What does akathisia really feel like?

Ғылым және технология

Dr. Cutler describes the signs and symptoms, including his own personal experience with this troubling side effect, as well as what's understood about why it occurs. Presented at the 2016 NEI Congress.
Learn about upcoming NEI Meetings: nei.global/meetings
Stay updated with email alerts: nei.global/updates
Interested in Psychopharmacology? Check out the NEI Master Psychopharmacology Program: nei.global/mpp
Follow us on Facebook: nei.global/facebook
Follow us on LinkedIn: nei.global/linkedin
Follow us on X: nei.global/twitter
Follow us on Instagram: nei.global/instagram
🎙 Listen to NEI Podcast: nei.global/podcast
Copyright © Neuroscience Education Institute. All rights reserved.

Пікірлер: 410

  • @TYoung-up9ro
    @TYoung-up9ro4 жыл бұрын

    Anyone else here after watching JBP return video?

  • @Littlepaw01

    @Littlepaw01

    3 жыл бұрын

    * raises hand *

  • @leascaart

    @leascaart

    3 жыл бұрын

    Watching it right now. Sounds horrible. Sounds like a meth addict having withdrawals.

  • @8bitsinabyte

    @8bitsinabyte

    3 жыл бұрын

    Yup

  • @JuanGerardoHernandez

    @JuanGerardoHernandez

    3 жыл бұрын

    Here!

  • @democraticdialogue7271

    @democraticdialogue7271

    3 жыл бұрын

    Never even heard of this before Dr.Peterson video

  • @wdtony
    @wdtony5 жыл бұрын

    Absolute HELL on earth. Adverse reaction to Lexapro caused it for me. The intensity didn’t diminish for over 2 years. I probably walked 10 miles a day for those 2 years. If you would have seen me you’d have estimated that I was completely insane. It’s like trying to live life with your hand in a pot of boiling water. Nothing is enjoyable and you can’t ignore the horrible sensations. The doctors didn’t know what akathisia or serotonin syndrome was so they said I must be Bipolar. Ridiculous. Thanks for the video.

  • @GeraltOfRivia99

    @GeraltOfRivia99

    4 жыл бұрын

    @wdtony how did you treat it?? i need help !

  • @melissab4710

    @melissab4710

    4 жыл бұрын

    I literally wanted to drive my car in front of a truck with akathisia. I always said I would rather give birth every single day than go through that, it’s absolute living HELL.

  • @melissab4710

    @melissab4710

    4 жыл бұрын

    Linuxx How are you going? Are you still struggling?

  • @GeraltOfRivia99

    @GeraltOfRivia99

    4 жыл бұрын

    @wdtony omg man im going through this now and i feel for you im sorry you went through it! im pacing around i cant sit still, im trying to walk to get out all the adrenaline and anxiety but its not working, im short of breath chest pain, lightheaded i cant even watch tv or lay down... my moms like just put something quiet on the tv or play a video game im like mom i cant do that i cant control this your body is on auto pilot! im not sure why but effexor just stopped working and the symptoms started than. ive tried lexapro and zoloft and no luck i still have this akathesia and i think its because ssris dont address low dopamine infact they actually LOWER dopamine! when you raise seratonin your body trys to balance it out research it you will find as seratonin goes up dopamine goes down. im not entirley sure i just know im going through hell right now

  • @GeraltOfRivia99

    @GeraltOfRivia99

    4 жыл бұрын

    @@melissab4710 hi yes i am its very bad.....

  • @brandonwilkinson
    @brandonwilkinson4 жыл бұрын

    Jordan Peterson brought me here

  • @RogerBarraud

    @RogerBarraud

    4 жыл бұрын

    Ditto.

  • @belleme861

    @belleme861

    3 жыл бұрын

    same. it sounds horrible.

  • @SAMEntalhealth
    @SAMEntalhealth3 жыл бұрын

    This is so underrated that even KZread prediction text doesn't know it

  • @kreep182

    @kreep182

    2 жыл бұрын

    Dude..its so rare, people dont know such a thing even exists. Only a select few lucky mother fuckers ever get to see the real hell on Earth....and they cant even describe it to the others around them

  • @seekingthelight6401

    @seekingthelight6401

    2 жыл бұрын

    @@kreep182 Mo it's indescribable brother! There must of been thousands of suicides!!! I got mine from an old antibpsychotic called chlorpromazine in the cuckoo's nest. In British prisons they used it on unruly inmates they called it the liquid cosh! It's chemical torture plane and simple. Well done for being here 👍🏻💖

  • @kreep182

    @kreep182

    2 жыл бұрын

    @@seekingthelight6401 Thank you brother!!! Its been almost 8 years since I got it. Cant tell the exact day or even come close. For all intents and pyrposes I died at the age of 25, and got ressurected at 34. I have no recollection of the first 4 years thats for sure. Its like 4-8 years have been taken away from me, and I cant get them back. Its my responsibility to make the rest count, and Ill definitely do my best. Thank you so much again for your nice words, and I hope you reach the light. Keep on fighting brother.

  • @seekingthelight6401

    @seekingthelight6401

    2 жыл бұрын

    @@kreep182 God bless you Mo I thought I had it bad! 8 months maybe. Every seconds a minute every hours a day and every day's a month. I thought God was punishing me until I researched common side effects of the old antibpsychotics haleperadol etc. It's chemical torture as far as I'm concerned by big pharma, they disgust me!!!! I don't know how you took it for so long!!! Your an AMAZING MAN! Yes brother you live every day like your king of the world because you are! Don't know about you but I'd of danced through a mine feild rather than suffer a month of that! I'm bipolar and EVERY Time I meet a nurse or a psychiatrist I have to explain what it is! I made laminated posters for all the nurses offices, a picture of a man trying to claw out his guts and his brain but they always lost them. We are truly brothers united by insufferable torture! God bless you my friend 🙏❤️

  • @kreep182

    @kreep182

    2 жыл бұрын

    @@seekingthelight6401 Im so humbled by your comment. Literally only someone who went through this can imagine how its like. And there isnt just one severity level either. You can have it as low as feeling immense agitation and minor twitches in your legs, or as bad as literally having actual seizures, and being burned alive. Unfortunately for me it was the latter. It took me four years to be able to finally feel just a tiny smidge of comfort while sitting down. Its like I stood up, and was prohibited from resting for four...and the pain is indescribable. I got up every morning, and fantasized about the time I could back to bed. There are truely horrible things in this life, and Akathesia ia definitely at the top of the list. I think it might come second to being roasted to death, and atleats thats relatively a lot quicker. I can go on for days about it. One thing for sure is, I am much stronger, and wiser because of it.. but my innocence is long gone now knowing that such a thinf even exists. Thank you man...truely thank you!!!

  • @choochootest
    @choochootest6 жыл бұрын

    Akathisia was, by far, the single worst and most torturing experience of my whole life. I feel that not only is there a lack of awareness about the disorder in general, but a lack of awareness for how wide the scale of severity is and the tardive nature of it for some unfortunate people. There are many for whom it is merely a major annoyance or it resolves within days or weeks, and this is resulting in the dismissal of people who recount being traumatized to the point of foot injuries (from pacing) and even suicide. Akathisia somehow lasted 6 months for me from a single dose of d2 antagonist and no medical professional would acknowledge my suffering. I made my only suicide attempt. It changed my views. I now firmly believe that akathisia is the single biggest mechanism behind the administration of d2 antagonists (and ssris) and suicide.

  • @cellogirl11rw55

    @cellogirl11rw55

    6 жыл бұрын

    Abby Warden I haven't been diagnosed with akathisia, but, I do have Restless Leg Syndrome, and I am very fidgety. I usually need to either chew gum or have something to play with in my hands when I have to sit still. Sometimes, it bothers me so much that I get agitated and have to walk around a bit, but, I must say that I have experienced far worse things than this.

