Wendy i have the same thing.it is truly extreame pain.i am only 10 years old.i am better now.im praying for you.God Bless You Wendy!!!

@arthurfirkins1031

2 жыл бұрын

My name is Kaissa and I pray 🙏 for you to be totally pain free.

@pippo767

6 ай бұрын

How are you now?

Im so glad i came across you, yours and my stories are exact mirrors of each other. I have no idea if your still on this but i would love to talk with you -Natalie

My heart goes out to you..being so young with such a painful disease. I was diagnosed two years ago, and have yet to receive adequate pain control. I would love to hear follow up on how this procedure is helping to control your pain, and how it works...if its available in other cities, ect. Wishing you the best health outcome.

Bless her, that made me cry for her when she said that people said horrible things. I'm sure if they had an hour of an attack of pancreatitis they'd soon feel like they should say sorry (if they could) because it's a horrific disease and I know how you feel. Hugs sweetie. I feel your pain Wendy, literally xx

I have Chronic pancreatitis and have been try some different thing. first i drink one or two aloe Vera waters a day. 3 bottles of water. no caffeine no sodas. but the best is ginger tea. real ginger. use 12 cups of water. peal with spoon 3 peaces of ginger thumb size. grade. boil in pain just until water starts to boil. add 10 spoons of real honey. 2 lemons just the juice.drink strain ginger out of tea. drink one coffee cup every night.cold or hot is OK. You can add mint leaves to reduce pain if you wish and cinnamon. i swear by this stuff.i have been crying every day for a year. in one week i am pain free. super cheap to make to.this will last 12 day. can drink it always. does wonders on the inflammation. hope this helps you.

@twerpantine

3 жыл бұрын

I got rid of mine with liposomal vit c

@TheMollyRoberson

5 ай бұрын

What is aloe Vera waters? Just aloe Vera juice in water?

I wish they would update this!

This was very informative.I have Hereditary Chronic Pancreatitis, 6 generations identified. looking at doing the celiac plexus block, after MANY spincterotomies there's nothing left they can do for fear my pancreas will fall apart leving us with no option but removal so,this procedure that wendy had has given me some new hope I am going to discuss it with my Doctor and the pain clinic I now go to at UCSF medical center in San Francisco Ca. i HOPE its something they can do and that it works..

I am 48 and first had pancreatitis at 13 I was told over again there was nothing wrong with me. I now have insufficiency. I am in agony .i have lupus and now have to take enzymes ,in Australia I am now considered in the to hard basket. I spent yesterday in the ER and was given pain relief but that's about it . I pray this young lady feels better soon. Xoxo

@natahliasmith9533

4 жыл бұрын

Yep... That's all they seem to do over here. Then they wonder why so many people become addicted to opids. They need to treat illnesses accordingly and stop bandaiding them with pain killers. It just infuriates me.

@olsonbrandon91

10 ай бұрын

I'm so sorry.. I never learned about all this until recently.. and it's something I have been dealing with now.. I'm waiting to see if I have it myself, and I am scared.

So proud to be marrying you Wendy. It's a shame to see pancreatitis ravage you and all these posters but you're so strong. Do everything you can to help as many people as possible as I am doing with my Tourette's. You're a tough girl. Keep on living the life you live and giving all the love you give. You have an amazing future that I'm proud to be a part of. Love always, T.

@mace1633

2 ай бұрын

Is she okay?

Thank you so much. I’ve suffered with this since I was a teenager, and was always told it was “nerves”. I wasn’t diagnosed until 1993. Strangely, I was thrilled to just have a diagnosis, and know I wasn’t crazy! It sucks to have to live with this condition.

@BManStan1991

5 жыл бұрын

Anne Artis not strange at all! When I went in to get my EUS done one of the surgeons even looked at me moments before going under and said, don’t worry it’s most likely just IBS. I kind of just smugly smiled at him already knowing what it was. Once I woke up from the anesthesia and they told me the diagnosis of chronic pancreatitis, I too felt relieved. I felt vindicated, like people finally believed me.

@gowthamkumar6697

2 жыл бұрын

@@BManStan1991 how re u now ? Any tips to control the pain?

