Neuroscientist Shares Her Recovery From Long Covid
A cognitive neuroscientist shares her experience with long COVID and her journey to recovery.
We talk about everything from her experience with the illness, the challenges of navigating the healthcare system and what had the biggest impact on her recovery.
00:00 Pre-COVID Lifestyle and Mental Stress
03:43 Onset of Long COVID Symptoms and Gradual Deterioration
11:46 Challenges Navigating the Healthcare System
18:25 What started to help
32:11 Recovery and Embracing Hope and Gratitude
Пікірлер: 56
I've had severe LC symptoms since March 2020 - about 5 weeks ago I saw a Dr on youtube say AUGMENTED NAC had been shown to break down the virus in LC (I'd already tried regular NAC with no improvement) so I googled, bought some, not holding out a lot of hope, and 5 weeks on I am seeing big improvements. I felt worse before things started to improve though - ( very feverish, cough coming out and sleeping loads for the first couple of weeks) . Still going with it and hopeful it might take me to 100% recovered. Thought I'd share in case it might help someone else suffering.
@harryboby7563
26 күн бұрын
Thanks for sharing!
That is by no means the worse it can get. My daughter cannot leave bed at all not even to use a toilett chair directly beside the bed for months now. She can do nothing, she cannot even endure my silent presence. That is a horrible horrible sickness.
@laurardns
Ай бұрын
My cousin is in the same case that your daughter, its now 4 months that he is on bed. Is she feeling better? Is is she in this stage at the moment?
@angelikasusanne2830
29 күн бұрын
@@laurardns Sadly yes, she is. I wish your cousin the all the best!
@teri03
29 күн бұрын
I had that too until I took low dose aspirin. I was recommended to take that from a long cov chat group and it helped me get out of bed and walk finally.
@angelikasusanne2830
29 күн бұрын
@@teri03 How fast did you see any improvement? I ask to know how long we need to try before thumbs up or down.
@teri03
29 күн бұрын
@@angelikasusanne2830 Very quickly, within 2 days. It could be a sign of microclotting if it works. If it doesn’t, I figured it’s inexpensive and doesn’t cause damage so why not. You will know within a week. I wouldn’t take aspirin long term, for me and the people in the chat group, we noticed within a week a huge difference.
I reconice the feelings that i have long covid in this part of the world en not for example in India where you dont have food when you not working. I have long covid for more than 4 years and i m luckily a positive person . Stay positive and learn from this.😊❤
People got sinus allergies usually experience sensitivity in the brain and it affects the equilibrium when ears are being affected. Before Covid, this kind of symptom wasn’t really much of a concern. It exhilarated when happened to be associated with “fearful”memory in the brain- alongside, “guilt” of something you didn’t have a choice, but you are in the loop. Your brain still believes you’re in hijack. If there is fear, there comes an obsession. Obsession causes burnout. Once your body’s burnt out, it creates too many different symptoms. It’s where you focused your energy on. It’s not the sinus that creates fear, but the sensation I. E. off-balance, head pain, earache, eye ache, etc…that heightens your perception, and constantly feeling dizzy or disoriented and blurry vision. Sooner or later, it just comes and goes, until your brain realises it’s a repetitive pattern, that you’re not actually broken and you’re still here. Therefore you are safe. Wake up…that you even say a mantra back to it: boring, boring…uninterested, then it eventually subsides. For some people who experienced other trauma, they may have exactly the same response.
I got Covid March 2020, and LC since, so much of what you went through is what ive been dealing with. Orthostatic hypotension, dysautonomia, so much fatigue and ao many symptoms across my system. I was very active prior, hiking, running in the mountains, rollerblading, biking, weights, organic keto diet and my job also required me to walk about 5 miles a shift, outside in the AZ heat, worked 3 jobs. That , to iI couldn't getout of bed to shower, or that was the big effort of the day. Slowly tried to increase activity, would see progress then crash. Then, got the JJ, had an immediate reaction of fever, flop sweat, Covid symptoms all over again but worse. I do all the things,so many supplements, methylene blue, nac, vinegar, iver, yoga nidra for nervous system, carnivote diet...cant keep any progress, it feels like i have multiple autoimmune diseases at once, definitely do not feel like its my body. And the feeling like you're dying because every cell in your body feels poisoned. No Dr has been helpful, bounced around from specialist to specialist, no help.
@revelation1215
3 күн бұрын
You have to go back to basics. If your body is reactive to foods, try a low histamine diet and start with just a few easy to digest foods. The first step is to get the inflammatory response down. Eliminate supplements unless you feel like they are definitely helping. Most people feel like they don’t help much in the end and often make things worse because the body is hyper reactive. For low blood pressure, try adding a little sea salt to your food. Avoid extreme diets, and detoxes, they just make things worse. Strive to first stabilize the body and create safety.
Thank you for this interview ❤
Seems like A mild post virus infection this one. Alot of cases and sympoms are way more difficult and terrifying than being described here.
Thank you for this podcast! What is her name? And how long did it take to get back to her normal active lifestyle?
I have post vaccine syndrome and long covid. i got post vaccine syndrome sep 2021 and then long covid dec 2023.
@gtessgossage3867
29 күн бұрын
I also have the covid symptoms not from the disease but the mandatory 3rdcovid vaccine. APRIL 2022. Wish I could share more with folks
@gtessgossage3867
29 күн бұрын
Finally got real disease 1st time Dec 2023
@budgejudge5245
8 күн бұрын
I too had symptoms after the second Vax, recovered after 18 months then like yourself got very ill at the beginning of last December, still poorly. @@gtessgossage3867
Why aren’t these ‘programs’ freely accessible? It really fucks me off!