  • @jimmiemclovin

    @jimmiemclovin

    6 жыл бұрын

    I understand what you go through, I've had it since 2014. Controlled with opiates in the day, benzos and other meds at night. It wakes me up in the morning and for me it's perpetual. Only my neurologist was empathetic to my condition. The longest I've gone with no medication was five days and that is a long long time when every lonely moment seems like an eternity. Suicidal ideations are certainly a reality because it's sooooo excruciating, it's hard to put into words, and the medical professionals stare right through you when you try to have a conversation about it. I hope you are doing better. You are not alone. God bless.

  • @Billythakid1221

    @Billythakid1221

    5 жыл бұрын

    I belive that happened to me when I was taking abilfy one time I didn’t know what was causing it but I feel you about your only suicide attempt from it I have no idea how anyone could endure it it lasted ten days for me was drifting in and out of sleep couldn’t sleep for 10 days was rolling around in public because could not stop moving I was thinking in my head this is what happened to people when they kill themselfs sometimes I can’t belive I made it through it

  • @THXx1138

    @THXx1138

    4 жыл бұрын

    @@cellogirl11rw55 That isn't akathisia then. There is nothing more torturous than akathisia. Anyone who experiences it would never be able to say they had experienced far worse things.

  • @toreschanke4086

    @toreschanke4086

    4 жыл бұрын

    I think it is extremely unpleasant, to say the least, but I assume that people who have it in reaction to drugs, would just stop using those drugs, rather than kill themselves. It's such a messy thing! Even, if I have been having a hard time, know and then, and even been thinking a lot about taking my life, it would be such a shame to be that coward! I was rarely afraid to die, as such, but I assume that to live until you just can't make it any more, or find a greater cause, for a sacrifice, is appropriate, not just experiencing a part of hell! I don't think I've been afraid of dying, but I don't think I want to make myself look silly! 😋

  • @ChannelingByChantal
    @ChannelingByChantal3 жыл бұрын

    My best friend got it. She was dying. She too describes it as hell. There NEEDS to be more awareness of this.

  • @dibti0
    @dibti06 жыл бұрын

    I had akathisia (SSRI-induced), it was hellish. It was in my whole body, including my neck. I didn't know what was going on. I ended up going to the hospital via ambulance. They gave me klonopin, which I resent heavily...that was three years ago and I still am having trouble going off of the klonopin. I've managed to lower my dose but the withdrawal symptoms are terrifying.

  • @cellogirl11rw55

    @cellogirl11rw55

    6 жыл бұрын

    I got off of it by cutting my doses by 25% every two weeks.

  • @j.a.carter-winward5534

    @j.a.carter-winward5534

    5 жыл бұрын

    The Inner Compass Initiative is a community that founded The Withdrawal Project. They helped me come down on benzos tremendously. They have a lot of resources for how to help yourself through slow, steady titration. I wish you way more than luck.

  • @wdtony

    @wdtony

    5 жыл бұрын

    Kate Yes. The definition of an inability to sit still is nothing like what I experienced. Total hell on earth, screaming, crying, writhing in pain. Whole body, I think driving nails through my arms would have felt better. I had to constantly bite my fingers because the pain felt better than the intense internal tickling sensations.

  • @johnnybaby4036

    @johnnybaby4036

    2 жыл бұрын

    @@wdtony hey Tony, how are you feeling now?

  • @DavidWest2

    @DavidWest2

    10 ай бұрын

    Did you ever get off klonopin?

  • @AimeeJoshJensen
    @AimeeJoshJensen6 жыл бұрын

    It is pure torture. My poor husband has had it for over 4 years now. We run the "living with akathisia" support group on facebook. People are dying everyday from this side effect. It can happen with any medication! He shows on our youtube what it looks like and explains it really well. Akathisia can happen even with propolonol and beta blockers as well. It made my husbands akathisia so much worse when they gave him it.

  • @belinromero6577

    @belinromero6577

    5 жыл бұрын

    Did it go away aimee?I hope it did he suffered way too much

  • @jaydensanders9888

    @jaydensanders9888

    2 жыл бұрын

    Medical Marijuana is the way to go.

  • @christopherkleinbach5237
    @christopherkleinbach52373 жыл бұрын

    Could not stop moving felt like the worse feeling of my life.

  • @user-qy9ys7ux6v
    @user-qy9ys7ux6v4 жыл бұрын

    Who came here from JP interview?

  • @JEPETT8967
    @JEPETT89673 жыл бұрын

    I've felt this before. I hate trying to explain this to doctors and they look at you like your crazy.

  • @James-zp6gp

    @James-zp6gp

    2 жыл бұрын

    What’s your Instagram I need support

  • @freddyaltina2737
    @freddyaltina27376 жыл бұрын

    I’ve had akathisia a handful of times from compazine & similar drugs. It’s hell on earth! Now I know if it happens to me, I tell the ER to give me Benadryl and cogentin. After getting those 2 drugs I immediately felt soooo much better.

  • @garyburke5649

    @garyburke5649

    4 жыл бұрын

    Freddy Altina there are two really great feelings. One is when a fever breaks in the night and you sleep peacefully. The other is once that benedryl hits your veins. It is almost instantaneous.

  • @toddwilmer5079
    @toddwilmer50796 жыл бұрын

    akathisia for me was acute tension in my knees and thighs, i simply could not sit still. it made me terrified of anti-psychotics

  • @JohnRambo1947-July-6th

    @JohnRambo1947-July-6th

    3 жыл бұрын

    @Mark S wait, there is a way to stop akathisia that won't go away?

  • @sadcore327

    @sadcore327

    3 жыл бұрын

    Which website? So many are scams, it's great that you found one that wasn't.

  • @carly582

    @carly582

    3 жыл бұрын

    I hope you all got off anti psychotics

  • @severed111

    @severed111

    5 ай бұрын

    @@JohnRambo1947-July-6th There is, I thought it was abnormal for it to last so long, all I needed was benadryl 50mg x 2 given to me at the hospital and 2 more at home later and I was back to normal. I think if you wait on it too long is when it could last a long while, I didn't mess around, went to the ER after 2h30-3h of it happening.

  • @StanTheManOnFoeNem
    @StanTheManOnFoeNem2 жыл бұрын

    Great informational video. I am being treated for ADHD and Bipolar disorder and my doctor recently prescribed me Abilify and had told me to watch out for Akathisia.

  • @CaseySchneider

    @CaseySchneider

    Жыл бұрын

    I recently started on 2mg of Abilify and didn’t experience akathisia. After a week the psychiatrist upped the dose to 5mg. I noticed it the next day. At the time I didn’t even know what it was so a few days went by and let me tell you this shit is no joke. Feeling like you want to crawl out of your skin 24/7 and not being able to sit still is hell I’m not one for medication I don’t even take over-the-counter stuff if I don’t have to. I think I may be sensitive to most things, but this seems to give me all kinds of symptoms. Everybody is different, just sharing my experience

  • @TheAdventureMentor
    @TheAdventureMentor4 жыл бұрын

    I experienced akathisia after receiving compazine with a migraine cocktail. Let me just say, it was the worst thing I've ever experienced. Literally felt like I would bust out of my body if I didn't keep moving accompanied with this impending sense of doom and no way out. Pure panick. For some one who prides themselves on being very calm, cool, and collected, I felt very much out of controlled and off the rails. Ativan helped for 5 minutes, but the symptoms lasted for 3 days, and I still get a hint of the feeling when I'm in stressful situations.

  • @OrlandoAponte

    @OrlandoAponte

    2 жыл бұрын

    Same exact thing happened to me from a migraine cocktail with Compazine. Thankfully, mine only lasted for about 12 hours.

  • @3Druzilla

    @3Druzilla

    Жыл бұрын

    I also had akathisia from compazine. Pure torture.

  • @severed111

    @severed111

    5 ай бұрын

    @@3Druzilla Same, compazine scripted to me in pill form too, thankfully I didn't take much from the 15 or so tablets. I was there to get my Lyrica renewed, it was a pretty new med back then (2007) and the walk-in clinic doctor said "well, i'll let your own doctor do that when you see him take care of that for your trigeminal neuralgia, but I can help out right now with something else in the meantime." Effing Prochlorperazine, I'm glad I researched it before taking it, it scared the hell out of me since it was considered an antipsychotic, a weak one, but still, can't imagine what people who get it from thorazine itself must get like." Thankfully I got to the ER very quickly when it started and bam, same doctor and he gave me 4 capsules of 50mg benadryl, told me to take 2 right now and 2 5 hours later and it was gone, but just thinking about it brings me anxiety, so I'll stop yapping about it now.

