The minor side affects don't really scare me, it's the seizures. Everytime I've gone cold turkey, I seize. I'm not prescribed them so my supply isn't always steady but steady enough to get addicted. I'm planning on going to a doctor this weekend to see about where to start on my taper, but since I'm in a foreign country, I don't know how they go about detox with benzos so I'm a little scared. I really don't want to go through another seizure. Those things are scary as heck.
@windowsNwaves6 сағат бұрын
seizures are indeed scary, and also dangerous. Please do not go CT anymore!!! It sounds like you have a good plan and you realize the importance of slowly getting off benzos.
@71998918 сағат бұрын
I’m coming up on 5 years after CT klonopin. Do NOT recommend CT but had no docs willing to admit it’s a problem in my town. About 70% of me has returned, but I’m still riding the struggle bus.
@windowsNwaves3 сағат бұрын
Sorry to hear you went through this -- and are still going through it. I had a poorly executed taper and even then, I can not imagine CT. I did have a brief taste of it during an episode where I temporarily ran out of my supply of lorazepam. I had akathisia for about 12 hours straight before checking into a hospital. I hope your healing continues and the struggles become a thing of the past.
@Mnichols37419 сағат бұрын
What they heck do u do when u have no wondows and its pure torture all day long was on a benzo for 6 months ssri for 16 years and im in complete hell theres no help im trying to just get through the days but im getting worn out.
@nwicconsultants6640Күн бұрын
What a breath of fresh air.....thank you Phil for sharing your experience. Looking forward for the newsletter so that we can communicate our experiences and be of support for each other. For those that haven't already....please sign up!
@windowsNwaves2 сағат бұрын
🙏🙏🙏🙏
@jimferrill1790Күн бұрын
Your video raises a great point about society in general. When, and it is when, not if, society runs out of these drugs or there is a supply hiccup, we're going to have millions of crazy mfers running around unhooked. GOD help us.
@jimferrill1790Күн бұрын
I had to quit as the drug was contra-indicating. A fancy term for not working. The more I took, the less they benefitted me. In the end I found that if I took less, I slept better and had a better day all around. Little did I know that quitting this drug was something you did not undertake like alcohol or oxy. There is a process. I had no idea. Here I am 13 months into my withdrawal and having what seems to be my 7th really good day in a row. There is relief! Stay the course. Man, you get the benzo withdrawal. You really do. I myself promised that if I ever got to the point of suicide again and really meant it, I would go back on the drug. You are heart attack serious when you're looking in the camera and saying, "You better believe I would be taking benzos for the rest of my life." I can feel your sincerity because I've been there as well.
@windowsNwaves3 сағат бұрын
Hey Jim, I'm glad to hear you are putting those good days together. What a good feeling that is. I hope you continue to have more of that going forward. That tolerance and ineffectiveness you speak about is common for a lot of people. On my end, it was one thing I didn't experience. When I did find myself raising my dosage, it was more circumstantial than an issue of tolerance or ineffectiveness. You are right, benzos are a different beast compared to alcohol and opioids!!!
@jimferrill179015 минут бұрын
@@windowsNwaves Working on about 9 great days straight. I was lying in bed the other night and thought, "Is this over?" It wasn't as I had a very restless night after that with ill feelings and a bit of anxiety. I just went to Lake Michigan with my doggo. I love it there. It is so peaceful. I think I ma close to being completely healed. I still deal with a bit of dizzyness and exhaustion but it's nothing compared to what I was doing. Peace, Out
@JinxTheWriter2 күн бұрын
I stopped because my Dr's are idiots and just took them cold turkey after 10.5 years of daily use. I have ptsd from finding my baby daughter dead in 2013 and my husband committed suicide it 2017. But I'm here and kicking dammit.
@jimferrill1790Күн бұрын
Holy Quacamole! You've been through the wringer! Praying for you right now.
@JinxTheWriterКүн бұрын
@jimferrill1790 thank you, I never turn down a prayer. 🙏
@ToddDouglasFoxКүн бұрын
@@JinxTheWriterawesome human being! Thanks for sharing.
@giacomorotondi7251Күн бұрын
I want to be friends with you and people like you. Best respects woman.
@JinxTheWriterКүн бұрын
You guys are so amazing. And we will get thru this and heal. Every day is a new day of healing. Even if it's just a little. We are so strong 💪 ❤️
@allencollins60312 күн бұрын
Thanks for the optimistic perspective. Brutal road. Surely isn't linear.
@DomingotheFlamingo3 күн бұрын
There is no healing
@windowsNwaves3 күн бұрын
I know where you are coming from. I used to think the same thing... Then I started healing. Didn't think it would happen
@freddumee3 күн бұрын
Now 42 months of intense shaking and cramping legs and feet, akathisia, benzo Belly, nerve pain etc. Please give me some hope.
@allencollins60312 күн бұрын
Same here as you listed. Brutal. But just keep going in hope for better days.
@freddumee2 күн бұрын
@@allencollins6031 Do you too have the shaking and cramping legs and feet?
@ElleryEggen4 күн бұрын
Two years on benzos. Lucky me got thrown in jail for 21 days. Best thing ever happened to me. 3-4 months of shaking, sweating. Broke a few teeth whilst eating, chewing. I looked like s tweaker, didn't take a shower ot bathe for over a month. Thought i was gonna lose my mind. Side note; Effexor XR was FAR WORSE!! A good six months + of severe psychotic behaviour. I lost my apartment, my car, my friends, my life. Worth it all in the long run. I was owned by a pharmacy, snd MD's. I'll never trust them again. My advice, find a support group, ingest copious amounts of canabis. Don't let peope around you tell you things like " gotta trust the doctors', etc..., Ten years all told, not including the horrific events that lef me to legally prescribed medication.
@djdanzy4 күн бұрын
7 years. In hell daily. I envy you can ride. Ive been on my couch daily and im 33 yrs old.
@windowsNwaves4 күн бұрын
I'm so sorry . Wishing you better days 🙏
@djdanzy4 күн бұрын
@@windowsNwaves thankyou! Please be careful of antibiotics and alcohol. Can cause severe acute setbacks even 8 years off. Dont drink!
@windowsNwaves3 күн бұрын
@@djdanzyno argument there! Good advice
@denisguilbault2984 күн бұрын
This is crazy iv never met such amazing people struggling like I am with the same symptoms. My brain was high jacked by like a demon the devil himself. . iv never felt and expressed such rage and hatred and irrablilty in my life. Sad to say I left my family and gf just to protect them from me.. Thank you for this channel.. we're all suffering together. No doubt And no one can out think their way out of mental he'll prison. Good behavior towards self is the best bet to improve chances at healing my friends 🧡
@windowsNwaves3 күн бұрын
I had a big problem with anger and rage during my wd as well. It is unfortunately a common symptom. Your family may not understand right now but you know what you are feeling and experiencing. If you were compelled to make that decision then I'm sure it was the right one. Here's to your continued healing ❤️
@kengaroo51704 күн бұрын
Would CBD or Cannabis help with the withdrawals and seizures? CBD has been used for epileptic seizures and neurolgical issues. Cannabis doesn't have severe withdrawal issues and can relieve anxiety symptoms. Would this help?
@windowsNwaves3 күн бұрын
Cannabis has been shown to act on the same GABA receptors as benzos so it can be problematic if you are trying to rehabilitate said receptors, which is exactly the goal during wd. That said, some people seem to find significant relief. Seizures is a different story and I won't pretend to know the research there. Anyway, at the end of the day, as you have probably gleaned from poking around on the internet, a lot of us are navigating through this completely in the dark and there is a lot of self-experimentation/figuring out what works for me etc.
@MrPeterISABELLA4 күн бұрын
Can you please tell me what dose of ativan you were on? Can you tell me how long? And how long the taper was? Thankyou.
@windowsNwaves4 күн бұрын
2 years and change with a couple months of sporadic diazepam before it. I was taking 1.25mg but some days more than that. had a very abrupt taper down to .5 mg for one month and then .25mg for a month and then off. Very much regret the hasty taper...
@MrPeterISABELLA4 күн бұрын
@windowsNwaves thankyou. I feel if people write, how much, how long, and what dose people can start to figure out how long there withdrawal will be and how long side effects, this can bring direction and HOPE....thankyou.
@windowsNwaves4 күн бұрын
@@MrPeterISABELLA everyone is different, but that said, yes, I completely agree that the more we talk about it and the more info we can share, the more helpful it is when it comes to knowing possible outcomes, and yes, having hope!
@gulledfarah39735 күн бұрын
I’m coming up on 33 months and I’m still dealing with windows and waves. My remaining symptoms are depression,dpdr and lack of motivation and some nerve pain. I having windows where it all lifts so I’m getting close thank god.
@windowsNwaves4 күн бұрын
Glad to hear you are starting to have some of those more convincing windows. I hope things keep moving in that direction!
@shirleypeterson-rp3tq5 күн бұрын
I was on 1mg for 10 years I’m doing a liquid compound taper from Ativan my experience with my taper is not sleeping having more anxiety and panic..6 months into my taper.
@windowsNwaves4 күн бұрын
Hey Shirley, I hope everything you are going through will help make that moment when you finally jump off that much easier ❤️🙏
@jaypalnitkar44002 күн бұрын
But my doubt is this: how can a d0ctor give u prescription for so long? 10 years for SSRI is insane !!
@MrPeterISABELLA6 күн бұрын
I was on ativan 4-5 months on 1mg. I stopped it.....and 6th day it started huge withdrawal....It was like I was plugged into the fastest electricity plug up my spine 4 11 weeks. Hell on earth....couldn't sleep.....for 11 weeks.....insomnia from anxiety 100x worse than y I even went on the medication......12th week it was like a bus hit my brain....like a blow to the brain....deep calm.....total polar opposite....now extreme fatigue, days lasting calm, to then severe light sensitivity, to severe anxiety.....windows free....yet only last a short time.. I am 12 weeks off now....and still will have 3 months to build neurons back and strength. Coming off lorazapam is a severe trauma.
@windowsNwaves6 күн бұрын
Yeah the withdrawal was also kind of a delayed fuse for me, too. But once it started, man.... It sounds like you have made it through the thick of it -- it will keep getting better! Coming off lorazepam is indeed severe trauma.