@monnica-cq4yc
Ай бұрын
sure - it is frustrating - but they had to do the research and organise how best to deliver these programs and that is worth something - i mean.....we have all paid neurologist hundreds of dollars and gotten no where - loved this video - also neuroscience background here
@angelikasusanne2830
Ай бұрын
Gupta is not so very expensive (compared to the US programs)
@mirandaandrea8215
29 күн бұрын
I agree!
@elaineniesink3187
29 күн бұрын
Release CFS is suitable for LC as well and has a scholarship for people who can't afford the programme!
I've always wondered what is the difference between people for whom this brings results and for whom it doesn't. I see one key element many times over (probably not the only one though ) and that is support and environment. It seems like majority of recovery stories are women who have support from their partners, family, etc... I don't know how exactly it was in her case but she mentioned her boyfriend couple of times. I bet he took care of most stuff (albeit probably very hard). Not saying that men don't recover, neither that they don't get this support. But it's more about how does this work on average. There is more nuance to this, of course, but comment section isn't the best place for it. :)
@harryboby7563
26 күн бұрын
This is an interesting perspective, thanks for sharing! I do think having support, both emotionally and economically (so you don't have to work and can focus on recovery) can have a huge impact on your chances
@kirstensuhr7094
24 күн бұрын
Hi frim Germany ⭐✨🙏 i live alone and i am completely bedridden years now and have Zero Support from my Family or friends
Id love to share my story. These helped me to have some hope
@harryboby7563
29 күн бұрын
Would love to hear your story, and so glad the recovery videos have helped!
@bertibear1300
27 күн бұрын
It was radiation poisoning.
Apparently, I have done all the things that this woman has done but I am 3 1/2 years end of severe fatigue I'm not getting any better at all. It seems odd that some people get better from the simplest things and other people like myself do everything possible and they're not getting better
@lyesterday
Ай бұрын
im in the same boat. i got sick sep 2021
@monnica-cq4yc
Ай бұрын
this is interesting - fatigue can occur for a few reasons when it comes to these triggers - i also have a neuroscience background but have now moved into mind body practitioner work - the classic brain retraining does not always work as it misses some key elements
@djVania08
Ай бұрын
Could you say more?@@monnica-cq4yc
@gabigabriela2802
Ай бұрын
Befor covid infection in feb 2020 I was vegan for 3 yares, activ 3 to 15 km walk in the woods. The infection was like a bad flu combined with an asthma attack, for 3 days. I recovered, but then all the hell broke loose. Tierd, brain fog, tinnitus, depression, insomnia, tingling in the hands, high blood pressure, arithmia, high heart rate, bad visions, hair loss, tooths start break, bad nails, pain in my muscles, my heart, etc... . I tried FLCCC protocol, nac, niacin, quercitin(my igg and histamine high) D3, magnesium, minerals, detox, IVM. I m from Romania and the doctors didn't help much, they're solution was to send me to psychiatrist... I had all symptoms of hypothyroidism but my blood test ware in normal range (low). Iodine, selenium, zink, cu made a difference for me. But not 400 mcg organic iodine wich I took already, but 3 to 6mg,sometimes 30 mg. Iodine 30 mg give me flu like symptoms, taking all the bromine, fluorine, chlorine out. Natural salt helped me a lot. I stopped eating grains and no longer vegan(this was the first step towards feeling better) Adding Iodine (in mg not mcg) helped me with depression and energy and motivation (fixing my hormones), and regulate my periods (time and quantity). I m curious if iodine will help me with my uterus fibrocystic, and 2 small thyroid fibrocyst. All the best from Romania!
@Shannon_Robbie
Ай бұрын
@@monnica-cq4yc Good to know! What key elements does the brain training miss in your opinion?
I hope that people will be open to listening to her recovery story. "Brain training" is a great tool, especially at our lowest point.
I found this really hard to follow. My experience of LC is that I am the calmest I've ever been. I don't see how relaxing any more So she was very very sick for a long time .... visualised being healthy .... and then was healthy? Huh.
Gupta programme won't help my seizures from long covid
@harryboby7563
Ай бұрын
No, we need to invest in biomarker research and develop new drugs/ repurpose old ones. But I like to share what's helped for other people, and if some of the techniques can at the least minimise some of the suffering and pain of others, then thats a win.
@timmyschannel5
Ай бұрын
Agree, I'd love to share with you what's helped me. Breathwork is definitely one thing
@briechilli4496
Ай бұрын
Yes boby, it is allowing all that you are feeling, allowing also the non allowing toward the allowing, the resistance we feel to symptoms. Breathe and let them express themselves
@schesche69
Ай бұрын
if anything will help you its exactly the GUPTA programme !
@revelation1215
3 күн бұрын
Actually a lot of seizures are helped when working with the vagus nerve. That is why vagus nerve stimulation is one treatment for seizures. Calming down the nervous system is definitely a way to help you system on all levels. Also, are your seizures psychogenic or epileptic?
long convid vs long vAxXiNE
@jackiegroden416
9 күн бұрын
Same? Or different?
@lw1zfog
9 күн бұрын
@@jackiegroden416 ‘post viral syndrome’ ... new ? or old ?