3 Years After Cauda Equina Syndrome

Пікірлер: 95

  • @syedumair7963
    @syedumair796319 күн бұрын

    I went through CES surgery in January 2024, curently suffering bowel n bladder control issues, saddle anesthesia. Doctors said we dont have any medicines of sensation lost. But i m happy to see Ur recovery progress. It gives me support to fight against it. Thank u brother

  • @user-vd8ke4oh2v
    @user-vd8ke4oh2v19 күн бұрын

    Thanks sam two months and a half and you have been an inspiration to me. God bless you

  • @Entvan
    @Entvan4 ай бұрын

    Thanks for sharing your story. I had surgery cause of CES a week ago and I have a one month old newborn and this is the first positive story I found online. I really hope I'll regain at least something back.

  • @Footballwithbikku

    @Footballwithbikku

    Ай бұрын

    Ma'am what were your symptoms?

  • @sjpmeister
    @sjpmeister5 ай бұрын

    Thank you for your video. I am recovering from CES now for 4 months. I went from bodybuilder to hardly walking making this very difficult. You don’t see any positive results from this syndrome anywhere. I have really been struggling with this and thankful I came across your video.

  • @SAHiL_1987
    @SAHiL_19873 ай бұрын

    Your video gave me big hope. I'm 46 years & was diagnosed with CES in Dec 2023. I underwent surgery on the 4th day after I was convinced that it was an emergency. But the recovery has been remarkable. I got rid of the catheter in Feb 2024 about two months after the surgery & I have started walking on my own without much assistance. The Bowel issue has almost 90% resolved. Although the urine passed with little effort, I found a remarkable recovery in less than 4 months. Overall, I see myself pretty much recovered.

  • @mahmoudabualfa3347

    @mahmoudabualfa3347

    2 ай бұрын

    Great to hear this

  • @umairaniazi4824

    @umairaniazi4824

    Ай бұрын

    I have urine retention issue... I have surgery on 16april. I m much worried about it

  • @admin0022
    @admin00223 жыл бұрын

    18 months into recovery and I am able to use forearm crutches and travel about 300’. This has been the hardest thing I have ever done in my life. I watched all the videos and am encouraged by your recovery. I have given up most meds and am trying to work through the pain. Thanks for sharing your story!!

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Glad my vids have been helpful.. praying you get complete recovery. 😊

  • @theresadavis-bowling2808
    @theresadavis-bowling28082 жыл бұрын

    Thank you so much for sharing your story. It’s been almost 3 years and I lost a lot with CES. I’m so happy that I don’t have to use a wheelchair, walker, or my leg braces. It has taken time but God has been with me the entire time. I’m so grateful and thankful to God for his grace and mercy.I will continue to fight because I want my whole life back.

  • @dennisafriyie8674

    @dennisafriyie8674

    4 ай бұрын

    Did you have a foot drop and if so how did the foot come back alive?

  • @theresadavis-bowling2808

    @theresadavis-bowling2808

    4 ай бұрын

    @@dennisafriyie8674 Good afternoon, yes I had/have foot drop. I work leg braces that were made and measured for me and I also attended therapy. I don’t use the braces anymore and I do work a job full time. I have a lot of nerve damage and it affects my legs and feet. I keep going praying and walking. I can’t run but I can walk sometimes after being on my feet to much when my legs are tired I can feel when the foot drop is coming where my leg can drag. At that point I must rest get as much rest as you can.

  • @mateuszadam2903
    @mateuszadam29032 жыл бұрын

    Thank you for sharing your story with us. Very inspiring. I had CES and had to have emergency surgery. I am 8 weeks post-op and doing well. I hope to recover as much as possible. Thank you for making this video and I’m so happy for your recovery

  • @msjannifer
    @msjannifer2 жыл бұрын

    Thank you for making this, my first cauda equina surgery was in 2015 and second one was year later. The second surgery I had drop foot after surgery, I had physical therapy for half a year. There is life after this.. just being more gentle with your body.

  • @Ammerlaan88
    @Ammerlaan883 жыл бұрын

    Thank you brother, I had surgery 8weeks ago and have had a recent set back with leg symptoms. Your video helped.

  • @AliceinSunderland
    @AliceinSunderland11 ай бұрын

    Hi Sam, thank you for sharing your story. It’s so inspirational hearing your advice on remaining positive. You’re very wise. Thank you for motivating me on my recovery from CES 🙏

  • @annawilliams7650
    @annawilliams76502 жыл бұрын

    Thank you for sharing your story and I am so happy you have recovered so well and it is very inspiring to listen to you. I have recently been diagnosed with CES and had to have an emergency operation. Luckily I was much less effected than you and making a quicker recovery, but it was scary at the time and of course the worries about how I will be long term so it is very good to watch your videos and see how you continue to improve.

