Makes me cry 😢God bless all of these people who are out here fighting/suffering in the real world and we need more compassionate empathetic staff in hospitals and clinics!

Just got diagnosed with this and this video has been so helpful emotionally for me. Now I'm over the shock I want to educate myself on dealing with this disease. The pain is unimaginable. To say the truth of my thinking was how did I get here, where do I go from here and then to ask how one can be alive with living with do much pain. I can say I've taken my ability to eat, drink and go about my day for granted. Simple things like even having a cheat day in maintaining my weight. Now all i see food as is a cause of excruciating pain and not as fuel for my best health. My prayers to all those that have, do and will suffer from this and I pray for full understanding and ability to heal those like myself.

One thing that Everyone needs to know Pancreatitis is Exactly Painful!! If you haven’t ever experienced it, please don’t doubt everyone else.

I have had chronic pancreatitis since age 7. When I need help during a flare they looked at me like a junky till the bothered to check my labs, pancreas scarring, and med history. At a hospital I frequently go to I continue to be treated like drug addict, despite being asked to be in their studies, being treated like this is so dehumanizing.

My son had been diagnosed with CP when he was 3 yrs old. This year 2022, he turns to 7 yrs old. He has been in and out from hospital frequently...also appointment with hospital every 3 months. He has gone through many times of MRI and also ultra sound. In yr 2020, my son experinced very high pain and doctors decided to put morfin to him. Only dripping until the doctors decided to do endoscopy and putting stent in his narrowing pancreas duct. Its works. After 3 months, they pulled out the stent and until now he is in good health. At the beginning, i cried a lot. But now, I decided to accept the fate and will make anything that could cure my son condition. Luckily my son being treated well by professional doctors and specialists. So, my son feel very comfortable whenever he get a treatment. So..I encourage my son to become a doctor so he able to treat people who have the same pain with him. Now, he is in preschool and making many friends. I am trying to make him lead a normal life with others eventhough I know its quite hard with his condition. My son had to bear this CP for the whole life. Never mind , he is my world, my strength, my love....whatever his condition is...I am proud of him forever. Luv from mom

Hearing of their testimonies makes me afraid of this disease because I have a problem with Pancreas. God help us all!

I don’t think it’s humane to leave patients who are suffering with this to go through it without pain management.

All Drs should hear these people!! Especially with the lack of knowledge and the refusal of effective Pain relief and I too have wished the Drs and Nurses should experience some pain for a few hours!!!

Lord help all of these people!!

For the first time in years, I feel a part of a group and not lost. So thankful.

Thank you. The pain never completely goes away. It's so comforting to know I'm not alone.

Currently diagnosed with EPI, Thank you for doing these panels, you are helping many that are suffering with little support.💙

I came across this video by accident and I couldn’t believe I wasn’t alone.

I was just diagnosed with acute pancreatitis please pray for me. Had my first hospital stay And was scary but had great nurses

I’m so grateful to hear from others who share the same experience as my self, it really motivates me to keep fighting. Because I have been through a lot over the past 8 years. This is only time I am hearing from people with chronic pancreatitis.

Wow have had trouble since I took ozempic for weight loss since then have pain in pancreatic area this so insightful thank you for sharing

Speaking for myself, everyone on this panel has had access to procedures/medicines that cost large amounts of money...I'm doubtful any of them had been in poverty. I've been dealing with this disease since 2003 and after the first 5 years (but not excluding) my pain from this disease has been non-stop. I've had minimal procedures (ERCPs) only to "confirm" that I have a disease that I can provide clear history for. Its wild being dismissed many times over on account of socio-economic status, age, race and preconceived notions of alcoholism.

You have no idea how helpful this video is, cannot thank you enough

I had the worst nausea and pressure at my pancreas. I did not have the intense pain but could not function from the nausea. I had also been recently diagnosed with high blood sugar and low thyroid. I was sick all summer and my doctor kept saying I had the stomach flu which I did not. I fasted on water for three days and then started eating foods for healthy pancreas and started taking digestive enzymes with my meals and that fixed me. I take the enzymes with my food and if higher fat or protein I will take an extra one in the middle of eating. I don't drink alcohol or smoke but was under extreme stress and think that triggered it.

I absolutely hate, I mean hate the Emergency Dept. of Hospitals! I have yet to recceive any help from an emergency dept.s. It is appalling!!!