@MrPeterISABELLA6 күн бұрын
@@windowsNwaves your brilliant to help us all.....I hope I have....I am taking l theanine, melatonin 20mg, cbd Tasmanian 10:10, lions maine, magnesium glycinte, zinc, retinol A 10,000IU, st john's wart by flordis. The most severe part of this has been the inability to sleep for 11 weeks straight. I swear this drug causes more damage than it does good. It's like a major disability stopping it. Severe trauma.
@baileystruss73196 күн бұрын
Dude you're walking. I have to admit I'm envious. Its left me neurologically bedbound for over 2 yrs. I've never seen anyone as debilitated as me. I'm about done.
@windowsNwaves6 күн бұрын
I'm so sorry mate. I am fortunate to be able to be out walking. I know so many that have had it much worse. I hope that you find some relief.
@baileystruss73196 күн бұрын
@@windowsNwaves thank you. I wasn't minimizing your own struggle. Only that when loses ability to do any activity to burn off energy and distract, it becomes quite hopeless.
@windowsNwaves4 күн бұрын
@@baileystruss7319don't worry, I didn't take your comment that way. I wish I had the words or something else to offer but we both know that I don't 😔
@allencollins60312 күн бұрын
You are not alone with that.
@beecee47577 күн бұрын
Thank you very much for the video, just found out recently I have a dependency on Klonopin. I have been experiencing hell for a few years now and had no idea. I don’t take Klonopin daily, but I think over the years this nasty dependency has developed. I am taking a bunch of supplements such as magnesium and vitamin B, and also taking Buspar. Thanks again.
@windowsNwaves6 күн бұрын
Glad to hear you have found some clarity. Hopefully the fact that it was not daily use will help you jump off easier.
@windowsNwaves6 күн бұрын
wishing you all the strength and healing <3
@beecee47576 күн бұрын
@@windowsNwaves it’s very hard. I am relieved some what to know what’s going on. The feeling of doom gets pretty intense. I’m trying to figure out my best method of tapering since I don’t take it daily. I think I’m going to take half a dose as needed till I see a real psychiatrist, but that won’t be for 1-3 months. My doctor is recommending a cold turkey approach, but this shit gets pretty awful. And it seems like no body really recommends just stopping. But I don’t wanna start using daily if I don’t need to. Thanks again, you videos are very informative.
@windowsNwaves6 күн бұрын
@@beecee4757 I would really try to find a doctor that understands benzodiazepines. If you are in the states, the benzo info coalition has a good resource here: www.benzoinfo.com/doctors/ I am not a doctor myself or even a mental health professional, but it seems you have done enough research to know that cold turkey is not wise with these drugs!
@jimferrill17907 күн бұрын
I am 12 months into withdrawal. 10-20 ml of Valium for 15-20 years. My DPDR was pretty intense. I awoke at least three days where I didn't know who I was. That was very scary. Talk about a panic attack. I am finding those around me are getting sick of me being sick. I can't speak of my illness to nearly anyone. They have had enough and I look fine! lol! Yeah, look. My restless leg was so intense that both my legs were going at once for months. Sleep was unobtainable. Hypnic jerks. I had 500-1000 different points on my body all firing at once for hours while trying desperately trying to sleep interrupted with these hypnic jerks like someone slamming their fist into your back every 5 minutes or so. Did you have that? After 12 months off I am finding my brain working incredibly well in the fact that I can figure things out in a split second and am surprised by it. I like your art. Keep drawing. It is very soothing. My memory is bad in the aspect of remembering what I went through during my acute phase and after that for about 6 months. I did take notes. Glad I did. I agree that my life may be a crazy train, but it is preferable to the bland, grey, life I was leading during the drug intake. I have zero regrets just like you. I have read that after acute withdrawal, you get convinced that the drugs are the answer, again. I have made a promise to myself that if I am going to off myself, and am serious, I will go back on the drugs to save my family from that sadness and generational misery. Like the video and thanks again for posting.
@windowsNwaves2 күн бұрын
Hey Jim, there were two things that your wrote that as soon as I read them it was like a heat seeking missile to my brain. That sense of not knowing who you were-- yes! My god it's terrifying. I remember thinking this is what madness feels like. It was as if all the electrical signals in my brain were just colliding and nothing was getting through. I had become untethered from my sense of self. Wow. Terrifying. I hope to never experience that again. And the RLS and hypnic jerks. For me the hypnic jerks felt like someone had hooked me up to a defibrillator and they were just toying with me, randomly delivering bursts of electricity to my body. Thanks for sharing so much of your experience here. I am sure it is helpful for others -- I know it is helpful for me. To our continued healing <3
@giacomorotondi72517 күн бұрын
Phil Is that you? ❤
@windowsNwaves7 күн бұрын
yes, it is :) Although, I don't quite look like that now. That was a couple months ago and I was taking efudix, which is like a chemotherapy cream to treat precancerous and cancerous skin cells. The treatment is horrific and makes your face itch and burn, not to mention you look like you have suffered radiation poisoning!
@jimferrill17908 күн бұрын
I could not sit down for 5 1/2 months. Along with gloom and doom (thoughts) that always ended in death. Death of me or any person I was thinking of. Just dooooom. I paced in my house for 5 1/2 months. Up to 19 hours a day. I would be pacing all night long, non stop. It finally went away around six months through my nightmare. I'm still suffering restlessness in a very big way but at least I don't have restless leg syndrome anymore. I had it to the point where both legs were going crazy all night long. Your vids are very calming to me. Please keep them coming. I feel insane today. I remember thinking how relentless this condition is. I would sit on my bed and say out loud, "This is just relentless!" To myself and very quietly. I would say this 25 times a night sometimes. It is still relentless.
@windowsNwaves7 күн бұрын
Ah I just saw you other comment about improved energy levels and then I see this one, where it sounds like you are not having a great day. Sorry to hear that. But at least the akathisia and RLS are behind you. Relentless is a good way to describe it. I would have called it relentless and I didn't experience it anywhere close to the duration that you did.
@jimferrill17907 күн бұрын
@@windowsNwaves You and I know diet is key to escaping the waves. I think I had a bad reaction to Decaf or a banana. Hence the bad day or days in this case. Bananas have been a trigger for some bad days and then on other days they don't matter a bit. I didn't eat a banana yesterday and had a decent day. Weird that in this withdrawal things can effect you and then the next day, they don't. I am up and down on this withdrawal. I remember reading about a person who had waves of misery that lasted 21, then 14, then 7, then zero days. I was hoping I am just experiencing some really bad waves. I have experienced the 21 day wave. They have gotten shorter and shorter however. I'm hoping this last wave is gone. It would have lasted 2 days. Today, so far, so good. I am tightening my diet to the point I don't really eat much of anything. No carbs, no sugar, no gluten, what is left? Cardboard. But I am scared to eat. Today is a new day and it will be good. I will make it so. Yesterday took the doggo for his daily night walk and he jumped in the fetid pond again. He loves the water. The prior night he did it too. I got really frustrated and angry. Last night I didn't get angry as I had resigned myself not to. I just gave him another bath. Oh well. My point is we can decide whether we will participate in the bad mood or no. In other scenarios, our will can't be determined by us. The withdrawal takes over for us in confusion or frustration and leads to giving up. In the positive column I decided to install a HUD in my car. It was a factory option that my car didn't come with. The procedure involved removing the entire dash and installing some components that is tricky and complicated. I had success doing this 7 hour procedure. I could never have achieved this 5 months or even 3 months ago. It's a neat gadget and I'm into that sort of thing. So I have good days and bad. I hope you are out of the bad days. I'm not giving up. Hope your day is good.
@Radhey22238 күн бұрын
Your videos are really helpful and informative during benzo withdrawal. I am now 9.5 months off xanax, but it's pure hell, symptoms are keep on changing, but every single one is brutal. As you said that time is the only cure, and I believe it also, but why I am getting worse and worse day by day? Can acute phase be as long as 9.5 months? I also have drastic weight lost during withdrawal, is it common?
@windowsNwaves7 күн бұрын
I am sorry to hear that you feel like you are getting worse. Sadly this is a really common thing. But it doesn't actually mean you ARE getting worse. I actually made a video about this exact subject: kzread.info/dash/bejne/jIl3z8ekoZTWnNo.html 9 months was about how long it took for me to start turning the corner. But everyone is different. For some, it can be longer than that. Many people lose weight during withdrawal. The brutal reality is that benzos affect our whole body and brain -- not just the GABA receptors that we associate them with.
@Radhey22237 күн бұрын
@@windowsNwaves thanks for replying, as I felt so relaxed that atleast you can validate and believe my situation, otherwise my family members do not want to listen or believe me that withdrawal is even an issue after being off the pill. The severe stress and tension between the family members are making me more alone and frustrated. You are so helpful and your videos are so encouraging.
@windowsNwaves6 күн бұрын
@@Radhey2223 it can be so hard with family. Is there any one family member that you could possibly get through to? I found that once I finally got through to my sister, and she understood what I was going through, it made a big difference. But I don't want to pretend to know your situation. For those that have never experienced this, it can be so difficult to get across what the experience is like. I hope you will turn the corner soon and find some sustained relief.
@Radhey22236 күн бұрын
@@windowsNwaves thanks for replying. Actually now at this point of time, , I stopped explaining them about my withdrawal agony. But as I am living with my children, and there is a lot of stress between the family members, this is making me and my healing worse . I don't find peace in the secure environment of home, and dpdr, disassociation, detachment type symptoms make it very difficult for me to keep going. I hope if the withdrawal part is a little better, things will be more manageable. Do you think that stress can delay our healing?
