

    4 жыл бұрын

    @@samraiborde8878 i have 6 month and i stell have a problem of retention

  • @karthiksankaran2111

    @karthiksankaran2111

    3 жыл бұрын

    Hi bro Did you exercise anything for getting bladder and bowel nerve function back ? Pls advise

  • @krishnanguzman6325
    @krishnanguzman63252 жыл бұрын

    How did you get back your urination? Im doing my straight catheter right now, how many years did you recover? I have the sensation if my bladder is full and needs straight catheter is helping me right now.

  • @GurpreetKaur-kj7fr
    @GurpreetKaur-kj7fr3 жыл бұрын

    Very nice sir ap ne jine ki tammanna peda kardi par Hindi me bhi bolie sir

  • @byroncarter9473
    @byroncarter94732 жыл бұрын

    How were you able to do this... this is what I suffer from and it's really destroying my life

  • @samraiborde8878

    @samraiborde8878

    2 жыл бұрын

    Hey.. I feel what you going through.. well this condition can get you depressed. But it's Important to just focus on the good things in your life.. and just keep wokring hard on your excersise.. it's all about keeping your head high and Be positive.. there is healing just gotta wait n be happy with what we have in our life.

  • @sonisahab-kt3bf
    @sonisahab-kt3bf4 жыл бұрын

    Thank you sir. I have also bawal & bladder problem and no control on urin.i use dipper.I have pain on tail bone you too. If yes what you do. I have foot drop too.

  • @samraiborde8878

    @samraiborde8878

    4 жыл бұрын

    Well for bladder and bowel recovery just do pelvic workouts.. try and start walking.. as much as possible. We can only wait and hope is recovers.. for foot drop.. i do ankle workouts.. and i climb stairs.. up and down.. it helps in over all build up of lower body muscles..

  • @alkalineforlife9033

    @alkalineforlife9033

    Жыл бұрын

    Me too have u done surgery ???

  • @irudayanirmala1325
    @irudayanirmala13254 жыл бұрын

    What laxatives you took for constipation

  • @samraiborde8878

    @samraiborde8878

    4 жыл бұрын

    Just normal over the counter ones.. but mainly it was my diet.. had to cut down on a lot of junk food..

  • @theresasmith1

    @theresasmith1

    2 жыл бұрын

    Senokot and magnesium

  • @AdityaGupta-jf8ly
    @AdityaGupta-jf8ly3 жыл бұрын

    ..sir ...that time you had urine leakage? If yes then has it recovered? I also suffered from CES urine incontinence...and i need to know how much recovery nd how much time would it take..

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Yes it took me around 3 to 4 months to ger recovery bladder function. It's takes time.. just keep doing physio . It will get better

  • @AdityaGupta-jf8ly

    @AdityaGupta-jf8ly

    3 жыл бұрын

    @@samraiborde8878 can suggest some physio for it? Any source from internet...since i have seen many but i get confused which one to apply

  • @lamancha7066

    @lamancha7066

    2 жыл бұрын

    What I did after using the caths for 4 years and many visits to the hospital because UTIs I talked to a Urologist and he did not game any guarantee that it was going to work but he did a TURP on my Prostate and it worked, so far I had 2 UTIs and right now I'm going through one but compared to many before the TURP I think it was worth it.

  • @alkalineforlife9033

    @alkalineforlife9033

    Жыл бұрын

    Me too pee all the time it so horrible for me

  • @hhiteshkumarr
    @hhiteshkumarr3 жыл бұрын

    Sir, apko urine aur bowel sensation hona surgery ke kitne time baad hona shuru hua?

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Around 2 months..

  • @hhiteshkumarr

    @hhiteshkumarr

    3 жыл бұрын

    @@samraiborde8878 ok thank-you sir.

  • @Amitkumar-tp9mc
    @Amitkumar-tp9mc2 жыл бұрын

    Sir apka surgery ke kitne din Bad urine and stool pe control aa gaya tha please batayie mai bhi cauda equina syndromes Face kar raha hu surgery ke 4month Ho gaya hai

  • @hnuvibhu2696

    @hnuvibhu2696

    6 күн бұрын

    Hello Amit how are you doing now??

  • @myopportunity7861
    @myopportunity78613 жыл бұрын

    Are you from India?

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Yes

  • @myopportunity7861

    @myopportunity7861

    3 жыл бұрын

    @@samraiborde8878 and you live in??

  • @myopportunity7861

    @myopportunity7861

    3 жыл бұрын

    And how are you now..

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    M good.. residing in india.

  • @damalesinguni8019
    @damalesinguni80193 жыл бұрын

    Been down with it, at which hospital did you have your surgery? Could you give me the details please, address, phone number etc.

  • @lamancha7066
    @lamancha70662 жыл бұрын

    Hi Sam I'm at the end of the rope here. I had CES for several years now due to a low back error from the surgeon. I keep seeing doctors and they keep saying the CES is not reversible, there is only a 48 hour window to fix it by surgery after that it is permanent. What you are saying is that you had CES for some time then you had the surgery to fix your CES?

  • @samraiborde8878

    @samraiborde8878

    2 жыл бұрын

    Hey.. well they are right it is a permanent issue.. but it is not somthing which does not have a solution. You can always live your life normally and see the positives in everything. What is your condition are you able to walk ?

  • @lamancha7066

    @lamancha7066

    2 жыл бұрын

    @@samraiborde8878 hi Sam thank you for getting back to me. Yes I can walk assisted with walker but it just getting worse as time passes, the compression in my lower back only allows me to walk about 20 or 30 ft then the pain starts in my lower back so I need to stop and sit and wait for pain to go away so I can continue and after 20 to 30 feet it starts all-over again. It is very stressful because I cant work, I basically can't do nothing After 4 years I had a TURP done by urologist and was able to not use the catheters but I need to sit down to urinate. It's not clear what they did to you exactly. Did they release pressure what type of procedure they did? Thank you