LE&RN's mission is to fight lymphatic diseases through education, research & advocacy. We seek to accelerate the prevention, treatments and cures for lymphedema, lipedema, lymphatic anomalies, and the continuum of lymphatic diseases.
The idea of this is interesting, but is this the right presenter for a nutrition discussion? I am very interested in his systems trends, but some of this information could be debated on broad recommendations on sleep recommendations, food technology & even the fructose part. Fructose is in fruit. I think the focus was on processed foods. This sounds like an outline for generally healthy eating. The only new idea I heard was limiting certain types of fats. The target on maltodextrin and coffee were interesting.
@sheilasmith11097 күн бұрын
Chuck... you're the most amazing expert that I have ever listened to, met, worked with or read, in this subject! I will follow your work and as a professional in this field, respect you deeply, forever! THANK you, sir!❤
@kathymello265416 күн бұрын
So many of these recommended foods are red flags for me. I will not be munching on 6 to 10 cups of greens that is for sure, mercy it is not wise. Fix your lymph problems, but wreck the rest of your body. And the beans???? My head is ready to pop here.
@ava.artemis17 күн бұрын
Keto diet took care of it for me. I started getting bat wings and squishy cellulite when I was 12, and I grew up in a healthy household, we ate all homemade food, low fat, very little sugar. I became an exercise fiend at age 12, always dieted/ starved myself, under ate and over exercised. I finally went keto in my late 20s and the fat evaporated and I was a solid size 2-4 for about 15 years until life changing injuries happened. My exercise almost disappeared and I got sloppy about my eating and the bat wings came back. I have all of the co-symptoms: severe pcos and extremely high estrogen, also since I was about 12. I’ve had lots of systemic infections with swollen lymph nodes all over my body from childhood until I went keto. I’m finally getting more exercise again after 6 years of PT, doing more fasting, hoping to be normal again.
@VR-Trooper17 күн бұрын
I have only the fat deposits (no pain, bruising, or limitation of movement), but this after 6 mos. carnivore. I began to slim down in the first two months only. Dairy is not my friend-not even ghee, and not even when it's 100% grass fed.
@simmiedavissimmiesings818517 күн бұрын
I would not classify lipoedema as a syndrome because it is already too difficult to deem it medically necessary to treat. Let's keep pushing for the differential diagnosis
@Sandra-hk8ks17 күн бұрын
And imeating more salt than ever redmond salt and im eating rib steaks the fattest meat i can find all my dieing symptoms are gone. Im out of bedand careing for myself nowmy legs have never gone down so much. Dock your all off there are manyof us being healed onlyeating fat, salt and meat
@Sandra-hk8ks17 күн бұрын
Not true i went carnivor lost 65 lbs and tor the first time my legs have gone way down.
@mariathompson450718 күн бұрын
I am still angry. My consultant did not adhere to what we both agreed on, which was only taking the nodes that looked swollen/infected, instead she took out every single one in my pelvic area, bar 1.5 nodes, and she seemed impressed that she had removed over 30 nodes, which were all clear, hence this was the start of my lymphoedema. Consultants should be informing patients that if they go on holiday on a plane, a year after your operation, you could be at risk of gaining lymphoedema. The pressure in the plane can set off lymphoedema, which is what happened to me. I had lymphorrea first on the plane, fluid leaking out of my whole leg which lasted the whole 2 weeks on holiday in the caribbean. I googled this leakage problem, when I arrived home, as my leg was still weeping and very swollen. I googled my condition and saw information that you should not fly for 5 years after their operation. It took a few GP appointments before being referred to lymphoedema clinic, I was put on furosemide, water tablets, for a few months, even though I had asked to be referred. Also, my consultant was moved to another country. I have just had my 3rd operation on my leg and am hoping this one will help a little and lift my depression. Thank you Kathy Bates for being an advocate for all the people suffering with lymphoedema / lipodema 😊, and a big shout out to my colleagues, lymphoedema specialists and consultants who have tirelessly tried to make things better and more comfortable for me.