@windowsNwaves2 күн бұрын
@@Radhey2223 I don't want to pretend to know anything for sure, but I don't believe stress itself will delay the healing. I do believe that stress is much more insupportable while you are in WD because your brain's natural handbrake (GABA, and specifically the receptors that have been downregulated) is not operating how it is supposed to. BUT that said, your brain wants homeostasis so you would think an unchecked stress response would provoke your brain to rehabilitate those receptors as quickly as possible. To think about this another way, there is evidence that caffeine can contribute to an increase in GABA receptor sites (www.ncbi.nlm.nih.gov/pmc/articles/PMC3437321/). When we think about this model of homeostasis, caffeine is activating the glutamate system in the brain - the brain’s excitatory neurotransmitter. And there is a good chance it will feel unpleasant, because you have nothing to counter that glutamate system. But an indirect consequence seems to be that the brain puts a priority on rehabbing those down-regulated GABA receptor sites in the face of the increased glutamate. It seems intuitive to me that stress could have the same effect. Now, I have no idea if that is actually true or not. I have not done any digging on the science. But at the same time I would find it hard to believe that even if stress is not speeding up the rehab of those GABA receptors, it is also not slowing down their rehab. Does that make any sense? Anyway, important for me to say I am not a doctor, not a scientist. Just some random dude on the internet wishing you continued healing <3
@MSMEImme-fk5uh8 күн бұрын
EXACTLY TORTURE!!! MY CONTINUED WITHDRAWALS IS A LIFETIME OF MY WRONGS IN MY (ENTIRE) LIFE..MY WRONGS (ONLY)..NOT MY INNOCENCE!!!! AND A MFKR (STILL) WANNA KEEP UP WIT ME AND BE HATEFUL TOWARDS ME AFTER ALL THAT WITHDRAWAL MY HEART BRAIN AND BODY ENDURED IT WOULD HAVE KILLED THOUSANDS OF PEOPLE...ITS NO MORE EXCUSES IM NOT TRYNA HEAR IT...AT THIS POINT STUFF GETTING DONE JUST OUT OF SPITE AND JEALOUSY...SAD PART I AIN'T EVEN GOT NOTHING
@yalna31409 күн бұрын
I got derealization while still on a low dose of Valium only a month on it for neck muscle tensions giving me migraines. That prompted me to immidiately want to be off and I did 3 day in hospital voluntary for that with gabapentin and flexeril and it work for me! When I couldn't sleep from muscle issues and restless leg and neck pain was in full swing again flexeril put me back to sleep. So but this is for only 1 month on 5 mg Valium so they know how to handle that ok but long term prob not so well. Oh and I took clonidine for high blood pressure AND to relax which was great.
@windowsNwaves7 күн бұрын
Crazy that only a month could lead to DPDR episodes, but that just goes to show how insanely powerful these drugs are. I am glad to hear that the medical detox worked for you!
@ToddDouglasFox9 күн бұрын
In some, one dose of Benadryl can cause rage, aggression, out of body sensations, and loss of identity. Long term use can throw the body into excruciating migraines that last for days without a moment of relief. This is not a few days, this can last a lifetime of on and off disruption that cannot be called headaches, it’s much more consuming than a headache. In these cases (and others), it does affect GABA receptors. In fact the original Benadryl reduced GABA and increased glutamate. This is where certain diets work better than others for many people. But starting with diet is tricky and individual and changes over time. It’s best to start with what doesn’t cause further disruption, homeopathics. Notes: it’s not just Benadryl, all antihistamines can BLOCK GABA. Medications are not supplements. Some of the best calming supplements that will NOT interfere with neuroplasticity are homeopathics. These are called medicine by some and supplements by others. The best of these help the body communicate significantly better within itself as a whole. It is not physical medicine or food so it’s not something that sends the nervous system into more imbalance as it self corrects. One of the top homeopathics to explore is Acetyl Choline. Some can tolerate physical food and supplement sources but good homeopathics are a safer option. This is because there is no force used to make the body increase or decrease its neural activity and its various processes. If the body determines ,as a whole, a change is best, it is indeed holistically for the better. Know that trillions of activities are being decided right now without your oversight or understanding. However you have your part to do, you can do your own investigation and put into effect gentle trials towards making your few decisions, by comparison to the body’s, towards the good. May all of you heal and become the best versions of yourself and who you really want to be in spite of the intrusion and interference that recovery is repairing. You deserved better, you deserve better.
@windowsNwaves9 күн бұрын
Hey Todd, thanks a lot for this message. I luckily did not have any of these side effects when I was taking it. I was actually most concerned about the fact that benadryl blocks acetylcholine. I have not come across anything about GABA and benadryl??? Can you point me in the right direction there? I completely agree that homeopathic remedies are much preferable to any medicines!! And I certainly agree that we have to put in the effort to research what we are putting into our bodies. This is something I am seriously starting to pay a lot more attention to...
@ToddDouglasFox9 күн бұрын
@@windowsNwaves I subbed to you which I rarely do but I want to support your message (I already have too much to look at in my notifications). Of course I’ve reviewed a lot of these medication injury videos for patients (especially protracted medication symptoms). Indeed we have seen the nightmares up close. There are no hard and fast rules within and between individuals because the body moves in what we experience in our limited capacity as “mysterious” ways. It’s a body thing though regardless of our intentions, beliefs, body awareness or even how long we hang onto thoughts and loops of thoughts. We can modify our personal experience but rarely do we speed it up. Help is coming though, we are going to get much smarter thanks to all of you who are sharing your personal journeys and listening to and helping others in various ways. The medical industry moves way too slow of course but then there are the rest of us who are bridging many areas of health in terms of honoring the process of each person and each person’s process in their body. We may have some templates but really it’s all about 1:1 ratios (recovering person to practitioner) and no approach that is formulaic works thus far. That’s when ego gets in the way (meaning fear). The homeopathics we use are from a company out of Canada. There’s one that I would say is worth investigating: Brain-Neurexx. Sometimes when those in full blown withdrawal or those having huge symptomatic protracted reactions to just about everything, will try something that actually works for them but they cannot tell for sure if it’s good or bad. We work with that person to help them understand if they are moving toward the goal of regulation and we relie on that person as to the speed that’s best for them - at that time, on that day or in that moment. This interaction between health “care givers” and those in recovery from medication(s) (or other neuro toxic injuries) builds a more and more truthful “encyclopedia” of usable and reliable knowledge - when there is hands on and as much useful information as possible is included. I’ll get into some weeds: as we age we produce less bile acids. What does the pharmaceutical industry offer? Antacids. When we are having a histamine reaction, the body is needing more available histamine that is why it’s calling for it. Now we may not want more histamine but the body is requiring it and blocking it does not resolve the issue - other than in actual emergencies. What do we do when we do not want allergy symptoms that are not life threatening? We give the body an antihistamine - in some cases. What does that do? Histamine may release the GABA neurons, paradoxically. GABA also acts against histamine, generally. Sounds like combat. These two actions can potentiate disregulation in the CNS that is due to the introduction of the synthetic antihistamine which causes interference or CNS dysregulation which the body cannot easily or quickly undo. Even worse are the Benzo drugs for obvious reasons. Now I’m not saying that this is definitive. Like you, we have to see what our patients present while using our medical detective skills as we go. But you can see that just by my extending a bit of theory to the research how we can begin to perhaps have a tiny sense as to WHY some go off the rails when others do not. And this is just an almost infinitesimal peak at the neurological events surrounding these chemical drugs and the subsequent chemical actions. When we experiment as recoverers from medication injury (or any chemical + neural toxicity) the results are mostly random even if it brings consistent results. But mostly the results are not consistent, sustained, and we would not shout out “eureka” to the world. With that said, every tidbit of information is critical to finding out what is really occurring. Being on board with the body’s real capacity to heal itself, supporting it where we can is the work ahead. As you well know (unfortunately) recovery is about as bad as human existence can get. So all hands on deck. There are homeopathics for both GABA and histamine which can help with regulating the excitation and calming of the CNS. I just put someone on this combo after decades of antihistamine use and subsequent migraines that occur with anything containing even trace amounts of glutamate (except as foods: animal meats, fish, poultry, dairy, eggs and other whole foods). Glutamate often increases as GABA decreases. Too much glutamate is a huge problem in the world of autoimmunity and act as kindling for those in benzo withdrawal. I truly hope this helps inspire those who are “experimenting” with what works. Be careful but do read up and let your mind and body inform you more than ever before. We need your personal input. And if you come across those who know something in health care about your situation, work with them alongside you as you travel your unique and personal journey. The more that people are informed about these drugs and the more that people heal more efficaciously from them, the better off we’ll all be. We have further to go than when we started! But that’s okay, sometimes puzzles come together very quickly, just as sometimes healing reaches a cumulative point that puts us over the top.
@jiladahmed35579 күн бұрын
😢bro my doctor mistakenly gave me clonazepam 0.5 mg to continue! I’m not an anxiety person, just my blood pressure little high! And I take it continuous every day for 5-6 months! Sometimes I dont take this medicine , and that time I realise I fell so panic or my heart beat too high and my leg are so cramping and I very scary, than I go another doctors, And this doctor said you stop taking this medicine, it’s dangerous, you are addicted with clonazepam! This is withdrawal symptom! Please give me suggestions how I fell better, I take last pill 15/06/24 Please suggest me something, thanks
@windowsNwaves9 күн бұрын
I'm so sorry to hear that. Very careless on the part of your doctor, both in prescribing it and then telling you to just get off of it like that!!! They should have put you on a tapering schedule. My first suggestion would be to read this www.benzoinfo.com/wp-content/uploads/2022/07/Ashton-Manual.pdf The tapering programs may not be relevant but there is an extensive glossary of symptoms, including tips on how to deal with them. There is also guidance on what to avoid, what not to consume etc. The good news is that you were not taking them for years. As difficult as it may be right now, you will get through this.
@Thisisalt54654 күн бұрын
Well im 25 and my blood pressure first few month went to 175/130 heart rate of 145 ... After leaving the medicine it's been 7 months now and I'm dealing with Bloodpressure and heartrate issues still though I've never thought it'll be so bad ...
@jiladahmed35572 күн бұрын
@@windowsNwaves bro now I’m suffering to extreme levels of insomnia! Please help me How I get good sleep
@windowsNwaves2 күн бұрын
@@jiladahmed3557 I suffered from debilitating insomnia as well. In the end, I turned to benadryl (diphenydramine). For me at the time, it was something I had access to, and it helped me get to sleep. But that is in no way medical advice! In fact, benadryl has other risks wrapped up in it (it blocks acetylcholine for one).
@jiladahmed35572 күн бұрын
@@windowsNwaves bro thanks for your reply I’m going now days 17 without clonazepam, it’s ok, I take 0.5 mg weekly 4-5 dose, but when I realise it’s dangerous I stopped! Now I suffer from extreme levels of insomnia,weakness, I sleep 3-4 hours in day time, Please suggest any diet plan, or any good food for help to feel little better, Any activity or any suggestions please let me know, Thanks
@winstonslone279710 күн бұрын
I've been damaged by benzodiazepines along with antipsychotic meds. I've been off all of them 3 years. Still have severe anxiety and the feeling my skin is on fire. I have permanent tarditave dyskynsia its terrible
@windowsNwaves8 күн бұрын
I'm really sorry to hear that Winston. I hope you are able to find some relief some way, somehow. Awful what these drugs are capable of.
