20 plus years of ongoing UTI’s and kidney infections, interrupts your career, impacts your mental health and just wears you down, it’s exhausting!

I had an uti that turned to sepsis. Please ladies if something feels wrong go to the doctor

@Custodian123

2 ай бұрын

Sadly the other half is having a poor quality doctor. If you ever get a practitioner that haphazardly turns you away, find a new doctor immediately.

@Kargoneth

2 ай бұрын

Yes. Medical issues should not be ignored. Unfortunately, resources are finite, so people sometimes choose to ignore or to delay examinations and treatments for medical issues. Sometimes doctors are too busy to give the amount of attention required.

@stephena1196

2 ай бұрын

​@@KargonethI've heard GPs in the UK typically give you 7minutes, because that's the length of time they can make the most money.

My mother was allergic to so many antibiotics that the doctors were running out of options for treating her UTI's. My elderly father (on a catheter due to a stroke), died after a series of UTI's lowered his ability to fight infection. The UTI's also affect some seniors mentally. They are a horrible thing.

@Kargoneth

2 ай бұрын

I hope that your mother was able to pull through. My condolences for your father. Catheter-associated UTIs account for 3/4 of UTIs acquired in the hospital.

@Era515

2 ай бұрын

@@Kargoneth Thank you. It was scary. Mum passed away (non UTI related) just before we ran out of anti-biotic options. In all the years Dad was in care he rarely got sick except for those UTI's. Dad's last UTI was brutal. He went downhill fast from that one.

@Kargoneth

2 ай бұрын

Unfortunate circumstances.

Dealing with what may be a recurrent UTI right now, can't believe this video just happened to be posted right as I was researching. My tests with Standard Urine Culture have consistently come back negative, but I have all the symptoms of infection. Bacteria that aren't free floating are not often detected in tests, and the science is way behind in the US as far as more comprehensive testing goes. Thank you for bringing more awareness to this, disorders like recurrent UTIs and Interstitial Cystitis are poorly understood and the pain is unbearable!

@Amethyst_Friend

2 ай бұрын

Thanks for your comment. Hope you get better in time.

@julianarfelt

2 ай бұрын

Have you gotten tested for bacterial vaginosis? It can also cause a stinging sensation, pain and discomfort

@alaskaredhead

2 ай бұрын

@julianarfelt Yes I have, I tested negative. This is primarily in my urethra and bladder. However I realized that my symptoms fall under the umbrella of Pelvic Floor Disorders, so I will probably talk to my doctor about that.

@alaskaredhead

2 ай бұрын

@@Amethyst_Friend Thank you so much, I appreciate that. 💖

Good talk. Prof James Malone-Lee needs mentioning for his great contribution

I got a UTI many years ago and I was given antibiotics that didn't get rid of the infection. I am not exaggerating when I say that my life was hell for years after that because the infection stayed and damaged my bladder walls, leading to pain that was so excruciating that I was bedridden for a few years. Thankfully I received a treatment that added almost a protective layer to my bladder wall, and I am no longer in pain everyday and I mostly have my life back. It has left many psychological scars though. Women deserve better.

@Kaughty

2 ай бұрын

What treatment did you have?

@pidge1997

2 ай бұрын

@@Kaughty It was called Cystistat

These are not solutions. 1. Celebrity endorsement, but specifically for UTIs that affect women. 2. Need the science to be done and that science be taught to doctors. Then talk to GPs and medical institutions. Show evidence fir its debilitating effects, reduction to quality of life, and its treatments. 3. Need more money for research. Then fundraise or make an argument why funding should be diverted away from existing research. Promote more efficient use of financial resources. 4. Get angry. This will attract some and repel others.

@Kargoneth

2 ай бұрын

Clarification: 1 and 4 are not solutions. At best, they will increase available funding allocation. At worst, they will decrease available funding allocation.

I'm delighted that Professor Rohn brings up a very important and uncomfortable topic that affects so many, primarily, women. I just wish the video wasn't titled "How to End UTIs", as it falsely implies that the video provides a solution, which it doesn't.

