If you are experiencing some level of disability from your FSHD symptoms (or other issues, for that matter), what are your rights to accessible public spaces, work environments, education, etc.? Does the law protect you? Dani Liptak, a young adult living with FSHD, is currently earning her certification in the Americans with Disabilities Act (ADA), which will enable her to consult to stakeholders about compliance with the ADA. Join us to share issues you are trying to navigate, or solutions you have found.
FSHD Young Professionals is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect, collaborate, and provide networking opportunities. Whether you’re just graduating, starting a new position, or already on a career track, the FSHD Young Professionals group will help you develop a valuable network of friends facing similar challenges.