  • @Entvan

    @Entvan

    4 ай бұрын

    So you recovered fully? What issues did you have. Sorry I'm just looking for success stories to get motivated

  • @costageoref3309
    @costageoref3309 Жыл бұрын

    Thank you Brother and God bless you too 🙏❤️

  • @stevenwagner9912
    @stevenwagner9912 Жыл бұрын

    A person goes through a period of grieving after you are injured and you know your body will never heal enough to let you live the life you used to and wanted to. I think that is the hardest part. I have back problems. Haven't been diagnosed with CES but my surgeon said my spine is a train wreck from one end to the other and a textbook example of what can go wrong with a spine. I have come to terms with it but now my brother has almost exactly what I do except worse. The MRI reading did mention the CE was somewhat impinged at C3-4 I think. I hope he can find some help so he can have more function. He's a great guy who has had a rough life. As a kid he had asthma and nearly died several times. He had a son who got into drugs and ended up taking his life. He has2 grandsons he loves so much. So he needs to be able to be a part of their life. Been watching videos to learn as much as I can. Hope all of you find at least some relief from pain.

  • @stevenwagner9912

    @stevenwagner9912

    Жыл бұрын

    And thanks to the poster for this great video.

  • @Candehcanes
    @Candehcanes2 жыл бұрын

    Can you make a video of pts you do. I stopped going because my pt people were small. I hace CES, 26. Sending you blessings on your recovery and improvement! Thanks for sharing

  • @EileenDean
    @EileenDean Жыл бұрын

    Hi Sam, I have saved your video for inspiration. On June 1, 2022 I had a back operation that went wrong. I am 7 months working with physical therapists and at home. I'm so impressed with your recovery. Could you tell me about your physical regimen to recover? Did you have a trainer or go to a gym? Is there anything you found particularly helpful? Also I was wondering if you still have drop foot and if you still wear braces?

  • @linalina-tj6md
    @linalina-tj6md3 жыл бұрын

    Thank you brother I'm so happy for you.

  • @SujitPalandeMissionRun
    @SujitPalandeMissionRun3 жыл бұрын

    Wow it.. really inspiration story.....I felt like my story....so related.....thanks for sharing 🙏👍

  • @erniealvarado5986
    @erniealvarado59863 жыл бұрын

    Thanks for replying Sam... I hope goes well... I guess we have to do our part & leave the rest to the lord!!! God bless brotha

  • @freestylers5563
    @freestylers55634 ай бұрын

    THANK YOU FOR SHARING THIS WITH THE COMMUNITY...MY BROTHER....OBRIGADO **

  • @movingon.............6850
    @movingon.............6850 Жыл бұрын

    I was discharged yesterday after my operation two days ago. All Esteemed To The Most High🔥

  • @lynnemerrills4665
    @lynnemerrills46656 ай бұрын

    Thankyou for sharing. God Blessx

  • @bridgetpreston2100
    @bridgetpreston21003 ай бұрын

    Thank you for sharing

  • @maleko61
    @maleko61 Жыл бұрын

    Thank you for this

  • @Amitkumar-tp9mc
    @Amitkumar-tp9mc2 жыл бұрын

    Apka video dekh ke mai bahut motivate hota hu

  • @samraiborde8878

    @samraiborde8878

    2 жыл бұрын

    Thanks

  • @LolaBastinado
    @LolaBastinado2 жыл бұрын

    Thank you so so much for sharing! My daughter was diagnosed with CES 11/2020

  • @samraiborde8878

    @samraiborde8878

    2 жыл бұрын

    Hope she gets better. Prayers n love

  • @fathielgamati1987

    @fathielgamati1987

    2 жыл бұрын

    @@samraiborde8878 Hi my freind iam haveing ces for 8 month will you please help me and send me what to do and what recovre i need withig for your help thank you

  • @user-wi3rw7zg3w
    @user-wi3rw7zg3w3 ай бұрын

    dear kindly me guide the proper treatment and about your doctor for this treatment

  • @uruasija9141
    @uruasija914110 ай бұрын

    When will sensation come after surgery please tell

  • @geraldhammond2382
    @geraldhammond23825 ай бұрын

    Thanks for sharing 😊

  • @RanjeetSingh-mw4ql
    @RanjeetSingh-mw4ql8 ай бұрын

    How many days recovery start 1 St time

  • @peteman8160
    @peteman81608 ай бұрын

    Congratulations on your recovery. And your right it is a mental battle.. You will keep recovering its been 13 years for me and lm basicly back to normal again, still have some more healing to finish off. I know how hard it can be l know how you feel. It gets better, the longer you go faster you heal and the more healing you notice becuase all the small little healings start to add up to the over all big heal.