@JGalegria22 күн бұрын
Great to know gut microbiome is also connected to lymphatic function because I was wondering does this apply to radiation induced lymphedema? In this case yes diverse gut microbiome can help reduce risk. As far as estrogen there's other factors again radiation treatment and also menopause.
@YinYangDPW22 күн бұрын
I have chronic cellulitis leg infections and accompanying edema for years now. Venous insufficiently (inferior cuspid valves) contribute as a cause. Also, as pressure from edema fluid retention swelling increases, it shuts off circulation. For years I have been using ACE wrap compression bandages, 4 to 5 or 6 inches wide, wrapped around and around my legs, over lapping each about half, up from ankles to knees. Experience teaches you just how tight is right - too much tension cuts circulation off, too little does no good. Periodically, take the compression wraps off to let your legs "breathe", get sunshine, bathe, massage with rubbing alcohol and/or saline solution, apply moisturizer cream, etc. Recently I have also started using a "wedge" to keep my legs elevated at night - as you sleep, gravity pulls fluids out of your legs. Homemate Bed Wedge Pillow for Sleeping，Upgraded 12 Inch Foam Wedge Pillow for After Surgery Acid Reflux Snoring Gerd Heartburn，Triangle Pillow Wedge for Head， Back ， Leg Support with Washable Cover a.co/d/34PP9OS Put your legs up on it, instead of your head. Exercise, walking, ankle pumps, thigh contractions, isometric, etc. helps too.
@YinYangDPW22 күн бұрын
I have chronic cellulitis leg infections and accompanying edema for years now. Venous insufficiently (inferior cuspid valves) contribute as a cause. Also, as pressure from edema fluid retention swelling increases, it shuts off circulation. For years I have been using ACE wrap compression bandages, 4 to 5 or 6 inches wide, wrapped around and around my legs, over lapping each about half, up from ankles to knees. Experience teaches you just how tight is right - too much tension cuts circulation off, too little does no good. Periodically, take the compression wraps off to let your legs "breathe", get sunshine, bathe, massage with rubbing alcohol and/or saline solution, apply moisturizer cream, etc. Recently I have also started using a "wedge" to keep my legs elevated at night - as you sleep, gravity pulls fluids out of your legs. Homemate Bed Wedge Pillow for Sleeping，Upgraded 12 Inch Foam Wedge Pillow for After Surgery Acid Reflux Snoring Gerd Heartburn，Triangle Pillow Wedge for Head， Back ， Leg Support with Washable Cover a.co/d/34PP9OS Put your legs up on it, instead of your head. Exercise, walking, ankle pumps, thigh contractions, isometric, etc. helps too.
@pattysmith54223 күн бұрын
I developed this disease in KY after my 2nd pregnancy in 1971 at the age of 21. No doctor had a clue why. They said it was from the fluid in my legs that became poisonous that caused a breakdown of my fatty cells. No cure. It wasn't diagnosed until 1979 when I found Dr. John Franklin at Vanderbilt University Hospital in Tennessee and he called it Lypodystrophy in my lower body. I have had 2 liposuction surgeries by Dr Franklin 10 years apart but this disease doesn't go away. He died in a car crash so now I have no doctor that knows how to help me. I live in Florida since 1982 and none of my doctors here know what to do about my disease. They had me on fluid pills for years, but it didn't help. I had breast cancer 1999 and a non cancer brain tumor but now since 2006 I am cancer free. I have had many severe falls so now I use a walker and have extreme shortness of breath. I had to have a heart Pacemaker in 2008. I watched your video today and I have pretty much done all the good things to help this disease, but nothing helps. If there is a doctor you know in the Orlando area would you give me his or her name ? Thanks
@questioneverything177623 күн бұрын
Menopause, perimenopause and estrogen deficiency I believe are a triggers. Why aren’t women being treated for these symptoms using bioidentical hormone treatment? Increasing cholesterol, aches, pains, joint pain, pelvic floor issues and bladder issues, connective tissue issues like frozen shoulder, gastrointestinal issues, depression or not feeling like yourself. Also check vitamin D deficiency and hypothyroidism.
