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I just got diagnosed 6 days before my 20th birthday. This video has helped a lot in understanding what’s going on.

@RhesusMedicine

11 ай бұрын

I'm glad that it was useful 🙂 Thank you for watching!

Excellent, especially your mentioning keto diet and time-restricted eating. I've done both and reversed the course of my illness, both my kidney and heart have gone from failure to functioning normally now. I'm off all meds, with minimal symptoms, and eGFR of 84 at age 66. I wrote about how. I'll post it in a reply (free). Cheers.

@RhesusMedicine

9 ай бұрын

Very interesting to hear your experience with the dietary changes, thank you for your comment! 👍

@followthepinkline

4 ай бұрын

Wowow. Praise God. Thank you for sharing your story, very uplifting and motivating!❤

@CaptainSteve777

4 ай бұрын

@@followthepinkline Praise God indeed. FYI, I got new labs today. My Cystatin C based eGFR improved more to 102.

@CaptainSteve777

4 ай бұрын

@@RhesusMedicine FYI: I got new labs today. My Cystatin C based eGFR improved more to 102.

@pratimvlogs4177

3 ай бұрын

Hi @CaptainSteve , God to know about that. I would like to know how were you able to achieve it, Do you have any article around this?

Been crippled by this for years and it's made my life a living hell. My grandfather gave it to my dad and him to me and me to both my son's. I can't keep a steady job and can't seem to get any help, I just wish i could be normal but this is my cross to bare I guess.

@bintokiria5338

3 ай бұрын

Oh sorry Dear

Glad to see mention of fasting and keto diet! Good job!!!!

This video is incredible, thank you so much!

@RhesusMedicine

Жыл бұрын

Thank you for watching!

This was so good!

@RhesusMedicine

Жыл бұрын

Thank you!

Thanks ❤

Notification squad rise up 👏 👏

kidney size in ADPKD is big not small

I think it started with me.

What kinda medicne can be used to help this discise

@xanderbridgeman

6 ай бұрын

As stated in the video Tolvaptan has been passed for uk use in recent years and has been available in other countries longer. On it you have to consume a larger amount of water everyday which forces you to urinate more frequently helping reduce the time toxins remain in the kidney. Blood pressure medication is used to help reduce and control the high blood pressure. Reducing it helps less cysts to form as quickly. A number of other medications are prescribed to combat other side effects that come with PKD. As there is no cure most cases lead to patients receiving a form of dialysis for life or if they are lucky enough to receive a transplanted kidney.

Way over my head. My daughter was recently diagnosed with PKD. I was seeking education and explanation for my lay person brain. This was so confusing for me. I will need to seek something more basic.

@tanukabanerjee1731

Жыл бұрын

What do you need help with ?

@sandilobianco6734

11 ай бұрын

What were your daughter’s symptoms?

@venomx4093

2 ай бұрын

Sorry your daughter has to endure this.

What if it is from birth..is there a cure

@xanderbridgeman

6 ай бұрын

No cure currently. As stated in the video some things can slow the progression of the disease but everyone is different in how much it helps. Sufferers of the disease mostly end up on one form of dialysis or join the transplant list to receive a donation or in some cases a family member/friend would donate a kidney.

"...the normal functional unit of the kidney is the nephron (no idea what that is) made up of glomerulus (no idea what that is) and Bowman's capsule proximal convoluted tubule loop (.....EHM....SAY WHAT !???) ". FFS, at least at to the subtitle "medical terms only", so that the regular Joe don't end up wasting their time on this. 🤣