Hi, welcome to my channel!
I mostly make videos about neurodiversity awareness, specifically SPD.
DISCLAIMER: All opinions are mine and do not represent my employers. I am not a medical professional and do not have the authority to diagnose any disorder.
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I have panic attacks since my late teens. With my therapist we established that they are related to sensory input. Since I wear ear protection and sunglasses whenever I need it my panic attacks, heart palpitations and some sort of exhaustion passed. I feel much more relaxed. I also avoid busy and overcrowded places whenever I can
Even if you can advicate for yourself I have had coaches that have just said no when I try to self-advicate for my SPD and ehlers danlos
I have never experienced a sensory meltdown, or maybe only once when teachers forced me to play with other kids and I couldn’t stand the horrible noise they made and I was so overwhelmed by them running everywhere around like a swarm of bees. So I started crying screaming and I run away and it took me quite much time to calm down. I couldn’t understand why the teachers were so obsessed to have me playing with other kids. I kinda wanted but couldn’t. I have experienced a lot of I’m not sure they were shut downs or dissociations… it was like when all together was too much I turned everything off and sank my thoughts somewhere else in different world and there was no contact with me. I also remember i couldn’t speak, it was kinda painful or impossible but I’m not sure why. It’s not that I felt like outside my body, but like I was in a different world or that this world is not real. As I grew up I started having panic attacks. And this was a mystery for long years, because I didn’t have them in stressful situations. I had them at work, where it was noisy and with blinking lights, in a shopping center, in a bus, tram, even in intimate situations when the partner was kinda too fast and too passionate and sometimes even tasting food feels like too much and I get irritated, jittery and it starts. I had many situations where I was anxious but the panic attacks did not occurs in those situations, but in many other instead. I ended up few times in hospital with strong panic attacks, heart palpitations and all doctors said everything is fine with my heart and I even heard that I’m faking it all for attention. Then I heard that I have depression and got meds, which didn’t help. My daughter accidentally helped figure out that all those reactions were connected to too much especially noise. She makes a lot of noise, screams and her toys are unbearable for me. I started wearing earplugs. How is it possible I don’t know, but I have no more panic attacks, no heart palpitations and I finally can relax. Am I Crazy? Is it anything to do with spd or something else? Anyway looks like I found the simplest solution without medicine
As a child I couldn’t play with other kids for various reasons but one thing I remember: I told myself, maybe I could try to play with them if they didn’t make such a terrible noise and run everywhere around like a swarm of bees. That was painful, overwhelming, I often felt startled. And I still feel this way when walking on the street and some car honks or bus or tram passing or someone turns loud music in their car. My colleague at work likes to Honl on me with the forklift and laughs when seeing me startled jumping up
im 20 almost 21 and learning this iv got trisomy 13 autism, adhd, stress, depression, ocd, not even 2 minutes in and i got my back blown out by info left right and center holy shit
I like your videos becasue you’re calm. Other videos are like “HEY IM HERE TO TALK ABOUT SENSORY PROCESSING” and there’s crazy ass music in their intro and video. Lol I don’t like those ones
You pretty much described me. I just turned 35, and yah, life hasn’t been easy. I’ve had so much trouble living a normal life, I actually couldn’t, ever. I haven’t had a job in 2 years, and thank god for my husband now, he takes care of me and understands. I recently clued into this reality when I’m out in public and I can’t stand loud cars or motorbikes going by. It makes me scared, and very angry. I hate loud noises. I get exhausted very easily, I can’t even handle very loud music anymore. I feel like a lot of it may be due to abuse in early childhood, that has an effect on how your brain develops, due to higher levels of cortisol produced when children are under constant stress.
"our filtering system has been switched from automatic to manual" had me laughing so hard. Never heard a more succinct summary in my life, well done.
A fantastic video. My 8 year old daughter has SPD. KZreadrs like yourself will play a large part in helping her understand and navigate the world. I'm sure at some point she will look for videos like this. It's really helpful to those of us who may not be able to understand some of the issues you face. I've already seen in UK the lack of funding available for young people/adults who are neurodiverse. Those who might not have an advocate for them need to hear voices like yours. Keep it up ❤
Hi, my son has also SPD , my question is did you have a therapy session?
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I have always tried to explain my quirks to people by saying the nerves in my body are too sensitive. The feeling of wanting to jump out of my skin is not caused by emotions or imagination. I spent years fighting alcoholism because I had no other way to blunt sensory information. I am in my 40s and don't resent the time lost to misunderstanding. I am joyful that my issues have an explanation and treatments.