@questioneverything177623 күн бұрын
What do you do if you have an eating disorder? Dieting has ruined me. Are you addressing eating disorders within the lipidema community?
@teresaoconnell479025 күн бұрын
Your lymphatic system is a system like your circulatory system. However it does not have the valves that push the fluids along like your blood system. It depends on you walking to move the fluids along. Inactivity leads to fluids collecting in the legs.
@AnchorMoments2 күн бұрын
I am new to my lipodema diagnosis. I also got diagnosed with varicose veins that are underneath my fat. I also have type 2 diabetes. I appreciate you taking the time--over 15 years--studying lipedema and lymphedema. Thank you!
@nicolezapanta926525 күн бұрын
Watching this at 12am. This is so helpful thank you for making this available for free! I feel so much better since I started eating lots of vegetables and decreased protein intake.
@deniselagrua379025 күн бұрын
Just came across your program and cannot thank you enough for this information. For years I was told you're bottom heavy when in fact my symptoms presented early on in my early twenties. Does anyone have a recommendation for a physician who would be receptive to "partnering" with me to officially diagnose and manage my lipedema. I live in the Jupiter, Florida area. Many thanks.
@JenLardelli-sq3us28 күн бұрын
❤Namaste❤
@sherriclark1290Ай бұрын
I'm a hairstylist n I didn't get very many options .mine came on after chemo 😢.Pain every day ❤
@sherindumond4290Ай бұрын
I started have pain in my right thoracic back I developed a lump started about 5 months ago I have swelling in my adomen
@sherindumond4290Ай бұрын
Pain to touch
@sherindumond4290Ай бұрын
I have so much pain
@michaelmurray8668Ай бұрын
I'm 33 years old, I've had it for 6 to 8 years now. I do not go a day without several people asking me what is wrong with my hands. Did I get bit or people not wanting to touch me when they give me change in the store. Or not shake my hand. I also have severe leg ulcers I just got out of the hospital again yesterday. I'm in so much pain I can't sleep I barely can get up to go to the bathroom. As I get older living with this. I am getting beaten down physically and mentally. I'm tired and getting depressed. I don't have confidence like I would without it. I was always so positive with this and stayed strong but the longer I go and the worse it gets I'm losing hope. And in some ways just expecting to die soon. I went through a separation last year and I don't feel like I can have any intimacy with anyone. For the last 3 to 6 months it got very hard to work. The last 2 months I can't work at all. I've lost pretty much everything I had including my family and my pride. I'm hoping for some me breakthroughs with it I was just referred to some specialist at Duke this is basically my last hope. My daughter called me very upset recently because she had a dream I died and it is taking an emotional toll on her also. She's 14 years old and I feel horrible about it. Thank you all for researching this terrible disease.
@Amanda-ru6bp23 күн бұрын
Wow, I am so sorry I am going through the same thing word by word...this I can say when I was reading your words. I
@michaelmurray8668Ай бұрын
I have had it for about 8 years, caused by drug use. I no longer use but I can not get healed. This is a awful disease. I just got home from the hospital yesterday. I have large ulcers on both legs and giant hands. I'm hopeful that modern medicine may help me more then it did when I was first going through it and seeing doctors for it. They had no answers for me then. I was just referred to a neurological surgeon and wound clinic at Duke University hospital. I emphasize with any of you suffering through this nightmare.
@erintusa4624Ай бұрын
What is the fabric??
@b_uppyАй бұрын
Yes, what fabric? She fails to say weather is knit vs woven, cotton vs whatever...