  • @decemberdarling6058
    @decemberdarling60585 жыл бұрын

    I got akathisia first from diphenhydramine and then later on from taking latuda. Complete and utter hell on earth. I am still in recovery and have PTSD from it. Never taking meds again if I can help it.

  • @Hitit123

    @Hitit123

    4 жыл бұрын

    I'm now 12 months post Klonopin withdrawl after a grueling fifteen month taper. I would far prefer death over ever taking another RX prescription drug ever again!

  • @TammyLP

    @TammyLP

    4 жыл бұрын

    Wow from Diphenhydramine? First time I hear this! When my migraines hit and make my anxiety hit the roof I usually have to go to the ER and they always try a large dosage of Diphenhydramine to start off my Migraine Cocktail! I’m going to have to tell my husband to watch out for this especially when if that doesn’t work they give me a bolus of Haldol and that in itself gives me Tardive Dyskinesia so bad that it makes feel like I am having another stroke!! Thanks

  • @ChiefQueef_

    @ChiefQueef_

    4 жыл бұрын

    Did you get it directly as a side effect of DPH or due to withdrawal?

  • @TammyLP

    @TammyLP

    3 жыл бұрын

    Mark S Yes sir, they tried everything in the book with me... until they tried a bolus of Diphenhydramine followed by my Migraine Cocktail Protocol. When it gets that bad, and they have to resort to that, I am unfortunately required to stay in the hospital. The longest hospital stay with my Migraine has 10 days and I unfortunately have tried Zolpidem and that is another medication that gives me Tardive Dyskinesia so so bad!

  • @dolphinmeat
    @dolphinmeat2 жыл бұрын

    Had it for 6 months. Was ready to end it,. Had the date picked when the family was going to be away. I was looking forward to that date. Thank god for the community. Mine was dopamine related , got off latuda and on pramiprexole. Took the akthesia away had withdrawals but it was manageable. Bya stroke of luck was able to figure out i had untreated ADHD. Started Adderall and the relief was instant, i wept with joy it was so immense. I think many adults misdiagnosed with bi-polar when in actuality they have untreated ADHD.

  • @eddiegarciajr6653
    @eddiegarciajr66535 жыл бұрын

    I still have this 17 months off of Xanax & alcohol abuse... How I wish I could go back in time and never taken that first dose.

  • @Hitit123

    @Hitit123

    4 жыл бұрын

    Eddie, can you kindly explain your symptoms to me? I'm currently 12 months post Klonopin withdrawl after a grueling fifteen month taper.

  • @therdgn8tv

    @therdgn8tv

    4 жыл бұрын

    I’m 18 months off Xanax. Having some really strange things. Hard to describe. Anyone else?

  • @melissab4710

    @melissab4710

    4 жыл бұрын

    Kristin Saunders Are you experiencing Akithesia?

  • @therdgn8tv

    @therdgn8tv

    4 жыл бұрын

    B B I believe yes. Lots of inner vibrations.

  • @0827tt5xc

    @0827tt5xc

    4 ай бұрын

    Has it gone away for you? I’m struggling with this

  • @heidimedel
    @heidimedel4 жыл бұрын

    I had raging akathisia and aphasia by the time I was done with rx meds. It was literally maddening. I almost had myself committed. Thankfully I have gotten most of those symptoms down to a dull roar. I don't wish that hell on anyone. It feels like being imprisoned in your own mind. Even worse with aphasia because then you forget words and get them jumbled. I was basically like a psychotic dementia patient.

  • @user-hq3vr7pi9q

    @user-hq3vr7pi9q

    2 жыл бұрын

    I have akathisia now, what should I do? third day so how do I sleep?

  • @heidimedel

    @heidimedel

    2 жыл бұрын

    @@user-hq3vr7pi9q there's no one answer to that. Basically I had to heal my whole body. Especially my gut. The gut is called the 2nd brain as it has the same receptors as the brain and feeds the brain via the vagus nerve/spinal cord. It took many lifestyle changes for me. I needed to balance my severe nutrient deficiencies and detox my body. Then I implemented things into my life that heal the whole body. I would suggest finding a couple of akathisia support groups. There are several on fb that taught me a lot.

  • @obsoleteprofessor2034
    @obsoleteprofessor20343 ай бұрын

    Parkinson's sufferers and caregivers...heads up! My wife has Parkinson's and I've dosed her meds for 10 years. She went for a year of uneasiness, hallucinations and violent kicking until I tapered back her carbidopa levadopa from large 4hr doses to much small hourly doses. Her last big dose was at 11pm and she would kick for an hour at 1am (withdrawal?). I now taper her single 25/100 to 3/4, 1/2 then 1/4 pill the last 3 hrs of the evening...no more pills till 7am. She now has little to no kicking. The goal now is to continue exercise and home cooking organic food where possible and reduce/shave the pills to see if restlessness/kicking reduce further.

  • @bubblegum9982
    @bubblegum99823 ай бұрын

    I was under pysch treatment and I took Abilify and got Akathisia. I had to stand up during therapy, every break I got I had to keep walking. I wouldn't wish it on my worst enemy. Thank god it went away after a few days when my pysciatrist took me off it.

  • @KooKeeBoutique
    @KooKeeBoutique2 жыл бұрын

    I’ve had this multiple times, especially during psychiatric stays, and I’d say I feel like I need to run head first into a wall. Like my bones need to get out of my skin and it was ignored every time. I have had EPS to amitriptyline and same night i could not sleep because I had what felt like restless leg all over my body, especially in my lungs and the doctor told me to just stop taking it. Within 24 hours I had an ambulance because I started having a severe dystonic reaction in my face, neck and upper torso which quickly turned into a severe attack of vocal and motor tics. I feel if the akathisia was addressed in the first place it would not have gotten so bad. But the doctor only listened to the “I can’t cope with the side effects as it’s like torture”

  • @phantompunchmotorizedbikes1624
    @phantompunchmotorizedbikes16243 жыл бұрын

    I had it 3-4 years I still dont know how i survived it. Wrecked my body and brain

  • @thunderitout
    @thunderitout3 жыл бұрын

    I've had it. It certainly did not make me itch. I just vibrated in bed. Then would get up and pace the floor in utter terror, i couldn't find any relief. My anxiety was through the roof. Any noise would startle me into a deeper panic. Just looking at another person would make me shake worse. It was claustrophobia magnified by a thousand. It finally went away. Thank God.

  • @ashleyduarte1625

    @ashleyduarte1625

    3 жыл бұрын

    How long did it take to go away

  • @yasminmariska9410

    @yasminmariska9410

    8 ай бұрын

    Im having this now. It started yesterday after I took Latuda 40mg. Before this I was on 20mg. The increase must have triggered this. May I know how long it lasted for you cause I am still jittery

  • @elizabethCorkins83
    @elizabethCorkins837 жыл бұрын

    Omg it's horrible... So bad 😔 I had it in on & off 2009-2010 then bad in 2011 & almost died! I still have permanent damage for the rest of my life.

  • @DevilMaster

    @DevilMaster

    7 жыл бұрын

    You almost died and you have permanent damage?! :-O I thought my case of akathisia in 2012 had been bad, but how bad was yours? I had it after being prescribed aripiprazole to control bouts of anger. Shortly after taking the first pill, it felt like the temperature had lowered, and I was shivering. In the evening, I felt like I was coming down with a fever, although my temperature was normal. The morning after, I started feeling a number of things. First, I was constantly dizzy. Second, it felt like the world had become somehow unreal, because all my perceptions were weaker than normal. Third, I almost didn't care about anything. You know how people say "without a care in the world" like it was a state to aspire to? That's so wrong. I had put on mismatched socks, but I didn't care. On the way to the market, someone commented "nice socks" and I didn't care. I felt dizzy while walking, and I didn't care. Back home, when I was moving my PS3 from the living room to my room, my mother said "Careful, the joypad's falling down", I saw the joypad fall down and I didn't care. That evening was when akathisia started. I couldn't sit still, I couldn't stand still, and it wasn't just my legs, my whole body was affected. I was constantly fidgeting, standing up, sitting down, moving my arms, writhing with my torso. The third day, I still had it. I somehow managed to drive to my aunt's house and fix her computer, but I still felt that burning, pulling sensation in my muscles and joints that compelled me to constantly make uncoordinate movements. I was conscious of those movements, I remember talking to my aunt and constantly moving like that, hoping she wouldn't think I was developing Parkinson's. Then I laid down on my aunt's couch (I was still dizzy) and called my doctor. He told me to stop taking Abilify immediately. I did, and akathisia resolved in a day or two.

