I'm determined to live an incredible life no matter what happens to me. In my videos, I share my life with chronic health issues, disability, and a service dog. I’m transparent about the wonderful and the challenges.
I had brain surgery recently. And I warrior through Meniere's disease, Psoriatic Arthritis, Chronic Migraine, PTSD, Chronic Fatigue, Fibromyalgia ,& Psoriasis.
Whatever you are going through, you are not alone.
Live Incredible Anyway
Kelly
Merch : incredibleanyway.creator-spring.com
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Wow how many days did you take to make all that thanksgiving food?! ❤ Hugs marloes
Some people make soup with the bones afterwards do you 10:20
I do with chicken. I didn’t have enough energy to do it with the turkey after making the whole meal. Would be yummy tho!
@@IncredibleAnyway yeah maybe next year!! Well now 125 days until November 1st when you start cooking again !!
Is that a real meat turkey or a tofu turkey or something else 9:07
It’s a real meat turkey 🦃
@@IncredibleAnyway oh wow . I’m so glad something was somewhat easy as apart of your meal !! Yay 😁
I'm curious to why I am so low in b12 and what's causing it? How do I get to what's causing me to be so low. I'm 52 and never have any problems prior and now blood tests showings I'm very low? I know this video is 4th yrs old help would be awesome
That is a really excellent question for your doctor. No one can really tell you why your B12 is low except the doctor. Personally, we found that my body doesn't process B12 well, so that is why I'm low.
After an vertigo attack when I lost control of my legs and specialists requested MRIs with contrast I was diagnosed with strokes NS (TIAs). I have brain cancer (glioblastoma).
My heart goes out to you. I'm so sorry that you are dealing with brain cancer. All the symptoms must be so rough. Rooting for you and sending a virtual hug your way.
This is exactly how I feel when I have an attack.
I'm so sorry. they are rough.
It kinda looks like a PB & J sandwich 🥪 4:42 but it looks delicious 🤤
It really does lol! It was soooo good.
You need to release your grief. Always
Your a great cook making me hungry. Yummy
Aw thank you! I enjoy it. Made me hungry editing it too!
That looks awesome. Yes a berry sandwich.
Thank you! Definitely a berry sandwhich.
Thank you for sharing. Im suffering sincerely with Menieres I use Meclazine. But the attacks affect my vision. I never expected that part
Ugh, Meniere's is so rough. Did your doctor recommend Meclizine? There might be some other things that help you more if it isn't helping. Yeah the messing with the vision is rough. Cheering for you!
Im proud of myselve this week. For accepting that some days all i need is resting on my bed. 😊 ❤ here you finally started to grasp whas you have been true the past months. Oh wow that are beautiful lyrics❤🕯️🎶 Sometimes sweety you just need music to let go of the rubbich in your head. . Ahw Bene you are adorable 🥰 The cherry pie looks jummy. And i dont even eat fruit 😁 The other pie sounds like a experience me and hub ie had once with a mass made mille foie. It whas gross. 🤢 Big hugs Marloes
Yay! I'm so proud of you too! That is a hard one to accept. Music is so healing for me. Oh wow, you don't eat fruit! Is it a taste thing or a texture thing? Yeah this pie was not good.
@@IncredibleAnyway its a texture thing. Possibly a combination of factors. My chromosome disorder comes whith eathing struggles from birth it seems. (Just joined a fb group with people who have the mutation to or parent children with the mutation). But some textures also trigger trauma memories in me.
Is all the BTS stuff you watch on KZread / social media or do you pay for like a Korean tv channel or something 1:25
Lots of different places. What I'm watching on this video is a concert on Amazon Prime called "Yet to Come." There are concerts on Disney Plus and documentaries. "Permission to Dance" concert is on Disney Plus. The BTS documentary on Disney+ is called "Beyond the Star." BTS has a KZread channel called "Bangtan TV" where they have tons of content. They also have an app called "Weverse" but most of the content there are concerts and documentaries that have to be paid for. They will livestream concerts through that app and its where the members will livestream. BTS is also on IG and Tiktok. :) Probably more than you ever wanted to know lol
@@IncredibleAnyway oh wow !! No that’s actually really helpful thank you 🙏🏻
Small win today…we took my golden retriever, Buddy (who is Bene’s twin lol) to get his nails clipped. Is the Paleo diet helpful for you? Sending love and hugs 💖
Yay! That is a huge win! Well done! I switched to eating Paleo in 2017. I was already eating gluten free since 2010. But changing to Paleo helped a lot of the brain fog I was having and some inflammation. Though I will say, in my experience, foods affect us all differently. So while Paleo food plans may significantly help some, it may not help everyone.