@erintusa4624Ай бұрын
What about upper lymphedema due to removal of 12 L. nodes &, then blocked by scare tissue causing blockage.
@carlmhielpublico9246Ай бұрын
Thank for into
@kristenmerritt4786Ай бұрын
Its been quite sometime since this was released, but is there any updates about this therapy? Will it ever be tested or available for primary LE/LE in the lower body? Any thoughts/research/info would be greatly appreciated!
@user-ck6ve3ck4vАй бұрын
You have to do your own research these days it seems. I have pulmonary oedema and lymphoedema so have to almost sit up in bed so I can breathe and am told to raise up my legs to drain them of lymph. I get backache. I think mine stems from only being diagnosed with Coeliac Disease at the age of 65 after being retired for depression at 47. I also have psoriasis, diagnosed at 22. One thing I noticed at the age of 81 is that as my old amalgam felt out of my teeth, my psoriasis cleared up. My first filling preceeded my psoriasis diagnosis. I only have that on one elbow now. Is dentistry filling with mercury amalgams one of the things to blame in my case?
@pfranks75Ай бұрын
This lecture is what I needed to hear. After a long travel day from US to the UK my legs and feet are so swollen I was forced on day 2 of my trip to stay in bed flat on my back waiting for the swelling to go down in my legs and feet. I’ve been suffering from peripheral neuropathy for several years without a satisfactory explanation.
@veronicaskoch3757Ай бұрын
27 years ago breast cancer . This has run my life , cellulitis is the worse can kill you. Just got done with wrapping therapy . Machine, sleeping wrap, compression sleeves .
@theblaqueekarenn5600Ай бұрын
So fascinating and scary
@kendonshirley6697Ай бұрын
The first six minutes of this talk are deeply moving and motivational. Thank you for sharing your story.
@toneyrose8465Ай бұрын
“THEY LISTENED!”
@nancydubin9328Ай бұрын
I am in so much pain the last 3-4 weeks. Doc wont squeeze ya in to help !!
@annettemunnich3533Ай бұрын
I think I don't have this. Thanks for explaining.
@fineclipssАй бұрын
Why can't we eat gluten if we're not gluten intolerant tho?
@lizisler9415Ай бұрын
Ive never had this before but …Weeks after pacemaker surgery I now have it. It’s a lymphatic circulatory thing. I suspect my lymph system was compromised during surgery - not that anyone is going to admit that. But heck it’s a risk so they should just add it to the risk list. And get on with fixing it. But no - I have to push for a diagnosis that is obvious!!
@mathurreetirivaj6945Ай бұрын
I am in India,any hope for trial
@mathurreetirivaj6945Ай бұрын
I would like to participate in this trial
@lindasantini5618Ай бұрын
Many scientists say illnesses are not genetic, that our genes are perfect but they can be mutated by certain bacteria, often Cell-Wall-Deficient (CWD) bacteria. Lida Mattman, PhD discovered this class of bacteria many years ago. (There are videos here on YT about her, presented by the Marshall Protocol scientists.) So if lymphedema runs in someone's family, it could be due to these CWD bacteria and the only way I know of to get rid of them is with homeopathy. Taking homeopathic Hepar sulph calcarea 30c once or twice a day is just one H. medicine that might help some people. That's what I've started taking. It's usually easy to find at a health food store or Whole Foods, in a little blue tube made by Boiron. All I've noticed so far is that the skin on my face is softer but, then again, it's only been 2 days. -Linda, author of "Goodbye, Quacks - Hello, Homeopathy!" (about curing mental illness with homeopathy)
@Ccl2tbАй бұрын
The fluid retention is the worst part. I have to make sure to wear loose clothes all the time, because whatever I eat, or even going too long without food, can make me 2 sizes bigger in just a couple of hours. If my socks, bra or belt get too tight then the migraines start.