@olsonbrandon91

10 ай бұрын

How are you doing lately Anne? Are you okay?

Im 36 and have had CP for 3 years now.. The pain is unreal even with strong meds, I went to Cleveland Clinic and they wanted to do total Pancreatotomy w islet transplet, but as the video says you will most likely still have pain.. Ive heard up to 75% still suffer. Please consider other options before anyone tries this... The pain is the pits, but instant diabetes for the rest of your life imo is just as bad. Praying for all

I'm glad that more people know about this. I just have been diagnosed with Chronic Pancreatitis. I've had it for almost a year. Since I'm in my 30's people automatically assume its because I drink alcohol. I cut down after my first attack, but I still have had 2 bouts. Both of the two bouts I hadn't even had a drink before the attacks. I found that stress and diet are the key for me. I can't eat certain foods when I'm under a lot of stress. If I do I get attacks.

@sarahelizabeth7279

3 жыл бұрын

Every time I get admitted into hospital I'm treated like an alcoholic and i don't really drink. It is awful how people's views are uneducated yet so opinionated x

@olsonbrandon91

10 ай бұрын

Hi I'm concerned I might have it and was wondering.. how does it effect your life? Can you live a long life? :c

@mickeydrippin

3 ай бұрын

I suffer from it too.Try to avoid fried fatty foods like fries,burgers etc,try cooking food in airfryer rather than oil.

My husband suffering from chronic pancreatitis and he admited 3rd time in a hospital still he is in hospital He has no pain but have fever problem What can i do

I know how you feel I was diagnosed with it 5 years ago and everyday is a struggle

I have Cystic Fibrosis, for the past 6 years i’ve been dealing with what I believe is chronic pancreatitis, no doctor can diagnose the issue as my labs, scans are always clean. Yet I’m in this severe pain having to go to the er once or twice a month and the only thing that helps the pain is morphine. Im so tired of living like this. I just want answers. Its beyond frustrating as its such a debilitating issue. What do i do? :(

@Medic25MK why are u on IV's? do u not absorb any foods? not even with enzymes?

How could they overlook it. I mean my 10yr old soon has it. Blood test amylase and lipase

@ReeAnnBetts I want to kno how u are doing with ur surgery, it looks grusome but if its worth it I would go for t myself...

to numb the pain by anyway nessecary. Meth was the best because it killed pain and allowed me not to eat for days and still be productive. I'm 23 now and literally am dying a little more everyday. I don't know how to say I understand what your daughter is going through and I am so sorry that at 13 she suffers like this. Much love and support to you to and to anybody who will dismiss your story please go to her page.

Yep it is so freaking upsetting when a doc thinks you are drug seeking and you are sitting in a hospital bed and you have nowhere to turn and the doc is yelling at you for wasting there time and the space in the er I have gotten to a point where I just walk around and cry and wish I was dead

@olsonbrandon91

10 ай бұрын

omg this sounds so terrible... I'm so sorry, I hope you're okay :(

This is 13 yrs ago !!! How is she now ?

I'm pancreas classification, what to do ?

Hi can someone tell me and my wife who to call to have that done? My wife is terminal and we just want to have a drug free & pain free last part of her life...her pancreases is not working AT ALL !!! its calcifying....please help with a 411 ...:)

Hi there, I have had chronic pancreatitis for about 6 years. For us girls It gets horrible prior to and during that time of the month. Does any one else experience this?

@moviedir5672

7 жыл бұрын

Liz Curley yes. I have CP also.

@Giangshutup

6 жыл бұрын

I told this to my doctor and they just said it was due to my bad eating and high triglyceride. I have to watch what I eat during that time of the month now very carefully. Been to the hospital twice in the last year for it. Worst pain ever

I haven't heard anymore about this treatment since this video came out. And try getting a doctor to perform this secretin test in Atlanta. Doctors and esp. GI doctors are basically telling ppl to go away that have pancreatitis. I've been to Uni of Cincinnati .. Emory University .. Mayo clinic Jacksonville twice .. University of Birmingham .. all over Atlanta .. and never been offered this secretin test even though lipase was elevated at every lab. Not only do doctors not want to treat pancreatitis .. they don't want it to be your diagnosis either. I'm sure Beth Deacon is no different. I've called this hospital and they were less than welcoming when asking about diagnostic testing. A lot less.