@Matowix10 күн бұрын
They don't even work after a while
@windowsNwaves10 күн бұрын
Yep. This is a common problem...
@Mnichols37410 күн бұрын
Im in complete hell right now no windows
@windowsNwaves10 күн бұрын
Sorry to hear that mate. I hope you get some relief soon.
@nwicconsultants66406 күн бұрын
So very sorry to hear about the amount of suffering you are having to endure. I'm afraid that many of us are also going through a similar time of more waves and little or short lived windows. The hardest part is not knowing when it will at least temporarily subside. Sometimes it feels that there will be no relief and that we are alone in this suffering. The relief does come though it may be short lived but it does comes. Please know that there are many in similar circumstances so it that sense you are never alone. Hoping that you are somewhat better as you read this. Never lose hope.
@minty245510 күн бұрын
Oh my goodness. Thanks again. Great information. Think your videos are great. I signed up for the newsletter. We all I’m sure really appreciate your work. Birds and all. 😅. Take care for now. ( weird wave ) in the deep end. Much love ❤️ P
@windowsNwaves10 күн бұрын
Thank you for the support and the kind words ❤️
@user-bz4bn8dz9u11 күн бұрын
Did your body hurt all over after coming iff
@windowsNwaves10 күн бұрын
I had a lot of nerve issues but did not experience what I would call whole body pain. That said,.everyone is affected differently and almost all of us are affected deeply in multiple ways...
@user-bz4bn8dz9u10 күн бұрын
@@windowsNwaves yeah my health has declined dontonthis created worce anxiety
@windowsNwaves9 күн бұрын
@@user-bz4bn8dz9u I'm sorry to hear that mate. There is a good chance that better days are ahead now that you are off.
@cjw881711 күн бұрын
Thank you Phill. Tapering xanax right now. It's been a long 2 year journey, that's not over yet.
@windowsNwaves10 күн бұрын
I hear you. July 13 will mark two years for me as well. Here's to both our healing journeys
@valeriejoyce540711 күн бұрын
Thank You ✨💜✨
@windowsNwaves11 күн бұрын
<3
@THXx113811 күн бұрын
5 years out for me. Most of the more intense symptoms have resolved but I am left with weight gain, vascular issues, rapid aging, fear of driving, agoraphobia, hypersensitive, moody, prolapsing organs, just to name a few. No, we don't all heal.
@windowsNwaves11 күн бұрын
hey mate, I am so sorry you are still dealing with symptoms. You are right, we don't all heal and even when we do, it's not uniform or consistent in any sense. I hope that some way, somehow things will get better and you will find more relief in the future <3
@naya-fadilla12 күн бұрын
Saya sudah minum benzo 4 tahun,sekarang saya minum di dosis 0,25.dikinum 3x sehara.bagaimana cara lepasnya??
@windowsNwaves11 күн бұрын
Sorry mate can you translate that
@naya-fadilla11 күн бұрын
@@windowsNwaves I used to benzo as long as 4 years...now dosis 0,25 Mg..I eat benzo 3x in a day...how the way to stop it?
@windowsNwaves9 күн бұрын
@@naya-fadilla I can't give medical advice here. I would see a doctor that understands the harms of benzo withdrawal and get on a tapering schedule (although it sounds like you may already be tapering?). Have you read this: www.benzoinfo.com/wp-content/uploads/2022/07/Ashton-Manual.pdf
@naya-fadilla9 күн бұрын
@@windowsNwaves first time i use benzo i 4 Mg in a day...but step by step i tapering until 0,25 mg..need 3 years to 0,25 mg
@jeremiemorin341712 күн бұрын
After my withdrawal ordeal I have a theory that it causes a trauma. I think that the symptoms are so intense that it locks you in a PTSD. Every time you have something that triggers you, something that reminds you of the experience, it's like you relive it again because you have been traumatized. We have been tortured for months, sometimes years. There is bound to be some trauma similar to someone that was abused daily for the same amount of time. The windows are moments that your life has gotten back to normal and the waves are flashbacks that make you feel like you're right back in it. I've been going through it for 6 years now. I have long periods where everything is fine. My anxiety is barely there and my sleep is just like pre-benzo. Then some event triggers me and makes me feel like I'm right back in the worst period of my withdrawals. My anxiety comes back with a vengeance and can barely sleep a couple of hours. I'm about to try EMDR because I'm convinced this has left me with PTSD (my wife is of the same opinion). I'll let you know how it goes.
@windowsNwaves12 күн бұрын
Oh I definitely think you are right. And it's not difficult to see why when you are experiencing these things. It almost becomes, how wouldn't you have PTSD after that?? I don't know anything about EMDR but I hope it goes well.
@allencollins60312 күн бұрын
PTSD no fkn question about that.
@brendamalone388013 күн бұрын
Hi again, I watched this video for the third time now. Haven’t been able to do much so watching this is so calming to me. It makes me feel like I’m right there. Thank you for sharing this. You had mentioned in a recent post about another format, I went there and it came up saying something like not available. Just wondering if I missed it. Anyway you take care see you on your next video. ❤ btw are there any parrots where you are ?
@windowsNwaves13 күн бұрын
Hey Brenda, I assume you are talking about this newsletter: windowsandwaves.beehiiv.com/subscribe I am going to start posting there soon. Yes, we do have parrots! The rose ringed parakeet in this video is a type of parrot but we also have Senegal parrots which are really beautiful. I will try to get one on film soon. Hope you are doing ok ♥️
@baileystruss731914 күн бұрын
3 yrs constant akathisia for me. Im constantly su#$dal. My body and life is wrecked.
@windowsNwaves13 күн бұрын
I'm so sorry. Did the akathisia start after getting off benzos or another psych drug?
@andrewvillarreal983314 күн бұрын
My wife is having such a hard time with my benzo injury... SHE LOVED THIS VIDEO my friend! She said it's the most accurate of all the benzo videos. I can't thank you enough... take care my friend.
@windowsNwaves13 күн бұрын
I'm glad to hear the video resonates, but I'm so sorry she is going through this.
@papahoot113 сағат бұрын
Take great care of your wife. GOD LOVES YOU.
@denisguilbault29814 күн бұрын
I'm literally watching your videos on repeat every other day... it calms me.. your right brother.. this experience rocked my world.. from a life in the military to being on disability.. getting a dinosis for ptsd mood disorder, adhd ,anxiety disorder.wtf... 3 years it took to taper of Xanax and valuim.. now on month 5 off everything, and it's complete he'll on a good day.. have not left my apartment sins Feb 3, 2024, when protracted withdrawal began.. only time will tell if I'm going to heal or not.. thank you for sharing your experiences.. Keep making videos:)❤
@windowsNwaves14 күн бұрын
hey mate, I'm sorry to hear you are dealing with protracted withdrawal. It sounds ridiculous to say "hang in there" after all you've been through. But it is possible to come out the other side. I had plenty of doubts on my own healing journey. I really convinced myself that it would never happen. But it did. For me it was around the 9 month mark that I could see a light at the end of the tunnel.
@denisguilbault29813 күн бұрын
Wow, thank you for that reassurance and kindness as I'm in the thick of it.. your story proves it's possible to heal.. it gives me hope. Actually, u were talking about the Benzo coalition site with the med list of things not to take.. and that really made me think .. I quit medical weed last month, but adhd meds are on the list, so I threw my stimulant meds down the toilet this morning.. more pain for the price of possible health and freedom 🙏 ✨️ 🙌 il take it. .. I had a blue bird 🐦 come to my window yesterday after I saw ur message.. i took it as a sign. Thank you. Stay strong and stay humble.
@windowsNwaves12 күн бұрын
@@denisguilbault298yeah, stimulants are not your friend during benzo wd. It took me a long time before i could even touch caffeine. Hey mate, I'd likw to indeed think that bird was a sign. Thanks for sharing that.
@denisguilbault2983 күн бұрын
I was on controlled substance stimulant med for 30 years.. plus dependent on highy addictive narcotics meds During my taper .. no Dr told me this was a problem for iv been on disability for 4 years now with Dr's saying my damage is permanent. It was me who had to explain no drugs work anymore.. crazy. I'm sober this year . This summer from all meds and recreation drugs and supplements for the first time sins 1994 .currently as sick as I am I'm proud of myself and I respect myself more then ever in my adult life. Even my Dr's tell me im the 1 percent success story❤
@windowsNwaves2 күн бұрын
@@denisguilbault298 you should be incredibly proud of yourself. Defying doctors who don't know better and the spell of the drugs themselves is damn hard. What you have done takes tremendous courage. To your continued healing <3
@drm-kr8gc15 күн бұрын
You live in a nice place, the birds are beautiful. Have you tried cold shower? helped me clear my brain for a short time and speed up muscle regeneration.
@windowsNwaves14 күн бұрын
I tried cold exposure at one point but the adrenaline was too much for my nervous system at the time. That was when I still had a lot of other symptoms though. I could give it another go now
@111585sandman15 күн бұрын
Antibiotics also have crazy adverse reactions, I have my share from doxycycline and bactrim, good lord these a devil pills. Had similar side effects on my cns, neuro toxicity. Extreme mental illness for months. I can understand.
@windowsNwaves15 күн бұрын
You are right about antibiotics. A lot of people never consider the possibility that an antibiotic might have consequences for our nervous system. There are a heap of antibiotics that can provoke kindling during benzo withdrawal!!
@user-bz4bn8dz9u3 күн бұрын
I no a lot of people that have been on antibiotics that ain’t like this I blame more of the benzos then anything
@windowsNwaves3 күн бұрын
@@user-bz4bn8dz9uoh definitely, between the two of them it's night and day.
@111585sandman3 күн бұрын
@@user-bz4bn8dz9u look up cipro or levaquin antibiotic and you can see what it does. It’s a very strong antibiotic that I also took. And man o man.
@kritikos887716 күн бұрын
Thank you for your videos. They are helping me. I'm almost 6 months off after 3 months use + 6 months tapering. I'm seeing more windows but I still experience trauma from this entire experience (i.e., I have irreparably damaged/ altered my brain) and lost enthusiasm for life. Its a torturous existence. I pray its only temporary (also, hoping the tinnitus/ear pain and sunburned skin is temporary, too). Friends don't understand. Did you experience similar psychological symptoms? Did you seek professional help during this process?