@elizabethrodriguez1095Ай бұрын
Excellent information presented here. I've suffered from this awful illness for 8 years, and my legs feet, even my toes are so swollen, I have developed large skin ulcers on my legs, which haven't healed even after many staph infections,and cellulitis hospitalizations my abilities to walk, work etc, are extremely diminished, and as a result, I am no longer able to work. I am grateful for any studies of this condition. Thank you for your very important work.
@nb385Ай бұрын
A few minutes in, I like the clarity
@lwilliams12822 ай бұрын
Thank you for this information. I need to find your book ASAP.
@Vickyg452 ай бұрын
Still struggling. I'm getting no help! I have whole body involved. I am now bedbound. No treatment.
@marcellemccroskey76842 ай бұрын
My husband is 80 years old with a bad case of Lymphadema for over two tears. He uses wraps and a pump but don’t get a lot of results. Can’t walk without a walker. His left leg is solid and huge. Has gone to Lymphadema therapy but swelling always comes back. Wears compression socks and has done everything the dr suggest. I have heard you won’t operate on anyone his age. He get’s a lot of cellulitis. He has no quality of life. Can he be helped? Was very active before this happened. Thank you Nina
@marystephen60772 ай бұрын
An excellent factual & concise talk that will undoubtedly benefit all readers.
Пікірлер
Same goes for LIPIDEMA!
The idea of this is interesting, but is this the right presenter for a nutrition discussion? I am very interested in his systems trends, but some of this information could be debated on broad recommendations on sleep recommendations, food technology & even the fructose part. Fructose is in fruit. I think the focus was on processed foods. This sounds like an outline for generally healthy eating. The only new idea I heard was limiting certain types of fats. The target on maltodextrin and coffee were interesting.
Chuck... you're the most amazing expert that I have ever listened to, met, worked with or read, in this subject! I will follow your work and as a professional in this field, respect you deeply, forever! THANK you, sir!❤
So many of these recommended foods are red flags for me. I will not be munching on 6 to 10 cups of greens that is for sure, mercy it is not wise. Fix your lymph problems, but wreck the rest of your body. And the beans???? My head is ready to pop here.
Keto diet took care of it for me. I started getting bat wings and squishy cellulite when I was 12, and I grew up in a healthy household, we ate all homemade food, low fat, very little sugar. I became an exercise fiend at age 12, always dieted/ starved myself, under ate and over exercised. I finally went keto in my late 20s and the fat evaporated and I was a solid size 2-4 for about 15 years until life changing injuries happened. My exercise almost disappeared and I got sloppy about my eating and the bat wings came back. I have all of the co-symptoms: severe pcos and extremely high estrogen, also since I was about 12. I’ve had lots of systemic infections with swollen lymph nodes all over my body from childhood until I went keto. I’m finally getting more exercise again after 6 years of PT, doing more fasting, hoping to be normal again.
I have only the fat deposits (no pain, bruising, or limitation of movement), but this after 6 mos. carnivore. I began to slim down in the first two months only. Dairy is not my friend-not even ghee, and not even when it's 100% grass fed.
I would not classify lipoedema as a syndrome because it is already too difficult to deem it medically necessary to treat. Let's keep pushing for the differential diagnosis
And imeating more salt than ever redmond salt and im eating rib steaks the fattest meat i can find all my dieing symptoms are gone. Im out of bedand careing for myself nowmy legs have never gone down so much. Dock your all off there are manyof us being healed onlyeating fat, salt and meat
Not true i went carnivor lost 65 lbs and tor the first time my legs have gone way down.