Hi Kelly…I went through EMDR therapy awhile back. The therapist used knee tapping instead of eye movements. I did find it helpful ❤
Ah thank you so much for sharing that! I'm so glad you found it helpful!
Hello, My name is Rene and come from Austria..... Österreich.. I have morbus menier.... Can i ask you please. I become gentamicin.....4 peaces 40 mg in 5 days. It was very very hard.... It was for 4 weeks. Now it's damage and i Hope for ever. Have you become 40 mg too? 3 ...4 Peace with Gentamystin ?You are okay forever now?? It was very nice when you can answer me. My english is not so good. KZread ist translate your answer to me. Match thanks for you for your Videos. Thanks. Good luck Rene
Hello Rene! Thank you for your question. The recovery from gentamicin is very difficult. It will get better over time. My doctor said, the more difficult the recovery, the more the recovery is helping. I do not know how many mg I had. Usually it takes 1-3 injections of gentamicin for the vertigo to be permanently gone. I had to get another treatment because I am one of the rare circumstances where Gentamicin does not help. But it usually helps most people! I wish you luck. Please let me know if you have any other questions!
Hallo Kelly, my english is not so good also I have translated with Google. First of all I have to tell you that I think you are really brave. I know how hard it is to cope with Menier's disease. I have been taking medication for it for over 12 years and only now. gentamicin. Four injections within a week. 40 mg 1 ml per injection. The Meniere's is apparently burning out.... So it's almost over.... However, I now had three attacks every day that lasted hours. This could have dragged on for months or a year or two. That's why such extreme therapy was done. You say that you are not suitable for the gentamycin. Is your middle ear scarred? Or did you get too little? You got nine pieces Injektionen in seven years. Thats Not enogh for the end ...the time ist too .fare apart..three pieces within three to four weeks. Or four pieces within four to five weeks. In order not to endanger hearing. My hearing on the left is almost gone and that's why I didn't have to take it into account anymore. That means four pieces within a week. If you only get one a year it can't eliminate everything. You then had surgery. How long did you have dizziness after that? And how do you feel now? Everything gone? And is the pressure in the ear gone? And is the tinnitus gone too? Lots of questions.... I've had constant dizziness from the gentamycin for four weeks now. The balance organ is gone and the right side now has to take over from the left. I hope it stays away. Every time I saw your videos I had tears in my eyes. I felt so sorry for you. That's how it was for me too, but you don't have to watch yourself. You are brave. And your dog is so cute. I had to laugh so hard when you gave him the present for his birthday. How he rolled and was so happy. A real friend of yours. Really sweet. Good comrade. Sorry for asking so many questions. But who else do you want to be with? Many people don't see what you're going through. You don't see a wound. I wish you all the best. And I hope we hear from each other again. But everything is positive. Kind regards Rene
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I'm Glad you are getting better honestly. I have headaches every single day and I don't know if I will get better but I'm hoping for the best. I don't know what else to do again.
Sending warm hugs to you. It is so hard to have a headache every single day. One day at a time is all we can do. Let me know if I can be of any assistance. I don't want give unsolicited suggestions! I'm rooting for you!
Toradol is so hard on the kidneys. It's not safe to use that often, Get your labs done to check Kidney function,. I also have Chronic Migraine. Botox was the worst thing I ever did. My neck muscles completely deteriorated causing more migraines. I know am on daily muscle relaxers. Zomig tends to help as a rescue for me. Side effects are horrible and debilitation but it's better than the migraine. I would HIGHLY suggest trying a muscle relaxer and avoid processed foods. Both seems to help lower the amount of migraine days. There were studies on Muscle relaxers being helpful for migraines in the 90s and they never explored it any further. I wish I would have known that 30 years ago.
I'm so glad that you found something that is helping you when other treatments did not or were harmful to you! All the best in having less frequency and severity!!
You cooked an entire meal by yourself which most people have help with you’ve done so much give yourself credit 8:44
Yay!! Thank you! It felt so good!
The majority of people i know with wheelchairs can move to some degree outside it. Actually out of a dozen plus people i dont know a single one thats actually paralyzed and doesnt have any feeling in their legs. Some cant move them at all, some can stand w/wo assistance walk w/wo assistance etc. Doesnt mean they dont need the wheelchair. So many people that use wheelchairs can do some stuff with their legs. Some truly cant, but that doesnt mean everyone else is faking
Thank you so much for sharing your experience. I think the more we create awareness and normalize ambulatory wheelchair users, the less the stigma will exist.