I love this perspective 💜
Lost my family and life due to spd..dont make enough money due to this which i lost custody of my son and my ex just because i battle with this
You summed up my whole life with this vid
Hey, take all the time you need to come back but just know your work is watched, valued and appreciated quite a lot. Your SPD series has helped me so much, I can not thank you enough. I am ADHD SPD, so this is some stuff that I genuinely believe is under-spoken about, so go ahead and add any videos on your opinion and experiences with ADHD please!!❤❤
Oh my goodness, thank you so much 💜 I have multiple compounding factors that have kept me from making videos the past little while. I hope I’ll be able to make more someday 😅
@@BlaireM you're an amazing content creator. I would love your socials. I work with mental health patients everyday and I would completely recommend your channel to them on spd. The videos are very very well made. Your videos actually helped me get a autism diagnosis lol 33 years too late lol. Masking is frl. Aaanyway Thank you so so much! 💓
@@ThatLionessGirl My instagram is @blaire.jpg! But I don’t create content on there, it’s just my personal page 💜 feel free to follow along though!
You’re doing a great job. Keep it up! <3 <3 <3
Im 66 and i have NEVER experienced any amount of getting "used to" any envirement that gives me sensory overload i didnt know i had it until my 50's . I just felt like a freak and i was constantly bracing myself against just "being". The hardest part is....other people do not get it. They think you are neurotic. My doctor said its a psychological disorder . You said it was a neurological disorder! Interesting!
Yes - it has to do with the way our brains and bodies communicate with each other!
Holy shit 😮
This is so fascinating! Proprioception is the one I need to remember. I have to constantly remind myself that people are not trying to invade my personal space but are just acting in a way that's normal. I can see someone a block away and my brain will still be like aldhskskff TOO CLOSE
Ooh this is so interesting! I forget how close I am to people. My worst thing is door frames though - cannot walk through any door without slamming my shoulder into the door frame 😂
Bruh but imagine knowing you had SPD for half your life but never taking it seriously (because no one else did) until having nearly daily meltdowns at work and stumbling upon a random YT video like there NEEDS to be more awareness about this. This is appalling.
I agree!
I always feel like my brains that one episode of SpongeBob where they’re all freaking out and digging thru file cabinets and everything’s on fire and all we can hear is where’s the name what did we do with the name. Name . Name . Name
Wait that’s so true 😂😂
My son has that. I do too as well. But I also have had problems with not so much the senses, but emotions. I am empathetic, also gifted with dealing with anger, agression, violence, the difficult emotions people don't want to deal with. So I process not just for my life my son and others. Sometimes I get flooded...it usually comes through media, or the internet, or communication. I am injured and at present, I am processing something feels like a rock, a wall, the end, I pay attention, because I am dealing with past injuries that disabled not only my life, but also what caused injuries to my son and family,and all. I am dealing with impact, the impact of my old car accident, or the numerous other movement impact injuries and experiences that I have had to live and endure. I also process that which caused me brain damage and damage to my central nervous system that disabled my life, which was like a bomb that went off inside of me and blew out my ears, and gut. Its not pleasant. Dealing with communication overload, dysfunction, problems which is an everyone problem, that needs solutions. The inability to listen. Ended up with sensory deafness. Which means I can physically hear, but at different sensory frequencies, I go deaf, which means I can't hear. Its very surreal, because no one can communicate to me and I can't communicate back. Its the world of silence. But when people use silence as a weapon, it triggers the horrible, dreadful...I end up coming into peace....but its a process quite like no other.
Thank you so much for your empathy and raising awareness of the experience of living with an SPD. The idea that people just make do year after year because they don't know what's going on in their bodies and minds is really poignant; but at least if they do find their way to help, it's more available now.
Please also don't be too hard on your self. Just love yourself cos you're amazing..
That's very interested! After I was adopted from Russia, my special educator noticed how I hated hearing all the environmental sounds and provided me with the therapeutic equipment. It started helping me with the sensory issues; however, doesn't make things go away due to ongoing experienced with the long-term issues. I'm deaf as well as a visual learner and a sensory issue since such a young girl. I'm now attending at the University for becoming an Inclusive ECE teacher. Yet, my sensory issues wouldn't go away with the meltdown and things like that. Realized they're trying to help me with something comfortable how I felt about my grades went down. One of the student of Deans started helping me with the great advice while crying aloud and felt so much better after playing with a sensory toy. Hope you guys have a great week! 😀
As she told me something important from the Student of Deans, it's okay to try something new and bring your sensory toys into the University classes. I've brought the cheaper sensory equipment (from the Amazon) and will use for the Spring semester 2024 to keep my hand busied. Especially helped with the reduced-distractions and anxiety things. Looking forward to work with great supportive people out there! I was amazed that you said something very interested about SPD because of wasn't realizing that experienced with the hearing sensitive and visual processing things in an Elementary School. So grateful that you have provided clarifying SPD information that made me feel so much better! Gotta think positively until things will get better no matter what. Happy Holidays! <3
bye again ?