I am still angry. My consultant did not adhere to what we both agreed on, which was only taking the nodes that looked swollen/infected, instead she took out every single one in my pelvic area, bar 1.5 nodes, and she seemed impressed that she had removed over 30 nodes, which were all clear, hence this was the start of my lymphoedema. Consultants should be informing patients that if they go on holiday on a plane, a year after your operation, you could be at risk of gaining lymphoedema. The pressure in the plane can set off lymphoedema, which is what happened to me. I had lymphorrea first on the plane, fluid leaking out of my whole leg which lasted the whole 2 weeks on holiday in the caribbean. I googled this leakage problem, when I arrived home, as my leg was still weeping and very swollen. I googled my condition and saw information that you should not fly for 5 years after their operation. It took a few GP appointments before being referred to lymphoedema clinic, I was put on furosemide, water tablets, for a few months, even though I had asked to be referred. Also, my consultant was moved to another country. I have just had my 3rd operation on my leg and am hoping this one will help a little and lift my depression. Thank you Kathy Bates for being an advocate for all the people suffering with lymphoedema / lipodema 😊, and a big shout out to my colleagues, lymphoedema specialists and consultants who have tirelessly tried to make things better and more comfortable for me.
Great to know gut microbiome is also connected to lymphatic function because I was wondering does this apply to radiation induced lymphedema? In this case yes diverse gut microbiome can help reduce risk. As far as estrogen there's other factors again radiation treatment and also menopause.
I have chronic cellulitis leg infections and accompanying edema for years now. Venous insufficiently (inferior cuspid valves) contribute as a cause. Also, as pressure from edema fluid retention swelling increases, it shuts off circulation. For years I have been using ACE wrap compression bandages, 4 to 5 or 6 inches wide, wrapped around and around my legs, over lapping each about half, up from ankles to knees. Experience teaches you just how tight is right - too much tension cuts circulation off, too little does no good. Periodically, take the compression wraps off to let your legs "breathe", get sunshine, bathe, massage with rubbing alcohol and/or saline solution, apply moisturizer cream, etc. Recently I have also started using a "wedge" to keep my legs elevated at night - as you sleep, gravity pulls fluids out of your legs. Homemate Bed Wedge Pillow for Sleeping，Upgraded 12 Inch Foam Wedge Pillow for After Surgery Acid Reflux Snoring Gerd Heartburn，Triangle Pillow Wedge for Head， Back ， Leg Support with Washable Cover a.co/d/34PP9OS Put your legs up on it, instead of your head. Exercise, walking, ankle pumps, thigh contractions, isometric, etc. helps too.
I have chronic cellulitis leg infections and accompanying edema for years now. Venous insufficiently (inferior cuspid valves) contribute as a cause. Also, as pressure from edema fluid retention swelling increases, it shuts off circulation. For years I have been using ACE wrap compression bandages, 4 to 5 or 6 inches wide, wrapped around and around my legs, over lapping each about half, up from ankles to knees. Experience teaches you just how tight is right - too much tension cuts circulation off, too little does no good. Periodically, take the compression wraps off to let your legs "breathe", get sunshine, bathe, massage with rubbing alcohol and/or saline solution, apply moisturizer cream, etc. Recently I have also started using a "wedge" to keep my legs elevated at night - as you sleep, gravity pulls fluids out of your legs. Homemate Bed Wedge Pillow for Sleeping，Upgraded 12 Inch Foam Wedge Pillow for After Surgery Acid Reflux Snoring Gerd Heartburn，Triangle Pillow Wedge for Head， Back ， Leg Support with Washable Cover a.co/d/34PP9OS Put your legs up on it, instead of your head. Exercise, walking, ankle pumps, thigh contractions, isometric, etc. helps too.