Dr Freedman is amazing. I see him

@EricProffitt

10 ай бұрын

Please tell me who dr freedman us and how to contact him?!

@FanOBarbaro

10 ай бұрын

@@EricProffitt he's the Dr in this video. Still works at this hospital

Pain will be finished but I am thinking about complications of pancreas, how we will know about if there is something wrong to pancreas, this is not permanent solution

I can't believe Ifound this! Thank you for posting this. I have spent 10 years of my life (from 17) being passed from Dr to Dr with my Pancreatitis. I have Chronic but I still get Acute flare ups. Because of my age so many people refused to do a nerve block so have been on Oxy contin for years now. FINALLY I have found a pain clinic who will do one and am on the waiting list. No one has heard of it and so many time I get told it is in my head. Amylaze levels rise sometimes and not others and nothing points towards a flare up.So fed up with it. Is this treatment available world wide?

@marcusd9192

8 жыл бұрын

+Sadie Jarvis have you done anything that has helped it? Dietary changes? Fasting? Supps? etc

@sadiejarvis7728

8 жыл бұрын

I cut out fatty foods and lost 8 and 1/2 stone which made sleeping easier as there was less pressure on my pancreas. But other than that nothng.I am in pain ALL the time and some days it is so bad I can barely move.

@marcusd9192

8 жыл бұрын

Im in constant pain year after year. Some days are better than others and i often feel far worse after eating. Does that all describe you?

@sadiejarvis7728

8 жыл бұрын

exactly me. I often flinch when I eat as I get pain spasms. I actually had a letter through this afternoon with a date for my nerve block :D

@marcusd9192

8 жыл бұрын

Have you tried anything that has helped? fasting? juicing? raw foods? pancreas glandulars?

It's year 2020 any new updates on this research?

@luisestrada4900

3 жыл бұрын

If someone knows about any new way to treat this i will love to know i been with this for 4 months and it's struggle every day

@abdulrasheed3255

2 ай бұрын

Same

WOW, I am going to seek out someone here that can do this for me. I wonder if my insurance will cover it? I also wonder about the problems with patients who no longer have pain will neglect their diet and their pancreas will eat itself even faster?

@BManStan1991

5 жыл бұрын

twofawnswolfbandmeti I’ve wonder that same thing. For me, the pain is a measure of when to back off and fast.

Hi Im from melbourne australia and for got pancreatitis in 2004, Ive been admitted to hospital over 20times since then with chronic pancreaititis. has this TMS worked?

@dadaradabada6928

Жыл бұрын

U alive, its been 10 years of your comment, I have been suffering 2.5 years now.

I'm there now 😭😭😭 wishing for help

I'm so scared I might have this now.. I have been having symptoms.. all aligning with this.. I called and made an appointment with my doctor.. but can't see him until the 17th of October.. Edit: I hope this girl is doing okay..

@FanOBarbaro

10 ай бұрын

You'd know if you had it. The pain is bad enough to send you to the ER usually

@ReeAnnBetts wow! 45 years? I didnt know one can last that long with this desease. Ive had it for 5 years, docs couldnt diagnose me till now, but I kept on drinking cause they said im fine, stupid docs and stupid me for drinking....this is the most painful thing ive ever been thru!!!

Iam in the hospital with this problem... And its painful

@leahstepp4098

7 жыл бұрын

me too awful

I have CP & experience always AP :/ Everything u said about wanting attention & being crazy. . I've been told also.. don't feel tobad. I know how u feel CP freaken SUCKS

My daughter has suffered form stomach pain for two years after gastric bypass surgery.We seen scores of Dr's and specialist.Her story is long.Can anyone please help this girl? I will write the whole story if anyone can help.Thank you.

Hopefully you can get someone to measure the pressure in the sphincter of oddi, and get a stint put in it to prevent it from closing and cramping. Don't get it cut over and over, get a stint put in. My husband was dying from SOD and is only living today because of Dr. Richard Kozarek in Seattle. He is a real doctor that produces real results. He gets right to the problem and fixes it.