Lol 😅😅 When I made this video I had no idea what horrible things this year still had in store for me. I had the best of intentions but I have not been physically or mentally able to start making videos again, unfortunately.
Thank you for your videos. Never heard the term stimming although I have some of the behaviors for years now. Good to have some understanding and not feel so weird about it. Thank you so much!
So my son has had anxiety and went to see a therapist and using CBT all symptoms are gone, so i guess if you have anxiety, it never really goes away but it’s pretty much I would say not existent he is excelling in school. He does everything that normal boys do he’s 18 years old. He has a great life he’s in college however, there is one issue that is not going away, and before the anxiety, panic attack he always had a sensation that bothered him, but thought it was normal. However, after the anxiety attack, I see him complaining about it and it’s bothering him. It’s affecting his life so this problem is only with his shirts he cannot have rough texture, church, touching his chest or he doesn’t even like the shirt to be on his chest on his skin, but it’s weird because it’s only in that area. I am not finding any solution except for this sensory disorder that you are talking about but now I’m doubting myself because I see in the comments people have a lot of other issues that I don’t feel my son has but what the heck is this feeling of his shirt not being able to touch his chest he keeps pulling the shirts away from his chest with his mouth when he’s sitting, he doesn’t like to close the zippers on his jackets he doesn’t like wearing heavy coats? Can you please help me? I am looking everywhere. I stay up all night searching I’m exhausted. It’s taking up my whole life this search because I’m heartbroken for my son I want him to be happy and this is inhibiting his full potential to be happy.
I would recommend talking to a medical professional about this! Sometimes sensory issues are caused directly by SPD, but they can be a symptom of something else going on neurologically. Best of luck in your journey. I know how hard it is to see someone you love hurting. <3
I was forced to be undiagnosed for YEARS. I went through so much and was just called to be "overreacting" . Finally, I got diagnosed but now I'm still not noticed as different in those aspects. But, I'm thankful to be diagnosed and able to find people who go through those things too.
Really how you explain and care you show it really gives some relief listening to you.
Thank you!
First thank you for such an amazing SPD series. With a son who most likely has SPD your videos are very educational are fantastic! It is so good you should attempt to do a TEDx talk about SPD? All the best.
I'm flattered! Thank you very much <3
Your video series are pure GOLD!
I couldn't understand why I've been feeling all my life like a fake introvert, I love being around people, but I get overstimulated easily and then I need lots of time to recharge, I'm just learning about this at almost 40, because becoming a mom dysregulated me so much and I couldn't understand why
I feel this. As I've gotten older I've become more extroverted - I love to have people over to my house but it always tires me out so much. solidarity to you <3
Thank you for explaining the “cumulative” trauma response thing! Helpful ❤
✅ good video
This is such a great series. I was confused for years because I related to a lot of experiences shared by autistic folks including my friends but didn't meet criteria outside of sensory issues. My mother had a disability that made her very sound and light sensitive, so my perception of 'normal' was skewed. I recently got accomodations that allow me to work from home and take frequent breaks, and it made SUCH a huge difference. I still feel really weird trying to explain why I need it, but I no longer have weekly breakdowns in my car. Thanks for putting together this series!
Ahh the car breakdowns, I know them all too well 😭 I’m so glad you have accommodations that work for you!
❤ you are a precious person
Thanks for sharing! I'm an adult with SPD (mostly noise issues but some other senses to a lesser extent)!
