Thank you so much for the info on handling my condition. I went thru deep depression and feelings of helplessness at my body changes. No one believed what I was going thru so self education was my outlet.

I lost my son on January 13 2022 age 55 from this and I also have it. He ended up with a mass heart attack. My mother also had this as well. I have it in both legs since I was a child. My son and I end up on a disability and couldn't work. I have been on water pills since in my teens. I am 79years old. I am so glad to see alot more information on this subject. Thank-you

It is my experience that medical doctors don’t know much about Lymphedema. I was discussed, angry and getting depressed. On my own for over 10 years. Eventually found out there is a Lymphedema clinic about 10 minutes from my home.That made my blood boil that no one told me about it. Now I watch many videos on this subject. Enjoyed your video. I wish you all would show the equipment used to control this hellish condition and show pictures of the skin on legs that look like the thickness of rubber tires an explain about little tiny skin tags that hold fluid in then and eventually burst and leak yellow lymph fluid. One can spend all day just taking care of one’s body and knowing there is no cure.

Such an inspiration! So informative. You're the epitome of the saying, "Better to light a candle than to curse the darkness." Thank you for sharing some insight and helpful information. 🙏

I have learned many problems are linked to congested lymphatics whether you have an official diagnosis or not it doesn’t matter. Study on your own. I’m not overweight and exercise well so my Doctor and specialist paid me no mind - “you are just a sweller, wear your compressions!” That was it. So I started studying my symptoms like crazy. I thought why not treat this like its congested lymph and it’s responding! My cognition symptoms are having moments of relief. Now I’m going aggressive home therapy. It takes quite a bit of time but I’m in a desperate state situation. I use a massager (vibrosculpt) on my lymph node areas, brushing, hand pulling, rebounder, gym routine, hydromassage table in the morning. Sometimes a walk too. Then another 30min routine in the evening. Probably 2 hours a day of PT I call it. But it is helping. When my brain started failing is when I started doing things like my life depends on it. I also am strict low carb and regular fasting. I do all of this out of necessity and many times I say I must do this to live. In fact it’s time to start my 2nd PT for the day. I encourage everyone to do their best and pray.

Phew I have so much to learn and research...glad I found your informative playlists, they're a goldmine! I don't want to believe lymphedema is incurable....

Thank you so much for the Solidea connection as well as your suggestions regarding self-massage and swimming.. both are so easy to do. it's a relief!

thank you, my wife went through the same journey of depression, and not helping herself, put on weight and into denial, she is slowly coming round to taking control. but here in Wales there are no NHS therapists, unless it is gone out of control, and thats when its to late. so this has been helpful. God bless

@buntycoutts3613

2 жыл бұрын

There is now a clinic in The Royal infirmary, Newport Rd. Cardiff. Phone them for appointment. Good luck.

@davidprice9976

Жыл бұрын

@@buntycoutts3613 Thank you Bunty, God bless you for caring enough to post this.

Thanks SO MUCH FOR YOUR KNOWLEDGE EFFORTS 👍👍👍👍👍

U gave me courage to know life again 😢 Thank you! I am happy l subscribed to your channel.

Thank you for your help, you have no idea how much you just helped. God bless you.

Thank you Sue, so informative. My left arm and hands started swelling about 2 months ago, At first it was thought I had a DVT even though it was in the arm but that was ruled out. I am 80, live in Israel and am quite active walking 3 - 5 km a day, eat sensibly, no smoking, a glass of wine once a fortnight maybe. 3 months ago I had hernia surgery and 9 months ago was fitted with a pacemaker. No doctor could put a name to what was going on with the swelling. I have been for so many Ultrasounds, CTs, XRays, Blood tests for infection then 2 weeks ago found a doctor who specialises in blood vessels. He sent me for a special 'iso' test to monitor the lymph system and confirmed Lymphedema. His recommendation was compression bandaging and sleeping with arm elevated at night. I have been enrolled to a physiotherapist who specialises in Lymph work and have my first appointment in 2 weeks. It has been mentioned that maybe during one of the surgeries when an IV needle was placed in my left hand, that could be the trigger, apart from this the cardiologist has emphatically stated that the PM isn't the problem as that was many months before. Now my real problem is that I can't play the guitar any more... and yes, I could play before!!! I see you were wearing the arm sleeve, but am wondering if the arm band is better for me. Any advice would be most helpful... Thanks again for a very good clip. Clive

Thank you for the info. So glad that you found a way to deal with this issue. You have helped me find a way to deal with my issues.