I developed this disease in KY after my 2nd pregnancy in 1971 at the age of 21. No doctor had a clue why. They said it was from the fluid in my legs that became poisonous that caused a breakdown of my fatty cells. No cure. It wasn't diagnosed until 1979 when I found Dr. John Franklin at Vanderbilt University Hospital in Tennessee and he called it Lypodystrophy in my lower body. I have had 2 liposuction surgeries by Dr Franklin 10 years apart but this disease doesn't go away. He died in a car crash so now I have no doctor that knows how to help me. I live in Florida since 1982 and none of my doctors here know what to do about my disease. They had me on fluid pills for years, but it didn't help. I had breast cancer 1999 and a non cancer brain tumor but now since 2006 I am cancer free. I have had many severe falls so now I use a walker and have extreme shortness of breath. I had to have a heart Pacemaker in 2008. I watched your video today and I have pretty much done all the good things to help this disease, but nothing helps. If there is a doctor you know in the Orlando area would you give me his or her name ? Thanks
Menopause, perimenopause and estrogen deficiency I believe are a triggers. Why aren’t women being treated for these symptoms using bioidentical hormone treatment? Increasing cholesterol, aches, pains, joint pain, pelvic floor issues and bladder issues, connective tissue issues like frozen shoulder, gastrointestinal issues, depression or not feeling like yourself. Also check vitamin D deficiency and hypothyroidism.
What do you do if you have an eating disorder? Dieting has ruined me. Are you addressing eating disorders within the lipidema community?
Your lymphatic system is a system like your circulatory system. However it does not have the valves that push the fluids along like your blood system. It depends on you walking to move the fluids along. Inactivity leads to fluids collecting in the legs.
I am new to my lipodema diagnosis. I also got diagnosed with varicose veins that are underneath my fat. I also have type 2 diabetes. I appreciate you taking the time--over 15 years--studying lipedema and lymphedema. Thank you!
Watching this at 12am. This is so helpful thank you for making this available for free! I feel so much better since I started eating lots of vegetables and decreased protein intake.
Just came across your program and cannot thank you enough for this information. For years I was told you're bottom heavy when in fact my symptoms presented early on in my early twenties. Does anyone have a recommendation for a physician who would be receptive to "partnering" with me to officially diagnose and manage my lipedema. I live in the Jupiter, Florida area. Many thanks.
❤Namaste❤
I'm a hairstylist n I didn't get very many options .mine came on after chemo 😢.Pain every day ❤
I started have pain in my right thoracic back I developed a lump started about 5 months ago I have swelling in my adomen
Pain to touch
I have so much pain
I'm 33 years old, I've had it for 6 to 8 years now. I do not go a day without several people asking me what is wrong with my hands. Did I get bit or people not wanting to touch me when they give me change in the store. Or not shake my hand. I also have severe leg ulcers I just got out of the hospital again yesterday. I'm in so much pain I can't sleep I barely can get up to go to the bathroom. As I get older living with this. I am getting beaten down physically and mentally. I'm tired and getting depressed. I don't have confidence like I would without it. I was always so positive with this and stayed strong but the longer I go and the worse it gets I'm losing hope. And in some ways just expecting to die soon. I went through a separation last year and I don't feel like I can have any intimacy with anyone. For the last 3 to 6 months it got very hard to work. The last 2 months I can't work at all. I've lost pretty much everything I had including my family and my pride. I'm hoping for some me breakthroughs with it I was just referred to some specialist at Duke this is basically my last hope. My daughter called me very upset recently because she had a dream I died and it is taking an emotional toll on her also. She's 14 years old and I feel horrible about it. Thank you all for researching this terrible disease.
Wow, I am so sorry I am going through the same thing word by word...this I can say when I was reading your words. I
I have had it for about 8 years, caused by drug use. I no longer use but I can not get healed. This is a awful disease. I just got home from the hospital yesterday. I have large ulcers on both legs and giant hands. I'm hopeful that modern medicine may help me more then it did when I was first going through it and seeing doctors for it. They had no answers for me then. I was just referred to a neurological surgeon and wound clinic at Duke University hospital. I emphasize with any of you suffering through this nightmare.
What is the fabric??
Yes, what fabric? She fails to say weather is knit vs woven, cotton vs whatever...
What about upper lymphedema due to removal of 12 L. nodes &, then blocked by scare tissue causing blockage.
Thank for into
Its been quite sometime since this was released, but is there any updates about this therapy? Will it ever be tested or available for primary LE/LE in the lower body? Any thoughts/research/info would be greatly appreciated!