Fantastic talk. I’ve suffered from UTI’s for 27 years! It has ruined my life and stolen precious life events from me as I’ve had to cancel so many events . At last I’m improving using vaginal probiotic ( Canesflor ) and eating fermented foods and drinking keifer. I’m also going to try the Uromone vaccine to see if that will also help . Hopefully more research and treatment will be available soon. Thank you so much for raising awareness of this life debilitating condition.

I bet Professor Jenny's careers officer had an unexpected answer when they asked 14yr old Jenny, "and what would you like to do when you grow up?"

I absolutely love Dr. J! She reminds me of my lecturing days. I bet her students appreciate her enthusiasm for the subject.

Prof James Malone-Lee's book "Cystitis Unmasked" explains everything. Essential reading.

❤ Brilliant presentaion! Go go go!

I have an alternative explanation for the discrepancy: this stuff is much more complicated. If this research involved growing synthetic bladders, is it really a surprise that this has only become known in the last 20 years or so?

Thanks for telling people to get angry at their docs, we definitely don't have enough anger in general practice. Your main point was that this is not filtering down to doctors - so what's the answer? What do we do with someone with chronic cystitis with negative samples who is systemically well? Other than absorb their anger....

@AbiSaysThings

2 ай бұрын

You learn some semblance of bedside manner and let them know that you are well-informed on the subject and believe there is an issue, even if you currently don't have a treatment option. You don't dismiss them or gaslight them and tell them they're fine. You cannot make the science happen faster but you can recognise gaps in medical expertise and see that patients are not coming to the doctors just to make stuff up.

@stephena1196

2 ай бұрын

Occasionally people do make stuff up to tell they doctor: in the hope of being prescribed a drug they could misuse. I knew someone who did that. He had a pharmacology book and would go through the list of drugs looking at side effects to see if it's misuse could get him cabbaged. When he found one he'd pretend the symptoms requiring that medicine to his doctor hoping to get the drug. He got through a lot of GPs. I'm not a doctor, though I'm fairly sure the drugs used to treat UTI can't be misused to get you cabbaged.

@boxelder9167

2 ай бұрын

That would be crazy if they had more alternative studies and found out that coconut oil and baking soda was more effective than antibiotics for treating UTI’s.

@andreas6833

2 ай бұрын

What do you do now with someone with chronic cystitis with negative samples who is systemically well (but suffering daily with painful and distressing symptoms)? Obviously you must treat their infection. If doctors don't know how to treat a chronic urinary infection, they should find out or refer to a doctor who does know.

I’m a man & I’ve had UTI’s since my early 20’s.. it’s not just women.

@AbiSaysThings

2 ай бұрын

She said that if you actually listened.

@hxl6162

2 ай бұрын

Maybe you should look for associated factors such as prostatitis, stones and anatomical problems, is not usual.

@thomasbroker69

2 ай бұрын

@@hxl6162 I know why ( because of an injury during an automobile accident) & she rights it’s a condition that’s terribly overlooked & can cause you to be incredibly unwell. I’m already resistant to two antibiotics I think there only a few .

@VictorKibalchich

2 ай бұрын

she does say it's not just women

@Kargoneth

2 ай бұрын

Yes. She says that it mostly affects women, but that some men do get urinary tract infections.

Interesting 😊

Our integumentary system is a warzone.

Hey Ladies, make sure always to pee after sex, and drink loads of water anytime you feel a UTI manifesting.

Don't just get angry, volunteer to be a subject for research.

I keep getting bouts of utis male. Caused me probs with foreskin etc. took 4 doses of flucanazole, didn't seem to do much. After ive been taking methylene blue, dandelion tea,green tea extract, berberine and it seems to be lots better.

Yes! Get angry! Make change!