Everyone talks about post cancer lymphedema but I didn’t have cancer and yet I have it ! I’m just 23 but have 2 other chronic illnesses 😥

@soniasias6226

3 жыл бұрын

My mom has it too, and she didn't have cancer. Does exercise help?

@elizabethjacksa5785

3 жыл бұрын

Same!

@alliwhite3941

3 жыл бұрын

Not everyone does. She just gives her perspective, that's HER origin of the illness 🤷🏼‍♀️ the other thing is genetics or sedentary lifestyle, you already know where it's coming from, so why do you complain?

@soniasias6226

3 жыл бұрын

I've taken time off from my Life in California to help my Mom in New Mexico. 3 weeks and the swelling in one leg is gone and the other leg has improved 60 percent. I supplement B3, Sellinium, magnesium, potassium and Vitamin D. She also gets a diuretic from the doctor. We elevate her legs high and I take her for walks. She also does some exercise movements white on her back.. like riding a bike movements with her legs high. It's getting better. We have been consistent for 3 weeks.

@melissawilliams2009

3 жыл бұрын

I have it from varicose vein treatment. I wish I left my veins alone! And the doc who did the treatment would not address it. Wouldn’t order PT for MLD so my treatment was delayed. It’s been a nightmare.

Very interesting & informative video . . . Thanks for posting.

I am new to this I have other chronic illnesses so it's a little frightening having another illness but I was encouraged to hear of one woman who has been fighting this for a long time she is now 105! That gives me hope! I said I would like to connect with you more in the future thank you again for all your help

thank you so much for the information thats what i need to manage my lyphadema thank you for sharing .God Bless

Thank you for this video....I am going to check out the website and tell my doctor about this.

Thank you for sharing your experiences with us. For everyone out there, don’t panic no fears keep your mind focused on your recovery. Educate yourself but don’t feed your soul with things that make you depressed. Like she described, look for alternatives and what works for your condition. Self massaging is a win win. You will definitely feel the deference. Keep it up!

Outstanding information! Thanks for caring! Now I have to try some of this!

Thank you for the detailed information and suggestions

Thank you for an honest and easy to follow video. Just starting my journey. DerekG

Thank you for talking about your lymphedema. My husband had it years ago and then I guess it went into submission. But every once in a while it acts up. I'm just realizing I need to know about lymphedema. Thank you again. I noticed that it was in 2015 that you made this video, but it doesn't mean it is no longer viable because IT IS.

@danayanaramma

2 жыл бұрын

He was scientifically diagnosed with a lymphography?

Thanks for some good information

I was diagnosed with lymphidema and my legs sre pretty swollen. What works for me is laying in my recliner lift chair horizontal and lifting my leg for a count of 10, and doing the same for the other leg, doing this 4 times on each leg. For me this has brought the swelling down. Also walk as much as you can

Thank you!! :)

Thank you

This is much different than what I usually hear, which is WEAR YOUR COMPRESSION GARMENT EVERY DAY!! I don't and feel guilty about it, like my lymphedema will get worse, etc. That said, I do exercise every day and swim 3 times per week, but I have NEVER felt my lymph moving afterwards. Had no idea that you can actually feel your lymph move at all !!??

Amazing information ❣️ The product is just as amazing. My arm lymphoma has improved so much and is so comfortable. It was quite a task to get it To me in New Zealand but this company manage to do so quickly and so efficiently . Again I’m so thankful impressed. ⭐️ ⭐️⭐️⭐️⭐️. Dr Theresa

@annidzik2071

Жыл бұрын

O

Dear Doctor, In India, chennai From Pharm products company Having the medicine for actue and chronic inflammation edema and also for lympedema, Tablet LYMPEDIM 200mg 💼, also , this tablet recognized by most of the Doctors, And this will help ful to deserve patients

Thanks I was just diagonosed and trying to learn all i can. Have researched the foot baths to remove toxins- I hate compression hose! any other type of leggings that work?

Are there valves inside the lymphatic vessels as there are in blood vessels to keep fluid going in one direction, avoiding back flow ?

Thank you so much for the great information. I also have lymphodema in my arm. Can you tell me about the garmet your using?