@windowsNwaves15 күн бұрын
I did not seek professional help. I connected with as many people as I could online as I knew no one in real life that could even begin to comprehend what I was going through. Keep in mind, my access to professional help here in this part of West Africa is limited. For 3 months of use, I would be confident you will get through the woods. Each day is a step in the right direction even if it doesn't feel like it. I don't know what your dosage or meds were but it is unlikely that you have permanently altered anything re: your brain. Hang on to those windows, they are gonna start getting longer.
@kritikos887715 күн бұрын
@@windowsNwaves thank you for your response and encouragement. At the highest I was on 20 mg clorazepate=15 mg valium=1 mg xanax
@thosethingssilver128716 күн бұрын
I'm actually experiencing my taper right now and I've been looking all over YT for someone to talk about symptoms of withdrawal. I cannot thank you enough for this video. I'm down to .5 a day and just feel under the weather and have muscle pain. Not sure how soon I'll be going down to .25 but hoping if I stay on that for a while it'll help soften the withdrawal symptoms when I'm completely off. This is the most realistic and honest video about getting off of benzos that I have found. You are wonderful and thank you again!
@windowsNwaves15 күн бұрын
Glad you got something from it. Wishing you all the best in your healing. Definitely take your time with the taper.
@isaacm15916 күн бұрын
What symptoms do you still currently have?
@windowsNwaves15 күн бұрын
MCAS, cognitive issues, memory loss, occasional panic, enough anxiety but would not necessarily consider a symptom at this point. Still have some nerve issues and weird things like hypnic jerks/sleep starts and air hunger.
@isaacm15915 күн бұрын
@@windowsNwaves After long did chemical anxiety and nerve pains take to clear?
@windowsNwaves14 күн бұрын
@@isaacm159 6 months was the most brutal stretch, after 9 months is where I started to see more sustained relief
@minty245516 күн бұрын
Hello WW. Appreciate this so much. I walk around the block almost every day 😂. Birds are all around here as a live by the ocean and a lagoon. Hawks crows seagulls peep birds. Some I don’t know the name but yes common ones to love also. Couldn’t find the spot for your newsletter. Thanks again. At least you do get my mind off this hell I’m going through. ❤p.
@windowsNwaves16 күн бұрын
Oh that is wonderful! When I am in Senegal, I am also right by the ocean and a lagoon.It is a great combination for birds. Would love to hear more about the birds there! Thank you for the encouragement and kind words. The newsletter signup is here windowsandwaves.beehiiv.com/subscribe
@JinxTheWriter16 күн бұрын
How long have you been off benzos?
@windowsNwaves16 күн бұрын
On July 13th it will be two years. How have you been lately? Any windows?
@AcquiredCents16 күн бұрын
Tips after 16 months from taking valium for 17.5 years: Don't nap. Sleep is important. Every day MUST be the same, ideally 7 to 9 hours. That helps with akathesia A LOT. I promise. It was soooo bad. Nobody understands except people who've been through it.
@windowsNwaves16 күн бұрын
"nobody understands except people who've been through it." 100%
Пікірлер
The minor side affects don't really scare me, it's the seizures. Everytime I've gone cold turkey, I seize. I'm not prescribed them so my supply isn't always steady but steady enough to get addicted. I'm planning on going to a doctor this weekend to see about where to start on my taper, but since I'm in a foreign country, I don't know how they go about detox with benzos so I'm a little scared. I really don't want to go through another seizure. Those things are scary as heck.
seizures are indeed scary, and also dangerous. Please do not go CT anymore!!! It sounds like you have a good plan and you realize the importance of slowly getting off benzos.
I’m coming up on 5 years after CT klonopin. Do NOT recommend CT but had no docs willing to admit it’s a problem in my town. About 70% of me has returned, but I’m still riding the struggle bus.
Sorry to hear you went through this -- and are still going through it. I had a poorly executed taper and even then, I can not imagine CT. I did have a brief taste of it during an episode where I temporarily ran out of my supply of lorazepam. I had akathisia for about 12 hours straight before checking into a hospital. I hope your healing continues and the struggles become a thing of the past.
What they heck do u do when u have no wondows and its pure torture all day long was on a benzo for 6 months ssri for 16 years and im in complete hell theres no help im trying to just get through the days but im getting worn out.
What a breath of fresh air.....thank you Phil for sharing your experience. Looking forward for the newsletter so that we can communicate our experiences and be of support for each other. For those that haven't already....please sign up!
🙏🙏🙏🙏
Your video raises a great point about society in general. When, and it is when, not if, society runs out of these drugs or there is a supply hiccup, we're going to have millions of crazy mfers running around unhooked. GOD help us.
I had to quit as the drug was contra-indicating. A fancy term for not working. The more I took, the less they benefitted me. In the end I found that if I took less, I slept better and had a better day all around. Little did I know that quitting this drug was something you did not undertake like alcohol or oxy. There is a process. I had no idea. Here I am 13 months into my withdrawal and having what seems to be my 7th really good day in a row. There is relief! Stay the course. Man, you get the benzo withdrawal. You really do. I myself promised that if I ever got to the point of suicide again and really meant it, I would go back on the drug. You are heart attack serious when you're looking in the camera and saying, "You better believe I would be taking benzos for the rest of my life." I can feel your sincerity because I've been there as well.
Hey Jim, I'm glad to hear you are putting those good days together. What a good feeling that is. I hope you continue to have more of that going forward. That tolerance and ineffectiveness you speak about is common for a lot of people. On my end, it was one thing I didn't experience. When I did find myself raising my dosage, it was more circumstantial than an issue of tolerance or ineffectiveness. You are right, benzos are a different beast compared to alcohol and opioids!!!
@@windowsNwaves Working on about 9 great days straight. I was lying in bed the other night and thought, "Is this over?" It wasn't as I had a very restless night after that with ill feelings and a bit of anxiety. I just went to Lake Michigan with my doggo. I love it there. It is so peaceful. I think I ma close to being completely healed. I still deal with a bit of dizzyness and exhaustion but it's nothing compared to what I was doing. Peace, Out
I stopped because my Dr's are idiots and just took them cold turkey after 10.5 years of daily use. I have ptsd from finding my baby daughter dead in 2013 and my husband committed suicide it 2017. But I'm here and kicking dammit.
Holy Quacamole! You've been through the wringer! Praying for you right now.
@jimferrill1790 thank you, I never turn down a prayer. 🙏
@@JinxTheWriterawesome human being! Thanks for sharing.
I want to be friends with you and people like you. Best respects woman.
You guys are so amazing. And we will get thru this and heal. Every day is a new day of healing. Even if it's just a little. We are so strong 💪 ❤️
Thanks for the optimistic perspective. Brutal road. Surely isn't linear.
There is no healing
I know where you are coming from. I used to think the same thing... Then I started healing. Didn't think it would happen
Now 42 months of intense shaking and cramping legs and feet, akathisia, benzo Belly, nerve pain etc. Please give me some hope.
Same here as you listed. Brutal. But just keep going in hope for better days.
@@allencollins6031 Do you too have the shaking and cramping legs and feet?
Two years on benzos. Lucky me got thrown in jail for 21 days. Best thing ever happened to me. 3-4 months of shaking, sweating. Broke a few teeth whilst eating, chewing. I looked like s tweaker, didn't take a shower ot bathe for over a month. Thought i was gonna lose my mind. Side note; Effexor XR was FAR WORSE!! A good six months + of severe psychotic behaviour. I lost my apartment, my car, my friends, my life. Worth it all in the long run. I was owned by a pharmacy, snd MD's. I'll never trust them again. My advice, find a support group, ingest copious amounts of canabis. Don't let peope around you tell you things like " gotta trust the doctors', etc..., Ten years all told, not including the horrific events that lef me to legally prescribed medication.
7 years. In hell daily. I envy you can ride. Ive been on my couch daily and im 33 yrs old.
I'm so sorry . Wishing you better days 🙏
@@windowsNwaves thankyou! Please be careful of antibiotics and alcohol. Can cause severe acute setbacks even 8 years off. Dont drink!
@@djdanzyno argument there! Good advice
This is crazy iv never met such amazing people struggling like I am with the same symptoms. My brain was high jacked by like a demon the devil himself. . iv never felt and expressed such rage and hatred and irrablilty in my life. Sad to say I left my family and gf just to protect them from me.. Thank you for this channel.. we're all suffering together. No doubt And no one can out think their way out of mental he'll prison. Good behavior towards self is the best bet to improve chances at healing my friends 🧡
I had a big problem with anger and rage during my wd as well. It is unfortunately a common symptom. Your family may not understand right now but you know what you are feeling and experiencing. If you were compelled to make that decision then I'm sure it was the right one. Here's to your continued healing ❤️
Would CBD or Cannabis help with the withdrawals and seizures? CBD has been used for epileptic seizures and neurolgical issues. Cannabis doesn't have severe withdrawal issues and can relieve anxiety symptoms. Would this help?
Cannabis has been shown to act on the same GABA receptors as benzos so it can be problematic if you are trying to rehabilitate said receptors, which is exactly the goal during wd. That said, some people seem to find significant relief. Seizures is a different story and I won't pretend to know the research there. Anyway, at the end of the day, as you have probably gleaned from poking around on the internet, a lot of us are navigating through this completely in the dark and there is a lot of self-experimentation/figuring out what works for me etc.
Can you please tell me what dose of ativan you were on? Can you tell me how long? And how long the taper was? Thankyou.
2 years and change with a couple months of sporadic diazepam before it. I was taking 1.25mg but some days more than that. had a very abrupt taper down to .5 mg for one month and then .25mg for a month and then off. Very much regret the hasty taper...
@windowsNwaves thankyou. I feel if people write, how much, how long, and what dose people can start to figure out how long there withdrawal will be and how long side effects, this can bring direction and HOPE....thankyou.
@@MrPeterISABELLA everyone is different, but that said, yes, I completely agree that the more we talk about it and the more info we can share, the more helpful it is when it comes to knowing possible outcomes, and yes, having hope!
I’m coming up on 33 months and I’m still dealing with windows and waves. My remaining symptoms are depression,dpdr and lack of motivation and some nerve pain. I having windows where it all lifts so I’m getting close thank god.
Glad to hear you are starting to have some of those more convincing windows. I hope things keep moving in that direction!
I was on 1mg for 10 years I’m doing a liquid compound taper from Ativan my experience with my taper is not sleeping having more anxiety and panic..6 months into my taper.
Hey Shirley, I hope everything you are going through will help make that moment when you finally jump off that much easier ❤️🙏
But my doubt is this: how can a d0ctor give u prescription for so long? 10 years for SSRI is insane !!