❤no it whas not stupid sweety. You do you. You feld like doing this. You are not alone in the phonecall anxiety. I hear it allot. And i am also like that. These days it goes better as i have been teaining with my helps. But when we just started working on it i always tryed to get them to call for me. 😉😁. Nowadays tgey sit with me but most of the time i can manage tge call myselve. ❤ Hugs marloes
Way to go for making progress on making phone calls! That is Fantastic!!!!
DHL Is the worst . I’m like just give me where my package is !!! lol it gives it like 1800 stops . Even with American companies 1:56
Yeah, I definitley prefer Fedex to DHL!
Thank you for posting this and sharing your journey! I am about to do my second injection and this video helped me feel less anxious!!
Oh I'm so glad it was helpful!
Did you lose any of the hearing from this procedure?
No. I had gentamicin injected 9 times and never lost hearing. I have a video on gentamicin and hearing loss here: kzread.info/dash/bejne/iYakqNyOeciuoqg.htmlsi=FpZ6Fn81wAJZEnOI
Thank you for posting this.
You're welcome!
You should be proud of yourself l’m tired just watching you lol. The pie looked great😁
Thank you! I was exhausted.
I had this to and for two years I felt like I didn’t sleep until I was exhausted. I didn’t know what was happening until I told my sister about it and she said that it sounded like the Meniere’s that my dad had and he wanted to commit suicide but my mom told him that he couldn’t do that. He got help and was given Valium but that was a long time ago. But it helped me because I knew that it wasn’t going to last forever. But the doctor gave me some Valium at first but because of the government not wanting doctors to prescribe it he didn’t keep giving it to me. It was awful and I lost twenty pounds in two months because of it. The doctor did say that one part of my ear was larger than normal and I have always had motion sickness so I don’t know if that contributes to you having it.
The cause of Ménière’s disease is not known. I’m glad to hear the diazepam helps you.
Those pies looked delicious! Talking to yourself is not a bad thing at all. I do it to encourage myself or talk myself through some difficult times. I believe it helps! Continued prayers ❤🤗 & 🙏
Glad to know i'm not the only one who talks to myself! It really helps me.
I hear you
Sending a hug your way.
❤ big hugs marloes.
So proud of you! So glad you are proud of yourself cause you deserve all the happiness! Continued prayers! With the grace of God all things are possible 🙏 The prayers are being answered but it’s all in God time.
One day at a time, one step at a time!
Your worth isn’t defined by how productive you are through the day !! You bring joy to your parents , your dogs , your friends, and so many of us !! You are the best ❤❤❤❤ 7:23
Thank you my friend. That is so true- even if I want to be more productive, it doesn't define our worth!
Watching this in June 2024 is really making me crave Thanksgiving food lol
Me too! Editing it has been ROUGH! lol Will be ready for Thanksgiving food come November!
One joy source (for me) is thinking about dogs. I mentally run thru the alphabet, thinking of a dog I’ve known whose name begins with that letter. It brings back happy memories of dogs I’ve known and the people associated with them. I worked in a vet clinic and my family is pretty dog-crazy, so that gives me a certain advantage in making it most of the way thru.
Oh I love that! THank you so much for sharing how you go through the alphabet of names of dogs you know. What a great idea!
All these victories over the chronic illness feel so good. Those days when we are not overwhelmed and, as you pointed out we are free, are the best. I'm so glad you are getting better and better with each day. The road ahead has many ups and downs but nothing can stop you now. Thank you for sharing, it is really helpful and relatable. Keep it up Kelly!
Thank you! It is a rollercoaster for sure, but a journey I'm glad to be on.
I'm so HAPPY FOR YOU! GOD BLESS YOU! Until you experience such debilitating symptoms and illness you just dont know. But I know and I cry often as I'm grateful everyday ESPECIALLY on the good days! YOU GO GIRL! I think we're kinda blessed with illness because we take NOTHING for granted ❤
Thank you for the encouragement!!! Rooting for you!!
You don't get it until you get it.
I’ve just watched your demo. First time taking Ajovy, previous was Amiviq. The emaglity didn’t work. Here’s hoping I get better results with Ajovy 🤞🤞
I hope that the Ajovy helps you!! Rooting for you.