  • @chrisnyasia7

    @chrisnyasia7

    3 ай бұрын

    That's a great post, my friend... Extraordinarily inspirational...

  • @erniealvarado5986
    @erniealvarado59863 жыл бұрын

    Just had a question...Do you get electrical shocks in feet and do you have any type of numbness in legs or saddle area, I hope you can talk about it, if you have experience these type of symptoms. Thank you

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Yes I do get electrical shocks sometimes not ofteen.. mostly during weather change.. also saddle numbs and feet numbness too..

  • @erniealvarado5986

    @erniealvarado5986

    3 жыл бұрын

    Has the numbness in saddle area changed or it’s still the same and also do you have numbness in the feet? Thanks for responding

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    It's gotten a little better.. but still numb..

  • @erniealvarado5986
    @erniealvarado59863 жыл бұрын

    Thanks for replying, Because I had my surgery for CES in 3/2020 I still have numbness from my buttocks all the way down to my feet I was wondering if it will go away. I asked my doctor but he’s not sure everyone is different

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Well. That's a million dollar question.. we have to wait and see. How ur recovery progresses.. just be patient n concentrate on your physiotherapy.

  • @Ranjana-ek1jg

    @Ranjana-ek1jg

    5 ай бұрын

    How are you now?? hope you're doing well ❤️‍🩹

  • @Amitkumar-tp9mc
    @Amitkumar-tp9mc Жыл бұрын

    Sir kya surgery ke Bad bhi apka buttock aur pair Mai dard rahta tha kya report sab normal hai phir bhi

  • @taarockneupane600
    @taarockneupane600 Жыл бұрын

    Sir please make a video with your exercises plz sir

  • @dalwinderkaur4687
    @dalwinderkaur46872 жыл бұрын

    Thanks sir for sharing ur story...m also suffering this disease..and had surgery 3 years ago..my story also same n I understand ur condition becoz mine is also same butafter 3 years I have back pain sometym...

  • @samraiborde8878

    @samraiborde8878

    2 жыл бұрын

    Hi there if you have pain consult a doctor

  • @uruasija9141

    @uruasija9141

    10 ай бұрын

    When will numbness go after surgery

  • @forovusventure6651
    @forovusventure665111 ай бұрын

    Hello Sam...I want to ask u, i was diagnosed of Cauda Equina Syndrome last 2 days.. I still have sensation on my bladder but my Sexual dysfunction.. My leg still ok, can walk.. Pain at the back subside.. Should i be doing surgery as fast as posiible for this Issue or just continue with Physio?

  • @forovusventure6651

    @forovusventure6651

    11 ай бұрын

    Hospital only gives me Steroid to relief the pain n some inflammation.. Do u think it works without a surgery?

  • @gautammalhotra2979

    @gautammalhotra2979

    10 ай бұрын

    ​@@forovusventure6651surgery?? Or not

  • @Preeti-lw9jc

    @Preeti-lw9jc

    8 ай бұрын

    How are you now??did you had surgery??

  • @jeffskyton4193
    @jeffskyton41933 жыл бұрын

    Hello Sam, Its been 8 months now since i went through the surgery. My legs are recovering comparing from before. My issue is I am not able to ejaculate. I am afraid that i wont be able to have a child in the coming days. Can you please tell us your experience about this. Will it be fine afterwards or it will remain like this.

  • @mrunstoppable5806

    @mrunstoppable5806

    Жыл бұрын

    Please reply i m also in the same dilemma

  • @luqmanlatif1358

    @luqmanlatif1358

    11 ай бұрын

    Im in to 9th month of surgery got rid of catheter 3 months after surgery my bowel issues also improved but I still can’t get the erection which is stressing me a lot

  • @user-uz6cq3pd4y

    @user-uz6cq3pd4y

    Ай бұрын

    Привет, а до операци были у тебя проблемы с мочеспусканием. Меня тоже оперировали пока ничего не изменилось​@@luqmanlatif1358

  • @fashionvilla5385
    @fashionvilla53853 жыл бұрын

    My father had swelling in his right foot and hips when does it go and why it is???