I was on ativan 4-5 months on 1mg. I stopped it.....and 6th day it started huge withdrawal....It was like I was plugged into the fastest electricity plug up my spine 4 11 weeks. Hell on earth....couldn't sleep.....for 11 weeks.....insomnia from anxiety 100x worse than y I even went on the medication......12th week it was like a bus hit my brain....like a blow to the brain....deep calm.....total polar opposite....now extreme fatigue, days lasting calm, to then severe light sensitivity, to severe anxiety.....windows free....yet only last a short time.. I am 12 weeks off now....and still will have 3 months to build neurons back and strength. Coming off lorazapam is a severe trauma.
Yeah the withdrawal was also kind of a delayed fuse for me, too. But once it started, man.... It sounds like you have made it through the thick of it -- it will keep getting better! Coming off lorazepam is indeed severe trauma.
@@windowsNwaves your brilliant to help us all.....I hope I have....I am taking l theanine, melatonin 20mg, cbd Tasmanian 10:10, lions maine, magnesium glycinte, zinc, retinol A 10,000IU, st john's wart by flordis. The most severe part of this has been the inability to sleep for 11 weeks straight. I swear this drug causes more damage than it does good. It's like a major disability stopping it. Severe trauma.
Dude you're walking. I have to admit I'm envious. Its left me neurologically bedbound for over 2 yrs. I've never seen anyone as debilitated as me. I'm about done.
I'm so sorry mate. I am fortunate to be able to be out walking. I know so many that have had it much worse. I hope that you find some relief.
@@windowsNwaves thank you. I wasn't minimizing your own struggle. Only that when loses ability to do any activity to burn off energy and distract, it becomes quite hopeless.
@@baileystruss7319don't worry, I didn't take your comment that way. I wish I had the words or something else to offer but we both know that I don't 😔
You are not alone with that.
Thank you very much for the video, just found out recently I have a dependency on Klonopin. I have been experiencing hell for a few years now and had no idea. I don’t take Klonopin daily, but I think over the years this nasty dependency has developed. I am taking a bunch of supplements such as magnesium and vitamin B, and also taking Buspar. Thanks again.
Glad to hear you have found some clarity. Hopefully the fact that it was not daily use will help you jump off easier.
wishing you all the strength and healing <3
@@windowsNwaves it’s very hard. I am relieved some what to know what’s going on. The feeling of doom gets pretty intense. I’m trying to figure out my best method of tapering since I don’t take it daily. I think I’m going to take half a dose as needed till I see a real psychiatrist, but that won’t be for 1-3 months. My doctor is recommending a cold turkey approach, but this shit gets pretty awful. And it seems like no body really recommends just stopping. But I don’t wanna start using daily if I don’t need to. Thanks again, you videos are very informative.
@@beecee4757 I would really try to find a doctor that understands benzodiazepines. If you are in the states, the benzo info coalition has a good resource here: www.benzoinfo.com/doctors/ I am not a doctor myself or even a mental health professional, but it seems you have done enough research to know that cold turkey is not wise with these drugs!
I am 12 months into withdrawal. 10-20 ml of Valium for 15-20 years. My DPDR was pretty intense. I awoke at least three days where I didn't know who I was. That was very scary. Talk about a panic attack. I am finding those around me are getting sick of me being sick. I can't speak of my illness to nearly anyone. They have had enough and I look fine! lol! Yeah, look. My restless leg was so intense that both my legs were going at once for months. Sleep was unobtainable. Hypnic jerks. I had 500-1000 different points on my body all firing at once for hours while trying desperately trying to sleep interrupted with these hypnic jerks like someone slamming their fist into your back every 5 minutes or so. Did you have that? After 12 months off I am finding my brain working incredibly well in the fact that I can figure things out in a split second and am surprised by it. I like your art. Keep drawing. It is very soothing. My memory is bad in the aspect of remembering what I went through during my acute phase and after that for about 6 months. I did take notes. Glad I did. I agree that my life may be a crazy train, but it is preferable to the bland, grey, life I was leading during the drug intake. I have zero regrets just like you. I have read that after acute withdrawal, you get convinced that the drugs are the answer, again. I have made a promise to myself that if I am going to off myself, and am serious, I will go back on the drugs to save my family from that sadness and generational misery. Like the video and thanks again for posting.
Hey Jim, there were two things that your wrote that as soon as I read them it was like a heat seeking missile to my brain. That sense of not knowing who you were-- yes! My god it's terrifying. I remember thinking this is what madness feels like. It was as if all the electrical signals in my brain were just colliding and nothing was getting through. I had become untethered from my sense of self. Wow. Terrifying. I hope to never experience that again. And the RLS and hypnic jerks. For me the hypnic jerks felt like someone had hooked me up to a defibrillator and they were just toying with me, randomly delivering bursts of electricity to my body. Thanks for sharing so much of your experience here. I am sure it is helpful for others -- I know it is helpful for me. To our continued healing <3
Phil Is that you? ❤
yes, it is :) Although, I don't quite look like that now. That was a couple months ago and I was taking efudix, which is like a chemotherapy cream to treat precancerous and cancerous skin cells. The treatment is horrific and makes your face itch and burn, not to mention you look like you have suffered radiation poisoning!
I could not sit down for 5 1/2 months. Along with gloom and doom (thoughts) that always ended in death. Death of me or any person I was thinking of. Just dooooom. I paced in my house for 5 1/2 months. Up to 19 hours a day. I would be pacing all night long, non stop. It finally went away around six months through my nightmare. I'm still suffering restlessness in a very big way but at least I don't have restless leg syndrome anymore. I had it to the point where both legs were going crazy all night long. Your vids are very calming to me. Please keep them coming. I feel insane today. I remember thinking how relentless this condition is. I would sit on my bed and say out loud, "This is just relentless!" To myself and very quietly. I would say this 25 times a night sometimes. It is still relentless.
Ah I just saw you other comment about improved energy levels and then I see this one, where it sounds like you are not having a great day. Sorry to hear that. But at least the akathisia and RLS are behind you. Relentless is a good way to describe it. I would have called it relentless and I didn't experience it anywhere close to the duration that you did.
@@windowsNwaves You and I know diet is key to escaping the waves. I think I had a bad reaction to Decaf or a banana. Hence the bad day or days in this case. Bananas have been a trigger for some bad days and then on other days they don't matter a bit. I didn't eat a banana yesterday and had a decent day. Weird that in this withdrawal things can effect you and then the next day, they don't. I am up and down on this withdrawal. I remember reading about a person who had waves of misery that lasted 21, then 14, then 7, then zero days. I was hoping I am just experiencing some really bad waves. I have experienced the 21 day wave. They have gotten shorter and shorter however. I'm hoping this last wave is gone. It would have lasted 2 days. Today, so far, so good. I am tightening my diet to the point I don't really eat much of anything. No carbs, no sugar, no gluten, what is left? Cardboard. But I am scared to eat. Today is a new day and it will be good. I will make it so. Yesterday took the doggo for his daily night walk and he jumped in the fetid pond again. He loves the water. The prior night he did it too. I got really frustrated and angry. Last night I didn't get angry as I had resigned myself not to. I just gave him another bath. Oh well. My point is we can decide whether we will participate in the bad mood or no. In other scenarios, our will can't be determined by us. The withdrawal takes over for us in confusion or frustration and leads to giving up. In the positive column I decided to install a HUD in my car. It was a factory option that my car didn't come with. The procedure involved removing the entire dash and installing some components that is tricky and complicated. I had success doing this 7 hour procedure. I could never have achieved this 5 months or even 3 months ago. It's a neat gadget and I'm into that sort of thing. So I have good days and bad. I hope you are out of the bad days. I'm not giving up. Hope your day is good.
Your videos are really helpful and informative during benzo withdrawal. I am now 9.5 months off xanax, but it's pure hell, symptoms are keep on changing, but every single one is brutal. As you said that time is the only cure, and I believe it also, but why I am getting worse and worse day by day? Can acute phase be as long as 9.5 months? I also have drastic weight lost during withdrawal, is it common?
I am sorry to hear that you feel like you are getting worse. Sadly this is a really common thing. But it doesn't actually mean you ARE getting worse. I actually made a video about this exact subject: kzread.info/dash/bejne/jIl3z8ekoZTWnNo.html 9 months was about how long it took for me to start turning the corner. But everyone is different. For some, it can be longer than that. Many people lose weight during withdrawal. The brutal reality is that benzos affect our whole body and brain -- not just the GABA receptors that we associate them with.
@@windowsNwaves thanks for replying, as I felt so relaxed that atleast you can validate and believe my situation, otherwise my family members do not want to listen or believe me that withdrawal is even an issue after being off the pill. The severe stress and tension between the family members are making me more alone and frustrated. You are so helpful and your videos are so encouraging.
@@Radhey2223 it can be so hard with family. Is there any one family member that you could possibly get through to? I found that once I finally got through to my sister, and she understood what I was going through, it made a big difference. But I don't want to pretend to know your situation. For those that have never experienced this, it can be so difficult to get across what the experience is like. I hope you will turn the corner soon and find some sustained relief.
@@windowsNwaves thanks for replying. Actually now at this point of time, , I stopped explaining them about my withdrawal agony. But as I am living with my children, and there is a lot of stress between the family members, this is making me and my healing worse . I don't find peace in the secure environment of home, and dpdr, disassociation, detachment type symptoms make it very difficult for me to keep going. I hope if the withdrawal part is a little better, things will be more manageable. Do you think that stress can delay our healing?