You have to do your own research these days it seems. I have pulmonary oedema and lymphoedema so have to almost sit up in bed so I can breathe and am told to raise up my legs to drain them of lymph. I get backache. I think mine stems from only being diagnosed with Coeliac Disease at the age of 65 after being retired for depression at 47. I also have psoriasis, diagnosed at 22. One thing I noticed at the age of 81 is that as my old amalgam felt out of my teeth, my psoriasis cleared up. My first filling preceeded my psoriasis diagnosis. I only have that on one elbow now. Is dentistry filling with mercury amalgams one of the things to blame in my case?
This lecture is what I needed to hear. After a long travel day from US to the UK my legs and feet are so swollen I was forced on day 2 of my trip to stay in bed flat on my back waiting for the swelling to go down in my legs and feet. I’ve been suffering from peripheral neuropathy for several years without a satisfactory explanation.
27 years ago breast cancer . This has run my life , cellulitis is the worse can kill you. Just got done with wrapping therapy . Machine, sleeping wrap, compression sleeves .
So fascinating and scary
The first six minutes of this talk are deeply moving and motivational. Thank you for sharing your story.
“THEY LISTENED!”
I am in so much pain the last 3-4 weeks. Doc wont squeeze ya in to help !!
I think I don't have this. Thanks for explaining.
Why can't we eat gluten if we're not gluten intolerant tho?
Ive never had this before but …Weeks after pacemaker surgery I now have it. It’s a lymphatic circulatory thing. I suspect my lymph system was compromised during surgery - not that anyone is going to admit that. But heck it’s a risk so they should just add it to the risk list. And get on with fixing it. But no - I have to push for a diagnosis that is obvious!!
I am in India,any hope for trial
I would like to participate in this trial
Many scientists say illnesses are not genetic, that our genes are perfect but they can be mutated by certain bacteria, often Cell-Wall-Deficient (CWD) bacteria. Lida Mattman, PhD discovered this class of bacteria many years ago. (There are videos here on YT about her, presented by the Marshall Protocol scientists.) So if lymphedema runs in someone's family, it could be due to these CWD bacteria and the only way I know of to get rid of them is with homeopathy. Taking homeopathic Hepar sulph calcarea 30c once or twice a day is just one H. medicine that might help some people. That's what I've started taking. It's usually easy to find at a health food store or Whole Foods, in a little blue tube made by Boiron. All I've noticed so far is that the skin on my face is softer but, then again, it's only been 2 days. -Linda, author of "Goodbye, Quacks - Hello, Homeopathy!" (about curing mental illness with homeopathy)
The fluid retention is the worst part. I have to make sure to wear loose clothes all the time, because whatever I eat, or even going too long without food, can make me 2 sizes bigger in just a couple of hours. If my socks, bra or belt get too tight then the migraines start.
Excellent information presented here. I've suffered from this awful illness for 8 years, and my legs feet, even my toes are so swollen, I have developed large skin ulcers on my legs, which haven't healed even after many staph infections,and cellulitis hospitalizations my abilities to walk, work etc, are extremely diminished, and as a result, I am no longer able to work. I am grateful for any studies of this condition. Thank you for your very important work.
A few minutes in, I like the clarity
Thank you for this information. I need to find your book ASAP.
Still struggling. I'm getting no help! I have whole body involved. I am now bedbound. No treatment.
My husband is 80 years old with a bad case of Lymphadema for over two tears. He uses wraps and a pump but don’t get a lot of results. Can’t walk without a walker. His left leg is solid and huge. Has gone to Lymphadema therapy but swelling always comes back. Wears compression socks and has done everything the dr suggest. I have heard you won’t operate on anyone his age. He get’s a lot of cellulitis. He has no quality of life. Can he be helped? Was very active before this happened. Thank you Nina
An excellent factual & concise talk that will undoubtedly benefit all readers.