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Well swelling is common with this condition. Excersize should help in reducing it

  • @jackhenderson4343
    @jackhenderson43433 жыл бұрын

    Hi Sam!!! I hope you can give us an update and if you are experiencing any numbness in buttocks area; legs; feet and any electric shocks in feet.... Things are getting better for Me but very slowly, for the past 3 months I started riding my mountain bike and feels amazing to be able to do that.it’s been 13 months since my surgery... Thanks for you’re videos and God Blessed Sam

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Hey Jack.. Hope your doing well and safe.. well I still have numbness in my feet and parts of my leg.. Saddle area is ok.. I used to get electrical shocks. But now it's been 2 years don't get them.. I just have issues with balance sometimes.. but it getting better each day. Just keep positive things will get better. 😁

  • @punamkk8794

    @punamkk8794

    3 жыл бұрын

    Hii Sam I'm 38 years old 8 February 2021 my surgery is done. My bladder issue is almost recovery , but my left feet has no sansation numbness, my right leg is strong n my left leg is also strong only my left feet has no sansation.... I'm feeling after surgery electric shock in my feet but still no sansation what can I do pls tell me

  • @punamkk8794

    @punamkk8794

    3 жыл бұрын

    My feet is lifting but fingers are not moving

  • @vijaybagariya7758

    @vijaybagariya7758

    Жыл бұрын

    @@punamkk8794how's your leg

  • @punamkk8794

    @punamkk8794

    Жыл бұрын

    @@vijaybagariya7758 it's better

  • @punamkk8794
    @punamkk87943 жыл бұрын

    Hii Sam, I had my surgery 8 February 2021 my bladder function is almost recovery mood my right leg is all well my weast is strong my only my left feet has no sansation my feet is lifting but my fingers are not moving yet what can i do, my Dr told me that no to worry it will be alright in 6 month after my surgery ihave feel electric shock in my feet ... Your fingers are moving

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Hey sure.. u can call me.

  • @punamkk8794

    @punamkk8794

    3 жыл бұрын

    @@samraiborde8878 ur no pls

  • @punamkk8794

    @punamkk8794

    3 жыл бұрын

    @@samraiborde8878 mobile no. Dijiye pls...

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    @@punamkk8794 7507770313

  • @jayateerth76
    @jayateerth762 жыл бұрын

    Sir, my cousin has been diagnosed with this condition. Would like to discuss treatment options. Can you pls provide contact details so we can discuss?

  • @samraiborde8878

    @samraiborde8878

    2 жыл бұрын

    Sure send ur contact details

  • @vijaypandi5237
    @vijaypandi52372 жыл бұрын

    Sam without surgery how manage ces

  • @samraiborde8878

    @samraiborde8878

    2 жыл бұрын

    That you will have to ask your doctor. Because with a slip disk that is compressing your nevers there is lot of pain and only solution is surgery.. but if there is any option other than that your doctor would be best person answer that

  • @punamkk8794
    @punamkk87943 жыл бұрын

    Rpl pls sam

  • @deepakrathore7723
    @deepakrathore77233 жыл бұрын

    Did you get back ur all sensation

  • @samraiborde8878

    @samraiborde8878

    3 жыл бұрын

    Well on the sensation part.. I still have numb feet. N saddle area

  • @uruasija9141

    @uruasija9141

    10 ай бұрын

    When will numbness go after surgery???

  • @uruasija9141

    @uruasija9141

    10 ай бұрын

    ​@@samraiborde8878how is numbness now??? Please tell

  • @anasshaikh9037

    @anasshaikh9037

    7 ай бұрын

    ​@@uruasija9141aap ke bhi h kya quada equina

  • @Dharam-Marg08
    @Dharam-Marg083 жыл бұрын

    Sir please Aapka no.

  • @wesleymartin6506
    @wesleymartin65063 жыл бұрын

    I've been living on the toilet for 14 years.ii

  • @ionnicolai4684

    @ionnicolai4684

    2 жыл бұрын

    How you are now?why so long time you didn’t recovery?

  • @Mark-fg9pf

    @Mark-fg9pf

    7 ай бұрын

    Hi Wes, can you describe what you mean? I find myself sitting on the toilet because i feel my bladder is not emptying fully.

  • @mahmoudabualfa3347

    @mahmoudabualfa3347

    2 ай бұрын

    ​@@Mark-fg9pfcould you tell us how r u now? did you had the surgery

  • @Mark-fg9pf

    @Mark-fg9pf

    2 ай бұрын

    @@mahmoudabualfa3347 hi, no surgery ( yet ) The symptoms come and they go. If I over exhert myself I pay the price. My foot gets numb, then the shin, then thevbladder trouble if its really bad. I take some anyi inflamitory, stretch, traction. I lretty good after a whike.