I've been diagnosed with panic disorder but ive found all the treatments dont work so im looking into this. Im definitely a still at 29 I have no friends, i live with my parents, im depressed and scared all the time and im pretty good with people, but i leave or they leave very fast because im so unstable. The lonliness is driving me to..bad things. If i had one friend, a true friend irl who cared i may be able to live longer but idk its not gonna happen after 7 years. I'm so sick of the pain and everything feels deterministic I have nobody and nothing except for the things people tell me to be grateful for like food and clothes on my back but my entire social life is completely empty I feel it's my right after trying so long to make the decision whether or not I want to keep living. I studied psychology, philosophy and computer stuff (coding) on my own and certifications mean nothing to an employer but that's whatever I just lost out on seven years of human experience at least because of my inability to move past anything despite having seen multiple therapists in been on all this medicine 99% that wasn't even needed I don't want a friendship that's on Facebook Messenger or text I want people to call I want people to meet in person and just be able to give a hug to but that's not going to happen even if I say it will or have faith it's pointless at this point I feel like my best hope is just maybe becoming a polymath type scholar shut-in and just be miserable and die early like Franz Kafka I don't know why I'm posting this comment I'm just going to sleep wake up and it's all going to be happening over and over again and nobody's ever going to be there so I just have to figure out a way to somehow get a minimum required amount of social interaction day by day and maybe just work on Hobbies and if I end up leaving the planet early that's the way it's got to be and having everything gone when my brain loses oxygen and that little bit of electricity goes out and zero perception exists is the closest thing that I can ever find resembling peace the best thing I can do is sleep I do lift a ton of Weights by myself I do read and write and I watch a lot of KZread but yeah my life is empty and there's nothing I can really do about it I'm hoping somebody comes along but if not I guess I just have to decide what I want to do about this most likely I'm going to wait it out until the end of my life and hopefully I won't die in a scary way but I'll be aware that I'll finally be at peace and the irony is when you're at peace you won't even know it but I guess I think that's sufficient for me thanks for explaining all this stuff if I find a way out that would be cool but I don't see it and you're doing good work I hope you never have to suffer nearly a decade of complete loneliness I hope nobody has to suffer I'm just rambling now take care of yourself guys most people do make it eventually I just happened to be one of the ones who probably won't peace out
Solidarity to you. It’s possible for things to get better 💜
@@BlaireM of course and thanks.
Hey Blaire.... What are some signs that you are getting SPD overloaded or you are heading toward SPD burnout? Especially for someone who does not yet know much about SPD (other than their childhood issues of clothing labels, specific types of light, too much environmental talking) THAT that kind of thing? Also what kind of things in a person's day can be SPD related and overwhelming? For example would it be fluorescent lights plus if you are a visual learner listening to profs and University with auditory teaching all day plus how do dorm roommates affect things if you still have your own private bedroom to retreat to? What about cognitive...is THST SPD or HFA related? How can an O.T. help a university attending YA? That kind of thing😃
Love all the questions! Some of them I don’t know the answers to but here goes… I notice when I am heading toward burnout that I’m often tired, but sleep doesn’t feel restful. The biggest thing is irritability and lack of interest. It can present like depression in my experience. Any form of sensory input can be perceived as overwhelming! Each person with SPD can be different. There’s usually no one solution to sensory overload so it’s best to ask the person in question what they need. As for SPD in college maybe I should actually just make a whole video about that… college was a handful for me, lol. Appreciate the comment!
so melting down trying to buy shampoo could fit in this?
For sure
Thank you for sharing, been doing this for years
I am fifty years and I am now starting to understand this. I have been masking for years trying to force my way through it. This video is very relatable and I want to say thank you for sharing. Tired and looking for some assistance with this. Any suggestions or advise would be welcome. It took me longer to get my life in order so to say. Just started a new job in an open environment and it is harder than I thought it would be.
I would say the first step would be observation. What exactly triggers you and what makes you feel better? When I was first starting out I wrote down my triggers on a piece of paper and then on the other side wrote what helped me calm down (earplugs, taking a break, etc.) Taking lots of field notes helped me figure myself out first, and then I could articulate to other people what I needed and why. Best of luck to you!
I only just come across your channel recently and have been loving your videos! I know this is 2 years old but I haven't been diagnosed with spd but want to pursure one as I relate to everything you say about spd and the things that come along with it. I've had dissociation a couple times in my life and it's so scary and confusing when your in that state. I would describe it as floating outside my body and nothing feels real and like I've had seen this exact image/situation before in my memory or dream when in reality it's something new. Don't even think that makes sense but the only way I could get out of that sensation was to attempt to ground myself or get out the environment/situation entirely
Totally get it! Best of luck to you in pursuing a diagnosis 💜
Thank you for this. It’s a little less lonely right now
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Thank you so much for sharing this. I have a 14 year old SPD daughter who has been having meltdowns a lot the last year. I understand it now.
I’m so glad my video helped you understand 💜
As a pediatric occupational therapist, I would say you would make a great OT. If you haven’t got a career yet that is something you may want to consider. 😊
Thank you❤❤❤ This means so much to me!😊
Thank you!!!