Our guests are Heloise Hoffmann and the iGEM research team at Stanford. Heloise was diagnosed with FSHD at 13, and has been a fierce advocate in the FSHD community for the past several years. Now a sophomore at Stanford University, she’s working with a research team to develop a novel therapeutic approach for FSHD. The team is made up of 8 Stanford undergrads studying multidisciplinary fields of bioengineering and computer science, harnessing diverse fields of expertise to design a multifaceted solution for FSHD. They hope to design a life-altering therapeutic package targeted at both stopping progression of the disease and restoring function. At this Roundtable, they share more about their research and efforts to elevate patient voices through the project. They have been working tirelessly since January to design the project and look forward to dedicating their energy full-time this summer and presenting their findings at a congress in Paris in the fall. Most of all, they are thrilled about the opportunity to make a lasting impact in the landscape of FSHD research and contribute to accelerating a cure!