Thank you for sharing this with me last month. The doctor gave me the shot this month. I have to start on my own. I do have one question if you’ve ever had an EPI pen, does this hit you hard with the needle like that does?? I personally hated having to give myself the EPI pen because it felt like it just snapped you really hard.
I have never had to use my EPI pen, so I can't compare it unfortunately. Im' sorry! Ajovy has a different option if you don't like the autoinjector -please look at my pinned comment for the video where I talk about it.
I dont know why your divorce video popped up in my feed this morning ❤ hope its nothing! I have been happily married for 40 yrs I am 59. I thought lets see how her life is now? I have been so sulky about the week of pouring rain. I start my days with gratitude but my garden calls & its floating away. I live in Ak and winter just ended. I have only been in the hospital 3x for the birth of my kids and litterally never get sick, not even the dreaded C. I find you incredibly string and upbeat, you have every right to have your days. I dont want to prey on your chronic medical challenges but it certainly is a reminder to be grateful❤❤❤
I'm so glad that you are here! Welcome! Thank you for commenting and sharing your experience. I have had a similar experience from watching someone I cared about go through hellish life circumstances. I knew someone who had a multi-viseral organ transplant and she went through hell. She appreciated *every single day* - the hard and the harder - and it deeply impacted me. She passed away a little over a year ago, but her life deeply impacted me and I think of her all the time. Her life reminds me of what I do have. There truly is so much to be grateful for- no matter what our circumstances are. I think it is normal and human to get annoyed and upset about things. Please don't be hard on yourself about yoru garden washing away! I would be frustrated too! You put in a lot of work in it, I imagine. Please don't be a stranger! I'm glad you are here. ❤️❤️❤️
hello, can I ask for advice about your illness, we have the same illness, did you get better with gentamicin, what is the process of gentamicin and how many times was he injected in the ear, can you advice, thank you very much
Gentamicin injected into the ear works for a huge part of the population in treating Meniere's vertigo. It can take 1-3 injections (not at the same time), and usually it works to eliminate vertigo. There is a very very small part of the population it doesn't work for (me). I had 9 injections over 8 years before I moved on to another more aggressive treatment. I have videos on Gentamicin and even show how they do the injection. The playlist of videos about Gentamicin is here: kzread.info/head/PLTGnpduSk6I2LLWmIkjkWfdS4w-tKPvOJ If you have any questions from watching those videos, I'd be happy to answer them!
I wish I could give you a hug. You will get through it.
Thank you! I'll take the hug. Sending a hug back your way!
It's so unfortunate that you are suffering so much. Watching you while I am recovering from temporary hearing loss caused by cochlear hydrop after being on steroids for 13 days. Still get light dizziness during the day. I am wondering if you are still able to work at all with the condition.
So before the brain surgery (Vestibular Nerve Section), the Meniere's disease was completely debilitating. I wasn't able to work. It really varies person to person whether or not they can work depending on how long their vertigo episodes/attacks last. Some people can, some people can't. Rooting for you. I hope that you got through the steroids okay and that your symptoms are improving. That's rough.
Hi Kelly! Gald you're doing better now. You look so balanced and happy when cooking, keep it up! 💯
Absolutely so thankful I was so improved from the Thanskgiving before this one! I really enjoy cooking!!
It could be worse, you could be me and have been in bed (bedridden) for 2624 days (7 years and 2 months) 💔😪
Wow!
@@brianbutler7060that’s one word for it.
Lisa, my heart is with you. It is someone no one should ever have to go through or endure. Suffering for that long and being bedbound for that long is so painful physically and emotionally. I truly understand because I've been bedbound that long before. It is *so* hard and hellish and draining. You're not alone. Thinking of you. 💜
❤ its so fun watching you cook. You seem to realy enjoy cooking. 😊 I like cooking to. Im bad at backing. I just dont have a very patient character for backing. 😉 You go girl. 🏋️🍀❤ Hugs Marloes❤
Yes, I really love to cook! I"m glad you enjoy watching me cook!
Yes thats not nice to have. I have both, vestibular migraine and Meniere's disease. But I try to cope with it. Not always easy but you must go on. I'm first diagnosed with vedtibular migraine and later with Meniere's Disease.
Rooting for you as you cope with both! They aren't easy. You've got this!
Wishing you better days ahead.
Thank you!!
I just got told i had vertigo dr thought it was a sroke but it turned out be vertigo god bless you i just found tour channel buy lookig up this sickness
I'm sorry to hear that you have vertigo. It is rough. I hope it improves for you asap!