Can walking in a pool help? I have it in my my right lower thigh. Thanks TJ

Ilikeu. 10Q v much.

Hello.....you helped me out with some questions I had.... I am a 12 year breast cancer survivor and the last couple weeks the top of my hand and the inside of my wrist area has had some pain and a little bit of swelling so I've been rubbing oils on it and trying to keep it elevate and rubbing it what more can I do?

Are there special clinics to help? How do I find them? Do you have any suggestions I live in California. Thanks

I forgot to mention that when I started using the pump From my waist down to my toes. The therapist told me to drink plenty of water and that there was a possibility that I would not feel very good the next day because of all the toxins getting pushed out. I was glad she warned me cause at least I knew why I was feeling Like I had the flu but then it was gone the next day.. It's saying that got less and less

What about if you have it in arm and under the arm?

Where this garment is available in India

How she got her to and pillow to match is cute 🥰

Thanks so very much. Water really helps . I had to take potassium chloride. I had poor circulation all my life. I will have a new doctor. D.O. and not an M.D.. Will that be okay? My doctor is moving an suggested him. I will ask him about lymphoma because of swelling.

I have 1 kidney and was sent to physical therapy. is this a good idea?

helllo question is do man have the same conditon

where can i buy it

Chemo, radiation, prednisolone course for resultant pneumonia. Now I have Lymphedma left armpit where they removed a large lymph to acertain what it was (Hodgkin's Lymphoma) a golf ball sized tumor was also removed on the undeside of my upper arm. I now have lymphodema in the underarm, upper arm and ankles, not so bad on ankles, like little fat pads on the inside of both ankles. Anyway, I have seen people with those compression bandages, stockings, etc., and they look like they are making things worse! I have been physically doing gentle massage on upper arm and under arm, I just recently started this thinking maybe this could get the lymph fluid moving. What are your thoughts on self massage as one way to reduce the fluid pockets without pushing it somewhere else on the body as you said happened to you. Thanks for posting this, even Onconlogy doctors don't seem to really know a sane way to approach this condition.

@carlisesmith3685

2 жыл бұрын

Lymphatic fluid massage is great too on top of using the active massage compression referred to in this video by solidea

When I used the compression stockings they made me actually feel depressed. The lesser compression stockings made me feel irritable. Very unpleasant. Anyone else experienced this? I used the Jobst compression stockings.

What is the name of the Italian company you found? Please?

@doricetimko332

2 жыл бұрын

It’s in the beginning of the video title : solidea

the hyperlinks do not work.

The doctors could have at least told the patient that she had the medical condition. It's horrible that the patient has to ask and then the truth comes out. The patient then has to suggest treatment to the physician. Some of these doctors do not care. I am glad these videos are out here on KZread because the (specialist) physician is worthless!

@doricetimko332

2 жыл бұрын

It’s difficult to get accurate and appropriate info on an individual basis. It’s been a real challenge for me

@j.williams8118

2 жыл бұрын

@@doricetimko332 I am sure that it has been a challenge.

@paulpellicano8047

Жыл бұрын

I don't always think its the doctor but the legal system and if they something that isn't/wasn't correct, they might get sued. Although I know there are many doctors out there for the money only.

if you had jaw and ear pain would that mean you had this type of cancer. I had a similar situation to this in my family years ago where cancer occurred

@janicewilliams2194

3 жыл бұрын

Can I use the rebounder? Thank you

@HTNPSullivan

3 жыл бұрын

Jaw and ear pain are also signs of heart issues. You need to check this with a cardiologist and make sure to talk to your regular doctor. You may have experienced other symptoms of heart disease without realizing it. I know this as someone who survived a heart attack and a quadruple bypass.

Your leg is at a right angle to your torso. Continuation of my comment

I have it to in my upper right knee. How do do I purchase the fabric does the swelling go down? How do you get rid of the fluid? Thanks Terri

Help

With soo many videos on Lymphedema you all need to show all the compression equipment that is used today to treat this. Nothing is shown for obese people. The difference between thin people and obese people is like night and day. Obese people need assistance because they can’t move in ways thin people can. Help!

50 comments 14subs? Ibcome to threads for all sorts and if bet there's a good story

Looks allot like ,"shanann watts"

Please stomp saying umm. It’s distracting.

@valerieharrison7745

Жыл бұрын

Watch another video...very rude