  • @nicklurch9773

    @nicklurch9773

    6 жыл бұрын

    welcome to the club

  • @choochootest

    @choochootest

    6 жыл бұрын

    sounds similar to me, may i ask what permanent damage ? x

  • @wdtony

    @wdtony

    5 жыл бұрын

    Elizabeth Corkins I have permanent brain damage from it as well.

  • @wdtony

    @wdtony

    5 жыл бұрын

    cellogirl11RW That’s what I had- serotonin syndrome. 106 fever for 3 days. Permanent brain damage now.

  • @jixie_93
    @jixie_932 жыл бұрын

    I've just realized that this is what I've been struggling with for the past 5 years...I've tried to explain it to a counselor, to my doctor and had to use labels they could understand like 'anxiety', 'panic attacks', 'insomnia', 'depression', etc and always add that it's physical and it's in my nervous system and I JUST CAN'T DESCRIBE it..like being boiled in hot oil..they just don't get it and blame me cause I won't take the antidepressants, etc...and always the threat of forced hospitalization if I feel suicidal... I was on a plethora of psych drugs after a horrific and prolonged period of trauma 10 years ago and had a breakdown of sorts and was hospitalized. I weaned myself of of the drugs without any knowledge or guidance, perhaps too quickly? I started self medicating with heavy pot smoking for about 2 years and stopped that completely and abruptly, no weaning. Enter..terrible insomnia and another antidepressant for the side effect of sleep? Suicidal thoughts and worse insomnia...hospital...horrible and traumatizing experience about 4 other drugs (can't remember the names except quetiapine was one), doctors would NOT listen to me that the drugs were destroying my brain, I couldn't string 2 thoughts together .."just give it time", 'double the dose'..(.GOD, I hate them all when I look back)...sooo..here I am and feeling damaged and so alone and finally read about akathisia and realize that this is what is going on with me...I have tried so many things and blamed myself and felt such shame...I wouldn't wish this on my worst enemy but I am just so glad I'm not alone...thank you so much everybody for sharing. You're all so brave and amazing... God help us all...🙏🙏🙏❤

  • @jurachi1180

    @jurachi1180

    5 ай бұрын

    Where are you now? Is it gone?

  • @jixie_93

    @jixie_93

    5 ай бұрын

    No it's not gone...I stay alive with the help of Kratom, the only thing that eases the horror somewhat and inconsistently...it can be triggered with full-blown vengeance by anything new in my diet for instance. I recently had 2 doses of Essiac tea and got thrown into a wave of Akathisia horror for 24 hours that Kratom couldn't touch...it felt like I was being burned alive...I'm in a chat group with people who are supporting each other to end their/our lives...in the past 4 months, two women, one with 4 young children, have died by suicide and two more plan to die tonight...it's tragic and heartbreaking 😭 Thank you for asking 🙏

  • @42468

    @42468

    6 күн бұрын

    @@jixie_93 many report symptom improvement with active B6 (sold as P5P) supplementation when their akathisia is induced by antipsychotics. Hope you are managing well; I’m glad to hear that kratom helps

  • @RadagonTheRed
    @RadagonTheRed6 жыл бұрын

    Phenergan (promethazine) gives me severe akathisia and it’s one of the most horrible things I’ve ever felt.

  • @donnabittner69

    @donnabittner69

    3 жыл бұрын

    Ginger, this happened to me in the hospital with Phenergan for a bleeding ulcer. Did you feel like bugs were crawling in your skin? It happened hours after an I V drip.

  • @heyseed2292

    @heyseed2292

    2 жыл бұрын

    I am so sorry for both of you 😢 I was given IV Compazine (prochlorperazine) when I was in the emergency room for extreme stomach pain/nausea. It was PURE HELL just an indescribable feeling, like they might as well have shot me up with 100% unadulterated Extra Strength ANXIETY omg it was horrible! The feeling of restlessness was unbelievable constantly moving, rocking, shaking and you can Never EVER get comfortable in your own skin. I’m genuinely surprised more people don’t know about this drug and akathisia in general

  • @RadagonTheRed

    @RadagonTheRed

    2 жыл бұрын

    @@heyseed2292 Yeah that’s exactly what it was like for me. It’s pure hell on earth.

  • @Transkohmer

    @Transkohmer

    2 жыл бұрын

    Me too, yesterday night happened after taking Metoclopramide

  • @opiumbrella1367
    @opiumbrella13676 жыл бұрын

    I got it from both reglan and compazine. I was ill for a long time before they figured out my immune system was destroying my body. In that time I became addicted to opiates and then heroin. The reaction to those meds that is so hard to describe is exactly like withdrawal from heroin. Or part of it. The panic and desperation and inability to sit still. Crawling skin and the constant jitter in your muscles. It is horrible.

  • @raktimahujuri4696

    @raktimahujuri4696

    3 жыл бұрын

    Hmm I have Akathisia since I was born and I still have it ._.

  • @merlin2k6
    @merlin2k65 жыл бұрын

    I experienced it for about 24 hours as a side effect of metoclopramide and it was probably the worst 24 hours of my life. Constantly feeling the urge to get up and walk around, do some starjumps, sit back down again for a couple of minutes then repeat from the top. My heart goes out to anyone who has to deal with it chronically, I can only begin to imagine the hell your life has become.

  • @wilmdrdo1228

    @wilmdrdo1228

    4 жыл бұрын

    This happened to me too.

  • @haninsaleh4649

    @haninsaleh4649

    2 ай бұрын

    Omg me too. I took it for my nausea and I would rather throw up a million times for the rest of my life than ever feel that again

  • @sambakerman9406
    @sambakerman94063 жыл бұрын

    I had severe akathesia, whilst in a psychiatric ward run by incompetent people. As an engineer, I have to say Gotta love psychiatry... Wish my job was a case of well that didn't work guess well try another. If your job ever requires you to say that, you should not be paid as a 'specialist'

  • @beckysasso5059
    @beckysasso50592 жыл бұрын

    For those of you who have experienced Akethesia- please let me know if you suffer from Restless Leg Syndrome. I have suffered with RLS since I first experienced Akethesia when I was 12. Both symptoms are under-studied and poorly understood. I have experienced Akethesia each time I have taken the drugs below (I have only taken them once because of that reason): -Metpclopramide/Reglan -Prochlorperazine/Phenergan -Promethazine/Compazine -Mirtazapine/Remeron It’s a shame how the gentleman in the video kind of diminishes the symptoms of Akethesia. I can’t even explain to you how horrid it is. Hell on earth that lasted for a couple hours. It’s like your body is on fire (but mentally) and you’re trying to get the fire off but you can’t. I can’t emphasize how much it made me want to commit suicide. It blows my mind how that side effect literally MAKES you suicidal. Just the thought of how powerful these pharmaceuticals are is terrifying. The next couple days after I had those side effects, I had uncontrollable twitching of the limbs and face muscles- including agitation.

  • @katiebarker5540

    @katiebarker5540

    2 жыл бұрын

    I had a compazine injection just over 2 months ago. I am still feeling the effects. I am able to sleep a little better over the last couple weeks, but I still have muscle twitches/spasms all over. They are worse when relaxed. My limbs don’t move with the twitching it’s just usually like a quick bump or contraction of the muscle. Hard to explain.

  • @edwelndiobel1567
    @edwelndiobel15672 жыл бұрын

    There are worse things than death. This is one of them if not the biggest one.