@@Radhey2223 I don't want to pretend to know anything for sure, but I don't believe stress itself will delay the healing. I do believe that stress is much more insupportable while you are in WD because your brain's natural handbrake (GABA, and specifically the receptors that have been downregulated) is not operating how it is supposed to. BUT that said, your brain wants homeostasis so you would think an unchecked stress response would provoke your brain to rehabilitate those receptors as quickly as possible. To think about this another way, there is evidence that caffeine can contribute to an increase in GABA receptor sites (www.ncbi.nlm.nih.gov/pmc/articles/PMC3437321/). When we think about this model of homeostasis, caffeine is activating the glutamate system in the brain - the brain’s excitatory neurotransmitter. And there is a good chance it will feel unpleasant, because you have nothing to counter that glutamate system. But an indirect consequence seems to be that the brain puts a priority on rehabbing those down-regulated GABA receptor sites in the face of the increased glutamate. It seems intuitive to me that stress could have the same effect. Now, I have no idea if that is actually true or not. I have not done any digging on the science. But at the same time I would find it hard to believe that even if stress is not speeding up the rehab of those GABA receptors, it is also not slowing down their rehab. Does that make any sense? Anyway, important for me to say I am not a doctor, not a scientist. Just some random dude on the internet wishing you continued healing <3
EXACTLY TORTURE!!! MY CONTINUED WITHDRAWALS IS A LIFETIME OF MY WRONGS IN MY (ENTIRE) LIFE..MY WRONGS (ONLY)..NOT MY INNOCENCE!!!! AND A MFKR (STILL) WANNA KEEP UP WIT ME AND BE HATEFUL TOWARDS ME AFTER ALL THAT WITHDRAWAL MY HEART BRAIN AND BODY ENDURED IT WOULD HAVE KILLED THOUSANDS OF PEOPLE...ITS NO MORE EXCUSES IM NOT TRYNA HEAR IT...AT THIS POINT STUFF GETTING DONE JUST OUT OF SPITE AND JEALOUSY...SAD PART I AIN'T EVEN GOT NOTHING
I got derealization while still on a low dose of Valium only a month on it for neck muscle tensions giving me migraines. That prompted me to immidiately want to be off and I did 3 day in hospital voluntary for that with gabapentin and flexeril and it work for me! When I couldn't sleep from muscle issues and restless leg and neck pain was in full swing again flexeril put me back to sleep. So but this is for only 1 month on 5 mg Valium so they know how to handle that ok but long term prob not so well. Oh and I took clonidine for high blood pressure AND to relax which was great.
Crazy that only a month could lead to DPDR episodes, but that just goes to show how insanely powerful these drugs are. I am glad to hear that the medical detox worked for you!
In some, one dose of Benadryl can cause rage, aggression, out of body sensations, and loss of identity. Long term use can throw the body into excruciating migraines that last for days without a moment of relief. This is not a few days, this can last a lifetime of on and off disruption that cannot be called headaches, it’s much more consuming than a headache. In these cases (and others), it does affect GABA receptors. In fact the original Benadryl reduced GABA and increased glutamate. This is where certain diets work better than others for many people. But starting with diet is tricky and individual and changes over time. It’s best to start with what doesn’t cause further disruption, homeopathics. Notes: it’s not just Benadryl, all antihistamines can BLOCK GABA. Medications are not supplements. Some of the best calming supplements that will NOT interfere with neuroplasticity are homeopathics. These are called medicine by some and supplements by others. The best of these help the body communicate significantly better within itself as a whole. It is not physical medicine or food so it’s not something that sends the nervous system into more imbalance as it self corrects. One of the top homeopathics to explore is Acetyl Choline. Some can tolerate physical food and supplement sources but good homeopathics are a safer option. This is because there is no force used to make the body increase or decrease its neural activity and its various processes. If the body determines ,as a whole, a change is best, it is indeed holistically for the better. Know that trillions of activities are being decided right now without your oversight or understanding. However you have your part to do, you can do your own investigation and put into effect gentle trials towards making your few decisions, by comparison to the body’s, towards the good. May all of you heal and become the best versions of yourself and who you really want to be in spite of the intrusion and interference that recovery is repairing. You deserved better, you deserve better.
Hey Todd, thanks a lot for this message. I luckily did not have any of these side effects when I was taking it. I was actually most concerned about the fact that benadryl blocks acetylcholine. I have not come across anything about GABA and benadryl??? Can you point me in the right direction there? I completely agree that homeopathic remedies are much preferable to any medicines!! And I certainly agree that we have to put in the effort to research what we are putting into our bodies. This is something I am seriously starting to pay a lot more attention to...
@@windowsNwaves I subbed to you which I rarely do but I want to support your message (I already have too much to look at in my notifications). Of course I’ve reviewed a lot of these medication injury videos for patients (especially protracted medication symptoms). Indeed we have seen the nightmares up close. There are no hard and fast rules within and between individuals because the body moves in what we experience in our limited capacity as “mysterious” ways. It’s a body thing though regardless of our intentions, beliefs, body awareness or even how long we hang onto thoughts and loops of thoughts. We can modify our personal experience but rarely do we speed it up. Help is coming though, we are going to get much smarter thanks to all of you who are sharing your personal journeys and listening to and helping others in various ways. The medical industry moves way too slow of course but then there are the rest of us who are bridging many areas of health in terms of honoring the process of each person and each person’s process in their body. We may have some templates but really it’s all about 1:1 ratios (recovering person to practitioner) and no approach that is formulaic works thus far. That’s when ego gets in the way (meaning fear). The homeopathics we use are from a company out of Canada. There’s one that I would say is worth investigating: Brain-Neurexx. Sometimes when those in full blown withdrawal or those having huge symptomatic protracted reactions to just about everything, will try something that actually works for them but they cannot tell for sure if it’s good or bad. We work with that person to help them understand if they are moving toward the goal of regulation and we relie on that person as to the speed that’s best for them - at that time, on that day or in that moment. This interaction between health “care givers” and those in recovery from medication(s) (or other neuro toxic injuries) builds a more and more truthful “encyclopedia” of usable and reliable knowledge - when there is hands on and as much useful information as possible is included. I’ll get into some weeds: as we age we produce less bile acids. What does the pharmaceutical industry offer? Antacids. When we are having a histamine reaction, the body is needing more available histamine that is why it’s calling for it. Now we may not want more histamine but the body is requiring it and blocking it does not resolve the issue - other than in actual emergencies. What do we do when we do not want allergy symptoms that are not life threatening? We give the body an antihistamine - in some cases. What does that do? Histamine may release the GABA neurons, paradoxically. GABA also acts against histamine, generally. Sounds like combat. These two actions can potentiate disregulation in the CNS that is due to the introduction of the synthetic antihistamine which causes interference or CNS dysregulation which the body cannot easily or quickly undo. Even worse are the Benzo drugs for obvious reasons. Now I’m not saying that this is definitive. Like you, we have to see what our patients present while using our medical detective skills as we go. But you can see that just by my extending a bit of theory to the research how we can begin to perhaps have a tiny sense as to WHY some go off the rails when others do not. And this is just an almost infinitesimal peak at the neurological events surrounding these chemical drugs and the subsequent chemical actions. When we experiment as recoverers from medication injury (or any chemical + neural toxicity) the results are mostly random even if it brings consistent results. But mostly the results are not consistent, sustained, and we would not shout out “eureka” to the world. With that said, every tidbit of information is critical to finding out what is really occurring. Being on board with the body’s real capacity to heal itself, supporting it where we can is the work ahead. As you well know (unfortunately) recovery is about as bad as human existence can get. So all hands on deck. There are homeopathics for both GABA and histamine which can help with regulating the excitation and calming of the CNS. I just put someone on this combo after decades of antihistamine use and subsequent migraines that occur with anything containing even trace amounts of glutamate (except as foods: animal meats, fish, poultry, dairy, eggs and other whole foods). Glutamate often increases as GABA decreases. Too much glutamate is a huge problem in the world of autoimmunity and act as kindling for those in benzo withdrawal. I truly hope this helps inspire those who are “experimenting” with what works. Be careful but do read up and let your mind and body inform you more than ever before. We need your personal input. And if you come across those who know something in health care about your situation, work with them alongside you as you travel your unique and personal journey. The more that people are informed about these drugs and the more that people heal more efficaciously from them, the better off we’ll all be. We have further to go than when we started! But that’s okay, sometimes puzzles come together very quickly, just as sometimes healing reaches a cumulative point that puts us over the top.
😢bro my doctor mistakenly gave me clonazepam 0.5 mg to continue! I’m not an anxiety person, just my blood pressure little high! And I take it continuous every day for 5-6 months! Sometimes I dont take this medicine , and that time I realise I fell so panic or my heart beat too high and my leg are so cramping and I very scary, than I go another doctors, And this doctor said you stop taking this medicine, it’s dangerous, you are addicted with clonazepam! This is withdrawal symptom! Please give me suggestions how I fell better, I take last pill 15/06/24 Please suggest me something, thanks
I'm so sorry to hear that. Very careless on the part of your doctor, both in prescribing it and then telling you to just get off of it like that!!! They should have put you on a tapering schedule. My first suggestion would be to read this www.benzoinfo.com/wp-content/uploads/2022/07/Ashton-Manual.pdf The tapering programs may not be relevant but there is an extensive glossary of symptoms, including tips on how to deal with them. There is also guidance on what to avoid, what not to consume etc. The good news is that you were not taking them for years. As difficult as it may be right now, you will get through this.
Well im 25 and my blood pressure first few month went to 175/130 heart rate of 145 ... After leaving the medicine it's been 7 months now and I'm dealing with Bloodpressure and heartrate issues still though I've never thought it'll be so bad ...
@@windowsNwaves bro now I’m suffering to extreme levels of insomnia! Please help me How I get good sleep
@@jiladahmed3557 I suffered from debilitating insomnia as well. In the end, I turned to benadryl (diphenydramine). For me at the time, it was something I had access to, and it helped me get to sleep. But that is in no way medical advice! In fact, benadryl has other risks wrapped up in it (it blocks acetylcholine for one).
@@windowsNwaves bro thanks for your reply I’m going now days 17 without clonazepam, it’s ok, I take 0.5 mg weekly 4-5 dose, but when I realise it’s dangerous I stopped! Now I suffer from extreme levels of insomnia,weakness, I sleep 3-4 hours in day time, Please suggest any diet plan, or any good food for help to feel little better, Any activity or any suggestions please let me know, Thanks
I've been damaged by benzodiazepines along with antipsychotic meds. I've been off all of them 3 years. Still have severe anxiety and the feeling my skin is on fire. I have permanent tarditave dyskynsia its terrible
I'm really sorry to hear that Winston. I hope you are able to find some relief some way, somehow. Awful what these drugs are capable of.
They don't even work after a while
Yep. This is a common problem...
Im in complete hell right now no windows
Sorry to hear that mate. I hope you get some relief soon.
So very sorry to hear about the amount of suffering you are having to endure. I'm afraid that many of us are also going through a similar time of more waves and little or short lived windows. The hardest part is not knowing when it will at least temporarily subside. Sometimes it feels that there will be no relief and that we are alone in this suffering. The relief does come though it may be short lived but it does comes. Please know that there are many in similar circumstances so it that sense you are never alone. Hoping that you are somewhat better as you read this. Never lose hope.