I finished the vid and don't understand why over 40% of the viewers disliked the video? suprisingly paid more attention to details than i'd on a normal RI vid

@bl4ckkn1g8t5

2 ай бұрын

Her feminists man hating, and making claims with zero evidence to back anything of it up

@AnirudhTammireddy

2 ай бұрын

@@bl4ckkn1g8t5 It didn't seem like hate to me. But I got my answer. thanks!

@Kargoneth

2 ай бұрын

I criticised the video for the parts that I did not like but still gave it a thumbs up because it was extremely informative.

@muzikhed

2 ай бұрын

She spoke too fast.

D-Mannose works.

What a cool entertaining professor. I was so surprised that I watched the whole video.

Interesting. As for the crisis of antibiotic failure...Lamentably can't say I'm surprised. Forgive me for being trite, but it's always been an arms race against nature, and the eternal question is "How do we not lose ground?"

Please do a Ted talk on this!!!

Even women doctors especially young women doctors do not understand menopause in the uk and are very unsympathetic.

State of the comments lets me know I should be even angrier about this. First step of solving a problem is acknowledging the problem, but I guess that's already way too much accountability for people here

@Kargoneth

2 ай бұрын

Problem acknowledged. Criticising the way it was presented.

@Kargoneth

2 ай бұрын

UTIs are bad. UTIs affect women more often than men. UTIs are underfunded for all involved. Here's how UTIs work. Here's why UTIs are hard to treat.

@Kargoneth

2 ай бұрын

Seems straightforward.

@bl4ckkn1g8t5

2 ай бұрын

The root cause analysis shows it because people have bad hygiene

The first thing I thought of when I read the title was that the speaker would say it’s all men’s fault. I was basically correct. It is a pity she spoilt her otherwise excellent talk with such an attitude .

@EPMTUNES

2 ай бұрын

Can you point out to me where she says its all men's fault? I don't think we just watched the same talk

@Asher0208

2 ай бұрын

@@EPMTUNES 1) I stated that original thought was basicily true, not that it was totally true. 2)She is generally dismisive of the problems that men with have with UTI. Then later on, say around 8:35 she argues that men do not do research UTI's because they do not get them. My point is that she could have just said that the problem is underresearched, or that the seriousness of this problem has not been recognised But she did not do that. She went straight to the suggestion that mem do not research it because men do not get it.That is a claim that may or may not be true. She showed no solid proof. It is just a sexist jab that does nothing to help her cause. It is such a pity as it was an otherwise interesting talk.

@TheTechnician27

2 ай бұрын

@@Asher0208"That may or may not be true". Dude, she literally has the receipts showing that women's sexual health issues that are far more severe get vastly less scientific attention than erectile dysfunction. There have been plenty of studies about this, for example "Gender bias in research: how does it affect evidence-based medicine?" by the JRSM. It is abundantly clear through well-documented empirical evidence that this is a phenomenon which has happened.

@bl4ckkn1g8t5

2 ай бұрын

And she has zero data to back up her feminists claims, but still has zero shame in espousing them

@laurenaroha8957

2 ай бұрын

​@@Asher0208the male bias in health science research is incredibly well evidenced. It has nothing to do with being mean to/ about men, it's simply an observable fact. Men don't research female-coded disease, the fact that it also adversely impacts men only speaks to how harmful this form of unconscious bias is.

Men get them too.

@Kargoneth

2 ай бұрын

Same with yeast infections.

@khoo7732

2 ай бұрын

She said that many times in the video

@Kargoneth

2 ай бұрын

Yes. She did say that several times. She also downplayed it several times as well.

@evilchicken17

2 ай бұрын

"Not all men"

Urinary pathogen have a right to defend themselves

@leddielive

2 ай бұрын

At last, someone standing up for the little ones, chivalrous admiration needed over here.

Why do not we focus our attention on bacteriophages?! They are more specific and less toxic than antibiotics. Is it because their production is cheaper than the production of some novel antibiotics that no pharma company is interested in research?