  • @federalbureauofnvestigatio6401
    @federalbureauofnvestigatio64014 жыл бұрын

    I had this symptom when i started abilify, these 2 days were the worst of my life. Nothing can describe the feeling of terror, i was either frozen on my bed or walking around aimlessly

  • @extrememoments2748

    @extrememoments2748

    3 жыл бұрын

    Mine was same... Two days in hell

  • @kdchmln
    @kdchmln3 жыл бұрын

    my best advice is if a medication is giving you akathisia, taper off of it as fast as is safe to do so and try something else instead. it's among the worst sensations a human can experience. clinically, you're supposed to see if it goes away after a bit and you can tolerate whatever med gives it to you, but it's truly unbearable and not worth it for me. i got it from abilify and from latuda. beta blockers helped a bit but didn't make it go away.

  • @douglasunruh256
    @douglasunruh2565 ай бұрын

    Like getting severly bad news. Shocking painful news. Like your 18 and your girlfriend that you love is sleeping with someone that you know. Or maybe the death of a child. The shock feeling goes thru your body, and doesnt go away.

  • @paulrTX
    @paulrTX5 ай бұрын

    As someone who had really bad episodes due to side effects from medications to help me with my chronic insomnia (e.g., quetiapine, promethazine, trazodone), best way I can describe it is feeling like you have a live mouse or a snake constantly moving up and down inside your body and tingling your internal organs and your spine. People often talk about how it affects the legs, but to me, the worst sensations were in my chest. I felt like I was about to drown in my own fluids and almost had a panic attack a few times. On some occasions, it got so bad that I had to get up in the middle of the night and start doing burpees to see if I could get a mild relief.

  • @blxckleppxrd
    @blxckleppxrd2 жыл бұрын

    i just found out what this was and the mind blowing effect of understanding that theres actual descriptions of something i could never describe other than "ive just gotta fucking move" i didnt know where or why but i had to fucking move

  • @whit350z2
    @whit350z24 жыл бұрын

    Is it possible to have had this for a very long time? I have also always had these dreams where I am so uncomfortable I am no longer human but some Type of plastic shape with corners flipping on a hard floor that has no give...lol there is no other way to explain that

  • @gabrielfranciscorp
    @gabrielfranciscorp Жыл бұрын

    I felt like running and running and running, albeit knowing that it also involved my mind. I wanted to run, or rather drive in maximum speed until I crashed and fell into oblivion - until I die, but not even death, as I thought, would shake that restlessness off of me. I just couldn't get out in any place of reality. To say it's terrible is an euphemism.

  • @samschramm8254
    @samschramm82544 жыл бұрын

    Currently dealing with Akathisia, have been for a year and a half, just now figured out what it was. Took this long. It’s the worst thing I have personally ever experienced.

  • @particles343

    @particles343

    4 жыл бұрын

    I am so sorry. With a lot of these psychiatrists there is no follow-up because it's 1 doctor for like a thousand people. I had akathisia from abilify and I had to wean down. I had to take 2 other drugs just to be able to sleep. It was hell.

  • @AshleyRossersmlybright

    @AshleyRossersmlybright

    Жыл бұрын

    Geezzzz and I'm on like 5 and dying. There's no way I could go that long. You're strong!!!

  • @logann8243
    @logann82436 жыл бұрын

    I'm starting to think the lexapro or something is causing this for me. Cause I can't sit still these days without moving or having to get up and move.

  • @belinromero6577

    @belinromero6577

    5 жыл бұрын

    Definitely

  • @alisaalisa2060

    @alisaalisa2060

    3 жыл бұрын

    For sure!

  • @particles343
    @particles3434 жыл бұрын

    Abilify gave me akathisia while I was taking it. It was literal hell. Like I was posessed by a ghost with fiery parkinsons then rolled around in fire ants.

  • @kfcmanager759

    @kfcmanager759

    2 жыл бұрын

    @Jüniver KD6-3.7 I'm going through it. This is hell on earth bro. It doesn't help that hospitals are overloaded right now

  • @Shekina-0

    @Shekina-0

    2 жыл бұрын

    How long did it take for yall to heal?

  • @MlkOfTheS1ren

    @MlkOfTheS1ren

    Жыл бұрын

    ​@@kfcmanager759how are you now?

  • @enterbalak
    @enterbalak3 жыл бұрын

    It took 6-8 months to get rid of my own Akathisia, it's a living hell and months after I still don't feel the same.

  • @elizjawebb6310

    @elizjawebb6310

    Жыл бұрын

    How are you doing now friend? I’m 3 months in and this hell…

  • @enterbalak

    @enterbalak

    Жыл бұрын

    @@elizjawebb6310 look, I'm doing much better now... maybe try ECT, I've done 10 treatments and I'm doing pretty good at the moment.. hold in there, cold Turkey all meds, drink alcohol and smoke weed, do anything to stop that inner hell.

  • @enterbalak

    @enterbalak

    Жыл бұрын

    @tyrel Paliperidone

  • @tescobakery1927
    @tescobakery19274 жыл бұрын

    I was feeling nauseous so I decided to take some Metoclopramide. I then felt restless and very anxious, I wanted to kill myself because the feeling was so unbearable. Next day I googled the substance, and what do you, it said "may cause akathisia". You need to put that shit on the cover cuz I literally almost killed myself

  • @skined6326
    @skined63265 жыл бұрын

    Ive tried a lot of antipsychotics and a lot of them gave me akithisia. It’s very uncomfortable. I’m on benztropine for it.

  • @phiwei3734
    @phiwei37343 жыл бұрын

    It is one of the worst things I've ever felt and the fact that it is so bizarre and different makes it so hard to even describe let a lone go about attempting to relieve it if even possible. It's pure misery.

  • @Wiggyify
    @Wiggyify7 жыл бұрын

    Interesting..I have not really thought about it, but how does norepinephrine blockade resolve a dopamine blockade condition?

  • @cindyosei3691

    @cindyosei3691

    3 жыл бұрын

    It’s theorized that akathisia also involves excess norepinephrine. Essentially it’s like a store selling a specific product, and when that product is banned or blocked ( dopamine), the store has to figure out how to convert the resources of that banned product into another product that is not banned. In this case dopamine gets converted into norepinephrine, which has a role in akathisia

  • @goodmaro
    @goodmaro3 жыл бұрын

    Interesting! I had a lot of restlessness for about 2 days on abrupt cessation after a month of tramadol, though I'd've never thought to have labeled it akathisia. The way they're labeling akathisia now (according to what I'm seeing in a KZread search) seems to be broader than when I was in med school in the late 1970s. At that time, the impression I got of akathisia was that it was not only not PRIMARILY of the lower body, but that it was primarily central -- writhing at the shoulders and neck. This was probably because the context in which I was taught of akathisia was as an especially florid manifestation of tardive dyskinesia, which was primarily tongue, lips, jaw, and occasionally shoulder movement.

  • @goodmaro

    @goodmaro

    3 жыл бұрын

    By the way, the restlessness from tramadol rebound was not only physical but mental, the latter lasting maybe 3 days. Lots of introspection and emotional reactions to my thoughts -- an exaggeration of tendencies I already had. And it was INTERESTING; I might even describe it as fun. As long as my lifestyle permitted it, it was not unpleasant but a kind of "trip" that I might like to repeat if ever the circumstances were favorable. Other people have described tramadol withdrawal as horrible, but it didn't affect me so adversely. But the physical manifestations were not so severe as to "take over" and keep me from ordinary voluntary activity.

  • @thatgirlicy
    @thatgirlicy2 жыл бұрын

    Love this!! I’ve had it from a headache cocktail! I wanted to just scream!! Compazine, reglan, Benedryl, and toradol! I’d rather die than ever feel that again!! No no no no!! I couldn’t hardly think or speak! I wanted to just run from my body!!