Oh my goodness. Thanks again. Great information. Think your videos are great. I signed up for the newsletter. We all I’m sure really appreciate your work. Birds and all. 😅. Take care for now. ( weird wave ) in the deep end. Much love ❤️ P
Thank you for the support and the kind words ❤️
Did your body hurt all over after coming iff
I had a lot of nerve issues but did not experience what I would call whole body pain. That said,.everyone is affected differently and almost all of us are affected deeply in multiple ways...
@@windowsNwaves yeah my health has declined dontonthis created worce anxiety
@@user-bz4bn8dz9u I'm sorry to hear that mate. There is a good chance that better days are ahead now that you are off.
Thank you Phill. Tapering xanax right now. It's been a long 2 year journey, that's not over yet.
I hear you. July 13 will mark two years for me as well. Here's to both our healing journeys
Thank You ✨💜✨
<3
5 years out for me. Most of the more intense symptoms have resolved but I am left with weight gain, vascular issues, rapid aging, fear of driving, agoraphobia, hypersensitive, moody, prolapsing organs, just to name a few. No, we don't all heal.
hey mate, I am so sorry you are still dealing with symptoms. You are right, we don't all heal and even when we do, it's not uniform or consistent in any sense. I hope that some way, somehow things will get better and you will find more relief in the future <3
Saya sudah minum benzo 4 tahun,sekarang saya minum di dosis 0,25.dikinum 3x sehara.bagaimana cara lepasnya??
Sorry mate can you translate that
@@windowsNwaves I used to benzo as long as 4 years...now dosis 0,25 Mg..I eat benzo 3x in a day...how the way to stop it?
@@naya-fadilla I can't give medical advice here. I would see a doctor that understands the harms of benzo withdrawal and get on a tapering schedule (although it sounds like you may already be tapering?). Have you read this: www.benzoinfo.com/wp-content/uploads/2022/07/Ashton-Manual.pdf
@@windowsNwaves first time i use benzo i 4 Mg in a day...but step by step i tapering until 0,25 mg..need 3 years to 0,25 mg
After my withdrawal ordeal I have a theory that it causes a trauma. I think that the symptoms are so intense that it locks you in a PTSD. Every time you have something that triggers you, something that reminds you of the experience, it's like you relive it again because you have been traumatized. We have been tortured for months, sometimes years. There is bound to be some trauma similar to someone that was abused daily for the same amount of time. The windows are moments that your life has gotten back to normal and the waves are flashbacks that make you feel like you're right back in it. I've been going through it for 6 years now. I have long periods where everything is fine. My anxiety is barely there and my sleep is just like pre-benzo. Then some event triggers me and makes me feel like I'm right back in the worst period of my withdrawals. My anxiety comes back with a vengeance and can barely sleep a couple of hours. I'm about to try EMDR because I'm convinced this has left me with PTSD (my wife is of the same opinion). I'll let you know how it goes.
Oh I definitely think you are right. And it's not difficult to see why when you are experiencing these things. It almost becomes, how wouldn't you have PTSD after that?? I don't know anything about EMDR but I hope it goes well.
PTSD no fkn question about that.
Hi again, I watched this video for the third time now. Haven’t been able to do much so watching this is so calming to me. It makes me feel like I’m right there. Thank you for sharing this. You had mentioned in a recent post about another format, I went there and it came up saying something like not available. Just wondering if I missed it. Anyway you take care see you on your next video. ❤ btw are there any parrots where you are ?
Hey Brenda, I assume you are talking about this newsletter: windowsandwaves.beehiiv.com/subscribe I am going to start posting there soon. Yes, we do have parrots! The rose ringed parakeet in this video is a type of parrot but we also have Senegal parrots which are really beautiful. I will try to get one on film soon. Hope you are doing ok ♥️
3 yrs constant akathisia for me. Im constantly su#$dal. My body and life is wrecked.
I'm so sorry. Did the akathisia start after getting off benzos or another psych drug?
My wife is having such a hard time with my benzo injury... SHE LOVED THIS VIDEO my friend! She said it's the most accurate of all the benzo videos. I can't thank you enough... take care my friend.
I'm glad to hear the video resonates, but I'm so sorry she is going through this.
Take great care of your wife. GOD LOVES YOU.
I'm literally watching your videos on repeat every other day... it calms me.. your right brother.. this experience rocked my world.. from a life in the military to being on disability.. getting a dinosis for ptsd mood disorder, adhd ,anxiety disorder.wtf... 3 years it took to taper of Xanax and valuim.. now on month 5 off everything, and it's complete he'll on a good day.. have not left my apartment sins Feb 3, 2024, when protracted withdrawal began.. only time will tell if I'm going to heal or not.. thank you for sharing your experiences.. Keep making videos:)❤
hey mate, I'm sorry to hear you are dealing with protracted withdrawal. It sounds ridiculous to say "hang in there" after all you've been through. But it is possible to come out the other side. I had plenty of doubts on my own healing journey. I really convinced myself that it would never happen. But it did. For me it was around the 9 month mark that I could see a light at the end of the tunnel.
Wow, thank you for that reassurance and kindness as I'm in the thick of it.. your story proves it's possible to heal.. it gives me hope. Actually, u were talking about the Benzo coalition site with the med list of things not to take.. and that really made me think .. I quit medical weed last month, but adhd meds are on the list, so I threw my stimulant meds down the toilet this morning.. more pain for the price of possible health and freedom 🙏 ✨️ 🙌 il take it. .. I had a blue bird 🐦 come to my window yesterday after I saw ur message.. i took it as a sign. Thank you. Stay strong and stay humble.
@@denisguilbault298yeah, stimulants are not your friend during benzo wd. It took me a long time before i could even touch caffeine. Hey mate, I'd likw to indeed think that bird was a sign. Thanks for sharing that.
I was on controlled substance stimulant med for 30 years.. plus dependent on highy addictive narcotics meds During my taper .. no Dr told me this was a problem for iv been on disability for 4 years now with Dr's saying my damage is permanent. It was me who had to explain no drugs work anymore.. crazy. I'm sober this year . This summer from all meds and recreation drugs and supplements for the first time sins 1994 .currently as sick as I am I'm proud of myself and I respect myself more then ever in my adult life. Even my Dr's tell me im the 1 percent success story❤
@@denisguilbault298 you should be incredibly proud of yourself. Defying doctors who don't know better and the spell of the drugs themselves is damn hard. What you have done takes tremendous courage. To your continued healing <3
You live in a nice place, the birds are beautiful. Have you tried cold shower? helped me clear my brain for a short time and speed up muscle regeneration.
I tried cold exposure at one point but the adrenaline was too much for my nervous system at the time. That was when I still had a lot of other symptoms though. I could give it another go now
Antibiotics also have crazy adverse reactions, I have my share from doxycycline and bactrim, good lord these a devil pills. Had similar side effects on my cns, neuro toxicity. Extreme mental illness for months. I can understand.
You are right about antibiotics. A lot of people never consider the possibility that an antibiotic might have consequences for our nervous system. There are a heap of antibiotics that can provoke kindling during benzo withdrawal!!
I no a lot of people that have been on antibiotics that ain’t like this I blame more of the benzos then anything
@@user-bz4bn8dz9uoh definitely, between the two of them it's night and day.
@@user-bz4bn8dz9u look up cipro or levaquin antibiotic and you can see what it does. It’s a very strong antibiotic that I also took. And man o man.
Thank you for your videos. They are helping me. I'm almost 6 months off after 3 months use + 6 months tapering. I'm seeing more windows but I still experience trauma from this entire experience (i.e., I have irreparably damaged/ altered my brain) and lost enthusiasm for life. Its a torturous existence. I pray its only temporary (also, hoping the tinnitus/ear pain and sunburned skin is temporary, too). Friends don't understand. Did you experience similar psychological symptoms? Did you seek professional help during this process?
I did not seek professional help. I connected with as many people as I could online as I knew no one in real life that could even begin to comprehend what I was going through. Keep in mind, my access to professional help here in this part of West Africa is limited. For 3 months of use, I would be confident you will get through the woods. Each day is a step in the right direction even if it doesn't feel like it. I don't know what your dosage or meds were but it is unlikely that you have permanently altered anything re: your brain. Hang on to those windows, they are gonna start getting longer.
@@windowsNwaves thank you for your response and encouragement. At the highest I was on 20 mg clorazepate=15 mg valium=1 mg xanax
I'm actually experiencing my taper right now and I've been looking all over YT for someone to talk about symptoms of withdrawal. I cannot thank you enough for this video. I'm down to .5 a day and just feel under the weather and have muscle pain. Not sure how soon I'll be going down to .25 but hoping if I stay on that for a while it'll help soften the withdrawal symptoms when I'm completely off. This is the most realistic and honest video about getting off of benzos that I have found. You are wonderful and thank you again!
Glad you got something from it. Wishing you all the best in your healing. Definitely take your time with the taper.
What symptoms do you still currently have?
MCAS, cognitive issues, memory loss, occasional panic, enough anxiety but would not necessarily consider a symptom at this point. Still have some nerve issues and weird things like hypnic jerks/sleep starts and air hunger.
@@windowsNwaves After long did chemical anxiety and nerve pains take to clear?
@@isaacm159 6 months was the most brutal stretch, after 9 months is where I started to see more sustained relief
Hello WW. Appreciate this so much. I walk around the block almost every day 😂. Birds are all around here as a live by the ocean and a lagoon. Hawks crows seagulls peep birds. Some I don’t know the name but yes common ones to love also. Couldn’t find the spot for your newsletter. Thanks again. At least you do get my mind off this hell I’m going through. ❤p.
Oh that is wonderful! When I am in Senegal, I am also right by the ocean and a lagoon.It is a great combination for birds. Would love to hear more about the birds there! Thank you for the encouragement and kind words. The newsletter signup is here windowsandwaves.beehiiv.com/subscribe
How long have you been off benzos?
On July 13th it will be two years. How have you been lately? Any windows?
Tips after 16 months from taking valium for 17.5 years: Don't nap. Sleep is important. Every day MUST be the same, ideally 7 to 9 hours. That helps with akathesia A LOT. I promise. It was soooo bad. Nobody understands except people who've been through it.
"nobody understands except people who've been through it." 100%
@@windowsNwavesEven psychiatrists don’t know better.They should.
@@regineheine5707 they most definitely should