Im not usually into cancel culture movements but I'm down to cancel utis

I wonder if viral-phage therapy would work on UTIs. I also wonder if CRIPSR-Cas9 could genetically engineer a fungus to produce new antibiotics against E-coli, chlamydia, gonnorrhea, etc. . .

@AdrieKooijman

2 ай бұрын

You could also try a magic spell or spending the afternoon sitting upside down. It might help. I'm not an expert in the field but I assume people in the field are seriously thinking about the possiblity. "There are only about twenty science labs working on UTIs". That's at least a hundred people. There certainly are a few smart guys and girls among those.

@hmgkt

2 ай бұрын

It a commercial calculation- treating UTIs = £££ recurring; curing UTIs is a one off payment.

@AdrieKooijman

2 ай бұрын

​ @hmgkt so all scientists work mainly for profit? All PhD's doing research in the field become billionaires by *not* publishing their findings in new, effective antibiotics? Yes, that is a conspiracy theory. (And, yes, I do believe that there are possibilities to make the world a better place and a financially driven economy might not be the perfect world and so on.)

@hmgkt

2 ай бұрын

@@AdrieKooijman i was actually referring to pharmaceutical companies (they wont spend billions for a drug that wont give a return) but now you mention it scientists, certainly the one i work with are provided grants based on how viable their research area is.

@Kargoneth

2 ай бұрын

I also mentioned bacteriophage therapy in a comment. It may be possible to create or breed new organisms that produce novel antibiotics. It should be investigated, given that antibiotics is a never-ending arms race. Abuse of antibiotics should also be monitored and prevented to reduce the rate of resistance among pathogens.

What a great talk!

I think UTIs should be banned

@GGoAwayy

2 ай бұрын

Why aren't politicians talking more about fighting this nations deadly UTI addiction?

@brendoncummins2762

2 ай бұрын

Tried banning idiots, didn't work...

@Amethyst_Friend

2 ай бұрын

That’s the idea

0:25: 😡 The severity of urinary tract infections (UTIs) and the growing issue of antibiotic resistance. 2:46: 🔬 The complexity of urinary tract infections (UTIs) and their impact on women's health explained by Professor Jenny Rohn. 5:12: 💡 Challenges in diagnosing and treating UTIs, leading to potential complications and discomfort for patients. 7:40: 😡 Lack of progress in UTI diagnostics and treatment, leading to women's suffering and dismissal by healthcare providers. 10:04: 🔥 The urgency of addressing UTIs and the importance of patient advocacy in driving change. Recapped using Tammy AI

She’s figured out us men. We absolutely love it when our wife’s, daughters, granddaughters, mothers and sisters contract a UTI. We get together worldwide on the 1st of each month and laugh about all women with UTI’s over zoom calls. Pathetic!

Speculating on why funding for certain issues is distributed disproportionately between the sexes is unhelpful without facts to back it up. With erectile dysfunction, reproduction is difficult.

@Nope-w3c

2 ай бұрын

pun intended?

@Kargoneth

2 ай бұрын

Pun?

@AbiSaysThings

2 ай бұрын

​@@bl4ckkn1g8t5the irony being the number of weird men in these comments who can't deal with an educated woman speaking facts.

@bl4ckkn1g8t5

2 ай бұрын

@@AbiSaysThings Sure, provide the data that men's health is funded more than women's health. That is what she was implying, yet I see no facts..

Rather than always trying to make everything about women versus men, how about we try to actually bring the sexes together?

@AbiSaysThings

2 ай бұрын

Telling women to be quiet about the issues that affect them doesn't do anything to unite the sexes.

@mariusvanc

2 ай бұрын

​@@AbiSaysThingsblaming men for not researching a particular problem doesn't do it either. Women still have better health outcomes and live longer and healthier than men, so it's not some conspiracy to keep women down.

@ariebaudoin4824

2 ай бұрын

@@mariusvanc its doesnt come across as "blaming" to me. she just made a descriptive statement. I feel you are the one that is antagonizing the oposate sex here by framing what she said as blaming, not her for making this informative video with some Tongue-in-cheek humor. maybe try not being offended so quickly?