  • @chriswright5353
    @chriswright53534 жыл бұрын

    I was suffering with nausea and was prescribed metoclopramide to stop it and it worked. Then one day while out shopping I had this horrendous feeling come over me and it was a feeling I will never forget. I had this urge to move my body and it was so bad I felt like I wanted to die. I would move but only very slowly practically shuffling along. I couldn't stop as the urge to move was overwhelming. I started to panic and decided I needed to get home so I could take some meds to calm my body down. The journey was the most uncomfortable I've ever been. I was thinking suicide at one point because of this sensation I was feeling. Trust me I won't take any anti nausea meds ever again. Just thinking about it makes feel uncomfortable. Wouldn't wish it on anybody.

  • @tescobakery1927

    @tescobakery1927

    4 жыл бұрын

    Eyyy I have also had metoclopramide induced akathisia. It felt like smoking salvia except more sober. 2/10 would not recommend for beginners

  • @crystalidx
    @crystalidx3 жыл бұрын

    Imagine your whole body twisting and turning as if it was ripping all the muscles in your body.

  • @theanxiousbench
    @theanxiousbench2 жыл бұрын

    I had a very terrible bout with Akithesia. It came when I suddenly stopped taking kratom. I writhed in unbearable pain for 3 weeks. The utter terror, and crazy uncomfortable feeling was like being continually shocked with electricity... I thought I was dying.

  • @barryconde419
    @barryconde4196 жыл бұрын

    I get akathisa from anti-nausea medication and antihistamines for some reason. I feel severely agitated and irritable and I have to lie in bed constantly moving my legs and body to help relieve it. I first experienced it when I came out of surgery and they gave me strong anti-nausea medication, it was the worst I had ever had it, I was crying out in agony and violently moving my body to try and relive it, I even had sucidal thoughts because I wanted it to end so badly. Luckily the doctor knew what it was and gave me a high dose of Valium and took me off the anti-nausea which did the trick. Fortunately since then my akathisa symptoms when I need to take an antihistamine have only been moderate in intensity but still very unpleasant.

  • @riyazsheikh1912
    @riyazsheikh19122 жыл бұрын

    cool vid doc

  • @prettyricky9676
    @prettyricky96764 жыл бұрын

    Have had it since puberty and the only thing that makes it go away is Marijuana, benzodiazepines or opiates. I've been so frustrated through the years with people not believing me, calling me an addict. Thankfully im healthy and happy now with a medical card and free of drugs and alcohol. Roughly 24 hours without thc intake it begins, unable to sleep, clenching, sweating, aggression, confusion, extreme salivation, gag swallowing water at final stage. I'm 34.

  • @mikek17
    @mikek176 жыл бұрын

    I had Akathisia caused by antipsychotic drugs three times, doc told me to take medicine before I went to bed so I was up for hours tossing and turning, unable to get to sleep, the first time it happened I had no clue what was going on and was in utter panic, I felt like ripping my scalp off of my head, thankfully I told the doctor and he said "that sounds like akathisia" and we worked it out

  • @britjamison5944

    @britjamison5944

    5 жыл бұрын

    mikek17 how did you treat it? i'm really struggling right now

  • @GeraltOfRivia99

    @GeraltOfRivia99

    4 жыл бұрын

    @@britjamison5944 im struggling to really really bad. hey op can you tell us what u did????

  • @melissab4710

    @melissab4710

    4 жыл бұрын

    Linuxx I know EXACTLY what you are going through. If you need to talk I’m happy to listen. Do you know what triggered it for you?

  • @GeraltOfRivia99

    @GeraltOfRivia99

    4 жыл бұрын

    @@melissab4710 ty for reply. i remember it started about 2 years ago. it is lengthy and confusing story if you like to hear it?

  • @Slidehhy

    @Slidehhy

    7 ай бұрын

    @@melissab4710 how are you now

  • @marshallsweatherhiking1820
    @marshallsweatherhiking18209 ай бұрын

    I do not know for sure if it is a mild chronic form of akathisia, but I often experience what I would call a “pre-tremor” type of “muscle itch”. The sensation is sometimes, but not always, accompanied by a tremor. Its also most noticeable on the left half of my body which is the non-dominant side. I believe it is related to akathisia because the drugs that can cause akathisia worsen the sensation. I have a theory that the sensation is associated with whatever nerve signal accompanies a “delayed reflex”. Its similar to a sneeze coming on in that the reflexive action can be voluntarily triggered but also happens involuntarily. Whatever the sensation is, the reflexive movement would normally provide immediate relief. With akathisia though, the sensation occurs without a target reflexive action, so there is no way to relieve it. I would describe it as my whole body wanting to sneeze but can’t. Its like the sensation of a sneeze coming on, but its in the limbs rather than the nose.

  • @goodnessmercybegood2all450
    @goodnessmercybegood2all4502 жыл бұрын

    Smart guy With smart questions

  • @cat52
    @cat526 жыл бұрын

    I have had this more than once from drug withdrawal (I couldn't get my meds on more than one occassion and went 3 days without one time), I can tell you it is so awful and so hard to describe. Its like your nerve endings have lighted up but not in a pain way but a nervous sytem way where you have to move constantly to get relief to calm the nerves. You can't think straight it is that agonizing. It's constant. I had a doctor in the ER give me a shot of the propolanlol and a small shot of ativan and that combo made it stop immediately. I cant imagine someone having this condition permanently and can understand why one would take their life if they could not get relief. To many people it looks like a psychological condition but its not. Its physical.

  • @nickhidalgo5154

    @nickhidalgo5154

    4 жыл бұрын

    I have it idk what to do

  • @nickhidalgo5154

    @nickhidalgo5154

    4 жыл бұрын

    @@tylerlawson7674 why brother

  • @nickhidalgo5154

    @nickhidalgo5154

    4 жыл бұрын

    @@tylerlawson7674 dude I just found out I've been on so many psych meds

  • @nickhidalgo5154

    @nickhidalgo5154

    4 жыл бұрын

    I throw up ever morning bad anxiety can never stop moving

  • @nickhidalgo5154

    @nickhidalgo5154

    4 жыл бұрын

    Dude it's so fucked been suffering 11 years

  • @mo87m
    @mo87m8 ай бұрын

    With me I found that Mirtazapine has helped with the physical restlessness but I am still locked in this mental hell whereby I constantly feel this intense feeling of unease/nervousness/dread. I am able to sleep a few hours during the night but despite feeling intense fatigue during the day I am completely unable to take a nap and I find myself in this constant state of hyperawareness. When I try to sleep during the day I immediately find myself being jolted awake just as i am about to fall asleep, with this overwhelming feeling of terror. I am going through this daily torture and all I do is count the hours down to night time so i can just sleep as I am unable to take a nap during the day. Can anyone relate to what I am going through as it is an indescribable hell, and I desperately need answers and advice on what to do?

  • @L-xj2xs

    @L-xj2xs

    2 ай бұрын

    Totally Relate! I've been going through it for more than 2 years. Constantly up moving and pacing about 20 hours a day. When I lay down, my legs and feet and pelvis won't stop moving. Completely drained and worn out but so hyper and agitated and every bit of it's so unreal. Everything's extremely intense and any noise or even things I do myself make me jump. Constant state of horrible anxiety and terrors. I know exactly what you mean by being jolted awake. I get about an hours sleep a day, and then I'm counting down the rest of the hours until I can try to sleep again. It's unbelievable, terror and torture out of the worst nightmare you could imagine, and only someone that's had this happen would understand what it's like. There isn't any way to describe it, and I can't believe something like this even exists. I hope you're still not going through this and if you aren't, is there anything you know of that helped you get better?

  • @abcd-om5wh
    @abcd-om5wh6 жыл бұрын

    Love his accent

  • @Bando-fx4mf
    @Bando-fx4mf3 жыл бұрын

    This just happened to me. I really felt like kilojoules my self at the time . I went to the hospital. They thought injwss just drug seeker 🤦‍♂️. It feels like rage to its the hardest shit to ever explain. At least this doctor has felt it before. It’s crazy how much shit doctors don’t know. If they don’t know they should do research or ask another colleague. Smh they thought I was just having a normal anxiety attack. I wouldn’t wish that feeling on anyone it’s insane. Literally feels like your going insane. And nobody believes what your feeling. They kept telling me to sit down. I couldn’t it made it worse I had to be moving. They discharged me with out doing anything just giving me some Tylenol smh. I wish I could have met a doctor like this who actually knows what your feeling to because his personal experience.