@memesissydollar3080

5 жыл бұрын

Thomas melton What is Sod please ma’am ?

@memesissydollar3080

5 жыл бұрын

Sorry if your a man and I said Ma’am . Wasn’t paying enough attention sorry. I hope your feeling much better !

@amygwenn5189

Жыл бұрын

@@memesissydollar3080 It's called Sphincter of Oddi Dysfunction and is a rare cause of CP. I'm going on my 20th year since my Total Pancreatectomy/auto Islet Transplant for it at the University of Minnesota. Sadly, the pain never stopped and since it's been so long it seems my body is reverting to the symptoms I had when I had my pancreas, spleen, appendix, duodenum, and gall bladder. I think nerve pain is the worst and abdominal conditions hardest to treat. God bless Thomas Melton, I hope your spouse is still doing the best they can.

I have this. My last bout they said 40% chance you will die. This is in the UK. Can't I get it taken out...????

@mace1633

2 ай бұрын

are you still alive?

What are the first symptoms of chronic pancreatitis.

@sandradalton1611

4 жыл бұрын

Pain in your stomach under ribcage and towards your back

@olsonbrandon91

10 ай бұрын

fuck.. I have this.. I'm so scared@@sandradalton1611

So ya, I haven't ate for about 3 full days other than 2 meals and 1 snack because of the INTENSE stabbing pain every time ANYTHING goes in there. My stomach hurts anyway and is filled with acid every morning... I'm a tough dude even though I'm a fairy lol. I'm a former marine, football player and heavy metal drummer but even I want to cry at times it hurts so bad. I can understand how bad stomach pain can hurt, it's been recurring since I've been about 14. I used to do a shitton of drugs just

@thelockup3270

7 жыл бұрын

I have Chronic pancreatitis and have been try some different thing. first i drink one or two aloe Vera waters a day. 3 bottles of water. no caffeine no sodas. but the best is ginger tea. real ginger. use 12 cups of water. peal with spoon 3 peaces of ginger thumb size. grade. boil in pain just until water starts to boil. add 10 spoons of real honey. 2 lemons just the juice.drink strain ginger out of tea. drink one coffee cup every night.cold or hot is OK. You can add mint leaves to reduce pain if you wish and . ps if you already have diebets do not do the ginger without talking to your doctor

Really it's is worst desise. I m suffering with it. Pancreatic pan is unbearable. It feels that you continuesly having punches in your stomach. And it's pain comover your front to back. Very bad desies this is.

🙏🏼

I wish with all my heart the consultants in The Royal United Hospital Bath England were as caring and less ignorant. Mine was misdiagnosed over four years as Panic attacks!!!! They sent me to see a pyschatrist and a psychologist, both told me go back to the doctor. After 17 years of chronic Pancreatitis they have again advised me to see a counsellor!!! They are patronising and speak to me as if I am mentally retarded. I do believe they have made this clear on my hospital notes. God help us

@NicoleAnnaTurner

4 жыл бұрын

I need help too!

I noticed this said hope is on the way but then I saw it was 10 years old ha

Help me! I was born with chronic pancreatitis, and I can't get help. I am now banned from an er. And every doctor says I don't have pancreatitis. Help me! I can't get help.

@NicoleAnnaTurner

4 жыл бұрын

@@sandradalton1611 Oh my God, do you think I am stupid? I keep my fat down way lower than 30 grams a day. I eat vegetables. I still can't get rid of my pain. Look, I done everything. Ercps, nerve blocks. Now I hope I can get my pancreas removed and put the ilets back into my liver, so I won't be diabetic.

@Kayak1088

4 жыл бұрын

It's always been impossible for me to get medication to ease my pancreas pain. I don't know what else to do besides find a drug dealer. They will not even do an ercp on me b/c my levels are always high. We are forced to be drug seekers. Anybody with pain like this would do the same.