@Kargoneth

2 ай бұрын

@@AbiSaysThings wrote: "Telling women to be quiet about the issues that affect them doesn't do anything to unite the sexes." Correct.

@Kargoneth

2 ай бұрын

My OCD further distorts my perceptions of the actions of myself and others, giving them disproportionate attention and dues (especially anything negative). This often leads to me overreacting or overcorrecting, such that I immediately push back against what I perceive to be a prelude to something negative that I have seen before. It is not a good place to be; sources of anxiety are numerous. Fortunately, I do have friends and family with assorted perspectives that can help re-calibrate my perceptions to better match reality. Usually before I say or write something that I cannot take back.

Is she a professor or an activist? Teachers demanding their listeners get angry - that's not education that it's emotional hectoring. And she wonders why so many 100 year old methods are used - maybe too many teachers forgot to teach information and kept pitching "get angry" instead of get smart and learn more.

@Kargoneth

2 ай бұрын

I think that she is an activistic instructor. She sees a problem and wants the problem solved. Fair play. She cannot solve it herself, so is hoping for listeners who can get involved. Also fair play. Students pay money to come to be taught by her. She turns them into activists. That is not fair play. That is indoctrination of a captive audience.

@khoo7732

2 ай бұрын

Wouldn’t you be angry if a doctor dismissed your concerns because of your gender. I think she was just saying don’t let utis become a problem that could be solved with research rather then dying due to complications or with antibiotic resistance

@TheRadioAteMyTV

2 ай бұрын

@@Kargoneth If her job is to teach people the skills and knowledge to build into solving the problem, every minute she spends away from that task the more she dooms her own desire to find cures.

@TheRadioAteMyTV

2 ай бұрын

@@khoo7732 Her job is part of the foundation of research and every moment she spends not fulfilling that duty, but instead being an activist for whatever cause she finds worthy, takes away from her goal of wanting people to work on cures. So how exactly she is escaping being mad at herself for sabotaging her own stated goals? The more teachers in the system copying her are all working at cross purposes of what they say they want. Sorry too busy protesting to teach the students who are supposed to come up with the cures.

@Kargoneth

2 ай бұрын

@khoo7732 Yes. I would be angry if a doctor dismissed my concerns because of my gender. That sounds like an incompetent doctor.

I don’t like this wording, this is activistic way of presenting thing.

This talk shows why activism and medicine don’t mix. They should add “thou shalt not be woke” to the hypocratic oath

@TheTechnician27

2 ай бұрын

It's the Hippocratic Oath*, but I guess I shouldn't expect someone who uses "woke" to have even the most basic understanding of anything they talk about.

@bl4ckkn1g8t5

2 ай бұрын

@@TheTechnician27 When concerning feminists the hypocrite oath makes much more sense

@MrToastercide

2 ай бұрын

@@TheTechnician27 I think that allowing your politics to interfere with your clinical decisions is following in the footsteps Of Mengele

@TheTechnician27

2 ай бұрын

@@bl4ckkn1g8t5Don't worry, I'm sure you'll grow out of this by the time you're 15.

@bl4ckkn1g8t5

2 ай бұрын

@@TheTechnician27 No, I intend to be funny and witty forever.

Such a shame. The talk started so well… if it helps anyone Hiprex is worth a google. Apparently it’s very effective. There is a massive price difference between purchasing in Australia where it is cheap versus Europe. I know people who consider it a god send.

When somebody feels the need to make you feel angry then that person is NOT on your side.

@ariebaudoin4824

2 ай бұрын

This is an insane take. Do you not have a sense of personal ethics? Don't you think that people in the abolisionist movement for instance wanted you to get angry at the system of slavery? I think this take says more about your "side", then about this video, apearently your "side" is a side of people that is so individualistic that any media should only be catered to the person watching it, instead of promoting any sort of ideas on how to potentially make the word a better place for more people. wtf