  • @glutamateglutamate5728

    @glutamateglutamate5728

    3 жыл бұрын

    5 mgs diazepam stopped it straight away.

  • @HomestarRunner20X6
    @HomestarRunner20X62 жыл бұрын

    Akathisia made me want to die. It was a side effect of Latuda. It's like being a tortured prisoner in your own body. You can't do anything but squirm and thrash. You want to rip your skin off. You can't sleep. You can't explain it to your loved ones. It's abject misery. I was histrionically crying out of frustration. It's a fate worse than death.

  • @nightynightshade

    @nightynightshade

    2 жыл бұрын

    I agree and it was latuda that did it to me too! They seriously need to make sure they tell patients about the symptom!

  • @alexmack416
    @alexmack416 Жыл бұрын

    where to watch the full speech?

  • @angryattackkittens1934
    @angryattackkittens19343 жыл бұрын

    I have it from my SSRI. The arm one is particularly uncomfortable. I don't get it all the time thankfully.

  • @misssofija6760
    @misssofija6760 Жыл бұрын

    The internal restlessness I felt from Latuda was by far the most horrible thing I have ever dealt with. Nothing soothed it. Even when it caused panic attacks, it never descalated after like normal panic attacks would where I felt calmer after. I just waited on the verge of the next one and it never stopped. It made me feel suicidal to know that when it peaked there was nothing in the world I could use to soothe it except to wait until the morning when the symptoms were less severe.

  • @Cos3D

    @Cos3D

    Жыл бұрын

    Fk this sounds like hell, iv been through this

  • @yasminmariska9410

    @yasminmariska9410

    8 ай бұрын

    I am on Latuda. At first I was on 20mg which recently increased to 40mg. The increase caused my restlessness which I believed to have been akathisia. It was hell not being able to sit still and wanting to get out of your skin and nothing makes you feel calm. Pacing yourself over and over and unable to rest. Absolute panic

  • @charronfamilyconnect
    @charronfamilyconnect5 жыл бұрын

    What is the best way to treat akathisia with the least likelihood of further side effects? Does anyone know? I ask because my son is suffering with it after being prescribed Abilify whichhe should have never been prescribed, and he completely tapered off within 2 weeks of using the drug due to extreme restless, and signs of Akathisia. The intensity is not as high now, but it still annoys him. Any one know good ways to treat this as natural as possible. i gave him some B6 and magnesium supplements, and is taking some Klonopin for now, ut wants to get off this before he is addicted. can anyone please help guide us. Thanks!

  • @Iva.the.Southern.Appalachian

    @Iva.the.Southern.Appalachian

    5 жыл бұрын

    If you figure anything out let me know! Abilify gave me akathisia really bad and I still have it with every AP that they put me on. I'm sorry your son is suffering from it. Have you called his Dr? They put me on an anti Parkinson drug to combat my akathisia that I take twice a day. Good luck!

  • @charronfamilyconnect

    @charronfamilyconnect

    5 жыл бұрын

    My son is completely off all anti-psychotics, and his Akathisia has now gone away thank god. Right now they put him on Remeron so he can get some sleep as his current problem is insomia.

  • @Iva.the.Southern.Appalachian

    @Iva.the.Southern.Appalachian

    5 жыл бұрын

    @@charronfamilyconnect I'm having sleep problems currently also.

  • @purplephantom9
    @purplephantom93 жыл бұрын

    i had it last night after increasing my latuda dose and it was absolutely unbearable. I couldn’t stop crying and wailing over nothing, it just felt like the walls were closing up one me. I couldn’t watch anything to distract myself because the pain was just too much. idk if this is just a me thing but my vaginal area had the most restlessness and ya know i can’t do a lot about that. i ended up taking a LOT of klonopin because i was so desperate. eventually i completely passed out. i want to get better but this is one of those side effects i just cannot deal with. if i had a gun near me i would have shot my head off.

  • @sunny4lady

    @sunny4lady

    3 жыл бұрын

    the same thing happened to me with latuda. Worst feeling in the entire world. I too was suicidal when I had akathesia. Just AWFUL! Abilify also gives terrible akathisia :-(

  • @nightynightshade

    @nightynightshade

    2 жыл бұрын

    Same! It was latuda! I was in sheer panic and I couldn’t breathe. I seriously wanted to die so it would stop.

  • @thelegendgamer33
    @thelegendgamer332 жыл бұрын

    I have ADHD and get similar symptoms though it's not quite akithiska. I know exactly what this is like though and I have it 24/7. When I take ritalin it calms it down becomes it's a dopamine agonist but you feel like you want to tear your spine out. Is there anyone else with ADHD that experiences something like this or am I the only one?

  • @anotheroned

    @anotheroned

    2 жыл бұрын

    Yes

  • @asahisagoiboi3517
    @asahisagoiboi35176 ай бұрын

    I had this from lurasidone and abilify. This was the worst experience I've had in my life. Though about suicide a lot for the several years I was on these drugs and thought it will never end.

  • @Tayxox
    @Tayxox2 жыл бұрын

    I have this at the moment and it has to be the worst feeling I’ve had

  • @lovewenwin
    @lovewenwin Жыл бұрын

    Why aren't this videos tagged for people looking for #sideeffects #ssri #ssha #antidepressants #psychiatricmedication #antinausea #anti-seizure ❓

  • @WandaJ21
    @WandaJ212 жыл бұрын

    I had a bad reaction one night . It was horrible . Only relief I could get was by running . It lasted for a bout 6 7 hours . I begged God to take the feeling away. I wouldn’t wish this on anyone.

  • @frugalfrugal1307
    @frugalfrugal13074 жыл бұрын

    His discription is nothing compared to what aka is really like to endure. Nothing helps true aka. Nothing. It's as if someone set your entire nervous system on fire, or plugged you into a wall socket, or shook up a vat of boiling soda and threw you into it with every raw nerve. When I get it my greatest fear is that this time it will be permanent. Aka is the single leading cause of death in those trying to free themselves from the clutches of big pharma. I hate that it's so unpredictable now after my medication injury. I hope one day I will heal, that it dissipates and never, ever returns. God bless everyone with this heinously cruel injury.

  • @robindeanna1323
    @robindeanna13237 ай бұрын

    Absolute nightmare. I didn't know my Abilify was the cause, I had to go through 40 hours of training while sitting in a chair watching slides. I had to periodically get up to go to the bathroom and cry, recollect myself and the physical painful bodily sensations would build up. It's a weird combination of being mostly mental agony, somewhat physical agony.

  • @llllllllllllllIIlIllIIllIIIIll
    @llllllllllllllIIlIllIIllIIIIll3 жыл бұрын

    Had 8 months , in jail , were it only got worse and worse 0 help, later got again for about a year , healed and recovered glory to God and now I have been experiencing it the 3 rd time it’s unspeakably horrid , radical dark suffering, when he said he wanted to tear his flesh off that is accurate .. an evil twisted sick torture condition

  • @MlkOfTheS1ren

    @MlkOfTheS1ren

    Жыл бұрын

    How are you now?

  • @gajumasare5443
    @gajumasare54432 жыл бұрын

    4 days ago my psychiatrist gave me psychotic meds and I devolped akastisia and now I can't stay still on a place more then 2 minutes

  • @uspatriot7484
    @uspatriot74844 ай бұрын

    Reglan IV, I felt high anxiety and couldn't keep my legs still or stop my legs from moving. I could not relax to save my life. Had the feeling I needed to run and run, knowing at the same time there was no reason to feel that way. No matter what my brain thought my body told me different. It is very scary to me that my brain and body can be in such a situation all because of a drug.

  • @SummerBaby728
    @SummerBaby728 Жыл бұрын

    The most frustrating part about dealing with akathisia is that for so long most of us have no idea what it is or how to go about finding what’s wrong with us for the fact that’s it’s utterly indescribable. Try researching terms like “unbearable urge to crawl out of skin, need to keep moving or feel like I will die” - not the clearest list of symptoms to find answers for. It seems like pure luck to have somehow stumbled across what this is. It’s not an easy undertaking to try to find out about a condition you can’t precisely describe or don’t really have words for.