@NicoleAnnaTurner

4 жыл бұрын

See, my levels don't raise. If you levels are high, they would for sure put you in the hospital and keep you comfortable with iv fluids and iv pain meds. And get something to calm you down. They give me iv ativan. I don't understand why they are not treating you if your blood work for pancreatitis is raising high. You see mine stopped raising now for 15 years. And the pain is worse now. But they should be doing more tests on you. And you need an excp. They think going by blood is the only thing they go by. And they say I am good to go home. And I can't get them to help me get hospital treatment. I am so sorry you are going through the same thing. I did find a doctor. But I still suffer. The meds are not working now, and I must be immune to them. I don't feel human either. I feel trapped in this painful body forever. Please help me! I wanna go home to heaven. I don't understand why God is not letting me go home. Why? I am stuck on this hell planet. I hate this. Please help me. I am crying for you and I. I was never able to order them online. And I would not go to Mexico. So that is out. Keep going to the er. Please go everyday until you find the right doctor to help you ease your pain. Thank you for reaching out to me. I care about you. And I know that is weird to tell you that, but since you reached out to me. I don't want you to suffer either. Bless your heart. And happy new year. I slept through the new years, because I can't get help. I gave up. I am just gonna have to suffer. It is sad. I am sorry!

@NicoleAnnaTurner

4 жыл бұрын

@@Kayak1088 I don't know why my note did not go to you directly. Please read the top long one I typed you.

@NicoleAnnaTurner

4 жыл бұрын

@@Kayak1088 And I mean ercp. Sorry about the spelling error. I am sure you know what I meant. I get ercps for celiac nerve block. It could help you. But it did not help me. Did you get your gallbladder removed. I did. And I regret it now. Because it has caused me problems and you gain weight without it. It sucks. Do not let them remove it.

My life is ruined. I am labled as a drug seeker. Help me!

@Kayak1088

4 жыл бұрын

If you can afford it you might try ordering medication online. Or travelling to Mexico where some pain medications are sold over the counter. It has ruined my life also. I don't think anyone with pancreatitis doesn't feel the same. And doctors know this .. that's the sad reason it's so hard to find help. They don't want to deal with starving ppl.

@thefirstroxy9687

3 жыл бұрын

Kratum helped me. Doesn't help a full on attack but all the other pain yes.

@abdulrasheed3255

2 ай бұрын

How are you now

guys I also have chronic pancreatitis...try India homeopathy... many are living without pain.... I'm on first month... seems could and less CP to me...

@kajalkumar6793

7 жыл бұрын

mohammad salman please let me how to go ahead.can you recommend someone?

@mohammadsalman6784

7 жыл бұрын

I'm on the meds for about 2 months... it's helping to fulfill my activities... surely I would recommend to try natural herbs+pancreatin enzymes...

@kajalkumar6793

7 жыл бұрын

mohammad salman from where should i get the medicines.i stay in germany

@mohammadsalman6784

7 жыл бұрын

+kajal kumar ..omg ..it's in Vellore of India...

@mohammadsalman6784

7 жыл бұрын

+kajal kumar...it is good once come and visit the doctor...if not possible I can send to you via courier...

Idiopathic pancreatitis is actually worse than getting it from abusing alcohol. Because at least with getting it from drinking, you know you did it to yourself.

@pippo767

5 ай бұрын

Sometimes it can be genetic also

Look at what GMOs do to our youth, this was never an issue before MONSANTO

@BManStan1991

5 жыл бұрын

note kidd you have a point. If you look at the rate of pancreatitis it’s skyrocketing.

hi does anyone else here have genetic pancreatitis

@BManStan1991

5 жыл бұрын

I do. Genetic chronic pancreatitis.

@NicoleAnnaTurner

4 жыл бұрын

I have genetic too. I want my pancreas removed and transplant the iulets back in the liver. I have been suffering for 30 years. I need help. The pain won't go away. Nerve blocks don't touch the pain.

ps if you already have diabetes do not do the ginger. without talking to your doctor

@yamunamadhu6844

4 ай бұрын

Why. Ginger helps diabetes right?

Low fat diet helps.

Stop eating CARBS SUGAR and ALCOHOL

Hahaha. What a joke. A decade passed and absolutely nothing to deal with the pain. I bet a century will pass and no solution on the horizon

@FanOBarbaro

10 ай бұрын

I know people who have had successful treatment. Problem is it's a last ditch treatment, only certain places offer it, it's very expensive so not every insurance covers it and not everyone qualifies

@pippo767

5 ай бұрын

Nerve blocks can work