  • @sylviadominguez8327
    @sylviadominguez832714 күн бұрын

    So is taking Propranolol bad for aphrodisia I'm confused cuz the doctor gave me that

  • @jacquelinemarquis6782
    @jacquelinemarquis67822 жыл бұрын

    Did anyone take the propranolol and it helped?

  • @SSDavyS
    @SSDavyS3 жыл бұрын

    ive had this, and i couldn't keep my feet still for a single second, it was an hour drive towards the hospital psychiatry and i had to wait hours for a doctor cause it was a holiday.

  • @SSDavyS

    @SSDavyS

    3 жыл бұрын

    AND IT WAS HELL!!!! worst thing ive ever had in my whole life.

  • @JZGreengo
    @JZGreengo3 жыл бұрын

    I still have this issue after 6 weeks of taking an antipsychotic 125mg injection for my bipolar disorder called perseris, I feel like a crazy person, I cry, I go run and lastly I take a Xanax because it’s not going away. I can’t stop moving, it’s terrible, I can’t function

  • @junaidsofi760

    @junaidsofi760

    2 жыл бұрын

    I hope you are better now. I have a family member with the same condition so i understand what you are going through.

  • @binklesworthington
    @binklesworthington2 жыл бұрын

    I like to describe akathisia as the feeling your chest has when you’ve been holding your breath too long except all over your body, and constantly moving your body is the only way to “breathe”. at the same time a feeling of wanting to jump out of your skin.

  • @PederYoutube

    @PederYoutube

    2 жыл бұрын

    damn, good description. i think i have this too. god will help us

  • @MlkOfTheS1ren

    @MlkOfTheS1ren

    Жыл бұрын

    ​@@PederKZreadhow are you now?

  • @PederYoutube

    @PederYoutube

    Жыл бұрын

    @@MlkOfTheS1ren thanks for asking 😁 It is gone now, switched medication. Have you had the same Santopapa?

  • @MlkOfTheS1ren

    @MlkOfTheS1ren

    Жыл бұрын

    @@PederKZread Are you on psychiatric meds for Akathisia? It will only mask symptoms 💔💔

  • @PederYoutube

    @PederYoutube

    Жыл бұрын

    @@MlkOfTheS1ren Hi! 😁 I gir akathisia from a psychiatric medication, and it ended when I switched to another medication. I think you are onto something about the masking of symptoms. But sometimes they are useful

  • @hollowtipdraco5223
    @hollowtipdraco52233 жыл бұрын

    It feels like hell

  • @andyharrier
    @andyharrier2 жыл бұрын

    I have it right now with no treatment because it is the weekend so I've gone three days like this

  • @jdjdjsjshxjsjsjs4120
    @jdjdjsjshxjsjsjs41204 жыл бұрын

    Abilify got me unable to stop moving. Fuck. At least they're going to try stuff soon to see if my meds causing it

  • @garyburke5649
    @garyburke56494 жыл бұрын

    Benedryl. Instant relief if through IV.

  • @Quiter19
    @Quiter192 жыл бұрын

    Promethazine/Phenagen gives me the worst Akathisia. I came off opioid medication and was ok but couldn't sleep so given Promethazine. Within half an hour I was writhing and screaming.

  • @MUNEAnAwakenedAustralia
    @MUNEAnAwakenedAustralia2 жыл бұрын

    theres a support group on facebook just search for it

  • @laurieberry162
    @laurieberry1623 жыл бұрын

    Someone said that I had an eating disorder. I had akathisia too. This is something that I need to stop thinking about.

  • @emmett77
    @emmett772 жыл бұрын

    it’s hard to describe but here we go. absolute fucking hell on earth. the worst thing i have ever felt in my life and i have had a needle jabbed into an open gash on my cheek. currently got it now. reaction to an antipsychotic. fucking awful. can’t do anything. i feel like i have to move all the time but nothing i do is satisfying. like getting restless legs before you sleep except TWENTY FOUR - SEVEN (IM NOT EXAGGERATING) and times the restlessness by an infinite number. fucking torture. just want to sleep so my body shuts off. and then there’s “inner restlessness”. sounds profound🤣 but that’s the best i can describe it. like constant inner turmoil. take what i just said about the physical effects and put it inside your head and chest. want to jump off a fucking cliff and run a million miles at the same time to stop the pain (mental)

  • @MlkOfTheS1ren

    @MlkOfTheS1ren

    Жыл бұрын

    How are you now?

  • @emailservices241
    @emailservices2413 жыл бұрын

    Mine felt like I was going to jump out of my skin. It wasn’t tolerable. Luckily I was treated quickly.

  • @sethmartin9423

    @sethmartin9423

    3 жыл бұрын

    Propranolol hasn’t helped at all, just started getting the sensation a few days after receiving a invega Sustenna injection. Anything you can recommend to help at all? Worst time of my life right now

  • @emailservices241

    @emailservices241

    3 жыл бұрын

    ​@@sethmartin9423 I was put on a very low dose of kolonopin for a month. Mine was caused by a nervous breakdown, so the treatment might be different since urs was caused from a drug reaction. You might ask ur doc about the kolonopin because it is a diff drug category than propranolol.I wish this post was more recent so u could have had more exposure for ur question. I can’t tell u how much I feel for u, it’s awful, I know.

  • @shapeshift13

    @shapeshift13

    3 жыл бұрын

    Seth Martin 1 long acting injection gave it to me for two years but its almost gone

  • @ingridyhsiao

    @ingridyhsiao

    3 жыл бұрын

    @@sethmartin9423 I got this from Invega too 🙁 how long has it lasted for you? Is it still happening?

  • @Redacted937
    @Redacted9372 жыл бұрын

    They gave me reglan for migraine. I had this. Never knew the word for it until today.

  • @unclefunkle2834
    @unclefunkle2834 Жыл бұрын

    are we gonna find a cure for this?

  • @haydenthorne4352
    @haydenthorne43522 жыл бұрын

    If there is a hell. Akathisia defines it. I’d take sleeping pills just to be able to sit still. One night I contemplated starting my moms car in the enclosed garage and was like wait I won’t be able to sit still long enough to succumb to the carbon monoxide. I was prescribed klonopin and it made mine go away.

  • @MlkOfTheS1ren

    @MlkOfTheS1ren

    Жыл бұрын

    How are you now?

  • @danashannon8234
    @danashannon82344 жыл бұрын

    This just stops. Where is the rest of the info.

  • @patriciamccaskill6472
    @patriciamccaskill64723 жыл бұрын

    He says that he's had akathisia but he makes light of it. He tries to be kind of silly to draw the audience in, he loses all credibility by doing that. He belittles the horror that is akathisia. That your whole body is taken over, your skin can burn, you're agitated like an electric current is running through your body, panic and horror set in, you've entered a very dark place and you're not sure if you're ever going to return from it. Some people pace and pace hour after hour day after day in total agitation. This is not something to make light of at all. Akathisia is well known to cause suicide. If you know of someone suffering for akathisia, be patient with them and know they are undergoing something that even they can't explain the horror that they are enduring. Akathisia can last from days to weeks 2 years long grueling years! I myself injured it for going on 5 years thank goodness in the fourth year it started to ease. Prior to that my life was agony, getting very little to no sleep, not able to function outside because of the horror of the physical manifestations of akathisia! 5 years of my life gone. I'm debilitated weak and will take a long time to come back from this if I ever do completely.

  • @MlkOfTheS1ren

    @MlkOfTheS1ren

    Жыл бұрын

    How are you now?

  • @danashannon8234
    @danashannon82344 жыл бұрын

    I would like to talk to you someday.

  • @DavidWest2
    @DavidWest210 ай бұрын

    I experienced a mild form of it, didn't know what it was at the time, but god it was miserable. I was pacing around town restlessly with my eyes squinting even though it wasn't even that bright. When I was at home I walked in circles for hours. It was caused by one of the usual suspects... fortunately I am free of that devil's bargain of a medication.

Келесі